Re: Low-dose naltrexone

[Guest guest]

Al,

I also have had good results on low-dose naltrexone (3 mg)---better immune

response

with fewer infections & it also seems to help my sleep pattern. After three

months on 3 mg,

I am increasing to 4.5 mg as of this evening. I will report in two or three

months my progress.

Steve Du Pre

http://www.angelfire.com/jazz/isaiah40soaringeagle/index.html

[Guest guest]

Al,

I have been on 3mg reg (not sustained release) for a

few weeks. I've not noticed anything yet but it seems

to me that it is a treatment that will take a while to

produce a benefit (if it works for me). Once I have

completed 3 months of 3mg I am also going to ask for

4.5mg. I may get a NK Cell test done at this stage,

financial situation allowing;)

Bobby

>>>>>>

Al,

I also have had good results on low-dose naltrexone (3

mg)---better immune response with fewer infections &

it also seems to help my sleep pattern. After three

months on 3 mg, I am increasing to 4.5 mg as of this

evening. I will report in two or three months my

progress. Steve Du Pre

__________________________________________________

[Guest guest]

I don't keep up with this list very well, but I did just find this post and

want to add my own recent observations to back up what says.

I tried LDN several years ago and found it helped enormously in reducing

colds and flues and improved my immune blood cell counts (NK and T). After

a couple of years on 3mg I found that the immune counts were dropping again

so I stopped LDN. Last year I started getting colds and flues again, so in

January this year I restarted LDN at about 4mg.

RESULT - NO colds or flues since starting LDN 8 months ago, compared with

one infection every month or two before LDN. This is an astounding

treatment for some of us, at least under some conditions. I am convinced.

BTW I just chop a Revia tablet into 12 pieces with a knife to get about

4mg. Works for me, and a lot easier than the other methods I read about,

and cheaper.

My LDN story and some related info (not updated yet to include recent

events as above) is still on my website at ...

http://www.users.on.net/~julian.robinson/cfs/naltrexone.htm

Cheers

n

-------Original Message from Du Pre at 01:24 AM 13/08/04 Friday-------

>Hello,

> After 20 months taking 4.5 mg naltrexone due to low natural killer

> cell function, I can report that I have not had any colds or flu during

> the 20 month period. I'm one of those that usually picks up every flu

> that goes around, so I'm happy that I do not have to go through the long

> recovery time after having the flu. This particular treatment was found

> by a Dr. Bernard Bihari.

> See information and web site under my signature line. People often

> start at 3 mg for a couple months and then move up to 4.5 mg. This is a

> physician prescribed medicine. So far, my HMO won't cover it. I get it

> from a compounding pharmacy. One capsule is taken after 9 p.m. at night.

> Du Pre

[Guest guest]

hi i had no colds before and on low dose naltrexone.

... when i finish the bottle i take 2 weeks off, i just picked amount time

to give body break from it

still herxing from 1/2 tsp shredded coconut

julian great fotos glad it helping u now

tealk

> [Original Message]

> From: n <aaardvark@...>

> < >

> Date: 8/31/2004 3:28:56 AM

> Subject: Re: Low-dose naltrexone

>

>

> I don't keep up with this list very well, but I did just find this post

and

> want to add my own recent observations to back up what says.

>

> I tried LDN several years ago and found it helped enormously in reducing

> colds and flues and improved my immune blood cell counts (NK and T).

After

> a couple of years on 3mg I found that the immune counts were dropping

again

> so I stopped LDN. Last year I started getting colds and flues again, so

in

> January this year I restarted LDN at about 4mg.

>

> RESULT - NO colds or flues since starting LDN 8 months ago, compared

with

> one infection every month or two before LDN. This is an astounding

> treatment for some of us, at least under some conditions. I am convinced.

>

> BTW I just chop a Revia tablet into 12 pieces with a knife to get about

> 4mg. Works for me, and a lot easier than the other methods I read about,

> and cheaper.

>

> My LDN story and some related info (not updated yet to include recent

> events as above) is still on my website at ...

>

> http://www.users.on.net/~julian.robinson/cfs/naltrexone.htm

>

> Cheers

>

> n

>

> -------Original Message from Du Pre at 01:24 AM 13/08/04

Friday-------

> >Hello,

> > After 20 months taking 4.5 mg naltrexone due to low natural killer

> > cell function, I can report that I have not had any colds or flu during

> > the 20 month period. I'm one of those that usually picks up every flu

> > that goes around, so I'm happy that I do not have to go through the

long

> > recovery time after having the flu. This particular treatment was

found

> > by a Dr. Bernard Bihari.

> > See information and web site under my signature line. People often

> > start at 3 mg for a couple months and then move up to 4.5 mg. This is

a

> > physician prescribed medicine. So far, my HMO won't cover it. I get

it

> > from a compounding pharmacy. One capsule is taken after 9 p.m. at night.

> > Du Pre

>

>

>

>

> This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

>

[Guest guest]

Beth sign in and go to your group page and delete yourself ... that is how everyone removes themselves from a list.. it is easy! Beth Ravenelle <Bethrav@...> wrote: This is my third time to request removal from your email group. Please REMOVE ME.Thank you,Beth Ravenelle__________________________________________________________All-in-one security

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[Guest guest]

Uh, I would not be so quick to jump on this wagon. Check the links below.

http://www.savella.com/SavellaMedicationGuide.pdf

http://frx.com/pi/Savella_pi.pdf

I have enough problems as it is without taking a medication that would affect me this way. As it is, I am afraid that my psychiatrist would probably hospitalize me if I started taking it. I have a long history of suicidal thoughts as it is.

Seems odd that the FDA would approve this medication yet pull Darvocet. Weird agency.

Anne W

Low-dose naltrexone

Naltrexone May Ease Fibromyalgia Symptoms

Preliminary Study Shows That Low-Dose Naltrexone May Be an Effective, Low-Cost Treatment for Fibromyalgia

By Miranda HittiWebMD Health News

Reviewed by Louise Chang, MD

April 17, 2009 -- An inexpensive drug called naltrexone may make a good treatment for fibromyalgia, report researchers at Stanford University.

Naltrexone isn't a new drug; it's been around for more than 30 years and is used to treat opioid addiction.

Stanford's Jarred Younger, PhD, and Mackey, MD, PhD, tested a low dose of naltrexone as a fibromyalgia treatment in 10 women who had had fibromyalgia for about 10 years, on average.

First, the women spent two weeks recording the severity of their fibromyalgia symptoms every day using a handheld computer. And they took lab tests to gauge their fibromyalgia pain and sensitivity to heat and cold.

After that, the women took a placebo pill every day for two weeks, but they didn't know it was a placebo pill. At the end of the placebo period, the women took a naltrexone pill once a day for eight weeks. Finally, they spent the last two weeks of the study not taking naltrexone or the placebo.

All along, the women continued to rate their fibromyalgia symptoms every day, and they repeated their lab tests every two weeks.

While taking the placebo, the women reported a 2.3% drop in the severity of their fibromyalgia symptoms, compared to their symptom ratings at the start of the study.

When they switched from the placebo to naltrexone, they reported an additional 30% drop in their fibromyalgia symptom severity.

The women also showed greater tolerance for pain and for hot (but not cold) temperatures while taking naltrexone.

Most of the women -- six out of 10 -- responded to naltrexone.

Side effects were mild and brief.

[Guest guest]

Hi Anne,

I can't seem to get to either of the web sites you listed (I think it's my browser that just doesn't want to go anywhere right now). But I notice that both the sites are about Savella. Are you saying that Savella and Naltrexone are the same medication? Because they are not. Savella is Milnacipran, which has been around for only several years. Naltrexone has been around for several decades.

Pam

>> Uh, I would not be so quick to jump on this wagon. Check the links below.> > http://www.savella.com/SavellaMedicationGuide.pdf> > http://frx.com/pi/Savella_pi.pdf> > I have enough problems as it is without taking a medication that would affect me this way. As it is, I am afraid that my psychiatrist would probably hospitalize me if I started taking it. I have a long history of suicidal thoughts as it is. > > Seems odd that the FDA would approve this medication yet pull Darvocet. Weird agency.> > Anne W> Low-dose naltrexone> > > > > > Naltrexone May Ease Fibromyalgia Symptoms> > Preliminary Study Shows That Low-Dose Naltrexone May Be an Effective, Low-Cost Treatment for Fibromyalgia > > By Miranda Hitti> WebMD Health News > > Reviewed by Louise Chang, MD > > April 17, 2009 -- An inexpensive drug called naltrexone may make a good treatment for fibromyalgia, report researchers at Stanford University.> > Naltrexone isn't a new drug; it's been around for more than 30 years and is used to treat opioid addiction.> > Stanford's Jarred Younger, PhD, and Mackey, MD, PhD, tested a low dose of naltrexone as a fibromyalgia treatment in 10 women who had had fibromyalgia for about 10 years, on average.> > First, the women spent two weeks recording the severity of their fibromyalgia symptoms every day using a handheld computer. And they took lab tests to gauge their fibromyalgia pain and sensitivity to heat and cold.> > After that, the women took a placebo pill every day for two weeks, but they didn't know it was a placebo pill. At the end of the placebo period, the women took a naltrexone pill once a day for eight weeks. Finally, they spent the last two weeks of the study not taking naltrexone or the placebo.> > All along, the women continued to rate their fibromyalgia symptoms every day, and they repeated their lab tests every two weeks.> > While taking the placebo, the women reported a 2.3% drop in the severity of their fibromyalgia symptoms, compared to their symptom ratings at the start of the study.> > When they switched from the placebo to naltrexone, they reported an additional 30% drop in their fibromyalgia symptom severity.> > The women also showed greater tolerance for pain and for hot (but not cold) temperatures while taking naltrexone.> > Most of the women -- six out of 10 -- responded to naltrexone.> > Side effects were mild and brief.>

[Guest guest]

I have been on it for about 8-10 months now.  It does help.  I noticed the

improvements more when I first started than now.  That could be either that I am

accustomed to feeling a little better or that it has lost some of it's effects.

From: robinlee55 <robinlee55@...>

Subject: Low-dose Naltrexone

Date: Sunday, May 10, 2009, 1:19 PM

A week ago I began taking Low-dose Naltrexone for my FM/CFS after reading many

encouraging reports online. My wonderful holistic and very open-minded doc here

in Colorado prescribed it for me (my mainstream GP wouldn't). There's a great

website for more info: low-dosenaltrexone. com. I know of one other person

who's been on it for 4 months and it's helped her pain, and my doctor herself

who has MS said it has helped with her pain and fatigue. I'd love to hear from

anyone else on LDN. According to one study, 85% of FM/CFS patients have

improved significantly with it.

[Guest guest]

I've been on LDN for almost 3 years---------it lifted a body weakness. I'm

like , don't notice anything at the moment, but that's because the symptoms

are gone!!

God Bles,

Sara

[Guest guest]

Dear Sara,

I hope to be like you in 3 years!

I was diagnosed with fibromyalgia a year ago after struggling with it since

1995. Also was diagnosed last month with CFS by Dr. Montoya at Stanford. He

prescribed one year of Valtrex which I'm currently taking.

Tomorrow at noon (Wednesday) I'm meeting with Dr. Jarred Younger at Stanford

about joining his ongoing phase II clinical trial of Low Dose Naltrexone for

Fibromyalgia.

Please wish me luck! I'll post results after I begin the trial.

Tamra in Gilroy

>

> I've been on LDN for almost 3 years---------it lifted a body weakness. I'm

like , don't notice anything at the moment, but that's because the symptoms

are gone!!

>

> God Bles,

> Sara

[Guest guest]

I was on it for years - I do not know whether it did me any good, it was during remission - I stopped taking it about three years ago - a lot of people swear by it, don't think that there is any solid clinical proof, however - Dell Inspiron 15: Now starting at $349

[Guest guest]

Hi Sheryl - I actually have the medication; however I haven't taken it yet

because I am still on a narcotic pain medication, so I don't think I should take

them together. It does look promising though and hope that I will be in a

somewhat pain-free state and not on narcotics soon and be able to try it. I got

it from my Holistic M.D.

Donna

>

> Hi All,

>  

> I came across this article today;

>

>

http://articles.mercola.com/sites/articles/archive/2009/01/13/can-ldn-really-hel\

p-multiple-sclerosis-rheumatoid-arthritis-and-other-autoimmune-diseases.aspx

>  

> And was wondering if anyone here has any experience w/this drug?  Seems like

it might hold a lot of promise.

>

>

> Sheryl

>

>

>

>

>

[Guest guest]

Sherly and Donna,

I started taking 3mg May 9,this year.  A doctor of Ostopath prescribed it for

me.  She did extensive blood work and also recommend lots of nutrition products

for things I was deficient in.  After taking for several weeks I had to have a

course of antibotics for Bronchonitis/Sinusitis and I just finished a

presciption for Diflucan to clear up yeast from antibotic.   I am feeling much

more energetic than I was before seeing this new doctor which is a D.O.   I

can't say the LDN along has helped me feel better but it hasn't anything.   I 

have been off Methrotrexate (pills) since Nov 09.  I stopped while I was taking

an antobitic sinus infection and just didn't start back.  But I was able to go

about 6 months without getting an infection and my RA hasn't gotten any

worse.    

 

I had taken the Methrotrexate for over 20 years.  It was my mircle drug.  It

kept me functional and decreased the pain.   I am just hoping I don't have to go

back on it.   I do don't recommend stopping a medicine.   I still have a hard

time believing I did it, but I am being monitored closely.   I had blood work

done last week that I don't have results of yet.

 

There is a group on that is devoted to low-dose naltrexone you can join

also.   You can email me privately if you think I can be of assistance.