Guest guest Posted July 20, 2003 Report Share Posted July 20, 2003 true, lymies can: 1)treat themselves with non prescription therapies 2)find and travel to an LLMD 3)go thru lot's of conventional docs looking for one that will take on lyme those are the choices >Carol, > >You said ... " That's why a REAL LLMD, not an infectious disease specialist, >hematologist, rheumatologist, neurologist, etc! They claim to know about >lyme, but they don't. " > >Please don't lump all of those categories into one non-LLMD pot because it's >just not true. A rheumatologist did more for me than any other Dr. did. >Some not only *claim* to know about Lyme but they actually do. Imagine >that. > >I just hate to read posts like yours that run down every single Dr. that >*you* think is not Lyme literate. Have you been to every single Dr. in the >country? I think not. You are basically telling all the newbies and newly >diagnosed, that unless they go to a specific Dr., and *not* a >rheumatologist, neurologist, etc., they won't get well when you have no clue >if that's really true. > >Everyone needs to do the research, ask the questions, and then make the >choice that is right for them, not right for someone else. Some swear by >natural products, others hate them. Some swear by antibiotics alone, others >hate that idea. Obviously, some swear by one type of Dr. while others have >found help from non-traditional Lyme literate specialties. We're all >different and different things work for different people. Just because it >worked for one doesn't mean it will work for you. Just remember that! > >Jean > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 I think all Carol is trying to say is that you will not find all LLMDs in one specific specialist field, but in many, but not all in those fields are LLMDs and all of you are saying the same thing as she is only telling her that she is not but she is. She may just not be as clear as you, I hope what I am saying is making sense. Hugs, Michele -----Original Message----- From: Carol Kerr Sent: Sunday, July 20, 2003 2:08 PM (snip) That's why a REAL LLMD, not an infectious disease specialist, hematologist, rheumatologist, neurologist, etc! They claim to know about lyme, but they don't. (snip) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 You hit the nail on the head! Thank you for seeing what I was saying!! Sorry for my lack of clarity... I'm in the middle of the biggest herx I've ever suffered. I'm having a gallbladder attack on top of that! Had to go off ABX till checked out by PCP, who won't see me till WED!! I am only eating oatmeal and suffering the greatest pain throughout my body I've ever known!! Oh yeah, I'm pretty miserable! I'm losing it emotionally and mentally and probably should have kept my mouth shut under the circumstances... but, I am passionately seeking to help others avoid mis-diagnosis! The long term affects of this illness are devastating!! If I can point one person in the direction they need to go, to avoid years and years of agony and specialists, who just don't KNOW about the 3rd Stage, Chronic complications, like I've been through, I'm going to try. I know, that if you keep treating the symptoms, but don't address the disease, you'll wake up one morning at age 42 and wish you were dead because the pain and confusion is too much for you to handle too. I could care less which " specialty " the man studied, he needs to be LYME LITERATE!!! Otherwise you are a guinea pig! It's not fair to you! I apologize for any confusion I brought to this board. My words may be mixed up, but my intentions are honorable. Peace out! Carol Kerr -- RE: [ ] new here I think all Carol is trying to say is that you will not find all LLMDs in one specific specialist field, but in many, but not all in those fields are LLMDs and all of you are saying the same thing as she is only telling her that she is not but she is. She may just not be as clear as you, I hope what I am saying is making sense. Hugs, Michele -----Original Message----- From: Carol Kerr Sent: Sunday, July 20, 2003 2:08 PM (snip) That's why a REAL LLMD, not an infectious disease specialist, hematologist, rheumatologist, neurologist, etc! They claim to know about lyme, but they don't. (snip) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 >>>>>>>Carol is trying to say is that you will not find all LLMDs in one specific specialist field, but in many, but not all in those fields are LLMDs >>> I'm sorry for the misunderstanding Carol, Thanks for the clarification .......... I guess that is how I read it too........its easy to misread posts. Sorry for not understanding. I agree...........LLMD's can be found in many different medical fields. ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 <<<Sorry, for my lack of clarity<>>> No, sorry for our lack of understanding ConnieKnwnj When our bodies & minds are out of balance....... ........we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 My turn to ditto Connie's post. LOL! I read your post wrong also Carol. LLMD's do come in 'all varieties' and aren't just in one specific field. Sorry about jumping with both feet so hard but I wanted everyone to know that looking for a Dr. in just one area was not a good idea. Sorry! Jean Re: [ ] new here > I'm sorry for the misunderstanding Carol, > Thanks for the clarification .......... > I guess that is how I read it too........its easy to misread posts. > Sorry for not understanding. > I agree...........LLMD's can be found in many different medical fields. > > ConnieKnwnj > When our bodies & minds are out of balance....... > .......we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 no harm done! Carol Kerr -- Re: [ ] new here My turn to ditto Connie's post. LOL! I read your post wrong also Carol. LLMD's do come in 'all varieties' and aren't just in one specific field. Sorry about jumping with both feet so hard but I wanted everyone to know that looking for a Dr. in just one area was not a good idea. Sorry! Jean Re: [ ] new here > I'm sorry for the misunderstanding Carol, > Thanks for the clarification .......... > I guess that is how I read it too........its easy to misread posts. > Sorry for not understanding. > I agree...........LLMD's can be found in many different medical fields. > > ConnieKnwnj > When our bodies & minds are out of balance....... > .......we suffer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Toni it sounds like you have your hands full with your two girls. I'm Angie and have a 3 yrs old dd with Down syndrome and possible apraxia...I'm on this learning journey myself and getting ready to reach out here for some other Ds parents...I want to jump in to this full force. Sydnie started reg preschool (2 yr old class) 2 weeks ago and will start another program tomorrow. She signs and has a quite a few words but alot comes out in one syllable. Hang in there it has to get better for all of us. ~Angie May God Bless You As He Has Us www.babiesonline.com/babies/s/sydniebrooke mom to Sydnie (3, Ds), 3 angels in Heaven http://www.earningforce.com/go.cgi?sydniesmom5 [ ] New here It just occured to me that before my computer went haywire, I hadn't sent my intro to this group. :-) So here it goes: My name is Toni. I'm a stay home mom to Hope and Faith. Hope was born 4 weeks early but was totally healthy and came home like any other baby. She's now 3 and has been Dx with Seizure disorder with verbal apraxia, and Migraines. Her neurologist is convinced that her seizures and her apraxia are interlinked since she was talking wonderfully up until she had her first grand mal seizure at 14 months old. Then it was like someone pulled a plug and she couldn't speak. Not even babble for the longest time. Now she says about 30 words that are decipherable, but she only says part of the word. She's just now beginning to say more than one syllable, and she has to think about the second part before it comes out. Her seizures are controlled now with meds so we're hoping the longer she goes without a seizure the more her speech will improve. Each time she has one she backslides a bit. For example about a year ago she had a wonderful " L " sound. Now she can't say any " L " s at all. We're in the middle of the transition from our local Early Intervention speech therapy to the Intermediate Unit speech therapy. They weren't actually going to start this transition with her until next month, but her speech therapist went into pre-term labor a few weeks ago and just had the baby last week. Faith was born 5 weeks early and spent time in NICU on a vent and on a bunch of drugs getting her ready to go home. She'll be 2 in October. She's been Dx with Hypotonic Cerebral Palsy, Speech delay, Cognative Delay, and Asthma. She gets OT and DT from the EI here, and once her speech therapist comes back from maternity leave she'll be restarting ST as well. She actually has more understandable words than her older sister does, which floors people since Faith has the cognative skills of a 9 month old. But the two girls play together great, most of the time. lol Up until Hope was Dx I had never heard of apraxia and knew nothing. Then I spent days reading everything I could find on the internet learning what I could. The hardest part is trying to talk to people about it. Even other parents who have children with speech delays, a lot of them just dont get how difficult it is for kids like Hope. Of course most of them have children with speech delays and it's a mild form, like they have trouble with a few sounds but they can communicate well in general. Hope does sign on some things that she just can't say, but she's very determined to talk and unless she just can't get her point across she refuses to sign. Which results in me having to translate what she's saying to other people since she only says parts of words. The big challenge right now is preschool. I've been considering homeschooling her, but her developmental therapist thinks she needs something with a little more intense structure right now. We're waiting now to get the evaluation from the Intermediate unit about sending her to thier preschool. Locally we've found 1 preschool that can handle her communication problem, and it's so expensive we'd have to hit the lottery to send her. Most days we spend a lot of time working with Hooked on Phonics trying to help her combine sounds a little better, and doing crafts since she's a very artsy kid.She does like Noggin's programming and she'll sit and do the alphabet, count and everything with them. It just gets frustrating that when I'm doing something with Faith that if she can't get her point across as to what she wants, she whines and throws a fit. Lately she's starting pulling her sister's hair out in big clumps too. Days like that I just dont know what to do with her. There have been days that when I send her to her room for a time out, it's like that's all she does that day is sit in there. I'll get her out of a time out and within 10 minutes she's back in another one. I'm just at the end of my rope. Hope to hear from you soon Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Oh Toni, I know where you are coming from. I remember those days way too well!! But please keep your chin up & know that this too shall pass. It will get better. My apraxic son is now 5 & doing much better than I ever expected. At age three he was dx verbally at the age of a 6-9 month old. Big blow, I knew there was a problem just not that much of a problem. is my 4th child, born almost 4 weeks early. He was failure to thrive, jaundice, reflux, breathing problems, etc. Yet he came home & no one realized he had any problems. Just thought his paranoid mother wasn't nursing him enough. Not that he was so jaundice that he wouldn't even wake up & when I did get him to nurse then everything would run right out his nose??? We are no longer with that doctor by the way!! And I have finally put that guilt trip to rest. But what I would like to say here is that after 2 1/2 yrs of speech therapy with a therapist that knew about apraxia & supplementing with Pro EFA is now talking in 5-6 word sentences. Articulation is still a big issue & there are still a lol more things to tackle but we no longer have the frustration that he had when he was younger. just started a mainstream kindergarten a couple of weeks ago. We are having some problems adjusting but I think it is getting better. did a Communication Disorder PreK with our county school system last year at age 4 & did wonderful. It was taught by a slp along with 2 aides. There were 15 kids in the class with being one of the most delayed. He really blossomed socially during the school year. I just only hope that this year will be as successful?? Not sure he is ready, but we are moving forward. It is so hard when they are young & so frustrated. Hang in there, this group will help you through every step of the way. Not sure what I would have done without it? Tammy I. in FL mom to 5 apraxic, 7, 18 stuttered severly as young child, & 22 PS think of it this way, when was a baby I had a infant, toddler & teens. And somehow I survived, of course there were days I really questioned if I would survive!! From: " Toni Wells " <mommybizz@...> Reply- < > Subject: [ ] New here Date: Mon, 18 Aug 2003 11:25:07 -0400 _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Toni, Welcome! Assuming you are in the US. Your school district has to provide an appropriate education for your kids. If it means out districting then get your ducks in a row and have them pay. denise The big challenge right now is preschool. I've been considering homeschooling her, but her developmental therapist thinks she needs something with a little more intense structure right now. We're waiting now to get the evaluation from the Intermediate unit about sending her to thier preschool. Locally we've found 1 preschool that can handle her communication problem, and it's so expensive we'd have to hit the lottery to send her. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Yep I'm in the US. But unfortunately preschool is considered optional and they only have to provide appropriate education that the law requires. And the law here in PA technically doens't require children to be in school until age 8. So anything before that the school district is of the opinion they dont have to, so they wont. Now if she is enrolled in Kindergarden when she's 5, then they'll start working with her becuase she's in the system already and that would be discrimination if they dont. So until she's 5 we're on our own. Luckily the county has wonderful programs for younger kids with their therapies, they're teamed with with ARC and United Cerebral Palsy. Toni [ ] Re: New here Toni, Welcome! Assuming you are in the US. Your school district has to provide an appropriate education for your kids. If it means out districting then get your ducks in a row and have them pay. denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Hi Toni, I am also in PA and as soon as my daughter turned three(which was in May) the Early Intervention stopped, but then the School district Intervention took it's place. We developed an IEP immediately and she went to summer session therapy in July and then they are paying for her preschool in which she will receive speech therapy during school sessions which starts in August. They also offer alternative speech group in which they do fun activities and speech therapy in a group setting, if I had decided not to send her to the preschool that I chose. I am not sure if the rules are different in different counties or not, I would think it would be the same throughout the state. But the school district should automatically pickup when early intervention ends. in PA Re: [ ] Re: New here Yep I'm in the US. But unfortunately preschool is considered optional and they only have to provide appropriate education that the law requires. And the law here in PA technically doens't require children to be in school until age 8. So anything before that the school district is of the opinion they dont have to, so they wont. Now if she is enrolled in Kindergarden when she's 5, then they'll start working with her becuase she's in the system already and that would be discrimination if they dont. So until she's 5 we're on our own. Luckily the county has wonderful programs for younger kids with their therapies, they're teamed with with ARC and United Cerebral Palsy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Your school district should be providing early childhood services starting at the age of three. " FREE APPROPRIATE PUBLIC EDUCATION - In order to comply with the federal mandate (Public Law 102-119, known as the Individuals with Disabilities Education Act, Part B (34 CFR Parts 300 and 301 and Appendix C) that all disabled children receive a free appropriate public education, a school district must provide special education and related services at no cost to the child or her/his parents " . You can request a full case study to be completed by the school district. After the case study is done, an IEP meeting is scheduled and determination for special education is made. If your child is eligible for services, a plan should be developed and placement should be determined. Many school district will attempt to blow off parents hoping they will go away, however, they are responsible for providing special education serves from the age of 3-21 if needed (this is a federal mandate which all states need to comply with) . Contact the special education director and request a case study in writing, they have about 10 days to notify you on their decision to conduct the case study. Once you give written consent, they have 60 days to completed the evaluation. If you don't have luck with the director, contact the superintendent and share you concerns (or cc you request for case study to the superintendent). I am familiar with this process as a parent and a professional...I am a school psychologist and a special education facilitator. GOOD LUCK Toni Wells <mommybizz@...> wrote: Yep I'm in the US. But unfortunately preschool is considered optional and they only have to provide appropriate education that the law requires. And the law here in PA technically doens't require children to be in school until age 8. So anything before that the school district is of the opinion they dont have to, so they wont. Now if she is enrolled in Kindergarden when she's 5, then they'll start working with her becuase she's in the system already and that would be discrimination if they dont. So until she's 5 we're on our own. Luckily the county has wonderful programs for younger kids with their therapies, they're teamed with with ARC and United Cerebral Palsy. Toni [ ] Re: New here Toni, Welcome! Assuming you are in the US. Your school district has to provide an appropriate education for your kids. If it means out districting then get your ducks in a row and have them pay. denise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Hi Toni...My name is Mandy and I was just reading one of your posts and saw that you live in Westmoreland County. We are not to far from there,well closer then I've seen anyone else post. We are just across the border in Ohio,Mahoning County. It's really nice to see someone so close. We are taking our son to see a SLP who specializes in Apraxia on Sept. 18 in Cranberry. My son,, is also 3 years old. He was Dx with Apraxia in June of this year. is otherwise a " normal " and very,very active 3 year old boy except for the fact that he can't speak. We are also in the process of dealing with our school district. I'm filling out paperwork on getting him an IEP. Are you running into any problems? My school district tried to blow us off the first time that I called. They told me that they never heard of helping a preschool age child, but then I called back and they're willing to help now. I have no idea what lies ahead with the help,because the principal doesn't know what kind of help is available for . This is his first preschool IEP. You do find alot of info reading the posts on this, I very rarely post anything. I manly just read and gather info and don't feel I have the experience or expertise to respond to anything. But feel free to email me, it might help to have someone to talk to with a child the same age. Hope to hear from you. Mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Thanks , I will be seeing the Rheumy again in a month and will be talking to him about pain management. Tylenol with Codeine DOES NOT work for me. I've taken that many times for surgeries, etc and it's like taking a life saver. I do have percacet but try to limit it as I am paranoid of becoming addicted to any med's. I just started to take the sulindac tonight and will see if/how that helps. I end up taking tylenol pm every couple of nights in order to get some sleep. The med he perscribed for me to sleep at night makes me sick the next day, so I forgo it. It is Trazadone. Will see what happens with time and patience. But yes, I do suffer from pain more than I would like. Hence the reason I was sure from the previous diagnosis that it was Fibromyalgia. I never knew there could be something like this with a name. Am I ever learning. Thanks for listening. Q. [Editor's Note: Quyrah, you're most welcome. I'm glad to hear that you have access to a good pain med when you need it. (Incidentally, addiction is very rare in people with legitimate need for such meds; talk this over with your docs. In reading I've done on Trazedone, many people have had one problem or another with it (nausea, weight gain, insomnia, etc.) Would he consider letting you have Ambien? That drug seems pretty well-tolerated. Good luck. D.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Welcome to the group !! I'm Missy and mom to five kiddos. My 14yr old son, 4yr old son and 2.5yrold daughter all have AS with associated problems as well. This is a great group and if you have any questions just ask. There are a lot people here with years of experience. MISSY SAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. ( ) New Here > I just joined today....actually found this group when I was > researching AS today. > My name is R. Live in Ny state w/my husband, Steve, and our two > boys, and . > just turned 4 years old last month. Back in April he was > evaluated for preschool and they made the discovery that he had > problems. One of the girls told me possibly Aspergers and ADHD. He > was sent for a medical evaluation in October....where they determine > what is wrong and its now in his medical records. He was diagnosed > Aspergers Syndrome with an associated disorder of attetion and > associated disorder of sensory processing. Kind of hard to deal with > but glad to finally have answers. My husband and I always felt > something was wrong but we figured it was just ADD or ADHD....Then > the AS came up....which felt that moment of truth for myself too as I > have the same sensory issues and had that lack of social skills > growing up. > my other son is only 9 months old. No clue if he will have the > same problems or not. He had a 9 month check up yesterday and the dr > commented that cried around strangers -she told me that was > perfectly normal and said if he is doing that he might not have the > AS like my other child. > > so, thats what brings me here..to learn as much as I can and feel > like I am not alone.... > > ~~ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Hi ! Welcome to the group! My name is Hunt! I have a normal 12 year old, normal 6 year old and an AS 10 year old(boy,boy, girl) Great site to gain knowledge and help! Even feel free to complain , gripe and let it all out! My AS Daughter has AS, ADHD, ODD and PDD. She has some sensory integration problems but most of them she has grown out of.. I guess! It is all a learning process! Nice to meet you! Have fun and join in!! Steph from Dallas , Texas > I just joined today....actually found this group when I was > researching AS today. > My name is R. Live in Ny state w/my husband, Steve, and our two > boys, and . > just turned 4 years old last month. Back in April he was > evaluated for preschool and they made the discovery that he had > problems. One of the girls told me possibly Aspergers and ADHD. He > was sent for a medical evaluation in October....where they determine > what is wrong and its now in his medical records. He was diagnosed > Aspergers Syndrome with an associated disorder of attetion and > associated disorder of sensory processing. Kind of hard to deal with > but glad to finally have answers. My husband and I always felt > something was wrong but we figured it was just ADD or ADHD....Then > the AS came up....which felt that moment of truth for myself too as I > have the same sensory issues and had that lack of social skills > growing up. > my other son is only 9 months old. No clue if he will have the > same problems or not. He had a 9 month check up yesterday and the dr > commented that cried around strangers -she told me that was > perfectly normal and said if he is doing that he might not have the > AS like my other child. > > so, thats what brings me here..to learn as much as I can and feel > like I am not alone.... > > ~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 <<They have the same issues for the most part, but it comes out so differently. As an infant one was high needs the other so easy going I was shocked.>> Now that things are " coming together " for us, I really wonder about my (older) mellow baby child. He was just ultra mellow. First time he cried for more than a few minutes was after his 4 month shots. He seemed very content. OTOH The other day he was taking so long in the bathtub with anxiety about rinsing his hair that I told him he couldn't watch Star Trek (it's be over), and *that* made him burst into tears. I am getting increasingly concerned about my younger one the more I read about AS. He does not make friends, and does not play with anyone at recess. He seems happy with just walking around, probably playing some story in his head. He needs to be the boss. And he has a voice modulation problem. There are a few people at regular places we visit that he will interact with, but not like the other kids. In hindsight, I see some of that in my older one, too (who at this point would be termed PDD-NOS). He will go up and play with anyone, anywhere, as long as they don't talk about Rugrats or Sponge Bob or Mickey Mouse. But it's the longevity thing that gets him in trouble. After a while when the obvious play options (such as at a park) are exhausted, he doesn't always know what to do. Or the next time he goes to that park, he absolutely wants that same child to be there. And is upset when it doesn't happen. I was just reading a website that was information for teachers about AS, and so many of the things were reminiscent of older son. Some subtle, but almost all of them were there. Especially since he has recently given up jeans in favor of sweat pants. We'll still have days that are warm enough for shorts, but I need to buy some more sweat pants. I already bought his elastic waist shorts for next summer off the clearance rack at KMart for $4 each. The one thing that really caught my eye about schooling and my younger son is that he insists on finishing things. So unlike his mom and dad. LOL I remember when he was younger I had to discourage him from starting puzzles if we were heading out soon because he could not handle leaving with a puzzle half-done. (He is very, very good at puzzles, so they don't take all that long, but...) He has gotten in trouble several times for not putting a unfinished worksheet away when it was time to move on to something else. He's a wiggle worm, but he is dedicated to getting his work done. We go back to the psychiatrist next week with completed questionnaires from my older son, DH and I, and his teachers. So hopefully we can find even more direction on some treatment strategies. I have to admit this is really stressful right now. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Ditto! My oldest has never met a stranger. My youngest is cautious. Both are PDD. They have the same issues for the most part, but it comes out so differently. As an infant one was high needs the other so easy going I was shocked. One hit most of the milestones on time and then started to get behind. (say around 18 months) The other was always slow on milestones. One is loud. One is quiet. Yet both have speech, social, fine motor, and self help issues. a > As for the crying around strangers being a sign he isn't AS, I wouldn't count on that at all! My 14 yo cried around anyone who wasn't me, dad or his sister from birth. I remember asking the doc at his 3 month check up why he cried whenever anyone held him. He would later be dx'd with HFA. It's less to do with " stranger anxiety " than with it happening at the appropriate age range and not lasting 14 years. <g> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 When Zach was an infant/toddler we used to say he could pick a friend or enemy out of any crowd. If he didn't like someone there was usually a really good reason, tho we may not have known what it was right away. My 4yr old and 2.5 yr old are the same way, now. MISSY SAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. Re: ( ) New Here > Ditto! My oldest has never met a stranger. My youngest is cautious. > Both are PDD. They have the same issues for the most part, but it > comes out so differently. As an infant one was high needs the other > so easy going I was shocked. One hit most of the milestones on time > and then started to get behind. (say around 18 months) The other was > always slow on milestones. One is loud. One is quiet. Yet both have > speech, social, fine motor, and self help issues. a > > > As for the crying around strangers being a sign he isn't AS, I > wouldn't count on that at all! My 14 yo cried around anyone who > wasn't me, dad or his sister from birth. I remember asking the doc > at his 3 month check up why he cried whenever anyone held him. He > would later be dx'd with HFA. It's less to do with " stranger > anxiety " than with it happening at the appropriate age range and not > lasting 14 years. <g> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2003 Report Share Posted November 14, 2003 Interesting...well I guess I will keep an eye out on my baby too.....I have picked up on how different he is from when my oldest was a baby... hated to be cuddled - loves it. didn't mind playing by himself.... loves to play w/me and . fussiness, crying, etc.....just so much difference..... Of course, now I am reading the Out of Sync child book - can be AS or PDD, etc but different issues w/ hyposensitive, hypersensitive, etc.... guess time will tell to see how he is -glad to know I can look for certain things.... mary > Ditto! My oldest has never met a stranger. My youngest is cautious. > Both are PDD. They have the same issues for the most part, but it > comes out so differently. As an infant one was high needs the other > so easy going I was shocked. One hit most of the milestones on time > and then started to get behind. (say around 18 months) The other was > always slow on milestones. One is loud. One is quiet. Yet both have > speech, social, fine motor, and self help issues. a > > > As for the crying around strangers being a sign he isn't AS, I > wouldn't count on that at all! My 14 yo cried around anyone who > wasn't me, dad or his sister from birth. I remember asking the doc > at his 3 month check up why he cried whenever anyone held him. He > would later be dx'd with HFA. It's less to do with " stranger > anxiety " than with it happening at the appropriate age range and not > lasting 14 years. <g> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Hi Nichole and welcome! Many of our children were also tested for syndromes -and pretty much all of us had results that came back negative. And even cases where the results are positive -most here have children that are doing really well! So just get a good's night sleep and remember it's going to be OK tomorrow no matter what! You will really want to contact Tricia Morin from NC morinfamily4@... morinfamily4 at nc.rr.com -she runs the military parents support group (since she knows all about therapy on military bases etc.) Tricia is also one of the moderators here at CHERAB, and for Speechville.com, and co founded SPEAK of Missouri (before she moved to NC!) This link is about Tricia's son written by Hoffmann M.A., CCC- SLP, President of the Missouri Speech Language Hearing Association http://www.cherab.org/information/silentnomore.html On a side note -since Dade's has had chronic ear infections -you may want to explore schooling him at schools for the hearing impaired (not due to any hearing loss -but you'll have a better reason to get into one of these awesome programs!) Many of us -including me, had children with normal hearing who did incredible at preschools for the hearing impaired. There is a program now that is called the Association Method that is a school also based on the principles of teaching hearing impaired children (multisensory) My son Tanner's link http://www.cherab.org/information/familiesrelate/letter.html Let me know if you want more info. Well nice to meet you! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Welcome Nichole! Good luck tomorrow and good luck with the little one on the way. KIM [ ] New here > My son, Dade just turned 2 on Sat (nov 29). His speech development was last evaluated last tues at 14-15 months. Which is an improvement from when we started our journey into Early Intervention and therapy. Tomorrow is our recheck with the developmental ped. It's been 6 months. In the developmental ped's eval from 6 months ago he said that if Dade didn't show improvement in 6 months he would want to test him for fragile X. So tomorrow is the big appointment. His speech therapist is thinking Dade has oral apraxia. The developmental ped also mentioned this to us at his first appointment. So another possible outcome of tomorrow's appointment is that the doctor will put in for more speech therapy besides what he is getting at EI. Which might really be a good thing. If this is the case the insurance will hopefully cover clinical therapy. The EI program here is a home program. Dade also has tubes from chronic ear infections but that all has been ruled out as far as his speech delay. The delay was there before the ear infections, his hearing tested fine and he has had the tubes since May, so it would have been resolved by now if it was do to the ears. Also tomorrow we will be starting the paperwork to make him officially special needs to the military. > Nichole > Proud Navy wife to > Proud mom to Dade 11/29/01 > Proud mom-to-be to ??? EDD 2/8/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2003 Report Share Posted December 7, 2003 GSE-Grapefruit Seed Extract-any HFS should have it. http://www.nutriteam.com/GSEorder2.htm Has more information and can order. new here what is gse? im not familiar at all with this. help !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 Hi Kathy, Welcome to the group and the fight of the body snatchers! I am sure it truly seems like someone has taken various parts of your body and replaced them with painful replacements that don't fit right, then cruelly decorating them with the king of rashes?????? I too have been diagnosed with RA, PA, Sjorgrens, etc. Basically our autoimmune system is fighting us. I am sorry you have been recruited. Please keep in touch with this group, and do not hesitate to ask questions. They are all truly amazing people, who will help educate, and commiserate with you, because we are all there in various forms as well. Gentle Hugs & Prayers, Carol M. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.