New website

[Guest guest]

Hi , I just tried to join. & keep getting error messages. One is about e-mail address which isn't even asked for. Tried the contact u link - won't submit????

[low dose naltrexone] New Website

Hello I was Dx with MS last year. Someone gave me the idea the other day regarding finding love or friendship if you have MS. So I have started a new community website at www.mspals.net which caters for dating and making friends. The site is new so it needs populating, take a look and any ideas let me know. thanks Steve

www.mspals.net

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[Guest guest]

This group is to discuss low dose Natrexone.

It is not a single disease group, like MS.

Please post this dating service MS solicitation/discussion on SpotlightLDN or LDN_Users where off topic discussion seems to be OK.

mjh

mjhlow dose Naltrexone groups:low dose naltrexone, ldnsupport, LDN_Users, SpotlightLDN, Autism_LDN, NewGenLDNUsers, LDN_4_cancer, LDN_HIVAIDSProceedings of the 2nd LDN Conference, 2006, www.skipspharmacy.com

mjhThreeLDN forums: http://www.ldnresearchtrust.org/forums/index.php?act=idxhttp://disc.server.com/Indices/148285.htmlhttp://ldn.proboards3.com/index.cgihttp://www.healingwell.com/community/default.aspx?f=17 & m=702259 & p=3http://rxcommunications.info/index.php?name=PNphpBB2 & file=viewforum & f=4See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Hi Chris

Many thanks for this. Yes, it looks to be a very new website. I have joined so that I can be sent scientific papers as and when they are put out. Most of what is here at the moment is written by Dr Lowe, but here is one that I thought would interest those of you who have been given a diagnosis of FMS , which apparently is caused through deficiencies of thyroid hormone replacement.

Luv - Sheila

Thyroid Science 11(1):CLS1-18, 2007Metabolic Failure as the Cause of Fibromyalgia Syndrome: Exploring the C. Lowe Thesis(Full Text Free in pdf format)Bjørn Johan Øverbye, MD**Postbox 348 –N4803, Arendal, Norway, Contact: bjorn@...

Abstract. Introduction and Aim. The aim of this one year project was to investigate a thesis by C. Lowe: that fibromyalgia syndrome (FMS) is a hypometabolic condition caused by a reduced effect of thyroid hormones at the cellular level, due either to (1) a deficiency of adequate thyroid hormone (hypothyroidism), or (2) a reduced cellular effect of thyroid hormone despite its production of reference range quantities (partial peripheral thyroid hormone resistance).

Material and Methods. Study subjects were 56 female patients with a clinical picture of "classical FMS." The diagnosis of FMS was verified by specialists for 27 of the patients. Although 29 patients had the classical signs and symptoms of FMS, they were waiting for their diagnosis to be verified by specialists. These 29 patients were excluded from the investigation until a later date when a qualified specialist will verify beyond doubt their correct diagnostic label.

To test Lowe's thesis, a questionnaire was made. The basis of the questionnaire was the already-existing statistics of symptoms and signs of hypothyroid patients who had not yet achieved metabolic restoration by the use of thyroid hormone medication. The questionnaire was filled out by all 56 patients. The answers from all patients were collected and put into a database. The answers of patients with verified FMS were extracted and compared to the statistical material upon which the questionnaire was made.

In addition, all 27 patients with verified FMS were tested for their thyroid hormone status at the local hospital. Thirteen of the patients were tested with a method developed by Professor Louis-Claude Van ,[45] "Van 's Bio-Electrical-Terrain-Analysis" (Van BE-T-A). BE-T-A is a system that evaluates the metabolic status of mesenchymal (structurally supportive) and parenchyma (essentially producing) tissues.[16]

Results. Comparing the questionnaire answers of the 27 FMS patients with the statistics from hypothyroid patients, the frequencies of symptoms fit a pattern of untreated hypothyroidism. The Van BE-T-A test showed an acidosis of mesenchymal tissues, such as connective tissues and lymphatic and blood vessels. The acidosis can be explained by a lack of thyroid hormone effect at the cellular level, leading to an increase in parenchymal anaerobic metabolism, in which biological processes proceed in the absence of oxygen.

Conclusion. The results of questionnaire analysis, use of the Van BE-T-A testing, and the author's clinical experience are consistent with the Lowe thesis that metabolic failure underlies FMS. The cause of the failure is plausibly explained by deficiencies of thyroid hormones or reduced cellular effects of the hormones. There are two natural solutions to this problem: (1) increase the amount of thyroid hormones available to the tissues, and (2) normalize the cellular effects of thyroid hormones by removing whatever hinders their normal effects.

>> Sheila,> > Is this a new site:> > http://www.thyroidscience.com/index.htm> > luv> Chris>

[Guest guest]

Hi Louise

I typed in 'endocrinology' and 'Bradford' and 'Keighley' to see if there was a recommended endocrinologist in these areas, the response was 'ZERO' - not even my lovely endo mentioned, or any of the others I know. Perhaps I should spend some time typing in their names.

Luv - Sheila

Has anyone seen this? www.iwantgreatcare.org It's a new website where you can review your GP or hospital Dr. so people can shop around and find one with a good review. From what I've read about it so far they don't allow swearing though...hmm. ;0) Louise.No virus found in this incoming message.

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[Guest guest]

I've seen so many Drs over the years I can't remember the names of most

of them; some have probably retired by now. Hopefully.

Louise.

>

> Hi Louise

>

> I typed in 'endocrinology' and 'Bradford' and 'Keighley' to see if

there was a recommended endocrinologist in these areas, the response

was 'ZERO' - not even my lovely endo mentioned, or any of the others I

know. Perhaps I should spend some time typing in their names.

>

> Luv - Sheila

[Guest guest]

There is a bit for "doctors add yourself now". Defeats the object.

Lilian

[Guest guest]

Yes this must be very very new - I typed in Alton Hants and my

original Dr's name at the Alton Health Centre and although I did

manage to find her name (the only one from a GP practise of at leats

6 )no-one had put any 'details' on record.

So it looks like they are relying on the general public to go in and

enter data re specifics. I really do think they should have at least

put in some base data for people instead of relying on the 'patients'

as such.

M

>

> Hi Louise

>

> I typed in 'endocrinology' and 'Bradford' and 'Keighley' to see if

there was a recommended endocrinologist in these areas, the response

was 'ZERO' - not even my lovely endo mentioned, or any of the others

I know. Perhaps I should spend some time typing in their names.

>

> Luv - Sheila

>

>

>

> Has anyone seen this? www.iwantgreatcare.org It's a new website

where

> you can review your GP or hospital Dr. so people can shop around

and

> find one with a good review. From what I've read about it so far

they

> don't allow swearing though...hmm. ;0)

>

> Louise.

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.4.10/1550 - Release Date:

13/07/2008 17:58

>

[Guest guest]

Quite - it should be for PATIENTS to give their doctors credit - or not.

Luv - Sheila

There is a bit for "doctors add yourself now". Defeats the object.

Lilian

No virus found in this incoming message.

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[Guest guest]

hi denise, i see that you live not very far from me, i am in milland,

nr. liphook, have you found any endo's locally that are worth

seeing ? regards jane

>

> Yes this must be very very new - I typed in Alton Hants and my

> original Dr's name at the Alton Health Centre and although I did

> manage to find her name (the only one from a GP practise of at leats

>

>

> >

[Guest guest]

Hi all - I think this is great news! The Patient Opinion site are looking into whether they can add reviews of GPs and looks like they might have missed the boat! (But its a GP who started the PO site so they might be wary!).

Although GPs are asked to put in their own details from my little look through the site I dont think they can review themselves.

Lets make the best use of this site, add your doctor and your reviews of them so that others will know if they are good or bad - but more importantly so that the commissioners - the PCTs - will know what patients think of the GPs and if we flag up the thyroid issues it will all help to get the message across to the GPs, the PCTs and the DoH/NHS that we arent happy - unless we are the few lucky ones.

Help this site to help us is my message - I think its very good news indeed!! (wish Id thought of it in fact!!!).

Gill

Has anyone seen this? www.iwantgreatcare.org It's a new website where you can review your GP or hospital Dr. so people can shop around and find one with a good review. From what I've read about it so far they don't allow swearing though...hmm. ;0) Louise.

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[Guest guest]

Hello Jane,

Unfortunately I cannot help you there - I was only trying out of

curiosity to find the Dr that I used to have when I lived in England

(Alton). I moved to NE Florida permanently 2 yrs ago now.

My Dr in the UK, while very nice, flatly refused to do any tests on

me despite what I now know to be fairly typical symptoms over quite

some time, as well as an obvious lump in my neck. In fact she

offered me both anti depressants and HRT both of which I refused.

My Dr here took one feel of the lump in my neck and ordered an

immediate scan which was followed pretty qickly with an initial

visit to an endocrinologist/surgeon. Frightened the life out of me

but I have to say 2 yrs on I am now doing exceptionally well, and

feel better than I have done for nearly a couple of decades.

I was put on a low dose of Synthroid (levothyroxine). I am doing

very well on it my TSH runs at 0.484 and I feel just great. I;ve ad

a few hiccups along the way but over the past couple of months I

have gone from strength to strength - long may that last.

Fortunately for me my Dr goes by how I feel and am doing rather than

relying on the test results. Having said that my TSH is generally

running at 0.48 and I have no hyper side affects. I guess I am one

of the lucky ones cos not all Dr's in the US are as open and

knowledgeable as mine.

Sorry Jane this hasn't really helped you in finding an Endo in your

neck of the woods in Hampshire. Your best bet is with Sheila's

list - wasn't there one down in Southampton? If not then I'd try

London if I were you.

Good luck with your hunt............

M.

>

> hi denise, i see that you live not very far from me, i am in

milland, nr. liphook, have you found any endo's locally that are

worth seeing ? regards jane

>

[Guest guest]

Hiya

Seems like it good end up a good site, just that hardly anyone has

used it yet. I put my good old dermatologist on but his name did not

come up in the search, so I don't know what happened there. Maybe they

check if they exist?

Anyway, well spotted, I hope it flourishes, anything that gives info I

believe is a good thing.

lotsa luv

Dawnx

[Guest guest]

HI - how is NE Florida compared to the good old UK? I could do with some of that lovely sunshine right now. Here we are in the middle of July, cold, grey skies, windy and dreary.

What explanation did your doctor in the UK give for NOT giving you the thyroid function tests you required - this really intrigues me and it does appear that some of our doctors over here really are terrified of anything to do with thyroid issues - probably they don't want to get involved or give a diagnosis because they know Big Brother will be keeping an eye on them re how they medicate, so turning their back on the problem is the easy option. All quite appalling. It is good to hear that you are doing so well on synthroid - you obviously ARE one of the lucky one's and long may it last.

Luv - Sheila

Hello Jane,Unfortunately I cannot help you there - I was only trying out of curiosity to find the Dr that I used to have when I lived in England (Alton). I moved to NE Florida permanently 2 yrs ago now.My Dr in the UK, while very nice, flatly refused to do any tests on me despite what I now know to be fairly typical symptoms over quite some time, as well as an obvious lump in my neck. In fact she offered me both anti depressants and HRT both of which I refused. My Dr here took one feel of the lump in my neck and ordered an immediate scan which was followed pretty qickly with an initial visit to an endocrinologist/surgeon. Frightened the life out of me but I have to say 2 yrs on I am now doing exceptionally well, and feel better than I have done for nearly a couple of decades. I was put on a low dose of Synthroid (levothyroxine). I am doing very well on it my TSH runs at 0.484 and I feel just great. I;ve ad a few hiccups along the way but over the past couple of months I have gone from strength to strength - long may that last.Fortunately for me my Dr goes by how I feel and am doing rather than relying on the test results. Having said that my TSH is generally running at 0.48 and I have no hyper side affects. I guess I am one of the lucky ones cos not all Dr's in the US are as open and knowledgeable as mine. Sorry Jane this hasn't really helped you in finding an Endo in your neck of the woods in Hampshire. Your best bet is with Sheila's list - wasn't there one down in Southampton? If not then I'd try London if I were you. Good luck with your hunt............ M.

.. No virus found in this incoming message.

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[Guest guest]

My rheumy's office told me about a website where the information is written by

rheumatologists: www.rheumatologyinformation.org

Check it out!

beth in new York

Sent from my iPod

[Guest guest]

Good day,

 

I hope that some people who post websites like these have a little bit of

experience of what the market requires. At this stage the countries with most

experience in BLS/ALS/ACLS/APLS and CPR is Americans and South Africans.

 

Witnessed a full resus yesterday and can acknowledge that South African

Doctors,Nurses and Paramedics know their stuff!!They will bring you back from

the dead and not only carry bedpans around. lol

 

Stay well and be safe.

 

Rgds

Byron

[Guest guest]

Hi Byron,  the Remote Site Medic slogan should be " INTERFERING WITH NATURAL

SELECTION " now have a good day and keep up the Fair work.... 

 

Daugherty NREMT-P

Fluor Safety

________________________________

From: Byron Fawcus <byronfawcus@...>

" " < >

Sent: Mon, July 25, 2011 6:11:07 AM

Subject: Re: New website

 

Good day,

 

I hope that some people who post websites like these have a little bit of

experience of what the market requires. At this stage the countries with most

experience in BLS/ALS/ACLS/APLS and CPR is Americans and South Africans.

 

Witnessed a full resus yesterday and can acknowledge that South African

Doctors,Nurses and Paramedics know their stuff!!They will bring you back from

the dead and not only carry bedpans around. lol

 

Stay well and be safe.

 

Rgds

Byron