Re: Hello from your Zebra friend!

[Guest guest]

Judi!!!

So glad to see you posting, we really need you here. Hope you stay

awhile, and let others get to know what a great woman you are.

Hugs,

Tawny

>

> Some of you may remember me, many of you I have never met. I found

this group about 10 years ago when I didn't know what was wrong with me.

I was later diagnosed with fibromyalgia and finally with Dercum's

Disease (adiposis dolorosa.) This past year they have added

lymphedema/lipedema to the list.

>

> Two years ago we moved from Indiana to Georgia to be close to our

daughter, newly remarried (for the 3rd time!) and with 5 kids. Georgia

didn't work out, too hot, too buggy, and too much time babysitting. My

husband is 72 and has Parkinson's, so I am his caregiver in addition to

dealing with my own challenges. So we moved back to northern Illinois,

now living in a wonderful apartment complex with free golf, a fitness

center, and a pool. We've both adjusted to our health shortfalls with

new interests, and serving our church.

>

> I just wanted to check in and say hi to all my old friends and some

new ones, and if you have never heard of Dercum's, check it out on the

web. It's considered a rare disease, but maybe more under-diagnosed or

misdiagnosed than rare.

>

> Judi the Zebra

>

[Guest guest]

So nice to hear from you, Judi!

Not an MD

On Sat, Aug 1, 2009 at 2:19 PM, Judi<nonny46@...> wrote:

> Some of you may remember me, many of you I have never met.  I found this group

about 10 years ago when I didn't know what was wrong with me.  I was later

diagnosed with fibromyalgia and finally with Dercum's Disease (adiposis

dolorosa.)  This past year they have added lymphedema/lipedema to the list.

>

> Two years ago we moved from Indiana to Georgia to be close to our daughter,

newly remarried (for the 3rd time!) and with 5 kids.  Georgia didn't work out,

too hot, too buggy, and too much time babysitting.  My husband is 72 and has

Parkinson's, so I am his caregiver in addition to dealing with my own

challenges.  So we moved back to northern Illinois, now living in a wonderful

apartment complex with free golf, a fitness center, and a pool.  We've both

adjusted to our health shortfalls with new interests, and serving our church.

>

> I just wanted to check in and say hi to all my old friends and some new ones,

and if you have never heard of Dercum's, check it out on the web.  It's

considered a rare disease, but maybe more under-diagnosed or misdiagnosed than

rare.

>

> Judi the Zebra

[Guest guest]

Yes, Judi, it is indeed nice to get an update from you. It sounds as

though you're leading a fulfilling life.

Sue

On Aug 5, 2009, at 8:52 PM, wrote:

> So nice to hear from you, Judi!

>