Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 Sprouted grain bread is glutten free, and also rice bread. Spelt pasta is good, there is a " light " variety of spelt pasta that tastes even better than wheat pasta. rheumatic gluten free Any of you on a gluten free diet? I am trying it. So far I am eating gluten free bread from Whole Foods at $7.00 US per loaf. That is outrageous, IMO. Anyone make their own gluten free bread? I am still eating no-salt saltines and no doubt gluten is an ingredient in other food items. I am trying to eat more fruit to help me feel like I have eaten LOL It is tough. Any suggestions? A woman at Whole Foods has celiac disease and she gave me the name of a brand of pasta that is tastier than other brands according to her. Heven't tried it, yet. Anyway, I'd be grateful for any tips. TIA Pray the ry ---------- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.10.24/100 - Release Date: 9/13/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2005 Report Share Posted September 14, 2005 > Any of you on a gluten free diet? I eat gluten free as part of a paleo diet. Don Wiss has probably the most extensive site(s) on the web. Go to http://www.panix.com/~donwiss/ He is also list manager for PaleoFood. Theola Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Hi ! Geoff here. > A woman at Whole Foods has celiac disease and she > gave me the name of a brand of pasta that is tastier > than other brands according to her. There's a potato pasta, " Pastato " . One of my children is on GF/CF diet and likes this pasta very much. I've tasted it too and I don't detect any major differences, but YMMV; I'm not a pasta aficionado and could not tell fresh from packaged unless someone educated me. Remember, gluten-free is NOT " wheat-free " . There is gluten in a lot of things other than wheat. > Sprouted grain bread is glutten free, and also rice bread. Spelt pasta Spelt's an archaic form of wheat and has gluten, as do many other grains. We also got taken in by spelt trying to avoid gluten. You may want to check out www.gfcfdiet.com for further information on avoiding gluten. It is a very difficult task. Avoiding casein (milk protein) is even harder. From that site's FAQ this tidbit: What else contains gluten? A: Wheat, oats, rye, barley, kamut, spelt, semolina, malt, food starch, grain alcohol, and most packaged foods - even those that do not label as such. There is a lot of information on gluten intolerance because of a related disorder called Celiac Disease. The USG subsidizes wheat, corn, milk and soy, not to mention cotton and other crops. Because of this you find derivatives of these in nearly all packaged foods, and preferred market pricing in these foods fresh in the market. Learning the scientific lingo is 95% of the battle in avoiding any foodstuff. You may want to give serious consideration to food dyes as well. Common culprits are FD & C red blue & yellow. Geoff P.S. Do you know who some of the largest farmers in the world are? Look at the Ag-Pharma connections... it helps keep your costs down if you grow your own raw product. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 > > Why does everyone put their kids on gluten free diets? My son improved when I added back wheat with enzymes, and removed rice and corn. Not *everyone* puts their child on gluten-free, altho it can be very helpful for certain children. >>Also, he was sensitive to a lot > more than wheat and dairy and when I put him on the GFCF diet he > didn't improve at all, probably because I wasn't eliminating all of > the foods he was sensitive to. I used HNI enzymes, then rotated foods to find what he still did not tolerate, even with the enzymes. http://www.houstonni.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 I still don't understand how I'm supposed to know he doesn't tolerate something. He doesn't have reactions to foods that I'm aware of. > > > > Why does everyone put their kids on gluten free diets? > > > My son improved when I added back wheat with enzymes, and removed rice > and corn. Not *everyone* puts their child on gluten-free, altho it > can be very helpful for certain children. > > > >>Also, he was sensitive to a lot > > more than wheat and dairy and when I put him on the GFCF diet he > > didn't improve at all, probably because I wasn't eliminating all of > > the foods he was sensitive to. > > > I used HNI enzymes, then rotated foods to find what he still did not > tolerate, even with the enzymes. > > http://www.houstonni.com/ > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 --- I didn't know that my son was " reacting " to foods until I eliminated them and then re-added them back, usually by accident. I had to do an elimination diet to see this fully. For us the diet has been huge. My son ate potatoes, rice cakes and meat for about four days and he was terrible for three of them, then was soo calm and focussed by day four. Some kids can't handle potatoes or rice and can handle other things. We had to eliminate high phenols and sugar (though he can handle high phenol foods better now with chelation). The book, Unravelling the Mystery of Autism and pervasive Developmental Disorder by Karyn Seroussi, and the group GFCFkids was a great start for us. Stacey In , " dannenedrummond " <dannenedrummond@h...> wrote: > > I still don't understand how I'm supposed to know he doesn't > tolerate something. He doesn't have reactions to foods that I'm > aware of. > > > > > > > > Why does everyone put their kids on gluten free diets? > > > > > > My son improved when I added back wheat with enzymes, and removed > rice > > and corn. Not *everyone* puts their child on gluten-free, altho it > > can be very helpful for certain children. > > > > > > >>Also, he was sensitive to a lot > > > more than wheat and dairy and when I put him on the GFCF diet he > > > didn't improve at all, probably because I wasn't eliminating all > of > > > the foods he was sensitive to. > > > > > > I used HNI enzymes, then rotated foods to find what he still did > not > > tolerate, even with the enzymes. > > > > http://www.houstonni.com/ > > > > Dana > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 what kind of reaction did you see? we have been on the diet 100 percent for 3 weeks and he has regressed and is extremely cranky all the time!! > > > > > > > > Why does everyone put their kids on gluten free diets? > > > > > > > > > My son improved when I added back wheat with enzymes, and removed > > rice > > > and corn. Not *everyone* puts their child on gluten-free, altho > it > > > can be very helpful for certain children. > > > > > > > > > >>Also, he was sensitive to a lot > > > > more than wheat and dairy and when I put him on the GFCF diet > he > > > > didn't improve at all, probably because I wasn't eliminating > all > > of > > > > the foods he was sensitive to. > > > > > > > > > I used HNI enzymes, then rotated foods to find what he still did > > not > > > tolerate, even with the enzymes. > > > > > > http://www.houstonni.com/ > > > > > > Dana > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 --When my son had sugar or high phenol foods he would get hyper, less sleep, stimmy, he'd spin with the ceiling fan. Xylitol and honey also did this. I would see a reaction as early as 20 minutes after, and the behaviours were usually gone by the next day. When my son had corn, gluten, casien or soy he would be cranky, aggressive at times, and it would continue to get worse. There would be a noticeable change within 3 days of getting this food and could take up to 3 days for it to go away. I did a test for food intolerances and it showed that my son was intolerant to many more things. Whenever my child gets something he shouldn't he has these types of reactions. It can also occur with supplements. I pulled my hair out in the first 3 months with the diet. I don't know that I would not have continued if the diet was not validated quickly. Have you tried to give him gluten or casein to see what happens? Stacey In , " dannenedrummond " <dannenedrummond@h...> wrote: > > what kind of reaction did you see? we have been on the diet 100 > percent for 3 weeks and he has regressed and is extremely cranky all > the time!! > > > > > > > > > > > > Why does everyone put their kids on gluten free diets? > > > > > > > > > > > > My son improved when I added back wheat with enzymes, and > removed > > > rice > > > > and corn. Not *everyone* puts their child on gluten-free, > altho > > it > > > > can be very helpful for certain children. > > > > > > > > > > > > >>Also, he was sensitive to a lot > > > > > more than wheat and dairy and when I put him on the GFCF > diet > > he > > > > > didn't improve at all, probably because I wasn't eliminating > > all > > > of > > > > > the foods he was sensitive to. > > > > > > > > > > > > I used HNI enzymes, then rotated foods to find what he still > did > > > not > > > > tolerate, even with the enzymes. > > > > > > > > http://www.houstonni.com/ > > > > > > > > Dana > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 > > I still don't understand how I'm supposed to know he doesn't > tolerate something. He doesn't have reactions to foods that I'm > aware of. Rotate foods and keep a journal, write down what he eats, supplements, bms, and behaviors. Many parents use HNI enzymes instead of food removals, so you can consider that. Then rotate foods, you will probably find that you would need to remove fewer foods, some kids don't need any food removals with enzymes http://www.houstonni.com/ http://www.enzymestuff.com/ Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Does anyone have a good recipie for a pie crust that is gluten free or a good cookbook. I tried the pie crust from whole foods that is frozen, my son didnt like it? I also am looking for a good pizza crust recipie, I seem to think he does better when he avoids these foods, but with his apraxia he can say a few words and the ones that are at the top of his list, that come out as clear as day, which is so cute I cannot stand it, are Apple Pie and Pizza. It is so hard because he can say these things and when he does I so want to give in and give it to him, so I did the last couple days, plus he had a bagel or two thrown in there from Grandpa, and he had speech therapy yesterday, and I dont know if he was having an off day or what but he just didnt want to talk, it made me think I really have to try again to do this diet. I don't know if he can go full force with it, is seems like so much wasted food and so much money if he doesnt eat it, but I sure noticed a difference yesterday, like I said maybe he was having an off day, but he hasnt seemed as vocal this past week. He also has seemed to have a lot of gas and his schedule is all off for when he usually goes to the bathroom. Any ideas would be greatly appreciated. Jen **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 , if you are not going to be 100% gluten-free, you are undermining your efforts! However -- there are digestive enzymes out there specifically developed to counteract the negative effects of gluten and casein to kids who are responders. (It can take as long as six months to clear gluten from the body.) We use Trienza by Houston Nutraceuticals: _www.houstonni.com_ (http://www.houstonni.com) but there are other effective ones out there, I think Kirkman Labs sells their own brand. Some people have been able to eat a regular, non-GFCF diet by simply adding the enzymes to every meal, while others (like our family) just supplement a GFCF diet with the enzymes, they " mop up " any infractions. -BJ **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Jen, here's a recent post I sent to Pam about the gluten implications and I'll try to locate the post about the recipes and send you that too. Good luck! ******** You will see the words Celiac, and autistic come up a lot in much of this literature. Please note that most apraxic kids do NOT necessarily have digestive symptoms, or the Celiac gene although they may indeed be gluten intolerant. This is the part that puzzles regualr doctors who do not keep up with the latest neuroscience research and just wait around for clinical guidelines which may take decades to change and are governed not necessarily by the research and people's need for better treatment protocols, but by various profit angles and this is the sad reality. It's is money and profit that makes the world go round and medicine is more than ever a business rather than a healing art like it used to be. That is why chronic, and degenerative illnesses that require more individualized approaches are not handled very well by modern Western type medicine which relies pretty much exclusively on pharmaceutical drugs and surgeries, which can do wonders make no mistake, but do not address the core issues and are more like emergency interventions and band aids. Healing requires a lot of effort and collaboration from both patients and doctors and takes more than one or a fist full of pills. Also it can be misleading to just go by that as there are multiple genes implicated in gluten intolerance and it can also be acquired, as in my case, which is still a genetically triggered intolerance when in contact with viral, bacterial, parasitic infections, or even antibiotics without a healthy follow up of probiotics, which call can create permeable intestines and thus enable the gluten to enter the blood stream and erode immune, neurological functioning establishing a heightened immune response from that moment on. The important take home message is that gluten/casein intolerances DO NOT GO AWAY!!  Secondary intolerances developed due to the leaky gut can go away, but the gluten one especially is core and the gluten peptides have an affinity for the brain. So don't be misled by the Celiac label, or autistic labels, the fact remains gluten intolerance is much more common than modern clinical medicine thinks and is implicated in most neurological disorders of unknown etiology like autism, Parkinson, Alzheinmers' etc The research is all there, but clinical practice isn't big on diet and nutrition and still works with archaic lists and data as there is no real financial incentive for them to change, no vegetable salesman is going to knock on the doctors' door promising a free yearly supply of vegetables to everyone there in the office, and trips to Hawaii to learn more about the role of vegetables and to then push them on their patients. So you get the picture, the profit just isn't there so large scale clinical trials are difficult and confounding variables difficult to control for etc. Just not easy to do and NOT a money making proposition.  Wheat on the other hand is a booming business as it is included in just about everything processed on the market and even in much of the restaurant foods too as it has a way of appearing in the most inconspicuous places. Read the Celiac.com link on how to avoid the gluten when eating out.  So gluten intolerance is much more common than the food industry ever suspected--as almost everything processed--unless gluten free--contains a form of gluten either as anitcaking agent, or as thickener, flavor enhancer etc. Gosh, they even put it in some Salsas for some unearthly reason so always read your labels! I think the next decade will reveal a whole array of neurological/immune system disorders, as well as other organs often implicated as l the liver, the adrenals, the thyroid, and all these chronic degenerative disorders very often have gluten intolerance linked to them--if not as the initial cause, certainly as a complicating factor. Anyway, here are some links --some about the problem, some about the solution and click around. http://66.51.173.96/brain/allergy_brain.htm http://www.gfcfdiet.com/TheBigFAQ's.htm http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm http://www.enabling.org/ia/celiac/basic.html#gfdiet http://gfcfdiet.com/Beginningthediet.htm http://www.livingwithout.com/recipes.html?gclid=CIjPh-ucipYCFQykagodiX_GEw http://ezinearticles.com/?Gluten-Free-Diet-Should-Be-Considered-For-Everyone-Wit\ h-Neurological-And-Psychiatric-Symptoms & id=450571 & opt=print http://healthnowmedical.com/info/gluten_science.html this is actually the medical practice I go to and they're getting ready to publish a book on the topic http://www.kellydorfman.com/pages/459019/index.htm http://www.kinnikinnick.com/index.cfm http://www.celiac.com/articles/711/1/MemoryLearning-Eating-to-Learn-How-Grains-I\ mpact-on-Our-Ability-to-Focus-Comprehend-Remember-Predict-and-Survive-by-Ron-Hog\ gan/Page1.html http://www.pecanbread.com/new/recipes1.html http://gfcf-diet.talkaboutcuringautism.org/just-because-it-is-gfcf.htm http://ezinearticles.com/?Understanding-the-Genetics-of-Gluten-Sensitivity & id=20\ 8573 http://bodyecology.com/08/04/12/why_celiacs_gluten_sensitivity_need_probiotic_li\ quids.php http://www.jgourmet.ca/ http://www.elanaspantry.com/recipes/ http://glutenfreegoddess.blogspot.com/2007/01/cooking-baking-gluten-free-tips-fo\ r.html http://www.kidswithfoodallergies.org/featured_recipes.html http://thefooddoc.blogspot.com/2007/02/gluten-causes-brain-dysfunction-and.html http://www.tccsg.com/celiacdisease.htm The Gluten Connection: How Gluten Sensitivity May be Sabotaging Your Health - and What you Can Do to Take Control NOW by Shari Lieberman, Ph.D., CNS, FACN.. http://www.globalgourmet.com/food/egg/egg0496/gluten.html http://www.gluten-free.com/ Keep in mind that for those with severely damaged intestines or persistent yeast etc. GFCF may not be enough and SCD diet (Specific Carbohydrate Diet) may be recommended. Oftentimes parents make the mistake of taking their kid off gluten and replacing all wheat products with corn, soy and rice and all of these are refined carbs that can still impair the immune system, Refined carbs should be reduced, soy most often avoided as most people intolerant to wheat cannot tolerate the soy peptides either and corn spikes the insulin level in the blood promoting inflammation just like rice, and potato--they're all starches and feed bad bacteria in us. So if at all possible limit the refined carbs, even those gluten free and increase, vegetables, leafy greens, healthy grass fed / free range organic meats and consider the dairy factor too. Not all gluten intolerant individuals are also casein intolerant but until the gut heals you want to avoid dairy too and try introducing it alter carefully, the raw preferred. Anyway, here's a chart that compares the major diets that have worked well for people with autoimmune, neurological, metabolic and digestive disorders. http://www.autismndi.com/docs/foodtable.pdf http://www.feingold.org/pg-overview.html http://curezone.com/diseases/epilepsy/ http://www.childrensdisabilities.info/allergies/dietdevelopmentaldisorders.html http://www.thebeewellcompany.com/NewFiles/Diet%20and%20Nutrition.pdf Hope you find these useful. My recommendation is that you try the diet and supplements based on tests that check for your child's specific metabolic issues since it really is important to prioritize the interventions and only a doctor who treats biomedically can interpret results, reactions and ensure that the path to healing is cleared. For us it has been a wonderful journey of discovery. We started with the diet first and made mistakes along the way of course but overall we saw improvements in attention, behavior and focus. We added some supplements and saw huge improvements especially with the B12 shots --often a major deficiency in gluten intolerant individuals, the PRO EFA/EPA + vitamin E have also made a HUGE surge and we're also working on detoxification as she seems to not detoxify mercury and other heavy metals as a normal child would. Again, related to malabsorptions most likely yeast, fatty acids etc.--so we're addressing that now as well and will start on the yeast soon which means going more toward the SCD diet at least for a while. there are so many options that clearly stand to benefit our children with metabolic disorders and possibly milder form of mitochondrial dysfunction as Dr. explained. Read her Apraxia 101 doc and presentation notes, those will also give you a good background in case you haven't already, they should be archived on the site. All the best, Elena -mom to Ziana age 4 --apraxic, but otherwise a happy healthy child and improving her speech every day now that appropriate PROMPT therapy, diet/ and supplements have all been implemented. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Actually Jen, the recipe links were included in the previous message, second half or so and there are a LOT of good recipes there. look around. I will also attach another past message which covers more diet ideas not necessarily recipes, but an approach to a healthier gluten free or not diet. ********  Fruits and veggies are good, make sure the protein is there and good quality organic--- or at least no hormone, antibiotics, nitrates --meats, eggs if tolerated and also nut butters if tolerated. Since Etahn eats so well--let me tell you I know kids who think a French fry is a veggie sand should get a cookie for it too--- so you're way ahead of the game if you've got the veggies and fruits down. You just have to nail down any possible food intolerances and avoid these for a while because if your child needs the gluten free casein free or both and + diet, chances are a lot of other things trigger an immune response by that point. It's less charted territory, but well worth exploring if you suspect autoimmune issues and again my guess is the same as Dr. 's that many if not most apraxic kids have some of these issues with metabolic /malabsorption problems. How else can the fatty acid deficiency be explained when in other kids with worst diets more likely, it doesn't seem to happen? The genetic predispositions are the explanation, but the mechanisms are very complex and are environmental--food, air water, all that surrounds us and we come in contact with or ingest. We really are what we eat and it's only the past 5 decades or so that processed foods have taken over our lives so much. until then people either starved or ate healthier real food and it is well known that the grandmother's diet affects --activates certain genes in her grandchild and by diet we should keep the whole absorption good bacteria/bad bacteria viruses, immune susceptibility --the whole complex should be kept in mind because these can also be passed down from generation to generation in the form of activated genes or even embedded DNA which may in turn trigger those disease bearing genes--we recently had a post about the herpes virus which over 80% of Americans test positive to and how they have now discovered it is very perverse and embeds its own DNA into our DNA and gets passed on from parent to child --and we also know the herpes virus has been linked to both autism and Alzheimer's as if not main cause, definitely a complicating factor as it does not allow brain cells to bounce back when oxidative stress takes over so the damage can become permanent due to the presence of the dormant herpes virus in our bodies--particularly the brain. That was a digression, but I wanted to show just how critical diet is, because it is the one thing that keeps the immune system strong and without that more generations can be affected we're now discovering. Maybe the neurological epdemics we're seeing today are sort of a common progression of the increasingly artificial and processed diet we've been exposed to in the Western world for the past 50 years or so. I know Donna Gates of the Body Ecology Diet firmly believes this to be the case and so do many others. One pediatrician who wrote a book about how to take charge of your child's health has a funny way of explaining this, but he says if it's supposed to last on the shelf for weeks, months and doesn't go bad, if bacteria won't eat it, then you probably shouldn't either because it's most likely loaded with stuff that shouldn't be ingested if it is so powerful that it prevents spoilage. it does make one think doesn't it--if bacteria lowest life form that goes after all organic matter and it doesn't want that neatly wrapped Twinkie, should you give it to your kid? And what about if it also glows in the dark?!!  These are just another contributing factor along with the toxins poured in the environment and into our bodies through various ways. --that whole toxic body burden in which diet plays a vital role. For us it wasn't that hard to transition to the diet as I was cooking everything my self always, never processed foods, or frozen dinners, Mcs and the like. We ate out socially primarily and usually good quality ethnic foods, Indian, Persian, Thai, Vietnamese or grilled stuff with veggies and these are still good choices for us on the diet--it just takes a lot of talking to the cook to be sure no sauces are added etc.--- just tell them to skip the bread, chil the butter, most restaurants that don't have everything pre-marinated in huge quantities work with the customer and can accommodate such requests. Chain restaurants less likely as they just have hired help in the kitchen and everything is pre-made with a LOT of cheap and quick short cuts --whey protein, gluten starches to thicken sauces and corn syrup and things like that. . Anyway, I was considered very high risk pregnancy due to very advanced maternal age, but I followed the Bradley method and had a perfectly uneventful and wonderful pregnancy and birth 8. 5 lbs ----exactly on my due date and none of that gestational diabetes and high blood pressure that happens mostly due to inadequate diet--especially protein intake. I credit the high protein (100 g a day) good quality food veggies, fruit and no refined carbs, just sprouted grain bread. The Bradley diet is vital for all moms, but especially for those who are more likely to malabsorb which is what happens with aging in all of us and this is why chronic degenerative diseases catch up with us sooner or later. So this was the diet history before birth, and after birth it continued through the lactation period and a few years while we were trying for our second child. That unfortunately didn't happen, but I just got used to a very healthy--cook from scratch kind of diet with a greater emphasis on organic, grass fed--leafy greens and nothing processed The short cuts from a box really get you--so boil your own potatoes rather than the mix, or get regular rice, not Uncle Ben's seasoned just put in the microwave kind.that precooked, pre processed and seasoned is what can shorten your life. I know, convenience is important but really rice and potatoes boil fast, people have just forgotten how to do it and some feel so incompetent even for simple things like that. I have a neighbor who needs a recipe to boil water and is overwhelmed if she has to throw anything in there to cook without specific step by step instructions. obviously for someone like her this diet or anything that would involve a little creativity would be very hard and she would just look to replace all the carbs with gluten free ones which is not at all recommended, i mean not in high quantities. So you're basically looking at meats, fish, veggies and fruit, nuts, least processed as whole as possible and organic when ever possible, grass fed, non GMO , no antibiotics, hormones and the like. A year ago when we discovered that Ziana and my husband had to go gluten free casein free + others since my husband also did the elimination diet to figure out what he was intolerant to. it just really became a matter of looking at the forbidden foods and avoiding them but not that much change as we were eating pretty healthy even before that. I have since discovered that gluten needs to be eliminated from my diet as well, but I'm Ok with some dairy, like organic yogurt, kefir, raw butter and cheese. My husband still pays the price if he has these but my daughter is off dairy completly and it's amazing how she understands and follows the diet--repeating " no me cheese, mama cheese> No me cheese phew! " and makes a funny face. We never told her to do that or that it wasn't good, we just told her it wasn't good for her that she would get sick or get rashes and somehow she's very compliant. We'll see how long we can keep it up but for now it's great. So the Sunday pancakes became gluten free, the bread gluten free, no more dairy ( I loved the raw milk, cheeses and butter + yogurt, but we had to stop that for my daughter--my husband and I eventually went back to it, but I think he is effected by dairy and should not be consuming dairy products.) Anyway a typical breakfast is similar to what Janice said and it varies because my daughter now has it tough with no eggs, no coconut, no almonds, walnuts, pecan, bananas, avocado, pineapple, oranges, grapefruit, peas, bell peppers and the list could go on. So she'll have a hot dog or other meat and kale and we'll have sunny side up or soft boiled eggs and kale or mustard greens, Swiss chard etc. or what ever veggies are left over from dinner. Her multiple allergies to all sorts of foods are because the leaky gut allowed pretty much everything she was eating at the time to enter her blood stream and create immune issues.  Most of these secondary allergies will go away, but for the time being we avoid them and will see later what the test results show and her skin or other symptoms that seem to get aggravated by food issues. So she eats mashed veggies in which I put a lot of the supplements as they do not dissolve well in water (algae type for mercury detox as well as the Pectasol for led detox) and also a bowl of rice cereal, buckwheat, etc. with rice milk and fruit--usually berries of some sort, figs etc --we're in CA so it's easier. Sundays we still do gluten free pancakes with maple syrup but not too much and more berries or other fruit, peaches etc. and we try to have a piece of organic bacon, or organic no nitrates etc sausage, maybe even hash browns. We splurge when we have more time before we run out the door the way we do on week days. We stay (no soy dairy etc so Applegate Farms makes a pure chicken frank which Ziana likes and that's a quick finger food for her) avocado is a very good source of good fats and protein, but my daughter can't have that now for a while. So you have to work with the specific sensitivities each child has and avoid the things he shows a reaction to but keep testing every year and try adding some of the less common allergens back as this can change--we're thinking avocados are OK now, maybe even the bananas, but NOT the egg yolk even though the tests said only the white was still not allowed. Can't really go just by tests as they are only a vague data point and your best guess is to observe skin, reactions, pains, loss of appetite, stool, ask about any weaknesses, pains if the child is old enough, head aches etc, can happen when allergens are reintroduced and shouldn't be. The veggies are Zuchini, squash, spinich, sweet potato. green beans, bockchoi, etc. I always try to mash up some for the supplements or buy the Earth's Best baby food and that's great for meals away from home as it gives her the veggie and I can just order grilled chicken, and she can take the supplements. Lunch is a sandwich with Turkey bacon, organic of course and gluten free bread, or more chicken farms, some grilled chicken etc,.. and green beans veggies of some sort when I have them and we're not in too big a hurry running out the door in the morning. Snacks are nuts and fruit, rice cakes and rice crackers at school, but when I'm with her I try to avoid the starches if I can and she loves fruit anyway. Most pretzels, chips etc also have soy, flour, corn and other things she's not allowed so rice cakes and plain rice crackers are about as processed as it gets for her and the nuts should be raw and organic if possible for best Omega 3 content and nutritional value. Once roasted, all that good flavor brings the bad stuff with it, can have glutens, MSG, flavor enhancers etc--think bulk produce, not fancy Planters can with smoked honey mustard flavor because that is most likely not a good choice for this diet or for anybody, but that's besides the point. You just have to go back to basics to eat healthy and unlearn all the " new and improved " extra flavor " " extra crunchy " etc. If I'm home I try to have some soup for her, vegetable or chicken--the Nourishing traditions style with slow cooking and apple cider vinegar to get the calcium out of the bones and into our bodies), or goat or beef bone soup with veggies and lentil pasta, or rice, or just cream it all and this ensures faster and easier meal as she doesn't investigate what is in each bite, it's just creamed veggies with meat and rice etc. so I now do this for most of my soups and they're tasty and it ups her veggie intake, I can sneak in things she doesn't like and it's a faster eat than if she had the veggies in each bite to look at and possibly complain about. Dinner is more of the same but I try to rotate veggies and meats so if she has chicken franks for lunch I'll have a lamb dish or beef/ fish for dinner, with a leafy green veggie sand some carrots, squash, string beans, Bruxelles sprouts, cabbage, spinach broccoli, cauliflower etc. Just all the veggies in season and again in CA we're very Lucky. Some she likes better than others, Sometimes I make lentil soup, or a ground turkey dish with beans for something more Mexican, but I take out the meat before adding the peppers and tomato sauce for her so that';s another option to meet various dietary needs in the same household, or Dahl with rice and veggies for an Indian flavor, I try a lot of recipes and she seems to be OK with most of them. Organic beef tongue with olives over mashed potatoes, broiled wild salmon, and even hamburger and fries sometimes, but I buy the grass fed beef, gluten free buns and fries are made in grass fed lard or /and grape see oil. used to use organic unfiltered cold pressed coconut but both she and my husband are intolerant to coconuts unfortunately. Very often we just have boiled veggies and some grilled or stewed meat. Soup at least once or twice a week and salad (with everything in it, nuts, seeds, beans lots of fresh veggies ) a few times as well with my own extra virgin oil/ apple cider vinegar dressing with herbs garlic etc. Lentil or rice pasta is also an option with various sauces, and herbs and veggies on the side, sometimes stuffed zucchini with meat, even rice lasagna but less or no tomato sauce now that she can't have any of that I also do an egg plant version or even a potato or squash version, sort of a dairy free musaka with ground beef, onions, herbs, spices and with veggies on the side that's very popular. So you see, we have a very balanced diet, not that much different than before except we've reduced carbs/grains/sweets and they're gluten/soy/corn/dairy/egg free. I bake a desert once every few months with gluten free flours and lower sugar, but with birth day parties coming up I may need to do that more often. All of the things mentioned freeze well so whenever I cook I make big pots and put them in glass jars --avoid plastic--and glass containers etc. and this way I have more variety through out the week and even from one week to another and more as once frozen everything lasts for a long time in there.Only starches don't freeze well but we've reduced those and in general they shouldn't be refrigerate either as they tend to collect a lot of bacteria--bad yeast very fast, even overnight in the fridge can do it. Dr. says she never gives her son left overs now that she has identified his severe yeast sensitivity. All this take planning, staying up late and not getting to do the dishes even from one day to the next, or more since I'm at speech therapy preschool OT for most of the day but it's a life style that works for us and once you have a routine the cooking from scratch is not that hard. I have an article that offers some tips from the Mercola site about how to cook organic from scratch and keep your day job. I guess thats' me, my day job is all the therapies LOL Anyway, I hope this gives you an idea and the links I posted recently with recipe sits etc. are pretty good to actually get more suggestions. Think ethnic foods, NOT ITALIAN, and don't be afraid to improvise, taste and if it requires cream, how about just mashed veggies, sweet potato or zucchini and add more herbs etc. I add these in my deserts too, gives them more body and flavor. Also red/yellow lentil pure instead of mashed potatoes and with gravy from the meat it is very yummy, no one misses the higher carbs mashed potato. Cooking as a lot of fun once you let go of the exact recipes and learn a few basic tricks to build on and introduce a variety of cooked ethnic type foods early on so you don't get too much resistance if you wait until they're older and by then their friends and the typical American diet have taken over. Good luck! _Elena . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Our physician did not indicate that. He said all people have yeast in their bodies and it is impossible and dangerous to try to eliminate it all. Some children with these issues will starve before they will eat, I am told, and I am not going to do that to my child. He eats a variety of foods, and he does eat some gluten free, which is better than nothing. He does not eat bread. Apple pie and pizza are his favorite foods, which I try to limit. He loves apples and strawberries and baked beans, etc, so he doesnt eat junk. I still have yet to find a good crust he will eat, We are trying that is all I can say, my child is also on the autism spectrum with maybe some sensory issues in the mouth, so certain textures may bother him. We are doing the best we can. Jen **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2010 Report Share Posted June 17, 2010 Anyone having any success with this? I just started this diet a week ago and I would love to hear back from anyone who has done it. Thanks, Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hey Janet - I was (partially still am) on a diet similar to gluten-free; however it was an elimination diet to rid me of foods that could cause leaky gut and cause RA problems. It works well for me when I stick to it; however, I tend to feel well and then slack off from it and pay the price!!! If you are interested send me an e-mail and I can give you the information on the diet I got from my Holistic M.D. Good luck to you! Donna > > Anyone having any success with this? I just started this diet a week ago and I would love to hear back from anyone who has done it. > > Thanks, > Janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Our family went gluten free 2 years ago and have been doing much better but now that I believe we have healed our guts I would like to try to introduce some fermented breads. The farm where we get our raw milk makes fermented organic breads. http://littlerooster.net/nutrition.html They are $3.89 / loaf and are based on Nourishing Traditions baking / fermenting. The farm owner started the local WAP chapter. So it is not true that you cannot find a good bread at any price. You need to hunt around - start looking at your local Weston Price group as they are a great resource for healthy foods. [ ] Gluten free Am really interested in this. I went gluten free 2 months ago because a blood test indicated I was gluten intolerant. I havent felt that good on it though. Have a lot of indigestion and generally feeling under par. Is there anything I can read on the subject? Toni > > > > > > Also, a gluten-free diet. Gluten causes bone (including jawbone) problems: > > osteomalacia, osteopenia and osteoarthritis. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hi Toni, It can take up to two years to heal from from gluten intolerance. Also, there are a lot of hidden sources of gluten out there, like soy sauce and " flavored " coffee and tea. Non-dairy coffee creamer. Some salad dressings. Stamps and envelopes. Kefir is supposed to be excellent at healing the gut. I make my own with raw Jersey cow milk. In the summertime, I blend it up with some ice cubes, frozen banana and a dash of stevia. Dana On Wed, Jun 30, 2010 at 8:03 AM, ilt404 <ilt404@...> wrote: > > > > Am really interested in this. I went gluten free 2 months ago because a > blood test indicated I was gluten intolerant. I havent felt that good on it > though. Have a lot of indigestion and generally feeling under par. Is there > anything I can read on the subject? > Toni > > > > > > > > > > > Also, a gluten-free diet. Gluten causes bone (including jawbone) > problems: > > > osteomalacia, osteopenia and osteoarthritis. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2010 Report Share Posted July 3, 2010 Here is a blog site for some simple, gluten-free recipes, not sure it will have product advice, but I'm sharing for what it's worth: http://glutenfreemommy.com/ and another http://www.kingarthurflour.com/blog/2010/06/01/what-do-readers-say-about-our-glu\ ten-free-pizza-crust-%E2%80%9Camazing%E2%80%9D/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 Hi please see this article on celiac disease and gluten free information on these sites. http://www.alanattridge.com/uploads/Nutritional_Foods_for_Those_Feeling_Deprived\ ..pdf Best regards Here is a blog site for some simple, gluten-free recipes, not sure it will have product advice, but I'm sharing for what it's worth: http://glutenfreemommy.com/ and another http://www.kingarthurflour.com/blog/2010/06/01/what-do-readers-say-about-our-glu\ ten-free-pizza-crust-%E2%80%9Camazing%E2%80%9D/ Quote Link to comment Share on other sites More sharing options...
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