Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 No centers within 40+ miles of us, otherwise I would be looking into it as well. What is SEIT? Thanks TJ > > ABA is for behavior therapy. My dd who just turned 4, is a great candidate and it can be paid for using SEIT hours. usually, the best scenario is to place a child in a center that has a pre-school, plus an ABA class. The child goes with her own SEIT/ABA therapist to he ABA class, and is integrated into the class during social hours. You ask the Boed to give you 25 hours of SEIT to cover the week. You will need an acceptance letter from the center in order to get the SEIT. I am currently picking a center, so I have no ABA feedback yet. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Good Luck Sue...I think all of us have differering issues with the common denominator that we have something wrong with our back and pain is a part of our lives...I hope you find the procedure is able to work for you.. Tom In a message dated 3/28/2009 7:08:23 A.M. Mountain Standard Time, sulaws9@... writes: I have had neck pain daily for 5 years.I was told last year I needed fusion at C5 and C6.Iwasn't able to have it at that time because the deductible on my insurance was sky high as well as the OOP portion.I would come home from work everyday with a screaming headache,totalu eshausted and pain level at about 7-8.My husband is a very high energy person always wanting to be on the go I tried so hard to grin and bear it.I know it has affected our marriage.The pain got so bad the last three months I was always worried how I was going to make it through another day at work.The end of Feb I got an email that was an answer to my prayers.I had found a clinical trial for an artificial disc being studied at Texas Back Institute.I sent the study coordinator an email and attached a copy of my MRI report.She got bavk to me in about 2 months and told me to call and make an appointment.got bavk to me in about 2 months and told me to call and make an appointmen artificial disc.I would be told after surgery if I got the disc or the fusion.I figured either way I was better off than having nothing done at all.When I got out of the Recovery Room and they took me to my regular room,my Husband was there and he told me I got the fusion.I had no pain,I walked early,my appetite was good and the next morning I was ready to go home!!! The first 3 days at home I did great,no pain.The fourth day the pain came,my neck,between my shoulders and the tops of my arms get these burning sharp pains if they are in a certain position.The pain in my neck and scapular area feel like muscle spasms.Today the pain is better,I actually noticed last night it was better.It's there but feels like it's less intense.I would like to hear from any of you who have had this same surgery.I go Monday the 30th for my first post op visit.Iam praying this surgery will give me some pain relief.I had gotten to the point that if I had to live with that pain everyday I just didn't want to be here anymore.I would be happy for 30-50% better! Sue [Non-text portions of this message have been removed] **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220439616x1201372437/aol?redir=http:%2\ F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2009 Report Share Posted April 1, 2009 My son was diagnosed at 2. So not too early by any means. Sounds to me like possible apraxia ... but my son did babble and very early said Mama very clearly. However only the one time (but I didn't think about the fact I didn't hear it again....) Liam also has never had trouble drinking from a straw (that i noticed anyway) nor blowing things; but did with licking ice cream, etc. I also never saw him smile (I thought he was shy ... now I know different!) However he has been listed as 'severe' , As for words, Liam would say Mama for everything and everybody. But NOT Dada. He also followed directions extremely well (better than his older brother who is 27 months older than him). He would say 'moah' for 'more'. With speech therapy (with a good therapist, FINALLY) he is doing rather well now. One other thing about apraxia ... children will say a word but they won't be able to say it again ... speech is very inconsistent (like mine saying Mama that one time). So I haven't answered your question at all, but I hope you get something from it! I know someone more qualified will answer you shortly. ________________________________ From: sleon05 <sleon05@...> Sent: Wednesday, April 1, 2009 2:43:26 PM Subject: [ ] New here My 24 mo old son is a puzzle to me. When he was younger I noticed the lack of speech so I went to EI at 16 months old and he has therapy but OT for focus and sensory. I think his sensory issues have almost but dissapeared but anyway no speech therapy was given . I have been fighting with them to get it but they are still hung up on when he was 16 months how delayed he was but now he is at or above in everything except expressive speech according to his new evaluation. They are now entertaining speech but nothing yet. I keep fighting becasue he has no words at all but receptive is good. He never really babbled as a baby. I didn't notice until my new little girl who is 8 weeks old coos and talks and my husband and I were like hey our little guy never really did that. He did have a permanent smile on his face and still does to this day. I should also say he overstuffs when eating. He eats great never choked but a terrible chewer. He can blow a bubble and do raspberrys. He says some animal sounds a few we would only know what he is saying. He can only really say the MMMM sound for " mama " and " more " HE makes the ahhhh sound for WOW. He like Wow Wow Wubzy. Anyway so my research brought me here but it seems no one really gets diagnosed this young. So I decided to try PROEFA as a test to see if it brings out some babbling. We started today. How do i know if this is just a speech delay or apraxia? My regional center is driving me crazy with this run around. I wish I knew where else to go for answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 hi, I also have a mouth stuffer! To the point that i had to tell school when he started that this is the way he eats, not to worry. We found that to this day (he's 9 now) he doesn't do meat very well due to his inability to chew properly. when he was 3 we had chicken for dinner one night, an hour later i noticed that something was in his mouth. well lo and behold it was a piece of chicken! he didn't even know it was in there. What i've done since then is make things like meatloaf or sausage because it's ground up. He's doing better with chicken, but when my husband and i have steak, i do a sausage for him. Keep up with the PROEFA, that's what kick started things for us. Also, add a PROEPA as well. the best dosage to start now would be 2 PROEFA and 1 PROEPA. It worked wonders for us. At first it wasn't that he was saying actual words, it was that he started attempting more sounds, that in turn helped with his words later. I would continue bugging for speech services. Don't let up. Try privately if you can, at least that way you'll have an evaluation to bring to the table for EI. Also, even if nobody wants to dx apraxia, try and find an SLP who is at least aware of it. That way treatments will be more appropriate and the dx will follow after that. hth sandy ________________________________ From: sleon05 <sleon05@...> Sent: Wednesday, April 1, 2009 2:43:26 PM Subject: [ ] New here My 24 mo old son is a puzzle to me. When he was younger I noticed the lack of speech so I went to EI at 16 months old and he has therapy but OT for focus and sensory. I think his sensory issues have almost but dissapeared but anyway no speech therapy was given . I have been fighting with them to get it but they are still hung up on when he was 16 months how delayed he was but now he is at or above in everything except expressive speech according to his new evaluation. They are now entertaining speech but nothing yet. I keep fighting becasue he has no words at all but receptive is good. He never really babbled as a baby. I didn't notice until my new little girl who is 8 weeks old coos and talks and my husband and I were like hey our little guy never really did that. He did have a permanent smile on his face and still does to this day. I should also say he overstuffs when eating. He eats great never choked but a terrible chewer. He can blow a bubble and do raspberrys. He says some animal sounds a few we would only know what he is saying. He can only really say the MMMM sound for " mama " and " more " HE makes the ahhhh sound for WOW. He like Wow Wow Wubzy. Anyway so my research brought me here but it seems no one really gets diagnosed this young. So I decided to try PROEFA as a test to see if it brings out some babbling. We started today. How do i know if this is just a speech delay or apraxia? My regional center is driving me crazy with this run around. I wish I knew where else to go for answers. __________________________________________________________________ Connect with friends from any web browser - no download required. Try the new Canada Messenger for the Web BETA at http://ca.messenger./webmessengerpromo.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hi, I was wondering if the " PROEPA " everyone talks about is the " EPA " on Nordic Naturals website? the link I found is here http://www.nordicnaturals.com/en/Products/Product_Details /98/proddetail.php?ProdID=1498 & MainID=1414 ________________________________ From: sandy lehmann <mommie2chris@...> Sent: Thursday, April 2, 2009 9:24:53 AM Subject: Re: [ ] New here hi, I also have a mouth stuffer! To the point that i had to tell school when he started that this is the way he eats, not to worry. We found that to this day (he's 9 now) he doesn't do meat very well due to his inability to chew properly. when he was 3 we had chicken for dinner one night, an hour later i noticed that something was in his mouth. well lo and behold it was a piece of chicken! he didn't even know it was in there. What i've done since then is make things like meatloaf or sausage because it's ground up. He's doing better with chicken, but when my husband and i have steak, i do a sausage for him. Keep up with the PROEFA, that's what kick started things for us. Also, add a PROEPA as well. the best dosage to start now would be 2 PROEFA and 1 PROEPA. It worked wonders for us. At first it wasn't that he was saying actual words, it was that he started attempting more sounds, that in turn helped with his words later. I would continue bugging for speech services. Don't let up. Try privately if you can, at least that way you'll have an evaluation to bring to the table for EI. Also, even if nobody wants to dx apraxia, try and find an SLP who is at least aware of it. That way treatments will be more appropriate and the dx will follow after that. hth sandy ____________ _________ _________ __ From: sleon05 <sleon05 (DOT) com> @groups. com Sent: Wednesday, April 1, 2009 2:43:26 PM Subject: [childrensapraxiane t] New here My 24 mo old son is a puzzle to me. When he was younger I noticed the lack of speech so I went to EI at 16 months old and he has therapy but OT for focus and sensory. I think his sensory issues have almost but dissapeared but anyway no speech therapy was given . I have been fighting with them to get it but they are still hung up on when he was 16 months how delayed he was but now he is at or above in everything except expressive speech according to his new evaluation. They are now entertaining speech but nothing yet. I keep fighting becasue he has no words at all but receptive is good. He never really babbled as a baby. I didn't notice until my new little girl who is 8 weeks old coos and talks and my husband and I were like hey our little guy never really did that. He did have a permanent smile on his face and still does to this day. I should also say he overstuffs when eating. He eats great never choked but a terrible chewer. He can blow a bubble and do raspberrys. He says some animal sounds a few we would only know what he is saying. He can only really say the MMMM sound for " mama " and " more " HE makes the ahhhh sound for WOW. He like Wow Wow Wubzy. Anyway so my research brought me here but it seems no one really gets diagnosed this young. So I decided to try PROEFA as a test to see if it brings out some babbling. We started today. How do i know if this is just a speech delay or apraxia? My regional center is driving me crazy with this run around. I wish I knew where else to go for answers. ____________ _________ _________ _________ _________ _________ _ Connect with friends from any web browser - no download required. Try the new Canada Messenger for the Web BETA at http://ca.messenger./webmessengerpromo.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Yes. It's the one I use... From: [mailto: ] On Behalf Of Sent: Thursday, April 02, 2009 12:47 PM Subject: Re: [ ] New here Hi, I was wondering if the " PROEPA " everyone talks about is the " EPA " on Nordic Naturals website? the link I found is here http://www.nordicnaturals.com/en/Products/Product_Details /98/proddetail.php?ProdID=1498 & MainID=1414 ________________________________ From: sandy lehmann <mommie2chris@...<mailto:mommie2chris%40.ca>> To: <mailto: %40\ > Sent: Thursday, April 2, 2009 9:24:53 AM Subject: Re: [ ] New here hi, I also have a mouth stuffer! To the point that i had to tell school when he started that this is the way he eats, not to worry. We found that to this day (he's 9 now) he doesn't do meat very well due to his inability to chew properly. when he was 3 we had chicken for dinner one night, an hour later i noticed that something was in his mouth. well lo and behold it was a piece of chicken! he didn't even know it was in there. What i've done since then is make things like meatloaf or sausage because it's ground up. He's doing better with chicken, but when my husband and i have steak, i do a sausage for him. Keep up with the PROEFA, that's what kick started things for us. Also, add a PROEPA as well. the best dosage to start now would be 2 PROEFA and 1 PROEPA. It worked wonders for us. At first it wasn't that he was saying actual words, it was that he started attempting more sounds, that in turn helped with his words later. I would continue bugging for speech services. Don't let up. Try privately if you can, at least that way you'll have an evaluation to bring to the table for EI. Also, even if nobody wants to dx apraxia, try and find an SLP who is at least aware of it. That way treatments will be more appropriate and the dx will follow after that. hth sandy ____________ _________ _________ __ From: sleon05 <sleon05 (DOT) com> @groups. com Sent: Wednesday, April 1, 2009 2:43:26 PM Subject: [childrensapraxiane t] New here My 24 mo old son is a puzzle to me. When he was younger I noticed the lack of speech so I went to EI at 16 months old and he has therapy but OT for focus and sensory. I think his sensory issues have almost but dissapeared but anyway no speech therapy was given . I have been fighting with them to get it but they are still hung up on when he was 16 months how delayed he was but now he is at or above in everything except expressive speech according to his new evaluation. They are now entertaining speech but nothing yet. I keep fighting becasue he has no words at all but receptive is good. He never really babbled as a baby. I didn't notice until my new little girl who is 8 weeks old coos and talks and my husband and I were like hey our little guy never really did that. He did have a permanent smile on his face and still does to this day. I should also say he overstuffs when eating. He eats great never choked but a terrible chewer. He can blow a bubble and do raspberrys. He says some animal sounds a few we would only know what he is saying. He can only really say the MMMM sound for " mama " and " more " HE makes the ahhhh sound for WOW. He like Wow Wow Wubzy. Anyway so my research brought me here but it seems no one really gets diagnosed this young. So I decided to try PROEFA as a test to see if it brings out some babbling. We started today. How do i know if this is just a speech delay or apraxia? My regional center is driving me crazy with this run around. I wish I knew where else to go for answers. ____________ _________ _________ _________ _________ _________ _ Connect with friends from any web browser - no download required. Try the new Canada Messenger for the Web BETA at http://ca.messenger./webmessengerpromo.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Welcome and be calm. :0) (I know it is hard.) You have legitimate concerns, it sounds like. With low tone, might " I " suggest getting a therapist who does the Beckman Oral Motor method? > > Hi- > I recently stumbled on this site- and seriously think I have discovered my son is severly apraxic. (!!!) > > Our story quickly... > Adam has always been hypotonic and started PT, OT, and ST at one year. He has been tested had every medical test and no answers were found. I've always expressed my concern about Adam not being aware of his mouth and how to use his tongue and lips. Our ST keeps telling me she can't make him talk, he babbles, and he'll talk eventually. After reading this site, I have to disagree!! We've also heard a lot of words (said clearly and in the right context), never to be heard again. Adam just turned 3, and has no words but will sign for " more " and " all done, " and will shake his head for yes and no. > Now I am kicking myself that I didn't get better help sooner. But can anyone help? What should I do for my son? What speech therapy works best? Should I try the EFA's? > I am frantic. Thanks, > amy, mom to Adam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Just because it is law does not mean they do it, as we are in litigation right now because my son is homebound and they do not want to give him in-home services. (Despite THREE doctors letters.) In school services are not as hard, but also we had a school practically refuse and strongly discourage us from bringing our son when he was 3. (Who wants to leave their child where they are not wanted?) > Yep I'm in the US. But unfortunately preschool is considered optional and they only have to provide appropriate education that the law requires. And the law here in PA technically doens't require children to be in school until age 8. So anything before that the school district is of the opinion they dont have to, so they wont. Now if she is enrolled in Kindergarden when she's 5, then they'll start working with her becuase she's in the system already and that would be discrimination if they dont. So until she's 5 we're on our own. Luckily the county has wonderful programs for younger kids with their therapies, they're teamed with with ARC and United Cerebral Palsy. > > Toni > [ ] Re: New here > > > Toni, > > Welcome! > > Assuming you are in the US. Your school district has to provide an > appropriate education for your kids. If it means out districting then > get your ducks in a row and have them pay. > > denise > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2009 Report Share Posted April 2, 2009 Hi ! I know it's confusing but there are two lines for Nordic -the commercial line and the professional line. On the Nordic site you'll only find the ProEPA under " Doctors/Medical " and for some reason the only " Pro " product available to the public on Nordic's site is the ProEFA. Other than that you can not order the Pro line direct from Nordic unless you are a medical professional. In general the Pro line is a bit more economical than the commercial line which is the only difference. Also the ProEFA comes wth 90 capsules per bottle to the Omega 369's 60. You can find the commercial line (like the " EPA " ) in stores like Whole Foods and online. You can also find the Pro line such as ProEPA and ProEFA online. You will typically find a better price outside of Nordic as I happen to know most of the authorized Nordic merchants are allowed to offer a set percentage discount...and 'some' offer free shipping as well :-) May want to take a peek at http://www.speech411.com ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 Marilyn, I'll leave treatment advice up to others except to have your sister or whomever is in contact with the Oncologist, ask whether or not the chemotherapy is to 'cure' or simply Palliative? If to 'cure' then the question of what percentage of people has this Oncologist cured for more than five years? Be very specific in order to get specific answers. The answer may help her to make an informed decision. Joe C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2009 Report Share Posted April 5, 2009 If the colon cancer has spread to the liver, it is, by definition, stage 4. If it is all over the liver, it is, by definition, very advanced stage 4. I too have stage 4 colon cancer, but I don't know how widespread it is. (As far as I know it might be gone by now!) 9 months ago my doctor told me that there was nothing they could do for me, but perhaps extend my life for a year or so with chemo. My choice was that this was not acceptable to me. Given that the doctors gave me odds of zero percent, I figured that alternative methods offered higher odds. So that is how I am going. But I cannot tell you what to do. I just went by cold hard odds. Zero percent with chemo, and apparently higher odds, from what I've read, with alternative approaches. What can I say? Oh yes -- there IS apparently currently a cure for colon cancer. But it will not enter human trials until the end of 2010. It is the gold nanano-particle approach, and it works by all evidence so far. My goal is to (at the least) hang on until 2011 or 2012 when this technology may become available. > > My sister recently found out she had colon cancer that has spread to her liver. Her liver is completely covered. She doesn't know if she wants to do the chemo just yet. She's looking at all areas. We all have the spiritual support from our church family and praying for healing or guidance for the right decision. > Any information would be awesome. > Thanks for taking the time to read this. > God Bless! > Marilyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 Hi Bonnie, How did you start with the eye pain? Is it in one eye? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 -Hi , I am caregiver to my husband who has stage III colon cancer. Conventional treatment for colon cancer liver mets is very invasive, it can involve neoadjuvant chemo with the intent of shrinking tumors and make the disease resectable...also, a treatment called Sir-Spheres can be used.Some patients survive this treatment and are put into remission, but very rarely the remission is long lasting and many patients relapse quickly. In holistic approach, special diet (Budwig and the like) is mandatory, also, energy medecine and detoxification... There are many, many non-conventional treatments that have been associated with curing cancer , but every patient is different and a treatment protocol cannot be used for everyman. I am familiar with some alternative therapies used in my country and in Europe, in the US there are other therapies... I do not know if and how these non conventional therapies have been evaluated, generally there are only anecdotal case-histories. Conventional therapies are evaluated with randomized controlled trials and these trials are published, therefore we know for sure that the conventional treatment is palliative and very toxic... good luck with your choices karla -- In , " amazing_grace1962 " <macn@...> wrote: > > My sister recently found out she had colon cancer that has spread to her liver. Her liver is completely covered. She doesn't know if she wants to do the chemo just yet. She's looking at all areas. We all have the spiritual support from our church family and praying for healing or guidance for the right decision. > Any information would be awesome. > Thanks for taking the time to read this. > God Bless! > Marilyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Bonnie, the patient insert for Humira clearly states that a rare event is multiple sclerosis-like symptoms. It's my understanding they almost always go away once the drug is stopped. Yes, you should take this seriously but don't panic. " S. Zorzi " <szorzi_1999@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Thank you for your reply. Right now the odds for my sister is very slim from the doctor. So she is looking for other options. Please share what alternative methods you are using. From: jrrjim Sent: Sunday, April 05, 2009 If the colon cancer has spread to the liver, it is, by definition, stage 4. If it is all over the liver, it is, by definition, very advanced stage 4. I too have stage 4 colon cancer, but I don't know how widespread it is. (As far as I know it might be gone by now!) 9 months ago my doctor told me that there was nothing they could do for me, but perhaps extend my life for a year or so with chemo. My choice was that this was not acceptable to me. Given that the doctors gave me odds of zero percent, I figured that alternative methods offered higher odds. So that is how I am going. But I cannot tell you what to do. I just went by cold hard odds. Zero percent with chemo, and apparently higher odds, from what I've read, with alternative approaches.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 My sister is looking all areas. Thanks for your information. I wish you and your husband the best! From: minolfa Hi , I am caregiver to my husband who has stage III colon cancer. Conventional treatment for colon cancer liver mets is very invasive, it can involve neoadjuvant chemo with the intent of shrinking tumors and make the disease resectable...also, a treatment called Sir-Spheres can be used.Some patients survive this treatment and are put into remission, but very rarely the remission is long lasting and many patients relapse quickly. In holistic approach, special diet (Budwig and the like) is mandatory, also, energy medecine and detoxification..... good luck with your choices karla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 I believe that - if you read the precautions included with any of the biologics, you will find that they can cause MS type symptoms that go away pretty quickly after you go off the drug. Check your warning labels (if you didn't keep them, you can find them on-line) and let your eye doctor know immediately. Also contact your rheumatologist immediately (I assume you have one); it may not be MS but the MS type symptoms and if it is, you will need to stop the offending drug(s) immediately before permanent damage is done. Joanna Hoelscher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2009 Report Share Posted April 7, 2009 Thanks for your reply. Yes I've read the warnings several times on the Humira, but i never thought it would be me. But then again with my crazy diagnostic luck, I should have thought better of that idea-ha. If thats the case, I wonder what are the alternatives for medications? I have to be on something. My doctor tried to cut my Arava to every other day, and it was just a couple of weeks before my hips hurt so bad I could barely walk- (and I was on Humira too). So now I'm back on the everyday schedule. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 Bonnie - both Enbrel and Remicade are TNF-alpha inhibitors like Humira and have similar possible side effects. There is a new biological on the horizon, approved in Europe already as Stelara, which most doctors expect to be approved in the U.S. sometime this summer. It addresses a different part of the immune system - IL-23 - and may not have the same effects as the TNF-alpha inhibitors. That may be an option for you once it's approved. In fact it's being tested to treat MS as well as PA. Ask your doctor about it - it's actual name is ustekinumab. " S. Zorzi " <szorzi_1999@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 > > Hi after exploring Bee's incredibly informative website I have joined this group. I have had horribly debilitating health problems and when I was detoxing mercury I remember learning a thing or two about candida. Now I am ready to focus on it directly. I haven't started anything yet but I was thinking of doing the coconut oil with the oregano oil. I don't know if I can follow that diet perfectly. How long does a person have to eat like that for the candida to go away? +++Hi there. Welcome to our group. What is your name please? You wouldn't start with oregano oil; only start with unrefined coconut oil, which is the best antifungal and part of my diet. Please ensure you read these two articles which explains my program, and how to get started: http://www.healingnaturallybybee.com/articles/intro2.php http://www.healingnaturallybybee.com/articles/intro1.php It takes 1 month of natural healing for every year you've been unhealthy, and for most people nowadays that is since before they were born. For encouragement see these Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2009 Report Share Posted April 8, 2009 Hi, my name is . My question is more so directed at how long it takes to be on the diet of no grain, fruit, dairy, bacon etc and the antifungals before the candida is overcome. If I have had health problems my whole life, do I have to be on this diet for 36 months? I already know that won't happen. A month or so maybe. I have been eating natural meat(including grassfed) and organic foods for five years now with very limited sugar intake (special occasions with stuff like maple syrup and agave syrup sweetened) but I do very much like yogurt, kefir, berries, sprouted grains and bacon from whole foods which is smoked and therefore advised against. For a while I was on a coconut kick but got completely sick of the flavor to where I haven't had coconut oil in about a year. I am trying to address this assumption that I have candida based on the questionaire. My issues are complex and I look at healing holistically and being consumed about food again is a step back in healing for me but I am interested in making some middle of the road changes like adding some antifungals and temporarily giving up some yogurt and sprouted grains. -- In , " Bee " <beeisbuzzing2003@...> wrote: > > > > > > Hi after exploring Bee's incredibly informative website I have joined this group. I have had horribly debilitating health problems and when I was detoxing mercury I remember learning a thing or two about candida. Now I am ready to focus on it directly. I haven't started anything yet but I was thinking of doing the coconut oil with the oregano oil. I don't know if I can follow that diet perfectly. How long does a person have to eat like that for the candida to go away? > > +++Hi there. Welcome to our group. What is your name please? > > You wouldn't start with oregano oil; only start with unrefined coconut oil, which is the best antifungal and part of my diet. > > Please ensure you read these two articles which explains my program, and how to get started: > http://www.healingnaturallybybee.com/articles/intro2.php > http://www.healingnaturallybybee.com/articles/intro1.php > > It takes 1 month of natural healing for every year you've been unhealthy, and for most people nowadays that is since before they were born. > > For encouragement see these Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php > > The best in health, Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 Hi , When Bee refers to natural healing, she is meaning her entire program (diet + supplements, including antifungals like coconut oil, etc.), therefore, like she wrote, it will take 1 month for every year you have been ill in order for your body to heal. You will need to be on this program for 36 months if you are 36 years old and have been unhealthy your entire life. Unfortunately, there are no quick fixes when it comes to true health, and being on the diet only a couple of months, doing only a few 'middle of the road changes' will not heal your candida overgrowth. This program focuses on building up the immune system and that takes time and the right foods/supplements. If you start to reintroduce toxic foods or foods, like sugar, that feed candida, after a month or two you will just continue to feed it and your symptoms will come back. We all like(d) the foods you describe, but they are what got us into this mess in the first place. Everyone with candida suffers from a sugar addiction. Focusing on your diet is the *only* way to get your body healthy again, so you shouldn't look at it as taking a step backwards. In fact, it's a step forward. If you are sick of the flavour of coconut oil, you could try the expeller-pressed coconut oil that has many of the same benefits, but does not have the coconut flavour. Tropical Traditions is a good brand that has flavourless expeller-pressed oil. I would encourage you to give this program a try. I, too, will need 36 months on this program. I have been on it for 10 months now and that time has gone by quickly. I feel so much better now and in fact I barely recognize myself anymore. I'm not the same girl who could barely get out of bed only to nap all day on the couch anymore. This is really a life-changing program! Good luck! > > Hi, my name is . My question is more so directed at how long it takes to be on the diet of no grain, fruit, dairy, bacon etc and the antifungals before the candida is overcome. If I have had health problems my whole life, do I have to be on this diet for 36 months? I already know that won't happen. A month or so maybe. I have been eating natural meat(including grassfed) and organic foods for five years now with very limited sugar intake (special occasions with stuff like maple syrup and agave syrup sweetened) but I do very much like yogurt, kefir, berries, sprouted grains and bacon from whole foods which is smoked and therefore advised against. For a while I was on a coconut kick but got completely sick of the flavor to where I haven't had coconut oil in about a year. I am trying to address this assumption that I have candida based on the questionaire. My issues are complex and I look at healing holistically and being consumed about food again is a step back in healing for me but I am interested in making some middle of the road changes like adding some antifungals and temporarily giving up some yogurt and sprouted grains. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2009 Report Share Posted April 9, 2009 > > If I have had health problems my whole life, do I have to be on this > diet for 36 months? I already know that won't happen. A month or so > maybe. . . My issues are complex and I look at healing holistically > and being consumed about food again is a step back in healing for me > but I am interested in making some middle of the road changes like > adding some antifungals and temporarily giving up some yogurt and > sprouted grains. Once upon a time, there was a lady who was in debt. She had credit card bills, household bills, car payments, etc. And it was getting WORSE every month. She was very UNCOMFORTABLE. Her friends told her about the great veterinary clinic in their neighborhood that was hiring people to be veterinary nutritional advisors. All you needed to do was get your Masters Degree in Veterinary Nutrition, and you'd have an excellent career for life. Several people had already done it – there were many SUCCESS STORIES about them. They were feeling SO GOOD, and had a bright future ahead of them. The lady was a lover of animals and food, and realized this would be a great way to get out of debt. A career she would love for the rest of her life and NO MORE pain or discomfort of debt. But she was 36 years old. She said she didn't have 3 years to invest in going back to college. And she was so ADDICTED to her current lifestyle, even if it was causing more and more DISCOMFORT every day. She said it would be taking a step backwards. She said she was willing to read some books for a month, tops, and maybe even be willing to attend one class, but she didn't want to invest any more time into her comfort or happiness or her future than that. And she definitely didn't want to make any long-term changes in the way she lived, even though she was getting more and more UNCOMFORTABLE every day. Of course you know what happened. A year later she was more in debt than ever, and in much greater DISCOMFORT because of it. Her friends were one year into the process and were feeling so hopeful and happy already. They had already experienced wonderful changes in their lives. They had proven to themselves that they had power and control in their lives, and that felt so excellent. They could see a bright future ahead of them – FREE OF PAIN, and open to so many NEW OPPORTUNITIES in life. Moral of the Story: Sometimes it's hard to see the bondage in our lives. Sometimes we can't see that we're TIED TO, ADDICTED TO foods that are unhealthy for us, and no matter how much DISCOMFORT our eating habits cause us, we're not willing to take the time or energy to change. And that's a shame, because it means that the food is in control of us, and we're not in control of the food. So many of us are SCARED to give up some foods we've become addicted to – and we can't even imagine a life without them. It's time we started looking at food differently. It's time we started to realize that there needs to be more important things in our lives than food that causes us to be unhealthy. We all deserve to look forward to a future of COMFORT and OPPORTUNITIES. But FIRST we have to BE ABLE to see that making a change in our eating habits is a GOOD THING, not a punishment. Lis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 I would question the interpretation of her testing. The profile for someone with a learning problem is having high scores mixed with low scores. There is no such thing as "too smart" to have a learning disability. I am not sure why that myth still exists. Many people with learning disabilities are extremely smart. My ds is one example of many - he has HFA and is gifted at the same time. He has Learning problems in many areas but pockets of strengths that are amazing. It is such a mixed bag. One issue that is rather common for people with autism is to have skills that are uneven. You might consider requesting an "IEE" (independent educational evaluation) which is an evaluation that the school pays for with someone outside of the school system - a neutral 3rd party. That way you can get (hopefully) someone to evaluate her scores correctly and give you an idea of what kinds of help she needs. Roxanna "Suppose you were an idiot. And suppose you were a member of Congress. But I repeat myself." ~ Mark Twain ( ) New here Hi, I'm kinda new here. I joined a while ago because my oldest granddaughter is an auspie. She is over 23 now so out of my hands mostly. She just got a real job and I am hoping this will be good for her. It is the kind of job where each thing is delineated and she can be told exactly what to do in every situation. This is just what she needs. She gets totally lost when it comes to living in the real world of decision making and initiating action. My problem now is her youngest sister, 16 yrs. I have had to do much of the raising of the 4 sisters since my daughter became incapacitated due to drugs and other addictions. I have had DGD (dear granddaughter) for 3 years now. She is much like her older sister but because the older one is so obviously disabled it made it hard to see this one's disabilities. She was tested last year and got an IEP but not a 504. They said she was just too smart. She was off the charts in some areas and way below in others. They can't help. It is an alternative high school. Of course all the teachers are also auspies not really but maybe borderline. She has been failing most things for years now and it looked like some oppositional things but reading here makes me wonder. She definitely has attachment issues because both her parents have abandoned her. Lately she has taken a turn for the worse and I'm worried. We are presently getting her some neurofeedback, a series of 20 treatments that might help her be more in balance in her brain. The last year has been bad where she seems to be withdrawing into her own little world of fantasy. She brags a lot too. Does anyone have that problem? One more thing, she did have a job for several months and had a very good attitude with work. We had decided that if worse comes to worse at least she could get a job and not starve. So I just want to see what I might learn here. Thanks for listening.Jill No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.23/2016 - Release Date: 03/21/09 17:58:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Hi, we did ABA with my now 12 yo ds with great success. We started his program at age 3. Yes, it is a good program for kids at any age and not just for kids under 3. It is a way to teach, a methodology. It isn't just one program. They evaluate where the child is at and then go step by step through the skills process, teaching by breaking things down into single steps and then stringing them together. It can also be called "discrete trial" because each learning "moment" or "session" is a discrete trial. You have a specific thing to teach, a specific response you want to see, a specific goal. Each time you present the material and get a response it is called a "trial." You reward correct responses because doing so encourages that correct response again. Then you also work, once the skill is mastered, to generalize that skill into ones real life. It is also a great way to teach because it assumes that if the kid is not learning something, you have to evaluate why and change directions or find a way to teach them that will connect. You don't just keep throwing the same thing at the person in the same way until it sticks. You have to constantly take data and evaluate what is working, what is not working, etc. In many schools, they teach by providing information and also by letting kids make assumptions and mistakes. But ABA is completely opposite. You don't wait for the person to make a mistake. You provide correct information up front and teach it. It can be applied to anything you want to teach - from learning to look when ones name is called to teaching how to add and subtract or how to write a paper, how to make the bed, anything. It worked so well for my own ds because he needed specific instruction. Like many people with autism, he wasn't learning by watching others or being exposed to situations. He's very smart and a fast learner but he was missing so much in skills and information. So we went through things systematically and he did great with it. Roxanna "Suppose you were an idiot. And suppose you were a member of Congress. But I repeat myself." ~ Mark Twain ( ) New here> > Date: Friday, March 20, 2009, 4:49 AM> > > > > > > Hello,> I just wanted to introduce myself. I am a mom to a recently dx'ed HFA son who's 3 1/2. I'm still going through all the emotional stuff, while trying to find him services in an area with surprisingly few available! I am also trying to figure out just how much needs, since his dx is HFA I do not think he needs 40+ hours per week. > I can see this is a lively group, and I'm sure I'll be posting lots as I try to find my way through it all.> > TJ> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.238 / Virus Database: 270.11.24/2018 - Release Date: 03/23/09 06:52:00 Quote Link to comment Share on other sites More sharing options...
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