New here

[Guest guest]

For information on enzymes, check out www.enzymestuff.com or

www.danasview.net? or the book " Enzymes for Autism and Other

Neurological Disorders " by deFelice. Another helpful book

might be " Children With Starving Brains " by Jacquelyn McAndless.

Feingold Program (www.feingold.org) might be of interest as well.

in NJ

>

> >Hi my name is Robin. I have a 4 1/2 year old son, Collin, with

> >pervasive developmental delays. He has consistently tested in the

30%

> >delay range for gross, fine motor, verbal, cognitive, etc... He

has

> >hypotonia...didn't walk until 21 months.... Verbal Apraxia and

> >dysarthria...now has quite a large vocabulary, but some is still

very

> >hard to understand...poor fine motor skills, temper tantrums, etc..

> >

> >Other than these " diagnoses " ...we have not found a true diagnosis.

We

> >have had MRI, chromosome tests, metabolic tests, sleep study,

etc.

> >All with normal results. Autism has been ruled out.

> >

> >We have not looked into dietary changes and I see that is a

popular

> >issue here. I'm curious to hear some of the pros and cons.

> >

> >Looking forward to learning more from those on the message boards.

> >

> >Thanks.

> >

> >

> >

> >

[Guest guest]

Welcome Carolyn!!!

You will find alot of great supportive parents here who can help you along this plagio journey!

The fact that you caught this so early is wonderful! Agressive repo can work - but you HAVE to be very persistant. Hopefully Becky can chime in with great advice.

My dd has tort but did not have any closed sutures so we banded. From what I understand if the sutures are closed than a band is contraindicated BUT if it is "almost closed" I'm not sure what that means. Ask the neuro for a CT to see if it is truley closed. See if you can get an appt with a Cranio-facial Dr. They can help with the cranio - and if the Neuro isn't on board with banding (some drs just aren't into it) The cranio drs can give you an eval and script for the band.

HTH!

Jen and Luli - 19 mo.

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

www.babiesonline.com/babies/j/jens5th/

new here

Hi,

I have a beautiful 3.5 mo daughter, Caitlin, with hypotonia,

torticollis and plagiocephaly. We saw the ped neuro last week who

recommends aggressive repositioning and we started PT two weeks ago.

After reading the intial PT eval and seeing that her ears were

asymmetrical (and her eyes though I can't see that) I find myself

studying her head shape all the time. The neuro also told us that

her front fontanel is almost closed, but that her head is growing at

a good rate and it isn't cranial synostosis.

I'm new to this and already have some conflicting info. Her PT

feels she may need a helmet down the line, but wasn't sure if the

closed fontanel was a contraindication. When I asked the neuro he

said that it wasn't, but that he hadn't found helmets to be very

successful (I'm not sure if he meant in general or in cases like

Cailtin's) and we should try to reposition aggressively. The PT said

she hears this alot from docs but that in her experience they do

help. In reading the FAQ's and looking at pictures I can see that

people have had positive experiences with the helmets.

Anyway, I'm jumping the gun as we've just started the

repositioning but I just wanted to introduce myself and see if others

have had kids successfully treated with helmets after a fontanel was

closed. I have a two year old with hypotonia and global delays and

lots of weekly therapy so Cailtin's repositioning is a little

overwhelming.

thanks

Carolyn

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

Hi Jenn,

Thanks for the welcome! I'm going to call my neuro to get some

more clarification on the sutures; I don't understand why repo would

work but a band wouldn't. He told us right of the bat that if the ped

requested a CT or MRI it was unnecessary as it was not synostosis so

I'll look into that also.

thanks

Carolyn

>

> Welcome Carolyn!!!

> You will find alot of great supportive parents here who can help

you along this plagio journey!

> The fact that you caught this so early is wonderful! Agressive repo

can work - but you HAVE to be very persistant. Hopefully Becky can

chime in with great advice.

> My dd?has tort but did?not have any closed sutures so we banded.

From what I understand if the sutures are closed than a band is

contraindicated BUT if it is " almost closed " I'm not sure what that

means. Ask the neuro for a CT to see if it is truley closed. See if

you can get an appt with a Cranio-facial Dr. They can help with the

cranio - and if the Neuro isn't on board with banding (some drs just

aren't into it) The cranio drs can give you an eval and script for

the band.

> HTH!

>

>

> ?Jen and Luli - 19 mo.

> Left Tort - Right Plagio - Hanger Band Grad - CA

> tallulah jayne

> www.babiesonline.com/babies/j/jens5th/

>

>

> new here

>

>

>

>

>

>

> Hi,

> I have a beautiful 3.5 mo daughter, Caitlin, with hypotonia,

> torticollis and plagiocephaly. We saw the ped neuro last week who

> recommends aggressive repositioning and we started PT two weeks

ago.

> After reading the intial PT eval and seeing that her ears were

> asymmetrical (and her eyes though I can't see that) I find myself

> studying her head shape all the time. The neuro also told us that

> her front fontanel is almost closed, but that her head is growing

at

> a good rate and it isn't cranial synostosis.

> I'm new to this and already have some conflicting info. Her PT

> feels she may need a helmet down the line, but wasn't sure if the

> closed fontanel was a contraindication. When I asked the neuro he

> said that it wasn't, but that he hadn't found helmets to be very

> successful (I'm not sure if he meant in general or in cases like

> Cailtin's) and we should try to reposition aggressively. The PT

said

> she hears this alot from docs but that in her experience they do

> help. In reading the FAQ's and looking at pictures I can see that

> people have had positive experiences with the helmets.

> Anyway, I'm jumping the gun as we've just started the

> repositioning but I just wanted to introduce myself and see if

others

> have had kids successfully treated with helmets after a fontanel

was

> closed. I have a two year old with hypotonia and global delays and

> lots of weekly therapy so Cailtin's repositioning is a little

> overwhelming.

> thanks

> Carolyn

>

>

>

>

>

>

______________________________________________________________________

__

> AOL now offers free email to everyone. Find out more about what's

free from AOL at AOL.com.

>

[Guest guest]

Hi Carolyn,

I think that if your daughter's sutures are closed or even nearly

closed then you would want to make sure craniosyntosis is ruled out

which it sounds like he ruled out but I thought premature closing of

sutures was cranio. I'm kind of confused by what your neuro said.

If your daughter has cranio, then surgery may be required prior to

the band. I don't really see how repositioning would help if a band

wouldn't. What helmet/band provider are you considering? You could

call them and go in for an evaluation. We were very pleased with

the DOC band. Good luck in your journey. Keep us posting.

> >

> > Welcome Carolyn!!!

> > You will find alot of great supportive parents here who can help

> you along this plagio journey!

> > The fact that you caught this so early is wonderful! Agressive

repo

> can work - but you HAVE to be very persistant. Hopefully Becky can

> chime in with great advice.

> > My dd?has tort but did?not have any closed sutures so we banded.

> From what I understand if the sutures are closed than a band is

> contraindicated BUT if it is " almost closed " I'm not sure what

that

> means. Ask the neuro for a CT to see if it is truley closed. See

if

> you can get an appt with a Cranio-facial Dr. They can help with

the

> cranio - and if the Neuro isn't on board with banding (some drs

just

> aren't into it) The cranio drs can give you an eval and script for

> the band.

> > HTH!

> >

> >

> > ?Jen and Luli - 19 mo.

> > Left Tort - Right Plagio - Hanger Band Grad - CA

> > tallulah jayne

> > www.babiesonline.com/babies/j/jens5th/

> >

> >

> > new here

> >

> >

> >

> >

> >

> >

> > Hi,

> > I have a beautiful 3.5 mo daughter, Caitlin, with hypotonia,

> > torticollis and plagiocephaly. We saw the ped neuro last week

who

> > recommends aggressive repositioning and we started PT two weeks

> ago.

> > After reading the intial PT eval and seeing that her ears were

> > asymmetrical (and her eyes though I can't see that) I find

myself

> > studying her head shape all the time. The neuro also told us

that

> > her front fontanel is almost closed, but that her head is

growing

> at

> > a good rate and it isn't cranial synostosis.

> > I'm new to this and already have some conflicting info. Her PT

> > feels she may need a helmet down the line, but wasn't sure if

the

> > closed fontanel was a contraindication. When I asked the neuro

he

> > said that it wasn't, but that he hadn't found helmets to be very

> > successful (I'm not sure if he meant in general or in cases like

> > Cailtin's) and we should try to reposition aggressively. The PT

> said

> > she hears this alot from docs but that in her experience they do

> > help. In reading the FAQ's and looking at pictures I can see

that

> > people have had positive experiences with the helmets.

> > Anyway, I'm jumping the gun as we've just started the

> > repositioning but I just wanted to introduce myself and see if

> others

> > have had kids successfully treated with helmets after a fontanel

> was

> > closed. I have a two year old with hypotonia and global delays

and

> > lots of weekly therapy so Cailtin's repositioning is a little

> > overwhelming.

> > thanks

> > Carolyn

> >

> >

> >

> >

> >

> >

>

_____________________________________________________________________

_

> __

> > AOL now offers free email to everyone. Find out more about

what's

> free from AOL at AOL.com.

> >

>

[Guest guest]

> Hi I was doing a search online for EMF protectors and found this

> group. Actually I am having a real problem I am a reiki

> master/teacher but since i moved to this older home been having some

> problems with electromagnetic energy.

So, are you saying that you didn't have problems in your previous

house, and the problems started after moving? If so, it sounds

like it's a problem with the house! Have you bought one of those

cheap outlet testers to see if your outlets are wired properly?

Do the outlets have a grounding pin (3 holes, not 2)?

Certainly fixing the wiring as best you can is a good first step,

and then you could add additional protection with shielding,

avoidance, and EMF protection devices.

Marc

[Guest guest]

When you say EMF meter, is it a gauss meter? Probably if you keep those

little black boxes (transformers) away from your body that will help (if

they

are just making a magnetic field. If they generate RF too, try wrapping in

tin foil?

Just keep the printer unplugged.

There could be another problem with the house. If it is more than 1

milligauss

I would certainly look into it further. Also, if you can see a cell

tower...

Bill

On 8/27/07, Seshmet <zirafox9@...> wrote:

>

> Hi I was doing a search online for EMF protectors and found this

> group. Actually I am having a real problem I am a reiki

> master/teacher but since i moved to this older home been having some

> problems with electromagnetic energy. I actually feel a tingling in

> my legs under the computer desk i have a EMF meter and it is to the

> top thru the black box that has a cord on both ends connected to

> computer and printer. I went thru my home to find 2 microwaves, the

> wall that the electric comes into house, 2 clocks, this cord/black

> box the worse of all to the top of the meter. I am sensitive but

> never been this sensitive until we moved here. What is the best thing

> to do get rid of printer or neutralize it somehow. The printer is the

> only one that is very noticable with me. I feel like ants crawling on

> my skin but nothing is there. I hate to get on my computer but do it

> anyway i do alot of work on here and frustrated from this problem. Is

> there something cheap i can use to block it cause i am not rich been

> researching some of the items. Both me and hubby has been irritable,

> sleeping problems and nightmares i have been sick off and on since

> June we moved in not sure if this is the cause but definitely

> something is going on in this house. I have cleared room my sage,

> crystals, use hematite and use an air cleaner because this room just

> feels yucky and dark the air is thick, the air cleaner does help in

> the atmosphere but the tingle feeling is what is driving me nuts in

> here. I have tried it without cleaner also. What is funny is why it

> started to show up since i moved here?

>

> Seshmet

>

>

>

[Guest guest]

>by reading all the info on EMF symptoms guess i had most of them

anyway it is just since i moved something i felt personally a tingle in

the legs that is driving me nuts when i set only at the computer the

EMF meeter is a trifield meter. It is up to top with a few things in my

house. Here goes: microwave 2 of them, 2 electric/battery alarm clocks,

the wall outlet area where the electricity comes into house, computer

tower, monitor is all the way up, the others are the ones underneath my

computer desk is the ones that are bothering me, i have 2 power surge

strips that are all the way up and one box-w-cords at both end for the

computer i feel the tingle only at the computer. I have not check

outlets because the only problem i seemed to be having is in the

computer room the most, but by reading more i find i have been affected

in other ways also just now moving to this house i am feeling it more.

Seshmet

> So, are you saying that you didn't have problems in your previous

> house, and the problems started after moving? If so, it sounds

> like it's a problem with the house! Have you bought one of those

> cheap outlet testers to see if your outlets are wired properly?

> Do the outlets have a grounding pin (3 holes, not 2)?

>

> Certainly fixing the wiring as best you can is a good first step,

> and then you could add additional protection with shielding,

> avoidance, and EMF protection devices.

>

> Marc

>

[Guest guest]

the meter is a trifield meter. 0-100 it is 100 and if it is on the 0-

3 it is on high higher than 3 in the red zone. I have tried to move

them under the desk more but still feeling it without legs under

computer desk. I found the power strips are worse they are high also.

like i said i only actually feel it in the computer room but know it

is affecting me for a long time in other places just in different

ways just seems to be stronger here and affecting me with tingles in

my legs mostly but have felt it further up. I do have a telephone

pole way out at the street and end of driveway but no cell tower on

it this is in an old neighborhood so lots of electrical wires in the

air. i am trying to find personally what i can do, to stop the

poisoning and illnesses i am having plus this tingle. I have

fibromyalgia but suspect all the symptoms i am having are listed on

this EMF symptoms. I am not rich and cant afford alot but want to

stop these problems please help.

Seshmet

> >

> > Hi I was doing a search online for EMF protectors and found this

> > group. Actually I am having a real problem I am a reiki

> > master/teacher but since i moved to this older home been having

some

> > problems with electromagnetic energy. I actually feel a tingling

in

> > my legs under the computer desk i have a EMF meter and it is to

the

> > top thru the black box that has a cord on both ends connected to

> > computer and printer. I went thru my home to find 2 microwaves,

the

> > wall that the electric comes into house, 2 clocks, this cord/black

> > box the worse of all to the top of the meter. I am sensitive but

> > never been this sensitive until we moved here. What is the best

thing

> > to do get rid of printer or neutralize it somehow. The printer is

the

> > only one that is very noticable with me. I feel like ants

crawling on

> > my skin but nothing is there. I hate to get on my computer but do

it

> > anyway i do alot of work on here and frustrated from this

problem. Is

> > there something cheap i can use to block it cause i am not rich

been

> > researching some of the items. Both me and hubby has been

irritable,

> > sleeping problems and nightmares i have been sick off and on since

> > June we moved in not sure if this is the cause but definitely

> > something is going on in this house. I have cleared room my sage,

> > crystals, use hematite and use an air cleaner because this room

just

> > feels yucky and dark the air is thick, the air cleaner does help

in

> > the atmosphere but the tingle feeling is what is driving me nuts

in

> > here. I have tried it without cleaner also. What is funny is why

it

> > started to show up since i moved here?

> >

> > Seshmet

> >

> >

> >

>

>

>

[Guest guest]

In a message dated 8/29/2007 4:41:04 PM GMT Daylight Time,

sandreas41@... writes:

Hi Seshmet,

If you feel it worse near the computer, then you are sensitive to the

EMF fields made by the computer.

I am not so sure about this - The EMF RF ELECFEILDS may all be cuasing a

reaction, at what point does a hi emf behin to radiate as RF and so on, I for

one have problems with all 3, its complex !

UK

[Guest guest]

Seshmet wrote:

> like i said i only actually feel it in the computer room but know it

> is affecting me for a long time in other places just in different

> ways just seems to be stronger here and affecting me with tingles in

>

Hi Seshmet,

If you feel it worse near the computer, then you are sensitive to the

EMF fields made by the computer.

If however, you said you felt worse near the power lines outside, where

the trifield meter read highest, then you would be sensitive to magnetic

fields more-so. But you feel worse near the computer, and that is

definitely normal for those here on this board. It is also a frequency

that the tri-field meter does not pick up well, hardly at all.

If you don't have much money, then you don't want to purchase a better

meter. You could spend a lot in search of a device that confirms what

you feel. So instead, pursue ways of staying away from that computer,

and anything transmitting wireless energy. Distance is good. Seeking a

quieter computer is also good, but takes time and usually money in the

search. The emissions of computer equipment varies as much as the

rainbow has colors.

Also, look into detoxing your body from heavy metals, and pursue

improving your health. It is all related.

Stay away from strong power lines. The tri-field meter is not useless.

It just doesn't show the big picture.

If it reads high magnetic fields from the surge protectors, then

rearrange the work area so that no equipment is within 3 or 6 feet from

your body.

Now I re-read your first post, I realize you moved to a new house or area.

Something has triggered an overload in your nervous system.

If you are in the U.S., can you see if there are any hidden antennas in

your area?

http://antennasearch.com/

If not, then does this feeling persist outside the house? Can you walk

around the neighborhood, making a large circle around the house? If so,

then does it feel worse in any particular direction?

If not, then it might really be the wiring in the house. Do you feel

better if the circuit breakers are turned off?

[Guest guest]

What sucks more is having something and not knowing what it is or how to

help. You did great coming here. Your child is doing well and there is

so much hope. Please read the fish oil folder and the malabsorption

folder. I think you may find things that will help. I hope so. Ask lots

of questions and trust your mommy gut. You can do this and so can your

sweet boy. Never, ever stop trying to help him find his voice.

jt86571 wrote:

> Hey everyone. Glad I found this group. I have a 2 yo son. He was

> always a quiet baby, we just thought we lucked out. At around 18

> months he began to try to say daddy (daeeeee), up (pah) and hi

> (heeee). Shortly after he lost these words. He has also said bubble

> one time, and for about a week he said " arrrrrr " for car. He currently

> says uh-oh. He still just makes vowel sounds. He has been making

> sounds where words go occasionally when asked a question or when trying

> to get his needs met. YOu can tell he is thinking of the word, but the

> wrong word comes out. He becan ST at 23 months. The SLP didnt like him

> using signs, which we had just started, so we quit. She thought

> apraxia. We had an EI eval at 24 months. The SLP also told us to keep

> apraxia in mind. We have been with our current SLP for about 2 months

> now. She thinks he definately has apraxia. We have an appt with a

> developmental pedi next week. He is on track or above every other area

> in development. He is currently in therapy twice a week. We also do

> alot of play therapy at home, such as whistles, bubbles, making faces,

> ect. To be blunt, this disorder sucks, and no one outside of my

> husband and the SLP seems to understand " in real life " Hoping to get

> some support...

>

> Thanks!

>

>

[Guest guest]

Welcome to the group. I have never heard of signing hurting language

development. What reason did she give? Aggie

Re: [ ] New here

What sucks more is having something and not knowing what it is or how to

help. You did great coming here. Your child is doing well and there is

so much hope. Please read the fish oil folder and the malabsorption

folder. I think you may find things that will help. I hope so. Ask lots

of questions and trust your mommy gut. You can do this and so can your

sweet boy. Never, ever stop trying to help him find his voice.

jt86571 wrote:

> Hey everyone. Glad I found this group. I have a 2 yo son. He was

> always a quiet baby, we just thought we lucked out. At around 18

> months he began to try to say daddy (daeeeee), up (pah) and hi

> (heeee). Shortly after he lost these words. He has also said bubble

> one time, and for about a week he said " arrrrrr " for car. He currently

> says uh-oh. He still just makes vowel sounds. He has been making

> sounds where words go occasionally when asked a question or when trying

> to get his needs met. YOu can tell he is thinking of the word, but the

> wrong word comes out. He becan ST at 23 months. The SLP didnt like him

> using signs, which we had just started, so we quit. She thought

> apraxia. We had an EI eval at 24 months. The SLP also told us to keep

> apraxia in mind. We have been with our current SLP for about 2 months

> now. She thinks he definately has apraxia. We have an appt with a

> developmental pedi next week. He is on track or above every other area

> in development. He is currently in therapy twice a week. We also do

> alot of play therapy at home, such as whistles, bubbles, making faces,

> ect. To be blunt, this disorder sucks, and no one outside of my

> husband and the SLP seems to understand " in real life " Hoping to get

> some support...

>

> Thanks!

>

>

[Guest guest]

I had a discussion about this with the ST. She said there is an

ignorance (her word, not mine) out there among parents and her peers

that the child will overrely on signing and never speak. My personal

take is these kids are smart. Build the receptive up any way you can,

including signing. Once that is built up the kid sees everyone talking

and if they are physically able they will join in. If they are not,

signing will prevent frustration. Imagine if Annie Sullivan decided not

to sign to Helen Keller? Our kids often test fine on the hearing tests

but have negative pressue. Negative pressure impairs hearing and at this

point I would personally walk out of a drs office if they told me

otherwise (and honestly, I have never walked out of any drs office in a

huff despite any misgiving I have had because at the end of the day I

know they went to medical school and I truly believe all of them

care...they just don't know everything). Imagine trying to hear

underwater with ear pain that rivals the worst swimmers ear. Then

imagine being expected to walk, talk, be understodd, shake your head yes

or no and develop motor skills. Anything we can do to help them, so long

as it is safe, pursued from a standpoint of safest (signing seems safe

to me) to more complexshould be pursued in my nonmedical, uneducated

except as a parent, opinion.

Gene and Aggie Birocco wrote:

> Welcome to the group. I have never heard of signing hurting language

> development. What reason did she give? Aggie

> Re: [ ] New here

>

> What sucks more is having something and not knowing what it is or how to

> help. You did great coming here. Your child is doing well and there is

> so much hope. Please read the fish oil folder and the malabsorption

> folder. I think you may find things that will help. I hope so. Ask lots

> of questions and trust your mommy gut. You can do this and so can your

> sweet boy. Never, ever stop trying to help him find his voice.

>

> jt86571 wrote:

>

> > Hey everyone. Glad I found this group. I have a 2 yo son. He was

> > always a quiet baby, we just thought we lucked out. At around 18

> > months he began to try to say daddy (daeeeee), up (pah) and hi

> > (heeee). Shortly after he lost these words. He has also said bubble

> > one time, and for about a week he said " arrrrrr " for car. He currently

> > says uh-oh. He still just makes vowel sounds. He has been making

> > sounds where words go occasionally when asked a question or when trying

> > to get his needs met. YOu can tell he is thinking of the word, but the

> > wrong word comes out. He becan ST at 23 months. The SLP didnt like him

> > using signs, which we had just started, so we quit. She thought

> > apraxia. We had an EI eval at 24 months. The SLP also told us to keep

> > apraxia in mind. We have been with our current SLP for about 2 months

> > now. She thinks he definately has apraxia. We have an appt with a

> > developmental pedi next week. He is on track or above every other area

> > in development. He is currently in therapy twice a week. We also do

> > alot of play therapy at home, such as whistles, bubbles, making faces,

> > ect. To be blunt, this disorder sucks, and no one outside of my

> > husband and the SLP seems to understand " in real life " Hoping to get

> > some support...

> >

> > Thanks!

> >

> >

>

>

[Guest guest]

my SLP also said no to signing. We did it in the beginning to reduce Stevie's

frustration. It was a miracle. Now, the slp thinks he's leaning on it too much

so no more sign. Now SLP sees a readiness and a new eagerness to speak - and we

have had a profound language explosion since the intro of fish oil. We were glad

for sign since it confirmed for us what we knew ( he was in there, and having

all sorts of thoughts and opinions about stuff. they were just trapped in there)

We are also glad to be moving forward baby step by step.

Blessings

Mari Markovic Cathcart

---------------------------------

Shape in your own image. Join our Network Research Panel today!

[Guest guest]

Why is she against signing? I have been taught that any movement, any

muscle control anywhere in the body can only encourage other muscles.

Signing does not keep kids from talking. It can actually encourage

talking. Meanwhile any successful generally used form of

communication can cut down on basic frustrations from not having his

needs met or understood.

Everything else is on track? In my very limited exposure it seems

there's usually something else going on, too. For instance my

daughter can't run yet and she'll be 3 in November. She has oral

apraxia, developmental dyspraxia, and sensory issues. We already see

progress in our first 6 weeks on the fish oil / vit. E

supplementation. If your son has nothing else going on I wonder how

the oils would work on him....

I know others in the group who are vastly more knowledgeable than I

will have the best advice!

Darlene

>

> Hey everyone. Glad I found this group. I have a 2 yo son. He was

> always a quiet baby, we just thought we lucked out. At around 18

> months he began to try to say daddy (daeeeee), up (pah) and hi

> (heeee). Shortly after he lost these words. He has also said bubble

> one time, and for about a week he said " arrrrrr " for car. He currently

> says uh-oh. He still just makes vowel sounds. He has been making

> sounds where words go occasionally when asked a question or when trying

> to get his needs met. YOu can tell he is thinking of the word, but the

> wrong word comes out. He becan ST at 23 months. The SLP didnt like him

> using signs, which we had just started, so we quit. She thought

> apraxia. We had an EI eval at 24 months. The SLP also told us to keep

> apraxia in mind. We have been with our current SLP for about 2 months

> now. She thinks he definately has apraxia. We have an appt with a

> developmental pedi next week. He is on track or above every other area

> in development. He is currently in therapy twice a week. We also do

> alot of play therapy at home, such as whistles, bubbles, making faces,

> ect. To be blunt, this disorder sucks, and no one outside of my

> husband and the SLP seems to understand " in real life " Hoping to get

> some support...

>

> Thanks!

>

[Guest guest]

Hi , My son is newly dx about 2 years now. He is going to be 11 in Dec. I can see thing being swept under the rug...I am working hard to unclog my vacuum, put in a new bag and clean things up. Hopefully, the power doesn't go out. LOL Keep reading Keep posting Keep informed. "tracy.money" <michealmoney@...> wrote: Hi, My name is and I live in North Florida. I'm new here butnot to the Asperger's world. My

son is 11 (we got the diagnosis whenhe was 4). He is now in middle school. Boy, we are in a whole newworld. Lack of organizational skills are hitting us hard. I'm justlooking around for now.

Shape in your own image. Join our Network Research Panel today!

[Guest guest]

, We have this addressed in our IEP. He does not have a locker. He has a set of books at home and one in each class. If they want a binder used for their class....it stays in the class. He takes, paper, folder with pockets, etc. to classes. We also have it set up where someone actually WATCHES him write in his school journal. But it would have to be looked at in order to know what HW to do.

If the HW is overwhelming and he is having major meltdowns at home b/c of holding it all together at school.. then put in the IEP that there is to be little to no homework. My son also changes classes before or after the bell so that he is not overwhelmed by the mass of kids (roughing around) in the hall.

Just some suggestions.

-GA

( ) New Here

Hi, My name is and I live in North Florida. I'm new here butnot to the Asperger's world. My son is 11 (we got the diagnosis whenhe was 4). He is now in middle school. Boy, we are in a whole newworld. Lack of organizational skills are hitting us hard. I'm justlooking around for now.

[Guest guest]

, Bee Wilder's advice includes several " candida myths " that

conspire to lengthen your recovery time by it seems an average of

around 4/5. Bee's list also promulgates some advice

that could be considered harmful, as it has indeed harmed a few of our

list members and will generally slow your progress. The group will

apprise you; several comments have been captured to my feedback page.

My experience with fibro is that it can improve remarkably with an HGH

program. Interesting that toxin load and carbs reduce HGH release, and

heavy people tend to complain about fatigue more, probably because

they have a touch of metabolic syndrome induced by their diet and

lifestyle.

Anyway, both the MS and fibro are oxidative disorders and as such

respond to our protocol, which includes the specific precursors

undenatured whey and selenium. Local doctor Bill Code had MS, and had

written a book about managing it; when he was led to using undenatured

whey and selenium he got better, and today he is well, and gives this

factor most of the credit.

Duncan Crow

http://members.shaw.ca/duncancrow/

>

> Hello!

> I have been treating my Candida for a year now and have lost 40

pounds

> and 3/4 of my hair. I'm 5'9 " and 115 lbs. I have been following Bee

> Wilder's diet and protocols for the last 5 months and her

recommended

> treatments. i have clearer thinking, less day to day pain, and I am

> sleeping much better. I had fibro and MS for years that are both

> gone, except for the bouts of pain after doing enemas or taking too

> mmuch coconut oil. I find I get a very painful liver after the

coffee

> enemas that last for 2-3 days. Then I am exhausted for a day or

two.

> Is this a healing reaction? I am wondering what diet you all are

> following and what supplements you are taking?

> laura

>

[Guest guest]

Connie, Hello, I am also a Florida mom (from SWFL) with an AS/ADHD son, age 11. We homeschool and have been since he was 5 (he is almost 11 now). I encourage you to homeschool your child. was in a PreK 4 program years ago and we took him out after Christmas of that year. He did so much better academically when not overwhelmed by all the stimuli in a classroom situation. Plus, I did not want his self-esteem crushed by being labeled a "bad behaviored child". If you have any questions feel free to e-mail me back. auburntiger87@... sewmommyfor3 <SewMommy@...> wrote: Hi,I recently joined this group and have enjoyed the wisdom and encouragment shared here.I am a single mom of three children. My oldest (boy) is 15. He was diagnosed with Asperger's Syndrome almost 10 years ago (just before his 6th birthday). My daughter is 12, and my youngest (boy) is 4.5. He was diagnosed with Asperger's Syndrome in June.With my oldest, I was clueless about autism/Aspergers. We realized something was different about him when we saw his sister doing things at 2 years old that he was still not doing at 5 (mostly social type things).Anyway, he was later diagnosed with Bi-polar disorder in addition to Aspesrger's Syndrome.Thankfully, that now, at age 15 he has settled down

tremendously. There were some nightmare years in there, but he is on medication and doing well in school, and at home for the most part.I joined this list mostly because of my youngest. My pediatrician (who has an autistic son) became concerned about at 6 months old. He was in Early Intervention, Occupational Therapy and Speech Therapy. He progressed amazingly, but now seems to have settled in with Aspergers. He's almost as though he hit a plateau as far as advancing through the ranks of the autism spectrum.Thankfully, God has blessed me with a much better ability to see through his disoder than I had with my older son. TImothy definitely has typical childhood disobedience, but most of the time, I am able to discern typical disobedience from Asperger's issues.He is currently in preschool through the Voluntary Pre Kindergarten program. He has a wonderful teacher who has been very willing to work

with him. However, although our school system is at the top of the state (Florida) for normal children, it stinks for autistic children. In our local elementary school there are 7 kindergarten teachers, and none have experience/knoweldge of asperger's/autism.He does farily well in preschool, but it is only because he has such an understanding teacher. HOwever, there are times when I realize that even the sweetest teacher cannot totally understand how functions.On Friday, he had to "move his bus to the yellow" (on the behavior chart) because he would not come to his seat and sit down. She gave him three warnings, and then he had to move his bus. When I talked to him about it, I asked him why he did not sit down when his teacher told him to. He said "because there were books at my table". Apparently some child had left some books at his place at the table, and he was not going to sit down when

those books were there because as he said, "they didn't belong there." I cannot blame his teacher, but at the same time, it makes me realize just how often he will go through life being misunderstood.I'm seriously considering homeschooling him next. My pediatrician (with an autistic son) even said it might be best for him. I'm going to see about going through the school system for therapy for him, but I am not sure that he would do well in Kindergarten.I work full time from home (as a radiology transcriptionist) 2nd shift, so I am able to have my mornings free to homeschool. I have always homeschooled my daughter, so homeschooling is not new to me. Do any of you homeschool your AS children?-Conniehttp://www.sewmommy.typepad.com/timothyhttp://www.theribbonbowtique.com

Pinpoint customers who are looking for what you sell.

[Guest guest]

I would love to do that; we are at a point that we have about had it with the school for our almost 14 year old for sure. For sure, he is reporting OVERWHELMED!! He can't stand the busy hallways, etc. Frustrating; I just dread the constant 'battles' over doing the work; but we would do it with a tutor because, behaviorally, my kids are NOT homeschoolable (maybe elsewhere with a tutor). Ruthie

Re: ( ) New Here

Connie,

Hello, I am also a Florida mom (from SWFL) with an AS/ADHD son, age 11. We homeschool and have been since he was 5 (he is almost 11 now). I encourage you to homeschool your child. was in a PreK 4 program years ago and we took him out after Christmas of that year. He did so much better academically when not overwhelmed by all the stimuli in a classroom situation. Plus, I did not want his self-esteem crushed by being labeled a "bad behaviored child". If you have any questions feel free to e-mail me back.

auburntiger87

sewmommyfor3 <SewMommymchsi> wrote:

Hi,I recently joined this group and have enjoyed the wisdom and encouragment shared here.I am a single mom of three children. My oldest (boy) is 15. He was diagnosed with Asperger's Syndrome almost 10 years ago (just before his 6th birthday). My daughter is 12, and my youngest (boy) is 4.5. He was diagnosed with Asperger's Syndrome in June.With my oldest, I was clueless about autism/Aspergers. We realized something was different about him when we saw his sister doing things at 2 years old that he was still not doing at 5 (mostly social type things).Anyway, he was later diagnosed with Bi-polar disorder in addition to Aspesrger's Syndrome.Thankfully, that now, at age 15 he has settled down tremendously. There were some nightmare years in there, but he is on medication and doing well in school, and at home for the most part.I joined this list mostly because of my youngest. My pediatrician (who has an autistic son) became concerned about at 6 months old. He was in Early Intervention, Occupational Therapy and Speech Therapy. He progressed amazingly, but now seems to have settled in with Aspergers. He's almost as though he hit a plateau as far as advancing through the ranks of the autism spectrum.Thankfully, God has blessed me with a much better ability to see through his disoder than I had with my older son. TImothy definitely has typical childhood disobedience, but most of the time, I am able to discern typical disobedience from Asperger's issues.He is currently in preschool through the Voluntary Pre Kindergarten program. He has a wonderful teacher who has been very willing to work with him. However, although our school system is at the top of the state (Florida) for normal children, it stinks for autistic children. In our local elementary school there are 7 kindergarten teachers, and none have experience/knoweldge of asperger's/autism.He does farily well in preschool, but it is only because he has such an understanding teacher. HOwever, there are times when I realize that even the sweetest teacher cannot totally understand how functions.On Friday, he had to "move his bus to the yellow" (on the behavior chart) because he would not come to his seat and sit down. She gave him three warnings, and then he had to move his bus. When I talked to him about it, I asked him why he did not sit down when his teacher told him to. He said "because there were books at my table". Apparently some child had left some books at his place at the table, and he was not going to sit down when those books were there because as he said, "they didn't belong there." I cannot blame his teacher, but at the same time, it makes me realize just how often he will go through life being misunderstood.I'm seriously considering homeschooling him next. My pediatrician (with an autistic son) even said it might be best for him. I'm going to see about going through the school system for therapy for him, but I am not sure that he would do well in Kindergarten.I work full time from home (as a radiology transcriptionist) 2nd shift, so I am able to have my mornings free to homeschool. I have always homeschooled my daughter, so homeschooling is not new to me. Do any of you homeschool your AS children?-Conniehttp://www.sewmommytypepad.com/timothyhttp://www.theribbonbowtique.com

Pinpoint customers who are looking for what you sell.

[Guest guest]

Who teaches these homeschooled kiddos? You? Will your child let you? Or, do you have a cooperative? Or tutors that are certified teachers? Go through an agency? And, is the school paying everyone's homeschooling??? Ruthie

Re: ( ) New Here

Yep.

We pulled our 11 yr out after last year. He's doing a virtual school for 6th grade. It's been a blessing.

It's public school,,,,,,curriculum, etc but done at home.

I'd google "virtual school" and your state.

The "headquarters" for virtual schools are in an actual public school bldg. There are real teachers involved, too. Just not the pub school teachers.

Anyway,,,,,you have to sign up for them (virtual schools) in Feb during a 2wk time period. There are no exceptions.

Also ck out your states' DPI. Type "your state and then department of public instruction".

Hope this helps.

Robinsewmommyfor3 <SewMommymchsi> wrote:

Hi,I recently joined this group and have enjoyed the wisdom and encouragment shared here.I am a single mom of three children. My oldest (boy) is 15. He was diagnosed with Asperger's Syndrome almost 10 years ago (just before his 6th birthday). My daughter is 12, and my youngest (boy) is 4.5. He was diagnosed with Asperger's Syndrome in June.With my oldest, I was clueless about autism/Aspergers. We realized something was different about him when we saw his sister doing things at 2 years old that he was still not doing at 5 (mostly social type things).Anyway, he was later diagnosed with Bi-polar disorder in addition to Aspesrger's Syndrome.Thankfully, that now, at age 15 he has settled down tremendously. There were some nightmare years in there, but he is on medication and doing well in school, and at home for the most part.I joined this list mostly because of my youngest. My pediatrician (who has an autistic son) became concerned about at 6 months old. He was in Early Intervention, Occupational Therapy and Speech Therapy. He progressed amazingly, but now seems to have settled in with Aspergers. He's almost as though he hit a plateau as far as advancing through the ranks of the autism spectrum.Thankfully, God has blessed me with a much better ability to see through his disoder than I had with my older son. TImothy definitely has typical childhood disobedience, but most of the time, I am able to discern typical disobedience from Asperger's issues.He is currently in preschool through the Voluntary Pre Kindergarten program. He has a wonderful teacher who has been very willing to work with him. However, although our school system is at the top of the state (Florida) for normal children, it stinks for autistic children. In our local elementary school there are 7 kindergarten teachers, and none have experience/knoweldge of asperger's/autism.He does farily well in preschool, but it is only because he has such an understanding teacher. HOwever, there are times when I realize that even the sweetest teacher cannot totally understand how functions.On Friday, he had to "move his bus to the yellow" (on the behavior chart) because he would not come to his seat and sit down. She gave him three warnings, and then he had to move his bus. When I talked to him about it, I asked him why he did not sit down when his teacher told him to. He said "because there were books at my table". Apparently some child had left some books at his place at the table, and he was not going to sit down when those books were there because as he said, "they didn't belong there." I cannot blame his teacher, but at the same time, it makes me realize just how often he will go through life being misunderstood.I'm seriously considering homeschooling him next. My pediatrician (with an autistic son) even said it might be best for him. I'm going to see about going through the school system for therapy for him, but I am not sure that he would do well in Kindergarten.I work full time from home (as a radiology transcriptionist) 2nd shift, so I am able to have my mornings free to homeschool. I have always homeschooled my daughter, so homeschooling is not new to me. Do any of you homeschool your AS children?-Conniehttp://www.sewmommytypepad.com/timothyhttp://www.theribbonbowtique.com

Got a little couch potato? Check out fun summer activities for kids.

[Guest guest]

A virtual school is not homeschooling. It is a public school with certified teachers and special ed teachers. You are sent all the books and materials and even a computer if you need one. The curriculum is set and the students still have to take standardized tests. But doing the school work at home lets you do it when and where you want. You can break it up the way you want - do History all day one day and English the next - or do a bunch of subjects each day. Yes, it takes effort and time on your part. But it really helped my AS son to get away from all the extra sensory things that were distracting him at school. The local school still had to provide Speech, OT and PT. So I would take him to school for those things. This is our fourth year doing a virtual school. My 16 year old NT son does one too and likes it a lot better than the resident school.DawnWisconsinOn Oct 2, 2007, at 11:36 AM, RUTHIE BRYAN DOLEZAL wrote:Who teaches these homeschooled kiddos?  You?  Will your child let you?  Or, do you have a cooperative?  Or tutors that are certified teachers?  Go through an agency?  And, is the school paying everyone's homeschooling???  Ruthie Re: ( ) New HereYep.We pulled our 11 yr out after last year.  He's doing a virtual school for 6th grade.  It's been a blessing.It's public school,,,,,,curriculum, etc but done at home.I'd google "virtual school" and your state.The "headquarters" for virtual schools are in an actual public school bldg.  There are real teachers involved, too.  Just not the pub school teachers.Anyway,,,,,you have to sign up for them (virtual schools) in Feb during a 2wk time period.  There are no exceptions.Also ck out your states' DPI.  Type "your state and then department of public instruction".Hope this helps.Robinsewmommyfor3 <SewMommymchsi> wrote:Hi,I recently joined this group and have enjoyed the wisdom and encouragment shared here.I am a single mom of three children. My oldest (boy) is 15. He was diagnosed with Asperger's Syndrome almost 10 years ago (just before his 6th birthday). My daughter is 12, and my youngest (boy) is 4.5. He was diagnosed with Asperger's Syndrome in June.With my oldest, I was clueless about autism/Aspergers. We realized something was different about him when we saw his sister doing things at 2 years old that he was still not doing at 5 (mostly social type things).Anyway, he was later diagnosed with Bi-polar disorder in addition to Aspesrger's Syndrome.Thankfully, that now, at age 15 he has settled down tremendously. There were some nightmare years in there, but he is on medication and doing well in school, and at home for the most part.I joined this list mostly because of my youngest. My pediatrician (who has an autistic son) became concerned about at 6 months old. He was in Early Intervention, Occupational Therapy and Speech Therapy. He progressed amazingly, but now seems to have settled in with Aspergers. He's almost as though he hit a plateau as far as advancing through the ranks of the autism spectrum.Thankfully, God has blessed me with a much better ability to see through his disoder than I had with my older son. TImothy definitely has typical childhood disobedience, but most of the time, I am able to discern typical disobedience from Asperger's issues.He is currently in preschool through the Voluntary Pre Kindergarten program. He has a wonderful teacher who has been very willing to work with him. However, although our school system is at the top of the state (Florida) for normal children, it stinks for autistic children. In our local elementary school there are 7 kindergarten teachers, and none have experience/knoweldge of asperger's/autism.He does farily well in preschool, but it is only because he has such an understanding teacher. HOwever, there are times when I realize that even the sweetest teacher cannot totally understand how functions.On Friday, he had to "move his bus to the yellow" (on the behavior chart) because he would not come to his seat and sit down. She gave him three warnings, and then he had to move his bus. When I talked to him about it, I asked him why he did not sit down when his teacher told him to. He said "because there were books at my table". Apparently some child had left some books at his place at the table, and he was not going to sit down when those books were there because as he said, "they didn't belong there." I cannot blame his teacher, but at the same time, it makes me realize just how often he will go through life being misunderstood.I'm seriously considering homeschooling him next. My pediatrician (with an autistic son) even said it might be best for him. I'm going to see about going through the school system for therapy for him, but I am not sure that he would do well in Kindergarten.I work full time from home (as a radiology transcriptionist) 2nd shift, so I am able to have my mornings free to homeschool. I have always homeschooled my daughter, so homeschooling is not new to me. Do any of you homeschool your AS children?-Conniehttp://www.sewmommytypepad.com/timothyhttp://www.theribbonbowtique.comGot a little couch potato? Check out fun summer activities for kids.

[Guest guest]

Welcome. I love the riboon at the end. Robin+: "m.a.r.y.a.n.n": +: Fri Oct 5 13: 07: 46@..., UNEXPECTED_DATA_AFTER_ADDRESS_IN_GROUP@.SYNTAX-ERROR.;;;;;, ":+: m.a.r.y.a.n.n :+:" <ilovemylittlegirl@...> wrote: Hi, my name is maryann i`m a sahm of 2 (DD) is 13 yrs old

,Aspbergers,Mixed Receptive-Expressive Language Disorder,adhd inattentive type,fine motor disorder,mathematics disorder,social anxiety. Tina is 7 yrs old _ADHD Combined Type/ODD /Language Disorder,Developmental Disorder..Thanx for letting me join smooch* maryann

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.

[Guest guest]

Thanx Robin!

feel free to snag it ..that`s how i got it..lol

x.x.x

maryann

-- Re: ( ) New Here

Welcome.

I love the riboon at the end.

Robin+: "m.a.r.y.a.n.n": +: Fri Oct 5 13: 07: 46@..., UNEXPECTED_DATA_AFTER_ADDRESS_IN_GROUP@.SYNTAX-ERROR.;;;;;, ":+: m.a.r.y.a.n.n :+:" <ilovemylittlegirl@...> wrote:

Hi,

my name is maryann i`m a sahm of 2 (DD) is 13 yrs old ,Aspbergers,Mixed Receptive-Expressive Language Disorder,adhd inattentive type,fine motor disorder,mathematics disorder,social anxiety.

Tina is 7 yrs old _ADHD Combined Type/ODD /Language Disorder,Developmental Disorder..Thanx for letting me join

smooch*

maryann

Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games.

[Guest guest]

Roland, thanks so much. I went today to get staples out but they want to wait until Mon. I was looking so forward to getting them out too. Having bad leg cramps tonite but some better right now. I have so many machines that came home with me. It helps though.

KeimSee what's new at AOL.com and Make AOL Your Homepage.