Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Hello, I am posting from Waco, Texas. (38 year old female, 5 kids and married...live in the woods, clinical herbalist, gardener,live in the middle of DEER FARM CENTRAL).. About six weeks ago I couldn't walk for three days. I manifested cognition issues, lost taste and smell, desire to eat/drink, tinnitus, buzzing in right foot all the time,..complete sensory/motor loss for those three days...then started feeling better, took about two weeks for me to be able to really walk without feeling dizzy. I have not recovered. Before this episode I was perfectly healthy, never been sick. I did notice some symptoms neuralgia in right head with face numbing on and off and buzzing in right foot, six months prior to this episode. Did MRI, neurologists has ruled out MS. I was told by a stranger that heard me talking to get checked for Lyme. I could not find a LLMD who took my insurance in Texas, so I am going to Dr. Manaznero in Austin, Texas. I spoke with Susun W. who is my mentor and she supported my idea of lyme after hearing all my symptoms and story and encouraged me to start the Buhner protocol immediately. My current symptoms are: Stiff neck (had from the beginning of episode), tinnitus, buzzing in feet, constipation, dry mouth/swallow issues, twitches in muscles/sore spots in muscles, foggy brain and cog issues, eyes burn/hurt, low body temp, heart pains, burning heels in feet (pins/needles) joint inflammation, popping bones, fatigue...It's strange one day fine one day you wake up to a thousand symptoms. Both primary doc and neurologist have said " we don't know what is wrong " and left me at the dead end...I guess I will be my best advocate...Anyone hear know of Texas LLMD's or support for me in Texas? Thanks, and I am glad I found this group!!! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2011 Report Share Posted January 17, 2011 It sure sounds like Lyme and co-infections. I don't have any LLMD suggestions, sorry. I wish you luck in finding a good doctor. Read everything you can. There are a number of good books out there. 's book is great and I also recommend " Insights into Lyme Disease Treatment: by Connie Stasheim. Connie [ ] RE: New Here Hello, I am posting from Waco, Texas. (38 year old female, 5 kids and married...live in the woods, clinical herbalist, gardener,live in the middle of DEER FARM CENTRAL).. About six weeks ago I couldn't walk for three days. I manifested cognition issues, lost taste and smell, desire to eat/drink, tinnitus, buzzing in right foot all the time,..complete sensory/motor loss for those three days...then started feeling better, took about two weeks for me to be able to really walk without feeling dizzy. I have not recovered. Before this episode I was perfectly healthy, never been sick. I did notice some symptoms neuralgia in right head with face numbing on and off and buzzing in right foot, six months prior to this episode. Did MRI, neurologists has ruled out MS. I was told by a stranger that heard me talking to get checked for Lyme. I could not find a LLMD who took my insurance in Texas, so I am going to Dr. Manaznero in Austin, Texas. I spoke with Susun W. who is my mentor and she supported my idea of lyme after hearing all my symptoms and story and encouraged me to start the Buhner protocol immediately. My current symptoms are: Stiff neck (had from the beginning of episode), tinnitus, buzzing in feet, constipation, dry mouth/swallow issues, twitches in muscles/sore spots in muscles, foggy brain and cog issues, eyes burn/hurt, low body temp, heart pains, burning heels in feet (pins/needles) joint inflammation, popping bones, fatigue...It's strange one day fine one day you wake up to a thousand symptoms. Both primary doc and neurologist have said " we don't know what is wrong " and left me at the dead end...I guess I will be my best advocate...Anyone hear know of Texas LLMD's or support for me in Texas? Thanks, and I am glad I found this group!!! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2011 Report Share Posted January 29, 2011 DianeWelcome to the best group on the web!!! Everyone here has their own story to tell so that it could help another hepper. Just ask the questions and we are all more than happy to answer to the best of our ability. Then, Don will surely lead you to the link in his library, so that you know it did come from reliable sources.Gloria Hi, I am interested in this group because I have a family member who is due to start treatment. At this point I am reading every thing I can find so that I can be informed and supportive as a caregiver. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 Dear .... The blank stare seizures are petit mal seizures..i have those along with grand mal seizures as well as status epilepsy..which means i have 1 grand mal seizure after another and need help immediately..the right meds for them do wonders for both me and my seizures though...if it wasnt for my triggers for seizures id be seizure free..there are few great web sites to help you with info... www.webmd.com   or      www.efa.org  this mail is brought to you by romeo.... ________________________________ From: <shayball912@...> Sent: Wed, January 26, 2011 10:38:47 AM Subject: [ ] new here  Hi I am ashley. I am a mother of a 5 year old little girl with autism and seizures. she has grandmal seizures and blank stair seizures.. we are new to the whole seizure thing. they have just started over the last couple of monthes... any news well be great.... thanks ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 children with autism are getting help with chelation.. I have personally spoken to several mom's that take their kids to the clinic where I am clearing my body of metals. Seizures can also be caused by mercury. ________________________________ From: DAN SHARPS <romeo277drs@...> Sent: Wed, February 2, 2011 11:38:23 AM Subject: Re: [ ] new here Dear .... The blank stare seizures are petit mal seizures..i have those along with grand mal seizures as well as status epilepsy..which means i have 1 grand mal seizure after another and need help immediately..the right meds for them do wonders for both me and my seizures though...if it wasnt for my triggers for seizures id be seizure free..there are few great web sites to help you with info... www.webmd.com or www.efa.org this mail is brought to you by romeo.... ________________________________ From: <shayball912@...> Sent: Wed, January 26, 2011 10:38:47 AM Subject: [ ] new here Hi I am ashley. I am a mother of a 5 year old little girl with autism and seizures. she has grandmal seizures and blank stair seizures.. we are new to the whole seizure thing. they have just started over the last couple of monthes... any news well be great.... thanks ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 Your ER visit sounds exactly like about three identical visits I made, which all turned out to be caused by cardiac Lyme. Most cardiologists have NO clue about this. You come up looking perfect on the tests, which are mostly aimed at looking for things like plaques, clots, and misshapen ventricles. The spirochete is all through the muscle and myocardium, creating a condition that's effectively congestive heart failure (which is why you're fatigued and think you're gonna die), but will evade all standard diagnostics. This was one of the first things to clear up when I got on antibiotics. I now walk or run at least a half an hour every day, and my heart is happy. No fatigue or crashes. This can be resolved. Some docs think the low CD57 is diagnostic for Lyme all on its own. Hot and sweaty at night is classic for Bartonella (which I also had). Looks like you'll be heading into treatment soon -- and life will likely get better. Be *sure* your doctor follows the Burrascano guidelines, which mandate the treatment of all three forms of Lyme simultaneously, along with co-infections. If s/he doesn't, find one who will. Sara On Feb 4, 2011, at 10:53 36AM, singingdancer95128 wrote: > Hi all, > > I have been ill for 15 years now. I went to India in 1992. I also have hiked in the Santa Cruz Mountains and live in San ,CA. > > I have an increased number of mast cells in my gut which flare up if I am upset, am too hot or eat dairy,anything with yeasts or molds, chocolate or alcohol or cooked tomato sauce and spices. I have anaphylactic type reactions which end me in the ER. I also get hot and sweaty several times during the day and night alternating with chills. > > I have lost ten pounds in the last 5 years. Recently I went to a chiropractic nutritionist who has been testing me for parasites.I have Kaiser which has not helped me. I also have a high level of heavy metals. I just found out that I have several parasites including H.pylori. > > I just had a CD57 test done and the number was 40 which is quite low so my doctor just had me do a blood test called Spiro-stat where they do DNA testing of microbes in the blood. I also have bartonella in the blood. He suspects lyme. I get the results in 2-3 weeks. > > I was just in the emergency room last Thursday night with a cardiac event. I had tachycardia for more than 5 hours after a stressful situation. Luckily I had a test that showed I have no heart damage or any plaquing of the cardiac arteries. While there I had a blood test that showed high neutrophils and low lymphocytes and monocytes which is new from last year. I feel like I am slowly dying. I eat all day long and can't gain the weight back. Luckily I am able to exercise for about 30 minutes daily. > > Sorry to go on so long. Just wanted your opinions. > > Take care, > June > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 Hi all, So I started to read the Burrascano guidelines and I'm getting a little freaked out. I may actually have lyme disease and will probably have to go outside of my insurance unless I make a really big stink at Kaiser. I have already spent thousands of dollars trying to find out what is wrong with me. I have already tested positive for trichinella, entameba histolytica, toxoplasma and H.pylori. I am taking herbal medicines for the h.pylori and am waiting for meds for the trichinella from India. I feel really tired all the time and my hair is falling out. I also have autoimmune thyroid disease. Really scared, June P.S. Can someone write me off group about a lyme knowledgeable doctor in the San ,CA area? I live about an hour south of San Francisco. Thanks,June > > > Hi all, > > > > I have been ill for 15 years now. I went to India in 1992. I also have hiked in the Santa Cruz Mountains and live in San ,CA. > > > > I have an increased number of mast cells in my gut which flare up if I am upset, am too hot or eat dairy,anything with yeasts or molds, chocolate or alcohol or cooked tomato sauce and spices. I have anaphylactic type reactions which end me in the ER. I also get hot and sweaty several times during the day and night alternating with chills. > > > > I have lost ten pounds in the last 5 years. Recently I went to a chiropractic nutritionist who has been testing me for parasites.I have Kaiser which has not helped me. I also have a high level of heavy metals. I just found out that I have several parasites including H.pylori. > > > > I just had a CD57 test done and the number was 40 which is quite low so my doctor just had me do a blood test called Spiro-stat where they do DNA testing of microbes in the blood. I also have bartonella in the blood. He suspects lyme. I get the results in 2-3 weeks. > > > > I was just in the emergency room last Thursday night with a cardiac event. I had tachycardia for more than 5 hours after a stressful situation. Luckily I had a test that showed I have no heart damage or any plaquing of the cardiac arteries. While there I had a blood test that showed high neutrophils and low lymphocytes and monocytes which is new from last year. I feel like I am slowly dying. I eat all day long and can't gain the weight back. Luckily I am able to exercise for about 30 minutes daily. > > > > Sorry to go on so long. Just wanted your opinions. > > > > Take care, > > June > > > > > > > > ------------------------------------ > > > > Lyme Disease News continually updated from thousands of sources around the > > net: http://www.topix.net/health/lyme-disease > > > > MedWorm: The latest items on: Lyme Disease > > http://tinyurl.com/23dgy8 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 June, It sounds like you are having a really rough time! And yes, if it is Lyme people get better with treatment. Agree with Sara's advice to find a doctor that will aggressively treat all the forms of Lyme. From what I've read, the cardiac symptoms usually go away with treatment. Best of luck, On Fri, Feb 4, 2011 at 1:53 PM, singingdancer95128 < singingdancer95128@...> wrote: > > > Hi all, > > I have been ill for 15 years now. I went to India in 1992. I also have > hiked in the Santa Cruz Mountains and live in San ,CA. > > I have an increased number of mast cells in my gut which flare up if I am > upset, am too hot or eat dairy,anything with yeasts or molds, chocolate or > alcohol or cooked tomato sauce and spices. I have anaphylactic type > reactions which end me in the ER. I also get hot and sweaty several times > during the day and night alternating with chills. > > I have lost ten pounds in the last 5 years. Recently I went to a > chiropractic nutritionist who has been testing me for parasites.I have > Kaiser which has not helped me. I also have a high level of heavy metals. I > just found out that I have several parasites including H.pylori. > > I just had a CD57 test done and the number was 40 which is quite low so my > doctor just had me do a blood test called Spiro-stat where they do DNA > testing of microbes in the blood. I also have bartonella in the blood. He > suspects lyme. I get the results in 2-3 weeks. > > I was just in the emergency room last Thursday night with a cardiac event. > I had tachycardia for more than 5 hours after a stressful situation. Luckily > I had a test that showed I have no heart damage or any plaquing of the > cardiac arteries. While there I had a blood test that showed high > neutrophils and low lymphocytes and monocytes which is new from last year. I > feel like I am slowly dying. I eat all day long and can't gain the weight > back. Luckily I am able to exercise for about 30 minutes daily. > > Sorry to go on so long. Just wanted your opinions. > > Take care, > June > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 I've been to the ER numerous times for cardiac events also. Cardiac tests showed nothing. Was very sick for months - many weird symptoms. Turned out to be lyme, but " none " of the specialists believed it was lyme. After going to online forums (like you are doing now) I learned about Lyme Literate Doctors (LLMD's), found one in my area, and he started me on anti-biotics. It's been about 2 years and I am now 99% healthy (but still on some abx). I would suggest you find a " true " LLMD that will treat you aggressively. If you don't start feeling better then it might not be lyme - but you won't know till you try. Good luck, Don On 2/4/2011 1:53 PM, singingdancer95128 wrote: > Hi all, > > I have been ill for 15 years now. I went to India in 1992. I also have hiked in the Santa Cruz Mountains and live in San ,CA. > > I have an increased number of mast cells in my gut which flare up if I am upset, am too hot or eat dairy,anything with yeasts or molds, chocolate or alcohol or cooked tomato sauce and spices. I have anaphylactic type reactions which end me in the ER. I also get hot and sweaty several times during the day and night alternating with chills. > > I have lost ten pounds in the last 5 years. Recently I went to a chiropractic nutritionist who has been testing me for parasites.I have Kaiser which has not helped me. I also have a high level of heavy metals. I just found out that I have several parasites including H.pylori. > > I just had a CD57 test done and the number was 40 which is quite low so my doctor just had me do a blood test called Spiro-stat where they do DNA testing of microbes in the blood. I also have bartonella in the blood. He suspects lyme. I get the results in 2-3 weeks. > > I was just in the emergency room last Thursday night with a cardiac event. I had tachycardia for more than 5 hours after a stressful situation. Luckily I had a test that showed I have no heart damage or any plaquing of the cardiac arteries. While there I had a blood test that showed high neutrophils and low lymphocytes and monocytes which is new from last year. I feel like I am slowly dying. I eat all day long and can't gain the weight back. Luckily I am able to exercise for about 30 minutes daily. > > Sorry to go on so long. Just wanted your opinions. > > Take care, > June > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Thanks everyone, How do I find a lyme literate doctor? June > > Hi all, > > I have been ill for 15 years now. I went to India in 1992. I also have hiked in the Santa Cruz Mountains and live in San ,CA. > > I have an increased number of mast cells in my gut which flare up if I am upset, am too hot or eat dairy,anything with yeasts or molds, chocolate or alcohol or cooked tomato sauce and spices. I have anaphylactic type reactions which end me in the ER. I also get hot and sweaty several times during the day and night alternating with chills. > > I have lost ten pounds in the last 5 years. Recently I went to a chiropractic nutritionist who has been testing me for parasites.I have Kaiser which has not helped me. I also have a high level of heavy metals. I just found out that I have several parasites including H.pylori. > > I just had a CD57 test done and the number was 40 which is quite low so my doctor just had me do a blood test called Spiro-stat where they do DNA testing of microbes in the blood. I also have bartonella in the blood. He suspects lyme. I get the results in 2-3 weeks. > > I was just in the emergency room last Thursday night with a cardiac event. I had tachycardia for more than 5 hours after a stressful situation. Luckily I had a test that showed I have no heart damage or any plaquing of the cardiac arteries. While there I had a blood test that showed high neutrophils and low lymphocytes and monocytes which is new from last year. I feel like I am slowly dying. I eat all day long and can't gain the weight back. Luckily I am able to exercise for about 30 minutes daily. > > Sorry to go on so long. Just wanted your opinions. > > Take care, > June > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 The bad news: there is probably no stink big enough to get Kaiser to do Burrascano's treatment. Personally, if I valued my relationship with them, I wouldn't even take the risk of trying it. Welcome to the ugly side of Lyme politics. The good news: a creative LLMD may be able to get Kaiser to handle at least some of the treatment, as long as it comes under one of the other diagnoses. The h. pylori is going to complicate any kind of high-dose antibiotic combo treatment, so you're going to need to tread very carefully anyway. The best news: Most of us have serious thyroid problems, which are created by Lyme's effects on the HPA axis. I'd been on thyroid meds for nearly a decade; six weeks after I started treatment, I could no longer tolerate it. My own thyroid had come back online, and I simply didn't need it any more. My latest thyroid test, last week, was better than fine. So you've got a good chance of shaking that off with treatment, too. Sara On Feb 4, 2011, at 1:40 30PM, singingdancer95128 wrote: > Hi all, > > So I started to read the Burrascano guidelines and I'm getting a little freaked out. I may actually have lyme disease and will probably have to go outside of my insurance unless I make a really big stink at Kaiser. I have already spent thousands of dollars trying to find out what is wrong with me. I have already tested positive for trichinella, entameba histolytica, toxoplasma and H.pylori. I am taking herbal medicines for the h.pylori and am waiting for meds for the trichinella from India. > > I feel really tired all the time and my hair is falling out. I also have autoimmune thyroid disease. > > Really scared, > June > > P.S. Can someone write me off group about a lyme knowledgeable doctor in the San ,CA area? I live about an hour south of San Francisco. Thanks,June > > >> >>> Hi all, >>> >>> I have been ill for 15 years now. I went to India in 1992. I also have hiked in the Santa Cruz Mountains and live in San ,CA. >>> >>> I have an increased number of mast cells in my gut which flare up if I am upset, am too hot or eat dairy,anything with yeasts or molds, chocolate or alcohol or cooked tomato sauce and spices. I have anaphylactic type reactions which end me in the ER. I also get hot and sweaty several times during the day and night alternating with chills. >>> >>> I have lost ten pounds in the last 5 years. Recently I went to a chiropractic nutritionist who has been testing me for parasites.I have Kaiser which has not helped me. I also have a high level of heavy metals. I just found out that I have several parasites including H.pylori. >>> >>> I just had a CD57 test done and the number was 40 which is quite low so my doctor just had me do a blood test called Spiro-stat where they do DNA testing of microbes in the blood. I also have bartonella in the blood. He suspects lyme. I get the results in 2-3 weeks. >>> >>> I was just in the emergency room last Thursday night with a cardiac event. I had tachycardia for more than 5 hours after a stressful situation. Luckily I had a test that showed I have no heart damage or any plaquing of the cardiac arteries. While there I had a blood test that showed high neutrophils and low lymphocytes and monocytes which is new from last year. I feel like I am slowly dying. I eat all day long and can't gain the weight back. Luckily I am able to exercise for about 30 minutes daily. >>> >>> Sorry to go on so long. Just wanted your opinions. >>> >>> Take care, >>> June >>> >>> >>> >>> ------------------------------------ >>> >>> Lyme Disease News continually updated from thousands of sources around the >>> net: http://www.topix.net/health/lyme-disease >>> >>> MedWorm: The latest items on: Lyme Disease >>> http://tinyurl.com/23dgy8 >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Any lyme literate doctors in the San Francisco Bay area? Thanks, June > > > Thanks everyone, > > How do I find a lyme literate doctor? > > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 June I live in the Santa Cruz Mountains, Los Gatos area. We see a doctor in Los Altos/MountainView area, you are welcome to contact me directly for contact info. _mglenn@..._ (mailto:mglenn@...) We are happy with him - sadly no insurance taken - but that does not seem to be unusual when they are specific to Lyme treatment. In a message dated 2/5/2011 10:46:15 A.M. Pacific Standard Time, junevarn@... writes: Any lyme literate doctors in the San Francisco Bay area? Thanks, June > > > Thanks everyone, > > How do I find a lyme literate doctor? > > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Hi June - I'm in land so I don't know much about LLMD's in California. You could try joining the group called CaliforniaLyme: CaliforniaLyme/ Maybe if you post an introduction there and ask for LLMD references you'll get a response. Or maybe better yet the California Lyme Disease Association has a great website with a section for doctor refferals: http://www.lymedisease.org/ Hopefully someone else will have an idea to help you find an LLMD. Don On 2/4/2011 11:40 PM, June wrote: > Thanks everyone, > > How do I find a lyme literate doctor? > > June > > >> Hi all, >> >> I have been ill for 15 years now. I went to India in 1992. I also have hiked in the Santa Cruz Mountains and live in San ,CA. >> >> I have an increased number of mast cells in my gut which flare up if I am upset, am too hot or eat dairy,anything with yeasts or molds, chocolate or alcohol or cooked tomato sauce and spices. I have anaphylactic type reactions which end me in the ER. I also get hot and sweaty several times during the day and night alternating with chills. >> >> I have lost ten pounds in the last 5 years. Recently I went to a chiropractic nutritionist who has been testing me for parasites.I have Kaiser which has not helped me. I also have a high level of heavy metals. I just found out that I have several parasites including H.pylori. >> >> I just had a CD57 test done and the number was 40 which is quite low so my doctor just had me do a blood test called Spiro-stat where they do DNA testing of microbes in the blood. I also have bartonella in the blood. He suspects lyme. I get the results in 2-3 weeks. >> >> I was just in the emergency room last Thursday night with a cardiac event. I had tachycardia for more than 5 hours after a stressful situation. Luckily I had a test that showed I have no heart damage or any plaquing of the cardiac arteries. While there I had a blood test that showed high neutrophils and low lymphocytes and monocytes which is new from last year. I feel like I am slowly dying. I eat all day long and can't gain the weight back. Luckily I am able to exercise for about 30 minutes daily. >> >> Sorry to go on so long. Just wanted your opinions. >> >> Take care, >> June >> > > > > ------------------------------------ > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Another option is self treat yourself. Many folks have gotten their health back this way. I have a totally free lyme resource Cd that contains a lot of information you might find useful. See my web page. www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > [ ] Re: New here > > Hi all, > > So I started to read the Burrascano guidelines and I'm > getting a little freaked out. I may actually have lyme > disease and will probably have to go outside of my insurance > unless I make a really big stink at Kaiser. I have already > spent thousands of dollars trying to find out what is wrong > with me. I have already tested positive for trichinella, > entameba histolytica, toxoplasma and H.pylori. I am taking > herbal medicines for the h.pylori and am waiting for meds for > the trichinella from India. > > I feel really tired all the time and my hair is falling out. > I also have autoimmune thyroid disease. > > Really scared, > June > > P.S. Can someone write me off group about a lyme > knowledgeable doctor in the San ,CA area? I live about > an hour south of San Francisco. Thanks,June > > > > > > > Hi all, > > > > > > I have been ill for 15 years now. I went to India in > 1992. I also have hiked in the Santa Cruz Mountains and live > in San ,CA. > > > > > > I have an increased number of mast cells in my gut which > flare up if I am upset, am too hot or eat dairy,anything with > yeasts or molds, chocolate or alcohol or cooked tomato sauce > and spices. I have anaphylactic type reactions which end me > in the ER. I also get hot and sweaty several times during the > day and night alternating with chills. > > > > > > I have lost ten pounds in the last 5 years. Recently I > went to a chiropractic nutritionist who has been testing me > for parasites.I have Kaiser which has not helped me. I also > have a high level of heavy metals. I just found out that I > have several parasites including H.pylori. > > > > > > I just had a CD57 test done and the number was 40 which > is quite low so my doctor just had me do a blood test called > Spiro-stat where they do DNA testing of microbes in the > blood. I also have bartonella in the blood. He suspects lyme. > I get the results in 2-3 weeks. > > > > > > I was just in the emergency room last Thursday night with > a cardiac event. I had tachycardia for more than 5 hours > after a stressful situation. Luckily I had a test that showed > I have no heart damage or any plaquing of the cardiac > arteries. While there I had a blood test that showed high > neutrophils and low lymphocytes and monocytes which is new > from last year. I feel like I am slowly dying. I eat all day > long and can't gain the weight back. Luckily I am able to > exercise for about 30 minutes daily. > > > > > > Sorry to go on so long. Just wanted your opinions. > > > > > > Take care, > > > June > > > > > > > > > > > > ------------------------------------ > > > > > > Lyme Disease News continually updated from thousands of sources > > > around the > > > net: http://www.topix.net/health/lyme-disease > > > > > > MedWorm: The latest items on: Lyme Disease > > > http://tinyurl.com/23dgy8 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Hi June! I'm new here too - just joined today actually! And I saw your message, that you're looking for a Lyme Literate dr. in the Bay Area. I will try to figure out how to email you offline with the name of my doctor, who is one of the top in the country, and is in the area. Hope you get better soon! > > > Thanks everyone, > > How do I find a lyme literate doctor? > > June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 There was a time when i stayed away from this group due to someone pushing products aside from coconut oil. When someone posts an ailment thinking vco would help and asks for advice, the person would jump and inject the self sponsored-product. It has made my head reel, i could memorize the by-lines and products...just so sick of it. Can we not just go back to discussing coconut oil and its derivatives? There are other forum/fora for other products. Alobar, the list owner, can we have your views on this? Thanks. > > > > I thought this group was about coconut oil & in the last 2 weeks I've seen > > VERY little about that. Â Is it possible that going forward if one is going > > to discuss things other than coconut oil to put in the topic " OT - HGH " or > > whatever the topic is? That would really help me. > > > > Thank you so much! > > - Tesser > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 - I AGREE!!! Tesser White ________________________________ From: <@...> Coconut Oil Sent: Mon, February 14, 2011 11:51:38 AM Subject: Re: New here There was a time when i stayed away from this group due to someone pushing products aside from coconut oil. When someone posts an ailment thinking vco would help and asks for advice, the person would jump and inject the self sponsored-product. It has made my head reel, i could memorize the by-lines and products...just so sick of it. Can we not just go back to discussing coconut oil and its derivatives? There are other forum/fora for other products. Alobar, the list owner, can we have your views on this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 I am not the list owner, just a moderator. Speaking as a person who values this discussions on this list, I like that the list i much broader than just coconut oil. Alobar On Mon, Feb 14, 2011 at 12:51 PM, <@...> wrote: > There was a time when i stayed away from this group due to someone pushing products aside from coconut oil. When someone posts an ailment thinking vco would help and asks for advice, the person would jump and inject the self sponsored-product. Â It has made my head reel, i could memorize the by-lines and products...just so sick of it. > > Can we not just go back to discussing coconut oil and its derivatives? > > There are other forum/fora for other products. > > Alobar, the list owner, can we have your views on this? > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 Greetings All ~ I too am new and have been checking in frequently to learn more about coconut oil. Not once have I seen any member actually discussing VCO. However, I have read enough to understand that improving health through nutrition is the common focus of the regulars, and have learned from the subjects. If you know of a group that would like to focus on coconut, let me know and I will add them to the message boards I follow. Thanx TucsonTootsie > > There was a time when i stayed away from this group due to someone pushing products aside from coconut oil. When someone posts an ailment thinking vco would help and asks for advice, the person would jump and inject the self sponsored-product. Â It has made my head reel, i could memorize the by-lines and products...just so sick of it. > > > > Can we not just go back to discussing coconut oil and its derivatives? > > > > There are other forum/fora for other products. > > > > Alobar, the list owner, can we have your views on this? > > > > Thanks. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 let me know too. I am disappointed. - Tesser _____ From: Coconut Oil [mailto:Coconut Oil ] On Behalf Of Sent: Monday, February 14, 2011 6:48 PM Coconut Oil Subject: Re: New here Greetings All ~ I too am new and have been checking in frequently to learn more about coconut oil. Not once have I seen any member actually discussing VCO. However, I have read enough to understand that improving health through nutrition is the common focus of the regulars, and have learned from the subjects. If you know of a group that would like to focus on coconut, let me know and I will add them to the message boards I follow. Thanx TucsonTootsie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 When I first joined this group, the discussion was, indeed, almost entirely on coconut oil, but then so many other health issues were brought up. I'm happy to say that I've learned more here than on any other forum, so this branching out, away from coconut oil, has been a real boon for me. There's plenty of coconut oil info in older threads, so take a trip back into the older posts, and you'll find all you need. M > > let me know too. I am disappointed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2011 Report Share Posted February 14, 2011 This group has been here since 2003, and the archives are available on the web: Coconut Oil There's lots of discussion about coconut oil there. A lot of us here have been using VCO for a very long time, and it's not like we all just sit around, chatting endlessly about coconut oil. When groups have this narrow a focus, it's common for a lot of the discussion to be about other things. The colloidal silver group is the same way; it's mostly libertoonian teabagger politics, but if a question about CS is asked, the answers will fly. So, if you have any questions about VCO, speak up and ask them. > > let me know too. I am disappointed. > > - Tesser > > _____ > > From: Coconut Oil > [mailto:Coconut Oil ] On Behalf Of > Sent: Monday, February 14, 2011 6:48 PM > Coconut Oil > Subject: Re: New here > > > > > Greetings All ~ > > I too am new and have been checking in frequently > to learn more about coconut oil. Not once have I > seen any member actually discussing VCO. However, > I have read enough to understand that improving > health through nutrition is the common focus of > the regulars, and have learned from the subjects. > > If you know of a group that would like to focus on > coconut, let me know and I will add them to the > message boards I follow. > > Thanx > TucsonTootsie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Maybe the group name should change to [Coconut Oil et al] I like reading other things. VCO is great but it's too narrow to talk about exclusively-although sometimes the discussions get way too technical for me. Laurie ________________________________ From: Stanley <j_alexander_stanley@...> Coconut Oil Sent: Mon, February 14, 2011 10:06:07 PM Subject: Re: New here This group has been here since 2003, and the archives are available on the web: Coconut Oil There's lots of discussion about coconut oil there. A lot of us here have been using VCO for a very long time, and it's not like we all just sit around, chatting endlessly about coconut oil. When groups have this narrow a focus, it's common for a lot of the discussion to be about other things. The colloidal silver group is the same way; it's mostly libertoonian teabagger politics, but if a question about CS is asked, the answers will fly. So, if you have any questions about VCO, speak up and ask them. > > let me know too. I am disappointed. > > - Tesser > > _____ > > From: Coconut Oil > [mailto:Coconut Oil ] On Behalf Of > Sent: Monday, February 14, 2011 6:48 PM > Coconut Oil > Subject: Re: New here > > > > > Greetings All ~ > > I too am new and have been checking in frequently > to learn more about coconut oil. Not once have I > seen any member actually discussing VCO. However, > I have read enough to understand that improving > health through nutrition is the common focus of > the regulars, and have learned from the subjects. > > If you know of a group that would like to focus on > coconut, let me know and I will add them to the > message boards I follow. > > Thanx > TucsonTootsie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 I will second that for sure. Makes my brain get limp trying to make sense of it all. ________________________________ From: Laurie Adler <92adler@...> Coconut Oil Sent: Tue, February 15, 2011 1:37:22 PM Subject: Re: Re: New here Maybe the group name should change to [Coconut Oil et al] I like reading other things. VCO is great but it's too narrow to talk about exclusively-although sometimes the discussions get way too technical for me. Laurie ________________________________ From: Stanley <j_alexander_stanley@...> Coconut Oil Sent: Mon, February 14, 2011 10:06:07 PM Subject: Re: New here This group has been here since 2003, and the archives are available on the web: Coconut Oil There's lots of discussion about coconut oil there. A lot of us here have been using VCO for a very long time, and it's not like we all just sit around, chatting endlessly about coconut oil. When groups have this narrow a focus, it's common for a lot of the discussion to be about other things. The colloidal silver group is the same way; it's mostly libertoonian teabagger politics, but if a question about CS is asked, the answers will fly. So, if you have any questions about VCO, speak up and ask them. > > let me know too. I am disappointed. > > - Tesser > > _____ > > From: Coconut Oil > [mailto:Coconut Oil ] On Behalf Of > Sent: Monday, February 14, 2011 6:48 PM > Coconut Oil > Subject: Re: New here > > > > > Greetings All ~ > > I too am new and have been checking in frequently > to learn more about coconut oil. Not once have I > seen any member actually discussing VCO. However, > I have read enough to understand that improving > health through nutrition is the common focus of > the regulars, and have learned from the subjects. > > If you know of a group that would like to focus on > coconut, let me know and I will add them to the > message boards I follow. > > Thanx > TucsonTootsie > > > > > Quote Link to comment Share on other sites More sharing options...
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