Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Thanks, Ron. Are you now taking it once a week instead of every other week? I've heard that for some, this dosage is necessary. Hope that it continues to bring you relief for a very long time. Kathy [Ed. Note: Hi Kathy. No, I'm still taking Humira every other week. Since its so expensive, I'd be surprised if my Blue Cross insurance would cover weekly injections, but I may eventually have to find out - either that or switch to Enbrel. Humira is still working far better than anything else I've tried, but I've noticed that I have a little bit of Ps coming back on my scalp and ankle, and have some minor aches and pains that I haven't had since I started on Humira. Ron] > My experiences are all positive. It cleared up my Ps and alleviated > most of my PA, and I've had no adverse side effects or injection site > reactions. There are some minor indications however that after 8 > months it may be beginning to lose some of its effectiveness for me. > > -- Ron > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 > My rheumy has just prescribed Humira. If any > of you have any other positive or negative experiences > with Humira, I'd sure appreciate your insights and reactions > to the injections. > Kathy F > Brooklyn Hi Kathy, My experiences are all positive. It cleared up my Ps and alleviated most of my PA, and I've had no adverse side effects or injection site reactions. There are some minor indications however that after 8 months it may be beginning to lose some of its effectiveness for me. -- Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Sorry to hear that you are having such a struggle in finding a treatment that will work for you, Makeitquit. I hope you find relief soon. Thanks for the advice about letting the Humira come to room temp before injecting. I had heard that before and I will certainly take that one to heart. Ron is right, we are all different and we cannot predict either how our body will respond to a new medication or the level of pain we may feel when we self inject. Fortunately, I have few qualms about injecting and I view it as a means to an end. I would rather the pain of the injection that the pain of living with PA, but how utterly depressing for all of us when these treatments prove futile. May all of us find our magic pain solution but if not, may we always enjoy the magic of every day. Kathy > Not to scare you, but it does hurt when injecting. > You have to keep it refridgerated, but let it sit out to almost room temp > before injecting. > This cut's down on the pain quite a bit, but not completley! > I have been on it since May '03, and have not felt anything from it. > I was on Enbrel at the first of this year, and it worked great until the end > of April. > It all of a sudden just up and quit. > In May I started Humira, and, well.......NOTHING. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 In a message dated 9/17/2003 1:51:55 AM Eastern Daylight Time, pugnfriend@... writes: > > My rheumy has just prescribed Humira. I've read the archives and appreciate > > all I have learned about this medication and self injections. Hi Kathy, I live on Long Island. Have you ever taken Enbrel or did your rheumy just go straight to Humira? I'm just wondering because I took Enbrel and it did not work and my rheumy took me off it 3 weeks ago. I saw him today again and he said to just take Lodine for now and Vicodin Es for pain when needed. He also thinks I have fibromyalgia and said to take Xanax at night. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 In a message dated 9/17/2003 9:26:35 PM Eastern Daylight Time, makeitquit@... writes: > Compared to all the extreme pain I've suffered from PA at times however, > the Humira injection is nothing in my opinion. Ron] Hi ron, I just wanted to know if you tried Enbrel before the Humira also. My rheymy doesn't know what to do with my right now...He just wants me to take the anti-inflamatory alone right now. I feel the same on that as I did taking the Enbrel and mtx. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Hi Janet, I remember that you are a neighbor of sorts - I live in Brooklyn but we also have a beach house on Fire Island (and a mountain home in Woodstock). I have gone the " traditional " route of being on most of the NSAIDS, then MTX, then Arava and Mobic, both supplemented with quarterly cortisone injections. MTX was not tolerated by my liver, Arava simply did nothing for me and I am in more pain than before I went on it. My insurance required me to try (and fail) two DMARDS before it would pay for the biologics. My rheumy likes both Enbrel and Humira but he was involved with the clinical trials of Humira and really liked the results he was seeing. He also likes that it requires injections once every two weeks (once a week in a few cases) vs. the twice a week required by Enbrel. I liked that aspect as well. It comes pre-mixed and already loaded into the syringe which is a very narrow 27 gauge. Given fewer injections and the ease of use combined with good results, he felt there was no point to go on Enbrel first. Naturally, I will shift over to Enbrel if I have poor results with Humira. Based on the research I've done, I also could find no advantage to Enbrel over Humira so next week I'll start on Humira. I will let the group know how I am doing on it so I don't think we have too many Humira users. Kathy Hi Kathy, I live on Long Island. Have you ever taken Enbrel or did your rheumy just go straight to Humira? I'm just wondering because I took Enbrel and it did not work and my rheumy took me off it 3 weeks ago. I saw him today again and he said to just take Lodine for now and Vicodin Es for pain when needed. He also thinks I have fibromyalgia and said to take Xanax at night. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2010 Report Share Posted June 18, 2010 Hi Everyone, I have been a member of the group for a while, but haven't posted very often. I read every day. All of you are awesome and I am so grateful to know that there are people that understand how I feel. I have had RA for 12 years. I am on meloxicam, arava, sulphasalazine and just started Humira 3 months ago. I was wondering if any of you found that you constantly feel like you have the flu or a bad cold starting on Humira? I am just completely whacked. The other thing that is kind of wierd is that the skin on my fingers is cracking open in a couple of places. Any thoughts/feedback would be great. Humira is really expensive as I only have partial coverage and it's a bit of a bummer to pay some much money to give yourself the flu. Thanks Pam Quote Link to comment Share on other sites More sharing options...
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