Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 Dear Joi, I have had numerous surgeries, cervical, back, shoulder, and both knees replaced, and still have pain in the knee that was replaced a couple years ago. My PM dr. said I have tendonitis. I have been keeping a pillow between my knees for years, but still have pain that wakes me up every nite, and am on an opiate. I was told also to not buy a bed with a pillow top mattress, they are finding out more and more that it's not good for backs. My mattress cannot be flipped, only turned, it cost us a pretty penny, so we're knind of stuck, my husband is overweight, and his side definitely slopes down, even though we turn it around frequently-so that isn't helping my back problems. Am very ticked off, I found a site from an Oprah magazine regarding joint makers and orthopedic surgeons accepting bribes on using a particular implant, found my knee and shoulder ortho. drs were listing as have taken so called " consulting fees " , including cash, trips, and gifts. That really makes me wonder if they used the wrong type of replacement for the knee that I'm still having problems with. Be sure to get second opinions on any sort of knee or hip implant done if it's needed, I couldn't tell from your letter if you've had any of that done. I've been told that my back pain can travel down to my knees, but I had a separate mri done for my knees, as well as a total body mri. I also use lidocaine patches for my back and knee pain, and that helps some. I don't know if I've been able to help you any, but there are lots of people in this group who are very knowledgeable, so hopefully somebody can give you some helpful advice. Take care of yourself, and I hope you can find some help soon. Sincerely Jeannie ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 ((Joi)) Oh I feel for you; I know the pain you are describing; I get that sharp pain in my hips then it goes down to my thighs at night also that wakes me up often. I keep alternating sides. As far as the walk you took...Dr's are really divivded on excercise as far as acute pain goes; some have told me not to as I'll only be aggravating what's going on and some have told me to walk as much as I can. I think the answer lies somewhere in the middle and you need to go at it slow and listen to your body; stop before you are really hurting. For chronic pain almost all the Dr's I've seen say walk, walk, walk or swim. I'm sorry your Dr's aren't offering you anything for the pain; have you talked to them and told them how bad the pain really is? Just keep telling them, describe it like you did here in your posts and ask them if there is something that could help you with the pain. Keep going to your Dr's and consider going to PT or a Chiro and keep telling them you hurt as well. Dr's really look at what their patients are doing to try to get better and if they see you being persistence about feeling better then they will believe you. You'll be in my thoughts, take care, > > , > I'll try to get a doctor here to order an MRI. It'll probably be near > impossible. I've never been offered anything close to an MRI. So far, none > of the doctors I've gone to offer anything for pain. Nothing at all. I > really think that none of them think I'm really in pain. I do have leftover > Percocet from my bilateral knee surgery last June and I was hurting so baldy > last night that I took one. It didn't help much at all. All it did was knock > me out for 90 minutes and I woke up in severe pain. So bad, I couldn't move > very well. I tried the pillow and it didn't help as I prefer to sleep on my > side and it's the hip I'm laying on that hurts and wakes me up after about > an hour. I also have severe pain in my upper back/neck area. It's so bad I > get migraine type or tension type headaches. I do have medication for that, > but it never does anything for the back pain. I don't know is this was a > mistake, but yesterday I went walking with my neighbor. She said to let her > know when I needed to stop. I did...my heart and lungs could have gone much > faster and longer than my knees, hips, and back would allow. I barely made > it back to my car. I've cried much of today. > > Joi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 ((Joi)) Oh I feel for you; I know the pain you are describing; I get that sharp pain in my hips then it goes down to my thighs at night also that wakes me up often. I keep alternating sides. As far as the walk you took...Dr's are really divivded on excercise as far as acute pain goes; some have told me not to as I'll only be aggravating what's going on and some have told me to walk as much as I can. I think the answer lies somewhere in the middle and you need to go at it slow and listen to your body; stop before you are really hurting. For chronic pain almost all the Dr's I've seen say walk, walk, walk or swim. I'm sorry your Dr's aren't offering you anything for the pain; have you talked to them and told them how bad the pain really is? Just keep telling them, describe it like you did here in your posts and ask them if there is something that could help you with the pain. Keep going to your Dr's and consider going to PT or a Chiro and keep telling them you hurt as well. Dr's really look at what their patients are doing to try to get better and if they see you being persistence about feeling better then they will believe you. You'll be in my thoughts, take care, > > , > I'll try to get a doctor here to order an MRI. It'll probably be near > impossible. I've never been offered anything close to an MRI. So far, none > of the doctors I've gone to offer anything for pain. Nothing at all. I > really think that none of them think I'm really in pain. I do have leftover > Percocet from my bilateral knee surgery last June and I was hurting so baldy > last night that I took one. It didn't help much at all. All it did was knock > me out for 90 minutes and I woke up in severe pain. So bad, I couldn't move > very well. I tried the pillow and it didn't help as I prefer to sleep on my > side and it's the hip I'm laying on that hurts and wakes me up after about > an hour. I also have severe pain in my upper back/neck area. It's so bad I > get migraine type or tension type headaches. I do have medication for that, > but it never does anything for the back pain. I don't know is this was a > mistake, but yesterday I went walking with my neighbor. She said to let her > know when I needed to stop. I did...my heart and lungs could have gone much > faster and longer than my knees, hips, and back would allow. I barely made > it back to my car. I've cried much of today. > > Joi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 ((Joi)) Oh I feel for you; I know the pain you are describing; I get that sharp pain in my hips then it goes down to my thighs at night also that wakes me up often. I keep alternating sides. As far as the walk you took...Dr's are really divivded on excercise as far as acute pain goes; some have told me not to as I'll only be aggravating what's going on and some have told me to walk as much as I can. I think the answer lies somewhere in the middle and you need to go at it slow and listen to your body; stop before you are really hurting. For chronic pain almost all the Dr's I've seen say walk, walk, walk or swim. I'm sorry your Dr's aren't offering you anything for the pain; have you talked to them and told them how bad the pain really is? Just keep telling them, describe it like you did here in your posts and ask them if there is something that could help you with the pain. Keep going to your Dr's and consider going to PT or a Chiro and keep telling them you hurt as well. Dr's really look at what their patients are doing to try to get better and if they see you being persistence about feeling better then they will believe you. You'll be in my thoughts, take care, > > , > I'll try to get a doctor here to order an MRI. It'll probably be near > impossible. I've never been offered anything close to an MRI. So far, none > of the doctors I've gone to offer anything for pain. Nothing at all. I > really think that none of them think I'm really in pain. I do have leftover > Percocet from my bilateral knee surgery last June and I was hurting so baldy > last night that I took one. It didn't help much at all. All it did was knock > me out for 90 minutes and I woke up in severe pain. So bad, I couldn't move > very well. I tried the pillow and it didn't help as I prefer to sleep on my > side and it's the hip I'm laying on that hurts and wakes me up after about > an hour. I also have severe pain in my upper back/neck area. It's so bad I > get migraine type or tension type headaches. I do have medication for that, > but it never does anything for the back pain. I don't know is this was a > mistake, but yesterday I went walking with my neighbor. She said to let her > know when I needed to stop. I did...my heart and lungs could have gone much > faster and longer than my knees, hips, and back would allow. I barely made > it back to my car. I've cried much of today. > > Joi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2008 Report Share Posted April 16, 2008 ((Joi)) Oh I feel for you; I know the pain you are describing; I get that sharp pain in my hips then it goes down to my thighs at night also that wakes me up often. I keep alternating sides. As far as the walk you took...Dr's are really divivded on excercise as far as acute pain goes; some have told me not to as I'll only be aggravating what's going on and some have told me to walk as much as I can. I think the answer lies somewhere in the middle and you need to go at it slow and listen to your body; stop before you are really hurting. For chronic pain almost all the Dr's I've seen say walk, walk, walk or swim. I'm sorry your Dr's aren't offering you anything for the pain; have you talked to them and told them how bad the pain really is? Just keep telling them, describe it like you did here in your posts and ask them if there is something that could help you with the pain. Keep going to your Dr's and consider going to PT or a Chiro and keep telling them you hurt as well. Dr's really look at what their patients are doing to try to get better and if they see you being persistence about feeling better then they will believe you. You'll be in my thoughts, take care, > > , > I'll try to get a doctor here to order an MRI. It'll probably be near > impossible. I've never been offered anything close to an MRI. So far, none > of the doctors I've gone to offer anything for pain. Nothing at all. I > really think that none of them think I'm really in pain. I do have leftover > Percocet from my bilateral knee surgery last June and I was hurting so baldy > last night that I took one. It didn't help much at all. All it did was knock > me out for 90 minutes and I woke up in severe pain. So bad, I couldn't move > very well. I tried the pillow and it didn't help as I prefer to sleep on my > side and it's the hip I'm laying on that hurts and wakes me up after about > an hour. I also have severe pain in my upper back/neck area. It's so bad I > get migraine type or tension type headaches. I do have medication for that, > but it never does anything for the back pain. I don't know is this was a > mistake, but yesterday I went walking with my neighbor. She said to let her > know when I needed to stop. I did...my heart and lungs could have gone much > faster and longer than my knees, hips, and back would allow. I barely made > it back to my car. I've cried much of today. > > Joi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 Hi Sue! Congratulations on your surgery! I'm in Az too, and looking for a good surgeon in the Phoenix area, who did you see, and are you happy with him/her? ALso have you heard of any dynamite OS that does Hip resurfacing or THR around there? Thanks much! Maddy > > Hi Caren, > love to try to help if I can. > > Sue in So. sdale. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Welcome ! I tried cymbalta for my FM; unfortunately it didn't work, made my symptoms worse but I've heard it has done great for may others! Due to my weird body chemistry, most drugs don't work for me. I had a whole serious of facet injections Icervical and lumbar bilaterally), nerve blocks, epidurals. Some work for a bit, some don't. Finally had RF done on the facets and both SIs. Lumbar is slowly re-emerging on left side after 3.5 weeks; cervical (also left) after 3 weeks. But some relief was better than none! Good luck. NEW HERE SOUNDS LIKE A REAL GOOD GROUP!! I HAVE A FEW QUESTIONS,JUST FOUND OUT TODAY I HAVE FIBORMYALGIA .DR PUT ME ON CYMBALTA.ANYONE ELSE ON IT ? AND HOW IS IT GOING? I ALSO HAVE DDD AND FACET DISEASE,4BULDGING DISC AND A FEW OTHER THINGS.I AM SUPPOSE TO HAVE INJECTION AT THE PAIN CLINIC ON MONDAY. ANY THOUGHTS ON THAT? ANY INFO WOULD BE APPRECIATED. ........THANKS LINDA ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Also a FIBRO here. Been taking cymbalta for quite a while. Basically it is suppose to increase seratonin levels which are what we use to help with pain in the body. I have noticed a difference since taking it. But it has been more along the lines of help with mood due to the pain of FIBRO. Honestly, the best possible thing is lots and lots of anti-inflamatory medication. From what I have heard though it does take at least 4 to 6 weeks before you will notice a difference. So, If you just started. Give it a chance. May be just what you need. Hopefully injection will work. I tried it. Did several series, just didn't work for me. <LALK92@...> wrote: SOUNDS LIKE A REAL GOOD GROUP!! I HAVE A FEW QUESTIONS,JUST FOUND OUT TODAY I HAVE FIBORMYALGIA .DR PUT ME ON CYMBALTA.ANYONE ELSE ON IT ? AND HOW IS IT GOING? I ALSO HAVE DDD AND FACET DISEASE,4BULDGING DISC AND A FEW OTHER THINGS.I AM SUPPOSE TO HAVE INJECTION AT THE PAIN CLINIC ON MONDAY. ANY THOUGHTS ON THAT? ANY INFO WOULD BE APPRECIATED.........THANKS LINDA It is better to be hated for who you are than liked for who you aren't. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Good Morning to all from South Louisiana BEWARE BEWARE BEWARE OF NSAIDS [NON STERIODAL ANTI-INFLAMATORY DRUGS I would like to add a comment / word of important caution here. I totally understand patients caution about taking narcotic meds and all that goes along with that. I must air on cautious side of these " NSAIDS " Non steriodial Anti Inflamatory medications. ANY/all patient that has a history of [iBS] ->irritable bowel syndrome, Crohn's disease , stomach ulcers or ANY disorder of the digestive tract. These medications have proved to cause acute rupture diseased areas of the digestive tract and bleeding in patients that take them with a history of digestive disorders. This is what happened to me . I have 2 major herniations in the C- spine and two herniations of Thorasic T-4 and 5 with spinal cord compression. The medical staff was totally aware of my Crohns disease and the britle sstage it was in. There action in giving me a 60 mg dose of this Anti-inflamatory drug and within 2 hours I was bleeding internally . The bowel preforated allowing the " POOP " to be released into my abdominal cavity. Emergency surgery was performed and a 2 foot section of my bowel had to removed in a radical emergency surgery. I was in the ICU/hospital for 32 days fighting a deadly bodywide infection. I do not want to scare anyone ...I only want others to know that the NSAIDS are proving to be much more dangerous that the basic everyday narcotics.If they are taken correctly they seem to me the safest choice for patients. As we know the docs treat us with medications from the bottom--UP when it comes to pain medications. Non-steriodal anti-inflamatory medications are totally " CONTRAINDICATED " in any patient with G.I.disorders . Doctors are continuing to use Toradol as a pain releiver [it comes in both tablet and by injection. No matter how it is administered that action of the drug is still the same once introduced into the body. The doctor knew of my history and the nurse that gave me the injection lied and told me that the medication she was giving me was Demerol. which is not a NSAID. Please be careful know what your being given. This is what happened to me. Now I am facing getting over this bowel removal and then I have to have surgery for decompression of the T-spine spinal cord compression. Needless to say the this has been a nightmare and I hope that my experience will help others that may be taking these NSAID's and the danger they can do is FAR less than that of a accepted simple pain pill. I will be posting a partial list of medications that are in this class Best withes to all here. n South Louisiana > SOUNDS LIKE A REAL GOOD GROUP!! I HAVE A FEW QUESTIONS,JUST FOUND OUT > TODAY I HAVE FIBORMYALGIA .DR PUT ME ON CYMBALTA.ANYONE ELSE ON IT ? > AND HOW IS IT GOING? I ALSO HAVE DDD AND FACET DISEASE,4BULDGING DISC > AND A FEW OTHER THINGS.I AM SUPPOSE TO HAVE INJECTION AT THE PAIN > CLINIC ON MONDAY. ANY THOUGHTS ON THAT? ANY INFO WOULD BE > APPRECIATED.........THANKS LINDA > > > > > > > It is better to be hated for who you are than liked for who you aren't. > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 As I said, due to extreme GERD (and IBS as well) all of my docs have NO NSAIDS marked in my records and I carry a card that has that (along with other med info) on it. Fortunately for me, I never found them very effective for my fibro so no loss. Recent Activity *  8 New MembersVisit Your Group Health Asthma Triggers How you can identify them. Meditation and Lovingkindness A Group to share and learn. Biz Resources Y! Small Business Articles, tools, forms, and more. .. ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 While I do agree with some of the doom and gloom... NSAIDS are good for those who need and can take them. In my case, NSAIDS were used at first, with no real thought to the fact that I am Asthmatic. They don't take into consideration that anyone with an Aspirin allergy might have problems with NSAIDS. I had to find out the hard way. They also don't tell you that Chondroitin...think I spelled that wrong. Anyway, they don't tell you that it is derived from shellfish. So, any shellfish allergy and you might have trouble. Like I said, Little bit gloom and doom on your part. But, the general warning is appreciated. <fordf250m4m@...> wrote: Good Morning to all from South Louisiana BEWARE BEWARE BEWARE OF NSAIDS [NON STERIODAL ANTI-INFLAMATORY DRUGS I would like to add a comment / word of important caution here. I totally understand patients caution about taking narcotic meds and all that goes along with that. I must air on cautious side of these " NSAIDS " Non steriodial Anti Inflamatory medications. ANY/all patient that has a history of [iBS] ->irritable bowel syndrome, Crohn's disease , stomach ulcers or ANY disorder of the digestive tract. These medications have proved to cause acute rupture diseased areas of the digestive tract and bleeding in patients that take them with a history of digestive disorders. This is what happened to me . I have 2 major herniations in the C- spine and two herniations of Thorasic T-4 and 5 with spinal cord compression. The medical staff was totally aware of my Crohns disease and the britle sstage it was in. There action in giving me a 60 mg dose of this Anti-inflamatory drug and within 2 hours I was bleeding internally . The bowel preforated allowing the " POOP " to be released into my abdominal cavity. Emergency surgery was performed and a 2 foot section of my bowel had to removed in a radical emergency surgery. I was in the ICU/hospital for 32 days fighting a deadly bodywide infection. I do not want to scare anyone ...I only want others to know that the NSAIDS are proving to be much more dangerous that the basic everyday narcotics.If they are taken correctly they seem to me the safest choice for patients. As we know the docs treat us with medications from the bottom--UP when it comes to pain medications. Non-steriodal anti-inflamatory medications are totally " CONTRAINDICATED " in any patient with G.I.disorders . Doctors are continuing to use Toradol as a pain releiver [it comes in both tablet and by injection. No matter how it is administered that action of the drug is still the same once introduced into the body. The doctor knew of my history and the nurse that gave me the injection lied and told me that the medication she was giving me was Demerol. which is not a NSAID. Please be careful know what your being given. This is what happened to me. Now I am facing getting over this bowel removal and then I have to have surgery for decompression of the T-spine spinal cord compression. Needless to say the this has been a nightmare and I hope that my experience will help others that may be taking these NSAID's and the danger they can do is FAR less than that of a accepted simple pain pill. I will be posting a partial list of medications that are in this class Best withes to all here. n South Louisiana > SOUNDS LIKE A REAL GOOD GROUP!! I HAVE A FEW QUESTIONS,JUST FOUND OUT > TODAY I HAVE FIBORMYALGIA .DR PUT ME ON CYMBALTA.ANYONE ELSE ON IT ? > AND HOW IS IT GOING? I ALSO HAVE DDD AND FACET DISEASE,4BULDGING DISC > AND A FEW OTHER THINGS.I AM SUPPOSE TO HAVE INJECTION AT THE PAIN > CLINIC ON MONDAY. ANY THOUGHTS ON THAT? ANY INFO WOULD BE > APPRECIATED.........THANKS LINDA > > > > > > > It is better to be hated for who you are than liked for who you aren't. > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 You may want to do some research. If you have asthma, are you also sensitive to aspirin or other anti-inflammatories...like Ibuprofen? Ask yourself...Do I seem to have more trouble breathing or more issues with having to use my rescue inhaler when I am taking these types of drugs? If so, then NSAIDS may not be right for you. Although, I will say this...if you have not been allergy tested. Now would be a good time. I finally broke down and went to an Ear, Nose and Throat and was tested. Turns out I am allergic to just about everything and sensitive to some things. The good news...I have been taking allergy shots ever since and have noticed a dramatic improvement. I even went as far as trying to take Aspirin and guess what? I now seem more able to tolerate it. Which, by the way, Is huge news for me. I have arthritis, fibromyalgia among other things and not being able to take anti-inflammatory drugs has been and big deal. So, again...really depends on you. If you don't have any reaction to this type of medication, then it shouldn't be a problem for you. Just be careful and ALWAYS do your own research on any medication your doctor prescribes. Look for contraindications and everything. Good rule of thumb to remember. " The only difference between you and your doctor...they went to school to do thier job " . That doesn't mean you can't know more and be more educated about your condition than them. Remember, they deal with multiple illnesses with multiple people and this is you and your specific issues. Okay, off my soapbox now!!! LOL <LALK92@...> wrote: I DO HAVE ASTHMA TOO ,SHOULD I NOT BE TAKING THE NSAIDS? HELP? LINDA It is better to be hated for who you are than liked for who you aren't. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Have you considered surgery? I recently had surgery to remove a spur, repair a rupture and just in general clean out the area around the sciatic nerve. Other than a little inflammmation after surgery... I have to say, so far has been the best decision for me. Grin and Bear it is for the birds. No offense, but I have been in pain for years. Nobody knows what we go thru, because they don't have the same problem. I am so sorry you are in pain. Maybe now is the time to consider more drastic measures. I have been in pain for years and thought well I guess everyone deals with this and why should I be any different. But that is just it, we are all different. Noone can tell you what is the right amount of pain to ignore. Ultimately, Pain is not the norm. If it hurts, it is definitely time to do whatever it takes to make it go away. If that means surgery, then so be it. I know, a little preachy here. PAIN is NOT the NORM. It took me along time to realize you don't have to feel this way. There is help!! You shouldn't have to put up with the pain and if your current doctor isn't doing anything to help...Time to move on to someone who will. > > Hi I am new here and have several kinds of arthritis that have riddled > my spine > I have 5 spurs in my spine not counting other places, 2 herniated disk > and am in constant pain > I try very hard to grin and bear > > I have recently been put on a patch that does help some but the 12 > hours inbetween patches is the worst > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2008 Report Share Posted May 2, 2008 Sent via BlackBerry from T-Mobile Re: Re: NEW HERE While I do agree with some of the doom and gloom... NSAIDS are good for those who need and can take them. In my case, NSAIDS were used at first, with no real thought to the fact that I am Asthmatic. They don't take into consideration that anyone with an Aspirin allergy might have problems with NSAIDS. I had to find out the hard way. They also don't tell you that Chondroitin...think I spelled that wrong. Anyway, they don't tell you that it is derived from shellfish. So, any shellfish allergy and you might have trouble. Like I said, Little bit gloom and doom on your part. But, the general warning is appreciated. <fordf250m4m@ <mailto:fordf250m4m%40> > wrote: Good Morning to all from South Louisiana BEWARE BEWARE BEWARE OF NSAIDS [NON STERIODAL ANTI-INFLAMATORY DRUGS I would like to add a comment / word of important caution here. I totally understand patients caution about taking narcotic meds and all that goes along with that. I must air on cautious side of these " NSAIDS " Non steriodial Anti Inflamatory medications. ANY/all patient that has a history of [iBS] ->irritable bowel syndrome, Crohn's disease , stomach ulcers or ANY disorder of the digestive tract. These medications have proved to cause acute rupture diseased areas of the digestive tract and bleeding in patients that take them with a history of digestive disorders. This is what happened to me . I have 2 major herniations in the C- spine and two herniations of Thorasic T-4 and 5 with spinal cord compression. The medical staff was totally aware of my Crohns disease and the britle sstage it was in. There action in giving me a 60 mg dose of this Anti-inflamatory drug and within 2 hours I was bleeding internally . The bowel preforated allowing the " POOP " to be released into my abdominal cavity. Emergency surgery was performed and a 2 foot section of my bowel had to removed in a radical emergency surgery. I was in the ICU/hospital for 32 days fighting a deadly bodywide infection. I do not want to scare anyone ...I only want others to know that the NSAIDS are proving to be much more dangerous that the basic everyday narcotics.If they are taken correctly they seem to me the safest choice for patients. As we know the docs treat us with medications from the bottom--UP when it comes to pain medications. Non-steriodal anti-inflamatory medications are totally " CONTRAINDICATED " in any patient with G.I.disorders . Doctors are continuing to use Toradol as a pain releiver [it comes in both tablet and by injection. No matter how it is administered that action of the drug is still the same once introduced into the body. The doctor knew of my history and the nurse that gave me the injection lied and told me that the medication she was giving me was Demerol. which is not a NSAID. Please be careful know what your being given. This is what happened to me. Now I am facing getting over this bowel removal and then I have to have surgery for decompression of the T-spine spinal cord compression. Needless to say the this has been a nightmare and I hope that my experience will help others that may be taking these NSAID's and the danger they can do is FAR less than that of a accepted simple pain pill. I will be posting a partial list of medications that are in this class Best withes to all here. n South Louisiana > SOUNDS LIKE A REAL GOOD GROUP!! I HAVE A FEW QUESTIONS,JUST FOUND OUT > TODAY I HAVE FIBORMYALGIA .DR PUT ME ON CYMBALTA.ANYONE ELSE ON IT ? > AND HOW IS IT GOING? I ALSO HAVE DDD AND FACET DISEASE,4BULDGING DISC > AND A FEW OTHER THINGS.I AM SUPPOSE TO HAVE INJECTION AT THE PAIN > CLINIC ON MONDAY. ANY THOUGHTS ON THAT? ANY INFO WOULD BE > APPRECIATED.........THANKS LINDA > > > > > > > It is better to be hated for who you are than liked for who you aren't. > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2008 Report Share Posted May 6, 2008 Hi and welcome to the group! You should feel good about your decision to band your dd. And we are always here when you are freanking out! As for the markers, I would think a Sharpie would work well and not rub off. Good luck and let us know how things are going. Becky, repo moderator , repo grad > > Hello, > My 6 month old daughter recently received her first DOC band, I of > course and beinging to freak out, I am so worried that it won't > help!! She is a twin and was very squished in the womb. Her twin's > head is perfectly round. She was diagnosed pretty early on with > torticollis and we have been stretch and massaging to help it. We > have troied everything short of duck taping her head to the mattress > as far as repositioning goes (I am kidding about the duct tape, we > would never actually do it) So we got our band or better known as > The " helmet " . Ther is a lot of space for her head to grow into and > one day when I get to it I will post some pics of her and her head. > One question I have is about decorating it ( yea the real serious > questions first) we would like to " sign " it, as if it was a cast, I > am wondering if anyone has used markers and if so how did it work out > and did you ahve to use varnish to keep it from getting rubbed off. I > have heard of paint pens and am thinking that may be better. Thanks > and I am sure I will have many more questions, probably as I get more > amd more nervous that it may not help!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 It will help! If you're not sure take some pictures (usually top of head is best) and take the same pics again in two weeks and four weeks - you should see improvement. -chrisitne sydney 2 yrs starband grad > > Hello, > My 6 month old daughter recently received her first DOC band, I of > course and beinging to freak out, I am so worried that it won't > help!! She is a twin and was very squished in the womb. Her twin's > head is perfectly round. She was diagnosed pretty early on with > torticollis and we have been stretch and massaging to help it. We > have troied everything short of duck taping her head to the mattress > as far as repositioning goes (I am kidding about the duct tape, we > would never actually do it) So we got our band or better known as > The " helmet " . Ther is a lot of space for her head to grow into and > one day when I get to it I will post some pics of her and her head. > One question I have is about decorating it ( yea the real serious > questions first) we would like to " sign " it, as if it was a cast, I > am wondering if anyone has used markers and if so how did it work out > and did you ahve to use varnish to keep it from getting rubbed off. I > have heard of paint pens and am thinking that may be better. Thanks > and I am sure I will have many more questions, probably as I get more > amd more nervous that it may not help!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Welcome! What a great idea to sign it like a cast! I hadn't heard of that one before. I think Sharpies would work great as far as ease of writing and they come in such great colors these days. Just a couple thoughts though, I would definitely run it past CT first before you go ahead with it. I know they're fine with painting but I don't remember the painting guidelines sheet saying anything about Sharpie type markers directly on the surface. So I would just ask them first to be sure, they have some definite protocols as to what is okay for the integrity of the plastic and what isn't. Also, if you use Sharpies (and even if you use paint pens), you'll have to be careful cleaning the band with alcohol. Long story short, back in the day (I'm totally dating myself) when we used Sharpie markers on transparencies for the overhead projecter in school, rubbing alcohol was the only thing that got the permanent marker off the transparency. So I figure the same would be true for the plastic on the band. I paint my son's helmet and I am just really careful during the cleanings to keep the alcohol away from the outside of the band. You're doing a great thing for your daughter! Good luck! Jake-20m (tort resolved/rt plagio/DOCBand 12 weeks) Jordan-4 > > Hello, > My 6 month old daughter recently received her first DOC band, I of > course and beinging to freak out, I am so worried that it won't > help!! She is a twin and was very squished in the womb. Her twin's > head is perfectly round. She was diagnosed pretty early on with > torticollis and we have been stretch and massaging to help it. We > have troied everything short of duck taping her head to the mattress > as far as repositioning goes (I am kidding about the duct tape, we > would never actually do it) So we got our band or better known as > The " helmet " . Ther is a lot of space for her head to grow into and > one day when I get to it I will post some pics of her and her head. > One question I have is about decorating it ( yea the real serious > questions first) we would like to " sign " it, as if it was a cast, I > am wondering if anyone has used markers and if so how did it work out > and did you ahve to use varnish to keep it from getting rubbed off. I > have heard of paint pens and am thinking that may be better. Thanks > and I am sure I will have many more questions, probably as I get more > amd more nervous that it may not help!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Hi Everyone! Just wanted to put my two cents in here. I had a problem with Cymbalta so I can't take it but since my surgeries, my doctor put me on Lyrica. It has almost no side effects and it really does help. My personal opinion. Dani Dani Magnuson Willow Pond Bath Products --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 I have to agree, Lyrica is a miracle drug, at first. I started taking it for fibromyalgia. It just so happened it had the added benefit of helping me to prolong the amount of time I waited to finally have my surgery. It does help...but not near as much as when I first started. Don't know if my body is worse now, or if it is just getting used to the drug and flat out ignoring it. > > Hi Everyone! > > Just wanted to put my two cents in here. I had a problem with Cymbalta so I can't take it but since my surgeries, my doctor put me on Lyrica. It has almost no side effects and it really does help. My personal opinion. > > Dani > > > Dani Magnuson > Willow Pond Bath Products > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 I had a couple people say they would sign it. I still haven't decorated our helmet. Just haven't thought of anything that fits him. > > > > Hello, > > My 6 month old daughter recently received her first DOC band, I > of > > course and beinging to freak out, I am so worried that it won't > > help!! She is a twin and was very squished in the womb. Her > twin's > > head is perfectly round. She was diagnosed pretty early on with > > torticollis and we have been stretch and massaging to help it. We > > have troied everything short of duck taping her head to the > mattress > > as far as repositioning goes (I am kidding about the duct tape, we > > would never actually do it) So we got our band or better known as > > The " helmet " . Ther is a lot of space for her head to grow into > and > > one day when I get to it I will post some pics of her and her > head. > > One question I have is about decorating it ( yea the real serious > > questions first) we would like to " sign " it, as if it was a > cast, I > > am wondering if anyone has used markers and if so how did it work > out > > and did you ahve to use varnish to keep it from getting rubbed > off. I > > have heard of paint pens and am thinking that may be better. > Thanks > > and I am sure I will have many more questions, probably as I get > more > > amd more nervous that it may not help!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2008 Report Share Posted May 7, 2008 Lyrica worked great for my pain. But as so many others have posted here, its side effects are not so minimal. The company says some weight gain for instance may result. Truth is many, many of us packed on the weight! In 6 weeks time I put on more than 30 lbs with no change in diet or eating habits; in fact, I cut back! Several months later, after going off it, I'm still trying to get the last 3 pounds off. Now this may seem like not too big of a deal except that significant weight gain, judging from the posts and FMS sites I've visited, it is not uncommon. And for folks like me, who have lymphedema or lipodema (lucky me, I've been blessed with both!) this was a significant issue and set me back substantially. But I've heard from others as well that it for some reason does seem to stop working after some months or a couple of years. Re: NEW HERE I have to agree, Lyrica is a miracle drug, at first. I started taking it for fibromyalgia. It just so happened it had the added benefit of helping me to prolong the amount of time I waited to finally have my surgery. It does help...but not near as much as when I first started. Don't know if my body is worse now, or if it is just getting used to the drug and flat out ignoring it. > > Hi Everyone! > > Just wanted to put my two cents in here. I had a problem with Cymbalta so I can't take it but since my surgeries, my doctor put me on Lyrica. It has almost no side effects and it really does help. My personal opinion. > > Dani > > > Dani Magnuson > Willow Pond Bath Products > > ------------ --------- --------- --- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Hi Lucy, Welcome to the group! Yes, we do communicate through email. I'm so sorry for eveything that has happened to you and for the pain you endure every day!! I too went from being perfectly fine one day to being miserably in pain the next day. It's quite a shocker and very hard to learn to live with. It's been 2 1/2 year for me and I am just at the very beginning stage of acceptance. I still miss the things I used to be able to do very much and then there is a lot of mommy guilt that I can't do the " normal " things with my kids. I have 3 boys, am a single mom too, 2 of my boys are teenagers and my baby will be 4 this August. I feel so bad I can't take him to the park, the zoo, exhibits, fairs, bowling, ect. I have awesome family support and they take him to some fun places but I hate missing out on it! So besides learning to deal with the pain, that's been the hardest part for me. Geeshhh, I'm sorry to go rambling on about myself when my intentions were to answer your post! Well, I am very sorry your neck is still causing you so much pain! I don't think you can get an MRI when you have a fusion but I believe you can get a CT Scan done; maybe your Dr should order one, it is possible something is loose within the fusion causing you pain. I have heard of that happening several times. Best of luck to you and I'm glad you found us!! Some days are pretty quiet around here because we all have daily pain issues but someone will respond to your post as soon as able. Take care! Hugs, > > Ok. I've never belonged to any type of group like this so I'm a little confused. So email is how we communicate? Not on the " boards " or something? lol Forgive me, like I said I am new to this. > To let you know a little about me and why I joined this group: > I had C6 & 7 cervical fusion in april of 07. I healed well from this and went back to work. I was a compliance officer for a govt agency and drove mostly from business to business. While returning from a business in June of 07 I was rear ended by a double trailer semi truck. He skid 210 feet before slamming into me at 65 mph. My C5 was broken and had to be fused. thank goodness i dont remember any of it. I also have mild traumatic brain injury.  First my neuro had me wait 3 mos in hard collar to see if would heal. It didnt it broke even more. So he fused all 4 vertebraes together. I've also had 8 staples in head, torn tendons in both elbows and slap tear in shoulder. Now I am having left hip pain and dont know why. > My neuro thinks i should be " healed " by now cuz he operated and he has a huge ego as im sure they all do. I was in the hard collar for 4 mo's after the surgery so total of almost 8 mos. I go to PT 2-3xs a week and dont get much relief at all. So basically just in constant pain. Between both arms, hip and neck, i can't stand it most days. I'm sure you all prob have it a lot worse and I'm so sorry for anyone who is in pain. I'm not use to being in pain. I was going along w/my normal life and boom! I dont know anyone who has to deal w/anything like Im going thru. My boyfriend is a great support and has been my life saver but I think I'm starting to wear him down, understandably. so any support would be greatly appreciated! > thank you > Lucy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Hi . Thanks for the email. Just hearing from someone who understands is a relief. I'm so sorry to hear about your situation, especially since you have such a young child. My oldest is 24 and in the service and my daughter is 19 and lives w/me but goes to college here locally. So what is your pain from? I seriously doubt my dr will order an MRI (I can have one even w/the rods and screws in my neck) because he thinks he is God and nothing that he did could be wrong. I think he thinks i'm making it up. My PT says that its understandable since I've been thru so much, 2 surgeries in the same place in my neck and in a hard collar for 8 mos. My neck muscles are all just spasm. Well again thanks for the email and am curious what is wrong w/ you? Lucy Re: New here Hi Lucy, Welcome to the group! Yes, we do communicate through email.. I'm so sorry for eveything that has happened to you and for the pain you endure every day!! I too went from being perfectly fine one day to being miserably in pain the next day. It's quite a shocker and very hard to learn to live with. It's been 2 1/2 year for me and I am just at the very beginning stage of acceptance. I still miss the things I used to be able to do very much and then there is a lot of mommy guilt that I can't do the " normal " things with my kids. I have 3 boys, am a single mom too, 2 of my boys are teenagers and my baby will be 4 this August. I feel so bad I can't take him to the park, the zoo, exhibits, fairs, bowling, ect. I have awesome family support and they take him to some fun places but I hate missing out on it! So besides learning to deal with the pain, that's been the hardest part for me. Geeshhh, I'm sorry to go rambling on about myself when my intentions were to answer your post! Well, I am very sorry your neck is still causing you so much pain! I don't think you can get an MRI when you have a fusion but I believe you can get a CT Scan done; maybe your Dr should order one, it is possible something is loose within the fusion causing you pain. I have heard of that happening several times. Best of luck to you and I'm glad you found us!! Some days are pretty quiet around here because we all have daily pain issues but someone will respond to your post as soon as able. Take care! Hugs, > > Ok. I've never belonged to any type of group like this so I'm a little confused. So email is how we communicate? Not on the " boards " or something? lol Forgive me, like I said I am new to this. > To let you know a little about me and why I joined this group: > I had C6 & 7 cervical fusion in april of 07. I healed well from this and went back to work. I was a compliance officer for a govt agency and drove mostly from business to business. While returning from a business in June of 07 I was rear ended by a double trailer semi truck. He skid 210 feet before slamming into me at 65 mph. My C5 was broken and had to be fused. thank goodness i dont remember any of it. I also have mild traumatic brain injury.  First my neuro had me wait 3 mos in hard collar to see if would heal. It didnt it broke even more. So he fused all 4 vertebraes together. I've also had 8 staples in head, torn tendons in both elbows and slap tear in shoulder. Now I am having left hip pain and dont know why. > My neuro thinks i should be " healed " by now cuz he operated and he has a huge ego as im sure they all do. I was in the hard collar for 4 mo's after the surgery so total of almost 8 mos. I go to PT 2-3xs a week and dont get much relief at all. So basically just in constant pain. Between both arms, hip and neck, i can't stand it most days. I'm sure you all prob have it a lot worse and I'm so sorry for anyone who is in pain. I'm not use to being in pain. I was going along w/my normal life and boom! I dont know anyone who has to deal w/anything like Im going thru. My boyfriend is a great support and has been my life saver but I think I'm starting to wear him down, understandably. so any support would be greatly appreciated! > thank you > Lucy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Lucy, HI there. I'm cindy. Lucy you can communicate anyway that you want to. It is confusing. i remember when i joined my first group. What in the heck? I thought. You can see all the emails thru your box, or just post on the board, and keep going back to read the posts. I belonged to a dog group one time, and i had the box checked to GET ALL EMAILS, and when i woke up there were like 250 group emails in my box. Or you can check off daily digest. and get one big email with everyones conversations in it. To make those email choices, go to the upper right hand corner and click on MY GROUPS. then after you get there. look around and find EDIT GROUPS, and after you get there, you will see all the choices of how you want or dont want to see group emails to come to you.You know? if it is a slow group, you might want to get all the emails, or if its a busy group, you might not want tons of emails. its up to you. If you want to talk on the board look for reply. say what you want to say, then click send,and it WILL show up on the board that way too. Hope that helps. cindy > > Ok. I've never belonged to any type of group like this so I'm a little confused. So email is how we communicate? Not on the " boards " or something? lol Forgive me, like I said I am new to this. > To let you know a little about me and why I joined this group: > I had C6 & 7 cervical fusion in april of 07. I healed well from this and went back to work. I was a compliance officer for a govt agency and drove mostly from business to business. While returning from a business in June of 07 I was rear ended by a double trailer semi truck. He skid 210 feet before slamming into me at 65 mph. My C5 was broken and had to be fused. thank goodness i dont remember any of it. I also have mild traumatic brain injury.  First my neuro had me wait 3 mos in hard collar to see if would heal. It didnt it broke even more. So he fused all 4 vertebraes together. I've also had 8 staples in head, torn tendons in both elbows and slap tear in shoulder. Now I am having left hip pain and dont know why. > My neuro thinks i should be " healed " by now cuz he operated and he has a huge ego as im sure they all do. I was in the hard collar for 4 mo's after the surgery so total of almost 8 mos. I go to PT 2-3xs a week and dont get much relief at all. So basically just in constant pain. Between both arms, hip and neck, i can't stand it most days. I'm sure you all prob have it a lot worse and I'm so sorry for anyone who is in pain. I'm not use to being in pain. I was going along w/my normal life and boom! I dont know anyone who has to deal w/anything like Im going thru. My boyfriend is a great support and has been my life saver but I think I'm starting to wear him down, understandably. so any support would be greatly appreciated! > thank you > Lucy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Apraxia is just a label. Simply - doesnt work. And imo - the label du jour. Has anyone mentioned CP? Maybe this is a mild case, often misdiagnosed? I also think if her immune system was not functioning properly - which was probably the case and then immunized on the riduculous one size fits all schedule - this in my opinion is a recipee for disaster and most likely at least aggreviated the situaion. I would get a DAN! Dr. on her case - if you've been through the channels like most of us have - and getting not much more than therapy and a " sorry about your luck " , time to move on. I would also suggest looking into hyperbaric oxygen therapy - it would help every symptom you mentioned. Expensive but really worth it particularly with someone this young. hth Quote Link to comment Share on other sites More sharing options...
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