Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Well that blows me away. How do they determine this? Who? How often? I may work 30 hours one week, 15 the next. Someone making minimum wage can easily work over 35 hours a week and stay under the 700 criteria. When I applied, I was working, they based their decision on the job I had, the amount I made and the hours I worked. None of that information has changed except I got a .22 cent raise (WOW) so my hours reduced slightly. I wonder if I keep my current job, as they understood it at the time of application and at the time they awarded me benefits that I can conisder myself able to carry on as was..... I have an appt with them in one week to submit my childs birth certif to get him benefits under my work record. I could ask then, but affraid to alert them to ANYTHING that would ultimately disqualify me from receiving benefits. Perhaps the answer is to quit my job. Depsite the benefits I get from it (health, self esteem). My issue is not mainly fatique but inability to lift over 20lbs etc.... Thanks for the input, I hope I haven't already jeopardized my benefits. But I do see your point and your explanation was well done. Jen P.S. Does one have to submit pay stubs or other proof of income monthly, bi-monthly, annually etc to SSI? On Sun, 29 Oct 2000 14:07:49 -0600, egroups wrote: > If you regularly work hours approaching the number that you worked prior to > receiving SSDI, the amount you make becomes irrelevant. For example, if you > volunteered for 30 hours per week, you may loose your benefits, because they > will assume you can work at a full time job. The $700 is merely a guideline. > I help my wife with a home based business. I may decide to draw no pay to > stay below $700, but if they deem that I participate a " substantial " number > of hours, that I could also do the same in the general workforce and > therefore am not disabled. Since I can only manage a couple of hours at a > time, I'm certainly in no danger! But, I think you can see that the " real " > criteria is being able to work full time, not necessarily the amount of > money you make. > > Don > Terradon Unlimited > http://www.TerradonUnlimited.com > " People who ask me how we can still have such a positive attitude after all > we've been through, have it all wrong.We've been able to get through all > that we have BECAUSE we have a positive attitude " . Don Hanson 8/2000 > Re: [ ] Social Security Disability > > > > > > Dear Jen, I hope I am not being too nosey,but i wanted to ask you a > > question > > about working while on disability. I have been receiving SSDI for > about > > 23 > > years. I got it at first for pulmonary problems and have added a few > > autoimmune diseases since then. I was re-evaluated this summer for > the > > very > > first time and they decided to continue my benefits. I have called > and > > asked > > several times over the years about working part time and I have never > > really > > understood how it works.. The lady I spoke to this week said it is a > " gray > > area " . Anyway, does this time you work count toward your trial > period > and > > do > > you have to report it every time you work? I kind of got the > impression > > that > > it would be ok to just work a couple of days a week. Does your > employer > > turn > > in your taxes and everything just like for anybody else? I was > lucky > and > > subbed in a dental office for a few years and he would just take it > off > > my > > bill.. Sort of a barter thing. But he has hired more people and they > > don't > > need me very much anymore. I would love to get out and do something > while > > I > > am feeling good. Any information is greatly appreciated. Thanks, > Jane > > Totten > > > > eGroups Sponsor > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Reply to arjosovitz. This is repeating material I've posted earlier: My daughter was successful, after three years, in her SSDI application, based on a very severe case of chronic fatigue syndrome. She used a for-profit advocacy group called Allsup and thought very highly of them. She'll be glad to talk with any of you about her work with them. Just let me know if you want her e-mail address. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Yes, I am currently on SSDI for AIH. It took 2 years, and a hearing before an administrative law judge to finally receive benefits. The initial application is rejected in anywhere from 70-80% of cases. It is important to appeal that decision. That appeal is also rejected in about the same percentage. It is important to not give up hope and appeal once again. At this point it is advisable to hire a disability lawyer. This appeal asks for a hearing before an administrative law judge. He will ask you questions, read your lawyers briefs, and may consult with an independant medical expert and/or an occupational therapist. It is only at this point that somebody can stray from the very strict criteria set forth in the "listed illnesses". Newer illnesses, like AIH, are not listed. Your lawyer will need to show that your condition is substantially similar to other liver or autoimmune or "fatigue" illnesses. It's a long process. Your sister needs to realize that it is a process. I actually looked forward to getting my rejections. I knew that it was highly unlikely that I'd be approved until I had a hearing. So, each rejection got me one step closer to finally having a hearing. Something on the order of 80% of people who have hearings are approved. So, the tide turns dramatically in your favor, if you stick it out. BTW, your lawyer absolutely must understand the illness and believe in the case. If not, walk out and find a new lawyer. I found mine by asking the local chapter of the Lupus Foundation for a referral. There are enough similarities with Lupus and AIH, that my lawyer had no trouble understanding, sympathizing with, and preparing a strong case for me. Don Terradon Unlimited Creative Embroidery http://www.TerradonUnlimited.com "People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000 -----Original Message-----From: arjosovitz@... [mailto:arjosovitz@...]Sent: Wednesday, March 21, 2001 11:10 PM Subject: [ ] Social Security DisabilityI have been a member of this group for approximately a year. My sister has had this AIH for approximately 1 year. There have been good days and bad days. We always hope for more good days!She has applied for SS Disabilty 2 times. She has just been turned down for the second time today. All of us were shocked because she had letters from her doctor saying that she was unable to work and gave a description of the disease. The letter was really very powerful. Needless to say my sister is devastated.Nadine lives in Washington D.C. and is about to hire another disability lawyer. The first lawyer never really believed she was sick... (This is not the type of lawyer anyone should have!)We would like input from anyone and everyone about the do's and don't when applying for SSDI. Does anyone know how many people with AIH have SSDI? Does anyone know of lawyers who work with clients with this diesease? All input from anyone and everyone would be greatly apprecia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 I don't know if this is helpful, but thought I'd send it in anyway. Barbara Ann AIH tx 12/94 BE AN ORGAN DONOR - OVER 75,000 WAITING! Winning Your Social Security Disability Claim: 15 Mistakes You Cannot Afford to Make! - by E. , Esq. and M. , Esq. Mistake #1: Assuming that what SSA tells you is true. Unfortunately, some of the advice that Social Security Administration (SSA) employees provide to the public is incorrect. So if you aren't happy with what SSA told you over the telephone, you'll be glad to know it may not be correct. The problem is, many people don't file a disability claim for years (and go without benefits they deserve) simply because an SSA employee gave them bad information. Advice: Don't give up on your claim until after you have reviewed your case with a disability lawyer. Disability lawyers know more about the law than SSA employees and will give you correct information. Mistake #2: Assuming the Social Security Administration will approve your claim. Many people believe that because they have paid into SSA, their claim should easily be approved when they apply for disability benefits. Many people believe it's just a matter of filling out the forms and going through the process. But this isn't true. SSA denies 70 to 75% of first-time claims. SSA denies 82% of claims that are appealed for Reconsideration. However, the good news is that when cases are heard before judges, nationwide over half (53%) are approved. Advice: Appeal every denial within 60 days of receipt Build a strong case by understanding what information Security Security requires Make sure to present your case properly Mistake #3: Assuming the disability forms you fill out will win your case. Usually they will not. Claimants hurt their case by overstating what they can do. In most cases, SSA and judges rely heavily on medical records as well as your doctor, psychiatrist, and/or psychologist's opinion about your ability to work full-time. If the judge isn't happy with you.if he doesn't believe what you're saying.or if he is looking for a reason to deny your claim, he may look for inconsistencies in answers you provided earlier on the forms. For example, if you answer one way on the form and testify at a hearing to something else, the judge may use the answer on the form to undermine your credibility and support a denial of your claim. Advice: When completing the forms, be honest, accurate, and brief! You should always answer the question in the space provided--do not attach additional sheets of paper or write in the margins. Also, it is important to assume you are back working full-time on a sustained basis (8 hours per day, 5 days per week) when answering questions about what you are capable of doing. Mistake #4: Assuming that your medical and/or psychological symptoms will be enough for the judge to approve your claim. Not true. You need detailed medical records which document your symptoms and limitations and specific opinions from your doctor, psychiatrist, and/or psychologist if you hope to win your case. Their opinions will only be given weight by the judge if you have received continuous and consistent medical treatment. If you are not treating regularly with your doctor, you are jeopardizing your case! Advice: It is critical that you receive continuous and consistent medical treatment and care so you can provide SSA and a judge with current and complete medical records which support your doctors' opinions. Mistake #5: Assuming your diagnosis will win your claim. It won't. It's true that SSA needs a diagnosis. But SSA also needs medical proof that your diagnosis causes limitations that are so significant and severe that they preclude your ability to work full-time on a sustained basis. Advice: Disability cases are won based on your limitations, not your symptoms. Make sure you provide detailed medical records from your doctor that reflect your symptoms, the diagnosis, and your limitations. Mistake #6: Assuming SSA will be persuaded by any type of medical treatment you choose. It will not. You can choose any alternative therapies and holistic treatments you desire. After all, you should do whatever it takes to try to get better. However, be aware that SSA and judges are most persuaded by mainstream doctors (M.D., D.O., psychologists) and how you respond or fail to respond to mainstream treatment. If you are not taking medications or are not receiving mainstream treatment by a mainstream doctor, you may be jeopardizing your claim. Advice: To win your claim, try to exhaust every medical treatment your mainstream doctors recommend, so you can prove that in spite of doing so, you continue to be unable to work full-time on a sustained basis. Mistake #7: Assuming your family doctor's opinion is the only one you need. This may not be a good choice depending upon your diagnosis. If your diagnosis is usually made and treated by a specialist (M.D., D.O., Ph.D.), you should treat with both a board certified specialist and your family practitioner. From a legal standpoint, you want to show the judge your diagnosis is correct and that you are receiving the best possible medical care. You have a stronger case when your doctor is a specialist who is skilled and experienced at treating people who have your condition. Social Security law generally gives more weight to the opinions of a specialist than a general practitioner. As a result, SSA and the judge will look more closely at the credentials of the doctor who is providing the opinion. Advice: Get your medical treatment from a specialist because the more skill and experience your doctor has, the more likely you are to win your claim. Note: If you are a member of an HMO and they will not allow you to go to a specialist, consult with your disability lawyer, who can help you get appropriate treatment. Mistake #8: Assuming your doctor will support your claim for disability benefits. He may not. Some doctors refuse to help patients with their disability claims. Many doctors do not know SSA's definition of disability and believe that one has to be bedridden to qualify. In general, doctors are very conservative in their opinion about a patient's ability to work. Because SSA and a judge will want to know if your doctor supports your claim, it is critical you know the same information! After you have established a relationship with your doctor you should discuss with them the fact that you have filed a claim for disability. Ask if they will support your claim  if they will not, you should consider finding another doctor because their opinion is not likely to change! It is critical your doctor supports your inability to work full time on a sustained basis! Advice: As soon as practicable, you should learn whether your doctor supports your disability claim. If not, consider finding a more compassionate doctor who will. One place to find a referral is to attend a local support group for individuals who share your diagnosis. Mistake #9: Assuming you have to go to SSA's doctor for a medical examination. Often, SSA wants to a claimant to go a disability examination with a doctor/psychiatrist/psychologist it chooses. Unfortunately, the doctor is not really " independent " and probably performs many of these examinations for SSA each month. In my experience, the majority of the time the doctor will conclude you are not disabled and can return to work. Once this opinion is included in your file SSA and a judge will have sufficient evidence to deny your claim. Here's the good news: SSA rules allow your doctor to perform the disability exam and SSA should pay for all or at least part of it. Naturally, if your doctor supports your disability claim he will probably conclude your condition precludes your ability to work. Once your doctor's exam report is in your file with a conclusion that you are disabled, SSA and a judge may have sufficient medical information to approve your claim. Advice: This strategy is only possible if you are certain your doctor supports your claim and is willing to do the examination. If you do not have a doctor or your doctor will not perform the examination you must go to SSA's doctor or risk having your claim denied or closed out. This strategy really should only be employed by a disability lawyer because complex regulations are involved and must be complied with. Mistake #10: Assuming an entire year has to pass before you can file a disability claim. Not true. SSA law requires that before you can be approved one of the following must be true: (1) you have already been disabled and out of work for one year, or (2) your doctors expect that you will be unable to work for a minimum of one year from the date you last worked, or (3) your medical condition is expected to result in death. Too many people have told me that an SSA employee said they could not file a claim until one year had passed since they last worked. This information is totally incorrect and if followed, will almost certainly cost you disability benefits and medical insurance! Advice: Apply for disability benefits as soon as you or your doctors believe your medical and/or psychological condition will preclude you from working for at least one year. Waiting to file will only cost you benefits that you may not be able to recover. Mistake #11: Assuming that if you lose before a judge at a hearing, you can simply file another claim. When you have a hearing before a SSA judge, you do not want to lose. This is because, practically speaking, your best chance at winning is at your first hearing before a judge. True, you can file a second application if you lose at a hearing; however, the second time you go through the process, SSA and a judge will know your first claim was denied. In my opinion, this may have a detrimental effect on your second claim as the second judge will know. Advice: Make sure your case is properly prepared so you can present your strongest case at the first hearing. Mistake #12: Assuming you can handle your case without a disability lawyer. Most people can't. SSA disability laws are complex, even many lawyers do not understand them. To win your claim, you need to very carefully prepare your case from the very beginning. In addition, it is critical to understand what you need to prove legally in order to win your case; if you do not know what you need to prove  why would you risk going before SSA or a judge without knowing how to win your case? The fact that you and your doctor agree you are disabled is not enough to win your case. Advice: Retain only an experienced disability lawyer. They will help build your case, develop a case strategy, obtain a complete set of your medical records and critical opinions from your doctor that will maximize your chances of success. More often than not, your doctor will not be familiar with the stringent criteria that SSA and a judge will utilize in determining whether you meet their definition of disability. Mistake #13: Assuming any lawyer can help you win your claim. Not true. You want a disability lawyer who is familiar with SSA laws and regulations. Similar to doctors, attorneys generally specialize in a certain area of the law. You wouldn't go to a dentist for a physical examination, so do not pick just " any " attorney to represent you in your disability claim. Advice: Choose a disability lawyer who's practice is dedicated to representing clients because your odds of winning will increase. A seasoned disability attorney will understand the strategy and tactics that are crucial to helping you win your claim. Mistake #14: Assuming you should not hire a lawyer until your case has initially been denied. Not true. You can hire a lawyer any time you wish. Unfortunately, many employees at SSA will tell you that it is not necessary to hire an attorney until you have been initially denied. Following this advice could be fatal to your claim! Why? Because in general, SSA will begin preparing a case against you from the day you file your application! Advice: You should consult with and/or hire a disability attorney as soon as possible after you file your application. The attorney can explain how the process really works and lay the proper foundation for your case by developing a case strategy. The attorney can also guide your case through the myriad of rules and regulations that are certain to have an effect on your entitlement to benefits. Mistake #15: Assuming that you cannot afford a lawyer. Not true. In almost every case, you will only pay the attorney a fee if and when you have won your case and received benefits. SSA law limits the amount of money your lawyer can earn from your disability claim. Generally, by the time you win your claim you will have accrued back benefits. The law mandates the fee can only be 25% of your past benefits and is capped at $4,000. In other words, if your back benefits total $1,000.00, the attorney's fee would be $250.00. The law does not allow your lawyer to charge a fee on your future benefits. What may be at stake? By way of example, assume a claimant is 45 years old and their monthly disability benefit is $1,000.00. If the person never returns to work before age 65, their disability benefits would total $240,000.00! This amount does not include the value of the lifetime health insurance they would also receive through Medicare or Medicaid. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Just a few comments from personal experience from both my mom and I. Neither of us used a lawyer. Age plays a role in it. My mom got hers right away and her being 58 played a role in the ease of being acepted. I tried twice and was accepted the second time when I was 37 and before I had PA. I am on SSI as I had been having difficulties for several years so had not worked enough hours to qualify for disability. A couple of differences between the two times I applied. between the two applications I was diagnosed with asthma. The first time they did not send me to a doctor where the second time they did. Getting to a doctor is a good thing it is much easier to see how diasbled a person is in person rather than the diagnosis on a sheet of paper. Couple of things though is to not lie but tell the complete truth. The first time I did not mention some of the health problems I had because they were not debilitating by themselves. Any problem that makes any aspect of a job they might remotely think you can do is something that should be put down. I have problems with my ears and one of the jobs I had previously held was as a receptionist but difficulty hearing on the phone makes that difficult or impossible. It would be great if they sent you to the doctor and it turned out to be on a bad day. I did not use my inhaler for a few days prior to the appointment so my lungs were in rough shape that day. Main reason for that was if I did not get SSI I would not be able to afford the medication. One thing is I have always been comfortable dealing with beauraucacies so had no problem handling it myself. I even handled filing for bankruptcy on my own last summer. Lorna Colfax, Wa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , You may also want to check out Disinissues-L It's another group that's concerned with the in's and out's of applying for disability. -- Ron > Carol, I am currently in the process of applying for SS disability. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 In a message dated 4/18/01 9:41:21 AM Pacific Daylight Time, lschroe3@... writes: << Carol Shaw wrote: I'm with you 100 %...my husband is 36 - got hurt at a new job of 2 weeks and developed (as per RD) the pa - we paid taxes, have 3 kids, got turned down 2 x's by SSI, medicaid, etc...going on 2 years - are currently going for workmans comp, don't hold a lot of faith there tho - It's maddening when you pay so much into taxes and can't get it when you really need it !!!! (after being turned down the 2nd time he gave up...) (kept saying he could work at McD's or somehting....) Not when you can't stand sit or squat, use your hands, etc for any long period of time....) -------------------------------------------------------- Carol, I am currently in the process of applying for SS disability. Was turned down once about two years ago and have now reapplied with the urging of my doctor, etc. My doctor gave me the name of an attorney who specializes in this and that is what you need. They can only charge you $4,000 plus any small expenses for copies, etc. It is well worth it to turn this over to an attorney and do so immediately..........there is just a very short period to appeal this. It is my understanding that SS turns down something like over 50% the first two times.......so your husband should not take it personally...it is just a business to them! Good luck and hurry!!!!! Schroeder Poulsbo, WA. -------- >> I've just read the above briefly, but I also was turned down twice. It seems to be standard for SS. I had to get a SS lawyer and go before a SS judge. The lawyer and my case won and we were able to get retro SS benefits. It really helped much in our family, and we even were able to buy a brand new minivan the family really needed, from all the retro pay. At the time we had 4 children living at home and they also paid my spouse dependent benefits. This was back in late 1993. It was worth the effort to get the lawyer and all the work. At the time, my lawyer could only get no more than 25% of my benefits given at the time. Keep bugging SS, you will get your benefits. ------Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2001 Report Share Posted April 22, 2001 Don't give up. I was so mad when SSDI turned me down the first time, that I fired off a letter to them asking them to live a day in my life. I told them how at first I had to learn to use my left hand (I'm right handed) to try to shave my legs (I couldn't use dipilatories SP? with the psoriasis) with a razor and everything else. Then when that hand got worse, how difficult it was for me to even wipe my A$$. I got the disability on the second try & didn't need a lawyer. This was back in 1991 & I had been off work for about 6 months & didn't even know about SSDI until after my Doctor told me about it. Best wishes, Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Before you do anything, and I mean anything, get a lawyer who specializes in Social Security. Let the lawyer handle all paperwork and any contact. I spent over three years fighting them over my rights, turned out that it was all in the wording. SS is VERY picky over the I's and T's. They'll deny or revoke your benefits in a heartbeat if the wording on your forms doesn't meet their criteria, no matter what's your disability. I firmly believe that their real purpose isn't to help those in need, but to keep the rolls as small as possible; I also think that it's even harder to get back on SSD than being accepted the first time. Good luck, luthien Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 The other suggestion I would make is to find out the name of the doctor, who the local Social Security Administration uses to review the cases for them. Locally, we have found that by using SS doctors rather than our own we cut the number of hearings down by about 2/3s. The SS may delay your claim by having their doctor review your doctor's findings. Yet if their doctor states you are disabled, how are they going to delay the process. Good Luck. >>> <luthienxxx@...> 11/05/01 07:19AM >>> Before you do anything, and I mean anything, get a lawyer who specializes in Social Security. Let the lawyer handle all paperwork and any contact. I spent over three years fighting them over my rights, turned out that it was all in the wording. SS is VERY picky over the I's and T's. They'll deny or revoke your benefits in a heartbeat if the wording on your forms doesn't meet their criteria, no matter what's your disability. I firmly believe that their real purpose isn't to help those in need, but to keep the rolls as small as possible; I also think that it's even harder to get back on SSD than being accepted the first time. Good luck, luthien === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2001 Report Share Posted November 5, 2001 Check out Social Security Online, by clicking on this link, if you haven't already ~ http://www.ssa.gov Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 I agree with everything luthien said and may I add another suggestion? If and when you come to the decision to hire an attorney find one who works exclusively on Social Security issues AND on a contingency basis. No win, no $$$$ to you. This is also a great way to see if your case has merit as if the attorney does not think he can win it for you he will not take it 'cause he wants paid. I also fought for my own SS on my own for 3 years because I did not want to pay an attorney and kept getting refused. I took my info to an attorney who ONLY worked with SS and WALA I got my benefits in about 6 weeks. The way I looked at hiring this attorney was that 75% of SOMETHING was better than 100% of nothing. You may also want to know that an attorney who is handling a SS case is NOT allowed to charge more than what the government guidelines allow. I am not sure what that is now as mine was done about 11 years ago and I am not even sure what it was back then but I am thinking about 25%. Another thing that was great is that I received my benefits retroactive to six months after I became disabled, so I got one lump sum. PLUS in Washington State if you are low income your property taxes have a ceiling on them too. SO I got $3000 rebate for the three years I was disabled but before my SS Disability kicked in, on my property tax. Good Luck. Re: Social Security Disability Before you do anything, and I mean anything, get a lawyer who specializes in Social Security. Let the lawyer handle all paperwork and any contact. I spent over three years fighting them over my rights, turned out that it was all in the wording. SS is VERY picky over the I's and T's. They'll deny or revoke your benefits in a heartbeat if the wording on your forms doesn't meet their criteria, no matter what's your disability. I firmly believe that their real purpose isn't to help those in need, but to keep the rolls as small as possible; I also think that it's even harder to get back on SSD than being accepted the first time. Good luck, luthien Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2003 Report Share Posted June 7, 2003 I wrote..... > . The hardest one is picking a > day/month/year I was ''disabled''. If this is an uncomfortable thing to > discuss, > please email me privately........ buttonjo@... To clarify-I'm self employed and have been in independent home based sales 20+ years. As my scoli has gotten worse I've adapted down (as we all do) to its limitations. I've been in denial for the last several years about how severely limited I've become. I didn't want to face revision surgery. Now I must face it. Applying for disability is a huge mental hurdle I must also overcome. Something about how I was raised is involved in my mental obstacle course. I have only been able to 'work' 2-4 days a MONTH in the last several years-yet made enough to pay income tax and social security self employment tax until last year. Yet each year's income over the last 5 has decreased dramatically due to my incapacity. I'm talking way under the poverty level-single digit income. Pinpointing which day/month I became 'disabled' remains a very difficult point. Being self-employed doesn't come with a pay stub, fellow workers, or a boss to describe or evaluate my performance. That's what I meant. Thanks for those who are sharing their war-stories about disability. It helps. Jolene-1960 AIS fusion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2003 Report Share Posted November 15, 2003 In a message dated 11/15/03 2:32:05 AM Central Standard Time, Dandcmayer@... writes: Hi all, I have been off site for a while = was not getting any postings from this site, and I truly missed all of you very much. Thank you Orin for what ever you did to fix my connection. Glad you it got straightened out Carol. I'd like to take credit for doing something to resume mails from the group to you but I just found an anomoly and didnt know why or what to do to correct it. If I had fixed it for you I would have said youre welcome and even though I didnt I still say youre welcome : ) Ow Im confused now. Orin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 In the state of Connecticut, where I liive, I applied on my own and was rejected. Then I contacted a lawyer who specializes in SSDI cases/ He advised me to re apply immediately, which I did and got turned down again. That is when he came in. He did nothing except the initial consult until I was rejected the first two times on my own. He advised me that we would be getting a hearing in front of the administrative law judge. In the meantime, I had to get several medical reports written up by the doctors I was seeing that treated me for the conditions which were the ones the disability claim was based on. The hearing was extremely nerve wracking, but two weeks later, I received a letter approving me and a calculation of backpay to the date on which I applied!! I was ecstatic, even though I had to pay $4k to the lawyer right off the top--it was worth every cent. From then on, I have received a detailed medical questionnaire every three years, and twice I was given a complete review and had to submit medical privacy releases so they could talk to my doctors so they could make sure I was being truthful on the forms I guess. This past year however, I did not get reviiewed fully for the first time since 1982-hooray. I hope all this info helps. S. group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2003 Report Share Posted December 2, 2003 While we are on the subject of SSDI. I am already on it because I am deaf-blind (and at the time I had severe depression). Do I need to tell them I have P & PA too? The rules that apply for me, they stated, is based entirely on the blindness, as they feel that is my most severe disability. (this is true.) Please advise. LeAnn Cayer & Furbrats Blossom & Meriko Heart Bandits American Eskimo Dog Rescue Railroad Coordinator www.heartbandits.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 << what proof do I need to convince them I can't work? Is there a secret to how you word your claim? I will appreciate any help anyone can offer. thanks so much. >> Esther, Here's a web page that includes helpful info about getting disability. It's a site dedicated to the use of guaifenesin for fibromyalgia and chronic fatigue, so will be geared to that. But the disability info/links/resources may be useful for you as well. Scroll down to the United States, if that's where you live. http://www.psha-inc.com/guai-support/sf/DisabilityAssistance.htm M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 HELP!!! I was called today to go to medical exam for disability on Monday at 12:15. Can anyone here who has been there tell me what to expect. The told me to bring all meds with me. Do they even exam you thoroughly or do they give you the quick once over. If anyone her has any tips let me know. Also, I wanted to know if it matters if I go there by myself or will it be better if my husbands takes me. I don't have problems driving, just walking. JANET Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Some doctors give you the once over. Be sure to DEMAND that they sit and listen to you and your symtoms and make SURE they W R I T E it down. I will let some of hte others that have fought this (I was born disabled so I automatically got SSDI after working five years). Its a long drawn out process that can turn into an ugly battle for your rights. It is important to " know your stuff " so that the fight is not as hard. LeAnn Cayer & Furbrats Blossom & Meriko Heart Bandits American Eskimo Dog Rescue Oklahoma Referral Chapter Railroad Coordinator www.heartbandits.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Janet, I, too, was called for a disability exam. I was terrified, just like you. THEN, when called that day to confirm, the asked if I could come early, like right now, because they had some cancellations. !! I told them I needed to arrange a ride. I have trouble walking and use a cane, but while taking Neurontin I do not do much driving, so I called my sister, and then called back. THEN I forgot my list of medications and the paperwork asked for ME to write down all of my meds. I told the tech it was very difficult to write, and he said to take my time, which I did. My wrists and hands were red and swollen just from the small amount of writing I had to do, and it was the first thing the Dr. noticed. He asked losts of good questions, and said that I had severe arthritis symptoms in my hands, feet, neck, hip and back????? I take antidepressants, so I also had to take a psychological exam. That was extremely weird. My husband was havning an emergency CT scan and I tried to postpone the exam, but the person from SS said it would postpone my case by 2 months. The Dr. was 30 minutes late, he would not allow my sister to " sit in " . He never took off his very dark sunglasses, and we sat in a room filled with piles of papers. He gave me a test out of a book, a kind of " what comes next " with circles, squares, etc. It was easy at first, but it got harder to concentrate and more difficult to see. He asked lots of questions, he kept repeating himself, and I just waited for him to find his place, I did not help him. He told me that I deserved to be on ssdi and that he would help me with his report. He also told me I had very pretty skin and that I looked to young to be as sick as I am. The interview took over 1 hour and the office was very cold. He called me 3 weeks later, because he was writing his report to ssdi and could not read his own writing and wanted to review the notes. Then, again, he said I was the pretty, young girl who did not look sick, I will help you. I am waiting to see what happens, I believe that the psychologist was totally unprofessional and should be reported. In both cases, I felt it was important to be as honest as I could, but not offer any help or positive comments, just allow there to be silence. I also believe that it is important to have someone drive you to these appointments. Just the appearance of a driver, and witness (if allowed) seems to be helpful. Even the medical Dr. who said that my arthritis was severe, started out the appointment by saying how young and well I looked. It made me uncomfortable. I would not go to the appointment with get-out-of-bed hair, but I would not got far to get fixed up. I didn't, but I had just cut my hair and it was curling all over the place. I have not results of either of these, I had them sent to my Dr., I will have to ask about the reports next time. Hope this helps. Good Luck, Carol M. in CA. PS - I have been off the computer for a very long time, my husband has kidney cancer, and is off work waiting for all the tests to be completed for surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 In a message dated 5/1/2004 4:33:52 PM Eastern Daylight Time, mlw402@... writes: I hope it goes well...I'll be thinking of you. Marti Marti, Dick and all of you who replied, I want to thank you for responding to my question. Just the fact that I was so close to getting my RN in nursing school and then had to stop due to pain in my knees is enough. Do you think I will get a chance to tell that to the person or does it even matte. I don't know if it is a doctor or practioner. I'll let you know Monday after the visit. Thanks again JANET Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 In a message dated 5/1/2004 4:34:17 PM Eastern Daylight Time, Dandcmayer@... writes: Good Luck, Carol M. in CA. PS - I have been off the computer for a very long time, my husband has kidney cancer, and is off work waiting for all the tests to be completed for surgery. Carol, Thank you so much for all your info. My sister told me to go there without blowing out my hair and don't wear makeup. That is scary in itself. I have dark circles under my eyes and always wear cover-up to hide it. Should I go natural and scare them? I know you haven't posted lately. I missed you. I am so sorry about your husband. My stepfather had cancer in the kidney and had one removed and was fine after that. Is it contained in one kidney? My prayers are with him. JANET Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 -Hi Janet, Not much notice,eh? Do you know if the exam will be with a doctor or a nonmedical examiner? I had the first type and there was not much to it...he ended up saying..well, with all these meds and doctors I don't think you will have a problem. A friend had the latter...a designated doctor examined her and it gave her a chance to really talk and tell him how bad the pain was and how it was affecting her ability to work.-He was very thorough and noted that she had premature gray hair which impressed him(I guess it can go with chronic illness LOL!). I don't know if it matters if your husband goes but if he goes in with you he might think of things to add and support your pain level to the doc. You might want to take along documentation of everything you have tried which is a pain but I know you have tried and tried to find something to help you. I hope it goes well...I'll be thinking of you. Marti - In , fam24@a... wrote: > HELP!!! I was called today to go to medical exam for disability on Monday > at 12:15. Can anyone here who has been there tell me what to expect. The > told me to bring all meds with me. Do they even exam you thoroughly or do > they give you the quick once over. If anyone her has any tips let me know. > Also, I wanted to know if it matters if I go there by myself or will it be > better if my husbands takes me. I don't have problems driving, just walking. > JANET > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Janet, I have been to two of them. One was a physical exam and the other was a mental exam. Both of them were very quick and I don't really think they mattered. I guess it would be better if your husband drove you there. As noted make sure they listen, I tried but it didn't help. They still said I could do my job. The doctor didn't listen to what my job was. I started my claim in March of 2003 and have had two denials since then. I am now waiting for a hearing date with the judge and have obtained a company to represent me for the rest of the process. I will still have to go to see the judge but they will provide an attorney to go with me. I have been waiting for the hearing since February this year and was told it can take up to 12 more months. There is a group that discus's disability and at the time I got my second denial there were 3 others from 3 other states that got there second denials and when we compared notes, all of them said the same thing. It is more or less a canned statement. From what I understand they are understaffed and are passing cases on to the next level where not all people continue to fight for there disability. So if you and your doctor agree that you are disabled, stay in for the long haul and get what you have already paid for. Good luck and if you have other questions, check out the disability- SSD-SSDI group on . Dick > HELP!!! I was called today to go to medical exam for disability on Monday > at 12:15. Can anyone here who has been there tell me what to expect. The > told me to bring all meds with me. Do they even exam you thoroughly or do > they give you the quick once over. If anyone her has any tips let me know. > Also, I wanted to know if it matters if I go there by myself or will it be > better if my husbands takes me. I don't have problems driving, just walking. > JANET > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2004 Report Share Posted May 1, 2004 Janet, Yes - do not use the concealer or make-up-maybe just lipstick (if you wear it). Let your hair be au naturale ????? Dress neat - I wore pull on pants and a top. I always wear velcro tennis shoes - the Dr. asked me to take my shoes off and walk for him. I had a terrible time taking off my shoes, and I can barely walk barefoot without falling (I did sway and need his help to get back to the table). He then watched as I struggled to get my shoes back on. My right hip is very stiff and I cannot lift my right foot to reach my hand so I kind of lean over sideways to get that shoe on - it is very difficult. As my daughter-in-law said be your honest self, just remember not to be your positive self. Just answer the questions as if it were one of your worst days. They also did a hand squeeze test to measure the hand strength and gave me an eye test. I also have Sjorgrens and it was bad that day, I was dry and gritty and when they asked me to look thru a pin point paddle I could only see half of what I was supposed to! I will keep trying to remember all they did and just post as I remember because it always helps me to know in advance what might happen. Hope that is OK with you. Take Care, Carol M. in CA Quote Link to comment Share on other sites More sharing options...
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