Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Dear , Welcome to the group. I'm sad to hear that your daughter is not well, but you've come to the right place for support and advice. We also are new here. This group has kept me sane during the most difficult time of my life. I'm sure it will help you to deal with things too. I have found myself laughing and crying while typing and/or reading posts. Feeling and sharing my emotions with the wonderful people here has been so helpful and felt so safe. You will meet a lot of great people here. My 4 year old daughter was diagnosed with polyarticular JRA earlier this month. We have started a NSAID, but we won't be starting Methotrexate until next Saturday because she had to have 3 live vaccines yesterday before she started meds. So we are also in a stage of the waiting game. Ask your pediatrician if your daughter is up to date on her immunizations because she might have to stop her meds if she needs them once she's started. If you need to vent feel free to email me. I, along with so many people hear know just how you feel. Warm supportive hugs to you and your family. Eli and Riley 4 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Dear , Welcome to the group. I'm sad to hear that your daughter is not well, but you've come to the right place for support and advice. We also are new here. This group has kept me sane during the most difficult time of my life. I'm sure it will help you to deal with things too. I have found myself laughing and crying while typing and/or reading posts. Feeling and sharing my emotions with the wonderful people here has been so helpful and felt so safe. You will meet a lot of great people here. My 4 year old daughter was diagnosed with polyarticular JRA earlier this month. We have started a NSAID, but we won't be starting Methotrexate until next Saturday because she had to have 3 live vaccines yesterday before she started meds. So we are also in a stage of the waiting game. Ask your pediatrician if your daughter is up to date on her immunizations because she might have to stop her meds if she needs them once she's started. If you need to vent feel free to email me. I, along with so many people hear know just how you feel. Warm supportive hugs to you and your family. Eli and Riley 4 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Hi , Welcome to the group! Sorry to hear about your daughter having jra. I know how hard it is and my daughter was diagnosed at 10 months old and is now 2 yrs. I hope you find out soon what type she has. And I hope she gets releif soon. You will find that this group is very smart and supportive and nice and will help you any time you need it. So welcome and feel free to ask anyone anything. Jona mom of na 2 poly mommyby3 <mommyby3@...> wrote: Hi my name is and I live in West virginia with my DH and 3 blessings.Our oldest son is 4yr. old,our daughter is 19 months old and our youngest son is 8 months old.Our daughter is the one with JRA.We found out about a week ago.We spent a week in Children's Hospital in DC.Her dr. hasn't decided what type of JRA she has,the dr. feels it's systemic but she said we'd have to wait and see.I feel very lost and confused right how. also has duodenitis and food allergies.Her dr. says everything with become routine after awhile,we just need to find the right meds.and the right amounts.Any amount of info and support anyone can give would help make this easier to handle.Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2002 Report Share Posted May 25, 2002 Hello and welcome! Sorry to her about your daughter..she is young. My daughter Tabitha has polyarticular jra and was diagnosed with back in 89' at the age of four and a half. She is now 17..it has been a long road..but with trying times and good times. She has had both hips and knees replaced and lots of joint damage but right now has very low arthritis activity. Your doctor said the right thing when she said about getting a diagnosis and getting started on the right meds. But please know..if your doctor does something you don't agree with please speak up..I have learned from the years just because they have a degree does not mean they know everything that is necessary. You should keep a journal of your daughters progress..and her results etc..something i didn't and wished i had. Would come in handy to fall back on when i need to remember certain dates and stuff. As for support..you can call your local arthritis foundation or the one nearest to you..they have pamphlets and might even have a support group near you. These people are my support..along with my family. I only wish i had this list when Tab was first dx. For these people and this list gives knowledge and support when needed..no matter if you need to vent, cry, share good news..or just need a friend. Take care and good luck..yall will be in my thoughts! karen(tab17..poly) From: "mommyby3" Reply- Subject: New Here Date: Sat, 25 May 2002 11:14:37 -0000 Hi my name is and I live in West virginia with my DH and 3 blessings.Our oldest son is 4yr. old,our daughter is 19 months old and our youngest son is 8 months old.Our daughter is the one with JRA.We found out about a week ago.We spent a week in Children's Hospital in DC.Her dr. hasn't decided what type of JRA she has,the dr. feels it's systemic but she said we'd have to wait and see.I feel very lost and confused right how. also has duodenitis and food allergies.Her dr. says everything with become routine after awhile,we just need to find the right meds.and the right amounts.Any amount of info and support anyone can give would help make this easier to handle.Thank you very much. Chat with friends online, try MSN Messenger: Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Hi , Welcome to a wonderful group of helpful folks. I have been a part for less than a year but have learned so much. Our daughter was diagnosed last August of 2001 after 4 months of frustration at the age of 14. We are fortunate to have found a wonderful doctor who has made such a difference in the whole ordeal. Finding the right medications to help her to function at her best possible spot can be a challenge at times, but we are all fortunate that these children who are currently being diagnosed have many medications to choose from. It will make an incredible difference for them (as you will find from others with more experience.) Try not to get dicouraged. It can be difficult to deal with everything your child is going through especially in the beginning. This is a great place to vent with people who understand. And if you have a question someone always has a helpful answer. Wishing you luck in finding that right combination to help your little one feel as good as she can soon. e, with a 15 year old with poly (who always remains nameless in my posts because of my weird quirk with her and the Net) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2002 Report Share Posted May 26, 2002 Welcome to the group and , You've come to the right place...there are alot of friendships formed here...friends that have and are currently walking in your's and s same shoes. My name is Theresa but i use the name Tree most of the time. I live in Louisville, Kentucky so I don't know what part of WV you are but we might not be too far away lol! I've had JRA for over 32 years and am just one of the many JRA Vets on this list.What Rhuematologist(rhummy for short) does see???? Wow your little angels are so close together, you really have your hands full. I have one son now 14 and hubby 45 going on 10 lol I helped start a support group for the kids and young adults with arthritis of Kentucky and Southern Indiana. We are called FACES (Facing Arthritis with Compassion, Encouragement and Support. We send out newsletters and have our own sight now where you can go to see some of us and what we are up to and read the newsletter too! Here's the address if you'd like to have a look: http://www.calky.org/faces/ Please keep us updated on and yourself and take care ! Keep Smilin' :):)Tree:):) New Here Hi my name is and I live in West virginia with my DH and 3blessings.Our oldest son is 4yr. old,our daughter is 19 months oldand our youngest son is 8 months old.Our daughter is the one withJRA.We found out about a week ago.We spent a week in Children'sHospital in DC.Her dr. hasn't decided what type of JRA she has,thedr. feels it's systemic but she said we'd have to wait and see.I feelvery lost and confused right how. also has duodenitis and foodallergies.Her dr. says everything with become routine after awhile,wejust need to find the right meds.and the right amounts.Any amount ofinfo and support anyone can give would help make this easier tohandle.Thank you verymuch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2002 Report Share Posted May 29, 2002 Hi , Welcome. And I do hope that our group will be able to offer you some information and support to help make things a bit easier. We understand how it feels, as we've all been in similar circumstances. It sounds like you have found a good doctor to work with. That's a great first step. It does usually get easier as time goes on. Aloha, Georgina ----- Original Message ----- From: mommyby3 Hi my name is and I live in West virginia with my DH and 3 blessings.Our oldest son is 4yr. old,our daughter is 19 months old and our youngest son is 8 months old.Our daughter is the one with JRA.We found out about a week ago.We spent a week in Children's Hospital in DC.Her dr. hasn't decided what type of JRA she has,the dr. feels it's systemic but she said we'd have to wait and see.I feel very lost and confused right how. also has duodenitis and food allergies.Her dr. says everything with become routine after awhile,we just need to find the right meds.and the right amounts.Any amount of info and support anyone can give would help make this easier to handle.Thank you very much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2002 Report Share Posted June 24, 2002 <<<<<<<<<<<<<<<<<<<<<<<Hi everyone, I just joined this group hoping to get some information. I bought an Internal Cleansing kit at a health food store a couple of weeks ago. Colon cancer runs in the family so I figured cleaning my colon and bowel would be a good thing. I haven't been able to find much info on side effects of cleansing though. I took the supplements ( a herbal pill called Anti-Toxin and fiber FOS and acidophilus) as the brochure explained. This is a 7 day cleanse. I started on Monday June 10 and took the supplements until June 14th (5 days) On the third day I began experiencing headaches. I had a headache from Wed-Sat so I stopped the supplements. Now onto my question. On the Sunday after I stopped taking the pills I had dirrahea all day and just thought it was from what I ate the night before. However, this past week I've been having cramping, pain in my lower left side of my abdomen, having the urge to push and have a bowel movement frequently. When I do go my stools are narrower than before I started the cleanse and sometimes have mucus in them. The urge to go feels like I should have a large movement but it's just alot of smaller stuff. I'm not going every day though - usually every other day. I also have gas pains and gas today. I haven't taken the supplements now for over a week. Did they start the cleansing process and this is what I'm experiencing? I'm curious to hear other people's experiences. I am going to go to my Doctor this week becasue with colon cancer in my family it scares me. I'm 28 years old with a 3 year old son. Thanks for any advice or help, >>>>>>>>>>>>>>>>>>>>>> ; Your situation is classic of someone trying to do something good for themselves and then having the " side effects " of which you've described as having. This is called the Herxhiemer Reaction and is often the greatest reason why people start to do a body detoxification and then quit after the various symptoms for which they may have started a detoxing become worst or acquire new problems with their body. http://www.pureliquidgold.com/candidadiet.htm A colon cleansing is a process that takes more than just a supplement to do correctly. It is a life style change too. Most colon cancer can be related as having occurred with people who have had high meat and fat diets. Now fat diets by itself isn't' the main cause it is the type of fat that causes the problems and can be aggravated by various other dietary intake. http://nutrition.about.com/library/weekly/aa021999.htm http://www.animalliberation.org.au/vegocolo.html http://www.med.virginia.edu/cancer/colonrisks.html To better deal with the potential side effects of doing a colon cleanse it would behoove you to research a bit more on eating foods that will work towards that end without necessarily using supplements to do so. There is a synergetic interplay between the small intestines, colon, liver, gallbladder and pancreas regarding the cleansing processes that take place during a colon cleansing. Understanding these will go a long way towards dealing with the potential discomfort of the body adjusting to a new and healthier lifestyle. These cleansing plans all work, for the most part. However, eating the right types of foods on a daily basis will go a lot further in the long run towards the goal of a clean and healthy colon. I have a 64-year-old friend who makes her own breads that contain no refined wheat flour or other refined and enriched products. Her bread is probably the most fibrous that anyone could eat. She had a check up not too many months ago and was told that her colon was as pure as the doctor had ever seen. She had the colon of child like quality. This is attributed to the fact that much of the foods she cooks are quite fibrous containing soluble and insoluble fibers. From what you wrote it sounds like you are also dealing with a condition known as Irritable Bowel Syndrome possably brought on by the cleanse. This can certainly occur as part of a cleansing process if there isn't' enough water intake as well as enough extra fiber to help in the whole of the cleansing procedure. The most common cause is dairy products while dong a cleanse. If you think you can eat pizza and take the colon cleansing supplements you're going to be having problems like you've described. It can also occur from cheeses and milk products causing constipation. There is quite a bit to understanding the whole synergetic process of nutrition and waste. But if I were to advise as to one or two books to read regarding this they would be Dr. Cabot's, " The Liver Cleansing Diet " or " The Healthy Liver and Bowel Book " . Following the advise in either will be technically cleansing the bowels because of the interrelationship of the liver to the bowel. I personally think " The Liver Cleansing Book " is much more simpler for a person to start getting an understanding of a diet by which to cleanse the liver and thereby the colon by understanding how the liver works with the bowels. It is the gateway in and out of the body cavity. It feeds the organs as well as cleansup after them. It is the cook and dishwasher. http://www.liverdoctor.com/ Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Don't worry so much how your going to miss sugar, concentrate on the diet, always know and have your food in the house, buy fresh or organic foods, Stevia is a sweetener you may use for sugar, Take a fresh squeezed lemon,. add a touch of stevia & you've got the best lemonade and lemons are good for you, this helps crave sugar for me, take each day & limit your sugar more and more as the days go on, once your off the sugar DO NOT TAKE THE FIRST BITE OF ANY SUGAR! it used to be i couldn't walk past the bakery without getting weak. remember the yeast is in control of your body and YOU want to be. do not give in. we all have our different views of fungals and vitamins, you'll have to see which makes you feel better. keep in touch with us and we are here for you. Good Luck Mog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Jane- Welcome to the group. I know that there are at least a couple in the group who live in the UK. Hopefully, they'll post. My daughter is 3, has pauci and iritis, and is on methotrexate, folic acid and Relafen. I actually wasn't sure one form of jra could turn into systemic if it wasn't initially. How awful for Ben. There are numerous members who have children with systemic jra and whose kids are on oral steroids. I'm sure they can give you some good information Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi Jane, First of all Welcome to the group! I'm sorry to hear Ben isn't doing so well. I want you to know you have joined a wonderful support group here, everybody here is so kind. My little girl is 4 & has Polyarticular arthritis. I hope all the best for you & Ben. Take care, & Cheyanne4 Poly > Hi, Im new to here so thought I would introduce myself. > Im Jane mum to Ben who is 6 and was diagnosed last August with poly > and yesterday told he had developed systemic. > We live in UK so would love to here from other parents in our area. > He is currently on methotrexate and brufen for his fevers, next step > is steroids but specialist is not too keen as Ben is a very large boy > already due to mobility probs. > > its nice to know were not alone > > Thanks for listening > > Jane and Ben Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Welcome Jane and Ben, I am sorry that your son has developed this, but you have found an amazing group of people. My daughter and I are not from UK but I am here to listen to anyone regardless of where you are. I wish you all the best. Teddy bear hugs and love, Casaria and Tas (3) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Hi Jane - Welcome! I'm a fellow Brit and my 3 yr old daughter (Calista) was diagnosed with Poly at the beginning of the year. She takes Methotrexate and Prednisone and has had the steroid injections into her joints twice (in January and last week). We are not living in the UK at the moment but are stationed in Germany so my daughter sees a lovely doctor at the Olga KinderKlinik in Stuttgart. I too didn't realise that a child could start off with Poly and then have it turn into Systemic - poor little Ben. Anyway, just wanted to welcome you and even though I dont post messages very often I really enjoy reading all of them and get a lot of support just from knowing that we are not the only family going through this! Vicky (Mum to Calista - 3yrs - Poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi Jane, Im from the states but would enjoy ytalking to you.I never knew Poly could turn into systemic.My son was diagnosed with systemic JRA june of last year.He was put on 30mg prednisilone,his Ibuprofin was increased and 2 weeks later started MTX.13 months later he is maxed out on Ibuprofin,800mg a day,he is maxed out on MTX,25mg sub que on Fridays,200 mg Plaquenil a day,added that one 3 months ago,and finally down to 5mg prednisilone.He is doing great now.It took a long time to find the right doses of meds,the Plaquenil isnt even working yet,that we know of.Pred is bad for weight. weighed 34lbs when he was diagnosed and now weighs 59lbs.It was really heartbreaking watching his apperance change so much.I hope for Ben the MTX and Ibuprofin control the systemic aspects of this disease.Our rheumy has a systemic patiant that never had to be put on steroids and the MTX alone done the trick,that is very rare though.Glad you joined this list,its such a great group of people. Becki and 4systemic New here >Hi, Im new to here so thought I would introduce myself. >Im Jane mum to Ben who is 6 and was diagnosed last August with poly >and yesterday told he had developed systemic. >We live in UK so would love to here from other parents in our area. >He is currently on methotrexate and brufen for his fevers, next step >is steroids but specialist is not too keen as Ben is a very large boy >already due to mobility probs. > >its nice to know were not alone > >Thanks for listening > >Jane and Ben > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Hi Jane, My son Damien has had systemic JRA for about 7 years and we are based in North Kent/SE London. We attend Gt Ormond St Hospital in London. Where are you and Ben? Oliver New here Hi, Im new to here so thought I would introduce myself. Im Jane mum to Ben who is 6 and was diagnosed last August with poly and yesterday told he had developed systemic. We live in UK so would love to here from other parents in our area. He is currently on methotrexate and brufen for his fevers, next step is steroids but specialist is not too keen as Ben is a very large boy already due to mobility probs. its nice to know were not alone Thanks for listening Jane and Ben Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Hi Jane, just wanted to welcome you (belatedly) to the group. This has been a tremendous source of support and information for me - you found the right place. Hang in there! Val Rob's Mom (4,systemic) In a message dated Wed, 31 Jul 2002 5:16:10 PM Eastern Standard Time, janemud@... writes: > > > Hi, Im new to here so thought I would introduce myself. > Im Jane mum to Ben who is 6 and was diagnosed last August with poly > and yesterday told he had developed systemic. > We live in UK so would love to here from other parents in our area. > He is currently on methotrexate and brufen for his fevers, next step > is steroids but specialist is not too keen as Ben is a very large boy > already due to mobility probs. > > its nice to know were not alone > > Thanks for listening > > Jane and Ben > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2002 Report Share Posted August 14, 2002 Hi Steffi, I am also a vegetarian who has a difficult time following the diet. but, keep in mind that you don't have to be incredibly strict about it forever. I'm sure you eat a lot of vegetables anyway, but try to up it even more. I think though, that since we are vegetarian and may eat more simple carbs than others, it provides a healthy environment for candida to grow. I have just started eating bread again, but only whole wheat. i do a lot of whole wheat pitas as well. i just started eating tofu and beans again too. i only went without these for a couple weeks, and am so happy to eat things i love again. just do your best and remember that this diet will not be forever. good luck. -dawn > Hi! My name is Steffi and I've been recently > diagnosed with candidiasis, although I've never had > problems with thrush and also my problems (which > include head aches, dizziness, feeling as if my > brain was swollen, fatigue, muscular pain > -especially shoulders, neck and upper back, VERY > intense cravings for sweet stuff and bread, mild > depression and wicked mood swings, bla bla) seem to > come and go so I'm still not 100% sure that candida > is my problem (the naturopath used something called > a Vega machine to diagnose me). Still, I'm sure if > it's not that then I've got some serious intolerance > problems, but I'll give this treatment a go first. > I've been on antifungals for about 2 weeks (one to > go) and keep trying to do the candida diet but I'm > having a hell of a time because I'm a vegetarian and > going low carb just seems almost impossible. Is > anyone here a vegetarian or can give me some ideas? > I'd really appreciate it! > Thanks, > Steffi. > Life is a journey, not a destination. > > > > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Hi Steffi, I am also a vegetarian and can really empathize with you. I have taken a drastic step however and gone onto chicken and a little fish-----temporarily--- since there is practically nothing to eat. (It isn't really helping that much though and making me feel terrible about going against my principles)----you are supposed to rotate every single item you eat and only have it every 4-7 days which is impossible since there are so few of them. I have brown rice almost every day. I try to eat green salads but find it difficult since I miss the yummy salad dressings I used to enjoy. My understanding is that nuts are perfectly fine, except for peanuts, cashews and pistachios. I buy them raw and roast them myself---it's my only snack besides rice cakes. Plum said she's doing plain corn chips: I don't know if they are the tostado type for salsa or what but they ususally prepare them in hydrologized oils which we cannot have. I think it's much harder for vegetarians because since the choices are even fewer than for the others, there's a much greater chance for us to cheat more and thereby slow things down or to fail completely. So hang in there. Oh---have you tried tempeh? I buy it at the health food store, cut it into cubes and stir fry it with vegetables. I only buy the soybean or brown rice types with no tamari. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2002 Report Share Posted August 22, 2002 Steffi-- Have you asked your heath food store if they can order unsweetened soy milk for you? Alot of stores here don' t have it on the shelves but they can order it. Also have you ever tried falafel with tahini sauce? There are many recipes on the web for it---it is permissable and quite yummy especially if you like Middle Eastern food. It's ground garbanzo beans shaped in patties or balls fried and served with salad and the sauce. Tahini is ground sesame seed paste. You can buy it in--- the US anyway and mix it with water and lemon juice to desired consistency for sauce, dip or salad dressing. I would love to visit your country some day. It sounds so beautiful and wonderful and I wonder if it is as swarming with people as this country is getting to be. Happy Cooking!! Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 -Hi Keri Welecome, to answer your questions about efa's It will not hurt him if he does not have apraxia, if anything will benefit him, It has helped my son Jack who at the time of supplementation was at about 10 words and is now at 7-8 word sentenses, right now there is a big ? on wether he has apraxia at all which is what we will find out next week with a appt. with a SLP who specializes in Apraxia. But at the time he was diagnosed he certaintly had all the characteristics of apraxia and was diagnosed with severe Oral apraxia. I also give EFA's to Jack's brother 1.8 and started him at 11 months, when for 1 months he stopped babbling and I was panicking. So I wrote to the list and one of the Dr's said it was fine, I started him on them imediatley and he started babbling again 2 weeks later and he is now at 4 word sentences. I doubt he is apraxic but I refuse to take him off of them he is doing fine with the acids and so is Jack with or without actually having Apraxia. Eileen -- In @y..., " keri_cabrera " <cdc210@b...> wrote: > Hello everyone > > My name is Keri and I am new to this group. > I have been online looking for info about apraxia and speech > disorders for the past 2 weeks and have found alot....2 days ago we > started nicholas on EFA supplementation...Question if it turns out > that he does not have apraxia and will the EFAs still be beneficial??? > Is there anything else...therapy or supplementation that anyone else > is trying???? > > Thanks Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Depending on your state they have a certain number of days to respond. Start calling, the squeaky wheel gets the grease!! We are also waiting to hear from > our town's school system...I hand delivered a letter to them > requesting an evualation but was told that the child study team > wasn't working in the summer???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Hi there! I have to agree with Eileen in that even if he doesnt have true apraxia, it will not hurt him and he may still benefit. I really believe this because my son started off with moderate apraxia about 2 years ago and now it has resolved (I started the suplmnts about a yr ago). I still give my son (he's 5) the ProEFA/EPA because there is something his brain is getting from it to help that language blossom and shoot, if anything his cholesterol level will probably stay low because of all the good omega oils he is getting! HTH. Vivian > >Question if it turns out that he does not have apraxia and will the EFAs still be > beneficial???> > Is there anything else...therapy or supplementation that anyone > else > > is trying???? > > > > Thanks Keri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 and Marie Logon to the website for this groupt, study the archived messages and the FILES section and any BOOKMARKS. Also, although I am not of African descent, I am offended by the comment below that AIDS is caused by weak genetic material of that genetic line. That is so racist and divisive, I can't believe I'm reading this on a list geared toward support and healing. I thought the message of the Holy Virgin and her son was inclusion, love, compassion and support! mjh In a message dated 9/10/02 5:21:18 PM Eastern Daylight Time, magoalter@... writes: > Hello Marie... > Since I am also rather new here, I won't be of much help for you, but I > just wanted you to know I will have your partner in my paryers to God and > to our sweet mother, the Holy Virgin. > I got into this list searching for alternative ways of treatment for > cancer. And I've seen some mentioned here, but maybe not as much as I > expected. > Nevertheless, the power of real honest love can help a lot, since cancer > appears to be somehow related with immune system confusion, and this can > very easily be associated with high levels of stress. So, being real love a > strong stress remover, this real love can help our immune system to get > stronger and smarter again. > As for what I've heard, chemo and/or radiation alone can even hurt more > than help if the person is not having a possitive attitude. I mean, > depression and stress, may block immune system normal work, and actually > all cells normal work, because stress and depression makes difficult for > the body to synthetise proteins, which are the bacic building blocks for > antibodies and cells in general. If you add some chemo and radiation > attacking the reproduction of cells (if I am not wrong, radiation is > supposed to attack more the cancer cells, because their reproduction cycles > are very fast an disordered and thus very safe or strong. But although it > is more effective on these more, it attack crazy and normal cells in the > same way)... imagine how hard would be for the body to find its equilibrium > again! > From what I've said you can also conclude another point: good and healthy > alimentation is another element in the treatment and cure of cancer. Within > this line of thoughts, there are doctors who believes that even AIDS is not > what we have been told: http://www.robertogiraldo.com/ and that can have > its origins in weak humans from Africa. I know it sounds almost crazy, but > the point is that there is another possible way of seeing things, not so > fatalistic. > I am not a scientist. I'm just a guy which mom was diagnosed with breast > cancer. Actually I once studied medicine (3 years), but didn't finished it, > because I decided better to study computers, and that's what I do for a > living now. > So, I only mention things about I've heard or read, for you, list-members > to give your opinions... > Thanks for all the informaton you send. > And pray with love and happyness to God, so He can bless all of us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hello Marie... Since I am also rather new here, I won't be of much help for you, but I just wanted you to know I will have your partner in my paryers to God and to our sweet mother, the Holy Virgin. I got into this list searching for alternative ways of treatment for cancer. And I've seen some mentioned here, but maybe not as much as I expected. Nevertheless, the power of real honest love can help a lot, since cancer appears to be somehow related with immune system confusion, and this can very easily be associated with high levels of stress. So, being real love a strong stress remover, this real love can help our immune system to get stronger and smarter again. As for what I've heard, chemo and/or radiation alone can even hurt more than help if the person is not having a possitive attitude. I mean, depression and stress, may block immune system normal work, and actually all cells normal work, because stress and depression makes difficult for the body to synthetise proteins, which are the bacic building blocks for antibodies and cells in general. If you add some chemo and radiation attacking the reproduction of cells (if I am not wrong, radiation is supposed to attack more the cancer cells, because their reproduction cycles are very fast an disordered and thus very safe or strong. But although it is more effective on these more, it attack crazy and normal cells in the same way)... imagine how hard would be for the body to find its equilibrium again! From what I've said you can also conclude another point: good and healthy alimentation is another element in the treatment and cure of cancer. Within this line of thoughts, there are doctors who believes that even AIDS is not what we have been told: http://www.robertogiraldo.com/ and that can have its origins in weak humans from Africa. I know it sounds almost crazy, but the point is that there is another possible way of seeing things, not so fatalistic. I am not a scientist. I'm just a guy which mom was diagnosed with breast cancer. Actually I once studied medicine (3 years), but didn't finished it, because I decided better to study computers, and that's what I do for a living now. So, I only mention things about I've heard or read, for you, list-members to give your opinions... Thanks for all the informaton you send. And pray with love and happyness to God, so He can bless all of us. Adrián. Marie wrote: Hi everyone.. I am new to the group. My partner was just diagnosted with cancer of the doudenum (lower stomach) which is inoperable. She has had surgery to bypass the area so that she can digest normally but will be starting radiation treatments soon. As her 'care giver' I would like to know what to expect during her treatment... Can anyone give me some advise Thanks and God Bless All of You Marie --------------------------------- - We Remember 9-11: A tribute to the more than 3,000 lives lost Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 There is a lot of great info within this site. Make sure you make good use of the " search archive " space to go back and review what topics may have already been discussed in the past. Like you, I have the privledge of taking care of someone who is going through conventional treatment first, rather than trying the alternatives first and using the conventional as the last resort. If she must go through chemo, there a few supplements that need to used right away. I'll list them and you can find all of the info on each of them. Coenzyme Q10: The will protect her heart from the damage of the chemo, act as an antioxidant and help oxygenate tissue. Digestive or proteolytic enzymes, preferably WobezymeN.: These help decrease inflammation, help shed the protective coating of the tumors and can also help break down food to provide better digestion. These will help her tolerate the chemo. L-Glutamine - helps avoid mouth sores Make sure you purchase the book Antioxidants Against Cancer by Ralph Moss. He gets into explaining in detail with references which supplements work with which chemo agents. Its a short book that is important since she should avoid mixing some supplements with certain chemos. As everyone else will tell you, make sure she avoids sugar and alcohol. There are several combinations of teas which may help but I don't want to overwhelm you. Chin up, you're a good friend. Marty --- Marie <mnmwon@...> wrote: > Hi everyone.. I am new to the group. My partner was > just diagnosted > with cancer of the doudenum (lower stomach) which is > inoperable. She > has had surgery to bypass the area so that she can > digest normally > but will be starting radiation treatments soon. As > her 'care giver' > I would like to know what to expect during her > treatment... Can > anyone give me some advise > > Thanks and God Bless All of You > > Marie > > __________________________________________________ - We Remember 9-11: A tribute to the more than 3,000 lives lost http://dir.remember./tribute Quote Link to comment Share on other sites More sharing options...
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