New here

May 7, 2006

We think he got it from his ex-wife who was an IV drug user. They

divorced in 1992, and she died in 2004 from complications from having

part of her liver removed. We don't know for sure she had Hep C but I

guess if she did it doesn't matter to us now.

May 7, 2006

very probable, but like we said do not worry about it the chances of you having

it too are only 50/50 they say Hep c is not sexually transmitted, he probably

got it when she had Hep A or B before it went into Hep C. Just see the

Gastrologist, they can clear everything up for you.

Pam in Indiana

<ilovemy4cats@...> wrote:

We think he got it from his ex-wife who was an IV drug user. They

divorced in 1992, and she died in 2004 from complications from having

part of her liver removed. We don't know for sure she had Hep C but I

guess if she did it doesn't matter to us now.

May 11, 2006

Welcome to the group Maggie! Ask any questions that you have and we all will try to answer them as best as we can.

STARband 1/31/06

>> Hi all. We just found out that our 5 month old will be wearing the > Cranial helmet. He was diagnosed with Torticollis at 2 months, and we > attempted PT and repositioning to help with his skull, but at his 4 > month checkup the doctor recommended seeing a Craniofacial surgeon due > to facial assymetry and skull distortion. We go to have his casting > done on the 17th. Glad to find a spot to ask questions. Maggie>

May 11, 2006

hi Maggie,

Welcome to the group. Where will you be going? maybe we have

someone using the same clinic.

My girls went to CT in Charlotte, NC.

na, DOC Grad 2/04

Kiersten, DOC Grad 4/06

www.thefilyaws.com/plagio/plaigo.html

>

> Hi all. We just found out that our 5 month old will be wearing

the

> Cranial helmet. He was diagnosed with Torticollis at 2 months,

and we

> attempted PT and repositioning to help with his skull, but at his

4

> month checkup the doctor recommended seeing a Craniofacial surgeon

due

> to facial assymetry and skull distortion. We go to have his

casting

> done on the 17th. Glad to find a spot to ask questions. Maggie

>

May 11, 2006

>

> hi Maggie,

> Welcome to the group. Where will you be going? maybe we have

> someone using the same clinic.

His doctor is at St. Mercy Hospital, and he is getting his helmet

through Precision Prosthetics and Orthotics here in St. Louis.

May 26, 2006

> Anyway, back to the anti-viral. I wanted to do the high-dose Vitamin

> A protocol.

I have info here

http://www.danasview.net/vitamina.htm

> *With Mercury, Arsenic and Tin just barely in the yellow on a DMPS

> challenge, would ALA chelation be a reasonable alternative? DH is

> open to ALA chelation.

I chelated all four of my kids with ALA. It is definitely something

to consider.

Dana

May 26, 2006

Thank you, Dana.

> I chelated all four of my kids with ALA. It is definitely something

> to consider.

Yesterday I just kept increasing the dose of Vitamin A (from cod liver

oil, without vitamin D) until we reached 400,000IU total by the end of

the day. I'm not seeing any problems so far. I am doing a last bit

of reading on your site (for the 500th time) to make sure I am

comfortable just giving him the 400,000IU for today all at once.

Of course, we haven't done any chelation yet, so I don't know if this

is going to do us any good. :/

I've gotta get that boy to take pills!

Amy

May 26, 2006

Hi- I don't post very often, but I read everyone else's posts. Your son happens

to sound a lot like my son who is also 8. He also struggles with anxiety. But he

has improved a lot since I decided to put him on medication for anxiety. Before

the medication he had intense stomach cramps from his anxiety, and he would also

have panic attacks. At first I didn't want to put him on medication, because it

scares me. But after trying everything else I could think of and him not getting

any relief I decided to have him put on medication. He was put on Strattera,

which is a non norcatic medication. He's on the lowest dosage and it happens to

work for him. Your son sounds a lot like mine, he was well behaved at school,

but waited to have a meltdown once he got home. Another thing that relaxes my

son is his dog he loves to go outside and talk to his dog. I wish the best for

you and your son.

Roxannna <bongo403@...> wrote:

Hi Everyone,

I just joined this group and have been reading over previous posts,

and have already learned a lot! My name is Roxanna (yes, it seems I

share the same unusual first name with the moderator - must be a

good sign!). I'm mom to 3 kids, ages 8, 6, and 2. Yesterday my 8

year old son's psychologist told us that he meets all the criteria

for Aspergers. I wasn't exactly surprised, because I've known there

was " something " about since he was about 3. We've already

been through speech therapy, diagnoses of OCD and Anxiety, and toyed

with suggestions of ADHD, and the AS makes the most sense of

anything. It's still hard on me, though, because I've been holding

out hope that he's just going through a " phase " that he will

outgrow. But, I think it's time to face the music head on and work

on helping him live with AS.

We're still gathering info and making decisions. has only a

week left in 2nd grade, so we'll have the summer to decide what we

want to do with the school system next year. is highly

intelligent, and does well academically in school. He has not had

any major behavioral problems at school, either, partly because he

is so literal and serious about written rules. But more days than

not, he melts down as soon as he gets home, so his psychologist

believes it will only be a matter of time before he won't be able to

hold his behavior together so well at school.

We're also considering a trial of medication for anxiety and

depressive symptoms, which is why he began this round of therapy to

begin with. I'd love to hear from parents of similar aged kids who

have taken meds for anxiety about how that worked.

Thanks a bunch, and I look forward to reading more posts!

Roxanna M

May 27, 2006

Hi Roxanna and welcome.

It is interesting to read that your son melts down once he gets home. Our son

also seems to hold it together whilst at kindergarten but then has meltdowns

once he gets home. We thought that kindergarten was tiring him out but the OT

seemed to think that it was actually anxiety exhausting him. It must be a huge

effort to hold it together.

Beck

( ) New Here

Hi Everyone,

I just joined this group and have been reading over previous posts,

and have already learned a lot! My name is Roxanna (yes, it seems I

share the same unusual first name with the moderator - must be a

good sign!). I'm mom to 3 kids, ages 8, 6, and 2. Yesterday my 8

year old son's psychologist told us that he meets all the criteria

for Aspergers. I wasn't exactly surprised, because I've known there

was " something " about since he was about 3. We've already

been through speech therapy, diagnoses of OCD and Anxiety, and toyed

with suggestions of ADHD, and the AS makes the most sense of

anything. It's still hard on me, though, because I've been holding

out hope that he's just going through a " phase " that he will

outgrow. But, I think it's time to face the music head on and work

on helping him live with AS.

We're still gathering info and making decisions. has only a

week left in 2nd grade, so we'll have the summer to decide what we

want to do with the school system next year. is highly

intelligent, and does well academically in school. He has not had

any major behavioral problems at school, either, partly because he

is so literal and serious about written rules. But more days than

not, he melts down as soon as he gets home, so his psychologist

believes it will only be a matter of time before he won't be able to

hold his behavior together so well at school.

We're also considering a trial of medication for anxiety and

depressive symptoms, which is why he began this round of therapy to

begin with. I'd love to hear from parents of similar aged kids who

have taken meds for anxiety about how that worked.

Thanks a bunch, and I look forward to reading more posts!

Roxanna M

May 27, 2006

That also is common here. My son melts down for about ten minutes after he is

home, I need to hug him a lot. My older son, whom we adopted as a baby, is

schizoaffective and melts down more dramatically on a bad day.

( ) New Here

Hi Everyone,

I just joined this group and have been reading over previous posts,

and have already learned a lot! My name is Roxanna (yes, it seems I

share the same unusual first name with the moderator - must be a

good sign!). I'm mom to 3 kids, ages 8, 6, and 2. Yesterday my 8

year old son's psychologist told us that he meets all the criteria

for Aspergers. I wasn't exactly surprised, because I've known there

was " something " about since he was about 3. We've already

been through speech therapy, diagnoses of OCD and Anxiety, and toyed

with suggestions of ADHD, and the AS makes the most sense of

anything. It's still hard on me, though, because I've been holding

out hope that he's just going through a " phase " that he will

outgrow. But, I think it's time to face the music head on and work

on helping him live with AS.

We're still gathering info and making decisions. has only a

week left in 2nd grade, so we'll have the summer to decide what we

want to do with the school system next year. is highly

intelligent, and does well academically in school. He has not had

any major behavioral problems at school, either, partly because he

is so literal and serious about written rules. But more days than

not, he melts down as soon as he gets home, so his psychologist

believes it will only be a matter of time before he won't be able to

hold his behavior together so well at school.

We're also considering a trial of medication for anxiety and

depressive symptoms, which is why he began this round of therapy to

begin with. I'd love to hear from parents of similar aged kids who

have taken meds for anxiety about how that worked.

Thanks a bunch, and I look forward to reading more posts!

Roxanna M

May 27, 2006

I am currently participating in a very interesting child anxiety study at

our local university. It involves training of parents in how to deal better

with their child's anxiety. Also alot of paperwork (filling out surveys,

forms, etc). It has been very interesting so far. Pam

May 27, 2006

Hi Roxanna M.

My son took meds for anxiety from ages 5 - 8. It helped him immensely. He

has refused the medication for the past year because he can detect the taste

(he only takes liquid). He used to take them in a mini juice box, but once

he detected the taste (when dosage was increased)...he began refusing juice

boxes and the medication and now only drinks water (which is very hard to add

anything to). He does well now, as far as the anxiety goes. It is manageable

but still ever present. I just wrote in another post that I am

participating in a research study on child anxiety at a local university. I am

finding

it helpful. My son has also just recently been diagnosed with cyclic

vomitting/abdominal migraines, which may be stress/anxiety related. Pam

May 27, 2006

Hi Roxanna,

Your 8 yr old sounds a lot like my son who just

finished 2nd grade. His psychologist told us just a

few months ago she thinks he has a mild case of AS or

at the very least displays several AS tendencies. He

is in a mainstream school and luckily he is getting

the help he needs there. He struggles with reading

and excels in math although his test scores didn't

qualify him for an IEP the school allowed it because

of his high anxiety, difficulty with change, sensory

overload, etc. He is also very shy and quiet at

school so behavior was never an issue. But he was

having meltdowns at home quite often because he holds

so much in at school all day. The poor kid was ready

to expload when he got home.

I was just wondering if you had talk with your son's

school about getting IEP for yor son. I've heard and

read from posts here that people have had problems

with their schools cooperating (we're in GA) but it

has really helped Jake tremendously and his

psychologist thinks he will be able to stay in school.

His self esteem has really benefitted also. I don't

have him on any meds because I don't want to do that

unless it is absolutely a last resort. He does take a

multi-vitamin and the B-6 w/ magnesium vitamin therapy

that I found out about from someone on this sight. It

seems to help a little. If I could just find a way to

get him to sleep (he's never been a good sleeper) I

would be thrilled.

Good luck with your son..

Kecia

--- Roxannna <bongo403@...> wrote:

> Hi Everyone,

>

> I just joined this group and have been reading over

> previous posts,

> and have already learned a lot! My name is Roxanna

> (yes, it seems I

> share the same unusual first name with the moderator

> - must be a

> good sign!). I'm mom to 3 kids, ages 8, 6, and 2.

> Yesterday my 8

> year old son's psychologist told us that he meets

> all the criteria

> for Aspergers. I wasn't exactly surprised, because

> I've known there

> was " something " about since he was about 3.

> We've already

> been through speech therapy, diagnoses of OCD and

> Anxiety, and toyed

> with suggestions of ADHD, and the AS makes the most

> sense of

> anything. It's still hard on me, though, because

> I've been holding

> out hope that he's just going through a " phase " that

> he will

> outgrow. But, I think it's time to face the music

> head on and work

> on helping him live with AS.

>

> We're still gathering info and making decisions.

> has only a

> week left in 2nd grade, so we'll have the summer to

> decide what we

> want to do with the school system next year.

> is highly

> intelligent, and does well academically in school.

> He has not had

> any major behavioral problems at school, either,

> partly because he

> is so literal and serious about written rules. But

> more days than

> not, he melts down as soon as he gets home, so his

> psychologist

> believes it will only be a matter of time before he

> won't be able to

> hold his behavior together so well at school.

>

> We're also considering a trial of medication for

> anxiety and

> depressive symptoms, which is why he began this

> round of therapy to

> begin with. I'd love to hear from parents of

> similar aged kids who

> have taken meds for anxiety about how that worked.

>

> Thanks a bunch, and I look forward to reading more

> posts!

>

> Roxanna M

>

__________________________________________________

May 27, 2006

Hi Roxanna,

We put our 7-year-old on Paxil for anxiety when he was just barely 5. It

helped, but he was pretty unhappy and angry at school last year anyway, and we

were afraid to take him off it for fear his outbursts would get worse. Then

this year he's been really happy and we've been afraid to take him off it

because we want him to move beyond outbursts and make friends, and he seems to

have very little anxiety now.

I don't know whether to worry about medicating our kids -- it seems to be a

necessary risk for a lot of us. I remember being reassured by the point that

anxiety is perhaps harder on your body and more likely to cause long-term

physical and psychological damage than SSRI's, but I also am curious about the

latest wisdom about medication, and whether anyone else is going on anything but

the guesswork of their pediatrician. Some nights I can't sleep thinking that

he's forming himself on medication. ON the other hand, we have a friend whose

(otherwise typical) kid is depressed -- it seems to be a genetic thing -- and

she thinks she has to try medication so he doesn't think of himself as a

depressed person during these formative years.

On balance, I think it's worth trying.

tracy woodman <t_woodman99@...> wrote:

Hi- I don't post very often, but I read everyone else's posts. Your son

happens to sound a lot like my son who is also 8. He also struggles with

anxiety. But he has improved a lot since I decided to put him on medication for

anxiety. Before the medication he had intense stomach cramps from his anxiety,

and he would also have panic attacks. At first I didn't want to put him on

medication, because it scares me. But after trying everything else I could think

of and him not getting any relief I decided to have him put on medication. He

was put on Strattera, which is a non norcatic medication. He's on the lowest

dosage and it happens to work for him. Your son sounds a lot like mine, he was

well behaved at school, but waited to have a meltdown once he got home. Another

thing that relaxes my son is his dog he loves to go outside and talk to his dog.

I wish the best for you and your son.

Roxannna <bongo403@...> wrote:

Hi Everyone,

I just joined this group and have been reading over previous posts,

and have already learned a lot! My name is Roxanna (yes, it seems I

share the same unusual first name with the moderator - must be a

good sign!). I'm mom to 3 kids, ages 8, 6, and 2. Yesterday my 8

year old son's psychologist told us that he meets all the criteria

for Aspergers. I wasn't exactly surprised, because I've known there

was " something " about since he was about 3. We've already

been through speech therapy, diagnoses of OCD and Anxiety, and toyed

with suggestions of ADHD, and the AS makes the most sense of

anything. It's still hard on me, though, because I've been holding

out hope that he's just going through a " phase " that he will

outgrow. But, I think it's time to face the music head on and work

on helping him live with AS.

We're still gathering info and making decisions. has only a

week left in 2nd grade, so we'll have the summer to decide what we

want to do with the school system next year. is highly

intelligent, and does well academically in school. He has not had

any major behavioral problems at school, either, partly because he

is so literal and serious about written rules. But more days than

not, he melts down as soon as he gets home, so his psychologist

believes it will only be a matter of time before he won't be able to

hold his behavior together so well at school.

We're also considering a trial of medication for anxiety and

depressive symptoms, which is why he began this round of therapy to

begin with. I'd love to hear from parents of similar aged kids who

have taken meds for anxiety about how that worked.

Thanks a bunch, and I look forward to reading more posts!

Roxanna M

May 27, 2006

our son is on Clondine for anxiety and Concerta. they both seem to

help. the Clondine is a very low dose and he only takes 1/2 before bed

and the other half in the am.

----- Oriour son isginal Message -----

From: on <cathrob@...>

Date: Saturday, May 27, 2006 12:48 pm

Subject: Re: ( ) New Here

Hi Roxanna,

& nbsp; & nbsp;

& nbsp; We put our 7-year-old on Paxil for anxiety when he was just

barely 5. & nbsp; It helped, but he was pretty unhappy and angry at

school last year anyway, and we were afraid to take him off it for

fear his outbursts would get worse. & nbsp; Then this year he's been

really happy and we've been afraid to take him off it because we want

him to move beyond outbursts and make friends, and he seems to have

very little anxiety now. & nbsp;

& nbsp; & nbsp;

& nbsp; I don't know whether to worry about medicating our kids -- it

seems to be a necessary risk for a lot of us. & nbsp; I remember being

reassured by the point that anxiety is perhaps harder on your body and

more likely to cause long-term physical and psychological damage than

SSRI's, but I also am curious about the latest wisdom about

medication, and whether anyone else is going on anything but the

guesswork of their pediatrician. & nbsp; Some nights I can't sleep

thinking that he's forming himself on medication. & nbsp; ON the other

hand, we have a friend whose (otherwise typical) kid is depressed --

it seems to be a genetic thing -- and she thinks she has to try

medication so he doesn't think of himself as a depressed person during

these formative years. & nbsp;

& nbsp; & nbsp;

& nbsp; On balance, I think it's worth trying.

& nbsp; & nbsp;

& nbsp;

tracy woodman & lt;t_woodman99@... & gt; wrote:

& nbsp; Hi- & nbsp; I don't post very often, but I read everyone else's

posts. Your son happens to sound a lot like my son who is also 8. He

also struggles with anxiety. But he has improved a lot since I decided

to put him on medication for anxiety. Before the medication he had

intense stomach cramps from his anxiety, and he would also have panic

attacks. At first I didn't want to put him on medication, because it

scares me. But after trying everything else I could think of and him

not getting any relief I decided to have him put on medication. He was

put on Strattera, which is a non norcatic medication. He's on the

lowest dosage and it happens to work for him. Your son sounds a lot

like mine, he was well behaved at school, but waited to have a

meltdown once he got home. & nbsp; Another thing that relaxes my son is

his dog he loves to go outside and talk to his dog. I wish the best

for you and your son. & nbsp; & nbsp; & nbsp; & nbsp;

Roxannna & lt;bongo403@... & gt; wrote:

& nbsp; Hi Everyone,

I just joined this group and have been reading over previous posts,

and have already learned a lot! & nbsp; My name is Roxanna (yes, it

seems I

share the same unusual first name with the moderator - must be a

good sign!). I'm mom to 3 kids, ages 8, 6, and 2. & nbsp; Yesterday my 8

year old son's psychologist told us that he meets all the criteria

for Aspergers. & nbsp; I wasn't exactly surprised, because I've known

there

was & quot;something & quot; about since he was about 3. & nbsp;

We've already

been through speech therapy, diagnoses of OCD and Anxiety, and toyed

with suggestions of ADHD, and the AS makes the most sense of

anything. & nbsp; It's still hard on me, though, because I've been

holding

out hope that he's just going through a & quot;phase & quot; that he will

outgrow. & nbsp; But, I think it's time to face the music head on and

work

on helping him live with AS. & nbsp;

We're still gathering info and making decisions. & nbsp; has only

a

week left in 2nd grade, so we'll have the summer to decide what we

want to do with the school system next year. & nbsp; is highly

intelligent, and does well academically in school. & nbsp; He has not

had

any major behavioral problems at school, either, partly because he

is so literal and serious about written rules. & nbsp; But more days

than

not, he melts down as soon as he gets home, so his psychologist

believes it will only be a matter of time before he won't be able to

hold his behavior together so well at school. & nbsp;

We're also considering a trial of medication for anxiety and

depressive symptoms, which is why he began this round of therapy to

begin with. & nbsp; I'd love to hear from parents of similar aged kids

who

have taken meds for anxiety about how that worked. & nbsp;

Thanks a bunch, and I look forward to reading more posts!

Roxanna M

May 27, 2006

,

As one who grew up undiagnosed bipolar, I was primarily depressed as

an adolescent and young adult. I grew up thinking of myself as lazy

and low energy. When I finally got properly medicated in my early

forties, I was amazed. I wasn't low energy after all! I would never

make my kid suffer through depression without help. (We're dealing

with this with my son right now.) If your kid is anxious, I would try

meditation first, and if that doesn't work, then go the meds route.

However, I'm no doctor. This is just what we've been trying with my

son. Good luck with your's.

Liz

On May 27, 2006, at 9:48 AM, on wrote:

> Hi Roxanna,

>

> We put our 7-year-old on Paxil for anxiety when he was just

> barely 5. It helped, but he was pretty unhappy and angry at school

> last year anyway, and we were afraid to take him off it for fear

> his outbursts would get worse. Then this year he's been really

> happy and we've been afraid to take him off it because we want him

> to move beyond outbursts and make friends, and he seems to have

> very little anxiety now.

>

> I don't know whether to worry about medicating our kids -- it

> seems to be a necessary risk for a lot of us. I remember being

> reassured by the point that anxiety is perhaps harder on your body

> and more likely to cause long-term physical and psychological

> damage than SSRI's, but I also am curious about the latest wisdom

> about medication, and whether anyone else is going on anything but

> the guesswork of their pediatrician. Some nights I can't sleep

> thinking that he's forming himself on medication. ON the other

> hand, we have a friend whose (otherwise typical) kid is depressed

> -- it seems to be a genetic thing -- and she thinks she has to try

> medication so he doesn't think of himself as a depressed person

> during these formative years.

>

> On balance, I think it's worth trying.

>

May 28, 2006

Thanks to everyone who replied to my post! It's so comforting to

hear from others who have been down this road and have similar

experiences. It seems that the ability to hold it together at

school is fairly common - I think that's why was not

diagnosed earlier! It's partly why I'm wondering if an IEP is

necessary. We haven't talked to his teachers yet since we only got

the diagnosis last Thursday and he only has 2 1/2 days of school

next week and then they are out for the summer. In general, our

school has been wonderful and cooperative about things, so I think

we'll try to work with his teachers next year and if we'll hold off

on the formalities as long as things are going well.

I also appreciate the feedback on medication. We're definitely

leaning toward giving it a try. His doctor seems to think the first

order of business is handling his anxiety, because that's what is

causing the most difficulty right now, and I tend to agree. I think

until we get a handle on these meltdowns and the anger/depression

symptoms, it will be hard for him to grasp the tools to cope with

the AS.

I'm sure I will have many more questions as the weeks progress, so

I'll keep reading posts and may be asking some questions. Thanks to

everyone for the replies and reassurance!

Roxanna M

June 8, 2006

Welcome !

I had heard that water should be room temperature. I used to drink it cold.

Now I prefer room temperature, especially when swallowing a bunch of

supplements. Found this info on Mercola's website:

" Let me remind you of the water basics. Your exclusive beverage should be water.

Try to have at least eight glasses of water a day. It would be best to have the

water at room temperature.

Ice-cold water can be a trauma to the delicate lining of your stomach, unless

you are overheated. However, it is far better to drink the water then limit your

water intake due to the timing of meals. Drinking the amount of water you need

is the primary point.

Ideally you should sip it all day long and consume about one to two cups of

water per hour. If you consume one quart at a setting three times a day, your

body will not use most of the water. "

Beth

new here

I just got finished taking a round of Diflucan and feel much better

than I have in a long time. I am taking Acidophilus and Psyllum husk

and cinnamon everyday. I drink plenty of water and take a good multi

vitamin, potassium and calcium. I know now I need to start a diet that

is sugar and yeast free.....I also drink colloidal silver everyday.

I am just looking for more ideas......

I have heard the water should be ice water is that true?? I have also

heard douching with ice water is important???

June 8, 2006

Hi there all, I'm new here also and hoping I could ask a quick question, a

social question. My daughter and and I have both discovered that sugar,

carbs, gluten, and candida are surely the cause of both of our many health

troubles and symptoms. I won't go into all that right now, we are learning

what to do and are determined and motivated. My question is just simply how

do you manage your diet and eating requirements socially, as when someone

invites you to their home for dinner and such. I don't mean as far as

temptations and resisting, but just what to do for not hurting their

feelings if there's not much you can eat from what they're serving. Seems

like a difficult and sticky situation that we need to figure out ahead of

time. Do you just refuse invitations and stay home in order to stay on

track?

Many Thanks, Barbara

June 8, 2006

Hi there and Welcome to the Group,

We are all here to lend support and all of us have the same

condition and it does help to post and read the replies. I was

diagnosed in 2003 with AIH. My liver levels have been great since on

the Imuran. I take 50mgs a day. I am very surprised that you have

not found out about your bloodwork or that you can not get in touch

with the doctor! I would be persistant and keep calling so that you

know where you stand as far as the results. You talk about headaches

and nausea. We are all different and as far as the symptoms I do

know that nausea and especially the pain in your upper abdomen and

also the itching are definitely symptoms of AIH but again you need

to talk to your doctor to find out about the blood work and if it is

positive for AIH you will have to start medication and eventually a

biopsy to see how much damage if any to your liver. I know you must

be scared as I was also very much! Fear of the unknown is awful.

Call your doctor and I really hope it goes well for you.....please

keep posting and let us know how you are doing....this site is great

for info

Take Care !

>

> Hello everyone,

> I'm not sure exactly how this works, I find it very confusing,

I

> see everything repeated so many times, maybe it's just my

computer?

> Anyway, a bit about me, I was diagnosed with AIH 5 years ago, I

have

> never been on medicine and have never had a biopsy. Five years

ago,

> my ALT and AST levels very slightly elevated but since then have

> been normal, my antibodies (don't remember names) have been

> positive. I have recently not been feeling well, and I noticed

> somebody else here had headaches, I have had migraines and bad

> headaches for a day maybe 2 previously but about 2 months ago I

had

> one for 4 days and just a few days ago was the end of an 8 day

> bout. I was feeling sick during that time, but believe it was

> because of the headaches, I felt nauseous, tired had uncomfortable

> feeling around ribs (esp right to middle). I've also had a sore

> knee for a long time and have recently started getting these

little

> white-head kind of, itchy spots, usually one at a time, I've had

one

> on my arm, hand, ankle, leg in the past 2 days - don't know if

these

> are anything anybody else knows about. I went in for bloodwork

last

> week but didn't get to see my doctor and have been trying to talk

to

> him but without luck, so don't know the test results. He has said

> for the past 5 years that if my enzymes remain normal there's no

> need for biopsy, but that's not what I've read. He's the only

> gastro doctor in town and I'm getting scared, wondering if 5 years

> has caused liver damage. I don't know what to do, I have nobody

to

> talk to about this as nobody knows anything and they don't

> understand how serious this is or how very scared I am, actually I

> think whenever I get scared and need to talk, everybody shuts

down,

> they don't want to talk about it. I'm sorry to make this so long

> and I don't exactly know what I'm asking, I guess your opinion or

> help as to what I should do, if anything. Thank you.

>

June 8, 2006

Your blood test for AST and ALT takes only an hour to get the

result. Keep calling your doctor. Call the secratary, or nurse. Or

even just go to the hospital and ask to see your result. I can see

my result on the hospital website or by calling the doctor's office.

I am sure you need to know.

What does " very slightly elevated " mean? Can you share numbers if

you know? So your numbers just went down without medication?

I wish we know more about AIH.

Kim

>

> Hello everyone,

> I'm not sure exactly how this works, I find it very confusing,

I

> see everything repeated so many times, maybe it's just my

computer?

> Anyway, a bit about me, I was diagnosed with AIH 5 years ago, I

have

> never been on medicine and have never had a biopsy. Five years

ago,

> my ALT and AST levels very slightly elevated but since then have

> been normal, my antibodies (don't remember names) have been

> positive. I have recently not been feeling well, and I noticed

> somebody else here had headaches, I have had migraines and bad

> headaches for a day maybe 2 previously but about 2 months ago I

had

> one for 4 days and just a few days ago was the end of an 8 day

> bout. I was feeling sick during that time, but believe it was

> because of the headaches, I felt nauseous, tired had uncomfortable

> feeling around ribs (esp right to middle). I've also had a sore

> knee for a long time and have recently started getting these

little

> white-head kind of, itchy spots, usually one at a time, I've had

one

> on my arm, hand, ankle, leg in the past 2 days - don't know if

these

> are anything anybody else knows about. I went in for bloodwork

last

> week but didn't get to see my doctor and have been trying to talk

to

> him but without luck, so don't know the test results. He has said

> for the past 5 years that if my enzymes remain normal there's no

> need for biopsy, but that's not what I've read. He's the only

> gastro doctor in town and I'm getting scared, wondering if 5 years

> has caused liver damage. I don't know what to do, I have nobody

to

> talk to about this as nobody knows anything and they don't

> understand how serious this is or how very scared I am, actually I

> think whenever I get scared and need to talk, everybody shuts

down,

> they don't want to talk about it. I'm sorry to make this so long

> and I don't exactly know what I'm asking, I guess your opinion or

> help as to what I should do, if anything. Thank you.

>

June 9, 2006

Hi Kim,

My doctor called last night (but I wasn't in so couldn't ask

questions) and left message, said enzymes are normal. I still

wonder about not feelig well lately and almost constant

uncomfortable feeling in upper stomach. My enzymes in 2001 were:

AST 63 and ALT 97, also CK 254 and MCV 98.0 and MCH 33.6 (don't know

what these last ones are). By 2003 the AST and ALT were at normal

rates and have stayed there since. The Anti smooth muscle was 1:40

and Antinuclear Antibody 1:80 at their highest. I really don't

understand any of these numbers and have seen that people have very

high numbers and have asked my doctor many times if he's sure I have

AIH and he is positive I do. And no, I haven't been on any

medication. Since 2003 my AST and ALT have been in the normal

range. I am trying to find other people with similar results but I

don't think there are any in these forums anyway. I guess my main

fear is that in the past five years there has been damage to my

liver but wouldn't I know it somehow?

Have a great weekend.

Pirjo

> >

> > Hello everyone,

> > I'm not sure exactly how this works, I find it very

confusing,

> I

> > see everything repeated so many times, maybe it's just my

> computer?

> > Anyway, a bit about me, I was diagnosed with AIH 5 years ago, I

> have

> > never been on medicine and have never had a biopsy. Five years

> ago,

> > my ALT and AST levels very slightly elevated but since then have

> > been normal, my antibodies (don't remember names) have been

> > positive. I have recently not been feeling well, and I noticed

> > somebody else here had headaches, I have had migraines and bad

> > headaches for a day maybe 2 previously but about 2 months ago I

> had

> > one for 4 days and just a few days ago was the end of an 8 day

> > bout. I was feeling sick during that time, but believe it was

> > because of the headaches, I felt nauseous, tired had

uncomfortable

> > feeling around ribs (esp right to middle). I've also had a sore

> > knee for a long time and have recently started getting these

> little

> > white-head kind of, itchy spots, usually one at a time, I've had

> one

> > on my arm, hand, ankle, leg in the past 2 days - don't know if

> these

> > are anything anybody else knows about. I went in for bloodwork

> last

> > week but didn't get to see my doctor and have been trying to

talk

> to

> > him but without luck, so don't know the test results. He has

said

> > for the past 5 years that if my enzymes remain normal there's no

> > need for biopsy, but that's not what I've read. He's the only

> > gastro doctor in town and I'm getting scared, wondering if 5

years

> > has caused liver damage. I don't know what to do, I have nobody

> to

> > talk to about this as nobody knows anything and they don't

> > understand how serious this is or how very scared I am, actually

I

> > think whenever I get scared and need to talk, everybody shuts

> down,

> > they don't want to talk about it. I'm sorry to make this so

long

> > and I don't exactly know what I'm asking, I guess your opinion

or

> > help as to what I should do, if anything. Thank you.

> >

>

June 9, 2006

Welcome Barbara!

It's tempting to stay home, but I push myself to go out which isn't very often.

If I can't find out what's on the menu, I bring my own food (it's safer). You

could also offer to bring a dish to share that you can eat. It could take a

year or more to get better.

Have fun,

Beth

Re: new here