RE: CCSVI - My procedure in Edinburgh (Rachael)

[Guest guest]

Your results are not nothing much, they are huge!

Well done.

It is just so wonderful to be able to do little things again, isn't it - like

doing up your bra strap, putting on your shoes and tying the laces without need

for a half hour snooze afterwards, to sleep through the whole night, etc., etc.

Keep improving!

Janet

To: mscured

From: rachael.m.thomas@...

Date: Tue, 16 Nov 2010 05:47:48 +1030

Subject: RE: CCSVI - My procedure in Edinburgh

Hi all

Just a brief update on my 'CCSVI journey' - I've updated the members on the

MS-Diet group and thought I should update everyone here too.

I had the procedure on the 9th of November in Edinburgh. I had severe stenosis

of my Azygous (75% stenosis), malformed valves in my jugulars with stenosis high

in the right jugular behind my right ear. I was on the table for just over 2 and

a half hours as the stenosis in the Azygous took a lot of ballooning.

Dr. Reid didn't expect me to be feeling very good at all until next week and

expected me to go backwards a bit for a few days afterwards due to the pain and

sedation etc.......but, me being me, I just couldn't stay in bed!

I haven't done much since we got home, but CAN report that my walking is much

easier and my eyes (which have been grey throughout the last couple of years)

are back to being bright azure blue again! The whites of my eyes are white again

too.

My left foot which was continually cold and darkish in colour, is now warm and

the same size and colour of my right foot! This thrilled Dr. Reid as it happened

on the table!!

My left ankle and leg was also very sore to the touch, but is now far improved.

My hubby can now touch my leg without me punching him!

My balance is pretty good again and once I regain confidence and leg strength, I

should be walking without the 'leg-swing' that I've had for quite a few years

now too.

I now have improved heat tolerance and am able to feel cold again! Thank

goodness I never threw out my jumpers!!

Whilst I know that many have reported HUGE improvements straight after their

procedures, I'm scratching my head about a couple of their reports. Dr Reid has

ordered me NOT to push myself for a week, and to push myself and exercise only

after a week's rest.

I will start re-entering the world of truly 'pushing myself' and exercising once

the recommended time of rest has passed. I cannot wait to get 'active' again!!

A final note on MY procedure - I didn't have stents as Dr. Reid thought that if

we opted for that, it wouldn't leave many options were the Azygous to restenose

after stenting, and because rates of stenosis are relatively quite small.

5 days after the procedure now - I can stand for a much longer period of time,

am only habitually touching walls as I walk through the house now (not out of

necessity!), am able to hold the contents of my bladder through the night (no

more 'midnight dashes'!), can crouch and bend, my feet have 'shrunk' back almost

to my 'normal' size and am able to fit back into my shoes again, 'rugging up' is

again possible and my 'night-blindness' is nowhere near as total!

All of the things that I have mentioned in my update may seem a bit 'nothing

much' to some, but they're ALL making a huge difference in my days and in my

nights! Each day I can feel that my body is waking up again and that my

improvements will continue.

As always, I'll be happy to answer any questions people may have.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

[Guest guest]

That is just amazing! And you are right. it IS a huge deal. I am so happy

for you.

I say it again.. I think each and every one of us should be evaluated for

CCSVI.

Yvette

mscured

> From: rachael.m.thomas@...

> Date: Tue, 16 Nov 2010 05:47:48 +1030

> Subject: RE: CCSVI - My procedure in Edinburgh

>

> Hi all

>

> Just a brief update on my 'CCSVI journey' - I've updated the members on the

> MS-Diet group and thought I should update everyone here too.

>

>