Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 In a message dated 3/6/05 6:58:19 PM Eastern Standard Time, giggles_sk@... writes: > I am terribly scared and I understand by the medical professionals > that I have a tad of a journey ahead of me. > Giggles, What kind of cancer were you diagnosed with and what treatments are you seeking? There are many knowledgable people on this list that can offer information that you can then chose to explore further for your recovery plans. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2005 Report Share Posted March 6, 2005 what kind of cancer do you have and what do the doctors say? C giggles_sk <giggles_sk@...> wrote: Hello: I joined the group for support and further understanding in dealing with my recent diagnoses of cancer. I am terribly scared and I understand by the medical professionals that I have a tad of a journey ahead of me. giggles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hi Geoff, If you don't mind me asking what your other " couple more conditions " are? I have a 17 mo old son who has congenital hypothyroidism basically due to midline birth defects. You can check out his website in my signature if you would like. I really like talking to adults about it all as my son cannot tell me how he feels. I think that's the hardest part for me. I don't know what he is going through as I have never had any of his issues. Thanks Amy Wife to wonderful husband Mark and mommy to Tyler (10), Kaylee (7), Spencer (6) and Chance (15 months, PACC,SOD,ONH,DI,hypothyroid,GHD) Chance's Webpage http://home.comcast.net/~tknbychance/wsb/html/view.cgi-home.html-.html Hello Everyone Hi Folks, Geoff Here, just joined today. Had Hypo since birth but it wasnt diagnosed till i was 3yo, apparantly my parents had to carry me everywhere & I could'nt talk until i started on medication after that & have been taking it ever since. I have annual blood tests to check levels. I am 55 year young now & as I have a couple more conditions & think , what the hell, today is for living, Go for it!. If, through my experiences, I can help anyone, pls. feel free to leave me a message in hte group or e-mail me. Its nice to have people who can empathise with a condition & not class us as hypochondriacs. Looking forward to meeting (metaphorically) likeminded-minded people & maybe meeting neww friends, that woudl be nice. Take Care Everyone, Bye for now Geoff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2005 Report Share Posted March 17, 2005 Hey how are you? My name is Natt and I was also born hypothyroid. Im now 19 and besides having to take medication until im extinct ive had no problems. If you have any questions you would like answered, ill definately have a go at them for you. > Hi Geoff, If you don't mind me asking what your other " couple more conditions " are? I have a 17 mo old son who has congenital hypothyroidism basically due to midline birth defects. You can check out his website in my signature if you would like. I really like talking to adults about it all as my son cannot tell me how he feels. I think that's the hardest part for me. I don't know what he is going through as I have never had any of his issues. Thanks > Amy > Wife to wonderful husband Mark and mommy to Tyler (10), Kaylee (7), Spencer (6) and Chance (15 months, PACC,SOD,ONH,DI,hypothyroid,GHD) > > Chance's Webpage > http://home.comcast.net/~tknbychance/wsb/html/view.cgi-home.html- ..html > Hello Everyone > > > > > Hi Folks, > Geoff Here, just joined today. > > Had Hypo since birth but it wasnt diagnosed till i was 3yo, > apparantly my parents had to carry me everywhere & I could'nt talk > until i started on medication after that & have been taking it ever > since. I have annual blood tests to check levels. > > I am 55 year young now & as I have a couple more conditions & > think , what the hell, today is for living, Go for it!. > > If, through my experiences, I can help anyone, pls. feel free to > leave me a message in hte group or e-mail me. Its nice to have > people who can empathise with a condition & not class us as > hypochondriacs. > > Looking forward to meeting (metaphorically) likeminded-minded people > & maybe meeting neww friends, that woudl be nice. > > Take Care Everyone, Bye for now > Geoff > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 i've heard good things about baclofen. i can't take muscle relaxers, but if i could... i would want to take that one. congrat's on your new doctor. it makes all the difference in the world. -mel > Hi all. These past two weeks for me have been crazy. My pain gets worse and > worse every day, and now I have pain and numbness in both of my feet. I have > been bounced around from dr. to dr. all this past week, and one tells me I > will need surgery in probably 6 months or so for the herniated discs and the > nerves they are pinching, but only prescribed a chiropractor and a soft back > brace ( already tried those and they did not work) and looked at me like I > was crazy for asking for something for pain. Another told me I am not a > candidate for surgery and would only prescribe physical therapy to help the > pain. This one only prescribed Ultram because they never prescribe narcotics > for pain relief unless its for post op. I get about as much pain relief from > Ultram as I do from a glass of water. > > > > Finally, I went to see a pain specialist yesterday and he was Fantastic. He > spent more than an hour with me, went over all the pain and numbness I have > been having, and he actually LISTENED to me!!He prescribed Oxycodone > extended release to take routinely for pain, Oxycodone fast release to take > for breakthru pain, Elavil to help me sleep and Baclofen for muscle spasms. > I am finally getting some relief now after constant suffering over the past > 3 months. I am so happy to have actually found a physician who cares. > > > > Has anyone ever taken Baclofen before? This is a new one to me and I would > like to know if anybody has had good results with it. > > Thanks for listening > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 Hi ! I've been taking Baclofen (10 mg, 3 times a day) for about two years now. It works better than flexoril or soma for me. It does wonders for that 'tremor' type thing that makes my bones feel like they're shaking loose. I have spinal stenosis and a few other 'spondo...' thingies. I've just started with the pain clinic in St. Louis (where Reeve went- superman). The doc I saw was VERY understanding and explained lots to me. I'm waiting for an MRI and return to the clinic on Sept. 1. I hope to write the group about the experience, in the mean time I'm having a rough go of it- swelling, cramps,etc... So, try the baclofen!! GBY > Hi all. These past two weeks for me have been crazy. My pain gets worse and > Has anyone ever taken Baclofen before? This is a new one to me and I would > like to know if anybody has had good results with it. > > Thanks for listening > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Hello , I must say...I have been taking the baclofen three times daily for 3 days now, and I feel no relief from the back spasms. I think my doc is going to have to change this one to a different one. Over the past 10 years, I think I have tried all the muscle relaxers, and the ONLY one that has ever worked for me is Soma. I was given a Valium on one visit to the ER that worked well also. Oh Well! I guess I can tough it out til my next dr. visit. Thanks -- Re: Hello everyone Hi ! I've been taking Baclofen (10 mg, 3 times a day) for about two years now. It works better than flexoril or soma for me. It does wonders for that 'tremor' type thing that makes my bones feel like they're shaking loose. I have spinal stenosis and a few other 'spondo...' thingies. I've just started with the pain clinic in St. Louis (where Reeve went- superman). The doc I saw was VERY understanding and explained lots to me. I'm waiting for an MRI and return to the clinic on Sept. 1. I hope to write the group about the experience, in the mean time I'm having a rough go of it- swelling, cramps,etc... So, try the baclofen!! GBY > Hi all. These past two weeks for me have been crazy. My pain gets worse and > Has anyone ever taken Baclofen before? This is a new one to me and I would > like to know if anybody has had good results with it. > > Thanks for listening > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 Hi Marina, Will keep you in my prayers, get some much needed rest, T > Hello to everyone!! I haven't posted a whole heck of a lot lately. > We have been soooo busy at work that the only thing I can do when I > get home is lay down in bed and try to rest. I have a 3 day weekend > this weekend, so I am most definately looking forward to that!! I > have been flaring since last week and I started myself back up on > the prednisone. I hate doing that cause all I want to do is eat!! > But, it does help settle things down. > > Saw my orthopedist yesterday. He wants to have my right ankle and > knee scoped. He also wants to do trigger finger release in both my > thumbs. He said there really isn't any point in doing the > injections first because with RA in almost ALWAYS ends up in > surgery. Oh joy!! He will inject them for me when I want, we work > together!! One of the perks of working in surgery with your own > doc. I'm just not ready for the surgery of any kind at this point. > If it gets any worse, I may try an injection, but after what our Ken > went through, I think I may just wait it out!! :-) As for the knee > and ankle, that will have to wait. I know being on my feet all day > doesn't help it, but it is still tolerable at this point. I think > I'm getting used to having pain all day, everyday!! > > I also wanted to say hey to everyone and welcome to all the > newbie's!! I have come to think of this group as the " pot of gold > at the end of the rainbow " . > > I hope everyone has a wonderful weekend and as painfree as possible > > Gentle hugs to all......Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2005 Report Share Posted August 20, 2005 I hate takining the predisone too but cause it makes me sweat so badm its gross, i take like 3 showers a day. Thanks god its only for the flares and not everyday!!!! I cant do that, no way. But your right it does help with the flares, good luck, hope you feel well soon. Cortnee marina_troi <marina_troi@...> wrote: Hello to everyone!! I haven't posted a whole heck of a lot lately. We have been soooo busy at work that the only thing I can do when I get home is lay down in bed and try to rest. I have a 3 day weekend this weekend, so I am most definately looking forward to that!! I have been flaring since last week and I started myself back up on the prednisone. I hate doing that cause all I want to do is eat!! But, it does help settle things down. Saw my orthopedist yesterday. He wants to have my right ankle and knee scoped. He also wants to do trigger finger release in both my thumbs. He said there really isn't any point in doing the injections first because with RA in almost ALWAYS ends up in surgery. Oh joy!! He will inject them for me when I want, we work together!! One of the perks of working in surgery with your own doc. I'm just not ready for the surgery of any kind at this point. If it gets any worse, I may try an injection, but after what our Ken went through, I think I may just wait it out!! :-) As for the knee and ankle, that will have to wait. I know being on my feet all day doesn't help it, but it is still tolerable at this point. I think I'm getting used to having pain all day, everyday!! I also wanted to say hey to everyone and welcome to all the newbie's!! I have come to think of this group as the " pot of gold at the end of the rainbow " . I hope everyone has a wonderful weekend and as painfree as possible Gentle hugs to all......Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2005 Report Share Posted August 21, 2005 Hey there Marina: I have not posted much myself lately either......but I do try to read them all..............hope you take advantage of the long weekend and stay off your feet abit............ I actually went out for my bday and danced abit.........paid for it the next day with my knees but I figure they hurt anyway so why not have some fun. My wrists have been flaring for a few days.......so much for getting caught up on housework and yard work. Hope you do get some rest.......... Hugs Pat --- tdianaok <tdianaok@...> wrote: > Hi Marina, > Will keep you in my prayers, get some much needed > rest, T > > > > > > > > > Hello to everyone!! I haven't posted a whole heck > of a lot > lately. > > We have been soooo busy at work that the only > thing I can do when I > > get home is lay down in bed and try to rest. I > have a 3 day > weekend > > this weekend, so I am most definately looking > forward to that!! I > > have been flaring since last week and I started > myself back up on > > the prednisone. I hate doing that cause all I > want to do is eat!! > > But, it does help settle things down. > > > > Saw my orthopedist yesterday. He wants to have my > right ankle and > > knee scoped. He also wants to do trigger finger > release in both my > > thumbs. He said there really isn't any point in > doing the > > injections first because with RA in almost ALWAYS > ends up in > > surgery. Oh joy!! He will inject them for me > when I want, we work > > together!! One of the perks of working in surgery > with your own > > doc. I'm just not ready for the surgery of any > kind at this > point. > > If it gets any worse, I may try an injection, but > after what our > Ken > > went through, I think I may just wait it out!! :-) > As for the knee > > and ankle, that will have to wait. I know being > on my feet all day > > doesn't help it, but it is still tolerable at this > point. I think > > I'm getting used to having pain all day, > everyday!! > > > > I also wanted to say hey to everyone and welcome > to all the > > newbie's!! I have come to think of this group as > the " pot of gold > > at the end of the rainbow " . > > > > I hope everyone has a wonderful weekend and as > painfree as possible > > > > Gentle hugs to all......Marina > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Dancing, Pat? It was soooo worth it, though, wasn't it!! I know I endulge myself like that every so often, knowing that I will pay for it later. It's my little way of being defiance of the RA and taking a little part of my life back. My short moments of denial!! I enjoy those moments!! LOL......Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 June, what a huge part of your life to give up. I think we have to choose our battles some days, don't we? You just have to look the disease in the eye sometimes and tell it where to go. I know that you treasure that dance with your son and I hope you shook your little bootie off! That would be worth a WEEK in bed, wouldn't it! what wonderful memories you must have of that day. You go, girl. Hugs Jane > Jane, I can really relate to the dancing. All my life I have skated and danced. For many years we hung out with 8 other couples and we went dancing every Sat. night and I was usually on the floor from beginning to end. When I had my first knee replacement 8 years ago, the operation was done Nov. 24 and my eldest son was getting married again on Feb. 14. There was no way I was not going to have a dance with my son so I took lots of pain medication and boy did I dance. Of course I spent two days in bed after but it was sure worth it. > > Hugs > June > ---------- > > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.338 / Virus Database: 267.10.14/79 - Release Date: 8/22/2005 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 You cannot give up. You have love for your family, and more strength then you know. It is hard when this happens, but we do the best that we can, and go on. I don't know what to say about your finacial matter, I know its hard with one income. Have you thought of a part time job, and your fiance'taking some extra work on? Not sure what to say. We lived on one income for a over a year until the disability came in, and it was hard, but we managed. I am sorry that your still having so much pain, I know how you feel. I have been in a constant pain for over two years. I am just now finding some relief, because I found a med combo that works. I wish that I had a magical answer for you, but I don't. I will keep you in my prayers, and hope you will feel better soon. You need to talk to your rheumy, let him know how your feeling, and all the pain that your in. Your worry about employment. Hugs, Tawny > Just a note to thank you all so much for the kind words and for > letting me know that I am not alone. > > I ended up at the hospital on Wednesday morning, unable to move. The > pain in my back and legs was excruciating. As soon as I mentioned RA > and fibro to the doctor, he just said... " it's JUST a flare-up " I'm > going to give you a combination steriod shot and a pain shot. Go rest > 2 days at home and see your rheumatologist. So 2 more unpaid days at > home and I'm back at work. > > Financially we are sinking and it's all my fault. I missed a week and > a half just 2 weeks ago because my 5 year old had surgery and needed > her Momma. I just don't know what to do anymore. My fiance doesn't > act upset at me, but he is constantly worrying about money and how we > are going to make it. The stress of me knowing that it's my fault I > am missing work (and of course it's unpaid because I've used all my > vacation and sick time already). > > I've been reading up on disability. But everything I read just > discourages me more. According to what I've read being that I'm just > 34 will count against me. And I must be NOT WORKING to apply, right? > And it will take 3-5 months MINIMUM before approval or denial. So how > can we financially survive??? And that's IF I get approval. A 34 > year old with a failed back surgery, rheumatoid arthritis and > fibromyalgia. I'd probably be denied anyway. > > I just don't think I can take much more guys. I love my children and > fiance more than words can say and know that my kids needs their > Momma. But right now, I just want to give up. I just don't have > anything left to give. > > I just can't. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 Please stop blaming yourself and beating yourself up for something that you have no control over. It is not your fault that you have missed work, anymore that it is any of our fault that our pain and disability keeps us from working or other activities. Your children need you much more than you can ever know - you need to stay strong for them. I know that it must be terribly hard when you are in so much pain, but hang in there. " Just a flare up " , eh? I wish they could have just a flare up themselves ........ that was just so wrong of him to say. Yea, a couple of shots and we're going to be as good as new ....... NOT. I personally think that you should apply for disability - with all that you mentioned, I think you are a good candidate no matter what your age. What's the harm in trying? Again, it is not your fault. We, too, have money problems and I go into the feeling quilty mode too because I can't find a job that I would be able to do and not put myself into a flare (RA/Fibro/OA). I am hoping with my current meds that I can maybe find something, but, honestly, when you need a job where you can stand, sit, and move around when you need, or just sit still when you need, it's kind of hard to find. It is frustrating, I know. Please keep posting and let us know how things are going - we are always here for you - Kathe in CA --- casterramom <casterramom@...> wrote: > Just a note to thank you all so much for the kind > words and for > letting me know that I am not alone. > > I ended up at the hospital on Wednesday morning, > unable to move. The > pain in my back and legs was excruciating. As soon > as I mentioned RA > and fibro to the doctor, he just said... " it's JUST a > flare-up " I'm > going to give you a combination steriod shot and a > pain shot. Go rest > 2 days at home and see your rheumatologist. So 2 > more unpaid days at > home and I'm back at work. > > Financially we are sinking and it's all my fault. I > missed a week and > a half just 2 weeks ago because my 5 year old had > surgery and needed > her Momma. I just don't know what to do anymore. > My fiance doesn't > act upset at me, but he is constantly worrying about > money and how we > are going to make it. The stress of me knowing that > it's my fault I > am missing work (and of course it's unpaid because > I've used all my > vacation and sick time already). > > I've been reading up on disability. But everything > I read just > discourages me more. According to what I've read > being that I'm just > 34 will count against me. And I must be NOT WORKING > to apply, right? > And it will take 3-5 months MINIMUM before approval > or denial. So how > can we financially survive??? And that's IF I get > approval. A 34 > year old with a failed back surgery, rheumatoid > arthritis and > fibromyalgia. I'd probably be denied anyway. > > I just don't think I can take much more guys. I > love my children and > fiance more than words can say and know that my kids > needs their > Momma. But right now, I just want to give up. I > just don't have > anything left to give. > > I just can't. > > > > Kathe in CA ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2005 Report Share Posted August 26, 2005 I second that statement!! Just a flare up, just once I wished they could get one too, or my family members so they understand one fraction of my daily pain!!!! Cortnee Kathe Sabetzadeh <lv2ryd@...> wrote: Please stop blaming yourself and beating yourself up for something that you have no control over. It is not your fault that you have missed work, anymore that it is any of our fault that our pain and disability keeps us from working or other activities. Your children need you much more than you can ever know - you need to stay strong for them. I know that it must be terribly hard when you are in so much pain, but hang in there. " Just a flare up " , eh? I wish they could have just a flare up themselves ........ that was just so wrong of him to say. Yea, a couple of shots and we're going to be as good as new ....... NOT. I personally think that you should apply for disability - with all that you mentioned, I think you are a good candidate no matter what your age. What's the harm in trying? Again, it is not your fault. We, too, have money problems and I go into the feeling quilty mode too because I can't find a job that I would be able to do and not put myself into a flare (RA/Fibro/OA). I am hoping with my current meds that I can maybe find something, but, honestly, when you need a job where you can stand, sit, and move around when you need, or just sit still when you need, it's kind of hard to find. It is frustrating, I know. Please keep posting and let us know how things are going - we are always here for you - Kathe in CA --- casterramom <casterramom@...> wrote: > Just a note to thank you all so much for the kind > words and for > letting me know that I am not alone. > > I ended up at the hospital on Wednesday morning, > unable to move. The > pain in my back and legs was excruciating. As soon > as I mentioned RA > and fibro to the doctor, he just said... " it's JUST a > flare-up " I'm > going to give you a combination steriod shot and a > pain shot. Go rest > 2 days at home and see your rheumatologist. So 2 > more unpaid days at > home and I'm back at work. > > Financially we are sinking and it's all my fault. I > missed a week and > a half just 2 weeks ago because my 5 year old had > surgery and needed > her Momma. I just don't know what to do anymore. > My fiance doesn't > act upset at me, but he is constantly worrying about > money and how we > are going to make it. The stress of me knowing that > it's my fault I > am missing work (and of course it's unpaid because > I've used all my > vacation and sick time already). > > I've been reading up on disability. But everything > I read just > discourages me more. According to what I've read > being that I'm just > 34 will count against me. And I must be NOT WORKING > to apply, right? > And it will take 3-5 months MINIMUM before approval > or denial. So how > can we financially survive??? And that's IF I get > approval. A 34 > year old with a failed back surgery, rheumatoid > arthritis and > fibromyalgia. I'd probably be denied anyway. > > I just don't think I can take much more guys. I > love my children and > fiance more than words can say and know that my kids > needs their > Momma. But right now, I just want to give up. I > just don't have > anything left to give. > > I just can't. > > > > Kathe in CA ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Rita wrote: >Hi Caryn, >Forgive me but what is NT? >I know I have to read all the files but haven't done it yet. It's a book: http://www.amazon.com/exec/obidos/tg/detail/-/0967089735/ -- Ross McKay, Toronto, NSW Australia " Let the laddie play wi the knife - he'll learn " - The Wee Book of Calvin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Channing What do you mean by chronic autoimmune hives and chronic itching? My husband has many symptoms of hypoT but the Va. Doc says his test are normal so he doesn't have it " HAHA " . Of course he beleives them. He has had itching for several years now, usually when he goes to bed ends up getting up and taking a shower before he can get it to stop. Recelently he has developed a very bad rash on his feet. Looks like little red dots & itches really bad. Dr. gave him Hydrocortizone cream. Said she did not know what it is. Cream has helped. I am HypoT. Dottie -- In hypothyroidism , " Channing Ashbaugh " <channing28270@y...> wrote: > > Questions I Have > > > 1. I have Hypothyroidism and I suffer from chronic Autoimmune hives > and chronic itching is there anyone with Hypothyroidism other that me > that has chronic Autoimmune hives and itching? > > > If you know the answers please e-mail me at channing28270@y... I > am looking for snail mail pen pals that can keep my postal mail box > full that deal with chronic Autoimmunne Hives.I would like the people > who would like to be my pen pal to please understand and accept I > write short letters with questions only. If you would like to be my > pen pal please e-mail me at channing28270@y... > > > Channing > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 My feet do that too!!!!! Uncontrollable itching I did and did until I bleed and it still itches!!!!! _____ From: hypothyroidism [mailto:hypothyroidism ] On Behalf Of moveson03 Sent: Sunday, October 23, 2005 11:10 PM hypothyroidism Subject: Re: Hello everyone Channing What do you mean by chronic autoimmune hives and chronic itching? My husband has many symptoms of hypoT but the Va. Doc says his test are normal so he doesn't have it " HAHA " . Of course he beleives them. He has had itching for several years now, usually when he goes to bed ends up getting up and taking a shower before he can get it to stop. Recelently he has developed a very bad rash on his feet. Looks like little red dots & itches really bad. Dr. gave him Hydrocortizone cream. Said she did not know what it is. Cream has helped. I am HypoT. Dottie -- In hypothyroidism , " Channing Ashbaugh " <channing28270@y...> wrote: > > Questions I Have > > > 1. I have Hypothyroidism and I suffer from chronic Autoimmune hives > and chronic itching is there anyone with Hypothyroidism other that me > that has chronic Autoimmune hives and itching? > > > If you know the answers please e-mail me at channing28270@y... I > am looking for snail mail pen pals that can keep my postal mail box > full that deal with chronic Autoimmunne Hives.I would like the people > who would like to be my pen pal to please understand and accept I > write short letters with questions only. If you would like to be my > pen pal please e-mail me at channing28270@y... > > > Channing > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 This sounds A LOT like psoriazis - it's how it usually starts, with itching and/or red dots, rashes. They can be anywhere on the body, including the head. My father has psoriazis and it started with dandruff, which got worse and worse over a period of 2-3 years and eventually the rashes extended on other parts of the body. Please ask your doctor to take this diagnostic posibility into consideration, as psoriazis can be kept under control relatively well if detected early. But once it " takes off " it is much more difficult to control, and it can be a very debilitating disease. ~Cristina (this is my first post) On 10/24/05, moveson03 <moveson03@...> wrote: > > Channing > What do you mean by chronic autoimmune hives and chronic itching? My > husband has many symptoms of hypoT but the Va. Doc says his test are > normal so he doesn't have it " HAHA " . Of course he beleives them. He > has had itching for several years now, usually when he goes to bed > ends up getting up and taking a shower before he can get it to stop. > Recelently he has developed a very bad rash on his feet. Looks like > little red dots & itches really bad. Dr. gave him Hydrocortizone > cream. Said she did not know what it is. Cream has helped. I am > HypoT. > Dottie > > -- In hypothyroidism , " Channing Ashbaugh " > <channing28270@y...> wrote: > > > > Questions I Have > > > > > > 1. I have Hypothyroidism and I suffer from chronic Autoimmune > hives > > and chronic itching is there anyone with Hypothyroidism other that > me > > that has chronic Autoimmune hives and itching? > > > > > > If you know the answers please e-mail me at channing28270@y... I > > am looking for snail mail pen pals that can keep my postal mail > box > > full that deal with chronic Autoimmunne Hives.I would like the > people > > who would like to be my pen pal to please understand and accept I > > write short letters with questions only. If you would like to be > my > > pen pal please e-mail me at channing28270@y... > > > > > > Channing > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Look on http://www.thyroid.about.com search for urticaria (hives). Gracia > Channing > What do you mean by chronic autoimmune hives and chronic itching? My > husband has many symptoms of hypoT but the Va. Doc says his test are > normal so he doesn't have it " HAHA " . Of course he beleives them. He > has had itching for several years now, usually when he goes to bed > ends up getting up and taking a shower before he can get it to stop. > Recelently he has developed a very bad rash on his feet. Looks like > little red dots & itches really bad. Dr. gave him Hydrocortizone > cream. Said she did not know what it is. Cream has helped. I am > HypoT. > Dottie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 , I don't blame you a bit! But I'm glad to hear you got in to see him again. I'm still waiting to find out if I need a myelogram, and he's had my MRI films for nearly 4 weeks, and the radiologist's report even longer. Before I actually see him again I first need the tests ordered and scheduled, then to go have the tests, then to make the appointment when he's ready to see me. ly, the idea of having a needle stuck into my spine has never been my idea of a good way to spend a lazy afternoon. I hear you. Too bad we can't go the same day and be roomies while we lie there praying we don't get headaches. I don't recall your age, but he did tell me that people over 40 rarely get the spinal headaches. As far as I'm concerned, yeah, go ahead and lose it. That's what we're here for. Maybe your primary doctor has some other meds you can take until your surgery? I'm on Elavil and Neurontin, and Rand said I won't need to be off them, although my primary says she wants me off the Neurontin for a couple of weeks. She mentioned giving me Codeine during that time, but I wonder about that. It's an opioid too, isn't it? I'm sure Rand just wants you off the methadone to be sure your post-operative pain meds will be effective. Of course it's scary. Do you have someone to go with you when you go for the myelogram? Remember I'm fairly close by, and will be happy to chat on the phone or go out for triple chocolate sundaes (and I vote for the chocolate!) Sharon [ ] hello everyone >i saw dr rand wednesday and i must say that i have been tossed into > a depression. > > i am wondering if this is the place to 'be' or vent my fears and > such when everyone i talk to in my life (who have not been through > anything like this) is telling me to 'stay positive' and remember > it's almost over, and 'not that bad'. > > i really need to know what is ok in here. is it ok to lose it > because i am being scheduled for a mylegram, and that dr rand told > me that that it would be great if, in addition to everything else, > get off of methadone, the only pain reliever i take? > > hmmm...one year ago i was a two pack a day smoker and taking enough > morphine to put down the olympic ski team. all that and began my > bachelors degree. > > i dunno- i am feeling very robbed and not positive, what do you all > do when that happens? - when the fear is just too much? > > thanks, and you are all in my thoughts and prayers. > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 > > , I don't blame you a bit! > > But I'm glad to hear you got in to see him again. I'm still waiting to find > out if I need a myelogram, and he's had my MRI films for nearly 4 weeks, and > the radiologist's report even longer. Before I actually see him again I > first need the tests ordered and scheduled, then to go have the tests, then > to make the appointment when he's ready to see me. > > ly, the idea of having a needle stuck into my spine has never been my > idea of a good way to spend a lazy afternoon. I hear you. Too bad we can't > go the same day and be roomies while we lie there praying we don't get > headaches. I don't recall your age, but he did tell me that people over 40 > rarely get the spinal headaches. > > As far as I'm concerned, yeah, go ahead and lose it. That's what we're here > for. > > Maybe your primary doctor has some other meds you can take until your > surgery? I'm on Elavil and Neurontin, and Rand said I won't need to be off > them, although my primary says she wants me off the Neurontin for a couple > of weeks. She mentioned giving me Codeine during that time, but I wonder > about that. It's an opioid too, isn't it? I'm sure Rand just wants you off > the methadone to be sure your post-operative pain meds will be effective. > > Of course it's scary. Do you have someone to go with you when you go for > the myelogram? > > Remember I'm fairly close by, and will be happy to chat on the phone or go > out for triple chocolate sundaes (and I vote for the chocolate!) > > Sharon > > > [ ] hello everyone > > > >i saw dr rand wednesday and i must say that i have been tossed into > > a depression. > > > > i am wondering if this is the place to 'be' or vent my fears and > > such when everyone i talk to in my life (who have not been through > > anything like this) is telling me to 'stay positive' and remember > > it's almost over, and 'not that bad'. > > > > i really need to know what is ok in here. is it ok to lose it > > because i am being scheduled for a mylegram, and that dr rand told > > me that that it would be great if, in addition to everything else, > > get off of methadone, the only pain reliever i take? > > > > hmmm...one year ago i was a two pack a day smoker and taking enough > > morphine to put down the olympic ski team. all that and began my > > bachelors degree. > > > > i dunno- i am feeling very robbed and not positive, what do you all > > do when that happens? - when the fear is just too much? > > > > thanks, and you are all in my thoughts and prayers. > > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Dear , You can vent here, express your fears...whatever....this is a big thing in your life and whatever you decide to do will have a big impact on how the rest of your life plays out. It is why the board sprang to life...to have a place to go through this " event " with others who understand our fears, concerns and joys. Yes joys. I remember after surgery writing that I couldn't even get my friggin' underpants on....and it was this group that bolstered me up and got me seeing that the future held the possibility that I could dress myself and care for my family...and why, here I am just a little while later wondering if I could sneak in a little downhill skiing while we are on vacation next week with my family.....alls to say...as bad as you feel now....and as terrible as you are going to feel after surgery, you will survive it, and then be able to get back to your life. I am not a doctor, nor do I have any medical training, so I have no idea why Dr Rand wants you off methadone, or how soon before surgery that would be....but if he was not suggesting how to accomplish that by transitioning to something else maybe you should call back for a clarification? I can't believe he wants you to go cold turkey with no replacement. I had surgery a year ago with Dr Rand. It is no cake walk...it will not be easy...but I believe the better shape you are in on the " front side " the better chances you have for a good recovery. So being proactive and quitting smoking (Yeah !!!) and maybe even changing to a different med protocol are all things that work in your favor for a better tomorrow. By the way, anyone that is telling you it is " almost over " needs to be told that the recovery is long...so it is not " almost over " . The only thing that is closer, is your surgery date...so I guess in that way, you are almost done waiting. But we will be here helping you along . My personal belief is that a good mental outlook helps get through the long days right after surgery when you will not feel like doing much of anything, but you will have to fight to move and gain strength if you want to recover. The way I always looked at it, I felt I picked a great surgeon and hospital. I arranged my personal life as best I could. I expected all those people, surgeon, nurses, husband, child, to be in top form to meet my needs...but I also had a responsibility to be in top form too. For me that included good mental attitude, good physical condition and creating enough space in my life to heal. As an aside, earlier this week NPR had a doctor on speaking of the liklihood that quitting smoking would trigger depressive episodes with those who are predisposed to depression. He clearly felt both conditions should be treated together and urged people seeking treatment to find doctors and therapists who recognized the newest information on these two conditions required a treatment for both...smoking cessation and depression. I know you ar somewhat past the early stages of quitting the " green monster " but it may be that if you really are feeling this blue that more is going on than you think. Please don't misunderstand....I think it stinks to be us...this looms large in our lives and requires a complete change of plans for out lives....but still... Perhaps I read your post wrong and maybe you are really just saying how frightening this all is. I know that once I accepted that I was headed to surgery my feelings became very complicated. Most of my friends didn't really see what the big deal was...I mean after all, in this day and age, surgery is for everyone, stars, athletes, ER on t.v....it always comes out alright....right? Well I could think of hundreds of scenarios that were not like that....but in the end...I still wanted to stop the agony and get on with my life. Dr Rand assured me that the pain I was experiencing would be gone after the first surgery and it was...and after the second days surgery things have only gotten better. I am pain free, off narcotics and doing most everything I want...so it is not an impossible thing...but you will have to want it....and you will have to want it bad. After all, remember that it is elective surgery. Should you choose to have it done, the chances are,if you follow your orders and prepare like your life depends on it, you will come through it just fine. Take Care, Cam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 >Hi Sharon, Thanks for your reply. I am sorry I dont log on much, and cannot wait to be the one whose shoulder is available! In the meantime, I cannot stay online typing for a long time anymore so what I write is usually short. I am 39! LOL....This has to be the first time in awhile that I wish I were older regarding those headaches...and I would love to be roomies! I truly am a lot more fun in person. Please call Priscilla regarding your MRI films, and let me know when your appointment is. I am going to be called regarding the Myelogram....I tend to let my machine catch my calls lately! And, Sharon I would love to hang out sometime! I am not sure, however I love them about the chocolate sundaes....one more question. Has anyone packed on pounds? I have gained almost 50!! I went from (almost) getting my belly peirced (thank the gods I didnt) to not being able to move, quitting smoking and gaining wayyy to much weight! Anyone lose it post-op?? Thanks everyone and know my prayers and thoughts are with you! > , I don't blame you a bit! > > But I'm glad to hear you got in to see him again. I'm still waiting to find > out if I need a myelogram, and he's had my MRI films for nearly 4 weeks, and > the radiologist's report even longer. Before I actually see him again I > first need the tests ordered and scheduled, then to go have the tests, then > to make the appointment when he's ready to see me. > > ly, the idea of having a needle stuck into my spine has never been my > idea of a good way to spend a lazy afternoon. I hear you. Too bad we can't > go the same day and be roomies while we lie there praying we don't get > headaches. I don't recall your age, but he did tell me that people over 40 > rarely get the spinal headaches. > > As far as I'm concerned, yeah, go ahead and lose it. That's what we're here > for. > > Maybe your primary doctor has some other meds you can take until your > surgery? I'm on Elavil and Neurontin, and Rand said I won't need to be off > them, although my primary says she wants me off the Neurontin for a couple > of weeks. She mentioned giving me Codeine during that time, but I wonder > about that. It's an opioid too, isn't it? I'm sure Rand just wants you off > the methadone to be sure your post-operative pain meds will be effective. > > Of course it's scary. Do you have someone to go with you when you go for > the myelogram? > > Remember I'm fairly close by, and will be happy to chat on the phone or go > out for triple chocolate sundaes (and I vote for the chocolate!) > > Sharon > > > [ ] hello everyone > > > >i saw dr rand wednesday and i must say that i have been tossed into > > a depression. > > > > i am wondering if this is the place to 'be' or vent my fears and > > such when everyone i talk to in my life (who have not been through > > anything like this) is telling me to 'stay positive' and remember > > it's almost over, and 'not that bad'. > > > > i really need to know what is ok in here. is it ok to lose it > > because i am being scheduled for a mylegram, and that dr rand told > > me that that it would be great if, in addition to everything else, > > get off of methadone, the only pain reliever i take? > > > > hmmm...one year ago i was a two pack a day smoker and taking enough > > morphine to put down the olympic ski team. all that and began my > > bachelors degree. > > > > i dunno- i am feeling very robbed and not positive, what do you all > > do when that happens? - when the fear is just too much? > > > > thanks, and you are all in my thoughts and prayers. > > > > > > > > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 >Dear Cam, Thank you so much for your thoughts and kindness. I was told five years ago that I would need this surgery and it has been downhill since. I truly believe that I tried too hard to always be positive, I was taking care of my ailing parents, had a ten year relationship, and worked a great job. Today all that is gone. Mom and dad are worried about me now..etc. I guess I should have cried back then and not been so...accepting of it all. I truly was the picture of positivity and now I am feeling it all. But I am better today than the day I vented. I guess I only want to wake up and begin the long road to healing. I know it isnt over, far from it, but the whole nightmare will be on its way out, and I will be stronger for it and will have more to offer others, as you are with me. Cam, Dr Rand stated that I need to try to get off of Methadone- period. He asked me to get off of morphine, I did that and now I have to cut back on the only thing that gets me out of bed- so I am upset. As I said to Sharon, I wish I could write more, but I cant right now, please dont think that I am not reading posts and want to comment, feel for others, and wish you all the best. And most of all appreciate you all for being here for me during such a trying time. I would love to go to the Boston dinner shindig if that is ok. Sharon are you going? If so karen could pick you up and bring both of us... Take care! > Dear , > > You can vent here, express your fears...whatever....this is a big > thing in your life and whatever you decide to do will have a big > impact on how the rest of your life plays out. It is why the board > sprang to life...to have a place to go through this " event " with > others who understand our fears, concerns and joys. Yes joys. I > remember after surgery writing that I couldn't even get my friggin' > underpants on....and it was this group that bolstered me up and got > me seeing that the future held the possibility that I could dress > myself and care for my family...and why, here I am just a little > while later wondering if I could sneak in a little downhill skiing > while we are on vacation next week with my family.....alls to > say...as bad as you feel now....and as terrible as you are going to > feel after surgery, you will survive it, and then be able to get > back to your life. > > I am not a doctor, nor do I have any medical training, so I have no > idea why Dr Rand wants you off methadone, or how soon before surgery > that would be....but if he was not suggesting how to accomplish that > by transitioning to something else maybe you should call back for a > clarification? I can't believe he wants you to go cold turkey with > no replacement. > > I had surgery a year ago with Dr Rand. It is no cake walk...it will > not be easy...but I believe the better shape you are in on > the " front side " the better chances you have for a good recovery. So > being proactive and quitting smoking (Yeah !!!) and maybe even > changing to a different med protocol are all things that work in > your favor for a better tomorrow. > > By the way, anyone that is telling you it is " almost over " needs to > be told that the recovery is long...so it is not " almost over " . The > only thing that is closer, is your surgery date...so I guess in that > way, you are almost done waiting. But we will be here helping you > along . > > My personal belief is that a good mental outlook helps get through > the long days right after surgery when you will not feel like doing > much of anything, but you will have to fight to move and gain > strength if you want to recover. The way I always looked at it, I > felt I picked a great surgeon and hospital. I arranged my personal > life as best I could. I expected all those people, surgeon, nurses, > husband, child, to be in top form to meet my needs...but I also had > a responsibility to be in top form too. For me that included good > mental attitude, good physical condition and creating enough space > in my life to heal. > > As an aside, earlier this week NPR had a doctor on speaking of the > liklihood that quitting smoking would trigger depressive episodes > with those who are predisposed to depression. He clearly felt both > conditions should be treated together and urged people seeking > treatment to find doctors and therapists who recognized the newest > information on these two conditions required a treatment for > both...smoking cessation and depression. I know you ar somewhat past > the early stages of quitting the " green monster " but it may be that > if you really are feeling this blue that more is going on than you > think. Please don't misunderstand....I think it stinks to be > us...this looms large in our lives and requires a complete change of > plans for out lives....but still... > > Perhaps I read your post wrong and maybe you are really just saying > how frightening this all is. I know that once I accepted that I was > headed to surgery my feelings became very complicated. Most of my > friends didn't really see what the big deal was...I mean after all, > in this day and age, surgery is for everyone, stars, athletes, ER on > t.v....it always comes out alright....right? Well I could think of > hundreds of scenarios that were not like that....but in the end...I > still wanted to stop the agony and get on with my life. Dr Rand > assured me that the pain I was experiencing would be gone after the > first surgery and it was...and after the second days surgery things > have only gotten better. > > I am pain free, off narcotics and doing most everything I want...so > it is not an impossible thing...but you will have to want it....and > you will have to want it bad. After all, remember that it is > elective surgery. Should you choose to have it done, the chances > are,if you follow your orders and prepare like your life depends on > it, you will come through it just fine. > > Take Care, Cam > Quote Link to comment Share on other sites More sharing options...
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