Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 It might be better if you go slower. Like instead of dropping the afternoon dose next week drop it every third day and try that for a bit Then go to dropping that half pill every 2nd day and so on. Your body needs to get in tune with the dosage going down and it takes time to adapt. Annette On Sat, Apr 9, 2011 at 10:13 AM, jjo193 <jjo193@...> wrote: > I am down to one pill of pred a day. I have started taking 1/2 in the AM > and 1/2 at dinner with the goal of dropping the afternoon dose next week. I > have definitely had a return of aches in my legs/knees. The pain is not so > bad that I can't get through it, but I wonder if the pain means I am having > damage. My initial x-rays were all good. Does the body adjust to the > decrease in pred and the symptoms resolve? My last blood test showed " mild > inflammation " with a SED of 35. I am on MTX and folic acid. I was just > diagnosed in Feb and have been on MTX for 2 months. I want to get off the > pred, and I am determined to do so, but the return of symptoms has me > worried. Anyone who has been through this have any advice or insight? > > Janice in Ga > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 This is good to hear, Janice. I hope you can keep going with it. I, as many others, have tried to 'kick the habit' without success. My latest attempt had me at 5 mg per day, and I stayed there for about 2 months. But I had to go back up because the pain was getting too much even with the strong pain meds. One time a few years ago, I was down to 2 mg per day, but I had so much inflammation, my Rummy made me go back up to my normal 10 mg. This time I'm adding Enbrel to give me a better chance. I noticed you didn't say what strength your pills are. I'm hoping they are 1 mg, are they? Your body is supposed to take over the duty of manufacturing cortisone that your body is lacking, but if you've taken them as long as I have, 20 years, it may be slow to respond. It'll be tough for you anyhow, and I wish you lots of luck and hope it's successful, determination makes a difference, too. Dennis in eastexas On Sat, Apr 9, 2011 at 9:13 AM, jjo193 <jjo193@...> wrote: > > > I am down to one pill of pred a day. I have started taking 1/2 in the AM > and 1/2 at dinner with the goal of dropping the afternoon dose next week. I > have definitely had a return of aches in my legs/knees. The pain is not so > bad that I can't get through it, but I wonder if the pain means I am having > damage. My initial x-rays were all good. Does the body adjust to the > decrease in pred and the symptoms resolve? My last blood test showed " mild > inflammation " with a SED of 35. I am on MTX and folic acid. I was just > diagnosed in Feb and have been on MTX for 2 months. I want to get off the > pred, and I am determined to do so, but the return of symptoms has me > worried. Anyone who has been through this have any advice or insight? > > Janice in Ga > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 I am also going down on my Prednisone daily intake. I am at 5 mg as of today- down from 7.5 mgs. I notice more swelling, but not a lot more pain yet. I hope I can at least keep it this low. So far, it has been tolerable. Dunno if y'all remember, but I was on 40 mgs a day for over 5 months. The NP didn't know better and it caused cataracts to start. So, 5 mgs is a real victory! I hope it goes well for you Janice-- in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 That's great Chris. I hope you will be successful.. Hard to get off the Pred. for me. I will try again soon.  Hugs'  Barbara From: phyllis crubaugh <phylliscrubaugh@...> Subject: Re: [ ] Pred withsrawal Date: Saturday, April 9, 2011, 6:03 PM  I am also going down on my Prednisone daily intake. I am at 5 mg as of today- down from 7.5 mgs. I notice more swelling, but not a lot more pain yet. I hope I can at least keep it this low. So far, it has been tolerable. Dunno if y'all remember, but I was on 40 mgs a day for over 5 months. The NP didn't know better and it caused cataracts to start. So, 5 mgs is a real victory!  I hope it goes well for you Janice-- in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 My pills are 5 mg. I have been on 2.5 mg. in the AM and 2.5mg. in the PM for a week. I am now going to try 1/2 pill in the AM and 1/4 pill in the PM for a week. If that goes okay, I'll try to drop the afternoon pill completely. I haven't been on it that long, so I am hoping I can continue to work my way off. Fingers crossed!! Thanks for the support! Janice in GA > > This is good to hear, Janice. I hope you can keep going with it. I, as many > others, have tried to 'kick the habit' without success. My latest attempt > had me at 5 mg per day, and I stayed there for about 2 months. But I had to > go back up because the pain was getting too much even with the strong pain > meds. One time a few years ago, I was down to 2 mg per day, but I had so > much inflammation, my Rummy made me go back up to my normal 10 mg. This time > I'm adding Enbrel to give me a better chance. > > I noticed you didn't say what strength your pills are. I'm hoping they are 1 > mg, are they? Your body is supposed to take over the duty of manufacturing > cortisone that your body is lacking, but if you've taken them as long as I > have, 20 years, it may be slow to respond. It'll be tough for you anyhow, > and I wish you lots of luck and hope it's successful, determination makes a > difference, too. > > Dennis in eastexas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2011 Report Share Posted April 9, 2011 Good luck to you, too, Chris. Prednisone is such a miracle in terms of symptom relief. it is so unfortunate can have such bad side effects. Janice in GA > > > I am also going down on my Prednisone daily intake. I am at 5 mg as of today- down from 7.5 mgs. I notice more swelling, but not a lot more pain yet. I hope I can at least keep it this low. So far, it has been tolerable. Dunno if y'all remember, but I was on 40 mgs a day for over 5 months. The NP didn't know better and it caused cataracts to start. So, 5 mgs is a real victory! > > I hope it goes well for you Janice-- in SC > > Quote Link to comment Share on other sites More sharing options...
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