Jump to content
RemedySpot.com

Zipperhead #3

Rate this topic


Guest guest

Recommended Posts

Dear Amazing Folks,

We are about to embark on zipperhead #3, and then hopefully the big

bad monster (pain) will leave my family alone! tee he he

First my daughter was dx'ed at 9 years. Decompressed at 9 1/2.

The decompression was her 4th, but not last surgery. She has many

other problems.

Then I was dx'ed (after much run around - as we are learning is quite

common with this entity.) in my thirties. Apparently looking back I

was having symptoms that no one saw as valid since I was adolescent

(well, to be quite honest - the symptoms are quite vague, and

non-discript - then if that were not enough - they play hide & seek!).

No wonder my parents thought I was 'out there'. We could probably

understand a little better if we were not subjected to so many

incredibly arrogant/ignorant opinions - why we look a little

'off'...:0)

Now onto zipperhead #3, with the lovely controversial 'minimal

herniation'. Finally, someone agreed that missing 30 days of school a

year, living in pain, and vomiting up your insides isn't acceptable or

normal (for lack of a better word!)...particularly when your brain is

sliding past your skull. My son (Glenn) will be decompressed coming

up on 8/22/01 (date has been changed several times.)

Please keep the little bugger (well, he is almost a dreaded teenager!

ha) in your thoughts and prayers...:0)

Thanks for being a wonderful group of people, and being here,

N--->ACM 1 (successfully decompressed), mom to 10 years

Budd-Chiari (successfully decompressed & Noonan Syndrome = heart,

gastro/growth, eye, & bleeding dx'es, and Glenn 12 years ACM 1

(fighting against the idea that he is even sick... Ah youth!), wife

to Bob - the computer geek...in NJ.

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...