hello all,

[Guest guest]

sending you hugs dear Helen. I lost an internet friend last week and we had a memorial service on line for her Saturday. I had been to conferences with her husband twice before he married her and we becase dear friend but never met-I know what you mean about not meeting but bring online. carol

On Sun, 29 Dec 2002 23:38:41 EST angelbear1129@... writes:

I'm sorry I am not responding at the moment... I know Carolyn is in a much better place now and in no more pain... But for some reason I'm not handling it too well... Everytime I take the time to stop and think of her I cry, the tears will not stop... We had gotten to writing to each other Everyday, until about two weeks ago when she took a turn for the worse and caught pneumonia... With all her breathing problems on top of that it was impossible for her to catch her breath... She didn't want to pass away at a hospital so she decided to stay home where she wanted to be... Everything the hospital could do for her they could do at home... She had Myasthenia Gravis very bad and complications on top of that... She had been fighting with enormous swelling all year, where she would keep falling and was put in a wheelchair for good... They never did give her a name for what was in her lungs causing all the breathing problems, at least she didn't tell me, but her lungs kept filling with fluid... She just kept saying that the Dr. is very worried about it... She had been on oxygen for an awful long time, night and day... She was in congestive heart failure, and the list goes on and on ( She was Never one to complain, she was a soft spoken person unless you raised her feathers...I will Truely Miss her... I Never realized how attached one becomes to someone on the other end of a keyboard that you have never met face to face... But So Many of you have become an important part of my life... When you hurt, I hurt, my heart is freely given to all that accept it... As I told Carolyn, Don't let the Bastard win!!! But as always he did ( But now she has the Heavenly wings of an Angel and is free of this worlds pains...

Good-Bye my Dear Sister Carolyn Until we meet again((( Angelbear Hugs and Kisses )))Lots of LoveYour SisHelen~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

I never saw her complain and with so much wrong. I did not get to know

Carolyn but it sounds like she was a wonderful person. I am glad that

she is out of her suffering.

CZ

songofjoy4ever@... wrote:

> sending you hugs dear Helen. I lost an internet friend last week and we

> had a memorial service on line for her Saturday. I had been to

> conferences with her husband twice before he married her and we becase

> dear friend but never met-I know what you mean about not meeting but

> bring online. carol

>

> On Sun, 29 Dec 2002 23:38:41 EST angelbear1129@...

> <mailto:angelbear1129@...> writes:

>

> I'm sorry I am not responding at the moment... I know Carolyn

> is in a much better place now and in no more pain... But for some

> reason I'm not handling it too well...

> Everytime I take the time to stop and think of her I cry, the

> tears will not stop... We had gotten to writing to each other

> Everyday, until about two weeks ago when she took a turn for the

> worse and caught pneumonia... With all her breathing problems on

> top of that it was impossible for her to catch her breath... She

> didn't want to pass away at a hospital so she decided to stay home

> where she wanted to be... Everything the hospital could do for her

> they could do at home...

> She had Myasthenia Gravis very bad and complications on top of

> that... She had been fighting with enormous swelling all year,

> where she would keep falling and was put in a wheelchair for

> good... They never did give her a name for what was in her lungs

> causing all the breathing problems, at least she didn't tell me, but

> her lungs kept filling with fluid... She just kept saying that the

> Dr. is very worried about it... She had been on oxygen for an awful

> long time, night and day... She was in congestive heart failure,

> and the list goes on and on ( She was Never one to complain, she

> was a soft spoken person unless you raised her feathers...

> I will Truely Miss her...

> I Never realized how attached one becomes to someone on the other

> end of a keyboard that you have never met face to face... But So

> Many of you have become an important part of my life... When you

> hurt, I hurt, my heart is freely given to all that accept it...

> As I told Carolyn, Don't let the Bastard win!!! But as always he

> did ( But now she has the Heavenly wings of an Angel and is

> free of this worlds pains...

>

> Good-Bye my Dear Sister Carolyn

> Until we meet again

> ((( Angelbear Hugs and Kisses )))

> Lots of Love

> Your Sis

> Helen

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Being Sick Community

>

>

> Message Archives and Digest Attachment Pictures:-

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> receive.

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>

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>

>

>

[Guest guest]

Mom,

I'm sorry you are grieving, I miss her too. I'm glad that she is not in pain now, and can be a beautiful angel, soaring high above the clouds and worries of the world. I'm sorry that I can't console you right now, I'd like to. Take care and vent if you need to...we're all here for you too.

Hugs,

-----Original Message-----From: angelbear1129@... [mailto:angelbear1129@...] Sent: Sunday, December 29, 2002 8:39 PM Subject: Hello All, I'm sorry I am not responding at the moment... I know Carolyn is in a much better place now and in no more pain... But for some reason I'm not handling it too well... Everytime I take the time to stop and think of her I cry, the tears will not stop... We had gotten to writing to each other Everyday, until about two weeks ago when she took a turn for the worse and caught pneumonia... With all her breathing problems on top of that it was impossible for her to catch her breath... She didn't want to pass away at a hospital so she decided to stay home where she wanted to be... Everything the hospital could do for her they could do at home... She had Myasthenia Gravis very bad and complications on top of that... She had been fighting with enormous swelling all year, where she would keep falling and was put in a wheelchair for good... They never did give her a name for what was in her lungs causing all the breathing problems, at least she didn't tell me, but her lungs kept filling with fluid... She just kept saying that the Dr. is very worried about it... She had been on oxygen for an awful long time, night and day... She was in congestive heart failure, and the list goes on and on ( She was Never one to complain, she was a soft spoken person unless you raised her feathers...I will Truely Miss her... I Never realized how attached one becomes to someone on the other end of a keyboard that you have never met face to face... But So Many of you have become an important part of my life... When you hurt, I hurt, my heart is freely given to all that accept it... As I told Carolyn, Don't let the Bastard win!!! But as always he did ( But now she has the Heavenly wings of an Angel and is free of this worlds pains...

Good-Bye my Dear Sister Carolyn Until we meet again((( Angelbear Hugs and Kisses )))Lots of LoveYour SisHelen~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Helen,,, I know how your feeling,,, I just sat here on the computer and cried for a real long time,, and I didnt know her half as well as you did,, so I can only imagine,, but its true,, we are a family here,,, and when we loose one,,, it effects us all,,, my thoughts and prayers are with you,,,, If you need anything,, let me know!! Hugs RE: Hello All, Mom, I'm sorry you are grieving, I miss her too. I'm glad that she is not in pain now, and can be a beautiful angel, soaring high above the clouds and worries of the world. I'm sorry that I can't console you right now, I'd like to. Take care and vent if you need to...we're all here for you too. Hugs, -----Original Message-----From: angelbear1129@... [mailto:angelbear1129@...] Sent: Sunday, December 29, 2002 8:39 PM Subject: Hello All, I'm sorry I am not responding at the moment... I know Carolyn is in a much better place now and in no more pain... But for some reason I'm not handling it too well... Everytime I take the time to stop and think of her I cry, the tears will not stop... We had gotten to writing to each other Everyday, until about two weeks ago when she took a turn for the worse and caught pneumonia... With all her breathing problems on top of that it was impossible for her to catch her breath... She didn't want to pass away at a hospital so she decided to stay home where she wanted to be... Everything the hospital could do for her they could do at home... She had Myasthenia Gravis very bad and complications on top of that... She had been fighting with enormous swelling all year, where she would keep falling and was put in a wheelchair for good... They never did give her a name for what was in her lungs causing all the breathing problems, at least she didn't tell me, but her lungs kept filling with fluid... She just kept saying that the Dr. is very worried about it... She had been on oxygen for an awful long time, night and day... She was in congestive heart failure, and the list goes on and on ( She was Never one to complain, she was a soft spoken person unless you raised her feathers...I will Truely Miss her... I Never realized how attached one becomes to someone on the other end of a keyboard that you have never met face to face... But So Many of you have become an important part of my life... When you hurt, I hurt, my heart is freely given to all that accept it... As I told Carolyn, Don't let the Bastard win!!! But as always he did ( But now she has the Heavenly wings of an Angel and is free of this worlds pains... Good-Bye my Dear Sister Carolyn Until we meet again((( Angelbear Hugs and Kisses )))Lots of LoveYour SisHelen~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe ~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hello Helen

The fluid in her lungs would've been from the Congestive Heart Failure

as would the swelling. When I was symptomatic, my attitude was that

I'd rather stay home than in the hospital if all they can do is give

diurectics to hopefully reduce the load on the heart to a point where

the efficiency picks up a bit. Latter, in my research, I found out

that there is a slight difference in that the fluid is not only building

up in the lungs which makes it impossible to breathe lying down but it's

also building up in the stomach and intestinal linings so that

absorption of the medication is being affected so it is better to be in

the hospital because they feed you the Lasix by IV.

The oxygen is also because of the CHF, when you can hardly breathe, they

like to make each breath count as much as possible. Also, with CHF,

the breaths aren't doing much good cause the blood aint going anywhere

fast. I find that the oxygen makes it feel a bit easier for the first

while but then it's just drying out the nasal passages so I keep pulling

it out and the nurses keep putting it back on when they check up on me.

That's the real down side of staying in hospital, trying to rest when

they're checking up, or drawing blood every ten minutes, that and the

lack of private bathrooms particularly when you're on diurectics.

CHF is a tough one to not let the bastard win in. Eventually it'll get

you. In four months, I'll be past the point by which 50% of patients

are expected to die by and in 2006 I'll be past the point by which 70%

patients are expected to die by. Basically that's it, they just expect

us to die. When I ask for a Doctor's appointment, they always seem to

squeeze me in really quickly, I guess that's one advantage.

At least she's not struggling for each and every breath now. Believe

me, that's an effort you don't want to go through.

Regards,

angelbear1129@... wrote:

> I'm sorry I am not responding at the moment... I know Carolyn is

> in a much better place now and in no more pain... But for some reason

> I'm not handling it too well...

> Everytime I take the time to stop and think of her I cry, the tears

> will not stop... We had gotten to writing to each other Everyday,

> until about two weeks ago when she took a turn for the worse and

> caught pneumonia... With all her breathing problems on top of that it

> was impossible for her to catch her breath... She didn't want to pass

> away at a hospital so she decided to stay home where she wanted to

> be... Everything the hospital could do for her they could do at home...

> She had Myasthenia Gravis very bad and complications on top of

> that... She had been fighting with enormous swelling all year, where

> she would keep falling and was put in a wheelchair for good... They

> never did give her a name for what was in her lungs causing all the

> breathing problems, at least she didn't tell me, but her lungs kept

> filling with fluid... She just kept saying that the Dr. is very

> worried about it... She had been on oxygen for an awful long time,

> night and day... She was in congestive heart failure, and the list

> goes on and on ( She was Never one to complain, she was a soft

> spoken person unless you raised her feathers...

> I will Truely Miss her...

> I Never realized how attached one becomes to someone on the other

> end of a keyboard that you have never met face to face... But So Many

> of you have become an important part of my life... When you hurt, I

> hurt, my heart is freely given to all that accept it...

> As I told Carolyn, Don't let the Bastard win!!! But as always he

> did ( But now she has the Heavenly wings of an Angel and is

> free of this worlds pains...

>

> ...

>

[Guest guest]

You are so right, CHF is terrible, my good friend had it, she was on oxygen and Lasix. Life was a struggle every day. Anne

[Guest guest]

Cassy,

Sorry you feel so bad today. Maybe a lunch date with a friend would

cheer you up?

Please tell your doctor how you are feeling. Not sleeping will make you

feel awful.

I hope you feel better.

a

On Aug 22, 2005, at 8:04 AM, cnberte wrote:

> Not sure why but am feeling depressed today.  I had a pretty good

> weekend but I just don't feel right.  I just want to cry.  I did not

> sleep well, maybe that is it. I feel isolated and lonely.  Cassy

>

>

>

>

>

>

>

>

[Guest guest]

Hi Cassy, my name is , I live in Missouri. I read

you are having some depression right now. I feel for

you, sometimes I wonder if this doesn't go along with

the daily issues we have to deal with. I dont know

about you, but I live alone, and when I call my family

( kids, sisters, brother etc..) it is as if they don't

want to hear the " aches and pains " I am having, which

is understandable, but still leaves me with no one to

talk to. Then I really do feel lonely, and depressed.

I have read and beent old you need a good support

group, well, I never get out to make friends, so its

pretty much me and my dog, and he usually can get me

outta one of my moods, but not always. As silly as

this may sound, and it may not help you at all, try

taking one thing in the house you'd like to see done,

clean out closet, sort clothes, anything, then work on

that, put music on to help time go by. Then when you

are done with that project,, you feel a little better

to have accomplished something. I know it sounds

silly, but for me it helps. I think it gives us a

little sense of control over something, when we do not

have control over how our bodies are doing. You'd

think I'd have a spotless house right ? , lol wrong !

I am constantly moving things around, but it makes me

feel better. Of course if you are hurting so badly you

cant do the task, it will only frustrate you more.

During those times, if I can without my hands hurting

really bad, I will type a letter and send it to

someone I know , whom I have not contacted in a long

time. They enjoy it so much , and it brightens their

day to know you have thought of them. Or I pick up the

phone and call someone I have not spoken to in a long

time. I " listen " to what is going on in their lives,

and it helps me to get outside of myself and my

problems. Sometimes I realize my life isn't so bad

after all, Hugs and I hope some of this will help, if

you like please feel free to email me directly and we

can email back and forth, but let me know if youd like

to, so I can add you to my address book, otherwise the

emails go to junk mail, and I do not read those, there

are so many, I just empty the box and go on. Better

days ahead,,, in Missouri

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

[Guest guest]

Hi Cassy,

I am sorry that your having a tough day. Are you taking anything for

your depression? If you need to talk, I am always here. Tawny

> Not sure why but am feeling depressed today. I had a pretty good

> weekend but I just don't feel right. I just want to cry. I did not

> sleep well, maybe that is it. I feel isolated and lonely. Cassy

[Guest guest]

Hi well, I am still depressed, I am on prozac for that. Just very

down the last few days. Cry very easily. A program that I enjoy

on HBO ended and I even cried about that!

Thanks for all of your support and I sent you an email so you

can add me to your buddy list. Cassy

> Hi Cassy, my name is , I live in Missouri. I read

> you are having some depression right now. I feel for

> you, sometimes I wonder if this doesn't go along with

> the daily issues we have to deal with. I dont know

> about you, but I live alone, and when I call my family

> ( kids, sisters, brother etc..) it is as if they don't

> want to hear the " aches and pains " I am having, which

> is understandable, but still leaves me with no one to

> talk to. Then I really do feel lonely, and depressed.

> I have read and beent old you need a good support

> group, well, I never get out to make friends, so its

> pretty much me and my dog, and he usually can get me

> outta one of my moods, but not always. As silly as

> this may sound, and it may not help you at all, try

> taking one thing in the house you'd like to see done,

> clean out closet, sort clothes, anything, then work on

> that, put music on to help time go by. Then when you

> are done with that project,, you feel a little better

> to have accomplished something. I know it sounds

> silly, but for me it helps. I think it gives us a

> little sense of control over something, when we do not

> have control over how our bodies are doing. You'd

> think I'd have a spotless house right ? , lol wrong !

> I am constantly moving things around, but it makes me

> feel better. Of course if you are hurting so badly you

> cant do the task, it will only frustrate you more.

> During those times, if I can without my hands hurting

> really bad, I will type a letter and send it to

> someone I know , whom I have not contacted in a long

> time. They enjoy it so much , and it brightens their

> day to know you have thought of them. Or I pick up the

> phone and call someone I have not spoken to in a long

> time. I " listen " to what is going on in their lives,

> and it helps me to get outside of myself and my

> problems. Sometimes I realize my life isn't so bad

> after all, Hugs and I hope some of this will help, if

> you like please feel free to email me directly and we

> can email back and forth, but let me know if youd like

> to, so I can add you to my address book, otherwise the

> emails go to junk mail, and I do not read those, there

> are so many, I just empty the box and go on. Better

> days ahead,,, in Missouri

>

>

>

>

> ____________________________________________________

> Start your day with - make it your home page

> http://www./r/hs

[Guest guest]

I did 1.5 mg for a month before increasing to 3.0 mg. That worked well for me.

Herb

[low dose naltrexone] Hello All,

Looking for some advice from all you wise ones who've had much more

experience than I. Started LDN Mar 27 2008, just over a month ago.

1. I have recently been prescribed some supplements from my doc. 2 of

which are slow release. I take them throughout the day. I know that

LDN should not be in slow release form but will the other slow release

supplements I'm taking have any ill effect on my LDN.

It sounds like a silly question but I just want to be sure.

2. Is anyone taking less that 3mg. I started at 1.5mg for a 5 days

then went up to 3 and then after a week to 4.5mg. I had to go back

down to 3mg as the spasticity was too much. It hasn't helped much but

at 1.5 I was able to walk a little further. I was just wondering if I

should drop it back to 1.5mg for a while. Does anyone else have any

experience with this? Do you think it is TOO low a dose to get any

benefit from? I don't want to lose the benefits of stopping the

progression - I know that's the main objective.

Any insight would be greatly appreciated.

Thanks everyone,

Plan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

[Guest guest]

hi all,

well, we are on day three of the four day rain forecast. we have had

RAIN.... lots of it. 6 to 8 in. , someplaces 12 in. we live on a dirt road and

it washed out. two creeks ran over the road. you can get out, if you go up in

the bushes , off the road. just barely enough room to make it. don't know how

long it'll be before they fix it. school is out this week for spring break. next

monday, the school bus will have to come over it. i guess they'll fix it

then.... the county i live in is very slow fixing the roads.....

i couldn't stand up straight, or walk this morning, until i took my lortab. my

hands, back, hips, and knees are giving me fits . i told tom , when i got

breakfast, that he could have it the rest of the day. he laughed, and went back

to bed.... okey.... i can at least go some, with the lortab.

hope everyone is having a good day. gina, thank you for all the good info you

have been giving us, it helps to know.

barbara, hun, i hope you are feeling alright today.

sarah x, how are you ?? haven't heard from you lately.

hugs to all,

BETTY

PRAY FOR OUR TROOPS

MAY NO SOLDIER GO UNLOVED, MAY NO SOLDIER WALK ALONE, MAY NO SOLDIER BE

FORGOTTEN, UNTIL THEY ALL COME HOME.

SOLDIER'S ANGELS

[Guest guest]

Hi Betty,

I sent you an email earlier to catch up.

We're having heavy rain and high winds here in England too. Last week it

was spring,with plenty of sunshine, now we're back to winter. Tomorrow

we put our clocks forward an hour here in the UK, so we all get an hour

less in bed. Think there's talk of stopping this and we'll have the same

time as Europe. It started during the 2nd world war to allow our farmers

extra daylight. In the spring we put our clocks forward an hour but in

Autumn we put them back an hour., which means it gets darker quicker in

winter. The children go to school in the dark and come home in the dark

during the winter, more so in Scotland than in England( to do with the

equator) or something.

I've read how some of you moved home to go to sunnier climates for your

RA etc. We would need to go to Spain etc to get the benefit. That's

another thing Rheumatologists say doen't affect us, but we know

different. The strange thing is, for me during the summer(if it is very

hot which doesn't happen very often here) I can be worse, or during the

winter when it is very cold. So for me, it is extreme weather that

affects me more.

Anyway, I've blabbed on enough, need to give my brain a rest lol.

Best wishes

x

>

> hi all,

> well, we are on day three of the four day rain forecast. we have had

RAIN.... lots of it. 6 to 8 in. , someplaces 12 in. we live on a dirt

road and it washed out. two creeks ran over the road. you can get out,

if you go up in the bushes , off the road. just barely enough room to

make it. don't know how long it'll be before they fix it. school is out

this week for spring break. next monday, the school bus will have to

come over it. i guess they'll fix it then.... the county i live in is

very slow fixing the roads.....

>

> i couldn't stand up straight, or walk this morning, until i took my

lortab. my hands, back, hips, and knees are giving me fits . i told tom

, when i got breakfast, that he could have it the rest of the day. he

laughed, and went back to bed.... okey.... i can at least go some, with

the lortab.

>

> hope everyone is having a good day. gina, thank you for all the good

info you have been giving us, it helps to know.

>

> barbara, hun, i hope you are feeling alright today.

>

> sarah x, how are you ?? haven't heard from you lately.

>

> hugs to all,

>

> BETTY

>

> PRAY FOR OUR TROOPS

>

> MAY NO SOLDIER GO UNLOVED, MAY NO SOLDIER WALK ALONE, MAY NO SOLDIER

BE FORGOTTEN, UNTIL THEY ALL COME HOME.

>

> SOLDIER'S ANGELS

>

>

>

>