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I am so sorry for your daughter. What if she had read it? My daughter

reads everything that comes home. At the least I would express this

concern to the teacher. if your daughter had read those words how hurt your

daughter would have been. Our public school staff was not sensitive if I would

have escalated a letter like this they probably would have agreed that the

teacher does not have time to talk and missed your point the point that the

teacher is not equipped

to work with special ed kids.

Some teachers have tutoring time for kids, if you stay on friendly

terms with this lady would she be willing to meet once a

week and have a chat with your daughter? Or does your

daughter have a counseling session where she can befriend

a counselor or social worker. My daughter " hates " therapy but

she likes to just talk with adults. Our counselor at school

often played board games with our daughter and talked about her

interests.

My daughter has this same behavior of talking to adults alot.

She also goes off topic during class discussion.

One teacher complained in 4th grade that she went off topic

too much. Same as what your daughter did. It took about 6 months

of reinforcement at a religion class I teach to correct this behavior.

I talked about how we all go off topic. I identified anytime kids

in class brought stuff up that was off topic. It happens all the time

especially with younger kids. The problem with our kids

is that go on way too long. In religion class sometimes my daughter

would start talking about her pets right during the lesson.

Now she is in 6th grade at a small private school where the

staff is more supportive.

I cringe to think of situations like this. They need to learn

social skills but they need kindness, compassion and care too.

Pam

>

> My dd(12 y aspie) had counseling last night but before we got there she handed

me a envelope and said that this was for her counselor from her special ed

teacher. Being me i read it.

> The note starts with some things dd could work on. It then progresses to say

that during writing class the teacher played a song while they were writing and

dd happened to recall the time and place she heard it and felt she had to share

w/sp ed teacher. She called sp ed teacher over and told the story. She reminded

her to stay on task and that she had many other students to help. (Her exact

words). These are the sp ed teachers words. " After class, she approached the

writing teacher and began to tell him the long story. This teacher had other

student coming in and this wasn't a good time to tell her long story. It seems

she frequently stops at the teachers desk after class and wants to talk.This is

a dreaded time for her teachers . i would like to see her learn to receive

social cues in these situations. "

> I took offense to this and the counselor thought it was unusual for the

teachers to dread to talk to her. This is a 12 yold that at the last minute

this year, wanted to go to public school,

> She has no friends and craves to just talk with someone. If they dread to see

my dd come to talk , i am not sure that they are the right educators for my

child. I guess i am a bit ticked that people would actually say that. I must

be a sad bitter person but i am a mother bear. Thanks for letting me vent.

>

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I'm so sorry. I can understand your feelings. I feel like a protective mother

bear because of things like this, too. I wish that the teachers would consider

the fact that they are the adults here and even though our dds certainly can use

assistance in communication/social skills, our dds are the children here and the

adults could take the initiative to try to learn how to handle situations with

any special needs children in the most kind, tactful, effective way. They are

the adults and are in charge of teaching and caring for our children while

they're in the school. If at least one out every 150 children is dealing with

A.S., plus there are other L.D. children, aren't they (the teachers) getting

instruction about their (the teachers) communication skills with the students,

too? Not to mention that communication with adults about children should be

tactful as well. Sorry...I guess I'm venting a bit here, too. We hurt for our

children.

>

> My dd(12 y aspie) had counseling last night but before we got there she handed

me a envelope and said that this was for her counselor from her special ed

teacher. Being me i read it.

> The note starts with some things dd could work on. It then progresses to say

that during writing class the teacher played a song while they were writing and

dd happened to recall the time and place she heard it and felt she had to share

w/sp ed teacher. She called sp ed teacher over and told the story. She reminded

her to stay on task and that she had many other students to help. (Her exact

words). These are the sp ed teachers words. " After class, she approached the

writing teacher and began to tell him the long story. This teacher had other

student coming in and this wasn't a good time to tell her long story. It seems

she frequently stops at the teachers desk after class and wants to talk.This is

a dreaded time for her teachers . i would like to see her learn to receive

social cues in these situations. "

> I took offense to this and the counselor thought it was unusual for the

teachers to dread to talk to her. This is a 12 yold that at the last minute

this year, wanted to go to public school,

> She has no friends and craves to just talk with someone. If they dread to see

my dd come to talk , i am not sure that they are the right educators for my

child. I guess i am a bit ticked that people would actually say that. I must

be a sad bitter person but i am a mother bear. Thanks for letting me vent.

>

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  • 7 months later...
Guest guest

I am so glad that we have each other to come to for support and to vent. Today I

feel the need to vent. I have this erosive rheumatoid arthritis, and ironically

I do medical transcription for a rheumatologist. (hmmm....I did his

transcription and then a year later was diagnosed). I am constantly typing these

medical reports for people like all of us with these diseases. Today, I am

really tired of typing " patient educational material dispensed " . I think an even

better thing to dispense would be family and friends educational material

dispensed, as they really are the ones who need to be educated about what we are

going through some times.

Thanks for always being there everyone and for listening to me vent today!

Donna R, Beautiful Colorado

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You are so right Donna.  When I first got RA, no one knew anything about it,

including me.  In the beginning, when I was in terrible shape and pain, I felt

so darn guilty about saying no to anyone who asked me to go out shopping, beach

etc.  They just did not get it.  I tried to tell them how I was feeling, but

they would say, " Oh, you will feel better when you go out " .  You look so good,

I don't understand how you can feel so bad.  Oh, I got so tired of it all. 

One day, I went to the beach to see my girlfriends son, I could hardly walk in

the sand, the pain was so brutal.  I sat in my beach chair, and I could not get

up and out of that chair.  My feet and ankles could not take it.  I finally

got up, went to my car, crying my eyes out from that damn pain.  I made up my

mind then, I will not do this to myself anymore.  No one understands the RA

pain but us.  If I can't go somewhere because of how I am feeling, I just don't

go.  I will not

make any excuses for not going, nor will I go because I feel guilty.  It was a

hard lesson to learn.

 

No wonder you had to vent today.  I can't imagine to have to type all day with

hands painfull and swollen.  It mus be unbearable at times.  I know when my

feet and ankles are bad, I could just scream at the top of my lungs.  I so

understand your pain and suffering.  I swear even with lots of literature about

RA, people will still not get how much we hurt and suffer each day.  Nor do

they realize how hard we try to live a normal life, while dealing with daily

pain.  I so hope you have a better day tomorrow.

 

Always remember, we all know what you are going through.  Wishing you many pain

free days ahead.

 

Hugs,

 

Barbara

From: koala2u <koala2u@...>

Subject: [ ] vent

Date: Thursday, June 17, 2010, 3:21 PM

 

I am so glad that we have each other to come to for support and to vent. Today I

feel the need to vent. I have this erosive rheumatoid arthritis, and ironically

I do medical transcription for a rheumatologist. (hmmm....I did his

transcription and then a year later was diagnosed). I am constantly typing these

medical reports for people like all of us with these diseases. Today, I am

really tired of typing " patient educational material dispensed " . I think an even

better thing to dispense would be family and friends educational material

dispensed, as they really are the ones who need to be educated about what we are

going through some times.

Thanks for always being there everyone and for listening to me vent today!

Donna R, Beautiful Colorado

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Hi Donna.  Thanks for your kindness to me.  Is your RA nodule giving you any

problems or pain?

I have another one on my left foot in the same place, but no problems with it

yet.  Notice I said " yet " .  ha ha  With RA we just never know what will

happen next.

 

I hope this is a simple surgery and heals good for me.  My niece works at the

surgical center where I am having it done, so she will be with me all the

time.  I am happy about that!!  I get very anxious before any surgery.  The

fear of the unknown.

 

I hope you are doing good and have a nice weekend.  Thanks again for your kind

words to me.  I do appreciate it.

 

Hugs,

 

Barbara

From: koala2u <koala2u@...>

Subject: [ ] Re: vent

Date: Friday, June 18, 2010, 5:39 PM

 

Barbara - Thank you for your kind words as always. You always have a way of

wording things in such a way to make people feel so much better. Well I went to

my regular doctor today for a lump that suddenly appeared on top of my foot, and

low and behold it is a rheumatoid nodule! She said it was a strange place for my

1st nodule to appear, but that is just me!!! I hope you have great relief when

you have your removed next week Barbara!

Thank you for being you!

Donna

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Barbara -

My nodule isn't giving me too much trouble yet. Time will tell!

I'm glad that your niece will be with you for your surgery, and I hope it brings

you much relief.

I will be thinking about you this week and please let us know how you are doing

when you feel up to it!

Donna

>

> Hi Donna.  Thanks for your kindness to me.  Is your RA nodule giving you any

problems or pain?

> I have another one on my left foot in the same place, but no problems with it

yet.  Notice I said " yet " .  ha ha  With RA we just never know what will

happen next.

>  

> I hope this is a simple surgery and heals good for me.  My niece works at the

surgical center where I am having it done, so she will be with me all the

time.  I am happy about that!!  I get very anxious before any surgery.  The

fear of the unknown.

>  

> I hope you are doing good and have a nice weekend.  Thanks again for your

kind words to me.  I do appreciate it.

>  

> Hugs,

>  

> Barbara

>>

> >

>

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Hi Donna.

     I am glad your nodules aren't bothering you.  Mine did not bother me

for a long time.  When it got so big, that is when I had all the pain, etc.  I

hope yours stays small.

    Thanks for thinking about me.  I will be glad when its over and I am on

the road to recovery.

Take care of yourself and talk again soon.

 

Hugs,

 

Barbara

    

From: koala2u <koala2u@...>

Subject: [ ] Re: vent

Date: Tuesday, June 22, 2010, 11:25 AM

 

Barbara -

My nodule isn't giving me too much trouble yet. Time will tell!

I'm glad that your niece will be with you for your surgery, and I hope it brings

you much relief.

I will be thinking about you this week and please let us know how you are doing

when you feel up to it!

Donna

>

> Hi Donna.  Thanks for your kindness to me.  Is your RA nodule giving you

any problems or pain?

> I have another one on my left foot in the same place, but no problems with it

yet.  Notice I said " yet " .  ha ha  With RA we just never know what will

happen next.

>  

> I hope this is a simple surgery and heals good for me.  My niece works at

the surgical center where I am having it done, so she will be with me all the

time.  I am happy about that!!  I get very anxious before any surgery. 

The fear of the unknown.

>  

> I hope you are doing good and have a nice weekend.  Thanks again for your

kind words to me.  I do appreciate it.

>  

> Hugs,

>  

> Barbara

>>

> >

>

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  • 7 months later...

Hello Lea, I am so sorry to hear that your daughter is so emotionally

abusive to both you and her own daughter. She really needs help to

recognize and address her own emotional problems rather than taking them

out on this poor child. I hope somebody can talk her into going for help

because her abuse should not be tolerated.

I have a mom who is 92 and I am 69, I remember one day when I was a

child after much thought over a long time, I told her, " Mom I don't

think you love me. " I thought I was helping her to solved a problem but

it just made her more angry at me, and she railed at me that I was at

fault because I did not love her which I didn't think was right because

what kid doesn't love her own mother. I think I was just a very

perceptive little kid who was just trying to figure out why she was

always mad at me and help her solve the problem she seemed to be having.

But alas to this day my mom still takes out her anger and frustration on

me, still blames me for everything wrong in her life.

The last time I saw her in Sept. she called the cops on me for moving

some of her stuff off the wheelchair ramp so we could get by, and told

them I was abusing her. She could have got me in big trouble lying that

way about me. She lies all the time about me. Only thing I have come up

with in all this time is my mom is emotionally ill and she should figure

out what she is actually so upset about, it may be guilt I don't know,

but I do know one thing for sure, I am not her problem..

If I were you I would drill this into your little granddaughter from day

one, just tell her over and over again that she is not her mother's

problem. I sure would have saved a lot of years of unhappiness if I

would have had somebody who loved me tell me this because I really did

think something was wrong with me for a long time.

Now I know she is sick though. I love her but I do feel better not

seeing her. The other day my son was over there and he called me and I

could hear her voice in the background and for a couple of days I

wondered why I felt bad. Finally I figured it out that just hearing her

voice brought condemnation on me. She is condemning of me..it is better

for me if I don't hear her voice!

Sad but true, I do pray she will come to her senses before it is too

late, maybe on her death bed she will confess it was never me, I hope so

for her sake and mine!

Thank God your granddaughter has you at this time in her life and the

other relatives who love her unconditionally!

Carolyn in OR..things are blooming here and I have allergies!

Lea wrote:

>

> I hope you don't mind but I ned to vent for a minute. I am raising my

> 5 year old aspie granddaughter who is the light of my world. I have

> raised her since birth because her mother didn't want a girl. Trust me

> there was war when she said she didn't want her. I was shocked and

> hurt at her actions pertaining to my grand daughter. Now since my

> granddaughter is older, her mother is so jealous of her. I informed

> her that chances were my granddaughter would have to be put in special

> classes due to her condition and my daughter threw a fit. She says she

> refuses to let her be in special ed and can't believe her daughter is

> a dummy. Ok people, I can handle alot but calling my sweet baby a

> dummy?!?! My granddaughter is special and she is very smart. Everyday

> she amazes me more and more. Then my daughter started compairing my

> granddaughter to my grandson and making comments that at least he was

> smart. Yes he is smart but so is my granddaughter, just in a different

> way. My daughter is treating her like some kind of unwanted animal and

> I am doing my best to hold my tongue but I am about to blow a fuse.I

> tried to talk calmly and reasonably to her and so did her sister. My

> granddaughter to too young to understand bullying and insults but she

> is picking up on the cold shoulder from her mother. No child should be

> looked at as being beneath others especially from family. It is going

> to be hard enough to deal with it from others outside the home. At

> least her mother doesn't live here with us and only come around every

> now and then. Plus my granddaughter has two aunts and an uncle who

> love her like their own and baby cousins who adore her so she is

> surrounded with love. It just hurts so bad to think about the hurt she

> will go through when she is old enough to figure out her own mother

> didn't want her and looks down on her.Thanks for letting me vent. I am

> just still stinging from the remarks.

>

>

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More often than not, it is from the *male* side that autism and ADHD

is passed on.  Statistically, it is most likely not your genes that

are 'defective'.  It would be good if someone (probably not you)

pointed that out to your FIL sometime.

On 30/01/2011 7:47 AM, Di Southard wrote:

 

Vent away, Lea.  When my darling Aspie was

dx'd with ASTHMA, my ex-fil said I'd given him

a 'defective grandchild' and he reiterated

that when we got the dx of adhd.  I am SO glad

that I was divorced from his son and have NO

contact with him before we got the dx of

autism.  I don't want to think about what he

says about me and my genes now.  I can imagine

how you feel hearing your darling little one's

own PARENT say things like that.

 

If you need someone to vent to off list,

feel free to email me.  I'll listen and

commiserate with you.  You are very blessed

that she has extended family around that

shower her with the love she deserves.

 

Many hugs and blessings on you and your

family.

 

Di

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