Re: CLORA---pain meds.

[Guest guest]

Hi Clora - my Rheumy won't give me pain meds either. He told me to go to a pain

management clinic, but they don't take self-pay and I considered switching to

another Rheumy, but they don't take self-pay either. The danged drug dealers are

ruining it for everyone!!

But, before I go off on a tangent, I just wanted you to know that I am in the

same place you are where pain meds go. Fortunately, my PC doctor will give me

pain meds, but I am at the top for what they will write. I pray everyday that it

works just a little while longer. As soon as SSD and Medicare comes through, I'm

changing to a new Rheumy right off the bat!

In the meantime, we do the best we can with what we have. Praying you get some

pain relief soon.....Doreen

>

>

> Hi Clora: For the life of me I can not understand your Rheumy not

> giving you pain meds. We do not need to suffer needlessly. Every

> dr. knows that pain is wearing on us, and people can not function

> properly with pain. Have you spoken to your PCP about your

> Rheumy's failure to help you get out of pain?

>

> I know it is hard for you to speak up, but you can't live or have

> any kind of life when you are hurting so badly. You have been

> through so much in the time I have known you. Your body is so

> sensitive to to so many meds. causing you to have so many

> allergies. It must be scarey for you to even try anything new.

>

> Our Rheumy's owe it to us to try and help us to live a good life as

> best we can. Not giving you the pain meds. you need to feel

> comfortable, is just plain cruel. She evidently has no compassion

> for what her patients are going through, and could care less about

> them or the pain they are trying to deal with. Pain makes me

> crazy. RA is a very ugly beast of a disease. If she doesn't know

> this, then she should not be a Rheumy. It is needless for you to

> suffer so much. I feel terrible about all your pain and suffering.

>

> All the surgeries I have had the last 6 years, the one thing that my

> doctors stressed was, " take your pain meds. every 4 hours, and stay

> ahead of the pain once you get it under control " . Even the P.T.

> specialist told me, " we will do your therapy about 1/2 hour after

> you take your pain meds. " They do this because you could not move

> your body otherwise. With this last knee replacement, for some

> reason, they could not get me out of pain, no matter what they gave

> me. I was ready to hang myself. Even the morphine drip did not

> work. They literally tried every narcotic, and nothing dented that

> pain. This had never happened to me before. I was literally in

> orbit with this pain. Finally on day 6, the Dr. put in another

> pump and tried Delaoudid (spelling), and added 8 muscle relaxers a

> day. That finally did the trick. By this time I was in so much

> agony, I could not do any P.T. or move my entire leg because it

> filled with fluid from my toes to my groin. I thought my leg

> froze, and would need more surgery. Those 6 days of pain really

> set me back. My leg had 35 lbs. of fluid in it. He bound my leg

> from the toes to the groin with ace bandages. I had these on 24

> hrs. a day.

>

> Our bodies weaken when in pain Clora. I so want you to feel

> better. I hope you call your Rheumy and really stress how much

> pain you are in. If she still refuses to help you, then I would get

> another Rheumy recommendation from your PCP. No one should suffer

> needlessly.

>

> I pray you will be pain free soon. I so care about you, worry about

> what you are dealing with each day.

>

> God Bless you, and take care of yourself.

>

> Hugs,

>

> Barbara

>

[Guest guest]

My rheumy won't give me pain meds either. It's so frustrating! I have been

dealing with neck pain for 3 weeks now. Rheumy said it was RA and go to

physical therapy. Been to 5 sessions of PT and my darn neck is still hurting.

Hurts so bad some days it gives me the worst headache!

I got mad today, went to my regular doc. They took x-rays, just RA, BUT, they

also said that I am having muscle cramps or the muscles are seizing up from the

RA pain. So I got a Toradol shot and a prescription for muscle relaxers.

Hopefully, this will help.

I just don't understand the issues with pain meds. I do and I don't at the same

time.

Phyllis

[Guest guest]

My rheumatologist won't give me pain meds either. Fortunately, my GP, who I've

seen for years, will give me darvocet and flexeril.

>

> My rheumy won't give me pain meds either. It's so frustrating! I have been

dealing with neck pain for 3 weeks now. Rheumy said it was RA and go to

physical therapy. Been to 5 sessions of PT and my darn neck is still hurting.

Hurts so bad some days it gives me the worst headache!

>

> I got mad today, went to my regular doc. They took x-rays, just RA, BUT,

they also said that I am having muscle cramps or the muscles are seizing up from

the RA pain. So I got a Toradol shot and a prescription for muscle relaxers.

Hopefully, this will help.

>

> I just don't understand the issues with pain meds. I do and I don't at the

same time.

>

> Phyllis

>

>

[Guest guest]

Hi (((((Phyllis))))) - good to see you posting again, but I'm so sorry about

your neck. I told my Rheumy once that my neck will feel like my head is just too

heavy to support it - he made some kind of wise crack and that was it. When it

gets bad, I will support it with a pillow if I'm sitting and most times I have

to just go lay down to take the pressure off.

I think the pain meds issue all stems back to the drug users and dealers. People

will go to these doctors, get the pain meds and turn around and sell them on the

street for a HUGE profit. It pisses me off (excuse my language) because those of

us that really need it now have to pull teeth to get it (not literally). Its so

not fair.

Praying the Toradol will give you some relief and the muscle relaxers help to

keep it from seizing up on you. Will you continue with the PT? I found PT most

helpful in keeping my neck limber and I try to remember to keep repeating the

neck exercises at home so it doesn't get so tight again. Ask your physical

therapist for copies of the sheets for the neck exercises - they are really

helpful for me.

Wishing you pain free days ahead.....Doreen

My rheumy won't give me pain meds either. It's so frustrating! I have been

dealing with neck pain for 3 weeks now. Rheumy said it was RA and go to

physical therapy. Been to 5 sessions of PT and my darn neck is still hurting.

Hurts so bad some days it gives me the worst headache!

I got mad today, went to my regular doc. They took x-rays, just RA, BUT, they

also said that I am having muscle cramps or the muscles are seizing up from the

RA pain. So I got a Toradol shot and a prescription for muscle relaxers.

Hopefully, this will help.

I just don't understand the issues with pain meds. I do and I don't at the

same time.

Phyllis

[Guest guest]

Dear Phyllis,

 

I needed to write you concerning your neck pain.  Have you ever considered

seeing a chiropractor?  Many people do not believe in the benefits of

chiropractors, but I strongly believe that people with RA should be seen by one

and adjusted at least once a week.  I see mine at least 2-3 times a week and

have been since 2005.  I do not think I would be

here without him.  The main reason I visited him to begin with was because of

neck pain,

shoulder pain and back pain.  The muscles in my neck get so tight that I can not

turn my head from side to side, and I too get terrible headaches, especially on

my left side, but a fifteen minute visit to my chiropractor always gets me

through the day.  He uses this little instrument called an activator on the

muscles in my neck, in both shoulders, and swollen areas on my spine that

instantly relaxes the muscles.  It's amazing...

I hope this helps, and if you ever have any questions, please feel free to email

me.

Take Care,

(musiclvr3237)

 

From: Phyllis son <mammap@...>

Subject: Re: [ ] Re: CLORA---pain meds.

Date: Tuesday, August 18, 2009, 4:29 PM

 

My rheumy won't give me pain meds either. It's so frustrating! I have been

dealing with neck pain for 3 weeks now. Rheumy said it was RA and go to physical

therapy. Been to 5 sessions of PT and my darn neck is still hurting. Hurts so

bad some days it gives me the worst headache!

I got mad today, went to my regular doc. They took x-rays, just RA, BUT, they

also said that I am having muscle cramps or the muscles are seizing up from the

RA pain. So I got a Toradol shot and a prescription for muscle relaxers.

Hopefully, this will help.

I just don't understand the issues with pain meds. I do and I don't at the same

time.

Phyllis

[Guest guest]

and Phyllis,

A note of caution: since the cervical spine is particularly

susceptible to the ravages of RA, no RA patient should allow anyone to

perform any high-velocity adjustments on their cervical spine.

Additionally, a patient's cervical spine status should be known before

any type of manipulation is done.

Not an MD

On Thu, Aug 20, 2009 at 7:27 AM, (musiclvr)<musiclvr3237@...> wrote:

> Dear Phyllis,

>

> I needed to write you concerning your neck pain.  Have you ever considered

seeing a chiropractor?  Many people do not believe in the benefits of

chiropractors, but I strongly believe that people with RA should be seen by one

and adjusted at least once a week.  I see mine at least 2-3 times a week and

have been since 2005.  I do not think I would be

> here without him.  The main reason I visited him to begin with was because of

neck pain,

> shoulder pain and back pain.  The muscles in my neck get so tight that I can

not turn my head from side to side, and I too get terrible headaches, especially

on my left side, but a fifteen minute visit to my chiropractor always gets me

through the day.  He uses this little instrument called an activator on the

muscles in my neck, in both shoulders, and swollen areas on my spine that

instantly relaxes the muscles.  It's amazing...

> I hope this helps, and if you ever have any questions, please feel free to

email me.

> Take Care,

> (musiclvr3237)

[Guest guest]

That's right, . I had a session with a local chiropractor and ended up

in pain management for more than 6 months, not able to turn my head. He had

been instructed on which bones to stay away from but forgot and I realized

it too late. I've learned to stay away from quack-o-practors.

Dennis in eastexas

On Thu, Aug 20, 2009 at 8:57 AM, <

Rheumatoid.Arthritis.Support@...> wrote:

>

>

> and Phyllis,

>

> A note of caution: since the cervical spine is particularly

> susceptible to the ravages of RA, no RA patient should allow anyone to

> perform any high-velocity adjustments on their cervical spine.

> Additionally, a patient's cervical spine status should be known before

> any type of manipulation is done.

>

>

> Not an MD

>

>

> On Thu, Aug 20, 2009 at 7:27 AM,

(musiclvr)<musiclvr3237@...<musiclvr3237%40>>

> wrote:

> > Dear Phyllis,

> >

> > I needed to write you concerning your neck pain. Have you ever

> considered seeing a chiropractor? Many people do not believe in the

> benefits of chiropractors, but I strongly believe that people with RA should

> be seen by one and adjusted at least once a week. I see mine at least 2-3

> times a week and have been since 2005. I do not think I would be

> > here without him. The main reason I visited him to begin with was

> because of neck pain,

> > shoulder pain and back pain. The muscles in my neck get so tight that I

> can not turn my head from side to side, and I too get terrible headaches,

> especially on my left side, but a fifteen minute visit to my chiropractor

> always gets me through the day. He uses this little instrument called an

> activator on the muscles in my neck, in both shoulders, and swollen areas on

> my spine that instantly relaxes the muscles. It's amazing...

> > I hope this helps, and if you ever have any questions, please feel free

> to email me.

> > Take Care,

> > (musiclvr3237)

>