Re: HELL TO ALL

[Guest guest]

Hi Debbie,

What a doctor, and I'm sorry you had to go back to him! Where do you

live, may I ask? It is hard to find a good rheumy, and that is so sad,

because there are so many patients who need GOOD care. That really

upsets me, that you had to go through his abuse, and that is exactly

what it was.

I'm glad your on humira and mtx, but is it working for you? Sometimes,

you need to switch meds, until you find the right combo. How long have

you been on those 2 meds? Are you on a NSAID?

Now, are you still diagnosed with fibro? You might need a med to help

with fibro. I have been on neurontin for years for neuropathy pain in

my leg. I would have swelling in my left calf, needles and pin feeling,

pain, just irritable feeling. It would help some. The med suppose to

help with fibro, but I guess it wasn't working. My primary doctor put

me on cymbalta, and I'm a new woman. The fibro pain is so gone, so now

I can deal with the RA pain.

Do you inject the humira in your legs? I inject in my thighs, and my

thighs are sore. I'm not sure why you would have bruising, maybe

someone had a reply.

Oh girl, I know how you feel. If you are almost bed-ridden, how in the

hell can someone exercise. I have been through this too, just ignore

the darn fool.

My advice, find another doctor. If you have to go a distance, do it, so

worth it. My doctor is 1 1/2 hour one way, but he is the best in OK

too. I am so glad to have my doctor.

I know it's hard right now, but you need to take control of your life.

This doctor isn't helping you that much, it seems. You need a caring

doctor, who wants to help you.

I'm here if you need a friend. I'm sorry your going through this, wish

there was something I can do. I can give you support and a shoulder.

Take care, and gentle hugs,

Tawny

My primary doctor put me on cymbalta, and I'm a new woman. I feel so

much better with the fibro. If your not hurting in your joints, it

could very well be fibro.

>

> HI MY NAME IS DEBBIE I READ YOU GUYS POSTS ALOT AND ALWAYS THOUGHT ID

LIKE TO BE ABLE TO HAVE SOMEONE TO TALK TO ALSO...ALTHOUGH I WAS ONLY

DIAGNOSED WITH RA IN FEB OF 08 I KNOW IVE HAD IT MUCH LONGER(BLOOD TESTS

WHERE OFF THE WALL) THE FIRST TIME I WENT TO AN RA DOC HE TOLD ME I WAS

FAT DEPRESSED HAD FIBRO AND NEEDED TO GO TO SEE JENNY CRAIG...I WAS

DEVASTED HOW COULD A PERSON BE SO CRUEL I CRIED AND SUFFERED FOR

YEARS..FINALLY AFTER A YEAR OF BEING BEDRIDDEN..I COULDNT EVEN LIFT MY

LEGS TO GET IN THE SHOWER, (walked when i could with a walker) ITS

PROBALY 3-4 INS OF GROUND.. AND TAKING PREDISONE once a month FOR A VERY

LONG TIME I HAD TO BREAK DOWN AND GO BACK TO SAME GUY...(lack of ra

doctors here)HE REALIZED HOW BAD I DID HAVE IT AND HOW DISABLED ID

BECOME NOW IM ON HUMIRA AND METHOTREXATE THE SWELLING IS AT BAY BUT OMG

DOES THE PAIN EVER EASE UP? I CRY EVERY NIGHT ITS JUST NOT IN JOINTS BUT

MY LEGS ACHE ALL OVER(CALFS AND TOP LEGS EXSPECIALLY) I ALSO GET HUGE

BRUISES I DONT KNOW HOW I GOT? IM ON VICODIN A STRONG FORM BUT IT DOESNT

ALWAYS HELP..DOES ANYONE ELSE GET THESE TERRIBLE PAINS IN ANY OTHER

PARTS OF THEIR BODIES BESIDES THE JOINTS? HOW ABOUT BRUSISES? I KNOW

LOSING WEIGHT WILL HELP BELEIVE ME I TRIED BUT HOW DO YOU LOSE WEIGHT

WHEN JUST WALKING KILLS YOU? MY DOC IS TALL AND SKINNY IM SURE NEVER HAD

A WEIGHT PROB.IN HIS LIFE IT JUST FLOORS ME HOW MEAN PEOPLE CAN

BE...SORRY SO LONG WINDED JUST FELT GOOD TO LET GO THANK-YOU HAGD DEBBIE

>

[Guest guest]

Hi Debbie,

I am soooo sorry that you had to indure the abuse of that doctor! I think a lot

of us have some horror stories about doctors and I , too live in a small town. I

was happy with the local doctor but after being frustrated at my allergic

reactions, he referred me to a specialist 2 hours away at a Medical University

(of SC). I went, and although the lady was nice, she proceeded to tell me I have

never had RA - didn't listen to a thing I had to say. I cried the 2 hour drive

back. I have been diagnosed - seperately by 5 different doctors that were not

associated with one another. Now, I have an appt with a doctor in Columbia about

1 1/2 hrs away but I feel good about this one. Besides, I am having the mother

of all flares right now - so by george it should show up during the

exam.................Hang in there - if you have to drive to find a good one,

(hey, I picked my new out thru www.ratemds..com & www.vitals.com . ) it will be

worth the drive. Please don't

give up.

 

The other thing, a lot of people get good results with Humira but I had massive

& severe bone and muscle pains from it. Although it lowered the numbers they

look at in your blood, they couldn't keep me on it. You need to find a doctor -

other than the ass you got now (!    ) and find out what is going on with you.

Please - I am not trying to scare you w/ my story, but it just shows you - you

really got to find someone that listens and cares.. It may take a few, but it's

priceless when you finally find the right one!

Good luck to you - my thoughts & prayers are with you! We are all here for you

and with you!

in SC

ltdavis_jrdavis@...

From: tdianaok <tdianaok@...>

Subject: [ ] Re: HELL TO ALL

Date: Monday, August 17, 2009, 3:26 PM

 

Hi Debbie,

What a doctor, and I'm sorry you had to go back to him! Where do you

live, may I ask? It is hard to find a good rheumy, and that is so sad,

because there are so many patients who need GOOD care. That really

upsets me, that you had to go through his abuse, and that is exactly

what it was.

I'm glad your on humira and mtx, but is it working for you? Sometimes,

you need to switch meds, until you find the right combo. How long have

you been on those 2 meds? Are you on a NSAID?

Now, are you still diagnosed with fibro? You might need a med to help

with fibro. I have been on neurontin for years for neuropathy pain in

my leg. I would have swelling in my left calf, needles and pin feeling,

pain, just irritable feeling. It would help some. The med suppose to

help with fibro, but I guess it wasn't working. My primary doctor put

me on cymbalta, and I'm a new woman. The fibro pain is so gone, so now

I can deal with the RA pain.

Do you inject the humira in your legs? I inject in my thighs, and my

thighs are sore. I'm not sure why you would have bruising, maybe

someone had a reply.

Oh girl, I know how you feel. If you are almost bed-ridden, how in the

hell can someone exercise. I have been through this too, just ignore

the darn fool.

My advice, find another doctor. If you have to go a distance, do it, so

worth it. My doctor is 1 1/2 hour one way, but he is the best in OK

too. I am so glad to have my doctor.

I know it's hard right now, but you need to take control of your life.

This doctor isn't helping you that much, it seems. You need a caring

doctor, who wants to help you.

I'm here if you need a friend. I'm sorry your going through this, wish

there was something I can do. I can give you support and a shoulder.

Take care, and gentle hugs,

Tawny

My primary doctor put me on cymbalta, and I'm a new woman. I feel so

much better with the fibro. If your not hurting in your joints, it

could very well be fibro.

>

> HI MY NAME IS DEBBIE I READ YOU GUYS POSTS ALOT AND ALWAYS THOUGHT ID

LIKE TO BE ABLE TO HAVE SOMEONE TO TALK TO ALSO...ALTHOUGH I WAS ONLY

DIAGNOSED WITH RA IN FEB OF 08 I KNOW IVE HAD IT MUCH LONGER(BLOOD TESTS

WHERE OFF THE WALL) THE FIRST TIME I WENT TO AN RA DOC HE TOLD ME I WAS

FAT DEPRESSED HAD FIBRO AND NEEDED TO GO TO SEE JENNY CRAIG...I WAS

DEVASTED HOW COULD A PERSON BE SO CRUEL I CRIED AND SUFFERED FOR

YEARS..FINALLY AFTER A YEAR OF BEING BEDRIDDEN..I COULDNT EVEN LIFT MY

LEGS TO GET IN THE SHOWER, (walked when i could with a walker) ITS

PROBALY 3-4 INS OF GROUND.. AND TAKING PREDISONE once a month FOR A VERY

LONG TIME I HAD TO BREAK DOWN AND GO BACK TO SAME GUY...(lack of ra

doctors here)HE REALIZED HOW BAD I DID HAVE IT AND HOW DISABLED ID

BECOME NOW IM ON HUMIRA AND METHOTREXATE THE SWELLING IS AT BAY BUT OMG

DOES THE PAIN EVER EASE UP? I CRY EVERY NIGHT ITS JUST NOT IN JOINTS BUT

MY LEGS ACHE ALL OVER(CALFS AND TOP LEGS EXSPECIALLY) I ALSO GET HUGE

BRUISES I DONT KNOW HOW I GOT? IM ON VICODIN A STRONG FORM BUT IT DOESNT

ALWAYS HELP..DOES ANYONE ELSE GET THESE TERRIBLE PAINS IN ANY OTHER

PARTS OF THEIR BODIES BESIDES THE JOINTS? HOW ABOUT BRUSISES? I KNOW

LOSING WEIGHT WILL HELP BELEIVE ME I TRIED BUT HOW DO YOU LOSE WEIGHT

WHEN JUST WALKING KILLS YOU? MY DOC IS TALL AND SKINNY IM SURE NEVER HAD

A WEIGHT PROB.IN HIS LIFE IT JUST FLOORS ME HOW MEAN PEOPLE CAN

BE...SORRY SO LONG WINDED JUST FELT GOOD TO LET GO THANK-YOU HAGD DEBBIE

>

[Guest guest]

Hi Debbie - I'm glad you've decided to stop lurking and start talking. Welcome

to the group. This RA is not an easy thing to deal with. You mentioned that your

doctor thought you also had Fibromyalgia - what are you taking for that? That

could be why your legs give you such a fit. I take Neurontin for that and there

are others who also take Cymbalta (which helps with the depression too). I'm

glad your Rheumy finally woke up and saw just how bad you were doing. Its a

shame he's the only one in your area.

Are you having your bloodwork done on a regular basis? My doc was mainly

interested in my AST & ALT (among others) and I found out that it was cheaper to

do a CMP - especially where I don't have insurance - and it gave results for a

whole lot of other things that also might help to explain the bruising if it is

that bad.

I don't know what to tell you about the weight. I struggle with it too. The best

thing we can do is watch what we put in our mouths and try to move as much as we

can. If you have access to a pool, that helps tremendously as the weight is off

your joints while in the water. I don't get in nearly as often as I should.

No apologies necessary for the " long winded-ness " . That's what we're here for.

Call your Rheumy - keep us posted. We care.....Doreen

HI MY NAME IS DEBBIE I READ YOU GUYS POSTS ALOT AND ALWAYS THOUGHT ID LIKE TO

BE ABLE TO HAVE SOMEONE TO TALK TO ALSO...ALTHOUGH I WAS ONLY DIAGNOSED WITH RA

IN FEB OF 08 I KNOW IVE HAD IT MUCH LONGER(BLOOD TESTS WHERE OFF THE WALL) THE

FIRST TIME I WENT TO AN RA DOC HE TOLD ME I WAS FAT DEPRESSED HAD FIBRO AND

NEEDED TO GO TO SEE JENNY CRAIG...I WAS DEVASTED HOW COULD A PERSON BE SO CRUEL

I CRIED AND SUFFERED FOR YEARS..FINALLY AFTER A YEAR OF BEING BEDRIDDEN..I

COULDNT EVEN LIFT MY LEGS TO GET IN THE SHOWER, (walked when i could with a

walker) ITS PROBALY 3-4 INS OF GROUND.. AND TAKING PREDISONE once a month FOR A

VERY LONG TIME I HAD TO BREAK DOWN AND GO BACK TO SAME GUY...(lack of ra doctors

here)HE REALIZED HOW BAD I DID HAVE IT AND HOW DISABLED ID BECOME NOW IM ON

HUMIRA AND METHOTREXATE THE SWELLING IS AT BAY BUT OMG DOES THE PAIN EVER EASE

UP? I CRY EVERY NIGHT ITS JUST NOT IN JOINTS BUT MY LEGS ACHE ALL OVER(CALFS

AND TOP LEGS EXSPECIALLY) I ALSO GET HUGE BRUISES I DONT KNOW HOW I GOT? IM ON

VICODIN A STRONG FORM BUT IT DOESNT ALWAYS HELP..DOES ANYONE ELSE GET THESE

TERRIBLE PAINS IN ANY OTHER PARTS OF THEIR BODIES BESIDES THE JOINTS? HOW ABOUT

BRUSISES? I KNOW LOSING WEIGHT WILL HELP BELEIVE ME I TRIED BUT HOW DO YOU LOSE

WEIGHT WHEN JUST WALKING KILLS YOU? MY DOC IS TALL AND SKINNY IM SURE NEVER HAD

A WEIGHT PROB.IN HIS LIFE IT JUST FLOORS ME HOW MEAN PEOPLE CAN BE...SORRY SO

LONG WINDED JUST FELT GOOD TO LET GO THANK-YOU HAGD DEBBIE

[Guest guest]

Debbie I sympathize with you. Having RA is a dabilatating illness that I

would not wish on my stepmother...excuse me, my worse enemy. I have cried and

complained to God and finally accepted that I am disabled due to this

illness and there is no cure yet, but have to take it with a grain of salt and

not let it wear me out. I do everything in moderation and loss the weight

to help with joint pain and gained 55 lbs. back causing my flare ups to be

more often envloving my lower back. I have had numerous surgeries and gone

through chemo therapy even to lower my SED rate. I catch infections easily

and cause my body does not fight off infections like it is suppose to. I

have sheltered myself from my family and taken myself out of all family

gatherings and am a home body mostly. On top of the RA I have another ailment

that I am on meds for and dealing with daily. With excruciating pain from the

RA. my motto is " if I don't move, I won't move " . I hope things get relief

for you doon.

Irish

In a message dated 8/17/2009 2:03:15 P.M. Central Daylight Time,

lilacs599@... writes:

HI MY NAME IS DEBBIE I READ YOU GUYS POSTS ALOT AND ALWAYS THOUGHT ID LIKE

TO BE ABLE TO HAVE SOMEONE TO TALK TO ALSO...ALTHOUGH I WAS ONLY DIAGNOSED

WITH RA IN FEB OF 08 I KNOW IVE HAD IT MUCH LONGER(BLOOD TESTS WHERE OFF

THE WALL) THE FIRST TIME I WENT TO AN RA DOC HE TOLD ME I WAS FAT DEPRESSED

HAD FIBRO AND NEEDED TO GO TO SEE JENNY CRAIG...I WAS DEVASTED HOW COULD A

PERSON BE SO CRUEL I CRIED AND SUFFERED FOR YEARS..FINALLY AFTER A YEAR OF

BEING BEDRIDDEN..I COULDNT EVEN LIFT MY LEGS TO GET IN THE SHOWER, (walked

when i could with a walker) ITS PROBALY 3-4 INS OF GROUND.. AND TAKING

PREDISONE once a month FOR A VERY LONG TIME I HAD TO BREAK DOWN AND GO BACK TO

SAME GUY...(lack of ra doctors here)HE REALIZED HOW BAD I DID HAVE IT AND

HOW DISABLED ID BECOME NOW IM ON HUMIRA AND METHOTREXATE THE SWELLING IS AT

BAY BUT OMG DOES THE PAIN EVER EASE UP? I CRY EVERY NIGHT ITS JUST NOT IN

JOINTS BUT MY LEGS ACHE ALL OVER(CALFS AND TOP LEGS EXSPECIALLY) I ALSO GET

HUGE BRUISES I DONT KNOW HOW I GOT? IM ON VICODIN A STRONG FORM BUT IT

DOESNT ALWAYS HELP..DOES ANYONE ELSE GET THESE TERRIBLE PAINS IN ANY OTHER

PARTS

OF THEIR BODIES BESIDES THE JOINTS? HOW ABOUT BRUSISES? I KNOW LOSING

WEIGHT WILL HELP BELEIVE ME I TRIED BUT HOW DO YOU LOSE WEIGHT WHEN JUST

WALKING KILLS YOU? MY DOC IS TALL AND SKINNY IM SURE NEVER HAD A WEIGHT PROB.IN

HIS LIFE IT JUST FLOORS ME HOW MEAN PEOPLE CAN BE...SORRY SO LONG WINDED

JUST FELT GOOD TO LET GO THANK-YOU HAGD DEBBIE

[Guest guest]

There's a lot of issues to RA with on the surface seem unrelated to our primary

issue but are the direct result of it because of the amount of medications we

have to take, the fact that we cannot exercise even like people who do not

normally excerise, plus some things we cause ourselves because we cannot do

regular things. In other words, RA is a nightmare.

Stan

Florence Or, windy.

Sent: Monday, August 17, 2009 1:55:16 PM GMT -06:00 US/Canada Central

Subject: [ ] HELL TO ALL

HI MY NAME IS DEBBIE  I READ YOU GUYS POSTS ALOT AND ALWAYS THOUGHT ID  LIKE

TO BE ABLE TO HAVE SOMEONE TO TALK TO ALSO...ALTHOUGH I WAS ONLY DIAGNOSED WITH

RA IN FEB OF 08 I KNOW IVE HAD IT MUCH LONGER(BLOOD TESTS WHERE OFF THE WALL)

THE FIRST TIME I WENT TO AN RA DOC HE TOLD ME I WAS FAT DEPRESSED HAD FIBRO AND

NEEDED TO GO TO SEE JENNY CRAIG...I WAS DEVASTED HOW COULD A PERSON BE SO CRUEL

I CRIED AND SUFFERED FOR YEARS..FINALLY AFTER A YEAR OF BEING BEDRIDDEN..I

COULDNT EVEN LIFT MY LEGS TO GET IN THE SHOWER,  (walked when i could with a

walker) ITS PROBALY 3-4 INS OF GROUND.. AND TAKING PREDISONE once a month FOR A

VERY LONG TIME I HAD TO BREAK DOWN AND GO BACK TO SAME GUY...(lack of ra doctors

here)HE REALIZED HOW BAD I DID HAVE IT AND HOW DISABLED ID BECOME NOW IM ON

HUMIRA AND METHOTREXATE THE SWELLING IS AT BAY BUT OMG DOES THE PAIN EVER EASE

UP? I CRY EVERY NIGHT ITS JUST  NOT IN JOINTS BUT MY LEGS ACHE ALL OVER(CALFS

AND TOP LEGS EXSPECIALLY) I ALSO GET HUGE BRUISES I DONT KNOW HOW I GOT? IM ON

VICODIN A STRONG FORM BUT IT DOESNT ALWAYS HELP..DOES ANYONE ELSE GET THESE

TERRIBLE PAINS IN ANY OTHER PARTS OF THEIR BODIES BESIDES THE JOINTS? HOW ABOUT

BRUSISES? I KNOW LOSING WEIGHT WILL HELP BELEIVE ME I TRIED BUT HOW DO YOU LOSE

WEIGHT WHEN JUST WALKING KILLS YOU? MY DOC IS TALL AND SKINNY IM SURE NEVER HAD

A WEIGHT PROB.IN HIS LIFE IT JUST FLOORS ME HOW MEAN PEOPLE CAN BE...SORRY SO

LONG WINDED JUST FELT GOOD TO LET GO  THANK-YOU HAGD   DEBBIE

[Guest guest]

i'm ann i know how you feel.in the beginning i felt the same way

that was 24 years ago.every part of my body hurt i cried to sleep at night

when i could sleep but i had to kids  one 3 and one 6 months. i had to pull it

togther.

i found the right doctor.he kept trying different drugs till i found gold pills

they put my ra in a remission for 9 years.i still had flare ups,i went back to

work

then it started all over again.i was put on enbrel that helped for another 7 to

8 years.

then other drugs were used.predisone for one.i have been on this

for years.from 20 mg down to 8 mg now.this is causes bruising.try to look for a

new

doctor.i do go to the gym. my doctor says take it easy.i swim  3 times a week

my doctor tells me to watch my weight,i try to eat healthy.i'm not working

any more on disability for the last two years.don't give up  fighting then ra

won.

i do take 6 pain pills a day.will be starting orencia soon. i put it off long

enough.

fell better,we all been there.

ann.

From: stanpfister@... <stanpfister@...>

Subject: Re: [ ] HELL TO ALL

Date: Friday, August 21, 2009, 11:54 PM

 

There's a lot of issues to RA with on the surface seem unrelated to our primary

issue but are the direct result of it because of the amount of medications we

have to take, the fact that we cannot exercise even like people who do not

normally excerise, plus some things we cause ourselves because we cannot do

regular things. In other words, RA is a nightmare.

Stan

Florence Or, windy.

Sent: Monday, August 17, 2009 1:55:16 PM GMT -06:00 US/Canada Central

Subject: [ ] HELL TO ALL

HI MY NAME IS DEBBIE  I READ YOU GUYS POSTS ALOT AND ALWAYS THOUGHT ID  LIKE TO

BE ABLE TO HAVE SOMEONE TO TALK TO ALSO...ALTHOUGH I WAS ONLY DIAGNOSED WITH RA

IN FEB OF 08 I KNOW IVE HAD IT MUCH LONGER(BLOOD TESTS WHERE OFF THE WALL) THE

FIRST TIME I WENT TO AN RA DOC HE TOLD ME I WAS FAT DEPRESSED HAD FIBRO AND

NEEDED TO GO TO SEE JENNY CRAIG...I WAS DEVASTED HOW COULD A PERSON BE SO CRUEL

I CRIED AND SUFFERED FOR YEARS..FINALLY AFTER A YEAR OF BEING BEDRIDDEN..I

COULDNT EVEN LIFT MY LEGS TO GET IN THE SHOWER,  (walked when i could with a

walker) ITS PROBALY 3-4 INS OF GROUND.. AND TAKING PREDISONE once a month FOR A

VERY LONG TIME I HAD TO BREAK DOWN AND GO BACK TO SAME GUY...(lack of ra doctors

here)HE REALIZED HOW BAD I DID HAVE IT AND HOW DISABLED ID BECOME NOW IM ON

HUMIRA AND METHOTREXATE THE SWELLING IS AT BAY BUT OMG DOES THE PAIN EVER EASE

UP? I CRY EVERY NIGHT ITS JUST  NOT IN JOINTS BUT MY LEGS ACHE ALL OVER(CALFS

AND TOP LEGS

EXSPECIALLY) I ALSO GET HUGE BRUISES I DONT KNOW HOW I GOT? IM ON VICODIN A

STRONG FORM BUT IT DOESNT ALWAYS HELP..DOES ANYONE ELSE GET THESE TERRIBLE PAINS

IN ANY OTHER PARTS OF THEIR BODIES BESIDES THE JOINTS? HOW ABOUT BRUSISES? I

KNOW LOSING WEIGHT WILL HELP BELEIVE ME I TRIED BUT HOW DO YOU LOSE WEIGHT WHEN

JUST WALKING KILLS YOU? MY DOC IS TALL AND SKINNY IM SURE NEVER HAD A WEIGHT

PROB.IN HIS LIFE IT JUST FLOORS ME HOW MEAN PEOPLE CAN BE...SORRY SO LONG WINDED

JUST FELT GOOD TO LET GO  THANK-YOU HAGD   DEBBIE

[Guest guest]

Irish,

I was just reading all the recent posts, when I came across yours... " if I

don't move, I won't move " phrase made me chuckle to myself, as I always tell

people that I'm a shark...

Most sharks extract oxygen using ram ventilation , passing water over the gills

by moving forward(turning water into oxygen). Some highly-active sharks depend

on ram ventilation almost entirely, which means they stay in motion most of the

time! Translation--If some sharks don't move almost continuously, they'll die!

I feel this way often... I don't want to move! But I have to move, cause if I

don't, I will never move and I'm guessing that will be the start of my death.

Plain and simple!

Thanks for sharing your moving theory...

Bonnie

>

> Debbie I sympathize with you. Having RA is a dabilatating illness that I

> would not wish on my stepmother...excuse me, my worse enemy. I have cried and

> complained to God and finally accepted that I am disabled due to this

> illness and there is no cure yet, but have to take it with a grain of salt

and

> not let it wear me out. I do everything in moderation and loss the weight

> to help with joint pain and gained 55 lbs. back causing my flare ups to be

> more often envloving my lower back. I have had numerous surgeries and gone

> through chemo therapy even to lower my SED rate. I catch infections easily

> and cause my body does not fight off infections like it is suppose to. I

> have sheltered myself from my family and taken myself out of all family

> gatherings and am a home body mostly. On top of the RA I have another ailment

> that I am on meds for and dealing with daily. With excruciating pain from the

> RA. my motto is " if I don't move, I won't move " . I hope things get relief

> for you doon.

>

> Irish

>

>

> In a message dated 8/17/2009 2:03:15 P.M. Central Daylight Time,

> lilacs599@... writes:

>

>

>

>

> HI MY NAME IS DEBBIE I READ YOU GUYS POSTS ALOT AND ALWAYS THOUGHT ID LIKE

> TO BE ABLE TO HAVE SOMEONE TO TALK TO ALSO...ALTHOUGH I WAS ONLY DIAGNOSED

> WITH RA IN FEB OF 08 I KNOW IVE HAD IT MUCH LONGER(BLOOD TESTS WHERE OFF

> THE WALL) THE FIRST TIME I WENT TO AN RA DOC HE TOLD ME I WAS FAT DEPRESSED

> HAD FIBRO AND NEEDED TO GO TO SEE JENNY CRAIG...I WAS DEVASTED HOW COULD A

> PERSON BE SO CRUEL I CRIED AND SUFFERED FOR YEARS..FINALLY AFTER A YEAR OF

> BEING BEDRIDDEN..I COULDNT EVEN LIFT MY LEGS TO GET IN THE SHOWER, (walked

> when i could with a walker) ITS PROBALY 3-4 INS OF GROUND.. AND TAKING

> PREDISONE once a month FOR A VERY LONG TIME I HAD TO BREAK DOWN AND GO BACK

TO

> SAME GUY...(lack of ra doctors here)HE REALIZED HOW BAD I DID HAVE IT AND

> HOW DISABLED ID BECOME NOW IM ON HUMIRA AND METHOTREXATE THE SWELLING IS AT

> BAY BUT OMG DOES THE PAIN EVER EASE UP? I CRY EVERY NIGHT ITS JUST NOT IN

> JOINTS BUT MY LEGS ACHE ALL OVER(CALFS AND TOP LEGS EXSPECIALLY) I ALSO GET

> HUGE BRUISES I DONT KNOW HOW I GOT? IM ON VICODIN A STRONG FORM BUT IT

> DOESNT ALWAYS HELP..DOES ANYONE ELSE GET THESE TERRIBLE PAINS IN ANY OTHER

PARTS

> OF THEIR BODIES BESIDES THE JOINTS? HOW ABOUT BRUSISES? I KNOW LOSING

> WEIGHT WILL HELP BELEIVE ME I TRIED BUT HOW DO YOU LOSE WEIGHT WHEN JUST

> WALKING KILLS YOU? MY DOC IS TALL AND SKINNY IM SURE NEVER HAD A WEIGHT

PROB.IN

> HIS LIFE IT JUST FLOORS ME HOW MEAN PEOPLE CAN BE...SORRY SO LONG WINDED

> JUST FELT GOOD TO LET GO THANK-YOU HAGD DEBBIE

>

>

>

>

>

>

>

>