Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 At 08:35 AM 9/27/2009, you wrote: > > >Can anyone help with experience on what a " normal " postop course >should be? How long does it take this to quiet down? Her sciatica >was gone after surgery but the back pain was unreal. After having to >travel in the car for a postop wound check, the buttock pain came >back but not the leg. That was 5 days ago. > >The anxiety that goes along with all this is just as bad as the pain >(and feeds the pain I'm sure). I know everyone is different but some >feedback on what to expect after surgery would probably help her. > >Thank you. > >Eleano The length of postop pain depends on the type of operation and the skill of the surgeon, plus as you stated the anxiety. I've had 3 back surgeries. The first the post op pain never went away because the operation was a failure. The second I had fusion and a pretty quick recovery. Same with the 3rd. The anxiety really feeds the pain, tensing up anticipating the pain. I know for me for operations 2 & 3 the best thing was to get moving, where a back brace, get in and out of bed correctly using all the tricks they taught me, and not be afraid to ask for and use pain medication. Another thing that really effects the recovery is to keep your bowels moving, the pain medication, lying around, and the anethesia really blocks you up and causes pain. Bottom line to answer your question she should start feeling some relief by about 10 days -2 weeks if I remember correctly. There is pain from them cutting through muscles if they did it the old fashion way. If they did it macroscopily then much less pain. Now I still have pain 10 years later in my butt cheek. They scraped bone off my hip to use for the fusion. They no longer do that and use donor bone or artificial bone. Hope this helps, Dave BTW I was operated on at ages 23, 27, and 40. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 Welcome ine! I am from GA. I am sorry you have problems that bring you here but this is a good place to get answers and support. Jane H. From: rosedragon <rosedragon@...> Subject: new here neck pain Date: Friday, October 2, 2009, 9:04 AM Hi everyone. I'm new here so please bear with me as I try and explain through upcoming emails what's going on with me. First off...is there anyone here in Michigan? We have about a two year waiting period because things are so backed up in this state. Has anyone had an attorney file an " on the record " ? ine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 Thanks Jane. I've got a lot of questions. ine new here neck pain Date: Friday, October 2, 2009, 9:04 AM Hi everyone. I'm new here so please bear with me as I try and explain through upcoming emails what's going on with me. First off...is there anyone here in Michigan? We have about a two year waiting period because things are so backed up in this state. Has anyone had an attorney file an " on the record " ? ine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 It sounds as if you are doing a wonderful job with him. Wow, the memorization....that is great...wish my son would be that! LOL. My son is the opposite...he needs to see a picture to understand something...my son is a visual learner. As for mouthing and chewing everything...would your son chew gum? My son does and it helps. They now say chewing gum while taking a test helps the children ...stimulates their brain and they get better grades. The other thing is to find something safe that he can chew on or suck...there is a site (sensory integration) that sells such items. I think he probably needs to chew or suck to soothe himself. I am sure someone in this group has that site written down...if not google it. Keep up the great work...you are doing a super job! Kudos to you. Jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: <ladle24@...>Subject: ( ) New Here Date: Thursday, October 1, 2009, 9:52 PM Hi,While we are on a waiting list for therapy for our son, I have been looking around to see what elase I can find out on my own.About 6 months ago, our 5yo ds was dx with Aspergers. All along, I thought I was just a bad parent, and that my son, the middle of three boys, was just VERY immature. Watching him at the playground, and the way he talks to people, and the impulsivity, I finally realized that he wasn't just going to grow out of it.At 5yo, he is reading, writing, and proficient in math (four basic operations), but has a hard time with spoken words...he speaks tons, but he is at right angles to the world in the things he says, and his inability to answer questions, even about things he knows. I didn't know until the evaluations that he wasn't understanding pictures well either, and now that he is reading, I feel like we finally have a way to help him. We could talk about something 3,000 times, and not have it stick, but now when he sees the words, he understands. It is kind of creepy as the parent, since this kind of wiring seems so backwards.He is an information junkie, especially if it contains numbers. He knows all the presidents, all the states, the multiplication table, etc., and every so often, I have to try to find a new, compatible special interest for him to memorize or I will go stark raving mad if I have to hear about all the presidents (or whatever it is at the moment) one more time.Because he has mastered much of the academic stuff he needs without anyone teaching him, I am keeping him at home for school two days a week and working almost exclusively on language and vocabulary development with him this year. I feel like we are making HUGE progress in this area. The therapists at the school were kind enough to show me a lot of the materials they use, and help me get started in researching what to do with him.Each problem area with my ds goes through cycles, and right now he is having major oral stimulation issues again. He has always chewed, licked, eaten almost anything he gould get his mouth on. Instead of the usual stimming things-rocking, headbanging, or what have you, his seems to be biting things. He bites things, adn himself when he is under duress. And sometimes he just bites, licks, eats everything for no apparent reason. As a toddler he was very stressful to deal with... he could figure out how to get and eat the plants on top of the fridge. There was nowhere high enough where he couldn't figure out how to get it, so I felt like I was always callig poison control for something, even though I made sure we didn't keep any terrible chemical cleaners around. He chewed holes in the vacuum cleaner hose, and he licked any liquid on the ground outside, so we could never let him out of his stroller. He was always eating everything off the bottom of his shoes (while he was wearing them), always picking things out of the carpet to eat, and so on. He would climb to get nails, tacks, and pins to put in his mouth. He drank any liquid he could...fish tank water, dirty dish water, toilet water, and many others. He is always licking doorknobs, cars, playground equipment, etc. As a result, he used to be sick all the time, but at least thankfully, his immune system seems to have caught up with him, and he doesn't get sick quite as much. His latest thing is chewing wood. He is chewing his bed rails, and the back of his guitar. There is a major chunk of his bedrail missing. We keep putting tape over it to cover it, but he chews through the tape. This is one area where i really wish I knew what to do.He seems to be very much of a sensory-seeker. ..loves flying through he air, jumping off things, loves loud noises (think setting off alarms, mic feedback), etc.For us, it feels like figuring out the language problems are about 1/3 of the battle, and the sensory issues the second third. It seem s like the meltdowns diminish in proportion to how we figure out how to deal with the language and sensory problems. But also, the theory of mind bit seems to cause a lot of problems. I feel like if we could get inside his head and help him understand things, that would solve a lot too.Besides all the craziness, he is a really sweet and fun-loving little boy...when his world isn't being disturbed by any of 10,000 possible irritants ;-). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2009 Report Share Posted November 10, 2009 My son began having seizures during puberty. We also put him on seizure meds and the doc kept increasing the dose. He was basically a zombie for those three years. Later, an autism specialist suggested that we start backing him off the meds. He told us later (by typing) that the meds just covered up the seizures but he still had them. Years later, Dr. Amy told us to increase his taurine levels; we never saw a seizure after that. Mercury lowers the taurine levels and thus the seizure threshold--so I'm told. Barb [ ] new here Hello, I am actually new to this group but have really enjoyed reading the posts. My son is 13 with Asperger's and started having seizures about 3 years ago. He is of course on seizure medication (trileptal) and other medication for anxiety and ADD. He does fairly well but has noticable difficulties. I would love to get him off as much of this medicine as possible. I actually put off medicine as long as I could but his anxiety and ADD began to really impede his daily life. I have been doing a lot of research on chelation but don't know where to start. Plus I am not sure if safe because of his seizures. Anyone in the same boat? Would love to know what you think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Barb, Did you do the supplements or chelaton that I have been reading about and has it helped? I am trying to keep up but I have to admit am pretty confused. Thanks, ________________________________ From: jromkema <jromkema@...> Sent: Tue, November 10, 2009 10:51:25 PM Subject: Re: [ ] new here  My son began having seizures during puberty. We also put him on seizure meds and the doc kept increasing the dose. He was basically a zombie for those three years. Later, an autism specialist suggested that we start backing him off the meds. He told us later (by typing) that the meds just covered up the seizures but he still had them. Years later, Dr. Amy told us to increase his taurine levels; we never saw a seizure after that. Mercury lowers the taurine levels and thus the seizure threshold--so I'm told. Barb [ ] new here Hello, I am actually new to this group but have really enjoyed reading the posts. My son is 13 with Asperger's and started having seizures about 3 years ago. He is of course on seizure medication (trileptal) and other medication for anxiety and ADD. He does fairly well but has noticable difficulties. I would love to get him off as much of this medicine as possible. I actually put off medicine as long as I could but his anxiety and ADD began to really impede his daily life. I have been doing a lot of research on chelation but don't know where to start. Plus I am not sure if safe because of his seizures. Anyone in the same boat? Would love to know what you think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Welcome to the list. Your'e in the right place. If your son has ANY mercury amalgam dental fillings (ones that look silver, gray, or black) you have to have those safely removed using proper protocol before you can chelate. Where to start? Read here, see if your local library has copies of Andy Cutler's books, order a DDI (Doctor's Data, Inc) hair elements test through DLS (Direct Lab Services) unless you live in NYS. If you mention this group they'll give you a discount. S S new here Posted by: " erinpruitt@... " erinpruitt@... erinpruitt@... Tue Nov 10, 2009 7:15 pm (PST) Hello, I am actually new to this group but have really enjoyed reading the posts. My son is 13 with Asperger's and started having seizures about 3 years ago. He is of course on seizure medication (trileptal) and other medication for anxiety and ADD. He does fairly well but has noticable difficulties. I would love to get him off as much of this medicine as possible. I actually put off medicine as long as I could but his anxiety and ADD began to really impede his daily life. I have been doing a lot of research on chelation but don't know where to start. Plus I am not sure if safe because of his seizures. Anyone in the same boat? Would love to know what you think. ------------------------------------------------------------ Best Weight Loss Program - Click Here! Weight Loss Program http://tagline.excite.com/c?cp=EG6TBSJnl9zYL6MHJawMngAAKZRr_2tbQBaG-3loGUsiTeHAA\ AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAAEUs9iyrs= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Thanks. Fortunately, he does not have any of those kinds of fillings. I am trying to keep up with everything on here. I will definitely get Andy's book because every where I ask he seems to be the one they refer me too. ________________________________ From: Shepard Salzer <_Shepard@...> autism treatment Sent: Wed, November 11, 2009 12:45:53 PM Subject: [ ] Re: new here  Welcome to the list. Your'e in the right place. If your son has ANY mercury amalgam dental fillings (ones that look silver, gray, or black) you have to have those safely removed using proper protocol before you can chelate. Where to start? Read here, see if your local library has copies of Andy Cutler's books, order a DDI (Doctor's Data, Inc) hair elements test through DLS (Direct Lab Services) unless you live in NYS. If you mention this group they'll give you a discount. S S new here Posted by: " erinpruitt@rocketma il.com " erinpruitt@rocketma il.com erinpruitt@rocketma il.com Tue Nov 10, 2009 7:15 pm (PST) Hello, I am actually new to this group but have really enjoyed reading the posts. My son is 13 with Asperger's and started having seizures about 3 years ago. He is of course on seizure medication (trileptal) and other medication for anxiety and ADD. He does fairly well but has noticable difficulties. I would love to get him off as much of this medicine as possible. I actually put off medicine as long as I could but his anxiety and ADD began to really impede his daily life. I have been doing a lot of research on chelation but don't know where to start. Plus I am not sure if safe because of his seizures. Anyone in the same boat? Would love to know what you think. ------------ --------- --------- --------- --------- --------- - Best Weight Loss Program - Click Here! Weight Loss Program http://tagline. excite.com/ c?cp=EG6TBSJnl9z YL6MHJawMngAAKZR r_2tbQBaG- 3loGUsiTeHAAAYAA AAAAAAAAAAAAAAAA ADNAAAAAAAAAAAAA AAAAAAEUs9iyrs= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2009 Report Share Posted December 25, 2009 I'm sure you will need testing if you haven't already had it done. Your adrenal functions and antibodies and Free T3, Free T4 and Reverse T3 as well as TSH. You sound like you might be hypothyroid, but you could also have an adrenal problem. We can't actually say exactly what is going on without reading the tests results along with the ranges that appear on the test results sheet which you must get a copy. Most people are probably with their families and busy with the holiday. Welcome to the group and have a Happy Holiday. Roni <>Just because something isn't seen doesn't mean it's not there<> From: Elisse <elisselopez@...> Subject: New here hypothyroidism Date: Monday, December 21, 2009, 9:21 PM Hello all: I'm Elisse, 31 yrs old, married, no children. I was just wondering what are some of the symptoms experienced by members on here. Personally, I often feel very fatigued, depressed, my hair seems to fall out in clumps, my hands and feet and me, in general, are always freezing. Lately I've had an all-over body itch, wicked headaches, loss of appetite, etc. I don't even know if I'm in the correct group. If not, would you please suggest what group I should be writing to? Thanks so much and have a great holiday. Elisse ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 I don't. My son has never had any kidney problems. Those are usually associated with high dose acute mercury poisoning, not low dose chronic long term poisoning. We give milk thistle for his liver daily and he has never shown any symptoms that indicated he has liver problems. Jan > > Thanks Jan and for your responses. I'll be studying Andy's protocol before I see the DAN again. Do you guys check liver and kidney function while chelating? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2009 Report Share Posted December 29, 2009 Lots of s here. I'm chelating myself and do not check liver and kidney function. I do take milk thistle to support the liver though. S S New Here Posted by: " " vegascurls@... vegascurls Tue Dec 29, 2009 9:29 am (PST) Thanks Jan and for your responses. I'll be studying Andy's protocol before I see the DAN again. Do you guys check liver and kidney function while chelating? ------------------------------------------------------------ Click here to light up your life with a love spell! Love Spell http://tagline.excite.com/c?cp=uNJ3pVzCYckjeoU5XxKMNAAAKZRr_2tbQBaG-3loGUsiTeHAA\ AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAAARwAAAAA= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Please know that even if your lyme tests come back negative, you may still have lyme. I had 3 different tests come back negative - never got a postive. BUT... an LLMD put me on a 4 month trial antibiotics and at month 3, I finally started improving slightly. He said that 50% of his patients with lyme never get a postive test result, And his suspicion that I had lyme was that everything else had been ruled out and he said anytime he see a series of neurological symptoms doesn't point to any specific neurological diagnosis, he suspect lyme disease. At this point, I have been on treatment for about 9 months and while not yet out of the woods, have improved greatly! As to symptoms - they vary widely from person to person. I've had all you mentioned as well as others. Lyme, is often called the 'great imitator' because it can mimic many other diseases. I never noticed a tic bite or bulls-eye rash - my first symptom was vertigo and bad headaches. Over time, I developed joint & muscle pain and then muscle weakness to the point where I could practically no longer walk. My balance & coordination was very much off and I experience mental fogginess & confusion. Numbness & tingling sensations and strange pains that came & went without cause - my skin & muscles felt as if I had a very bad bruise, but there was no bruising, nor had I bumped into anything - it just came on its on. Lots of other symptoms too - in fact, started off thinking it was fibromyalgia - then thought spinal stenosis - was tested for lots of others as well. If I hadn't had the LLMD suggest treatment, I'd probably still be getting tested and probably would have been dx'd with MS - as it gets dx'd when everything else has been ruled out. I'm not familiar with hashimoto, but you might see if you can get on a 4 month trial. I take flagyl & doxy and it's done well for me - other than the inconveniences of feeling sick to my stomach almost constantly and not being able to go out in the sun. But... small price to get rid of all the other symptoms that were crippling me. On Sun, Jan 17, 2010 at 7:02 AM, adnil1988 <lindamax@...> wrote: > > > Hi my name is , I am diagnosed with hashimoto, but my symptoms of > muscle and joint pain persist. I have ringing in my ears, no energy at all. > I gained weight because I am on the sofa all day long. I have coordination > problems, mild. My eyes are blurry. Actually, all the symptoms are the same > as with hypothyroidism, but since they do not go away, my doc. was testing > me for lyme disease. I will get the blood result next week, but would like > to know what I could do in the meantime. > The general symptom of fatigue can lead into different directions. > Maybe one of you can tell me more about symptoms and treatment. > I was thinking about a cleansing / but do not know what kind and how to do > it. I have trouble swallowing pills, so it will be difficult for me to do a > cleansing. > I can not go on like this, hurting all over. I gained so much weight, my > pants hardly fit anymore. I never weight so much in my life. I eat healthy > all the time. I do not eat refined products at all. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 The best thing to do right now is to hang tight until those results come back. If they are negative, though, do NOT assume that you do not have Lyme. The standard tests have been stripped of the proteins most likely to accurately identify Lyme; and you should not accept a negative diagnosis until you've gotten a test that includes testing for these proteins. But that's getting ahead of ourselves. When you get to that point, we'll walk you through it. Weight gain is a problem for 90% of us. (I'm up 60 pounds myself -- painful, since I was an athlete in college.) If you do have Lyme, the weight gain happens because the disease disrupts your entire endocrine system, including the hormones like leptin and insulin that control how much we weigh. Many of us find that we're able to lose at least some of it once we've been in treatment a long time, and our hormonal balance and our ability to exercise returns. Others of us learn to live with the weight -- really, it's the least of our problems with this disease. In the meantime, you can read up. Go to the library and check out " Cure Unknown " by Pamela Weintraub. It's the definitive book on the history and politics of Lyme. If you do get a positive result, you'll understand a lot more about what you're in for. It's too bad you have trouble swallowing pills, because there are supplements that can at least alleviate some symptoms -- regardless of what the problem turns out to be. A few suggestions for things to try: For muscle and joint pain: A good-quality glucosamine -- 1-2 gr 2/day 1 g Magnesium taken with 350 mg B-6 bromelian For neurological problems: a good B-vitamin, plus an extra serving of B12 taken with folinic acid (not the same as folic acid -- look online) For immune issues: N-acetyl-L-cysteine alpha lipoic acid grapeseed extract Let us know how it goes. Sara On Jan 17, 2010, at 7:02 26AM, adnil1988 wrote: > Hi my name is , I am diagnosed with hashimoto, but my symptoms of muscle and joint pain persist. I have ringing in my ears, no energy at all. I gained weight because I am on the sofa all day long. I have coordination problems, mild. My eyes are blurry. Actually, all the symptoms are the same as with hypothyroidism, but since they do not go away, my doc. was testing me for lyme disease. I will get the blood result next week, but would like to know what I could do in the meantime. > The general symptom of fatigue can lead into different directions. > Maybe one of you can tell me more about symptoms and treatment. > I was thinking about a cleansing / but do not know what kind and how to do it. I have trouble swallowing pills, so it will be difficult for me to do a cleansing. > I can not go on like this, hurting all over. I gained so much weight, my pants hardly fit anymore. I never weight so much in my life. I eat healthy all the time. I do not eat refined products at all. > > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi Kathy, In the beginning did you ger very dry lips and skin of the face from the doxy? I have not gone out in the sun but about a week ago I looked like I had sunburn. My lips continue to crack and are very dry. They tested me for Sjroens. I probably spelled that wrong but I do not know the results yet. > > > Hi my name is , I am diagnosed with hashimoto, but my symptoms of > muscle and joint pain persist. I have ringing in my ears, no energy at all. > I gained weight because I am on the sofa all day long. I have coordination > problems, mild. My eyes are blurry. Actually, all the symptoms are the same > as with hypothyroidism, but since they do not go away, my doc. was testing > me for lyme disease. I will get the blood result next week, but would like > to know what I could do in the meantime. > The general symptom of fatigue can lead into different directions. > Maybe one of you can tell me more about symptoms and treatment. > I was thinking about a cleansing / but do not know what kind and how to do > it. I have trouble swallowing pills, so it will be difficult for me to do a > cleansing. > I can not go on like this, hurting all over. I gained so much weight, my > pants hardly fit anymore. I never weight so much in my life. I eat healthy > all the time. I do not eat refined products at all. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi, what is LLMD ? what is flagyl & doxy? Is it recommended to take parasite cleansing? > > From: mauimamaw@... > Date: Sun, 17 Jan 2010 14:09:11 -0800 > Subject: Re: [ ] New here > > Please know that even if your lyme tests come back negative, you may still > have lyme. I had 3 different tests come back negative - never got a > postive. BUT... an LLMD put me on a 4 month trial antibiotics and at month > 3, I finally started improving slightly. He said that 50% of his patients > with lyme never get a postive test result, And his suspicion that I had > lyme was that everything else had been ruled out and he said anytime he see > a series of neurological symptoms doesn't point to any specific neurological > diagnosis, he suspect lyme disease. At this point, I have been on > treatment for about 9 months and while not yet out of the woods, have > improved greatly! > > As to symptoms - they vary widely from person to person. I've had all you > mentioned as well as others. Lyme, is often called the 'great imitator' > because it can mimic many other diseases. I never noticed a tic bite or > bulls-eye rash - my first symptom was vertigo and bad headaches. Over time, > I developed joint & muscle pain and then muscle weakness to the point where > I could practically no longer walk. My balance & coordination was very much > off and I experience mental fogginess & confusion. Numbness & tingling > sensations and strange pains that came & went without cause - my skin & > muscles felt as if I had a very bad bruise, but there was no bruising, nor > had I bumped into anything - it just came on its on. Lots of other symptoms > too - in fact, started off thinking it was fibromyalgia - then thought > spinal stenosis - was tested for lots of others as well. If I hadn't had > the LLMD suggest treatment, I'd probably still be getting tested and > probably would have been dx'd with MS - as it gets dx'd when everything else > has been ruled out. I'm not familiar with hashimoto, but you might see if > you can get on a 4 month trial. I take flagyl & doxy and it's done well for > me - other than the inconveniences of feeling sick to my stomach almost > constantly and not being able to go out in the sun. But... small price to > get rid of all the other symptoms that were crippling me. > > On Sun, Jan 17, 2010 at 7:02 AM, adnil1988 <lindamax@...> wrote: > > > > > > > Hi my name is , I am diagnosed with hashimoto, but my symptoms of > > muscle and joint pain persist. I have ringing in my ears, no energy at all. > > I gained weight because I am on the sofa all day long. I have coordination > > problems, mild. My eyes are blurry. Actually, all the symptoms are the same > > as with hypothyroidism, but since they do not go away, my doc. was testing > > me for lyme disease. I will get the blood result next week, but would like > > to know what I could do in the meantime. > > The general symptom of fatigue can lead into different directions. > > Maybe one of you can tell me more about symptoms and treatment. > > I was thinking about a cleansing / but do not know what kind and how to do > > it. I have trouble swallowing pills, so it will be difficult for me to do a > > cleansing. > > I can not go on like this, hurting all over. I gained so much weight, my > > pants hardly fit anymore. I never weight so much in my life. I eat healthy > > all the time. I do not eat refined products at all. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hi Sara, I am taking selenium, magnesium, calcium, zinc, vitamin b12 with folic acid / all for the thyroid. I had Epstein Barr virus 4 years ago and ended up with lots of muscle pain. I never had issues with vertigo or coordination problems, weight gain until I took the new formulated armour and later on thryroid from a compounding pharma / which was not armour. First I thought I have hypo symptoms but I realized that it was much worse including new symptoms / the brain fog and coordination problems. I hope I don't have MS. I thought I get myself some parasite cleanser, can't make it worse, until I get the blood results. thank you From: srobinson@... Date: Sun, 17 Jan 2010 14:15:40 -0800 Subject: Re: [ ] New here The best thing to do right now is to hang tight until those results come back. If they are negative, though, do NOT assume that you do not have Lyme. The standard tests have been stripped of the proteins most likely to accurately identify Lyme; and you should not accept a negative diagnosis until you've gotten a test that includes testing for these proteins. But that's getting ahead of ourselves. When you get to that point, we'll walk you through it. Weight gain is a problem for 90% of us. (I'm up 60 pounds myself -- painful, since I was an athlete in college.) If you do have Lyme, the weight gain happens because the disease disrupts your entire endocrine system, including the hormones like leptin and insulin that control how much we weigh. Many of us find that we're able to lose at least some of it once we've been in treatment a long time, and our hormonal balance and our ability to exercise returns. Others of us learn to live with the weight -- really, it's the least of our problems with this disease. In the meantime, you can read up. Go to the library and check out " Cure Unknown " by Pamela Weintraub. It's the definitive book on the history and politics of Lyme. If you do get a positive result, you'll understand a lot more about what you're in for. It's too bad you have trouble swallowing pills, because there are supplements that can at least alleviate some symptoms -- regardless of what the problem turns out to be. A few suggestions for things to try: For muscle and joint pain: A good-quality glucosamine -- 1-2 gr 2/day 1 g Magnesium taken with 350 mg B-6 bromelian For neurological problems: a good B-vitamin, plus an extra serving of B12 taken with folinic acid (not the same as folic acid -- look online) For immune issues: N-acetyl-L-cysteine alpha lipoic acid grapeseed extract Let us know how it goes. Sara On Jan 17, 2010, at 7:02 26AM, adnil1988 wrote: > Hi my name is , I am diagnosed with hashimoto, but my symptoms of muscle and joint pain persist. I have ringing in my ears, no energy at all. I gained weight because I am on the sofa all day long. I have coordination problems, mild. My eyes are blurry. Actually, all the symptoms are the same as with hypothyroidism, but since they do not go away, my doc. was testing me for lyme disease. I will get the blood result next week, but would like to know what I could do in the meantime. > The general symptom of fatigue can lead into different directions. > Maybe one of you can tell me more about symptoms and treatment. > I was thinking about a cleansing / but do not know what kind and how to do it. I have trouble swallowing pills, so it will be difficult for me to do a cleansing. > I can not go on like this, hurting all over. I gained so much weight, my pants hardly fit anymore. I never weight so much in my life. I eat healthy all the time. I do not eat refined products at all. > > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 I have a friend with MS who has had the standard tests for Lyme -- which, as noted, are far from definitive. A lot of people who are diagnosed with MS actually have Lyme. Because of this, I personally wouldn't accept an MS diagnosis until I'd tested negative on a full-spectrum Lyme test first (or tested positive, and attempted to treat it). It sounds like you're doing what you can (have you tried L-tyrosine? It directly supports the thyroid). A cleansing can't hurt, but if it's Lyme, it's likely to be a short-term feel-good solution. (Not that there's anything wrong with that.) Sara On Jan 17, 2010, at 5:30 12PM, Wilbert wrote: > > Hi Sara, > I am taking selenium, magnesium, calcium, zinc, vitamin b12 with folic acid / all for the thyroid. I had Epstein Barr virus 4 years ago and ended up with lots of muscle pain. I never had issues with vertigo or coordination problems, weight gain until I took the new formulated armour and later on thryroid from a compounding pharma / which was not armour. > First I thought I have hypo symptoms but I realized that it was much worse including new symptoms / the brain fog and coordination problems. > I hope I don't have MS. I thought I get myself some parasite cleanser, can't make it worse, until I get the blood results. > thank you > > > > > > > > > From: srobinson@... > Date: Sun, 17 Jan 2010 14:15:40 -0800 > Subject: Re: [ ] New here > > > > > > > > > > > > > > > > > > > > > > > > > > > > > The best thing to do right now is to hang tight until those results come back. > > > > If they are negative, though, do NOT assume that you do not have Lyme. The standard tests have been stripped of the proteins most likely to accurately identify Lyme; and you should not accept a negative diagnosis until you've gotten a test that includes testing for these proteins. > > > > But that's getting ahead of ourselves. When you get to that point, we'll walk you through it. > > > > Weight gain is a problem for 90% of us. (I'm up 60 pounds myself -- painful, since I was an athlete in college.) If you do have Lyme, the weight gain happens because the disease disrupts your entire endocrine system, including the hormones like leptin and insulin that control how much we weigh. Many of us find that we're able to lose at least some of it once we've been in treatment a long time, and our hormonal balance and our ability to exercise returns. Others of us learn to live with the weight -- really, it's the least of our problems with this disease. > > > > In the meantime, you can read up. Go to the library and check out " Cure Unknown " by Pamela Weintraub. It's the definitive book on the history and politics of Lyme. If you do get a positive result, you'll understand a lot more about what you're in for. > > > > It's too bad you have trouble swallowing pills, because there are supplements that can at least alleviate some symptoms -- regardless of what the problem turns out to be. A few suggestions for things to try: > > > > For muscle and joint pain: > > A good-quality glucosamine -- 1-2 gr 2/day > > 1 g Magnesium taken with 350 mg B-6 > > bromelian > > > > For neurological problems: > > a good B-vitamin, plus an extra serving of B12 taken with folinic acid (not the same as folic acid -- look online) > > > > For immune issues: > > N-acetyl-L-cysteine > > alpha lipoic acid > > grapeseed extract > > > > Let us know how it goes. > > > > Sara > > > > On Jan 17, 2010, at 7:02 26AM, adnil1988 wrote: > > > >> Hi my name is , I am diagnosed with hashimoto, but my symptoms of muscle and joint pain persist. I have ringing in my ears, no energy at all. I gained weight because I am on the sofa all day long. I have coordination problems, mild. My eyes are blurry. Actually, all the symptoms are the same as with hypothyroidism, but since they do not go away, my doc. was testing me for lyme disease. I will get the blood result next week, but would like to know what I could do in the meantime. > >> The general symptom of fatigue can lead into different directions. > >> Maybe one of you can tell me more about symptoms and treatment. > >> I was thinking about a cleansing / but do not know what kind and how to do it. I have trouble swallowing pills, so it will be difficult for me to do a cleansing. > >> I can not go on like this, hurting all over. I gained so much weight, my pants hardly fit anymore. I never weight so much in my life. I eat healthy all the time. I do not eat refined products at all. > >> > >> > >> > >> > >> ------------------------------------ > >> > >> Lyme Disease News continually updated from thousands of sources around the > >> net: http://www.topix.net/health/lyme-disease > >> > >> MedWorm: The latest items on: Lyme Disease > >> http://tinyurl.com/23dgy8 > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 LLMD = Lyme-literate medical doctor. A qualified MD who practices under the guidelines of (and, preferably, is a member of) ILADS -- the Infectious Lyme and Associated Diseases Association. Flagyl is the brand name of metronidazole, an antifungal antibiotic commonly taken by Lyme patients to stop the disease in its cystic phase. Doxy is doxycycline, a macrolide antibiotic that's mainly aimed at the disease in its intracellular phase. This is the first drug many of us take for Lyme, because it's the only thing your average GP knows to give. Parasite cleansing can't hurt -- our immune systems are typically on the fritz, and will let all kinds of weird bugs have free rein in our bodies -- but it's not one of the things we usually spend a lot of time thinking about. It's a matter of personal preference. If it makes you feel better, go for it. Sara On Jan 17, 2010, at 5:21 05PM, Wilbert wrote: > > Hi, > what is LLMD ? > what is flagyl & doxy? > Is it recommended to take parasite cleansing? > > > > > > >> >> From: mauimamaw@... >> Date: Sun, 17 Jan 2010 14:09:11 -0800 >> Subject: Re: [ ] New here >> >> Please know that even if your lyme tests come back negative, you may still >> have lyme. I had 3 different tests come back negative - never got a >> postive. BUT... an LLMD put me on a 4 month trial antibiotics and at month >> 3, I finally started improving slightly. He said that 50% of his patients >> with lyme never get a postive test result, And his suspicion that I had >> lyme was that everything else had been ruled out and he said anytime he see >> a series of neurological symptoms doesn't point to any specific neurological >> diagnosis, he suspect lyme disease. At this point, I have been on >> treatment for about 9 months and while not yet out of the woods, have >> improved greatly! >> >> As to symptoms - they vary widely from person to person. I've had all you >> mentioned as well as others. Lyme, is often called the 'great imitator' >> because it can mimic many other diseases. I never noticed a tic bite or >> bulls-eye rash - my first symptom was vertigo and bad headaches. Over time, >> I developed joint & muscle pain and then muscle weakness to the point where >> I could practically no longer walk. My balance & coordination was very much >> off and I experience mental fogginess & confusion. Numbness & tingling >> sensations and strange pains that came & went without cause - my skin & >> muscles felt as if I had a very bad bruise, but there was no bruising, nor >> had I bumped into anything - it just came on its on. Lots of other symptoms >> too - in fact, started off thinking it was fibromyalgia - then thought >> spinal stenosis - was tested for lots of others as well. If I hadn't had >> the LLMD suggest treatment, I'd probably still be getting tested and >> probably would have been dx'd with MS - as it gets dx'd when everything else >> has been ruled out. I'm not familiar with hashimoto, but you might see if >> you can get on a 4 month trial. I take flagyl & doxy and it's done well for >> me - other than the inconveniences of feeling sick to my stomach almost >> constantly and not being able to go out in the sun. But... small price to >> get rid of all the other symptoms that were crippling me. >> >> On Sun, Jan 17, 2010 at 7:02 AM, adnil1988 <lindamax@...> wrote: >> >>> >>> >>> Hi my name is , I am diagnosed with hashimoto, but my symptoms of >>> muscle and joint pain persist. I have ringing in my ears, no energy at all. >>> I gained weight because I am on the sofa all day long. I have coordination >>> problems, mild. My eyes are blurry. Actually, all the symptoms are the same >>> as with hypothyroidism, but since they do not go away, my doc. was testing >>> me for lyme disease. I will get the blood result next week, but would like >>> to know what I could do in the meantime. >>> The general symptom of fatigue can lead into different directions. >>> Maybe one of you can tell me more about symptoms and treatment. >>> I was thinking about a cleansing / but do not know what kind and how to do >>> it. I have trouble swallowing pills, so it will be difficult for me to do a >>> cleansing. >>> I can not go on like this, hurting all over. I gained so much weight, my >>> pants hardly fit anymore. I never weight so much in my life. I eat healthy >>> all the time. I do not eat refined products at all. >>> >>> >>> >>> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 The doxy makes you very very sun sensitive. If you've been out in a car or anywhere, you might well get sunburned. As to dry lips & skin - I've always had -- so no difference there for me... plus wouldn't have noticed because of my move from Maui, HI to Eau , WI and then to Reno, NV - both extremely dry compared to Maui. On Sun, Jan 17, 2010 at 4:14 PM, Chiaravalloti <tscollo@...>wrote: > > > Hi Kathy, > > In the beginning did you ger very dry lips and skin of the face from the > doxy? I have not gone out in the sun but about a week ago I looked like I > had sunburn. My lips continue to crack and are very dry. They tested me for > Sjroens. I probably spelled that wrong but I do not know the results yet. > > > > > > > > > > > Hi my name is , I am diagnosed with hashimoto, but my symptoms of > > muscle and joint pain persist. I have ringing in my ears, no energy at > all. > > I gained weight because I am on the sofa all day long. I have > coordination > > problems, mild. My eyes are blurry. Actually, all the symptoms are the > same > > as with hypothyroidism, but since they do not go away, my doc. was > testing > > me for lyme disease. I will get the blood result next week, but would > like > > to know what I could do in the meantime. > > The general symptom of fatigue can lead into different directions. > > Maybe one of you can tell me more about symptoms and treatment. > > I was thinking about a cleansing / but do not know what kind and how to > do > > it. I have trouble swallowing pills, so it will be difficult for me to do > a > > cleansing. > > I can not go on like this, hurting all over. I gained so much weight, my > > pants hardly fit anymore. I never weight so much in my life. I eat > healthy > > all the time. I do not eat refined products at all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 i use coconut oil liberally on my dry hands and lips and it really clears up the dry skin. it smells and tastes good too! also, it is recommended to take 1 tblsp a day, it has antifungal, antiparasitic, and antibacteria properties!!! On Mon, Jan 18, 2010 at 11:17 AM, Kathy Sargenti <mauimamaw@...>wrote: > The doxy makes you very very sun sensitive. If you've been out in a car or > anywhere, you might well get sunburned. As to dry lips & skin - I've > always had -- so no difference there for me... plus wouldn't have noticed > because of my move from Maui, HI to Eau , WI and then to Reno, NV - > both extremely dry compared to Maui. > > On Sun, Jan 17, 2010 at 4:14 PM, Chiaravalloti > <tscollo@...>wrote: > > > > > > > Hi Kathy, > > > > In the beginning did you ger very dry lips and skin of the face from the > > doxy? I have not gone out in the sun but about a week ago I looked like I > > had sunburn. My lips continue to crack and are very dry. They tested me > for > > Sjroens. I probably spelled that wrong but I do not know the results yet. > > > > > > > > > > > > > > > > > > > Hi my name is , I am diagnosed with hashimoto, but my symptoms of > > > muscle and joint pain persist. I have ringing in my ears, no energy at > > all. > > > I gained weight because I am on the sofa all day long. I have > > coordination > > > problems, mild. My eyes are blurry. Actually, all the symptoms are the > > same > > > as with hypothyroidism, but since they do not go away, my doc. was > > testing > > > me for lyme disease. I will get the blood result next week, but would > > like > > > to know what I could do in the meantime. > > > The general symptom of fatigue can lead into different directions. > > > Maybe one of you can tell me more about symptoms and treatment. > > > I was thinking about a cleansing / but do not know what kind and how to > > do > > > it. I have trouble swallowing pills, so it will be difficult for me to > do > > a > > > cleansing. > > > I can not go on like this, hurting all over. I gained so much weight, > my > > > pants hardly fit anymore. I never weight so much in my life. I eat > > healthy > > > all the time. I do not eat refined products at all. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Excellent - I'll get some! I didn't know about the antifungal/parasitic/bacterial properties... On Mon, Jan 18, 2010 at 12:07 PM, le Handy <kndplus2@...> wrote: > > > i use coconut oil liberally on my dry hands and lips and it really clears > up > the dry skin. it smells and tastes good too! also, it is recommended to > take 1 tblsp a day, it has antifungal, antiparasitic, and antibacteria > properties!!! > > On Mon, Jan 18, 2010 at 11:17 AM, Kathy Sargenti <mauimamaw@...<mauimamaw%40gmail.com> > >wrote: > > > > The doxy makes you very very sun sensitive. If you've been out in a car > or > > anywhere, you might well get sunburned. As to dry lips & skin - I've > > always had -- so no difference there for me... plus wouldn't have noticed > > because of my move from Maui, HI to Eau , WI and then to Reno, NV - > > both extremely dry compared to Maui. > > > > On Sun, Jan 17, 2010 at 4:14 PM, Chiaravalloti > > <tscollo@... <tscollo%40sbcglobal.net>>wrote: > > > > > > > > > > > Hi Kathy, > > > > > > In the beginning did you ger very dry lips and skin of the face from > the > > > doxy? I have not gone out in the sun but about a week ago I looked like > I > > > had sunburn. My lips continue to crack and are very dry. They tested me > > for > > > Sjroens. I probably spelled that wrong but I do not know the results > yet. > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi my name is , I am diagnosed with hashimoto, but my symptoms > of > > > > muscle and joint pain persist. I have ringing in my ears, no energy > at > > > all. > > > > I gained weight because I am on the sofa all day long. I have > > > coordination > > > > problems, mild. My eyes are blurry. Actually, all the symptoms are > the > > > same > > > > as with hypothyroidism, but since they do not go away, my doc. was > > > testing > > > > me for lyme disease. I will get the blood result next week, but would > > > like > > > > to know what I could do in the meantime. > > > > The general symptom of fatigue can lead into different directions. > > > > Maybe one of you can tell me more about symptoms and treatment. > > > > I was thinking about a cleansing / but do not know what kind and how > to > > > do > > > > it. I have trouble swallowing pills, so it will be difficult for me > to > > do > > > a > > > > cleansing. > > > > I can not go on like this, hurting all over. I gained so much weight, > > my > > > > pants hardly fit anymore. I never weight so much in my life. I eat > > > healthy > > > > all the time. I do not eat refined products at all. > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Thanks. I am here in CT. I thought maybe it was wind burn. > > > > > > > Hi my name is , I am diagnosed with hashimoto, but my symptoms of > > muscle and joint pain persist. I have ringing in my ears, no energy at > all. > > I gained weight because I am on the sofa all day long. I have > coordination > > problems, mild. My eyes are blurry. Actually, all the symptoms are the > same > > as with hypothyroidism, but since they do not go away, my doc. was > testing > > me for lyme disease. I will get the blood result next week, but would > like > > to know what I could do in the meantime. > > The general symptom of fatigue can lead into different directions. > > Maybe one of you can tell me more about symptoms and treatment. > > I was thinking about a cleansing / but do not know what kind and how to > do > > it. I have trouble swallowing pills, so it will be difficult for me to do > a > > cleansing. > > I can not go on like this, hurting all over. I gained so much weight, my > > pants hardly fit anymore. I never weight so much in my life. I eat > healthy > > all the time. I do not eat refined products at all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Kathy, quick reminder... best to get organic. I've found one of the best prices at Vitamin Shoppe (in store or online). They carry a 54oz tub of Nutiva org. coconut oil and if you ask for the on-line price (which they will honor for everything they carry in the store), it's only about $23. Really a great price and you can do just about everything with it... all the skin stuff and it's the best oil to cook with, as well. Have fun! Cindi Cindi Callanan, MsT, CST, BEC Re: [ ] New here Excellent - I'll get some! I didn't know about the antifungal/parasitic/bacterial properties... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 BTW, all, I erred the other day. It's not Vitamin SHOPPE that got the great rating from ConsumerLabs.org. It's Vitamin WORLD. You can see where the confusion came from. Sara On Jan 18, 2010, at 4:37 48PM, Cindi Callanan wrote: > Kathy, quick reminder... best to get organic. I've found one of the best prices at Vitamin Shoppe (in store or online). They carry a 54oz tub of Nutiva org. coconut oil and if you ask for the on-line price (which they will honor for everything they carry in the store), it's only about $23. Really a great price and you can do just about everything with it... all the skin stuff and it's the best oil to cook with, as well. Have fun! > > Cindi > > Cindi Callanan, MsT, CST, BEC > > Re: [ ] New here > > > Excellent - I'll get some! I didn't know about the > antifungal/parasitic/bacterial properties... > > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 > > My name is Bonnie. First day w/women's chronic pain syndrome, was recommended here. Reading thru. Words of wisdom? +++Hi Bonnie. Welcome to our group. What kinds of symptoms are you having? I think you should see if you have candida, since it often occurs in women with such issues. Take the questionnaire on this page: http://www.healingnaturallybybee.com/articles/intro3.php In order for anyone to improve their health they need to build up their immune system by: 1) Consuming " proper nutrients " (diet plus supplements), 2) Eliminating toxins and foods that feed candida (they also feed bacteria and cancer), 3) Eliminating damaging foods, and 4) Eliminating toxins in general. If you do not have candida read Foods That Damage, Foods That Heal: http://www.healingnaturallybybee.com/articles/heal13.php If you have candida read two important articles so you understand candida, and know what you need to do and why: 1) How to Successfully Overcome Candida http://www.healingnaturallybybee.com/articles/intro2.php 2) Curing Candida, How to Get Started http://www.healingnaturallybybee.com/articles/intro1.php For encouragement and inspiration see these wonderful Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php The best in health, Bee Quote Link to comment Share on other sites More sharing options...
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