Judi~ Hello from your Zebra friend!

August 5, 2009

(((((((((((((((((Judi))))))))))))))))) ! This is (used to be screen name)

Tess!!! I am now going by my given name of Cheryle. It is SO good to 'see'

you. I have thought about you, Ron and family many times over these past years.

My daughter Emmy was dx'd with MS 2 1/2 years ago and has yet to go into

remission. You know she had plenty of struggles to start with and is at a bit

of a rather difficult turning point. I have been working part-time for the

American Red Cross and loved it but the funding was cut July 15 so no more job.

It was such a good fit for me and my limitations. But...I believe God will open

up another door. As much as it pains my heart that us 'old timers' such as you,

Debs and myself had to be 'here' to find each other I am so grateful that even

after years we still can share a great friendship.

Love...

Cheryle in Oregon

Re: [ ] Hello from your " Zebra " friend!

So nice to hear from you, Judi!

Not an MD

On Sat, Aug 1, 2009 at 2:19 PM, Judi<nonny46@...> wrote:

> Some of you may remember me, many of you I have never met. I found this group

about 10 years ago when I didn't know what was wrong with me. I was later

diagnosed with fibromyalgia and finally with Dercum's Disease (adiposis

dolorosa.) This past year they have added lymphedema/lipedema to the list.

>

> Two years ago we moved from Indiana to Georgia to be close to our daughter,

newly remarried (for the 3rd time!) and with 5 kids. Georgia didn't work out,

too hot, too buggy, and too much time babysitting. My husband is 72 and has

Parkinson's, so I am his caregiver in addition to dealing with my own

challenges. So we moved back to northern Illinois, now living in a wonderful

apartment complex with free golf, a fitness center, and a pool. We've both

adjusted to our health shortfalls with new interests, and serving our church.

>

> I just wanted to check in and say hi to all my old friends and some new ones,

and if you have never heard of Dercum's, check it out on the web. It's

considered a rare disease, but maybe more under-diagnosed or misdiagnosed than

rare.

>

> Judi the Zebra

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