New here

[Guest guest]

>

> I just had total knee replacement surgery a week ago yesterday. I

would love

> to hear from others who have had this. I didn't know anything

could be so

> painful.

> Keim in Tx

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

Keim,

I am 40 and had my right knee replaced two weeks ago tomorrow. I

have had significant pain in my lifetime, but this was more than I

thought I would have. The first week was the worst where I wanted

to sleep every 2-3 hours (could have been the blood loss hemoglobin

dropped 16g/dl to

8.5g/dl) and the pain. BUT it does get better, atleast mine did. I

noticed taking the Vicodin 7.5/500mg 1-2 tabs every 4-6 hours, along

with 2 aleve twice a day, icing, and getting up doing exercises

helped the pain and prevented me from getting stiff.

Sometimes during the first day I just wanted to make it untill I got

to sleep hoping and praying for the next day.

It will get better, if not call you doctor.

Roland

[Guest guest]

Ellen,

I did all my rehab my self at home, did not have anyone come in,

just me....its not that bad.....

Gene

Good luck with your surgery, I just had Left hip replacement on Sept

> 7th, main thing....DO YOUR EXERCISES......be very careful when

walking

> and bending......take it slow after surgery and you will be

> fine......the best thing is you will wake up and not be in pain.

>

> Gene from Oklahoma

>

[Guest guest]

>

> Roland, thanks so much. I went today to get staples out but they

want to

> wait until Mon. I was looking so forward to getting them out too.

Having bad leg

> cramps tonite but some better right now. I have so many machines

that came

> home with me. It helps though.

> Keim

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

Keim,

I just saw my orthopod today. He said he was pleased with my

progress. I am still very leary! 15 days postop I still have pain

from time to time for which I reluctantly take vicodin. There is

hope!

Roland

[Guest guest]

Sometimes I think a muscle relaxant would work better than the pain pills. Seems like that is what hurts is my muscles.

KeimSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

that's why stretches are so important to feeling better

Coffey's Computer Center3124 1/2 North Hwy., Mi. 49221new phone number252-4337Between Randy's BBQ and The Skatery on M-52"I'd Rather Be Dirt Track

Racing"

Re: Re: New here

Sometimes I think a muscle relaxant would work better than the pain pills. Seems like that is what hurts is my muscles.

Keim

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Hi ! Welcome to the group. I'm still kinda new here, though not

new to having rheumatic disease. IMO all these arthritis type

diseases are probably bacterial or viral in nature. I've tested

positive to so many I no longer know which causes what. I looked

into Embrel for myself in the past, but I believe it and Humira will

cause more trouble damaging the immune system and end up making the

illness worse. I am also leary of prednisone because I see what it

did to me. I think abx and some supplements are the way to go. But

this is just my opinion.

>

> Hi All - I am new to this group. Diagnosed with RA 7.5 years

ago.

> I have a wonderful rheumatologist in Denver, but my treatment from

> him has been traditional. Enbrel worked for a couple of years,

and

> then I added dietary changes, which helped a lot too. Now, I am

> flaring again and he switched me to Humira which has done nothing

in

> the 1 1/2 months I've been taking it. I have been so desparately

> ill that I started down the road of drugs....darvocett, celebrex,

> and prednisone of 10 mg. per day just to get some relief. Then, I

> found the Road Back Foundation web site, and remembered that I had

> started originally on Minocycline when I first got sick years

ago.

> It must have worked because I got well enough within a couple of

> months to make a grueling trip to China to adopt our second

child.

> I didn't know much about Antibiotic Protocal (AP) then and I

believe

> I stopped the Minocycline myself after being on it just a few

months

> not realizing it was working, although midly back then. Of

course,

> I got very ill after stopping it, but waited months before I went

> back to my rheumatologist. That was when he gave me Enbrel. In

any

> case, I am now scheduled with a different rheumatologist in Denver

> who supposedly provides the AP. I would love to hear from anyone

> regarding a reliable AP doc in Denver. I need to take a different

> course with this disease after years of treating with just drugs.

> Thanks.

>

[Guest guest]

dear kimberly-

it sounds like YOU have done the right thing by taking him to the

doctor. getting that diagnosis can be upsetting, many members here

felt exactly the way you have. my daughter is 10 and for many years,

i had no idea there was a name for for her quirks. but when i

finally discovered asperger, i was relieved. knowledge will guide

you toward what you should do.

my daughter cried for the first 6 months due to colitus, has sensory

issues (crowds,noises,toilet flushing). she is not a good sleeper

either, but because she worries about things, so she cannot go to

sleep. nighttime meditations and easy music helps here. she has few

friends, and was 8 before she would say hello, but wouldn't look up.

i am sure this turns kids off. i guess i noticed the social issues

as she grows older and especially at age 8 or 9. she would rarely

get an invitation to parties and i would always stay (to make sure

she was okay). one time the noise was so overwhelming to her (john's

incredible pizza) she had to leave. she has had her share of

obsessions, currently it is birds. oh, she also has capd- a languare

processing disorder.

i am irritated by what the school is telling you. they cannot tell

you what to do, but it sounds like they are trying. you have the

right to seek professional help outside of school. and you can bring

your diagnosis back to them. i got the same story from the speeck

therapist about how difficult it is to get help for my daughter

because academically and socially, she is not creating a problem for

them. i brought the audiologist's report to the speech therapist.

she worked it out for my daughter to get help with speech. and has

been an invaluable resource for me. don't let them push you around.

there are many parents here that will give you more detailed guidance

to get your son what he needs.

my daughter is just beginning to become agressive. so this is new to

me. and am working on those things.

regards and welcome,

melody

>

> Hi. My name is and I'm new to this group.

> My son recently saw a Neuro-Developmental Pediatric doctor who

feels that

> our son might have Aspergers and/or a Pragmatic Language Disorder.

He said

> there might be some anxiety issues too. But we need further testing

and

> evaluations to be 100% sure.

> My son (he's 8) was born prematurely and received physical and

> occupational therapies the first couple of years of his life. Aside

from

> that he seemed fine, just very clingy. I also noticed he was

sensitive to

> crowds, textures (like grass), noises and things like that. He's

also been

> the WORST sleeper. He had the worst colic and can run on only a few

hours

> sleep. He tends to get up way too early and complains about being

up at

> night.

> The reason we saw the specialist is because we are concerned

about things

> like how he has NO friends. If we are in the store and a classmate

walks

> right up to him and says hello he either looks down or away and

mumbles a

> half-hearted " hello " or totally ignores them. He has no interest in

going to

> class birthday parties, sports, groups, clubs, activities, play

dates...

> NOTHING. Even on the playground I have seen for myself that he

plays by

> himself, but on rare occasion will engage with another student,

but, still

> tends to be " stand off'ish " and more or less play independently of

the other

> child.

> He struggles in school and almost failed first grade. He's

getting better

> then he was, but, he still has a hard time comprehending things and

with

> writing details and complete sentences.

> He does not seem to have much of an imagination when he plays.

He prefers

> to line up his cars and trucks or his plastic building sticks.

> He's not big into TV but does like to play on the computer (Club

Penguin

> mostly).

> He's OBSESSED with snow and anything that has to do with snow.

He wants

> to be a snowplow driver some day and snow, snow, snow is all he

ever talks

> about.

> He tends to favor younger kids to kids his own age.

> He considers our cats and dog his friend.

> He's not a very " lovely dovey " child and he's very immature and

will cry

> INSTANTLY over the silliest things.

> He twists his hair a lot. Even when we get him crew cuts he'll

twist his

> hair.

> All this stuff prompted us to have him evaluated. His regular

> pediatrician referred us to this other doctor.

> This other doctor wants him to have a psychological evaluation

and a

> Pragmatic Language evaluation. I called the school and they are not

overly

> keen on the idea. They said they would make their own evaluations

to see if

> further testing is needed. She said that unless he's about 2 years

behind

> academically or his behaviors are affecting him academically then

there is

> really nothing they would do. If they feel he needs further testing

they

> will recommend it but if they feel nothing is " wrong " there is

NOTHING they

> will do for him. So another words he needs to fail or whack another

student

> over the head with a chair before they will stand up and take

notice. That

> is so wrong!!!

> The more and more I read about Aspergers the more and more upset

and

> depressed I am getting. I didn't realize how serious this is. And I

> certainly didn't think it was a life long thing. I was thinking it

was

> something that was fixed with some behavioral modifications or

something and

> BOOM... he'd be fine and everything will be ok.

> Right now I feel so lost and I have no idea where to turn. I

don't know

> what I can do for my son. I'm reading things about diets (I have

heard about

> gluten free diets), and therapies and home schooling and all this

stuff

> scares me. Especially because he seems to be getting worst and

worst as time

> goes on. He's getting more and more nastier and disrespectful and

doing more

> disturbing things. Like the other morning he got angry at his

sister and

> shoved his whole hand into her bowl of cereal (thankfully there was

no milk

> in it). And it seems like EVERYTHING we say to him falls on " deaf

ears " .

> Another strange thing is when it comes to presents like for his

birthday

> or the holiday he never wants anything. He'll say he wants a snow

storm. It

> s so hard to shop for him. Believe me, if I could make it snow for

my son I

> would!

> This is all overwhelming and I feel so lost and I don't know

what to do.

> I look at him and I want to cry because I want the best for my

children. It

> pains me that I feel helpless to help him. I just want my little

boy to be

> happy and healthy.

> I'm sorry to vent. I guess the " flood gates " just opened up and

> everything I'm feeling is coming through. I have tears in my eyes

as I type

> this.

> Thank you for letting me vent. I appreciate it a lot.

>

>

>

[Guest guest]

((((((((((((Kimberely))))))))))))))

We have all felt that way when first learning of our kids' aspergers and other problems and again from time to time its overwhelming and upsetting because we are human.

But the reason I believe he is getting worse is because he hasn't had the right diagnosis until now and yes continue on and listen to this new doctor....and HOW DARE the School try and tell you what to do !!!!!!!!!!!!!! They are on a power trip !!!!

He's your darling son and you and only you have the right to decide whether or not he gets more testing....pursue this to the max !!!! Then once he has the full diagnosis and gets the right help for his social skills and gets coping skills etc.....things will slowly start to get better !!!!

THERE IS MUCH REASON TO HOPE ....you hang on to that ok ??

love and hugs

Wags! Wags! Wags!

Lowry

"There is no psychiatrist in the world like a puppy licking your face."

Author Ben

From: vetrano143@...Date: Sat, 10 Nov 2007 22:38:07 -0500Subject: ( ) New Here

Hi. My name is and I'm new to this group.

My son recently saw a Neuro-Developmental Pediatric doctor who feels that our son might have Aspergers and/or a Pragmatic Language Disorder. He said there might be some anxiety issues too. But we need further testing and evaluations to be 100% sure.

My son (he's 8) was born prematurely and received physical and occupational therapies the first couple of years of his life. Aside from that he seemed fine, just very clingy. I also noticed he was sensitive to crowds, textures (like grass), noises and things like that. He's also been the WORST sleeper. He had the worst colic and can run on only a few hours sleep. He tends to get up way too early and complains about being up at night.

The reason we saw the specialist is because we are concerned about things like how he has NO friends. If we are in the store and a classmate walks right up to him and says hello he either looks down or away and mumbles a half-hearted "hello" or totally ignores them. He has no interest in going to class birthday parties, sports, groups, clubs, activities, play dates... NOTHING. Even on the playground I have seen for myself that he plays by himself, but on rare occasion will engage with another student, but, still tends to be "stand off'ish" and more or less play independently of the other child.

He struggles in school and almost failed first grade. He's getting better then he was, but, he still has a hard time comprehending things and with writing details and complete sentences.

He does not seem to have much of an imagination when he plays. He prefers to line up his cars and trucks or his plastic building sticks.

He's not big into TV but does like to play on the computer (Club Penguin mostly).

He's OBSESSED with snow and anything that has to do with snow. He wants to be a snowplow driver some day and snow, snow, snow is all he ever talks about.

He tends to favor younger kids to kids his own age.

He considers our cats and dog his friend.

He's not a very "lovely dovey" child and he's very immature and will cry INSTANTLY over the silliest things.

He twists his hair a lot. Even when we get him crew cuts he'll twist his hair.

All this stuff prompted us to have him evaluated. His regular pediatrician referred us to this other doctor.

This other doctor wants him to have a psychological evaluation and a Pragmatic Language evaluation. I called the school and they are not overly keen on the idea. They said they would make their own evaluations to see if further testing is needed. She said that unless he's about 2 years behind academically or his behaviors are affecting him academically then there is really nothing they would do. If they feel he needs further testing they will recommend it but if they feel nothing is "wrong" there is NOTHING they will do for him. So another words he needs to fail or whack another student over the head with a chair before they will stand up and take notice. That is so wrong!!!

The more and more I read about Aspergers the more and more upset and depressed I am getting. I didn't realize how serious this is. And I certainly didn't think it was a life long thing. I was thinking it was something that was fixed with some behavioral modifications or something and BOOM... he'd be fine and everything will be ok.

Right now I feel so lost and I have no idea where to turn. I don't know what I can do for my son. I'm reading things about diets (I have heard about gluten free diets), and therapies and home schooling and all this stuff scares me. Especially because he seems to be getting worst and worst as time goes on. He's getting more and more nastier and disrespectful and doing more disturbing things. Like the other morning he got angry at his sister and shoved his whole hand into her bowl of cereal (thankfully there was no milk in it). And it seems like EVERYTHING we say to him falls on "deaf ears".

Another strange thing is when it comes to presents like for his birthday or the holiday he never wants anything. He'll say he wants a snow storm. It's so hard to shop for him. Believe me, if I could make it snow for my son I would!

This is all overwhelming and I feel so lost and I don't know what to do. I look at him and I want to cry because I want the best for my children. It pains me that I feel helpless to help him. I just want my little boy to be happy and healthy.

I'm sorry to vent. I guess the "flood gates" just opened up and everything I'm feeling is coming through. I have tears in my eyes as I type this.

Thank you for letting me vent. I appreciate it a lot.

Are you ready for Windows Live Messenger Beta 8.5 ? Get the latest for free today!

[Guest guest]

Thank you so much Melody. I appreciate your reply very, very, very much.

I have a feeling I am going to have to go outside of the school for evaluations and testing and like you said, bring the info. back to school and show them so they see my son might require some special classes, groups, what have you.

I really hope my son doesn't get anymore aggressive. He's NEVER done anything aggressive at school. At school he's pretty quiet, shy and withdrawn. But at home he can be a "beast" when he wants to be, throwing things and laughing about them too (like it's funny to slam the guitar into the wall).

Funny side story... all the teachers tell us how quiet and shy our son is (not knowing there could have been more there then meets the eye). Last year, about two weeks into the school year we got a phone call home from my son's second grade teacher. He got in trouble for talking in class!!!!! She was actually HAPPY about it because she knew we'd be HAPPY too! Not too many parents would be when their child gets in trouble for talking in class, but when your child doesn't speak much to begin with, it was actually a GREAT thing.

Now I am desperately seeking more information about all of this, on top of trying to get a concrete diagnosis.

Thank you so much for your message.

-- ( ) Re: New Here

dear kimberly-

it sounds like YOU have done the right thing by taking him to the

doctor. getting that diagnosis can be upsetting, many members here

felt exactly the way you have. my daughter is 10 and for many years,

i had no idea there was a name for for her quirks. but when i

finally discovered asperger, i was relieved. knowledge will guide

you toward what you should do.

my daughter cried for the first 6 months due to colitus, has sensory

issues (crowds,noises,toilet flushing). she is not a good sleeper

either, but because she worries about things, so she cannot go to

sleep. nighttime meditations and easy music helps here. she has few

friends, and was 8 before she would say hello, but wouldn't look up.

i am sure this turns kids off. i guess i noticed the social issues

as she grows older and especially at age 8 or 9. she would rarely

get an invitation to parties and i would always stay (to make sure

she was okay). one time the noise was so overwhelming to her (john's

incredible pizza) she had to leave. she has had her share of

obsessions, currently it is birds. oh, she also has capd- a languare

processing disorder.

i am irritated by what the school is telling you. they cannot tell

you what to do, but it sounds like they are trying. you have the

right to seek professional help outside of school. and you can bring

your diagnosis back to them. i got the same story from the speeck

therapist about how difficult it is to get help for my daughter

because academically and socially, she is not creating a problem for

them. i brought the audiologist's report to the speech therapist.

she worked it out for my daughter to get help with speech. and has

been an invaluable resource for me. don't let them push you around.

there are many parents here that will give you more detailed guidance

to get your son what he needs.

my daughter is just beginning to become agressive. so this is new to

me. and am working on those things.

regards and welcome,

melody

>

> Hi. My name is and I'm new to this group.

> My son recently saw a Neuro-Developmental Pediatric doctor who

feels that

> our son might have Aspergers and/or a Pragmatic Language Disorder.

He said

> there might be some anxiety issues too. But we need further testing

and

> evaluations to be 100% sure.

> My son (he's 8) was born prematurely and received physical and

> occupational therapies the first couple of years of his life. Aside

from

> that he seemed fine, just very clingy. I also noticed he was

sensitive to

> crowds, textures (like grass), noises and things like that. He's

also been

> the WORST sleeper. He had the worst colic and can run on only a few

hours

> sleep. He tends to get up way too early and complains about being

up at

> night.

> The reason we saw the specialist is because we are concerned

about things

> like how he has NO friends. If we are in the store and a classmate

walks

> right up to him and says hello he either looks down or away and

mumbles a

> half-hearted "hello" or totally ignores them. He has no interest in

going to

> class birthday parties, sports, groups, clubs, activities, play

dates...

> NOTHING. Even on the playground I have seen for myself that he

plays by

> himself, but on rare occasion will engage with another student,

but, still

> tends to be "stand off'ish" and more or less play independently of

the other

> child.

> He struggles in school and almost failed first grade. He's

getting better

> then he was, but, he still has a hard time comprehending things and

with

> writing details and complete sentences.

> He does not seem to have much of an imagination when he plays.

He prefers

> to line up his cars and trucks or his plastic building sticks.

> He's not big into TV but does like to play on the computer (Club

Penguin

> mostly).

> He's OBSESSED with snow and anything that has to do with snow.

He wants

> to be a snowplow driver some day and snow, snow, snow is all he

ever talks

> about.

> He tends to favor younger kids to kids his own age.

> He considers our cats and dog his friend.

> He's not a very "lovely dovey" child and he's very immature and

will cry

> INSTANTLY over the silliest things.

> He twists his hair a lot. Even when we get him crew cuts he'll

twist his

> hair.

> All this stuff prompted us to have him evaluated. His regular

> pediatrician referred us to this other doctor.

> This other doctor wants him to have a psychological evaluation

and a

> Pragmatic Language evaluation. I called the school and they are not

overly

> keen on the idea. They said they would make their own evaluations

to see if

> further testing is needed. She said that unless he's about 2 years

behind

> academically or his behaviors are affecting him academically then

there is

> really nothing they would do. If they feel he needs further testing

they

> will recommend it but if they feel nothing is "wrong" there is

NOTHING they

> will do for him. So another words he needs to fail or whack another

student

> over the head with a chair before they will stand up and take

notice. That

> is so wrong!!!

> The more and more I read about Aspergers the more and more upset

and

> depressed I am getting. I didn't realize how serious this is. And I

> certainly didn't think it was a life long thing. I was thinking it

was

> something that was fixed with some behavioral modifications or

something and

> BOOM... he'd be fine and everything will be ok.

> Right now I feel so lost and I have no idea where to turn. I

don't know

> what I can do for my son. I'm reading things about diets (I have

heard about

> gluten free diets), and therapies and home schooling and all this

stuff

> scares me. Especially because he seems to be getting worst and

worst as time

> goes on. He's getting more and more nastier and disrespectful and

doing more

> disturbing things. Like the other morning he got angry at his

sister and

> shoved his whole hand into her bowl of cereal (thankfully there was

no milk

> in it). And it seems like EVERYTHING we say to him falls on "deaf

ears".

> Another strange thing is when it comes to presents like for his

birthday

> or the holiday he never wants anything. He'll say he wants a snow

storm. It

> s so hard to shop for him. Believe me, if I could make it snow for

my son I

> would!

> This is all overwhelming and I feel so lost and I don't know

what to do.

> I look at him and I want to cry because I want the best for my

children. It

> pains me that I feel helpless to help him. I just want my little

boy to be

> happy and healthy.

> I'm sorry to vent. I guess the "flood gates" just opened up and

> everything I'm feeling is coming through. I have tears in my eyes

as I type

> this.

> Thank you for letting me vent. I appreciate it a lot.

>

>

>

[Guest guest]

Thank you so much . Hope is something I'm struggling with at the moment. I'm BEYOND overwhelmed with all of this. It's like someone dropped a house on me and I can't move. Since the doctor told us that he feels our son has Aspergers I have been consumed with it. I'm loosing sleep over it.

I hope and pray it will all be ok. I just want my son to be happy, healthy, do well in school, go to college, get a good job, get married, and live a happy life. I hope I am not setting myself up for a huge disappointment. I want the world for my children. As any parent would.

THANK YOU SO MUCH for your reply to my post. I appreciate it very much.

-- ( ) New Here

Hi. My name is and I'm new to this group.

My son recently saw a Neuro-Developmental Pediatric doctor who feels that our son might have Aspergers and/or a Pragmatic Language Disorder. He said there might be some anxiety issues too. But we need further testing and evaluations to be 100% sure.

My son (he's 8) was born prematurely and received physical and occupational therapies the first couple of years of his life. Aside from that he seemed fine, just very clingy. I also noticed he was sensitive to crowds, textures (like grass), noises and things like that. He's also been the WORST sleeper. He had the worst colic and can run on only a few hours sleep. He tends to get up way too early and complains about being up at night.

The reason we saw the specialist is because we are concerned about things like how he has NO friends. If we are in the store and a classmate walks right up to him and says hello he either looks down or away and mumbles a half-hearted "hello" or totally ignores them. He has no interest in going to class birthday parties, sports, groups, clubs, activities, play dates... NOTHING. Even on the playground I have seen for myself that he plays by himself, but on rare occasion will engage with another student, but, still tends to be "stand off'ish" and more or less play independently of the other child.

He struggles in school and almost failed first grade. He's getting better then he was, but, he still has a hard time comprehending things and with writing details and complete sentences.

He does not seem to have much of an imagination when he plays. He prefers to line up his cars and trucks or his plastic building sticks.

He's not big into TV but does like to play on the computer (Club Penguin mostly).

He's OBSESSED with snow and anything that has to do with snow. He wants to be a snowplow driver some day and snow, snow, snow is all he ever talks about.

He tends to favor younger kids to kids his own age.

He considers our cats and dog his friend.

He's not a very "lovely dovey" child and he's very immature and will cry INSTANTLY over the silliest things.

He twists his hair a lot. Even when we get him crew cuts he'll twist his hair.

All this stuff prompted us to have him evaluated. His regular pediatrician referred us to this other doctor.

This other doctor wants him to have a psychological evaluation and a Pragmatic Language evaluation. I called the school and they are not overly keen on the idea. They said they would make their own evaluations to see if further testing is needed. She said that unless he's about 2 years behind academically or his behaviors are affecting him academically then there is really nothing they would do. If they feel he needs further testing they will recommend it but if they feel nothing is "wrong" there is NOTHING they will do for him. So another words he needs to fail or whack another student over the head with a chair before they will stand up and take notice. That is so wrong!!!

The more and more I read about Aspergers the more and more upset and depressed I am getting. I didn't realize how serious this is. And I certainly didn't think it was a life long thing. I was thinking it was something that was fixed with some behavioral modifications or something and BOOM... he'd be fine and everything will be ok.

Right now I feel so lost and I have no idea where to turn. I don't know what I can do for my son. I'm reading things about diets (I have heard about gluten free diets), and therapies and home schooling and all this stuff scares me. Especially because he seems to be getting worst and worst as time goes on. He's getting more and more nastier and disrespectful and doing more disturbing things. Like the other morning he got angry at his sister and shoved his whole hand into her bowl of cereal (thankfully there was no milk in it). And it seems like EVERYTHING we say to him falls on "deaf ears".

Another strange thing is when it comes to presents like for his birthday or the holiday he never wants anything. He'll say he wants a snow storm. It's so hard to shop for him. Believe me, if I could make it snow for my son I would!

This is all overwhelming and I feel so lost and I don't know what to do. I look at him and I want to cry because I want the best for my children. It pains me that I feel helpless to help him. I just want my little boy to be happy and healthy.

I'm sorry to vent. I guess the "flood gates" just opened up and everything I'm feeling is coming through. I have tears in my eyes as I type this.

Thank you for letting me vent. I appreciate it a lot.

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[Guest guest]

,My advice is to not jump into getting your son married off quite yet. Kids with AS can do very well at school. My 19 year old did quite well at school. He wasn't ready to live away from home when it came time to go to college, but he got good grades when he got there. (He is currently taking a leave from college, but that is due to depression, not Asperger's.) Of course you want the world for your children. What I have learned is that my children *will* have the world, just maybe not the world I have envisioned for them. This has been true of my NT daughter, too. (She has just left a high paying job to write her novel until her money runs out -- then she'll get a job at Starbucks or Panera's) Then she wants to go to library school. The book part is what I would have chosen for her - but not the library part. Anyway, I ramble.Best,LizOn Nov 11, 2007, at 10:33 PM, wrote:   Thank you so much . Hope is something I'm struggling with at the moment. I'm BEYOND overwhelmed with all of this. It's like someone dropped a house on me and I can't move. Since the doctor told us that he feels our son has Aspergers I have been consumed with it. I'm loosing sleep over it.   I hope and pray it will all be ok. I just want my son to be happy, healthy, do well in school, go to college, get a good job, get married, and live a happy life. I hope I am not setting myself up for a huge disappointment. I want the world for my children. As any parent would.   THANK YOU SO MUCH for your reply to my post. I appreciate it very much.   -- ( ) New Here   Hi. My name is and I'm new to this group.   My son recently saw a Neuro-Developmental Pediatric doctor who feels that our son might have Aspergers and/or a Pragmatic Language Disorder. He said there might be some anxiety issues too. But we need further testing and evaluations to be 100% sure.   My son (he's 8) was born prematurely and received physical and occupational therapies the first couple of years of his life. Aside from that he seemed fine, just very clingy. I also noticed he was sensitive to crowds, textures (like grass), noises and things like that. He's also been the WORST sleeper. He had the worst colic and can run on only a few hours sleep. He tends to get up way too early and complains about being up at night.   The reason we saw the specialist is because we are concerned about things like how he has NO friends. If we are in the store and a classmate walks right up to him and says hello he either looks down or away and mumbles a half-hearted "hello" or totally ignores them. He has no interest in going to class birthday parties, sports, groups, clubs, activities, play dates... NOTHING. Even on the playground I have seen for myself that he plays by himself, but on rare occasion will engage with another student, but, still tends to be "stand off'ish" and more or less play independently of the other child.   He struggles in school and almost failed first grade. He's getting better then he was, but, he still has a hard time comprehending things and with writing details and complete sentences.   He does not seem to have much of an imagination when he plays. He prefers to line up his cars and trucks or his plastic building sticks.   He's not big into TV but does like to play on the computer (Club Penguin mostly).   He's OBSESSED with snow and anything that has to do with snow. He wants to be a snowplow driver some day and snow, snow, snow is all he ever talks about.   He tends to favor younger kids to kids his own age.   He considers our cats and dog his friend.   He's not a very "lovely dovey" child and he's very immature and will cry INSTANTLY over the silliest things.   He twists his hair a lot. Even when we get him crew cuts he'll twist his hair.   All this stuff prompted us to have him evaluated. His regular pediatrician referred us to this other doctor.   This other doctor wants him to have a psychological evaluation and a Pragmatic Language evaluation. I called the school and they are not overly keen on the idea. They said they would make their own evaluations to see if further testing is needed. She said that unless he's about 2 years behind academically or his behaviors are affecting him academically then there is really nothing they would do. If they feel he needs further testing they will recommend it but if they feel nothing is "wrong" there is NOTHING they will do for him. So another words he needs to fail or whack another student over the head with a chair before they will stand up and take notice. That is so wrong!!!   The more and more I read about Aspergers the more and more upset and depressed I am getting. I didn't realize how serious this is. And I certainly didn't think it was a life long thing. I was thinking it was something that was fixed with some behavioral modifications or something and BOOM... he'd be fine and everything will be ok.   Right now I feel so lost and I have no idea where to turn. I don't know what I can do for my son. I'm reading things about diets (I have heard about gluten free diets), and therapies and home schooling and all this stuff scares me. Especially because he seems to be getting worst and worst as time goes on. He's getting more and more nastier and disrespectful and doing more disturbing things. Like the other morning he got angry at his sister and shoved his whole hand into her bowl of cereal (thankfully there was no milk in it). And it seems like EVERYTHING we say to him falls on "deaf ears".   Another strange thing is when it comes to presents like for his birthday or the holiday he never wants anything. He'll say he wants a snow storm. It's so hard to shop for him. Believe me, if I could make it snow for my son I would!   This is all overwhelming and I feel so lost and I don't know what to do. I look at him and I want to cry because I want the best for my children. It pains me that I feel helpless to help him. I just want my little boy to be happy and healthy.   I'm sorry to vent. I guess the "flood gates" just opened up and everything I'm feeling is coming through. I have tears in my eyes as I type this.   Thank you for letting me vent. I appreciate it a lot.                       Are you ready for Windows Live Messenger Beta 8.5 ? Get the latest for free today! 

[Guest guest]

lol, mine hasnt done that exactly, but how about taking apart the baby

monitor at 9months old? i have made tools off limits (loss of

playstation or computer time, he hates that) and if it is not a

transformer or building blocks it is not to be taken apart. i have also

made him actually go throw away toys that he has taken apart (his

favorite toy mind you). all i have to say now is im getting the garbage

back go get the toy, and it instantly stops.

bobo4boys wrote:

>

> Just wondering if any parents are experienceing their aspie

> son/daughter doing things that you just can't figure out how they are

> doing it? For example: My 6 year old son can " crack " the parental code

> (4-digit) on the cable/sattelite remote and CHANGES IT!!!! I would

> love to talk to anyone experiencing these types of things. THANKS

>

>

[Guest guest]

That is wild! @ 9 months, took apart the baby monitor?!!! What is so frustrating about doing this with the remote is, sometimes he will tell us what the new code is and sometimes he wont! Then we have to call DirecTV to get them to help us out! We hid all of the remotes....that was no help because he figured out how to do it from the reciever!!! I know this sounds "trivial" compared to what a lot of parents are going through (we are truly blessed in that aspect..... as far as having a child w/ AS). He can do many other "bizarre" things, that we just can figure out how he managed to do. Would love to hear from more parents! Feeling a little creeped out! ThanksASC <aschristensen@...> wrote: lol, mine hasnt done that exactly, but how about taking apart the baby monitor at 9months old? i have made tools off limits (loss of playstation or computer time, he hates that) and if it is not a transformer or building blocks it is not to be taken apart. i have also made him actually go throw away toys that he has taken apart (his favorite toy mind you). all i have to say now is im getting the garbage back go get the toy, and it instantly stops.bobo4boys wrote:>> Just wondering if any parents are experienceing their aspie> son/daughter doing things that you just can't figure out how they are> doing it? For example: My 6 year old son can "crack" the parental

code> (4-digit) on the cable/sattelite remote and CHANGES IT!!!! I would> love to talk to anyone experiencing these types of things. THANKS>>

Be a better pen pal. Text or chat with friends inside . See how.

[Guest guest]

im not sure if this will work or not, but they have a type of face plate

that you can put over the front of dvd/vcr/etc that wont allow kids to

touch the buttons. i dont know if that works on the satelite boxes

though. but it might be worth a shot, as well as hiding the remotes.

What about giving him a small calculator, or an old pda type device that

he can " play " with instead of changing the parental locks. lol (sorry i

know its frustrating, but i can just see my 7 year old trying to do it

too, just to see what happened.) maybe the redirection to something

with numbers or a palm pilot (pda type device) that you can put number

games on for him. (I know you can get free versions of mastermind and

similar games to download for those, my 7 year old plays sudoku on my

palm ugh, i cant get it back usually). but that may help the need to

" play with " numbers, but in a way that doesnt require mom and dad to

have to call the cable company.

just a thought. I hope something helps. that has to be really

frustrating when he wont tell you the code, but on the bright side, at

least he does sometimes.

ANGELA GOLD wrote:

>

> That is wild! @ 9 months, took apart the baby monitor?!!! What is so

> frustrating about doing this with the remote is, sometimes he

> will tell us what the new code is and sometimes he wont! Then we have

> to call DirecTV to get them to help us out! We hid all of the

> remotes....that was no help because he figured out how to do it from

> the reciever!!! I know this sounds " trivial " compared to what a lot

> of parents are going through (we are truly blessed in that aspect.....

> as far as having a child w/ AS). He can do many other " bizarre "

> things, that we just can figure out how he managed to do. Would love

> to hear from more parents! Feeling a little creeped out! Thanks

>

> */ASC <aschristensen@...>/* wrote:

>

>

> ------------------------------------------------------------------------

> Be a better pen pal. Text or chat with friends inside . See

> how. <http://us.rd./evt=51732/*http://overview.mail./>

>

[Guest guest]

Thank you! Those are some very good suggestions. I think I will try the calculator or hand-held device of some sort. He IS obsessed with numbers! Loves them!! Very good with computers also. I will also check into the face plate thing Thanks!ASC <aschristensen@...> wrote: im not sure if this will work or not, but they have a type of face plate that you can put over the front of dvd/vcr/etc that wont allow kids to touch the buttons. i dont know if that

works on the satelite boxes though. but it might be worth a shot, as well as hiding the remotes. What about giving him a small calculator, or an old pda type device that he can "play" with instead of changing the parental locks. lol (sorry i know its frustrating, but i can just see my 7 year old trying to do it too, just to see what happened.) maybe the redirection to something with numbers or a palm pilot (pda type device) that you can put number games on for him. (I know you can get free versions of mastermind and similar games to download for those, my 7 year old plays sudoku on my palm ugh, i cant get it back usually). but that may help the need to "play with " numbers, but in a way that doesnt require mom and dad to have to call the cable company. just a thought. I hope something helps. that has to be really frustrating when he wont tell you the code, but on the bright side, at least he does

sometimes.ANGELA GOLD wrote:>> That is wild! @ 9 months, took apart the baby monitor?!!! What is so > frustrating about doing this with the remote is, sometimes he > will tell us what the new code is and sometimes he wont! Then we have > to call DirecTV to get them to help us out! We hid all of the > remotes....that was no help because he figured out how to do it from > the reciever!!! I know this sounds "trivial" compared to what a lot > of parents are going through (we are truly blessed in that aspect..... > as far as having a child w/ AS). He can do many other "bizarre" > things, that we just can figure out how he managed to do. Would love > to hear from more parents! Feeling a little creeped out! Thanks>> */ASC <aschristensencharter (DOT) net>/* wrote:>>>

----------------------------------------------------------> Be a better pen pal. Text or chat with friends inside . See > how. <http://us.rd./evt=51732/*http://overview.mail./>>

Be a better pen pal. Text or chat with friends inside . See how.

[Guest guest]

Our ds used to do weird things. For instance, whenever he approached a machine that dispensed those little plastic toys, he got a toy. We have no clue how as he did not have money. It was kind of spooky. It is just something we got used to.

RoxannaAutism Happens

Re: ( ) New Here

That is wild! @ 9 months, took apart the baby monitor?!!! What is so frustrating about doing this with the remote is, sometimes he will tell us what the new code is and sometimes he wont! Then we have to call DirecTV to get them to help us out! We hid all of the remotes....that was no help because he figured out how to do it from the reciever!!! I know this sounds "trivial" compared to what a lot of parents are going through (we are truly blessed in that aspect..... as far as having a child w/ AS). He can do many other "bizarre" things, that we just can figure out how he managed to do. Would love to hear from more parents! Feeling a little creeped out! ThanksASC <aschristensencharter (DOT) net> wrote:

lol, mine hasnt done that exactly, but how about taking apart the baby monitor at 9months old? i have made tools off limits (loss of playstation or computer time, he hates that) and if it is not a transformer or building blocks it is not to be taken apart. i have also made him actually go throw away toys that he has taken apart (his favorite toy mind you). all i have to say now is im getting the garbage back go get the toy, and it instantly stops.bobo4boys wrote:>> Just wondering if any parents are experienceing their aspie> son/daughter doing things that you just can't figure out how they are> doing it? For example: My 6 year old son can "crack" the parental code> (4-digit) on the cable/sattelite remote and CHANGES IT!!!! I would> love to talk to anyone experiencing these types of things. THANKS>>

Be a better pen pal. Text or chat with friends inside . See how.

[Guest guest]

amazing aren't they? when my boys were younger they changed the language on the closed captioning to French and I had to get them to change it back to Eng. because I couldn't figure it out. Smart little buggers aren't they?

( ) New Here

Just wondering if any parents are experienceing their aspie son/daughter doing things that you just can't figure out how they are doing it? For example: My 6 year old son can "crack" the parental code(4-digit) on the cable/sattelite remote and CHANGES IT!!!! I would love to talk to anyone experiencing these types of things. THANKS

[Guest guest]

okay, i have nothing useful to say but am curious if his kill switch

works on anything besides the the tv remote. like cell phone or

other remotes, or wireless devices? maybe he will be like uri geller.

regards, melody

> >

> > Just wondering if any parents are experienceing their aspie

> > son/daughter doing things that you just can't figure out how they

are

> > doing it? For example: My 6 year old son can " crack " the parental

code

> > (4-digit) on the cable/sattelite remote and CHANGES IT!!!! I would

> > love to talk to anyone experiencing these types of things. THANKS

> >

> >

>

>

>

>

>

> _____

>

> Be a better pen pal. Text or chat with friends inside .

See

> <http://us.rd./evt=51732/*http://overview.mail./>

how.

>

[Guest guest]

My Grandson does that......takes everything apart and tries to figure out how it works , he will

be three Dec 3rd.

hugs

brenda

Wags! Wags! Wags!

Lowry

"There is no psychiatrist in the world like a puppy licking your face."

Author Ben

From: rice.trish@...Date: Thu, 15 Nov 2007 00:09:11 -0600Subject: RE: ( ) New Here

Here's my .02 FWIW. Oldest ds probably has heavy metal issues because every time he used the universal remote control for the old tv, it would kill it and we would have to find the book and reprogram it. We even got him his own remote control and showed him the book and how to reprogram it. But all he had to do was touch the remote and it was dead.

Our youngest ds also takes things apart and rarely puts them back together. He took all the screws out of everything he could find - those cheap storage cabinets from Target, the coffee table, hinges all over the house, some of the light switches, and on and on. The upside of having this trait is that anytime we buy anything that says "Some Assembly Required," he puts it together for us - correctly and quickly. A few of the things: floor lamp, tv stand, drawer unit that hangs on the wall, cd/media holders (4 of them!), 2 end tables, and that's just off the top of my head. And to combat the habit, I always ask my friends to save their broken items that can be taken apart. You can also check garage sales for things that are fine for him to play with. We've gotten printers, a game cube, radio, dvd player, vcr, all kinds of things! I give him a cardboard box or tray or something and tell him everything has to stay on that, and then he throws it away when he's done. This is actually one of the easiest things to deal with now. I've really started to rely on him for that, and he's only 12!

trish

-----Original Message-----From: [mailto: ] On Behalf Of RoxannaSent: Wednesday, November 14, 2007 9:12 PM Subject: Re: ( ) New Here

Our ds used to do weird things. For instance, whenever he approached a machine that dispensed those little plastic toys, he got a toy. We have no clue how as he did not have money. It was kind of spooky. It is just something we got used to.

RoxannaAutism Happens

Re: ( ) New Here

That is wild! @ 9 months, took apart the baby monitor?!!! What is so frustrating about doing this with the remote is, sometimes he will tell us what the new code is and sometimes he wont! Then we have to call DirecTV to get them to help us out! We hid all of the remotes....that was no help because he figured out how to do it from the reciever!!! I know this sounds "trivial" compared to what a lot of parents are going through (we are truly blessed in that aspect..... as far as having a child w/ AS). He can do many other "bizarre" things, that we just can figure out how he managed to do. Would love to hear from more parents! Feeling a little creeped out! ThanksASC <aschristensencharter (DOT) net> wrote:

lol, mine hasnt done that exactly, but how about taking apart the baby monitor at 9months old? i have made tools off limits (loss of playstation or computer time, he hates that) and if it is not a transformer or building blocks it is not to be taken apart. i have also made him actually go throw away toys that he has taken apart (his favorite toy mind you). all i have to say now is im getting the garbage back go get the toy, and it instantly stops.bobo4boys wrote:>> Just wondering if any parents are experienceing their aspie> son/daughter doing things that you just can't figure out how they are> doing it? For example: My 6 year old son can "crack" the parental code> (4-digit) on the cable/sattelite remote and CHANGES IT!!!! I would> love to talk to anyone experiencing these types of things. THANKS>>

Be a better pen pal. Text or chat with friends inside . See how.

Send a smile, make someone laugh, have some fun! Start now!

[Guest guest]

My 6 year old locked up my PC so nobody (not even the system administrator) could get in. We've since bought him his own PC and have restricted his logon - he's constantly asking me for the admin password so he can download games off the internet. These kids are amazing....

-------------- Original message from "bobo4boys" <bobo4boys@...>: --------------

Just wondering if any parents are experienceing their aspie son/daughter doing things that you just can't figure out how they are doing it? For example: My 6 year old son can "crack" the parental code(4-digit) on the cable/sattelite remote and CHANGES IT!!!! I would love to talk to anyone experiencing these types of things. THANKS

[Guest guest]

On Jul 14, 9:00am, " Trisha Rice " wrote:

} Our youngest ds also takes things apart and rarely puts them back together.

} He took all the screws out of everything he could find - those cheap storag=

} e

} cabinets from Target, the coffee table, hinges all over the house, some of

} the light switches, and on and on. The upside of having this trait is that

When my son was in preschool, and they were trying to encourage the

other kids to see his positive traits, they did " take apart art. "

The kids took apart a bunch of old stuff and made art from it. It was

really something.

Willa

[Guest guest]

Must have been a great teacher!

-----Original Message-----From: [mailto: ] On Behalf Of Willa HuntSent: Monday, November 26, 2007 1:44 PM Subject: RE: ( ) New Here

On Jul 14, 9:00am, "Trisha Rice" wrote:} Our youngest ds also takes things apart and rarely puts them back together.} He took all the screws out of everything he could find - those cheap storag=} e} cabinets from Target, the coffee table, hinges all over the house, some of} the light switches, and on and on. The upside of having this trait is thatWhen my son was in preschool, and they were trying to encourage theother kids to see his positive traits, they did "take apart art."The kids took apart a bunch of old stuff and made art from it. It wasreally something.Willa

[Guest guest]

yeah, what a great idea... too bad more teachers don't try and encourage 'other' kids to look at aspies or any other disabled and see their strengths. wonderful!!

RE: ( ) New Here

Must have been a great teacher!

-----Original Message-----From: [mailto: ] On Behalf Of Willa HuntSent: Monday, November 26, 2007 1:44 PM Subject: RE: ( ) New Here

On Jul 14, 9:00am, "Trisha Rice" wrote:} Our youngest ds also takes things apart and rarely puts them back together.} He took all the screws out of everything he could find - those cheap storag=} e} cabinets from Target, the coffee table, hinges all over the house, some of} the light switches, and on and on. The upside of having this trait is thatWhen my son was in preschool, and they were trying to encourage theother kids to see his positive traits, they did "take apart art."The kids took apart a bunch of old stuff and made art from it. It wasreally something.Willa

[Guest guest]

HI Tina Great to have you here. I'm in the same boat as you with grain sensitivities and I'm in the early stages for leaky gut healing. One thing that is even more important than just eating raw salads is eating fermented foods. They are many times more nutritious, still raw, easier to digest and full of probiotics and enzymes.Too many raw veggies can be very hard on someone who has leaky gut. They act like brooms on a damaged intestinal track. You should begin making fermented foods yourself, like pickled garlic, sauerkraut, homemade yogurt etc.. they are so easy to make (do not eat the jarred dead stuff from the store). Here is a great link to watch as well, it is one of 6 short films:

Also I really enjoyed reading

the testimonials on www.guthealth.info regarding BioKult as a probiotic. Blessings on you health! Vick Whitefish MTTina Chapek <teenee65@...> wrote: Hi,I'm new here! I think I have leaky gut and not sure where to start to try and heal it. I have a few food sensitivities too. I am thinking it is related.Right now I am doing a parasite cleanse (Humaworm) and almost through with that (cannot

wait!). After I am done, I plan to take a lot of probiotics to try and restablish good flora. I am trying to eat good (salads, mostly with organic chicken or beef or eggs for protein and avacados, olive oil, coconut oil for good fats). I don't seem to do well with any grains but am staying away from gluten specifically. Sometimes I eat corn or GF products but I find I feel better without grains. I also have reflux (hiatal hernia) so have to watch my diet for that too. Would love some advice or links that might point me to a diet or program that helps.Look forward to meeting and learning from you all,:)Tina

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

We ran a support group locally for a number of years but we had a lot of apathy from membership. I don't know why that is - unless people just are so exhausted by autism that they can't make an effort? We had a lot of speakers over the years but it was hard when attendance was low and kind of embarrassing to the speaker as well. Sometimes, people showed up and we were packed and other times, I couldn't have paid someone to come. I figured that people showed up when it directly affected something they were interested in at that time. It frustrated me because we would hold informational meetings on subjects like writing IEPs or how to build a relationship with the teacher/school - nobody wanted to come to those. But of course, when someone had a problem (and someone always did!) they would be calling or emailing for help with IEPs and working with the school. It would drive me crazy how that worked. lol.

Anyway, good luck. Just wanted to say, BTDT. as for social groups, you might consider forming a "game group" after school and not have it be directly about AS/autism but focused on playing games. Then have board games and such laid out, have kids pair up into groups and have adults to monitor and help set up and clean up.

RoxannaAutism Happens

( ) New Here

Hi everyone. While not exactly 'new' here (joined some time ago and have been reading the email digests), I am new to posting to the board.I have two Asperger kids, son age 12 and daughter age 9.We live in Southern Maine but have our house on the market and are looking to move back to Massachusetts where the services for my kids are more readily available. I would love to hear from anyone in this forum who is from my area!I am also in search of social groups for my kids, particularly my son, and we have NOTHING in my area of Maine. I attemped to start such a group through my kids schools, but was unsuccessful. The SPED Director did trial an afterschool program last year with my input and some extra funds in his budget he needed to use up, but it ended up focusing on the more severe kids in the Spectrum, and it didn't last long. I also started a local support group and that fizzled out after about 6 months. I can't believe this isn't important to people in my town. We have over 23 kids with a diagnosis of autism, one third of which is Aspergers, and this is a small town.If anyone here is from my general area and knows of any groups (or would like to start one with me) in Southern Coastal Maine or NH, or North Shore of MA, I would appreciate hearing from you. I am interested in true social groups, something fun and not academic or formal pragmatic groups. Just something where my kids can make friends and hopefully find kids who share their interests.My daughter doesn't really need it, although I am sure she would love participating. She has several friends who are both interested in the things she likes and can also tolerate her little quirks. My son, on the other hand, has only one friend with whom he spends time outside of school. Long story short, the other child cancels on him a lot which is very upsetting to my son, and I would like to see him branch out and spend time with other kids as well. He enrolled in two intramural programs at school this year, which were cancelled after the second week due to the High School Basketball team needing to borrow the Jr. High School Gym after school...another disappointment!I do know of one social group in Danvers MA run (I think) by North Shore ARC. They have several programs, one of which runs every other Saturday. Only problem is, it is rather costly, and I can't afford it.In any case... if anyone can help me, please post response or email me directly at fmundymaine (DOT) rr.comThank you in advance.