RE: Re: Unresponsive to Angioplasty (for CCSVI)/Also comment on caffeine (Amy)

December 12, 2010

Great news!

As someone else with PPMS who has had the CCSVI treatment, I know how excited

you both must be.

Isn't sleep wonderful! To be fatigue-free and knowing that you are doing what

you can to halt MS is, in itself, worth doing it for.

The pain will hopefully diminish in time too.

Congratulations!

Janet

From: amynjunes@...

Date: Sun, 12 Dec 2010 07:42:16 -0600

Subject: Re: Unresponsive to Angioplasty (for CCSVI)/Also comment on

caffeine

My husband was treated in August for CCSVI and had great results which started

to go away after a couple of months. He was found to have restenosed and was

retreated last month. He has PPMS. He now can sleep through the night without

body twitching and legs jerking. His fatigue is gone, he can tolerate the heat

again, and his mood is so much better. No more angry outbursts that happened

several times a day prior to having this done. Now he loses his temper about

once a week, which was what he was like prior to MS. He also has had dreams

again. Just being able to sleep can do wonders. It did not restore his strength,

but he has had gains in strength. It didn't fix everything, he still battles

horrible pain, but it did make some things much better, got him off 4 different

medications for sleep, fatigue, twitching. We went to San Diego and it was

covered by our insurance. They have treated 125 patients and 17 have reported no

changes. We went with the hope of stopping progression because nothing else

could offer that and so far it has, everything else we consider a bonus and we

love our bonuses

Amy Junes

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