Unresponsive to Angioplasty (for CCSVI)

December 5, 2010

Hey all,

On Dec 3rd I underwent the angioplasty for CCSVI. I had less than 50% blockage

on both JV's and no blockage on Azygos. During the procedure I felt some loss of

numbness in my right hand. Brain fog was a little less as well. In post op I

felt my constipation had gotten less as I have had to assist BM's daily and felt

like I really had to go. Same with urination. I cath to urinate and it really

felt like I had to go. Alas when I tried I had to assist BM and cath to urinate.

That afternoon I felt like I was able to walk a bit faster and had more balance.

Unfortunately the next day I woke with a headache and stiff neck which was

expected. I wasn't expecting the numbness in my hand to return and my brainfog

and trouble walking returned. My constant daily dizziness which had subsided

post op had come back too.

So my question is has any1 else had similar experiances? I also would like to

know if any1 out there has seen improovements that just took a while. If so what

are your plans going forward? I'm aware that this is not guarateed to work

overnight and I should be patient. Thanks....

December 5, 2010

Hi

I've had great results but not overly drastic, 'in your face' or 'miraculous'

ones as others have reported on Facebbok and YouTube, but hey, they're coming

along gradually.

Remember what CCSVI is all about - the causes and the outcomes, and what that

means in regards to 'healing' and getting it all working PROPERLY again.

As you yourself have said, it'll just take time. It'll be interesting to see

what is found when you go for your check-up as some people have restenosed quite

rapidly after having had the procedure.

I generally try not to take too much measure of what's going on with me so I

don't stress too much, and when I catch myself starting to test myself by

mentally comparing this day to that day and to that time last month, etc etc

etc, I just use my recently attained 'MS'er skill of wiping my mind and simply

blanking it!

Until I get my rescan done early next year, I'll just stick religiously to the

BBD and blank my mind when I have to so I don't stress myself out (which, of

course, aids restenosis and is a big NO, NO for us as always!)

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: mmacchiarella@...

Date: Sun, 5 Dec 2010 23:16:58 +0000

Subject: Unresponsive to Angioplasty (for CCSVI)

Hey all,

On Dec 3rd I underwent the angioplasty for CCSVI. I had less than 50% blockage

on both JV's and no blockage on Azygos. During the procedure I felt some loss of

numbness in my right hand.

December 6, 2010

Sorry to hear you didn't get a better instant result but hey after just 3

days..... how long did you have MS/CCSVI? I believe CCSVI gives us a kick-start

which we can build on. Having said that, the majority of my (many) symptoms

improved or disappeared without me having to do anything. The mobility issues I

still have and I am exercising like mad (yoga, walker, mini-walker) and noticing

a strengthening of my legs. Regarding incontinence, I felt mine had returned

but after experimenting (at home) I realised that my bladder is giving the same

signals as it always has " Hey, I need to pee NOW " BUT the difference is that

yes, I do need to pee but I can wait. The muscles need strengthening.

Keep perservering. There is a group on Facebook for those who are slow to

respond to treatment - take a look; you are not alone.

You hit the nail on the head - patience. I was advised to do nothing at all but

rest for 2 weeks and then not to start exercising for a month. You have just

had a (minor) invasive procedure so your body needs time to sort itself out.

Also it helps healing to drink a lot of water. You will probably find over the

next month little things each day that are easier. Don't concentrate on what

isn't happening, just be happy when it does.

Happy healing,

Janet