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Re: Patsy to Kitt

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Hi Kitt,

I was on Enbrel from the time it was first approved by the FDA until three years

ago.  It took me from being disabled to leading a normal life.  Then I got a

difficult case of pneumonia, including a collapsed lung.   It took six months of

being treated by a lung specialist to recover.  My pain level went back up to a

10 since I could not take Enbrel any more.  My rheumatologist eventually had me

try Arava.  It took several months, but I am back to leading a pretty much

normal life.  The worst side effect of Arava for me was diarrhea, but I stuck

with it and am doing fine now.  Since you have been through a similar situation,

perhaps you could discuss Arava with your doctor.

My flares are almost always caused by humidity or a weather change.  However, I

do have allergies so maybe they do  play a role.

Sincerely,

Patsy 

 

________________________________

From: Kitt <kitt021355@...>

Sent: Friday, July 24, 2009 9:23:33 AM

Subject: [ ] RA and allergies

 

Has anyone had allergies associated with RA. I live in Casper Wyoming, we have

one RA doctor. She is about as useful as a flea. Her idea of help is asking you

how are you, you say you are in pain,she says,ok, see you next month.

 

I went this week to Cheyenne to a specialist there. He seems to think that

allergies are a cause for flare ups.I have been in severe pain for way too long.

I was on Enbrell with GREAT results, but got sickand my immune system crashed.

My white count is 3. I feel bad all the time. Prednisone for flare ups helps

some.

 

The new dr. is putting me on some homeopathic meds,to see how they will do. I am

nearthe end of my rope with pain.

 

Kitt

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