Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 You may not have seen this video put out by Ameds in Poland - It was exactly like that. It is 9 weeks since my treatment today and whilst I am still in my wheelchair EVERYTHING else has returned 100% apart from incontinence which is fine most of the tiime but I do still have the odd panic and I still have cold feet. I am walking a few yards with my walker every day and balance is still not there. People without MS would then wonder what on earth I was so ecstatic about. Slurred speech, blurred vision, headaches, neck ache, (everything ache), tinnitis, neuralgia, ON, dizziness.............. and that's just the head - get the picture - it has all gone! I have just had the best Christmas in over 15 years, being able to decorate the tree without wondering what was going on every 2 seconds, wrapping up gifts without getting the sellotape stuck to itself or me, writing labels not only legibly but elegantly, and remembering what I'd put in each parcel. , stick to your guns and continue refusing all the mainstream drugs - they do more harm than good. Sorry I can't help on LDN - never took it. Janet To: mscured From: sonia_butterfly@... Date: Mon, 27 Dec 2010 18:59:46 +0000 Subject: good ccsvi video Hi guys, I thought I would share this video with you, it summarizes everything about the liberation treatment. Here in Czech Republic, they dont approve of this procedure, or maybe some doc does but I havent found out yet. _http://watch.ctv.ca/news/w5/the-liberation-treatment/#clip237617_ (http://watch.ctv.ca/news/w5/the-liberation-treatment/#clip237617) And now a bit update on my ms relapse/lyme struggle. I'm in remission since 21st Oct 2010, MRI has shown a big lesion between C 4 - 5 in the spinal cord and after a few weeks of getting better, symptoms came back 16th Dec. I have been on avonex since sept 2009 and now the doc gives me choice between rebif and tysabri which both feel like a nightmare. I have stiff hands, sore feet and unsensitivity issues with my belly. Tomorrow the doc is gonna offer me steroids which I dont believe in aynmore. So there is this final step of mine, going my own way and not doing what doc says, or trying these horrible drugs. I havent had my take with LDN - Revia its called over here - yet, and I would like to hear some of your insight. And yes Dudley, I am familiar with your links, I just want some REAL advice. Thanks a lot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 Great site. I'm glad you're doing so well. > > > You may not have seen this video put out by Ameds in Poland - > > It was exactly like that. > > It is 9 weeks since my treatment today and whilst I am still in my wheelchair EVERYTHING else has returned 100% Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2010 Report Share Posted December 27, 2010 > > , > I take LDN and it's been a miracle for me. I still have to stick to BBD and avoid anything artificial, but on a typical day, I have few, if any symptoms. Before LDN I had ON, no balance, no feeling in my left leg, brain fog was horrible, I stuttered and slurred my speech badly enough that my own children could barely understand me, couldn't drive, and was in constant pain. Since LDN, I have mild symptoms if eat something I shouldn't. I don't take anything else, (except supplements) and I've never taken standard ms drugs. I have SPMS and progression has stopped. Yvette > > To: mscured > From: sonia_butterfly@... > Date: Mon, 27 Dec 2010 18:59:46 +0000 > Subject: good ccsvi video > > > > > > > H So there is this final step of mine, going my own way and not doing what > doc says, or trying these horrible drugs. I havent had my take with LDN - > Revia its called over here - yet, and I would like to hear some of your > insight. And yes Dudley, I am familiar with your links, I just want some > REAL advice. > > Thanks a lot > > > > > > Quote Link to comment Share on other sites More sharing options...
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