Re: ms and headaches

[Guest guest]

-Hi shirley

I am on Rebif and have been for 6 years, it's been a fantastic

experience for me. I have a very strict routine on " Shot days " . I

eat a very light dinner no later than 6 p.m. nothing after that

except water or juice. At 9:00 I take two Advil. Then at 10:00p.m.

I give myself the injection. If I wake up at night it's usually with

a dull headache sometimes a low grade fever, I take 2 Ibubrofen and

usually get back to sleep fairly quickly. I have never had sever or

even lasting headaches with this medication.

[Guest guest]

I had zero headaches with Copaxone. With Avonex I have SEVERE headaches and

horrible, vivid violent dreams on the day i take my shot and the next

Subject: Re: ms and headaches

To: mscured

Date: Thursday, December 4, 2008, 6:07 PM

Hi all,

 

I have never had headaches before I started taking Rebif.  Now I have them

pretty much all the time and most of the they are severe.

 

I don't know if any of you on Rebif also experience these, but it's one of the

affects of the drug.

 

Shirley

[Guest guest]

While I agree that people should make their own decisions and have

access to all the viewpoints on traditional versus alternative

treatment for MS, this particular Yahoo group is made up mostly of

people who are not doing traditional medications and instead want to

discuss alternative and natural methods to control or reverse this

disease. I'm sure Yvette can explain better, as she has in previous

posts.

I think it is OK for someone to ask about CRABS here, but not to

advoctate them. For the those who believe in and are advocating CRABS

(Interferons, Tysabari, etc), other groups would be better suited for

them. There are people who claim they are benefitting from the CRABS

and that's great if they are, but this group is simply not the forum

to discuss it.

That said, if an occasional new Western/traditional med treatment

comes up and sounds promising, I would be interested in hearing about

it. For example, Alan Osmond has supposedly improved with an

experimental drug. I don't think anything Western medicine is

currently offering is worthwhile, but I can't say for sure that they

won't come up with something better in the future.

I do know people who took traditional treatments for cancer and are

alive and doing very well 20+ years later. That is why I try to

remain open to the idea that traditional medicine could come up with

something good in the future, but what they have not does not impress

me enough to try it.

Just my opinion.

>

> Shirley. That is a very valid point. The more that we learn the

better informed we will be to make decisions to improve our health. I

don't believe there is only one right way and I think  a newly

diagnosed person should be given as much information as possible to

make their own decision.

>  

> Bruce

>