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Hello,

My name is . I was diagnosed with acm1/syrinx last year I had

surgery on March 8,1999 I did not know much then about acm1/ syrinx I know very

little now I have bad tremors in my hands,my voice is very shaky at times,bad

headaches and I sleep alot I have wrote in before at the time I had not excepted

that I have acm and did not know how to talk to anyone about it I would like so

much to hear from someone I can speak to who can help me deal with my feelings

and frustration that I have everyday I have no one to talk to who understands

how I feel I am so tired of feeling alone Please write!!!!!

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