Re: I hate neuros!

[Guest guest]

What good is a label anyway?My neuro thinks I have MS (13 years down the line)

but I am spending all my time trying to prove him wrong (is it , is it

Lyme, is it Hypothyroidism? etc., etc.)I believe if we follow the BBD (which

isn't exactly harmful to everyone anyway, MS or not), maybe do LDN (don't know

cos I don't take it) and look at ways of eradicating Lymes, we should be on top

of things. It doesn't really matter what we have, it just makes sense to manage

it so yes it does help to know what you're dealing with but other than that,

don't get hung up on labels.

Janet

To: mscured@...: stacywest2003@...: Fri, 5 Dec 2008

20:10:47 +0000Subject: Re: I hate neuros!Hi ,I know I don't

like going near nuero's either. The last nuero that saw me said the same thing

after looking at my MRI films-- that he did not think it was MS because the

lesions were not indicative of MS and also because my spinal tap was negative.

>> I had a

consult today with a new neuro and he said he doesn't think I> have MS. He says

the lesions are in the wrong place and that my> symptoms aren't consistent with

MS. >

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[Guest guest]

I think the only reason for the proof of diagnosis is if one needs

services, such as SSDI, long-term-disability, handicap parking, etc.

>

>

> What good is a label anyway?My neuro thinks I have MS (13 years down

the line) but I am spending all my time trying to prove him wrong (is

it , is it Lyme, is it Hypothyroidism? etc., etc.)I believe if we

follow the BBD (which isn't exactly harmful to everyone anyway, MS or

not), maybe do LDN (don't know cos I don't take it) and look

[Guest guest]

You're right, .I'd quit my job before they had finished diagnosing me so I

never got to get long-term disability, private health insurance, etc.I got my

parking badge out of it so what am I moaning about :)Janet

To: mscured@...: trekkie323@...: Sat, 6 Dec 2008

13:38:06 +0000Subject: Re: I hate neuros!I think the only reason for

the proof of diagnosis is if one needs services, such as SSDI,

long-term-disability, handicap parking, etc.

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[Guest guest]

 TRY GETTING ANOTHER OPINION! Before MRI diagnosis was used to diagnose MS

suspected sufferers were told to get into a bath of 110+ water and soak for

awhile at which time any exacerbation would become very evident... after I was

diagnosed with MS I took a warm bath and notice that I couldn't even get out of

the bathroom safely! One of the things that is very consistent with MS is

raising your core temperature so if you decide to " check " yourself out this way

please have somebody close by to put some tepid water in to bring you back to

reality!

[Guest guest]

> but am a little disappointed by the

> last few days being so bad while I've been so faithful to the diet

for

> a couple months now. For a while it seemed BBD was really helping

brain

> fog, but now I'm not sure why it came back.

Hi ,

Isn't it frustrating??? ugh In my own case, I've been able to link

it back to something I ingested enough times that, even when I can't

figure it out, I now assume that's the case. lol Geez, I just found

out my amino acid supplement is from whey. It's *not* marked on the

bottle. Went to buy more and the store now carries them in bottles

of 100 instead of just 50. Went to grab one of the bigger bottles

and, lo and behold, that bottle is marked. > I thought I had lost

my mind, had to stand there with the 2 bottles for a minute and

really make sure it was the exact same product but in different size

bottles.

Crystal