Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Thanks so much ladies! Dominic was a little over 5 weeks early. He just turned 11 months on Saturday - he's still a little guy for his age but he's doing well. We're in the middle of a move - moving from IN to South FL in a week and a half but our ped wants us to find a ped. neuro as soon as we get there so first will be finding a good ped, then we'll look for a new neuro. On 7/18/05, becky@... <becky@...> wrote: > > > Hi . I see you have gotten a lot of advice already so I just wanted to > say welcome to the group and please post any questions you have. We are > happy to help. > > > > Becky > > , repo grad > > Pittsburgh, PA > > > > > Re: New here > > > > > Hi , > > > Welcome to the group. What is his adjusted age? In the banding world they > use adjusted. At his age he is too old for repositioning, but he could be > banded if the severity warranted. Are you near a Cranial Tech? THey have > the most experience with the scaphy headshape. However, I do believe the > STARband was approved for scaphy treatment in the past year. > > > > > > Here is a link www.cranialtech.com They have some severity assessment forms > on their website - look near the bottom of the main page. > > > > > > > > > mom to na (2yrs) DOC Grad and Kiersten (6 wks) Preventative Repo > > > www.thefilyaws.com > > > > > > > > <hotmama.maria@...> wrote: > > > Hi all, I am a brand new member - woohoo. My son has scaphocephaly > and his doctors (a geneticist and our ped) feel he'll 'grow into' his > head. His head is elongated and if you're over him his head is kind > of pear shaped - bigger in the back. I am increasingly concerned over > his head shape - he'll be 1 on August 16th and was a preemie. I was > wondering if anyone has experience with scaphocephaly - he has > no 'breaks' in his forehead and it doesn't jut out a lot, but if this > is something he needs help with I want him to get it now rather than > later. I understand babies heal well. I just don't want his brain > growth to be hindered. He had an xray on his head but nothing more > than that.... > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Go study the files, . Then come back and ask us questions. We'll be ready and waiting! Barb [ ] New Here > My name is , I have two daughters Katelyn (5) and Carly (2). > Both girls have had a long list of medical problems all pointing to > mercury toxicity. Both have been vacinated including flu vaccines since > they have uncontrolled asthma. They have had seizures, asthma, > infections, possible celliac, and the most obvious of all ADHD. > > We have been through such a hard time with them and it's all starting to > make sense now. With Katelyn my pregnancy craving: TUNA!!! > I was told to not even bother with testing, all her symptoms clearly point > to Mercury. > > I'm sure I will learn a lot here ... I just don't know where to start?? > -- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 I would not recommend an endo, this kind of doc would not be a topdoc in my book. A topdoc is a doc who has been recommended by other patients, and understands hormones. You will need to read some books and figure out if you need more than a bit of $ynthroid. http://www.geocities.com/thyroide Otherwise you will continue to get substandard treatment. Gracia > What do you mean by a TOPDOC? I did see an endocrinologist and she > was the one that dropped my dosage to keep the side effects down. I > went from 88mcg down to 50mcg and now back up to 88mcg of synthroid. > They are suppose to raise it from here whenever I get back in there > for the blood work. I don't have insurance, so I try to go in when > I can afford it, which won't be soon. Is there a good site out > there that explains hypo, its effects to the rest of the body and > helpful hints? > > > > > > You just need the proper dose of the RIGHT medicine, certainly not > a really > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine. > > Gracia > > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date: 7/21/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 is 100mcg of synthyroid a large dose, you said not to go to a endo, what kind of doc would you recommend. angie Gracia <circe@...> wrote: I would not recommend an endo, this kind of doc would not be a topdoc in my book. A topdoc is a doc who has been recommended by other patients, and understands hormones. You will need to read some books and figure out if you need more than a bit of $ynthroid. http://www.geocities.com/thyroide Otherwise you will continue to get substandard treatment. Gracia > What do you mean by a TOPDOC? I did see an endocrinologist and she > was the one that dropped my dosage to keep the side effects down. I > went from 88mcg down to 50mcg and now back up to 88mcg of synthroid. > They are suppose to raise it from here whenever I get back in there > for the blood work. I don't have insurance, so I try to go in when > I can afford it, which won't be soon. Is there a good site out > there that explains hypo, its effects to the rest of the body and > helpful hints? > > > > > > You just need the proper dose of the RIGHT medicine, certainly not > a really > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine. > > Gracia > > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date: 7/21/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 I guess I would recommend a doc with a brain who isn't a puppet of the drug companies and worships TSH. my favorite docs are Broda barnes type http://www.brodabarnes.org Sorry I don't know anything about $ynthroid. Gracia > is 100mcg of synthyroid a large dose, you said not to go to a endo, what kind of doc would you recommend. angie > > Gracia <circe@...> wrote: > I would not recommend an endo, this kind of doc would not be a topdoc in my > book. A topdoc is a doc who has been recommended by other patients, and > understands hormones. You will need to read some books and figure out if > you need more than a bit of $ynthroid. http://www.geocities.com/thyroide > Otherwise you will continue to get substandard treatment. > Gracia > > > What do you mean by a TOPDOC? I did see an endocrinologist and she > > was the one that dropped my dosage to keep the side effects down. I > > went from 88mcg down to 50mcg and now back up to 88mcg of synthroid. > > They are suppose to raise it from here whenever I get back in there > > for the blood work. I don't have insurance, so I try to go in when > > I can afford it, which won't be soon. Is there a good site out > > there that explains hypo, its effects to the rest of the body and > > helpful hints? > > > > > > > > > > You just need the proper dose of the RIGHT medicine, certainly not > > a really > > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine. > > > Gracia > > > > > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date: 7/21/2005 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 I do agree about finding a Top Doc, and the list on Shomon's site is a good place to start. But I would not take it as gospel. Just because someone else has good experience with a doctor, doesn't necessarily mean he/she is good for everybody else. But it's a start. When I found my Top Doc's name I also asked on another list if anyone had eperience with him, to tell me more. One woman has him as her doctor, and was able to tell me more good information about him. I would have been crushed if I had travelled those two hours it takes to get to him, only to find he didn't know anything. Thank heavens he didn't let me down-- and now someone else I know with hypoT is also going to him, because I recommended him, and told her what I knew. So many of us have been let down by doctors, and with a disease like this, that just gives us more stress we don't need. I do think we women need doctors who know about womens' hormones, not just thyroid. Gail In hypothyroidism , " Gracia " <circe@g...> wrote: > > I would not recommend an endo, this kind of doc would not be a topdoc in my > book. A topdoc is a doc who has been recommended by other patients, and > understands hormones. You will need to read some books and figure out if > you need more than a bit of $ynthroid. http://www.geocities.com/thyroide > Otherwise you will continue to get substandard treatment. > Gracia > > > What do you mean by a TOPDOC? I did see an endocrinologist and she > > was the one that dropped my dosage to keep the side effects down. I > > went from 88mcg down to 50mcg and now back up to 88mcg of synthroid. > > They are suppose to raise it from here whenever I get back in there > > for the blood work. I don't have insurance, so I try to go in when > > I can afford it, which won't be soon. Is there a good site out > > there that explains hypo, its effects to the rest of the body and > > helpful hints? > > > > > > > > > > You just need the proper dose of the RIGHT medicine, certainly not > > a really > > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine. > > > Gracia > > > > > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date: 7/21/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 > In this day and age, goitre is not usually an indication of lack of iodine. I had a goitre, and when I started taking medication, it was gone within the month. It was simply because I was hypothyroid. I started myself on Eltroxin (same as Synthroid) at 100 mcg. But I know now I had next to nothing left of my own thyroid, and other people's situation may be different. There's lots of information about goitre on the web. Gail > > > You just need the proper dose of the RIGHT medicine, certainly not > > a really > > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine. > > > Gracia > > > > > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date: 7/21/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 100mcg of synthroid is not a large dose - I take 200mcg of a similar T4 and a further 80 of T3 - I have been taking this dose for over a year. I also take progesterone and it has helped a lot - you can get mood swings when you first begin and it helps to understand the process your body is going through - it is only temporary as your body's hormone receptors adjust to the progesterone then you will feel a lot better. You need to read Dr Lee's book on the subject - never take a doctor's word for anything - always do your own research. The internet is such a blessing for people like us who have struggled to get proper care!!! I found my doc on the Top Doc list on Shomon's site and I've been seeing him for over a year,,,,and I'm in Australia so that was very lucky as there are only a few on the list - but there are many in the US so you should be able to find one. My doc has treated my thyroid with the right dose, given me vitamin injections to help with my energy and prescribed progesterone just a few months ago - he is very sympathetic and proactive and is a GP not an Endo. good luck, kerry Re: Re: New Here is 100mcg of synthyroid a large dose, you said not to go to a endo, what kind of doc would you recommend. angie Gracia <circe@...> wrote: I would not recommend an endo, this kind of doc would not be a topdoc in my book. A topdoc is a doc who has been recommended by other patients, and understands hormones. You will need to read some books and figure out if you need more than a bit of $ynthroid. http://www.geocities.com/thyroide Otherwise you will continue to get substandard treatment. Gracia > What do you mean by a TOPDOC? I did see an endocrinologist and she > was the one that dropped my dosage to keep the side effects down. I > went from 88mcg down to 50mcg and now back up to 88mcg of synthroid. > They are suppose to raise it from here whenever I get back in there > for the blood work. I don't have insurance, so I try to go in when > I can afford it, which won't be soon. Is there a good site out > there that explains hypo, its effects to the rest of the body and > helpful hints? > > > > > > You just need the proper dose of the RIGHT medicine, certainly not > a really > > low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine. > > Gracia > > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.323 / Virus Database: 267.9.2/54 - Release Date: 7/21/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 In a message dated 6/27/05 11:29:57 PM GMT Daylight Time, knchinnic i@... writes: my name is keri. about a year ago i was officially diagnosed with pa but my problems began way before thta. about 12 years ago i began having serious neck problems for no reason Hi Keri, A belated welcome to the group. I'm glad you found us but sorry you had to. With me the first signs of PA were on my feet too although it was the heels that were giving problems. Like you, mine are not too bad at the moment. I hope you can get all your questions answered. You should. There are a lot " experienced " and knowledgeable people in this group so there is usually someone who can relate to whatever experiences are put forward. Hope to hear from you again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 Goiter means you need iodine. > > > > Gracia What?? I've seen my doctor 4 times since he diagnosed me with Hypo. The first time he mentioned that I had a " small " goiter was at my last visit. Should I have other tests done besides the standard TSH and free t4? I am on 88mcg of Levoxyl and 1/2 a pill of 25mcg of cytomel, which I had to beg for him to let me try at my last visit. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 Jenna, If you live in the US it is not likely that you have an iodine deficient goiter. Since the US has iodized salt you should get enough iodine to prevent a goiter. I would look for another doctor and get a second opinion. Thyroid nodules need to be looked at. I would also ask your Dr, if he noticed the " goiter " on the first three visits, you need to be informed about all the circumstances regarding your thyroid and if your Dr isn't going to be up front with you, fire him. I believe that with proper Thyroid treatment, these should correct themselves (goiter or nodule). Also, you should request that your standard test be a complete thyroid panel, looking at TSH, free T4, and free T3. T3 is the equivalent of Cytomel, so if you are on that, those numbers should be looked at as well. Jenn Jenna OHoran <runnermom1970@...> wrote: Goiter means you need iodine. > > > > Gracia What?? I've seen my doctor 4 times since he diagnosed me with Hypo. The first time he mentioned that I had a " small " goiter was at my last visit. Should I have other tests done besides the standard TSH and free t4? I am on 88mcg of Levoxyl and 1/2 a pill of 25mcg of cytomel, which I had to beg for him to let me try at my last visit. thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2005 Report Share Posted July 27, 2005 I would recommend a smarter doc, read some books, but not testing ad infinitum. It should be possible to find a doc who has some old fashioned clinical skills. iodine info at http://www.optimox.com Gracia > Goiter means you need iodine. > > > > > Gracia > > What?? I've seen my doctor 4 times since he diagnosed me with Hypo. > The first time he mentioned that I had a " small " goiter was at my last > visit. Should I have other tests done besides the standard TSH and > free t4? > I am on 88mcg of Levoxyl and 1/2 a pill of 25mcg of cytomel, which I > had to beg for him to let me try at my last visit. > thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2005 Report Share Posted July 28, 2005 In a message dated 7/26/05 11:10:49 PM GMT Daylight Time, famoustigre@... writes: Hello. I am new to this group. I have had PA for 7 years now. After trying many meds, Humira is the one that works for me. I have been on it for about 2 years now. Although it has cleared up most of my psoriasis and has given me back mobility, I still have inflammation flare-ups. And I stuggle with fatigue. Anyone in the same boat? BTW: I am 56 years old. Hi Tigre, Welcome to the group. I'm glad you are getting some joy with Humira. I think just about all of us will be able to identify with you feeling fatigued with this. Some people, like me, blame the disease itself. Others blame the meds. Doesn't matter, its the same result in the end. I hope you get a lot of good from having joined us. Its good to know, " You're not alone " lol Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Thanks, . It is good to know I'm not alone. But the only contact I have with others who have PA is online. I don't know anyone else in person who has this. I guess that's what they mean when they say it's a " rare disease. " B the end of each week I am really exhausted. I have no energy reserves. I have to build back up by resting on weekends. Not a very exciting life! Tigre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 In a message dated 7/30/05 1:12:31 PM GMT Daylight Time, famoustigre@... writes: Thanks, . It is good to know I'm not alone. But the only contact I have with others who have PA is online. I don't know anyone else in person who has this. I guess that's what they mean when they say it's a " rare disease. " You're right Tigre. I think most of us can say that. I know one guy I used to work with and he has P. I was talking to him a couple of weeks ago and he was saying his fingers are quite sore so maybe I will know someone else with it but I hope not for his sake. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 In a message dated 8/2/05 12:57:28 PM GMT Daylight Time, dlneri@... writes: 1) the doctor thinks that controlling the disease before I have serious joint damage is important Hi Diane and welcome to the group. I think we would probably all agree that your doctor is right. I hope they can do something for you quickly enough to stop that happening. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 This is a misperception. See http://www.optimox.com for iodine reasearch and info. Gracia > Jenna, > > If you live in the US it is not likely that you have an iodine deficient goiter. Since the US has iodized salt you should get enough iodine to prevent a goiter. I would look for another doctor and get a second opinion. Thyroid nodules need to be looked at. I would also ask your Dr, if he noticed the " goiter " on the first three visits, you need to be informed about all the circumstances regarding your thyroid and if your Dr isn't going to be up front with you, fire him. I believe that with proper Thyroid treatment, these should correct themselves (goiter or nodule). Also, you should request that your standard test be a complete thyroid panel, looking at TSH, free T4, and free T3. T3 is the equivalent of Cytomel, so if you are on that, those numbers should be looked at as well. > > Jenn > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.338 / Virus Database: 267.9.8/61 - Release Date: 8/1/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 I wouldn't trust a website that is trying to sell me something as the end all be all. In the US iodine is everywhere and you would be hard pressed to not be getting enough to prevent a goiter. The issue remains that the dr doesn't appear to be testing thoroughly nor providing all the information to the patient, which is a bigger concern to me. Gracia <circe@...> wrote: This is a misperception. See http://www.optimox.com for iodine reasearch and info. Gracia > Jenna, > > If you live in the US it is not likely that you have an iodine deficient goiter. Since the US has iodized salt you should get enough iodine to prevent a goiter. I would look for another doctor and get a second opinion. Thyroid nodules need to be looked at. I would also ask your Dr, if he noticed the " goiter " on the first three visits, you need to be informed about all the circumstances regarding your thyroid and if your Dr isn't going to be up front with you, fire him. I believe that with proper Thyroid treatment, these should correct themselves (goiter or nodule). Also, you should request that your standard test be a complete thyroid panel, looking at TSH, free T4, and free T3. T3 is the equivalent of Cytomel, so if you are on that, those numbers should be looked at as well. > > Jenn > -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.338 / Virus Database: 267.9.8/61 - Release Date: 8/1/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 I had a long chat with my nurse case manager yesterday (this is a new benefit with my insurance). I told her about the diagnosis and the medication that I'll be starting after vacation. She looked up the medication and the disease and we discussed my options and she promised that when I start the sulfasalazine she will call me every day to see how I'm doing on it. Today I'm very tired. I need to talk to my PCP to see if he wants to do anything about my mild anemia. I think my B/P medication is making me tired (that plus the heat). Diane > > In a message dated 8/2/05 12:57:28 PM GMT Daylight Time, dlneri@c... > writes: > > 1) the doctor > thinks that controlling the disease before I have serious joint > damage is important > > > Hi Diane and welcome to the group. > > I think we would probably all agree that your doctor is right. I hope they > can do something for you quickly enough to stop that happening. > > Good luck, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 Dear Christy When I was first diagnosed, my doctor started me on PTU and initially checked my blood every 6 weeks to ensure that I wouldn't go hypo. Blood tests are the only sure way that you know what's going on, and if I were you, I would speak to your doctor's office nurse and tell her what you've told us. Maybe the nurse will okay some tests for you, if not, I would start looking for another doctor. Good luck and hang in there. Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Hi Christie, I am 30 years old too, and have been on PTU since Nov 2003. I am still on PTU but with reduce dosage. I have no experience on Methimazole but I have consume Carbimazole on the first week of being diagnose with hyper. Please take note that it is always a good idea to have your hormone test (blood test) constantly, especially during the first two weeks of consuming the anti-thyroid medicine. Some of anti-thyroid may not be effective or suitable. I started out with Carbimazole but my hyper was not under control and suffered temporary paralysis as a result within the first week. The doctor then prescribe PTU (Prophythiouracil). The doctor prescribing the anti-thyroid medicine to you must monitor closely your hormone level within the first and second week. If everything is under control, subsequent blood test interval should be in every 2 to 3 months. Otherwise the doctor may change your antithyroid medicine. Do you have palpitation (heart racing)? Tell us your heart rate, especially during nights when you have difficulty sleeping. The normal rate should be between 65 to 75 beats per minute. Western doctor usually says that you can eat anything, but please do avoid having seafood at this moment ( one or two months). Fish is still ok, i guess, but avoid clams, squid, seaweed, prawn, etc. If you are taking any sort of supplements, or energy drink, check if it contains iodine (usually they do). Try not to drink Pure water/Reverse Osmosis water as they usually does not contains minerals in it. As your body goes into hyper metabolism, you lose all these minerals very very fast. So a bottle of isotonic drink now and then is a good idea. (fruit juice and bananas are good too) Lastly, hyperthyroidism is not a frightening disease. Once it is under controlled, you life will very much be the same again. Please do read up on previous post. Good luck and hope to hear from you soon. Best rgds, Pang --- christieshuskiesx8 <christieshuskiesx8@...> wrote: > My name is Christie and I just turned 30 this past > June. I was > diagnosed with hyperthyroidism just when I started > to lose weight > grrr.Anyways they put me on 30mg a day of > Methimazole...I started it > back in June...Well I guess it is in my system > really well but I > can't stand it...I have began to sleep almost 12- 15 > hours a day, I > still have night sweats and still feel like I am > about to lose my > mind because I can't remember things and I am ok one > day and down the > next..I have gone from staying busy all day to > barely wanting to get > out of the bed...Not to mention that I have gained > 13 lbs and I am > miserable about that. They haven't checked me for > menopause but I > have every symptom of it including not having a time > of the month > since this past May. I had an ultrasound done and > they had the > hardest time trying to find my ovaries, she said > they were really > tiny...I have two children ages 7 and 9 and I am > getting ready to go > back to work next week, but I can't function with no > energy...I was > wondering if this same medicine worked on anyone the > same way it has > done me..I have told my doctor but she she won't > check my thyroid > levels until October..I am scared that it is turning > into > hypothyroid...Has anyone else had weight gain? Any > advice would be > much appreciated.. > > > Christie > > > > Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Hi You will need to get your blood checked whenever you feel very different...Too hot, too cold, sleepy, insomnia. Your body needs time to recover so sleeping extra is not such a bad thing. But you need to be able to work and to look after your family and yourself, so you need to find out what's causing your symptoms. Maybe you can find another doctor. Or a clinic. You just need to find out where your thyroid hormone levels are. Maybe you can book an appointment with your doctor and talk to her face to face about how you are feeling. It is hard for your doctor to avoid someone talking directly to her. Another thought is to get your husband to go with you to talk with the doctor. It has been my experience that doctors are more careful with witnesses watching, and often more patient and thorough. As for whether you are hypo or hyper, we can't judge. It sounds like you have a mixture of symptoms. I too have a mixture of hypo and hyper symptoms. It is blood work that defines where I am at, not symptoms. But if the symptoms change, then I know it's time to get blood work. Tests for the thyroid panel for me include TSH, Free T3, and Free T4. Hope this helps. Kate New Here My name is Christie and I just turned 30 this past June. I was diagnosed with hyperthyroidism just when I started to lose weight grrr.Anyways they put me on 30mg a day of Methimazole...I started it back in June...Well I guess it is in my system really well but I can't stand it...I have began to sleep almost 12- 15 hours a day, I still have night sweats and still feel like I am about to lose my mind because I can't remember things and I am ok one day and down the next..I have gone from staying busy all day to barely wanting to get out of the bed...Not to mention that I have gained 13 lbs and I am miserable about that. They haven't checked me for menopause but I have every symptom of it including not having a time of the month since this past May. I had an ultrasound done and they had the hardest time trying to find my ovaries, she said they were really tiny...I have two children ages 7 and 9 and I am getting ready to go back to work next week, but I can't function with no energy...I was wondering if this same medicine worked on anyone the same way it has done me..I have told my doctor but she she won't check my thyroid levels until October..I am scared that it is turning into hypothyroid...Has anyone else had weight gain? Any advice would be much appreciated.. Christie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 My heart rate at rest(sitting here at the computer) is 86. I take my blood pressure when I go to walmart and after walking around it ranges from 90 to 96..I used to be able to feel my heart pounding but that has eased off. She wanted to put me on a beta blocker but couldn't because my blood pressure is so low 90/50 most of the time...I called the office twice last week, I am going over there personally this week..She needs to lower the dose or find another med that will work because I think what I am taking now is just to strong for me.. Christie Pang <mailtopang@...> wrote: Hi Christie, I am 30 years old too, and have been on PTU since Nov 2003. I am still on PTU but with reduce dosage. I have no experience on Methimazole but I have consume Carbimazole on the first week of being diagnose with hyper. Please take note that it is always a good idea to have your hormone test (blood test) constantly, especially during the first two weeks of consuming the anti-thyroid medicine. Some of anti-thyroid may not be effective or suitable. I started out with Carbimazole but my hyper was not under control and suffered temporary paralysis as a result within the first week. The doctor then prescribe PTU (Prophythiouracil). The doctor prescribing the anti-thyroid medicine to you must monitor closely your hormone level within the first and second week. If everything is under control, subsequent blood test interval should be in every 2 to 3 months. Otherwise the doctor may change your antithyroid medicine. Do you have palpitation (heart racing)? Tell us your heart rate, especially during nights when you have difficulty sleeping. The normal rate should be between 65 to 75 beats per minute. Western doctor usually says that you can eat anything, but please do avoid having seafood at this moment ( one or two months). Fish is still ok, i guess, but avoid clams, squid, seaweed, prawn, etc. If you are taking any sort of supplements, or energy drink, check if it contains iodine (usually they do). Try not to drink Pure water/Reverse Osmosis water as they usually does not contains minerals in it. As your body goes into hyper metabolism, you lose all these minerals very very fast. So a bottle of isotonic drink now and then is a good idea. (fruit juice and bananas are good too) Lastly, hyperthyroidism is not a frightening disease. Once it is under controlled, you life will very much be the same again. Please do read up on previous post. Good luck and hope to hear from you soon. Best rgds, Pang --- christieshuskiesx8 <christieshuskiesx8@...> wrote: > My name is Christie and I just turned 30 this past > June. I was > diagnosed with hyperthyroidism just when I started > to lose weight > grrr.Anyways they put me on 30mg a day of > Methimazole...I started it > back in June...Well I guess it is in my system > really well but I > can't stand it...I have began to sleep almost 12- 15 > hours a day, I > still have night sweats and still feel like I am > about to lose my > mind because I can't remember things and I am ok one > day and down the > next..I have gone from staying busy all day to > barely wanting to get > out of the bed...Not to mention that I have gained > 13 lbs and I am > miserable about that. They haven't checked me for > menopause but I > have every symptom of it including not having a time > of the month > since this past May. I had an ultrasound done and > they had the > hardest time trying to find my ovaries, she said > they were really > tiny...I have two children ages 7 and 9 and I am > getting ready to go > back to work next week, but I can't function with no > energy...I was > wondering if this same medicine worked on anyone the > same way it has > done me..I have told my doctor but she she won't > check my thyroid > levels until October..I am scared that it is turning > into > hypothyroid...Has anyone else had weight gain? Any > advice would be > much appreciated.. > > > Christie > > > > Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2005 Report Share Posted August 8, 2005 Good for you. We thyroid people often have to push the doctors. My heart did not slow down after my thyroid was treated with radiation. It happens. I am on beta blockers and fine. Just goes to show you that we don't really know what to expect with thyroid disease. Kate Re: New Here My heart rate at rest(sitting here at the computer) is 86. I take my blood pressure when I go to walmart and after walking around it ranges from 90 to 96..I used to be able to feel my heart pounding but that has eased off. She wanted to put me on a beta blocker but couldn't because my blood pressure is so low 90/50 most of the time...I called the office twice last week, I am going over there personally this week..She needs to lower the dose or find another med that will work because I think what I am taking now is just to strong for me.. Christie Pang <mailtopang@...> wrote: Hi Christie, I am 30 years old too, and have been on PTU since Nov 2003. I am still on PTU but with reduce dosage. I have no experience on Methimazole but I have consume Carbimazole on the first week of being diagnose with hyper. Please take note that it is always a good idea to have your hormone test (blood test) constantly, especially during the first two weeks of consuming the anti-thyroid medicine. Some of anti-thyroid may not be effective or suitable. I started out with Carbimazole but my hyper was not under control and suffered temporary paralysis as a result within the first week. The doctor then prescribe PTU (Prophythiouracil). The doctor prescribing the anti-thyroid medicine to you must monitor closely your hormone level within the first and second week. If everything is under control, subsequent blood test interval should be in every 2 to 3 months. Otherwise the doctor may change your antithyroid medicine. Do you have palpitation (heart racing)? Tell us your heart rate, especially during nights when you have difficulty sleeping. The normal rate should be between 65 to 75 beats per minute. Western doctor usually says that you can eat anything, but please do avoid having seafood at this moment ( one or two months). Fish is still ok, i guess, but avoid clams, squid, seaweed, prawn, etc. If you are taking any sort of supplements, or energy drink, check if it contains iodine (usually they do). Try not to drink Pure water/Reverse Osmosis water as they usually does not contains minerals in it. As your body goes into hyper metabolism, you lose all these minerals very very fast. So a bottle of isotonic drink now and then is a good idea. (fruit juice and bananas are good too) Lastly, hyperthyroidism is not a frightening disease. Once it is under controlled, you life will very much be the same again. Please do read up on previous post. Good luck and hope to hear from you soon. Best rgds, Pang --- christieshuskiesx8 <christieshuskiesx8@...> wrote: > My name is Christie and I just turned 30 this past > June. I was > diagnosed with hyperthyroidism just when I started > to lose weight > grrr.Anyways they put me on 30mg a day of > Methimazole...I started it > back in June...Well I guess it is in my system > really well but I > can't stand it...I have began to sleep almost 12- 15 > hours a day, I > still have night sweats and still feel like I am > about to lose my > mind because I can't remember things and I am ok one > day and down the > next..I have gone from staying busy all day to > barely wanting to get > out of the bed...Not to mention that I have gained > 13 lbs and I am > miserable about that. They haven't checked me for > menopause but I > have every symptom of it including not having a time > of the month > since this past May. I had an ultrasound done and > they had the > hardest time trying to find my ovaries, she said > they were really > tiny...I have two children ages 7 and 9 and I am > getting ready to go > back to work next week, but I can't function with no > energy...I was > wondering if this same medicine worked on anyone the > same way it has > done me..I have told my doctor but she she won't > check my thyroid > levels until October..I am scared that it is turning > into > hypothyroid...Has anyone else had weight gain? Any > advice would be > much appreciated.. > > > Christie > > > > Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 > HI..can someone please tell me what sort of specialist provides the > enzymes that people are discussing on this forum. Also for the novice > here, what are enzymes and where are they derived from! I use HNI enzymes, no specialist or prescription required http://www.houstonni.com/ > We are currently having her hair analysed for toxicity, and will then > start a chelation process in November. Are enzymes involved in the > chelation process? Also for anyone whose children are going through > chelation, have you gotten good results. Chelation was the start of major improvements for my son. I used ALA to chelate. After about round 50, I no longer had to give enzymes, but enzymes were very beneficial for my kids until that time. Dana Quote Link to comment Share on other sites More sharing options...
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