Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Thank you for your replies. The rational part of my brain really has faith in CT as we had such a good experience with our oldest son (not banded, but they diagnosed his torticollis and showed us how to repo him). But still, hearing the actual numbers yesterday was a little harder than we expected, even though we knew he really needed a band. We would have actually preferred to have him in it in December, if not earlier, but we waited for the appointment with the neurosurgeon (kicking ourselves a little for that now). I feel like we have literally watched his head get flatter for the last six weeks despite our best efforts. We are actually kind of looking forward to his fitting so we can stop trying to move him off of the flat spot all the time! Stacey > > > > Hi: > > > > I have been lurking here for a while and now finally have some > > questions of my own, if you don't mind. Thank you so much for all of > > the good information you share here. > > > > Our son was casted yesterday for a DOC band and will get it next > > Friday. My questions are about severity and types of head shape. We > > have known for a while that he had plagio and he has been in PT for > > tort. What surprised us yesterday is that he also has brachy-- his CR > > was 100% which seems to be pretty severe to me. I thought that we > > were educated and knew what we needed to know, but now I am really > > concerned about what kind of correction we are going to see. They are > > already talking about 2 bands and he hasn't gotten his first one yet. > > > > Is it common to have plagio (13mm asymmetry, btw) and brachy? Has > > anyone out there seen good correction with both things going on? He > > is 4 months old, but was born at 34 weeks so sometimes they age > > correct back. > > > > Sorry this is long, but I am not finding that much out there about > > brachy. We have had him screened by a neurosurgeon to rule out fusion > > issues, but I am frustrated about that now too because the > > neurosurgeon classified him as moderate and suggested more > > repositioning. (I am not opposed to repo, we actually successfully > > repoed our oldest son who had mild plagio and tort.) I am just not > > very clear on how you could repo out of brachy--he doesn't sit up yet > > of course or even roll over. > > > > Thanks for any insight--I guess I am just looking for some reassurance > > that the DOC band is going to be able to improve his flatness. > > > > Stacey > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Thank you for your replies. The rational part of my brain really has faith in CT as we had such a good experience with our oldest son (not banded, but they diagnosed his torticollis and showed us how to repo him). But still, hearing the actual numbers yesterday was a little harder than we expected, even though we knew he really needed a band. We would have actually preferred to have him in it in December, if not earlier, but we waited for the appointment with the neurosurgeon (kicking ourselves a little for that now). I feel like we have literally watched his head get flatter for the last six weeks despite our best efforts. We are actually kind of looking forward to his fitting so we can stop trying to move him off of the flat spot all the time! Stacey > > > > Hi: > > > > I have been lurking here for a while and now finally have some > > questions of my own, if you don't mind. Thank you so much for all of > > the good information you share here. > > > > Our son was casted yesterday for a DOC band and will get it next > > Friday. My questions are about severity and types of head shape. We > > have known for a while that he had plagio and he has been in PT for > > tort. What surprised us yesterday is that he also has brachy-- his CR > > was 100% which seems to be pretty severe to me. I thought that we > > were educated and knew what we needed to know, but now I am really > > concerned about what kind of correction we are going to see. They are > > already talking about 2 bands and he hasn't gotten his first one yet. > > > > Is it common to have plagio (13mm asymmetry, btw) and brachy? Has > > anyone out there seen good correction with both things going on? He > > is 4 months old, but was born at 34 weeks so sometimes they age > > correct back. > > > > Sorry this is long, but I am not finding that much out there about > > brachy. We have had him screened by a neurosurgeon to rule out fusion > > issues, but I am frustrated about that now too because the > > neurosurgeon classified him as moderate and suggested more > > repositioning. (I am not opposed to repo, we actually successfully > > repoed our oldest son who had mild plagio and tort.) I am just not > > very clear on how you could repo out of brachy--he doesn't sit up yet > > of course or even roll over. > > > > Thanks for any insight--I guess I am just looking for some reassurance > > that the DOC band is going to be able to improve his flatness. > > > > Stacey > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Stacey, I was told to prepare for the fact that Dane might need a second band. He didn't. He got awesome correction. Check out his before and after picures. Mom to Dane (4 yo) and Cece (13 mo) DOC Grads > > > > > > Hi: > > > > > > I have been lurking here for a while and now finally have some > > > questions of my own, if you don't mind. Thank you so much for > all of > > > the good information you share here. > > > > > > Our son was casted yesterday for a DOC band and will get it next > > > Friday. My questions are about severity and types of head > shape. We > > > have known for a while that he had plagio and he has been in PT > for > > > tort. What surprised us yesterday is that he also has brachy-- > his CR > > > was 100% which seems to be pretty severe to me. I thought that > we > > > were educated and knew what we needed to know, but now I am > really > > > concerned about what kind of correction we are going to see. > They are > > > already talking about 2 bands and he hasn't gotten his first one > yet. > > > > > > Is it common to have plagio (13mm asymmetry, btw) and brachy? > Has > > > anyone out there seen good correction with both things going > on? He > > > is 4 months old, but was born at 34 weeks so sometimes they age > > > correct back. > > > > > > Sorry this is long, but I am not finding that much out there > about > > > brachy. We have had him screened by a neurosurgeon to rule out > fusion > > > issues, but I am frustrated about that now too because the > > > neurosurgeon classified him as moderate and suggested more > > > repositioning. (I am not opposed to repo, we actually > successfully > > > repoed our oldest son who had mild plagio and tort.) I am just > not > > > very clear on how you could repo out of brachy--he doesn't sit > up yet > > > of course or even roll over. > > > > > > Thanks for any insight--I guess I am just looking for some > reassurance > > > that the DOC band is going to be able to improve his flatness. > > > > > > Stacey > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Stacey, I was told to prepare for the fact that Dane might need a second band. He didn't. He got awesome correction. Check out his before and after picures. Mom to Dane (4 yo) and Cece (13 mo) DOC Grads > > > > > > Hi: > > > > > > I have been lurking here for a while and now finally have some > > > questions of my own, if you don't mind. Thank you so much for > all of > > > the good information you share here. > > > > > > Our son was casted yesterday for a DOC band and will get it next > > > Friday. My questions are about severity and types of head > shape. We > > > have known for a while that he had plagio and he has been in PT > for > > > tort. What surprised us yesterday is that he also has brachy-- > his CR > > > was 100% which seems to be pretty severe to me. I thought that > we > > > were educated and knew what we needed to know, but now I am > really > > > concerned about what kind of correction we are going to see. > They are > > > already talking about 2 bands and he hasn't gotten his first one > yet. > > > > > > Is it common to have plagio (13mm asymmetry, btw) and brachy? > Has > > > anyone out there seen good correction with both things going > on? He > > > is 4 months old, but was born at 34 weeks so sometimes they age > > > correct back. > > > > > > Sorry this is long, but I am not finding that much out there > about > > > brachy. We have had him screened by a neurosurgeon to rule out > fusion > > > issues, but I am frustrated about that now too because the > > > neurosurgeon classified him as moderate and suggested more > > > repositioning. (I am not opposed to repo, we actually > successfully > > > repoed our oldest son who had mild plagio and tort.) I am just > not > > > very clear on how you could repo out of brachy--he doesn't sit > up yet > > > of course or even roll over. > > > > > > Thanks for any insight--I guess I am just looking for some > reassurance > > > that the DOC band is going to be able to improve his flatness. > > > > > > Stacey > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi and welcome, I was on Enbrel for 2 years. I also have spondyloarthritis in my SI joints. I was on Enbrel for 2-1/2 years until I switched insurance and they wanted me to do the same thing as you...pay 25%. I just can't do it. Anyway, the Enbrel didn't help my lower back much at all, but it cleared up my skin almost 100%, cleared up may nails, got rid of most of my other joint pains and helped my stiffness. Because my back was still hurting, I wasn't sure that the Enbrel was helping. But oh man, when I stopped taking it......that is when I realized how much it had been helping me! Anyway...I hope something works out for you. My rheum is about to see if my insurance will cover Remicade infusion therapy. Let's hope. take care, Jayson [ ] New here I'm 48 and was diagnosed with spondyloarthritis due to psoriatic arthritis about 6 years ago, and with Sjogrens syndrome about two years ago. My skin is actually pretty good; I do break out in itchy rashes but they heal right up and don't leave much scarring. My biggest psoriatic problems are nailbed problems, and fairly severe arthritis, along with the sicca symptoms (dry mouth and dry eyes in particular). The arthritis, despite the Methotrexate rheumatology had started me on, is at the point now where sciatica troubles me constantly; I'm also going to need a hip replacement fairly soon. Anyone had a hip replacement, and how did it go? Also, rheumatology placed me on Enbrel about a year ago, but it doesn't seem to be helping me symptom-wise, although the docs are pleased with my lab results. It's expensive (I have to pay 25% of the cost myself each month to receive it), and I've been sick with so many infections since starting it (flu, sinus infections and asthma flares, urinary tract infection, you name it!). Anyone been on Enbrel and how did it work for you? Is there anything (hopefully less expensive!) that might work better in combination with the Methotrexate instead? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi New Here.... What insurance do you have that would charge you 25% on the enbrel shots/prescription? I just changed insurance companies and the last one only required me to pay a $40.00 co-pay.. The Mtx and Enbrel really helps me, as I can see the swelling go down in my fingers after taking either. I devide them, as Monday is MTX day and Thursday is Enbrel day. If I take them at same time, I get a severe headache that last more than 24 hours. Good luck on your hip replacement, I hear they can do wonders with that surgery today... Jim > > I'm 48 and was diagnosed with spondyloarthritis due to psoriatic > arthritis about 6 years ago, and with Sjogrens syndrome about two > years ago. My skin is actually pretty good; I do break out in itchy > rashes but they heal right up and don't leave much scarring. My > biggest psoriatic problems are nailbed problems, and fairly severe > arthritis, along with the sicca symptoms (dry mouth and dry eyes in > particular). The arthritis, despite the Methotrexate rheumatology > had started me on, is at the point now where sciatica troubles me > constantly; I'm also going to need a hip replacement fairly soon. > > Anyone had a hip replacement, and how did it go? > > Also, rheumatology placed me on Enbrel about a year ago, but it > doesn't seem to be helping me symptom-wise, although the docs are > pleased with my lab results. It's expensive (I have to pay 25% of > the cost myself each month to receive it), and I've been sick with > so many infections since starting it (flu, sinus infections and > asthma flares, urinary tract infection, you name it!). Anyone been > on Enbrel and how did it work for you? Is there anything (hopefully > less expensive!) that might work better in combination with the > Methotrexate instead? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Hi! I just wanted to tell you to keep your chin up! I'm also facing hip replacement fairly soon and I just turned 29! It happened so fast for me, last year around this time I started getting horrible pain in my right hip. Then on May 14th the day before my wedding I found out that I nearly have no cartildge left in my right hip and I have a horrible limp and one leg is longer than the other now. Only thing I really wanted to tell you is that if you do end up facing a hip replacement for sure make sure you start stock piling your own plasma with your doctor. I know this from work, I am a patient care tech and that is the best thing you can do for yourself. ~ dreimutter1957 <dreimutter1957@...> wrote: I'm 48 and was diagnosed with spondyloarthritis due to psoriatic arthritis about 6 years ago, and with Sjogrens syndrome about two years ago. My skin is actually pretty good; I do break out in itchy rashes but they heal right up and don't leave much scarring. My biggest psoriatic problems are nailbed problems, and fairly severe arthritis, along with the sicca symptoms (dry mouth and dry eyes in particular). The arthritis, despite the Methotrexate rheumatology had started me on, is at the point now where sciatica troubles me constantly; I'm also going to need a hip replacement fairly soon. Anyone had a hip replacement, and how did it go? Also, rheumatology placed me on Enbrel about a year ago, but it doesn't seem to be helping me symptom-wise, although the docs are pleased with my lab results. It's expensive (I have to pay 25% of the cost myself each month to receive it), and I've been sick with so many infections since starting it (flu, sinus infections and asthma flares, urinary tract infection, you name it!). Anyone been on Enbrel and how did it work for you? Is there anything (hopefully less expensive!) that might work better in combination with the Methotrexate instead? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Hi jayson thanks forthe response it is good to hear from other people like me. I am only at the start of my treatment but i know what you mean here in the uk i pay for my meds and i couldn't afford it the other week and oh boy was i sore but like you i am on methatrexate it cleared my psoriasis up but now it's back worse than before and i hurt like hell. My local gp has put me on strong pain killers and anti depressants but i wonder how long they will work for. Thanks again for your kind response. Lynn Jayson Barsic <jbarsic@...> wrote: Hi and welcome, I was on Enbrel for 2 years. I also have spondyloarthritis in my SI joints. I was on Enbrel for 2-1/2 years until I switched insurance and they wanted me to do the same thing as you...pay 25%. I just can't do it. Anyway, the Enbrel didn't help my lower back much at all, but it cleared up my skin almost 100%, cleared up may nails, got rid of most of my other joint pains and helped my stiffness. Because my back was still hurting, I wasn't sure that the Enbrel was helping. But oh man, when I stopped taking it......that is when I realized how much it had been helping me! Anyway...I hope something works out for you. My rheum is about to see if my insurance will cover Remicade infusion therapy. Let's hope. take care, Jayson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 In a message dated 17/02/2006 11:14:44 GMT Standard Time, bigjkahuna@... writes: Hello to all, new to this pa stuff I am 35 6'5 325#, I have owned my own business for almost 15 years Hi , Welcome to the group. I'm sorry you find yourself in this position and that this disease lost you your business. I see Kathy answered your mail already. That is right 25mg weekly is the top dose or at least it should be. I am currently on 20mg in pill form. I don't have too much bother with it but I know some people do. Is your Rheumy looking at adding anything else? One of the Biologics maybe? You have made a good move in joining this group. You will get the support and hopefully all the advice you need. Its a big help when you know the people you are talking to can understand what you are going through. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Hi just to say thanks my story is sort of the same i was on holiday for my birthday on cleaning out the bath as you do and i had sharp pains in my elbow and found i couldn't bend or straighten it properly it wasn't untill last year march when i finally got an appointment with the bone doctor ( only because i can't spell) they told me i had pa do to my p and the fact that arthritis runs in my family didn't help. Good news though managed to sell my house so I can move back to mums untilll i can get a ground floor flat. Hope to hear from you soon and thanks again. Lynn JEFF DELAZZER <jdelazzer@...> wrote: Hi! I just wanted to tell you to keep your chin up! I'm also facing hip replacement fairly soon and I just turned 29! It happened so fast for me, last year around this time I started getting horrible pain in my right hip. Then on May 14th the day before my wedding I found out that I nearly have no cartildge left in my right hip and I have a horrible limp and one leg is longer than the other now. Only thing I really wanted to tell you is that if you do end up facing a hip replacement for sure make sure you start stock piling your own plasma with your doctor. I know this from work, I am a patient care tech and that is the best thing you can do for yourself. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 In a message dated 2/19/2006 1:22:46 P.M. Eastern Standard Time, dreimutter1957@... writes: It's expensive (I have to pay 25% of the cost myself each month to receive it), and I've been sick with so many infections since starting it (flu, sinus infections and asthma flares, urinary tract infection, you name it!). Hi...I've had the same problem with infections...my doctor told me to make sure I use a lot of Sea or Aqua Spray (basically salt water spray) in my nose and to gargle...this will help break up mucus, which is where the bacteria for UTIs go to when you get an infection. So if you break up the mucus, you have less opportunity for the bacteria to lodge in your body. She also mentioned another OTC but hard to find solution...can't find the name right now but I will try to find it and post tomorrow. I also travel a lot so I am going to start wearing a mask on the plane...I know I will look funny but I am tired of being sick! Also...I am on Enbrel but I have not been convinced it has helped me as much as it should. So my rheumy added a low dose of prednisone, and I got much better. Since you can't stay on prednisone long term, I came off of it, but it proved to the rheumy that I have the POTENTIAL to be better. So I am switching to Remicade and will get my first treatment next week. I have heard from 3 rheumys now that Remicade is perceived as the " cadillac " of PA treatment, so I am going straight there instead of Humira. However, the Enbrel has improved my PA enough that I can go back to work FT (I've been working 25 hours a week for the last 2 years...). Hope this helps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 In a message dated 19/02/2006 18:22:46 GMT Standard Time, dreimutter1957@... writes: Anyone had a hip replacement, and how did it go? Hi again dreimutter, I haven't but I have a friend with osteoarthritis who had his hip replaced about seven or eight years ago. He says (still says) that the difference from pre-op until now is night and day. He has much less pain. I hope that is the case with you whenever you get it done. Let us know how things are going with you if you can. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Lynn, I'm glad you sold your house! A flat should be much easier on you. I'm trying a new rheumy next month myself, so we'll see how that goes. Good luck with yours as well. ~ LYNN BUCKLEY <buckleybabe2005@...> wrote: Hi just to say thanks my story is sort of the same i was on holiday for my birthday on cleaning out the bath as you do and i had sharp pains in my elbow and found i couldn't bend or straighten it properly it wasn't untill last year march when i finally got an appointment with the bone doctor ( only because i can't spell) they told me i had pa do to my p and the fact that arthritis runs in my family didn't help. Good news though managed to sell my house so I can move back to mums untilll i can get a ground floor flat. Hope to hear from you soon and thanks again. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Welcome - sounds like you already have a good start at everything! You will find a lot of great information here to help you. Sheresa > > Hi Everyone, > > I'm new to this board. Thanks for having me. My son is 3.5 yrs and dx. w/ Autism. We live in MD. We've been doing bio-med and therapies since 16 months of age . We started ABA / VB in July 2005. has been dx. w/ Mercury posioning by Drs Layton and Megson and I triple checked via the " Counting Rules " book. We are currently working on yeast , just got scoped by Dr. Krigsman for major gut issues (dx. w/ AE) and are struggling to get the gut in shape. We are GFCF and are ready to start w/ anti-virals and enzymes. We gave enzymes a try along time ago under the care of a dev.ped. that we are no longer with. They were not good for us (enzymeaid juniors) and did basically nothing. I am really excited about the Houston enzymes. And, I'm really excited to be a part of this group. I look forward to learning and contributing all that I can. > > Thanks Again -- > > > --------------------------------- > Relax. virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 Welcome , This is a great group. My son began his first improvements after I joined this group that was less than year ago. He is also 3 1/2. I hope that this group will be at least as helpful to you as it has been or us. I think Houston enzymes are very helpful. After having used them in powder form, I have recently changed to chewable with much better result. Also we have began a new probiotic that is especially designed for severe gut issues. Read some rave reviews about it and just started it last night. It is called VSL # 3 and you can read about it here: http://www.vsl3.com/VSL3/ although it seems a bit more expensive, it actually is not. I am only giving 1/4 of package per day a that means a package of 10 last 40 days. My son too has real persistent yeast issues and has very high IgA to DPP meaning his immune system is attacking his gut. Best wishes for you and your precious child. Haleh --- Meade <jenniferdmeade@...> wrote: > Hi Everyone, > > I'm new to this board. Thanks for having me. My son is 3.5 yrs > and dx. w/ Autism. We live in MD. We've been doing bio-med and therapies > since 16 months of age . We started ABA / VB in July 2005. has > been dx. w/ Mercury posioning by Drs Layton and Megson and I triple checked > via the " Counting Rules " book. We are currently working on yeast , just got > scoped by Dr. Krigsman for major gut issues (dx. w/ AE) and are struggling > to get the gut in shape. We are GFCF and are ready to start w/ anti-virals > and enzymes. We gave enzymes a try along time ago under the care of a > dev.ped. that we are no longer with. They were not good for us (enzymeaid > juniors) and did basically nothing. I am really excited about the Houston > enzymes. And, I'm really excited to be a part of this group. I look > forward to learning and contributing all that I can. > > Thanks Again -- > > > --------------------------------- > Relax. virus scanning helps detect nasty viruses! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi , I'm sorry to hear that someone so young has to have both knees replace , I was 58 when I had my right knee replace that was four years ago My knee bends ok but it still feels numb and sore I had my right hip replacement done first that was five years ago that didn't turn out that great I need my left knee done but won't have it done because of the way my right side turn out . Well welcome to the group there are nice people here that can help more then me .Well you take care and have a nice day:-) Susie -------------- Original message -------------- From: "" <my_name_iz_lisa@...> Hi everyone, I just joined this group in hopes of answers to a fewquestions. I am 27 years old, I have psoriatic arthritis. I've been onenbrel for about 2 years, when I'm not getting a stupid cold. Theenbrel does help but not like it should by now. My rhuem has suggestedknee replacement surgery for both knees, one question about that ishas anyone had both knees done? And do they do both at the same time?After the knees are done and healed, the elbows are next. I have anappt with a surgeon on March 3rd. I'm not even sure what they will do,but I've been told I might have problems with them doing the jointreplacement surgery cause I'm so young. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi : I had both my knees replaced on 12/14/05. I am glad I had them done at the same time. I don't think the rehab was any harder for me than it would have been with just one. I was walking around on a walker from the day after surgery. I got rid of the walker after 4 weeks. Now I am back at work (my first full week). The surgery took about 3 hours total for both knees. My surgeon does not believe in the minimally invasive - he likes to see what he is doing. My scars are long - but already fading. And much better than the pain I had before. Good luck to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hello , Yes, I had both knees replaced at once, about 7 years ago. My most recent x-ray shows them to be " as good as new. " As several people have noted, doing both at once is not a big deal. I was walking better the day after surgery than the day before. They're not perfect, but are far better than my original equipment. I also had both elbows replaced at once. Not as easy. To do the replacement they have to disconnect the triceps muscle. I was in hard casts with my elbows fully extended for a week. That itself isn't so bad, but it interferes with eating, drinking, bathing, and bathroom activities. Fortunately, the morphine had me fully constipated for the week, so that wasn't an issue. I've also had an infection, a revision surgery, and a hinge pin failure, all in my left elbow. Even with all that, I would do it again. Good luck. On Monday, February 27, 2006, at 11:44 PM, wrote: > Hi everyone, I just joined this group in hopes of answers to a few > questions. I am 27 years old, I have psoriatic arthritis. I've been on > enbrel for about 2 years, when I'm not getting a stupid cold. The > enbrel does help but not like it should by now. My rhuem has suggested > knee replacement surgery for both knees, one question about that is > has anyone had both knees done? And do they do both at the same time? > After the knees are done and healed, the elbows are next. I have an > appt with a surgeon on March 3rd. I'm not even sure what they will do, > but I've been told I might have problems with them doing the joint > replacement surgery cause I'm so young. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 : Because you are young your body can take a lot more that when you get older. These operations are a major deal. I would get a few other doctor's opinions before any discision like this. Whatever you do get in as good physical health as you can. Swim, use exersice equipment whatever. Maybe even talk to your Dr. about Physical Theropy before the fact. The stronger and healthier you are along with your age has a hugh impact on everything. I went to a meeting last month about THR. Asked about Pre-Physical health. The Dr. concurred and said something like in was contributing to the total success of the operation by 50%. Hope this helps. And welcome aboard. 8^) Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Forgot one other thing. Look over in the Database area of this group. People have stored data and info on various subjects. I have not read much of them just know they are there. Don Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 HI , Where did you have your surgery? Judy From: [mailto: scsilverthorne@...] Joint Replacement Date: Tue, 28 Feb 2006 16:13:53 -0000 Subject: Re: new here <html><body> <tt> Hi :<BR> I had both my knees replaced on 12/14/05. I am glad I had them done at <BR> the same time. I don't think the rehab was any harder for me than it <BR> would have been with just one. I was walking around on a walker from <BR> the day after surgery. I got rid of the walker after 4 weeks. Now I <BR> am back at work (my first full week). <BR> The surgery took about 3 hours total for both knees. My surgeon does <BR> not believe in the minimally invasive - he likes to see what he is <BR> doing. My scars are long - but already fading. And much better than <BR> the pain I had before.<BR> Good luck to you.<BR> <BR> <BR> <BR> <BR> <BR> <BR> <BR> </tt> <!-- |**|begin egp html banner|**| --> <br><br> <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi Judy: I had my surgery at Presbyterian Hospital of Plano (near Dallas, TX). My surgeon is part of the Texas Center for Joint Replacement. I was very happy with the hospital and the surgeon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Thanks everyone who replied. I was in physical therapy for about 3 years off and on. It did help but not enough. As for my elbows where they are is where they stay there was nothing they could do to straighten them even a little. I really trust my rheum and her opinion, she has been my rheum for the last 5 years. Now I am on every 6 months with her, but if I ever need anything I just call and she will do whatever I ask. I have an appt with her tomorrow. I do not work right, I don't drive right now. I am on SSI right now. I'm hoping after this surgery and it heals I will be able to drive and work. 3 more days till my appt with the surgeon, I'm kinda getting nervous about it. I just try to think as long as its going to help it'll be worth it. > > : > > Because you are young your body can take a lot more that when you get older. These > operations are a major deal. I would get a few other doctor's opinions before any discision > like this. Whatever you do get in as good physical health as you can. Swim, use exersice > equipment whatever. Maybe even talk to your Dr. about Physical Theropy before the fact. > The stronger and healthier you are along with your age has a hugh impact on everything. > > I went to a meeting last month about THR. Asked about Pre- Physical health. The Dr. > concurred and said something like in was contributing to the total success of the operation > by 50%. > > Hope this helps. And welcome aboard. 8^) > > Don > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi , I had both knees done but about 3 1/2 months apart. I am glad I didn't get both done at the same time and I don't live alone. I was lucky and my hubby stayed home to fuss at me the whole 1st month. (for each knee) I am not an expert by any means but they told me for about 20 years (I'm 50 now) that I was too young to get my knees done although it was necessary back then. The problem I ran into wasn't necessarily my youth it was the life of the artificial knees themselves. I am not sure what the life expectancy is going to be for you but I suspect that is what the Dr. might mean by your young age and having this type of surgery. Good luck and felel free to e-mail anytime. Contessa -- Re: new here Hi , I'm sorry to hear that someone so young has to have both knees replace , I was 58 when I had my right knee replace that was four years ago My knee bends ok but it still feels numb and sore I had my right hip replacement done first that was five years ago that didn't turn out that great I need my left knee done but won't have it done because of the way my right side turn out . Well welcome to the group there are nice people here that can help more then me .Well you take care and have a nice day:-) Susie -------------- Original message -------------- From: "" <my_name_iz_lisa@...> Hi everyone, I just joined this group in hopes of answers to a fewquestions. I am 27 years old, I have psoriatic arthritis. I've been onenbrel for about 2 years, when I'm not getting a stupid cold. Theenbrel does help but not like it should by now. My rhuem has suggestedknee replacement surgery for both knees, one question about that ishas anyone had both knees done? And do they do both at the same time?After the knees are done and healed, the elbows are next. I have anappt with a surgeon on March 3rd. I'm not even sure what they will do,but I've been told I might have problems with them doing the jointreplacement surgery cause I'm so young. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi Don , Welcome to the group and that was really good advice I didn't have that before my Hip operation that went bad I did a lot of exercises after my hip operation it didn't help that must but now I think I know why my knee operations went better because of the leg exercises I did after my hip operation .Well you take care and have a great day . Susie -------------- Original message -------------- From: "Don" <donavp@...> :Because you are young your body can take a lot more that when you get older. These operations are a major deal. I would get a few other doctor's opinions before any discision like this. Whatever you do get in as good physical health as you can. Swim, use exersice equipment whatever. Maybe even talk to your Dr. about Physical Theropy before the fact. The stronger and healthier you are along with your age has a hugh impact on everything.I went to a meeting last month about THR. Asked about Pre-Physical health. The Dr. concurred and said something like in was contributing to the total success of the operation by 50%. Hope this helps. And welcome aboard. 8^)Don Quote Link to comment Share on other sites More sharing options...
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