Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 ???? IMO PCOS is very easy to treat. Get enough T3 thyroid meds, progesterone cream, and I think you will need cortef for adrenals. Gracia > There are several people who can do Atkins for life. I personally > don't like it, but it looks like I am gonna have to do it forever > anyway because of PCOS, so there is no choice for me. > > > Jan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 No wonder you are obsessed with dieting. Your cells must be starving on low fat and no T3. Gracia Dr. Atkins diet system is wrong best way to diet is 40% carbs, 40% protein 20% fats Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 http://www.westonaprice.org for alternative view! I am an animal lover and have raised my own meat (pigs, chickens, turkeys). You might be interested in Broda ' discussion of diet for hypos in Hypothyroidism: the Unsuspected Illness. Gracia > I would avoid the Atkins diet like the plague! I'm a vegetarian and I can > still get a high amount of protein......it fills me up but keeps my > cholesterol level down naturally. Meat inherently has cholesterol. Dairy products are > just awful too, but cheese is my only vice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 It is not that simple - it involves metformin, progesterone, eating probably no carb for the rest of my life (so I gotta kiss goodbye to the only hobby I have: weight training), and probably birth control pills too. Oh yeah, and giving up on having children - I am 29 and don't have any, that is not the easiest thing to do. All these diagnosis are all nice and sweet on women who have children already, they are not taken the same way by someone in my situation. The birth control will in turn mess up with my thyroid hormones again, and I am already on the equivalent of 400mcg and needing more. I might break some sort of record for " person taking the most thyroid hormone " if I keep this up. I am on 62.5mcg Cytomel daily, but that has nothing to do with the PCOS. I doubt I need extra adrenal hormones, as these can stimulate androgens - no more 7-keto for me, and certainly no Cortef. The last thing I need is to be hungrier, fatter, and hairier. My blood tests show more testosterone than most men, the last thing I want is more of it. If I get fatter, I will have more insulin resistance, and even more testosterone. Unless I decide to go for that sex change, that is not a good idea. Jan > > ???? > IMO PCOS is very easy to treat. Get enough T3 thyroid meds, progesterone > cream, and I think you will need cortef for adrenals. > Gracia > > > There are several people who can do Atkins for life. I personally > > don't like it, but it looks like I am gonna have to do it forever > > anyway because of PCOS, so there is no choice for me. > > > > > > Jan > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 well that is the conventional medicine approach and I really don't agree. T3 has everything to do with PCOS, also adrenals. Gracia > It is not that simple - it involves metformin, progesterone, eating > probably no carb for the rest of my life (so I gotta kiss goodbye to > the only hobby I have: weight training), and probably birth control > pills too. Oh yeah, and giving up on having children - I am 29 and > don't have any, that is not the easiest thing to do. All these > diagnosis are all nice and sweet on women who have children already, > they are not taken the same way by someone in my situation. > > The birth control will in turn mess up with my thyroid hormones > again, and I am already on the equivalent of 400mcg and needing more. > I might break some sort of record for " person taking the most thyroid > hormone " if I keep this up. > > I am on 62.5mcg Cytomel daily, but that has nothing to do with the > PCOS. I doubt I need extra adrenal hormones, as these can stimulate > androgens - no more 7-keto for me, and certainly no Cortef. The last > thing I need is to be hungrier, fatter, and hairier. My blood tests > show more testosterone than most men, the last thing I want is more > of it. If I get fatter, I will have more insulin resistance, and even > more testosterone. Unless I decide to go for that sex change, that is > not a good idea. > > > Jan > > > > > > > ???? > > IMO PCOS is very easy to treat. Get enough T3 thyroid meds, > progesterone > > cream, and I think you will need cortef for adrenals. > > Gracia > > > > > There are several people who can do Atkins for life. I personally > > > don't like it, but it looks like I am gonna have to do it forever > > > anyway because of PCOS, so there is no choice for me. > > > > > > > > > Jan > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 My adrenal tests came back normal and I am at 62.5mcg already, which is more T3 than pretty much anyone else - even Armour, isn't it supposed to be 3:1 T4 to T3? I am on 150mcg:62.5mcg, or 2.4:1. So that is more T3 than anything else other than the 's Syndrome protocol of T3 only, no T4. So it can't be a lack of T3. I was on 25mcg at my last test and I was at the last number of the reference range for Free T3, so I must be way above the reference now. I've been on T3 for the most of the past 4 years, with the exception of the first 3 months in my treatment, and 45 days this year when I was without a prescription for it, so my levels can't have been low enough to cause PCOS. My ACTH stimulation and serum cortisol were normal, and so was the DHEAS (although that was while taking it - so yeah, that is one adrenal hormone I need). My cortisol was even in the high end of normal, so no need for more. Sorry for having been snippy, I am very disappointed with this diagnosis. Jan > > > > > > ???? > > > IMO PCOS is very easy to treat. Get enough T3 thyroid meds, > > progesterone > > > cream, and I think you will need cortef for adrenals. > > > Gracia > > > > > > > There are several people who can do Atkins for life. I personally > > > > don't like it, but it looks like I am gonna have to do it forever > > > > anyway because of PCOS, so there is no choice for me. > > > > > > > > > > > > Jan > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 I did a bit more searching on the cortisol thing, and while Cortef is not recommended, I found some articles that recommend taking Prednisone, but at bedtime (probably to avoid the hunger thing). So I am gonna restart on the Deltacortril today. I started on the metformin. Strictly speaking, it seems that I have a variant of PCOS called HAIR- AN syndrome. It means I have hyperandrogenia (too much test), insulin resistance, and acanthosis nigricans (dark patches of skin). It is not classic PCOS cause I do get my period. It seems like every disease I have doesn't present in the classic way - just like the hypoT I had " normal " TSH and doctors didn't do a thing, I have had this since my teens, although it worsened around 4 years ago when I was morbidly obese (weight really makes this worse) but since I was having my period, doctors again didn't do a thing. I am also gonna keep up the 7-Keto - my DHEAS didn't show top of the range as it had last time, but mid-range, so it is needed. And I am gonna restart chromium piccolinate (I'd stopped it), and start CLA and CoQ10, since they are both supposed to help as well. Jan > My adrenal tests came back normal and I am at 62.5mcg already, which > is more T3 than pretty much anyone else - even Armour, isn't it > supposed to be 3:1 T4 to T3? I am on 150mcg:62.5mcg, or 2.4:1. So > that is more T3 than anything else other than the 's Syndrome > protocol of T3 only, no T4. So it can't be a lack of T3. > > I was on 25mcg at my last test and I was at the last number of the > reference range for Free T3, so I must be way above the reference > now. I've been on T3 for the most of the past 4 years, with the > exception of the first 3 months in my treatment, and 45 days this > year when I was without a prescription for it, so my levels can't > have been low enough to cause PCOS. > > My ACTH stimulation and serum cortisol were normal, and so was the > DHEAS (although that was while taking it - so yeah, that is one > adrenal hormone I need). My cortisol was even in the high end of > normal, so no need for more. > > Sorry for having been snippy, I am very disappointed with this > diagnosis. > > > Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 Prednisone IS cortisol, 5mg=20mg of cortef. Cortef wouldn't be recomended because IT CANNOT BE PATENTED!! No money to be made. Deltacortril is probably good. Cortisol, progesterone, DHEA, and Armour would completely fix you. High testosterone means that your adrenals are maxed out trying to make hormones, but adrenals are only succeeding at making testosterone. If you actually had too much testosterone you'd be a nymphomaniac. Gracia > I did a bit more searching on the cortisol thing, and while Cortef is > not recommended, I found some articles that recommend taking > Prednisone, but at bedtime (probably to avoid the hunger thing). So I > am gonna restart on the Deltacortril today. I started on the > metformin. > > Strictly speaking, it seems that I have a variant of PCOS called HAIR- > AN syndrome. It means I have hyperandrogenia (too much test), insulin > resistance, and acanthosis nigricans (dark patches of skin). It is > not classic PCOS cause I do get my period. It seems like every > disease I have doesn't present in the classic way - just like the > hypoT I had " normal " TSH and doctors didn't do a thing, I have had > this since my teens, although it worsened around 4 years ago when I > was morbidly obese (weight really makes this worse) but since I was > having my period, doctors again didn't do a thing. > > I am also gonna keep up the 7-Keto - my DHEAS didn't show top of the > range as it had last time, but mid-range, so it is needed. And I am > gonna restart chromium piccolinate (I'd stopped it), and start CLA > and CoQ10, since they are both supposed to help as well. > > > > Jan > > > > > My adrenal tests came back normal and I am at 62.5mcg already, > which > > is more T3 than pretty much anyone else - even Armour, isn't it > > supposed to be 3:1 T4 to T3? I am on 150mcg:62.5mcg, or 2.4:1. So > > that is more T3 than anything else other than the 's Syndrome > > protocol of T3 only, no T4. So it can't be a lack of T3. > > > > I was on 25mcg at my last test and I was at the last number of the > > reference range for Free T3, so I must be way above the reference > > now. I've been on T3 for the most of the past 4 years, with the > > exception of the first 3 months in my treatment, and 45 days this > > year when I was without a prescription for it, so my levels can't > > have been low enough to cause PCOS. > > > > My ACTH stimulation and serum cortisol were normal, and so was the > > DHEAS (although that was while taking it - so yeah, that is one > > adrenal hormone I need). My cortisol was even in the high end of > > normal, so no need for more. > > > > Sorry for having been snippy, I am very disappointed with this > > diagnosis. > > > > > > Jan > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 My tests show a ton of testosterone, but I have zero sex drive. I am not gonna take the Deltacortril anyway, cause it is not safe to take while pregnant and the whole point of this is to get me to ovulate, so I am gonna give the metformin a chance first. Then maybe progesterone, and if it all fails, I will still prefer the cortisol rather than the BCP. That seems like such a lame way to treat PCOS... I can't take Armour because I'd spend my whole salary importing it, with the exchange rate as it is. But I am doing fine thyroid wise now that I am on a high enough dosage. Jan > > > My adrenal tests came back normal and I am at 62.5mcg already, > > which > > > is more T3 than pretty much anyone else - even Armour, isn't it > > > supposed to be 3:1 T4 to T3? I am on 150mcg:62.5mcg, or 2.4:1. So > > > that is more T3 than anything else other than the 's Syndrome > > > protocol of T3 only, no T4. So it can't be a lack of T3. > > > > > > I was on 25mcg at my last test and I was at the last number of the > > > reference range for Free T3, so I must be way above the reference > > > now. I've been on T3 for the most of the past 4 years, with the > > > exception of the first 3 months in my treatment, and 45 days this > > > year when I was without a prescription for it, so my levels can't > > > have been low enough to cause PCOS. > > > > > > My ACTH stimulation and serum cortisol were normal, and so was the > > > DHEAS (although that was while taking it - so yeah, that is one > > > adrenal hormone I need). My cortisol was even in the high end of > > > normal, so no need for more. > > > > > > Sorry for having been snippy, I am very disappointed with this > > > diagnosis. > > > > > > > > > Jan > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Jan, Have you tried DHEA??..I know that I cannot take it as it converts to estrogen( I am dominant in that) but for you it may combat the high testosterone with a little more estrogen. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 cortef is the secret ingredient IMHO, and of course so important if you need it and are pregnant. Look at Jefferies MD site about cortef and pregnancy. Gracia > My tests show a ton of testosterone, but I have zero sex drive. I am > not gonna take the Deltacortril anyway, cause it is not safe to take > while pregnant and the whole point of this is to get me to ovulate, > so I am gonna give the metformin a chance first. Then maybe > progesterone, and if it all fails, I will still prefer the cortisol > rather than the BCP. That seems like such a lame way to treat PCOS... > > I can't take Armour because I'd spend my whole salary importing it, > with the exchange rate as it is. But I am doing fine thyroid wise now > that I am on a high enough dosage. > > > Jan > > > --- In hypothyroidism , " Gracia " <circe@g...> wrote Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 But if the testosterone were coming from the adrenals, wouldn't I have high Cortisol, high DHEA? Jan > > Prednisone IS cortisol, 5mg=20mg of cortef. Cortef wouldn't be recomended > because IT CANNOT BE PATENTED!! No money to be made. Deltacortril is > probably good. Cortisol, progesterone, DHEA, and Armour would completely > fix you. High testosterone means that your adrenals are maxed out trying to > make hormones, but adrenals are only succeeding at making testosterone. If > you actually had too much testosterone you'd be a nymphomaniac. > Gracia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 I've been taking it, but I had to switch to the 7-Keto type. My first testosterone test was 40 days after I started regular DHEA and my testosterone was normal - this second test was after I'd been on regular DHEA for 80 days, and just switched to 7-Keto. I guess the DHEA was being converted just to testosterone? Or maybe it was a coincidence cause last time my thyroid was messed up, and now it is not. Jan > Jan, > Have you tried DHEA??..I know that I cannot take it as it converts to > estrogen( I am dominant in that) but for you it may combat the high > testosterone with a little more estrogen. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 I am gonna look it up, cause what I found said it is unsafe for pregnant and lactating women. Also, that you have to take it for life, so I can't even take now and get pregnant later. Jan > > cortef is the secret ingredient IMHO, and of course so important if you need > it and are pregnant. Look at Jefferies MD site about cortef and > pregnancy. > Gracia > > > > My tests show a ton of testosterone, but I have zero sex drive. I am > > not gonna take the Deltacortril anyway, cause it is not safe to take > > while pregnant and the whole point of this is to get me to ovulate, > > so I am gonna give the metformin a chance first. Then maybe > > progesterone, and if it all fails, I will still prefer the cortisol > > rather than the BCP. That seems like such a lame way to treat PCOS... > > > > I can't take Armour because I'd spend my whole salary importing it, > > with the exchange rate as it is. But I am doing fine thyroid wise now > > that I am on a high enough dosage. > > > > > > Jan > > > > > > --- In hypothyroidism , " Gracia " <circe@g...> wrote Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 I have no clue. I do not trust the tests, I would go with symptoms. My tests showed " high " cortisol, except for 24 hr urine which showed low. Cortisol was the missing link for me. Peatfield says that low DHEA indicates need for cortisol, but you were taking DHEA. IMO taking adrenal hormone is really no big deal, but I guess it's a hassle to take it 4X a day. When your levels are high that means the adrenals are stressed and sick, not that they are too efficient. You must look at symptoms, and you've got them. Gracia > But if the testosterone were coming from the adrenals, wouldn't I > have high Cortisol, high DHEA? > > > Jan > > > > > > > Prednisone IS cortisol, 5mg=20mg of cortef. Cortef wouldn't be > recomended > > because IT CANNOT BE PATENTED!! No money to be made. > Deltacortril is > > probably good. Cortisol, progesterone, DHEA, and Armour would > completely > > fix you. High testosterone means that your adrenals are maxed out > trying to > > make hormones, but adrenals are only succeeding at making > testosterone. If > > you actually had too much testosterone you'd be a nymphomaniac. > > Gracia > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 The protocol for PCOS says prednisone for a reason, I guess: you are supposed to take it before bed, or if you are still up by them, at midnight. All the recommendations for adrenal fatigue say morning, so I guess that is why no Cortef, not for the money reasons - after all this is from holistic docs, traditional docs say BCP is the only treatment. Who would wake up 4x in the middle of the night to take it? I looked for the Jefferies site but only found links to the book, no info. So the cortisol is safe to take during pregnancy? In tiny dosages, like 2.5mg or 5mg (when I run out of the Deltacortril I will have to go up to 5mg, there is no 2.5mg here - besides, the holistic docs say 5mg to suppress adrenal hormone and lower testosterone). Meanwhile I decided to try to conceive anyway. Who knows? I might luck out. Jan > > > > > > Prednisone IS cortisol, 5mg=20mg of cortef. Cortef wouldn't be > > recomended > > > because IT CANNOT BE PATENTED!! No money to be made. > > Deltacortril is > > > probably good. Cortisol, progesterone, DHEA, and Armour would > > completely > > > fix you. High testosterone means that your adrenals are maxed out > > trying to > > > make hormones, but adrenals are only succeeding at making > > testosterone. If > > > you actually had too much testosterone you'd be a nymphomaniac. > > > Gracia > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Jan, DHEA converts to testosterone in men and converts to estrogen in women.So it should level out your testo levels but as we all know so well,everyone is different and we have to make ourselves human guinea pigs in hopes of feeling better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 I decided to go with the 7-keto anyway, my skin got a bit oilier on the regular DHEA. 7-Keto supposedly doesn't convert to anything. Jan > Jan, > DHEA converts to testosterone in men and converts to estrogen in > women.So it should level out your testo levels but as we all know so > well,everyone is different and we have to make ourselves human guinea > pigs in hopes of feeling better. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2003 Report Share Posted December 17, 2003 Jan also meant to tell you I did look into other effects for adrenals for you and ruled them out ---(cushings)--you have too high testoserone is why you have the extra body hair that you have-so this explains this problem for you. All along I have thought you had adrenal problems--and I know you went for testing too---forgive me now I don't remember exactly the info---but this would explain more of your health issues --If you are afraid of prednisone because of the side effects--than do what we did and try isocort--either way I would not let this go. Or try that adrenalrebuilder from adrenalfatigue.org all of this has worked for my daugher---she had to take more pills but it did work---tina -- In hypothyroidism , " Gracia " <circe@g...> wrote: > > Prednisone IS cortisol, 5mg=20mg of cortef. Cortef wouldn't be recomended > because IT CANNOT BE PATENTED!! No money to be made. Deltacortril is > probably good. Cortisol, progesterone, DHEA, and Armour would completely > fix you. High testosterone means that your adrenals are maxed out trying to > make hormones, but adrenals are only succeeding at making testosterone. If > you actually had too much testosterone you'd be a nymphomaniac. > Gracia > > > I did a bit more searching on the cortisol thing, and while Cortef is > > not recommended, I found some articles that recommend taking > > Prednisone, but at bedtime (probably to avoid the hunger thing). So I > > am gonna restart on the Deltacortril today. I started on the > > metformin. > > > > Strictly speaking, it seems that I have a variant of PCOS called HAIR- > > AN syndrome. It means I have hyperandrogenia (too much test), insulin > > resistance, and acanthosis nigricans (dark patches of skin). It is > > not classic PCOS cause I do get my period. It seems like every > > disease I have doesn't present in the classic way - just like the > > hypoT I had " normal " TSH and doctors didn't do a thing, I have had > > this since my teens, although it worsened around 4 years ago when I > > was morbidly obese (weight really makes this worse) but since I was > > having my period, doctors again didn't do a thing. > > > > I am also gonna keep up the 7-Keto - my DHEAS didn't show top of the > > range as it had last time, but mid-range, so it is needed. And I am > > gonna restart chromium piccolinate (I'd stopped it), and start CLA > > and CoQ10, since they are both supposed to help as well. > > > > > > > > Jan > > > > > > > > > My adrenal tests came back normal and I am at 62.5mcg already, > > which > > > is more T3 than pretty much anyone else - even Armour, isn't it > > > supposed to be 3:1 T4 to T3? I am on 150mcg:62.5mcg, or 2.4:1. So > > > that is more T3 than anything else other than the 's Syndrome > > > protocol of T3 only, no T4. So it can't be a lack of T3. > > > > > > I was on 25mcg at my last test and I was at the last number of the > > > reference range for Free T3, so I must be way above the reference > > > now. I've been on T3 for the most of the past 4 years, with the > > > exception of the first 3 months in my treatment, and 45 days this > > > year when I was without a prescription for it, so my levels can't > > > have been low enough to cause PCOS. > > > > > > My ACTH stimulation and serum cortisol were normal, and so was the > > > DHEAS (although that was while taking it - so yeah, that is one > > > adrenal hormone I need). My cortisol was even in the high end of > > > normal, so no need for more. > > > > > > Sorry for having been snippy, I am very disappointed with this > > > diagnosis. > > > > > > > > > Jan > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Tina, Dr. Jefferies says it is safe to take the Prednisone when pregnant, so it should be ok. I just haven't started it yet cause I am taking the Metformin and it has some weird side effects so I want to settle at the perfect dosage before starting other meds. Thanks so much for the help. Jan > Jan also meant to tell you I did look into other effects for adrenals > for you and ruled them out ---(cushings)--you have too high > testoserone is why you have the extra body hair that you have-so this > explains this problem for you. All along I have thought you had > adrenal problems--and I know you went for testing too---forgive me > now I don't remember exactly the info---but this would explain more > of your health issues --If you are afraid of prednisone because of > the side effects--than do what we did and try isocort--either way I > would not let this go. Or try that adrenalrebuilder from > adrenalfatigue.org > > all of this has worked for my daugher---she had to take more pills > but it did work---tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 What I am confused about is why not take the adrenal glandular instead of cortef? Why not take in the natural cortisol which is the glandular form in the adrenals just like you would for thyroid in armour? Unless in the case of she said her adrenals are not producing any or very little cortisol and maybe for her the cortef works best as it does produce both natural and synthetic results. I think you have to be very careful here with any steroid and I would rather you try the glandular first. That is just my opinion. I like to take things slower and one drug at a time. http://www.mayoclinic.com/invoke.cfm?objectId=BF779C0C-E238-4235- A3D4F14F4B11D954 Unless your condition is very severe (addison's) I really don't think the general population needs a steroid for everyday use, unless it's proven that your adrenals do not work. The majority of adrenal insufficiency needs a small dose of cortef (or I prefer adrenal glandular) over a 4-6 week trial period to see if they are healing and then can come back and produce the correct amounts you need if all goes well. I would only take this drug as with any drug the rest of my life get the correct tests necessary to make this diagnose. Only because you need to know all the side effects and what the build up can do to you as well. As with any drug there is build up, anything you put in your body if not digested and absorbed properly as well being stored properly can cause you problems long term. I would do my homework and talk to many doctors as well before I put anything into my body. I just would want to be sure especially for pregnancy. If you can't find a doctor you can do self testing, there are many sites here for that. The best for adrenal problems is a salvia test, that seems to work the best. > > Jan also meant to tell you I did look into other effects for > adrenals > > for you and ruled them out ---(cushings)--you have too high > > testoserone is why you have the extra body hair that you have-so > this > > explains this problem for you. All along I have thought you had > > adrenal problems--and I know you went for testing too---forgive me > > now I don't remember exactly the info---but this would explain more > > of your health issues --If you are afraid of prednisone because of > > the side effects--than do what we did and try isocort--either way I > > would not let this go. Or try that adrenalrebuilder from > > adrenalfatigue.org > > > > all of this has worked for my daugher---she had to take more pills > > but it did work---tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Tina, Thanks for the help, but I've read a bit on it. Dr. Jefferies and top holistic docs treat PCOS with cortisol or prednisone. There are no natural adrenal glandulars available here, and there is no saliva testing either. I can't afford to send my saliva to the US, I live in a very different economic reality. I make US$500 a month. Tests that cost " just " $150 plus $50 for courier service would be more than my rent. My blood tests show low cortisol. Normal, but on the low side. Since all experts agree that the blood tests is not very sensitive - Gracia's was normal, while the saliva was way below normal - that means mine is low. Also, the idea with the steroid is to give the adrenals a rest, so they also take a rest from making so much testosterone. The testosterone feels awful, Tina - I have hot flashes and night sweats just like a menopausal woman. Regardless of the pregnancy thing, I need it to go away. Also, a mother with stressed adrenals uses the baby's adrenals glands to get by during pregnancy. I could make my child be born with adrenal fatigue already (and I do have it, DHEA and cortisol are both low). Considering I am 100% sure that my child will have the autoimmune gene (my husband is Type I diabetic), I don't wanna set him or her up for autoimmune activity from birth. 2.5mg Prednisone is 1/4 of what the adrenal glands make a day. I am in no way shutting down their activity, they are still gonna work to make the other 3/4. I am in the bottom quartile for cortisol, so there is no way that will be too much. I've been doing my homework. I also seriously doubt my adrenals can rebuild themselves at this point - I've had tons of adrenal symptoms for at least 16 years. My mom has all those symptoms since before she had me - as far as I know, I might have it from birth. Maybe if I had been put on it temporarily 16 years ago, they might have rebuilt themselves. Jan > What I am confused about is why not take the adrenal glandular > instead of cortef? Why not take in the natural cortisol which is the > glandular form in the adrenals just like you would for thyroid in > armour? Unless in the case of she said her adrenals are not > producing any or very little cortisol and maybe for her the cortef > works best as it does produce both natural and synthetic results. > > I think you have to be very careful here with any steroid and I > would rather you try the glandular first. That is just my opinion. I > like to take things slower and one drug at a time. > > http://www.mayoclinic.com/invoke.cfm?objectId=BF779C0C-E238-4235- > A3D4F14F4B11D954 > > Unless your condition is very severe (addison's) I really don't think > the general population needs a steroid for everyday use, unless it's > proven that your adrenals do not work. > > The majority of adrenal insufficiency needs a small dose of cortef > (or I prefer adrenal glandular) over a 4-6 week trial period to see > if they are healing and then can come back and produce the correct > amounts you need if all goes well. > > I would only take this drug as with any drug the rest of my life get > the correct tests necessary to make this diagnose. Only because you > need to know all the side effects and what the build up can do to you > as well. As with any drug there is build up, anything you put in your > body if not digested and absorbed properly as well being stored > properly can cause you problems long term. > > I would do my homework and talk to many doctors as well before I put > anything into my body. I just would want to be sure especially for > pregnancy. If you can't find a doctor you can do self testing, there > are many sites here for that. The best for adrenal problems is a > salvia test, that seems to work the best. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 You have done your homework and you know what you need to do. All of this info has to be posted if not for you than for someone else who does not understand. All this does is further someone's search. And it's very true dosing for one person is not the same for another going by their size and weight besides how low they are and how much damage is done. Most of this is trial and error even with the test results. But we all need to post the what if's. You just never know who will use the info wrong. I think it would be great for you to finally feel better--both you and Shelia have long term complicated, mulitple illness related most likely from being under treated over the years. And you are right months of steriods could have impaired your adrenals--if you have to supplement them now to be normal so be it. As in so many articles posted on adrenal and thyroid problems it's better to keep on trying as long as you know what side effects to look for in case of overdose. We have to be our own keepers!!! no one else will do it for us---take care !!! tina -- In hypothyroidism , " janjv1311 " <janaina@v...> wrote: > Tina, > > Thanks for the help, but I've read a bit on it. Dr. Jefferies and top > holistic docs treat PCOS with cortisol or prednisone. > > There are no natural adrenal glandulars available here, and there is > no saliva testing either. I can't afford to send my saliva to the US, > I live in a very different economic reality. I make US$500 a month. > Tests that cost " just " $150 plus $50 for courier service would be > more than my rent. > > My blood tests show low cortisol. Normal, but on the low side. Since > all experts agree that the blood tests is not very sensitive - > Gracia's was normal, while the saliva was way below normal - that > means mine is low. Also, the idea with the steroid is to give the > adrenals a rest, so they also take a rest from making so much > testosterone. The testosterone feels awful, Tina - I have hot flashes > and night sweats just like a menopausal woman. Regardless of the > pregnancy thing, I need it to go away. Also, a mother with stressed > adrenals uses the baby's adrenals glands to get by during pregnancy. > I could make my child be born with adrenal fatigue already (and I do > have it, DHEA and cortisol are both low). Considering I am 100% sure > that my child will have the autoimmune gene (my husband is Type I > diabetic), I don't wanna set him or her up for autoimmune activity > from birth. > > 2.5mg Prednisone is 1/4 of what the adrenal glands make a day. I am > in no way shutting down their activity, they are still gonna work to > make the other 3/4. I am in the bottom quartile for cortisol, so > there is no way that will be too much. I've been doing my homework. I > also seriously doubt my adrenals can rebuild themselves at this > point - I've had tons of adrenal symptoms for at least 16 years. My > mom has all those symptoms since before she had me - as far as I > know, I might have it from birth. Maybe if I had been put on it > temporarily 16 years ago, they might have rebuilt themselves. > > > Jan > > > > > What I am confused about is why not take the adrenal glandular > > instead of cortef? Why not take in the natural cortisol which is > the > > glandular form in the adrenals just like you would for thyroid in > > armour? Unless in the case of she said her adrenals are not > > producing any or very little cortisol and maybe for her the cortef > > works best as it does produce both natural and synthetic results. > > > > I think you have to be very careful here with any steroid and I > > would rather you try the glandular first. That is just my opinion. > I > > like to take things slower and one drug at a time. > > > > http://www.mayoclinic.com/invoke.cfm?objectId=BF779C0C-E238-4235- > > A3D4F14F4B11D954 > > > > Unless your condition is very severe (addison's) I really don't > think > > the general population needs a steroid for everyday use, unless > it's > > proven that your adrenals do not work. > > > > The majority of adrenal insufficiency needs a small dose of cortef > > (or I prefer adrenal glandular) over a 4-6 week trial period to see > > if they are healing and then can come back and produce the correct > > amounts you need if all goes well. > > > > I would only take this drug as with any drug the rest of my life > get > > the correct tests necessary to make this diagnose. Only because you > > need to know all the side effects and what the build up can do to > you > > as well. As with any drug there is build up, anything you put in > your > > body if not digested and absorbed properly as well being stored > > properly can cause you problems long term. > > > > I would do my homework and talk to many doctors as well before I > put > > anything into my body. I just would want to be sure especially for > > pregnancy. If you can't find a doctor you can do self testing, > there > > are many sites here for that. The best for adrenal problems is a > > salvia test, that seems to work the best. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 We use it only when Meridia is contraindicated (usually due to anti- depressants). Since it's not FDA approved for more than 3 months of continuous use, patients have to come off it for at least a month if they plan to take it long-term. It's most common side effects are potential elevation in blood pressure and pulse, dry mouth, insomnia, and constipation. Also, rebound weight gain is common once the medication is d/c'd. > > Does anyone have experience with phentermine? Does anyone's surgeon > prescribe it for pre-surgical weight loss? I would appreciate any > information anyone can share. > > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 We do not prescribe it, but have had pts using it as prescribed by their pcp. Our main concern is that they stop it two weeks before surgery, per our team of anesthesiologists, to avoid any interactions/complications with surgery/anesthesia. Simler ValleyCare Health System >>> mannfrd@... 09/22/06 10:11 AM >>> Does anyone have experience with phentermine? Does anyone's surgeon prescribe it for pre-surgical weight loss? I would appreciate any information anyone can share. Thanks. Quote Link to comment Share on other sites More sharing options...
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