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Thanks so much ladies! Dominic was a little over 5 weeks early. He

just turned 11 months on Saturday - he's still a little guy for his

age but he's doing well. We're in the middle of a move - moving from

IN to South FL in a week and a half but our ped wants us to find a

ped. neuro as soon as we get there so first will be finding a good

ped, then we'll look for a new neuro.

On 7/18/05, becky@... <becky@...> wrote:

>

>

> Hi . I see you have gotten a lot of advice already so I just wanted to

> say welcome to the group and please post any questions you have. We are

> happy to help.

>

>

>

> Becky

>

> , repo grad

>

> Pittsburgh, PA

>

>

>

>

> Re: New here

>

>

>

>

> Hi ,

>

>

> Welcome to the group. What is his adjusted age? In the banding world they

> use adjusted. At his age he is too old for repositioning, but he could be

> banded if the severity warranted. Are you near a Cranial Tech? THey have

> the most experience with the scaphy headshape. However, I do believe the

> STARband was approved for scaphy treatment in the past year.

>

>

>

>

>

> Here is a link www.cranialtech.com They have some severity assessment forms

> on their website - look near the bottom of the main page.

>

>

>

>

>

>

>

>

> mom to na (2yrs) DOC Grad and Kiersten (6 wks) Preventative Repo

>

>

> www.thefilyaws.com

>

>

>

>

>

>

>

> <hotmama.maria@...> wrote:

>

>

> Hi all, I am a brand new member - woohoo. My son has scaphocephaly

> and his doctors (a geneticist and our ped) feel he'll 'grow into' his

> head. His head is elongated and if you're over him his head is kind

> of pear shaped - bigger in the back. I am increasingly concerned over

> his head shape - he'll be 1 on August 16th and was a preemie. I was

> wondering if anyone has experience with scaphocephaly - he has

> no 'breaks' in his forehead and it doesn't jut out a lot, but if this

> is something he needs help with I want him to get it now rather than

> later. I understand babies heal well. I just don't want his brain

> growth to be hindered. He had an xray on his head but nothing more

> than that....

>

>

>

>

>

>

>

>

> For more plagio info

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Go study the files, . Then come back and ask us questions. We'll

be ready and waiting!

Barb

[ ] New Here

> My name is , I have two daughters Katelyn (5) and Carly (2).

> Both girls have had a long list of medical problems all pointing to

> mercury toxicity. Both have been vacinated including flu vaccines since

> they have uncontrolled asthma. They have had seizures, asthma,

> infections, possible celliac, and the most obvious of all ADHD.

>

> We have been through such a hard time with them and it's all starting to

> make sense now. With Katelyn my pregnancy craving: TUNA!!!

> I was told to not even bother with testing, all her symptoms clearly point

> to Mercury.

>

> I'm sure I will learn a lot here ... I just don't know where to start??

> --

>

>

>

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I would not recommend an endo, this kind of doc would not be a topdoc in my

book. A topdoc is a doc who has been recommended by other patients, and

understands hormones. You will need to read some books and figure out if

you need more than a bit of $ynthroid. http://www.geocities.com/thyroide

Otherwise you will continue to get substandard treatment.

Gracia

> What do you mean by a TOPDOC? I did see an endocrinologist and she

> was the one that dropped my dosage to keep the side effects down. I

> went from 88mcg down to 50mcg and now back up to 88mcg of synthroid.

> They are suppose to raise it from here whenever I get back in there

> for the blood work. I don't have insurance, so I try to go in when

> I can afford it, which won't be soon. Is there a good site out

> there that explains hypo, its effects to the rest of the body and

> helpful hints?

>

>

> >

> > You just need the proper dose of the RIGHT medicine, certainly not

> a really

> > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

> > Gracia

> >

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is 100mcg of synthyroid a large dose, you said not to go to a endo, what kind of

doc would you recommend. angie

Gracia <circe@...> wrote:

I would not recommend an endo, this kind of doc would not be a topdoc in my

book. A topdoc is a doc who has been recommended by other patients, and

understands hormones. You will need to read some books and figure out if

you need more than a bit of $ynthroid. http://www.geocities.com/thyroide

Otherwise you will continue to get substandard treatment.

Gracia

> What do you mean by a TOPDOC? I did see an endocrinologist and she

> was the one that dropped my dosage to keep the side effects down. I

> went from 88mcg down to 50mcg and now back up to 88mcg of synthroid.

> They are suppose to raise it from here whenever I get back in there

> for the blood work. I don't have insurance, so I try to go in when

> I can afford it, which won't be soon. Is there a good site out

> there that explains hypo, its effects to the rest of the body and

> helpful hints?

>

>

> >

> > You just need the proper dose of the RIGHT medicine, certainly not

> a really

> > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

> > Gracia

> >

--

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I guess I would recommend a doc with a brain who isn't a puppet of the drug

companies and worships TSH. my favorite docs are Broda barnes type

http://www.brodabarnes.org Sorry I don't know anything about $ynthroid.

Gracia

> is 100mcg of synthyroid a large dose, you said not to go to a endo, what

kind of doc would you recommend. angie

>

> Gracia <circe@...> wrote:

> I would not recommend an endo, this kind of doc would not be a topdoc in

my

> book. A topdoc is a doc who has been recommended by other patients, and

> understands hormones. You will need to read some books and figure out if

> you need more than a bit of $ynthroid. http://www.geocities.com/thyroide

> Otherwise you will continue to get substandard treatment.

> Gracia

>

> > What do you mean by a TOPDOC? I did see an endocrinologist and she

> > was the one that dropped my dosage to keep the side effects down. I

> > went from 88mcg down to 50mcg and now back up to 88mcg of synthroid.

> > They are suppose to raise it from here whenever I get back in there

> > for the blood work. I don't have insurance, so I try to go in when

> > I can afford it, which won't be soon. Is there a good site out

> > there that explains hypo, its effects to the rest of the body and

> > helpful hints?

> >

> >

> > >

> > > You just need the proper dose of the RIGHT medicine, certainly not

> > a really

> > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

> > > Gracia

> > >

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date: 7/21/2005

>

>

>

>

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I do agree about finding a Top Doc, and the list on Shomon's

site is a good place to start. But I would not take it as gospel.

Just because someone else has good experience with a doctor, doesn't

necessarily mean he/she is good for everybody else. But it's a start.

When I found my Top Doc's name I also asked on another list if anyone

had eperience with him, to tell me more. One woman has him as her

doctor, and was able to tell me more good information about him. I

would have been crushed if I had travelled those two hours it takes

to get to him, only to find he didn't know anything. Thank heavens he

didn't let me down-- and now someone else I know with hypoT is also

going to him, because I recommended him, and told her what I knew. So

many of us have been let down by doctors, and with a disease like

this, that just gives us more stress we don't need. I do think we

women need doctors who know about womens' hormones, not just thyroid.

Gail

In hypothyroidism , " Gracia " <circe@g...> wrote:

>

> I would not recommend an endo, this kind of doc would not be a

topdoc in my

> book. A topdoc is a doc who has been recommended by other

patients, and

> understands hormones. You will need to read some books and figure

out if

> you need more than a bit of $ynthroid.

http://www.geocities.com/thyroide

> Otherwise you will continue to get substandard treatment.

> Gracia

>

> > What do you mean by a TOPDOC? I did see an endocrinologist and

she

> > was the one that dropped my dosage to keep the side effects

down. I

> > went from 88mcg down to 50mcg and now back up to 88mcg of

synthroid.

> > They are suppose to raise it from here whenever I get back in

there

> > for the blood work. I don't have insurance, so I try to go in

when

> > I can afford it, which won't be soon. Is there a good site out

> > there that explains hypo, its effects to the rest of the body and

> > helpful hints?

> >

> >

> > >

> > > You just need the proper dose of the RIGHT medicine, certainly

not

> > a really

> > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

> > > Gracia

> > >

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date:

7/21/2005

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> In this day and age, goitre is not usually an indication of lack of

iodine. I had a goitre, and when I started taking medication, it was

gone within the month. It was simply because I was hypothyroid. I

started myself on Eltroxin (same as Synthroid) at 100 mcg. But I know

now I had next to nothing left of my own thyroid, and other people's

situation may be different. There's lots of information about goitre on

the web.

Gail

> > > You just need the proper dose of the RIGHT medicine, certainly not

> > a really

> > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

> > > Gracia

> > >

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date:

7/21/2005

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100mcg of synthroid is not a large dose - I take 200mcg of a similar T4

and a further 80 of T3 - I have been taking this dose for over a year. I

also take progesterone and it has helped a lot - you can get mood swings

when you first begin and it helps to understand the process your body is

going through - it is only temporary as your body's hormone receptors

adjust to the progesterone then you will feel a lot better. You need to

read Dr Lee's book on the subject - never take a doctor's word for

anything - always do your own research. The internet is such a blessing

for people like us who have struggled to get proper care!!!

I found my doc on the Top Doc list on Shomon's site and I've been

seeing him for over a year,,,,and I'm in Australia so that was very

lucky as there are only a few on the list - but there are many in the

US so you should be able to find one. My doc has treated my thyroid with

the right dose, given me vitamin injections to help with my energy and

prescribed progesterone just a few months ago - he is very sympathetic

and proactive and is a GP not an Endo.

good luck,

kerry

Re: Re: New Here

is 100mcg of synthyroid a large dose, you said not to go to a endo, what

kind of doc would you recommend. angie

Gracia <circe@...> wrote:

I would not recommend an endo, this kind of doc would not be a topdoc in

my

book. A topdoc is a doc who has been recommended by other patients, and

understands hormones. You will need to read some books and figure out

if

you need more than a bit of $ynthroid.

http://www.geocities.com/thyroide

Otherwise you will continue to get substandard treatment.

Gracia

> What do you mean by a TOPDOC? I did see an endocrinologist and she

> was the one that dropped my dosage to keep the side effects down. I

> went from 88mcg down to 50mcg and now back up to 88mcg of synthroid.

> They are suppose to raise it from here whenever I get back in there

> for the blood work. I don't have insurance, so I try to go in when

> I can afford it, which won't be soon. Is there a good site out

> there that explains hypo, its effects to the rest of the body and

> helpful hints?

>

>

> >

> > You just need the proper dose of the RIGHT medicine, certainly not

> a really

> > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

> > Gracia

> >

--

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In a message dated 6/27/05 11:29:57 PM GMT Daylight Time, knchinnic

i@... writes:

my name is keri. about a year ago i was officially diagnosed with

pa but my problems began way before thta. about 12 years ago i

began having serious neck problems for no reason

Hi Keri,

A belated welcome to the group. I'm glad you found us but sorry you had to.

With me the first signs of PA were on my feet too although it was the heels

that were giving problems. Like you, mine are not too bad at the moment.

I hope you can get all your questions answered. You should. There are a lot

" experienced " and knowledgeable people in this group so there is usually

someone who can relate to whatever experiences are put forward.

Hope to hear from you again.

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Goiter means you need iodine.

> > > > Gracia

What?? I've seen my doctor 4 times since he diagnosed me with Hypo.

The first time he mentioned that I had a " small " goiter was at my last

visit. Should I have other tests done besides the standard TSH and

free t4?

I am on 88mcg of Levoxyl and 1/2 a pill of 25mcg of cytomel, which I

had to beg for him to let me try at my last visit.

thanks

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Jenna,

If you live in the US it is not likely that you have an iodine deficient goiter.

Since the US has iodized salt you should get enough iodine to prevent a goiter.

I would look for another doctor and get a second opinion. Thyroid nodules need

to be looked at. I would also ask your Dr, if he noticed the " goiter " on the

first three visits, you need to be informed about all the circumstances

regarding your thyroid and if your Dr isn't going to be up front with you, fire

him. I believe that with proper Thyroid treatment, these should correct

themselves (goiter or nodule). Also, you should request that your standard test

be a complete thyroid panel, looking at TSH, free T4, and free T3. T3 is the

equivalent of Cytomel, so if you are on that, those numbers should be looked at

as well.

Jenn

Jenna OHoran <runnermom1970@...> wrote:

Goiter means you need iodine.

> > > > Gracia

What?? I've seen my doctor 4 times since he diagnosed me with Hypo.

The first time he mentioned that I had a " small " goiter was at my last

visit. Should I have other tests done besides the standard TSH and

free t4?

I am on 88mcg of Levoxyl and 1/2 a pill of 25mcg of cytomel, which I

had to beg for him to let me try at my last visit.

thanks

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I would recommend a smarter doc, read some books, but not testing ad

infinitum. It should be possible to find a doc who has some old fashioned

clinical skills. iodine info at http://www.optimox.com

Gracia

> Goiter means you need iodine.

> > > > > Gracia

>

> What?? I've seen my doctor 4 times since he diagnosed me with Hypo.

> The first time he mentioned that I had a " small " goiter was at my last

> visit. Should I have other tests done besides the standard TSH and

> free t4?

> I am on 88mcg of Levoxyl and 1/2 a pill of 25mcg of cytomel, which I

> had to beg for him to let me try at my last visit.

> thanks

>

>

>

>

>

>

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In a message dated 7/26/05 11:10:49 PM GMT Daylight Time,

famoustigre@... writes:

Hello. I am new to this group. I have had PA for 7 years now. After

trying many meds, Humira is the one that works for me. I have been on

it for about 2 years now. Although it has cleared up most of my

psoriasis and has given me back mobility, I still have inflammation

flare-ups. And I stuggle with fatigue. Anyone in the same boat? BTW: I

am 56 years old.

Hi Tigre,

Welcome to the group. I'm glad you are getting some joy with Humira. I think

just about all of us will be able to identify with you feeling fatigued with

this. Some people, like me, blame the disease itself. Others blame the meds.

Doesn't matter, its the same result in the end.

I hope you get a lot of good from having joined us. Its good to know,

" You're not alone " lol

Take care,

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Thanks, . It is good to know I'm not alone. But the only contact

I have with others who have PA is online. I don't know anyone else in

person who has this. I guess that's what they mean when they say it's

a " rare disease. "

B the end of each week I am really exhausted. I have no energy

reserves. I have to build back up by resting on weekends. Not a very

exciting life!

Tigre

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In a message dated 7/30/05 1:12:31 PM GMT Daylight Time,

famoustigre@... writes:

Thanks, . It is good to know I'm not alone. But the only contact

I have with others who have PA is online. I don't know anyone else in

person who has this. I guess that's what they mean when they say it's

a " rare disease. "

You're right Tigre. I think most of us can say that. I know one guy I used

to work with and he has P. I was talking to him a couple of weeks ago and he

was saying his fingers are quite sore so maybe I will know someone else with it

but I hope not for his sake.

Take care,

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In a message dated 8/2/05 12:57:28 PM GMT Daylight Time, dlneri@...

writes:

1) the doctor

thinks that controlling the disease before I have serious joint

damage is important

Hi Diane and welcome to the group.

I think we would probably all agree that your doctor is right. I hope they

can do something for you quickly enough to stop that happening.

Good luck,

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This is a misperception. See http://www.optimox.com for iodine reasearch

and info.

Gracia

> Jenna,

>

> If you live in the US it is not likely that you have an iodine deficient

goiter. Since the US has iodized salt you should get enough iodine to

prevent a goiter. I would look for another doctor and get a second opinion.

Thyroid nodules need to be looked at. I would also ask your Dr, if he

noticed the " goiter " on the first three visits, you need to be informed

about all the circumstances regarding your thyroid and if your Dr isn't

going to be up front with you, fire him. I believe that with proper Thyroid

treatment, these should correct themselves (goiter or nodule). Also, you

should request that your standard test be a complete thyroid panel, looking

at TSH, free T4, and free T3. T3 is the equivalent of Cytomel, so if you

are on that, those numbers should be looked at as well.

>

> Jenn

>

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I wouldn't trust a website that is trying to sell me something as the end all be

all. In the US iodine is everywhere and you would be hard pressed to not be

getting enough to prevent a goiter.

The issue remains that the dr doesn't appear to be testing thoroughly nor

providing all the information to the patient, which is a bigger concern to me.

Gracia <circe@...> wrote:

This is a misperception. See http://www.optimox.com for iodine reasearch

and info.

Gracia

> Jenna,

>

> If you live in the US it is not likely that you have an iodine deficient

goiter. Since the US has iodized salt you should get enough iodine to

prevent a goiter. I would look for another doctor and get a second opinion.

Thyroid nodules need to be looked at. I would also ask your Dr, if he

noticed the " goiter " on the first three visits, you need to be informed

about all the circumstances regarding your thyroid and if your Dr isn't

going to be up front with you, fire him. I believe that with proper Thyroid

treatment, these should correct themselves (goiter or nodule). Also, you

should request that your standard test be a complete thyroid panel, looking

at TSH, free T4, and free T3. T3 is the equivalent of Cytomel, so if you

are on that, those numbers should be looked at as well.

>

> Jenn

>

--

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I had a long chat with my nurse case manager yesterday (this is a new

benefit with my insurance). I told her about the diagnosis and the

medication that I'll be starting after vacation. She looked up the

medication and the disease and we discussed my options and she

promised that when I start the sulfasalazine she will call me every

day to see how I'm doing on it.

Today I'm very tired. I need to talk to my PCP to see if he wants to

do anything about my mild anemia. I think my B/P medication is making

me tired (that plus the heat).

Diane

>

> In a message dated 8/2/05 12:57:28 PM GMT Daylight Time,

dlneri@c...

> writes:

>

> 1) the doctor

> thinks that controlling the disease before I have serious joint

> damage is important

>

>

> Hi Diane and welcome to the group.

>

> I think we would probably all agree that your doctor is right. I

hope they

> can do something for you quickly enough to stop that happening.

>

> Good luck,

>

>

>

>

>

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Dear Christy

When I was first diagnosed, my doctor started me on PTU and initially

checked my blood every 6 weeks to ensure that I wouldn't go hypo. Blood tests

are the only sure way that you know what's going on, and if I were you, I

would speak to your doctor's office nurse and tell her what you've told us.

Maybe the nurse will okay some tests for you, if not, I would start looking for

another doctor.

Good luck and hang in there.

Joyce

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Hi Christie,

I am 30 years old too, and have been on PTU since Nov

2003. I am still on PTU but with reduce dosage. I have

no experience on Methimazole but I have consume

Carbimazole on the first week of being diagnose with

hyper.

Please take note that it is always a good idea to have

your hormone test (blood test) constantly, especially

during the first two weeks of consuming the

anti-thyroid medicine. Some of anti-thyroid may not be

effective or suitable. I started out with Carbimazole

but my hyper was not under control and suffered

temporary paralysis as a result within the first week.

The doctor then prescribe PTU (Prophythiouracil).

The doctor prescribing the anti-thyroid medicine to

you must monitor closely your hormone level within the

first and second week. If everything is under control,

subsequent blood test interval should be in every 2 to

3 months. Otherwise the doctor may change your

antithyroid medicine.

Do you have palpitation (heart racing)? Tell us your

heart rate, especially during nights when you have

difficulty sleeping. The normal rate should be between

65 to 75 beats per minute.

Western doctor usually says that you can eat anything,

but please do avoid having seafood at this moment (

one or two months). Fish is still ok, i guess, but

avoid clams, squid, seaweed, prawn, etc. If you are

taking any sort of supplements, or energy drink, check

if it contains iodine (usually they do). Try not to

drink Pure water/Reverse Osmosis water as they usually

does not contains minerals in it. As your body goes

into hyper metabolism, you lose all these minerals

very very fast. So a bottle of isotonic drink now and

then is a good idea. (fruit juice and bananas are good

too)

Lastly, hyperthyroidism is not a frightening disease.

Once it is under controlled, you life will very much

be the same again. Please do read up on previous post.

Good luck and hope to hear from you soon.

Best rgds,

Pang

--- christieshuskiesx8 <christieshuskiesx8@...>

wrote:

> My name is Christie and I just turned 30 this past

> June. I was

> diagnosed with hyperthyroidism just when I started

> to lose weight

> grrr.Anyways they put me on 30mg a day of

> Methimazole...I started it

> back in June...Well I guess it is in my system

> really well but I

> can't stand it...I have began to sleep almost 12- 15

> hours a day, I

> still have night sweats and still feel like I am

> about to lose my

> mind because I can't remember things and I am ok one

> day and down the

> next..I have gone from staying busy all day to

> barely wanting to get

> out of the bed...Not to mention that I have gained

> 13 lbs and I am

> miserable about that. They haven't checked me for

> menopause but I

> have every symptom of it including not having a time

> of the month

> since this past May. I had an ultrasound done and

> they had the

> hardest time trying to find my ovaries, she said

> they were really

> tiny...I have two children ages 7 and 9 and I am

> getting ready to go

> back to work next week, but I can't function with no

> energy...I was

> wondering if this same medicine worked on anyone the

> same way it has

> done me..I have told my doctor but she she won't

> check my thyroid

> levels until October..I am scared that it is turning

> into

> hypothyroid...Has anyone else had weight gain? Any

> advice would be

> much appreciated..

>

>

> Christie

>

>

>

>

Send instant messages to your online friends http://uk.messenger.

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Hi

You will need to get your blood checked whenever you feel very different...Too

hot, too cold, sleepy, insomnia. Your body needs time to recover so sleeping

extra is not such a bad thing. But you need to be able to work and to look

after your family and yourself, so you need to find out what's causing your

symptoms. Maybe you can find another doctor. Or a clinic. You just need to

find out where your thyroid hormone levels are. Maybe you can book an

appointment with your doctor and talk to her face to face about how you are

feeling. It is hard for your doctor to avoid someone talking directly to her.

Another thought is to get your husband to go with you to talk with the doctor.

It has been my experience that doctors are more careful with witnesses watching,

and often more patient and thorough. As for whether you are hypo or hyper, we

can't judge. It sounds like you have a mixture of symptoms. I too have a

mixture of hypo and hyper symptoms. It is blood work that defines where I am

at, not symptoms. But if the symptoms change, then I know it's time to get

blood work. Tests for the thyroid panel for me include TSH, Free T3, and Free

T4.

Hope this helps.

Kate

New Here

My name is Christie and I just turned 30 this past June. I was

diagnosed with hyperthyroidism just when I started to lose weight

grrr.Anyways they put me on 30mg a day of Methimazole...I started it

back in June...Well I guess it is in my system really well but I

can't stand it...I have began to sleep almost 12- 15 hours a day, I

still have night sweats and still feel like I am about to lose my

mind because I can't remember things and I am ok one day and down the

next..I have gone from staying busy all day to barely wanting to get

out of the bed...Not to mention that I have gained 13 lbs and I am

miserable about that. They haven't checked me for menopause but I

have every symptom of it including not having a time of the month

since this past May. I had an ultrasound done and they had the

hardest time trying to find my ovaries, she said they were really

tiny...I have two children ages 7 and 9 and I am getting ready to go

back to work next week, but I can't function with no energy...I was

wondering if this same medicine worked on anyone the same way it has

done me..I have told my doctor but she she won't check my thyroid

levels until October..I am scared that it is turning into

hypothyroid...Has anyone else had weight gain? Any advice would be

much appreciated..

Christie

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My heart rate at rest(sitting here at the computer) is 86. I take my blood

pressure when I go to walmart and after walking around it ranges from 90 to

96..I used to be able to feel my heart pounding but that has eased off. She

wanted to put me on a beta blocker but couldn't because my blood pressure is so

low 90/50 most of the time...I called the office twice last week, I am going

over there personally this week..She needs to lower the dose or find another med

that will work because I think what I am taking now is just to strong for me..

Christie

Pang <mailtopang@...> wrote:

Hi Christie,

I am 30 years old too, and have been on PTU since Nov

2003. I am still on PTU but with reduce dosage. I have

no experience on Methimazole but I have consume

Carbimazole on the first week of being diagnose with

hyper.

Please take note that it is always a good idea to have

your hormone test (blood test) constantly, especially

during the first two weeks of consuming the

anti-thyroid medicine. Some of anti-thyroid may not be

effective or suitable. I started out with Carbimazole

but my hyper was not under control and suffered

temporary paralysis as a result within the first week.

The doctor then prescribe PTU (Prophythiouracil).

The doctor prescribing the anti-thyroid medicine to

you must monitor closely your hormone level within the

first and second week. If everything is under control,

subsequent blood test interval should be in every 2 to

3 months. Otherwise the doctor may change your

antithyroid medicine.

Do you have palpitation (heart racing)? Tell us your

heart rate, especially during nights when you have

difficulty sleeping. The normal rate should be between

65 to 75 beats per minute.

Western doctor usually says that you can eat anything,

but please do avoid having seafood at this moment (

one or two months). Fish is still ok, i guess, but

avoid clams, squid, seaweed, prawn, etc. If you are

taking any sort of supplements, or energy drink, check

if it contains iodine (usually they do). Try not to

drink Pure water/Reverse Osmosis water as they usually

does not contains minerals in it. As your body goes

into hyper metabolism, you lose all these minerals

very very fast. So a bottle of isotonic drink now and

then is a good idea. (fruit juice and bananas are good

too)

Lastly, hyperthyroidism is not a frightening disease.

Once it is under controlled, you life will very much

be the same again. Please do read up on previous post.

Good luck and hope to hear from you soon.

Best rgds,

Pang

--- christieshuskiesx8 <christieshuskiesx8@...>

wrote:

> My name is Christie and I just turned 30 this past

> June. I was

> diagnosed with hyperthyroidism just when I started

> to lose weight

> grrr.Anyways they put me on 30mg a day of

> Methimazole...I started it

> back in June...Well I guess it is in my system

> really well but I

> can't stand it...I have began to sleep almost 12- 15

> hours a day, I

> still have night sweats and still feel like I am

> about to lose my

> mind because I can't remember things and I am ok one

> day and down the

> next..I have gone from staying busy all day to

> barely wanting to get

> out of the bed...Not to mention that I have gained

> 13 lbs and I am

> miserable about that. They haven't checked me for

> menopause but I

> have every symptom of it including not having a time

> of the month

> since this past May. I had an ultrasound done and

> they had the

> hardest time trying to find my ovaries, she said

> they were really

> tiny...I have two children ages 7 and 9 and I am

> getting ready to go

> back to work next week, but I can't function with no

> energy...I was

> wondering if this same medicine worked on anyone the

> same way it has

> done me..I have told my doctor but she she won't

> check my thyroid

> levels until October..I am scared that it is turning

> into

> hypothyroid...Has anyone else had weight gain? Any

> advice would be

> much appreciated..

>

>

> Christie

>

>

>

>

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Good for you. We thyroid people often have to push the doctors. My heart did

not slow down after my thyroid was treated with radiation. It happens. I am on

beta blockers and fine. Just goes to show you that we don't really know what to

expect with thyroid disease.

Kate

Re: New Here

My heart rate at rest(sitting here at the computer) is 86. I take my blood

pressure when I go to walmart and after walking around it ranges from 90 to

96..I used to be able to feel my heart pounding but that has eased off. She

wanted to put me on a beta blocker but couldn't because my blood pressure is so

low 90/50 most of the time...I called the office twice last week, I am going

over there personally this week..She needs to lower the dose or find another med

that will work because I think what I am taking now is just to strong for me..

Christie

Pang <mailtopang@...> wrote:

Hi Christie,

I am 30 years old too, and have been on PTU since Nov

2003. I am still on PTU but with reduce dosage. I have

no experience on Methimazole but I have consume

Carbimazole on the first week of being diagnose with

hyper.

Please take note that it is always a good idea to have

your hormone test (blood test) constantly, especially

during the first two weeks of consuming the

anti-thyroid medicine. Some of anti-thyroid may not be

effective or suitable. I started out with Carbimazole

but my hyper was not under control and suffered

temporary paralysis as a result within the first week.

The doctor then prescribe PTU (Prophythiouracil).

The doctor prescribing the anti-thyroid medicine to

you must monitor closely your hormone level within the

first and second week. If everything is under control,

subsequent blood test interval should be in every 2 to

3 months. Otherwise the doctor may change your

antithyroid medicine.

Do you have palpitation (heart racing)? Tell us your

heart rate, especially during nights when you have

difficulty sleeping. The normal rate should be between

65 to 75 beats per minute.

Western doctor usually says that you can eat anything,

but please do avoid having seafood at this moment (

one or two months). Fish is still ok, i guess, but

avoid clams, squid, seaweed, prawn, etc. If you are

taking any sort of supplements, or energy drink, check

if it contains iodine (usually they do). Try not to

drink Pure water/Reverse Osmosis water as they usually

does not contains minerals in it. As your body goes

into hyper metabolism, you lose all these minerals

very very fast. So a bottle of isotonic drink now and

then is a good idea. (fruit juice and bananas are good

too)

Lastly, hyperthyroidism is not a frightening disease.

Once it is under controlled, you life will very much

be the same again. Please do read up on previous post.

Good luck and hope to hear from you soon.

Best rgds,

Pang

--- christieshuskiesx8 <christieshuskiesx8@...>

wrote:

> My name is Christie and I just turned 30 this past

> June. I was

> diagnosed with hyperthyroidism just when I started

> to lose weight

> grrr.Anyways they put me on 30mg a day of

> Methimazole...I started it

> back in June...Well I guess it is in my system

> really well but I

> can't stand it...I have began to sleep almost 12- 15

> hours a day, I

> still have night sweats and still feel like I am

> about to lose my

> mind because I can't remember things and I am ok one

> day and down the

> next..I have gone from staying busy all day to

> barely wanting to get

> out of the bed...Not to mention that I have gained

> 13 lbs and I am

> miserable about that. They haven't checked me for

> menopause but I

> have every symptom of it including not having a time

> of the month

> since this past May. I had an ultrasound done and

> they had the

> hardest time trying to find my ovaries, she said

> they were really

> tiny...I have two children ages 7 and 9 and I am

> getting ready to go

> back to work next week, but I can't function with no

> energy...I was

> wondering if this same medicine worked on anyone the

> same way it has

> done me..I have told my doctor but she she won't

> check my thyroid

> levels until October..I am scared that it is turning

> into

> hypothyroid...Has anyone else had weight gain? Any

> advice would be

> much appreciated..

>

>

> Christie

>

>

>

>

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> HI..can someone please tell me what sort of specialist provides the

> enzymes that people are discussing on this forum. Also for the novice

> here, what are enzymes and where are they derived from!

I use HNI enzymes, no specialist or prescription required

http://www.houstonni.com/

> We are currently having her hair analysed for toxicity, and will then

> start a chelation process in November. Are enzymes involved in the

> chelation process? Also for anyone whose children are going through

> chelation, have you gotten good results.

Chelation was the start of major improvements for my son. I used ALA

to chelate. After about round 50, I no longer had to give enzymes,

but enzymes were very beneficial for my kids until that time.

Dana

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