Re: new,just joined...pred

[Guest guest]

thanks barbara and dennis,

i will, i understand what you are both saying, i appreciate sharing the info and

concern.

it is tough finding what works and then weighing the long term side effects.

i,too, am more interested in a shorter life if i can have a better quality to do

some of the things i like to do...like take care of my rescued dogs.if i had to

give them away,go on disability,live on welfare, i think i would commit suicide.

but yes, i am due to talk to my pcp, my rheum is of no help at this point. i am

not sure why my pcp is more willing to have me start enbrel than the rheum, but

my pcp mentioned the rheum is more regulated by hmo's eventho i have bcbs.i am

just so tired of being kept sick for so long, not getting much help at all from

any of the docs and i have spend thousands of dollars going the fibromyalgia and

chronic fatigue alternative doc route, all the supplements,and come to find out

i have probably been living with low grade and now severe autoimmunity and

inflammation all my life.

take care,

marg

>

>

> Hi Dennis and Marge:

>

> Prednisone has been the wonder drug for me. Like you , I have never

> been able to get off it. This drug has allowed me to have a life, even

> if it is a restrictive life. I could not get out of bed or even

> function without it.

>

> Marge, I am glad you will be talking with your Rheumy about the dose of

> Pred. that you are taking. I have only had 40-60 mgs. of Pred. in the

> beginning, and one other time for a very bad flare and Pneumonia and

> Asthma at the same time. My Rheumy watches me very closely. I hope you

> feel better soon.

>

> Hugs,

>

> Barbara

[Guest guest]

Hi Marge:

I know what you mean. Before I moved here from Cape Cod, I was almost

in a wheel chair. Moving here is so much better for me. It was so hard

to leave my family, friends, and my new little granddaughters. I had to

do what was best for me. I just can't take the N.E. weather anymore.

As I said before, Pred. is the wonder drug for me. If I got off it, I

would be back to square one, in a wheel chair, and in too much pain. I

hate the weight that I have put on by taking Pred. daily for 5 + years,

but I have to deal with that. At least I have a quality life, and my RA

is well controlled along with this, and my RA " cocktail " . We just have

to give to get.

I hope you will feel better soon, and have some pain free days ahead.

Hugs,

Barbara

> >

> >

> > Hi Dennis and Marge:

> >

> > Prednisone has been the wonder drug for me. Like you , I have never

> > been able to get off it. This drug has allowed me to have a life,

even

> > if it is a restrictive life. I could not get out of bed or even

> > function without it.

> >

> > Marge, I am glad you will be talking with your Rheumy about the dose

of

> > Pred. that you are taking. I have only had 40-60 mgs. of Pred. in

the

> > beginning, and one other time for a very bad flare and Pneumonia and

> > Asthma at the same time. My Rheumy watches me very closely. I hope

you

> > feel better soon.

> >

> > Hugs,

> >

> > Barbara

>