RE: Re: [lowdosenaltrexone] MS/CCSVI

[Guest guest]

As one who has had CCSVI treatment I have to comment that I do not see it as

false hope whatsoever.

I have had PPMS for 15 years and am permanently in a wheelchair so I wasn't

expecting much.

I got more than in my wildest dreams. OK I am still in the wheelchair but can

walk a few steps with a walker now 4 months later.

EVERYTHING else improved or disappeared (apart from I still have cold feet - I

think I can live with that ). The damage MS had wreaked on my body was major

and I would not expect to be totally " normal " in such a short time. CCSVI is

congenital so I have had it for getting on 60 years. Maybe in time my lesions

will heal themselves, maybe not but the absence of brain fog, fatigue and pain

has been worth it for me. We are all different, our MS

(/ALS/Alzheimer's/Parkinson's/Hashimoto's) are all different but we all have

iron deposits on the brain which CCSVI treatment helps resolve. OK some people

restenose but for those who don't or don't for some while, it can be miraculous.

Janet

From: peter.nicholls@...

Date: Tue, 8 Mar 2011 11:05:20 +0000

i have the fear that ccsvi is having the same impact as stem cells, ie false

hope and i am not being negative

i