Guest guest Posted December 12, 2010 Report Share Posted December 12, 2010 Sent from my Verizon Wireless BlackBerry When are routine MRIs too many My neuro wants to do Mris every time I start a relapse. This is often three times per year. His treatment plan never changes because I am on IVIG PROTOCOL every three weeks. I have another MRI scheduled for wed after a more severe relapse than usual which started three weeks ago. I'm getting tired of two hundred mile paratransit ride through the snow each way. Since nothing changes in treatment except counting new lesions or one MRI when all my prev lesions AND plaque had disappeared; I want to cancel this latest MRI. am I over reacting? Despite my mostly natural protocol, My ms seems to have taken a progressive relapsing protocol regardless. The ivig has sEemed to have kept relapsed brief and somewhat mild for the most part. Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2010 Report Share Posted December 12, 2010 Sent from my Verizon Wireless BlackBerry When are routine MRIs too many My neuro wants to do Mris every time I start a relapse. This is often three times per year. His treatment plan never changes because I am on IVIG PROTOCOL every three weeks. I have another MRI scheduled for wed after a more severe relapse than usual which started three weeks ago. I'm getting tired of two hundred mile paratransit ride through the snow each way. Since nothing changes in treatment except counting new lesions or one MRI when all my prev lesions AND plaque had disappeared; I want to cancel this latest MRI. am I over reacting? Despite my mostly natural protocol, My ms seems to have taken a progressive relapsing protocol regardless. The ivig has sEemed to have kept relapsed brief and somewhat mild for the most part. Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2010 Report Share Posted December 12, 2010 I feel the same way about MRIs - especially when they have to inject the radio active die that our liver has to remove from our blood. It just seems ridiculous to eat and supplement so carefully and then go and inject a radio active chemical into our blood. I have had only three sets of MRIs in 3 years and the Dr. is never surprised at what he sees and they have not resulted in changes in treatment - yet. Communicate your MRI anxieties to your Dr. and maybe he will adjust his procedure. If not, you may want to search for a Dr. that either shares or respects and honors your feelings about it. Tim Diagnosed PPMS 2/1/2008 > > > Sent from my Verizon Wireless BlackBerry > > When are routine MRIs too many > > My neuro wants to do Mris every time I start a relapse. This is often three times per year. His treatment plan never changes because I am on IVIG PROTOCOL every three weeks. I have another MRI scheduled for wed after a more severe relapse than usual which started three weeks ago. I'm getting tired of two hundred mile paratransit ride through the snow each way. Since nothing changes in treatment except counting new lesions or one MRI when all my prev lesions AND plaque had disappeared; I want to cancel this latest MRI. am I over reacting? > > Despite my mostly natural protocol, My ms seems to have taken a progressive relapsing protocol regardless. The ivig has sEemed to have kept relapsed brief and somewhat mild for the most part. > > > Sent from my Verizon Wireless BlackBerry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2010 Report Share Posted December 12, 2010 I would cancel mainly because of the gadolinium (contrast dye). What is he expecting to see? I don't think an MRI should be routine. > My neuro wants to do Mris every time I start a relapse. This is often three times per year. His treatment plan never changes because I am on IVIG PROTOCOL every three weeks. I have another MRI scheduled for wed after a more severe relapse than usual which started three weeks ago. I'm getting tired of two hundred mile paratransit ride through the snow each way. Since nothing changes in treatment except counting new lesions or one MRI when all my prev lesions AND plaque had disappeared; I want to cancel this latest MRI. am I over reacting? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.