Re: ASAP= American Syringomyelia Alliance Project

July 29, 2001

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rican Syringomyelia Alliance Project</A>

About 13 yrs ago a wonderful gal named Barbara White started a group of

support, research and medical information for both Arnold-Chiari and

Syringomyelia. Up until that time, there was virtually no information

available ANYWHERE for either. Today, ASAP has over 4000 members, along with

a team of neurosurgeon and other professionals on their board. Each year,

ASAP sponsors a convention in which members and leading neurosurgeons all

over the world, specializing in Arnold Chiari or Syringomyelia join together

to share current information and strides made in the treatment of these

conditions. This past week it was held in Los Angeles. Check out their

website (there is also a mailing list for the group):

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