Re: Bone aches

[Guest guest]

This is the first I have heard someone referring to something I've been

wondering about: bone aches. I have CFS/FMS but lately my bones have been

hurting and I can't figure out where that comes from. I know it's different

from joint aches, but especially on my upper back shoulder blade area the bones

hurt. I also have alot of muscle aches (again, not joint pain) and tension.

Like all of us, I am tinkering with the doses of magnesium, potassium, vit E,

calcium, Vitamin D, etc to see what works and nothing seems to be specific.

in La Selva Beach CA

53-1/2 years young, sick since childhood with several crashes, now doing better

on Recup since Jan 13, 2005, on food allergy diet and antivirals (Valtrex) since

June 2003

Help. Tijuana doc -- treatment with ozonated

blood, IV silver and equimmune

My symptoms are similar to early years CFIDS stuff, headaches, bone aches,

bronchial

condition, headaches and profound weakness/tiredness with excessive sleeping.

My slide

shows no viruses are left visible. I'm awaiting a new NK cell count from my

regular doc.

Aw oh, where to go from here? Any feedback greatly appreciated. Deb

[Guest guest]

hi i sometimes get bone aches when i take my higher dose vitamin d but

usually its only my right arm and elbow which i injured in a fall last

summer....tea;l

> [Original Message]

> From: Schmidt <schmidtmba@...>

> < >

> Date: 4/22/2006 11:08:02 PM

> Subject: Re: Bone Aches

>

> This is the first I have heard someone referring to something I've been

wondering about: bone aches. I have CFS/FMS but lately my bones have been

hurting and I can't figure out where that comes from. I know it's

different from joint aches, but especially on my upper back shoulder blade

area the bones hurt. I also have alot of muscle aches (again, not joint

pain) and tension. Like all of us, I am tinkering with the doses of

magnesium, potassium, vit E, calcium, Vitamin D, etc to see what works and

nothing seems to be specific.

>

> in La Selva Beach CA

> 53-1/2 years young, sick since childhood with several crashes, now doing

better on Recup since Jan 13, 2005, on food allergy diet and antivirals

(Valtrex) since June 2003

> Help. Tijuana doc -- treatment with

ozonated blood, IV silver and equimmune

>

>

> My symptoms are similar to early years CFIDS stuff, headaches, bone

aches, bronchial

> condition, headaches and profound weakness/tiredness with excessive

sleeping. My slide

> shows no viruses are left visible. I'm awaiting a new NK cell count

from my regular doc.

>

> Aw oh, where to go from here? Any feedback greatly appreciated. Deb

>

>

>

[Guest guest]

Hello,

Has anyone with bone aches tested positive for Parvo B 19?

>

>This is the first I have heard someone referring to something I've been

>wondering about: bone aches. I have CFS/FMS but lately my bones have been

>hurting and I can't figure out where that comes from. I know it's

>different from joint aches, but especially on my upper back shoulder blade

>area the bones hurt. I also have alot of muscle aches (again, not joint

>pain) and tension. Like all of us, I am tinkering with the doses of

>magnesium, potassium, vit E, calcium, Vitamin D, etc to see what works and

>nothing seems to be specific.

>

> in La Selva Beach CA

>53-1/2 years young, sick since childhood with several crashes, now doing

>better on Recup since Jan 13, 2005, on food allergy diet and antivirals

>(Valtrex) since June 2003

> Help. Tijuana doc -- treatment with

>ozonated blood, IV silver and equimmune

>

>

> My symptoms are similar to early years CFIDS stuff, headaches, bone

>aches, bronchial

> condition, headaches and profound weakness/tiredness with excessive

>sleeping. My slide

> shows no viruses are left visible. I'm awaiting a new NK cell count from

>my regular doc.

>

> Aw oh, where to go from here? Any feedback greatly appreciated. Deb

>

>

>

[Guest guest]

Me too.

I also have been wondering the reason.Aches change intensity from time to

time but i have not found out what this is related to. I was thinking it

could be osteoporosis but I am not sure.

Best wishes.

Nil

Re: Bone Aches

> This is the first I have heard someone referring to something I've been

> wondering about: bone aches. I have CFS/FMS but lately my bones have been

> hurting and I can't figure out where that comes from. I know it's

> different from joint aches, but especially on my upper back shoulder blade

> area the bones hurt. I also have alot of muscle aches (again, not joint

> pain) and tension. Like all of us, I am tinkering with the doses of

> magnesium, potassium, vit E, calcium, Vitamin D, etc to see what works and

> nothing seems to be specific.

>

>

[Guest guest]

Hi Les and Nil,

I wasn't going to respond to this because I have what I would not

term aches, but outright severe pain, and have had it for years. But

I also have spine problems that other people here on this list don't

have, so I was going to keep my mouth shut.

I started having really severe back pain in the 90s. When I was

around 50, I saw two rheumies who measured my height. To that point,

I'd lost about 1 3/4 inches in height, and they told me that that

much of a loss in height was atttributable to nothing but

osteoporosis. Even if I'd ruptured every disk in my spine, they

individually measure only about 1/16 inch, so a loss of this much

height is something else, and that something else is osteoporosis.

The pain hasn't stopped and this a great part of why I'm upping my

intake of vitamin D3. I'm 59 now, and lord knows how much more

height I've lost in the last 9 years. By the time my mother died,

however, she had lost more than 6 inches in height, and I know I'm

looking down the same barrel of the same gun that she did.

What keeps me lingering on this question and this post is that I have

recently started having more pain in the upper part of the

spine...between where the shoulder blades are.

I relate my increased pain levels directly to the weather changes. I

don't know if that's " barometer " or something else, but it's the

worst in the fall, and now spring is coming in a close second.

I notice, too, that whereas a few years ago I would get the worst

pain in October, a couple of years after that, it started in

September, and now in the last couple of years, in addition to having

it in the spring, I have it starting (again) in August.

I don't imagine this helps much, but believe me you have my empathy

and support.

the one in Champaign IL

>

> Me too.

> I also have been wondering the reason.Aches change intensity from

time to

> time but i have not found out what this is related to. I was

thinking it

> could be osteoporosis but I am not sure.

> Best wishes.

> Nil

> Re: Bone Aches

>

>

> > This is the first I have heard someone referring to something

I've been

> > wondering about: bone aches. I have CFS/FMS but lately my bones

have been

> > hurting and I can't figure out where that comes from. I know

it's

> > different from joint aches, but especially on my upper back

shoulder blade

> > area the bones hurt. I also have alot of muscle aches (again,

not joint

> > pain) and tension. Like all of us, I am tinkering with the doses

of

> > magnesium, potassium, vit E, calcium, Vitamin D, etc to see what

works and

> > nothing seems to be specific.

> >

> >

>

[Guest guest]

probably the heavy metals .

Reagrds

CS

[Guest guest]

Hi ,

Well, I've never understood " nerve pain " either, so maybe someone can

explain that to me. I thought all pain was more or less " nerve pain "

since it's all transmitted by or through the nerves.

How do I know it's bones that are causing my pain? Actually, I'm

assuming it's lack of bone that is causing my pain...collapsing of

bone or cartilage or other tissue on top of itself and compressing

nerves...but I know what you mean. I assume that it is " bone, "

because I have ruled out other things. I know the kinds of spine

injuries I've had and " this " is not from them.

I know my achey type pain in the region of the shoulder blades is

**not** gallbladder pain because I have had both and " this " is

different.

I don't have normal skin sensation from nerve damage, so I don't even

register right when a doctor looks for my trigger points between the

shoulder blades. The last time a doctor tried to locate the trigger

points I felt nothing very out of the usual, but I insisted he

examine me bare-skinned because I knew there was something either on

my skin in that area or under the skin. Something was there that was

driving me wild with incessant itching. Astonished, he examined me

and said there was nothing there at all, not even a blemish or

anything healing. Nothing.

When I am at my most painful with whatever this pain is, " bone pain "

or not, I'm not going near anyone else who touches me for relaxation

or massage or anything else, nor am I contriving things to do with

tennis balls. (Although I appreciate the suggestion and will keep it

in mind for " lesser events. " )

The kind of pain I'm talking about is something that riddles you from

top to bottom, end to end. It's throughout and unrelenting. It is

so pervasive, it causes nausea from back to front, clear through the

middle. There's nothing that relieves it, that I've found, unless

it's a strong narcotic and the passage of time. I've had acute

gallbladder pain, ruptured disk pain, childbirth pain, all kinds of

pain. This is not in the same category of anything I've ever felt

before. If someone asked me to give it a grade on a 1-10 scale, I'd

say 13 or 14 and not be exaggerating.

But this is why I wasn't going to respond to this post. I wasn't

sure that was talking about truly " achey " things or this kind

of pain.

> > What keeps me lingering on this question and this post is that I

have

> > recently started having more pain in the upper part of the

> > spine...between where the shoulder blades are.

> >

> > I relate my increased pain levels directly to the weather

changes. I

> > don't know if that's " barometer " or something else, but it's the

> > worst in the fall, and now spring is coming in a close second.

> >

> > > ----- Original Message -----

> > > From: " Schmidt " <schmidtmba@>

> > >

> > >

> > > > This is the first I have heard someone referring to something

> > I've been

> > > > wondering about: bone aches. I have CFS/FMS but lately my

bones

> > have been

> > > > hurting and I can't figure out where that comes from. I know

> > it's

> > > > different from joint aches, but especially on my upper back

> > shoulder blade

> > > > area the bones hurt.

> >

>

>

> --

>

>

>

> el (andreafrankel at sbcglobal dot net)

>

> " wake now! Discover that YOU are the song that the morning

brings... "

>

[Guest guest]

Hi CS,

I have trouble figuring out what someone is saying when there is

nothing left of the previous post to refer to.

Can you please explain what you are responding to?

>

>

> probably the heavy metals .

>

>

> Reagrds

> CS

>

[Guest guest]

In a message dated 29/04/2006 20:41:30 GMT Daylight Time,

peggysues57@... writes:

Is it just me or does anyone else have bone ache. I sometime think it

is due to the weather but I'm not suer. thxs Peg

HI

This post caught my eye because my son, who is nearly 20, gets bone ache

occasionally and it was so bad in his shoulder the other night that he could not

sleep. I am thinking it is a little old for growing pains???

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

Hello my name is Michele and I suffer from Hypothyrodism...I have since I

was 2 years old and I am 33 now. Right around while I was 21 I started with bone

pains or joint pain of my left knee and now it afflicts my fingers. You

might want to " google "

Joint and/or bone pains " AND " Hypothyrodism.

I hope this was in someway helpful!

Be Blessed!

Michele

[Guest guest]

In a message dated 29/04/2006 22:10:47 GMT Daylight Time,

peggysues57@... writes:

Thanks for writing I'm 48 I think I am way to old for growning pains. Peg

Hi

I didnt mean to suggest you had growing pains, lol

What I was thinking was maybe my son if hypoT also and that this is what the

pains really are becase, as I mentioned, he is nearly 20 and I don't think

they on that long.

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

In a message dated 29/04/2006 22:16:01 GMT Daylight Time,

BordersGirl2004@... writes:

Hello my name is Michele and I suffer from Hypothyrodism

Thanks Michele, than is v. helpful indeed. I think I will get a full thyroid

panel done for my son, just in case.

Is your case connected with arthritis at all? You poor thing, you have been

through the mill.

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

Thanks for writing I'm 48 I think I am way to old for growning pains. Peg

hepaction@... wrote:

In a message dated 29/04/2006 20:41:30 GMT Daylight Time,

peggysues57@... writes:

Is it just me or does anyone else have bone ache. I sometime think it

is due to the weather but I'm not suer. thxs Peg

HI

This post caught my eye because my son, who is nearly 20, gets bone ache

occasionally and it was so bad in his shoulder the other night that he could not

sleep. I am thinking it is a little old for growing pains???

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

In a message dated 30/04/2006 18:23:32 GMT Daylight Time,

peggysues57@... writes:

.. Bone pain was the first and most painful symptom.

Hi

Very interesting........ How did you get diagnosed in the end?

I suspect hypoT in my son's father and grandfather, their history and

symptoms fit anyway and then was I was diagnosed last year it gave me pause for

thought.

Then the bone pain issue came up again for my son the other night. And got

me thinking again that I should get a full thyroid panel done for him even if

only to establish some kind of baseline.

It is horrible the way this disease ruins lives and many have gone to their

grave I am sure of it not knowing what was the matter.

All that suffering, it is so very wrong I am sure you will agree.

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

In a message dated 30/04/2006 19:06:02 GMT Daylight Time,

peggysues57@... writes:

they used in the old say before synthetic stuff. I did not find out until

recently that the med has to be increased to get full potency. I had been

taking only 15 mg of Armour Thyroid for 4 years. That is hardly any dose at

all.

Now I am on 60 mg and I feel alot better.

OMG - 15 mg Armour for 4 years. Yikes! Yes it is meant to be increased,

fairly quickly to begin with and also it is important to treat the adrenals

first.

i AM ON 2 AND 3/4 GRAINS aRMOUR OOPS oops sorry at the moment and still have

not reached my optimum dose yet. My basal temp has gone up one degree

fahrenheit so that is something to be grateful for as I was utterly amazed to

find

it at 96.1 when I am the sort of person who does not feel the cold at all.

Still don;t understand how that works - something to do with a broken

theremostat but most hypoT people are the opposite I believe.

Do you think you have reached that 'sweet spot' now?

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

In a message dated 30/04/2006 20:26:29 GMT Daylight Time,

peggysues57@... writes:

Sorry my typing is terrilbe, I meant to spell sweat not swear. But I do do

that sometimes. LOL

me too! both.

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

In a message dated 30/04/2006 20:24:58 GMT Daylight Time,

peggysues57@... writes:

a wonderful doctor who is working with me on this. Do you have any problem

with having a metalic taste in your mouth?

Kind of, but then I have a longstanding problem with bleeding gums, so that

might be the cause for me.

Are you treating your adrenals?

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

Thanks for writing. I was in a freak accident 13 years ago, with a blunt blow

straight across my throat. It hurt for a few days otherwise I was ok. I never

dreamed it would be the cause of my hypothyroidism. In about 2000, I started

having many complaints and the doctor could not find anything wrong with me and

dx me with Fibromyalgia. I knew that was not right but what can you do. It took

me 3 years and tons of different med which did not help to find out my true dx.

Bone pain was the first and most painful symptom.

hepaction@... wrote:

In a message dated 29/04/2006 22:10:47 GMT Daylight Time,

peggysues57@... writes:

Thanks for writing I'm 48 I think I am way to old for growning pains. Peg

Hi

I didnt mean to suggest you had growing pains, lol

What I was thinking was maybe my son if hypoT also and that this is what the

pains really are becase, as I mentioned, he is nearly 20 and I don't think

they on that long.

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

I went to an hearbalist/massage therapist, who was also a Chiropractor. We

discussed my symptoms. He ran baseline thyroid tests on me. Which of course

came back normal and then also told be to take my basal temperature, under the

arm every morning before I got out of bed with a mercury thermometer for one

month and record it. I could not even get a normal temperature on any day. Then

he suggested I take the information to a doctor I trusted and see if he/she

would not start me on Amour Thyroid. Which is the med they used in the old say

before synthetic stuff. I did not find out until recently that the med has to be

increased to get full potency. I had been taking only 15 mg of Armour Thyroid

for 4 years. That is hardly any dose at all. Now I am on 60 mg and I feel alot

better.

hepaction@... wrote:

In a message dated 30/04/2006 18:23:32 GMT Daylight Time,

peggysues57@... writes:

.. Bone pain was the first and most painful symptom.

Hi

Very interesting........ How did you get diagnosed in the end?

I suspect hypoT in my son's father and grandfather, their history and

symptoms fit anyway and then was I was diagnosed last year it gave me pause for

thought.

Then the bone pain issue came up again for my son the other night. And got

me thinking again that I should get a full thyroid panel done for him even if

only to establish some kind of baseline.

It is horrible the way this disease ruins lives and many have gone to their

grave I am sure of it not knowing what was the matter.

All that suffering, it is so very wrong I am sure you will agree.

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

I'm like you I am rarely cold, and I swear easily, but I still think I have a

way to go yet. I'm going to increase my Armour gradually until I am 2 grains and

see how I feel. Lucky I have a wonderful doctor who is working with me on this.

Do you have any problem with having a metalic taste in your mouth?

hepaction@... wrote:

In a message dated 30/04/2006 19:06:02 GMT Daylight Time,

peggysues57@... writes:

they used in the old say before synthetic stuff. I did not find out until

recently that the med has to be increased to get full potency. I had been

taking only 15 mg of Armour Thyroid for 4 years. That is hardly any dose at

all.

Now I am on 60 mg and I feel alot better.

OMG - 15 mg Armour for 4 years. Yikes! Yes it is meant to be increased,

fairly quickly to begin with and also it is important to treat the adrenals

first.

i AM ON 2 AND 3/4 GRAINS aRMOUR OOPS oops sorry at the moment and still have

not reached my optimum dose yet. My basal temp has gone up one degree

fahrenheit so that is something to be grateful for as I was utterly amazed to

find

it at 96.1 when I am the sort of person who does not feel the cold at all.

Still don;t understand how that works - something to do with a broken

theremostat but most hypoT people are the opposite I believe.

Do you think you have reached that 'sweet spot' now?

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

Sorry my typing is terrilbe, I meant to spell sweat not swear. But I do do that

sometimes. LOL

hepaction@... wrote:

In a message dated 30/04/2006 19:06:02 GMT Daylight Time,

peggysues57@... writes:

they used in the old say before synthetic stuff. I did not find out until

recently that the med has to be increased to get full potency. I had been

taking only 15 mg of Armour Thyroid for 4 years. That is hardly any dose at

all.

Now I am on 60 mg and I feel alot better.

OMG - 15 mg Armour for 4 years. Yikes! Yes it is meant to be increased,

fairly quickly to begin with and also it is important to treat the adrenals

first.

i AM ON 2 AND 3/4 GRAINS aRMOUR OOPS oops sorry at the moment and still have

not reached my optimum dose yet. My basal temp has gone up one degree

fahrenheit so that is something to be grateful for as I was utterly amazed to

find

it at 96.1 when I am the sort of person who does not feel the cold at all.

Still don;t understand how that works - something to do with a broken

theremostat but most hypoT people are the opposite I believe.

Do you think you have reached that 'sweet spot' now?

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

I have not had them tested yet and at this time not treating. I was wondering

about that. What should I be looking for?

Re: Bone aches

In a message dated 30/04/2006 20:24:58 GMT Daylight Time,

peggysues57@... writes:

a wonderful doctor who is working with me on this. Do you have any problem

with having a metalic taste in your mouth?

Kind of, but then I have a longstanding problem with bleeding gums, so that

might be the cause for me.

Are you treating your adrenals?

Mo

HEPACTION Counselling & Healing Services

http://www.hepactionuk.blogspot.com/

[Guest guest]

60mg is an extremely small dose too. Look at

http://www.stopthethyroidmadness.com for mistakes made on Armour.

Gracia

>I went to an hearbalist/massage therapist, who was also a Chiropractor. We

>discussed my symptoms. He ran baseline thyroid tests on me. Which of

>course came back normal and then also told be to take my basal temperature,

>under the arm every morning before I got out of bed with a mercury

>thermometer for one month and record it. I could not even get a normal

>temperature on any day. Then he suggested I take the information to a

>doctor I trusted and see if he/she would not start me on Amour Thyroid.

>Which is the med they used in the old say before synthetic stuff. I did not

>find out until recently that the med has to be increased to get full

>potency. I had been taking only 15 mg of Armour Thyroid for 4 years. That

>is hardly any dose at all. Now I am on 60 mg and I feel alot better.

>

>

--

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.385 / Virus Database: 268.5.1/327 - Release Date: 4/28/2006

[Guest guest]

There is no such thing as growing pains...it should never hurt to grow.

A friend of mine has a son who was always complaining as a child of

bone pain, and joint pain...and the doctor told her that he was growing

exceptionally fast, and it was " growing pain " ...he would be fine.

Think about that for a minute...growth is so gradual, and so normal..

What could possibly make it hurt????

Something was obviously not right, and in high gear in his body.

Anyway, her son died last year at 19 of bone marrow cancer.

His oncologist was extremely disappointed in his pediatrician for

telling her this for so many years...he could have been helped

if he had the proper diagnosis when he was a child.

He told her ALL pain is inflammatory...and should be taken

seriously...but that bones do not hurt..they dont have nerve

endings..so the pain occurs in the muscle or the surrounding

tissue as a result of something that is occurring in the blood.

[Guest guest]

Elaine,

I suffered with bone aches and nerve pain in my legs and hands. I was rx'd

prednisone, it worked, I was so bad that I could not walk across the street,

and I could! But low dose pred caused cataracts in my eyes, and eventually

osteoporosis whick caused more bone-pain. My regular Dr. had a bone density

done as soon as he found out I was on pred. I then suffered a broken tibia in

two places and was in a cast so long that had a stress fracture in the other

leg. I had a second bone density and it showed osteoporosis, before I got

the results I tripped and fell and broke my femur (it literally twisted and

shattered) This break put me in the hospital and rehab for surgery and 6 weeks.

This leg has been broken (walking with internal rods) for 15 months and has

not changed in the last 6 months. My osteo Dr. said that once you start on

pred, it demineralizes your bone for a long time after you stop taking it.

Please have a bone density test and ask if there is anything else that can

help besides pred? I take neurontin and motrin and lortabs for the pain.

Carol

@>~~~~

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