Re: to Kitt

[Guest guest]

Hi Kitt....

I am so very sorry to hear about your pain and other problems.....I live in a

small town (less than 40,000) in SC and I do not know how big of a town you live

in since there is some distance between us! However, if it is a smallish town,

let me at least give you my  2cts worth from a small town. I am originally from

a LARGE city - Charlotte, NC - where I swear everything was so MUCH easier!!! I

have been 2 hrs one way to a specialist, 3 hrs to another. And oh yeah - I have

terrible allergies living in the South.....I have never thought about a

connection and it is certainly something I will bring up with my new doc that I

see in Aug..../...

 

Sometimes, my friend, you have to keep  trying and trying until you find the

right doc for you. It isn't always easy as many will tell you, but I promise

you, you keep trying until YOU feel good about the person on the other end

listening to you and your problems. Eventually, you WILL find the right doc -

and you will find promising relief. The key though, is no ONE should ever have

to put up with this pain and NOT have a doc that truly listens.  If that doc

doesn't listent to your honest to goodness pain, then you just have to keep

trying new dr's.... I am still on my own journey but have an appt w/ a promising

doc that was schooled at Hopkins specializing in RA  for many years. In a

way, I am in the same boat - BUT I haven't given up - neither should you! 

Doctors PRACTICE medicine - they do NOT know everything. You have to keep going

until you have found your match!

Good Luck!

in SC

From: Patsy <pab91101@...>

Subject: Re: [ ] Patsy to Kitt

Date: Monday, July 27, 2009, 7:06 PM

 

Hi Kitt,

I was on Enbrel from the time it was first approved by the FDA until three years

ago.  It took me from being disabled to leading a normal life.  Then I got a

difficult case of pneumonia, including a collapsed lung.   It took six months of

being treated by a lung specialist to recover.  My pain level went back up to a

10 since I could not take Enbrel any more.  My rheumatologist eventually had me

try Arava.  It took several months, but I am back to leading a pretty much

normal life.  The worst side effect of Arava for me was diarrhea, but I stuck

with it and am doing fine now.  Since you have been through a similar situation,

perhaps you could discuss Arava with your doctor.

My flares are almost always caused by humidity or a weather change.  However, I

do have allergies so maybe they do  play a role.

Sincerely,

Patsy 

 

____________ _________ _________ __

From: Kitt <kitt021355 (DOT) com>

@gro ups.com

Sent: Friday, July 24, 2009 9:23:33 AM

Subject: [ ] RA and allergies

 

Has anyone had allergies associated with RA. I live in Casper Wyoming, we have

one RA doctor. She is about as useful as a flea. Her idea of help is asking you

how are you, you say you are in pain,she says,ok, see you next month.

 

I went this week to Cheyenne to a specialist there. He seems to think that

allergies are a cause for flare ups.I have been in severe pain for way too long.

I was on Enbrell with GREAT results, but got sickand my immune system crashed.

My white count is 3. I feel bad all the time. Prednisone for flare ups helps

some.

 

The new dr. is putting me on some homeopathic meds,to see how they will do. I am

nearthe end of my rope with pain.

 

Kitt