Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 At 10.48 17/03/03, you wrote: >Mark, I found the link on diet and RA very well written and interesting. I >feel I do better without milk sugar or bread....however, my gluten tolerance >test just came back as being very tolerant of glutan. This article points >out (I believe) there are different tests for gluten tolerance. I find it >additonally interesting that children with autism are having great results >by eliminating gluten from their diet. thanks, kathy I believe that most people's problem with bread is not gluten intollerance (though this seems to be much more common than previously thought) but simply the fact that it is a very rapidly absorbed refined carbohydrate, thus causing the same problems as sugar. I just read an article in the health magazine of our daily newspaper (Italy) which claims that the main culprit for acne is not chocolate after all (an old prejudice here) but probably the high level of rapidly absorbed carbohydrates in the typical teenage diet. In terms of rapidity of absorption, white durum wheat pasta (high in gluten by the way, which is a protein) is actually much better than brown rice. Crackers are one of the worst. Surprisingly, my " Overcoming Arthritis " book lists high-fat ice cream as one of the slowest-absorbing carb sources. Another advantage to cutting way back on carbs is that you are forced to nourish yourself rather than just fill up. This simple step may be what turned my situation around (I'm on no treatment for my PA)....but I am having a problem keeping the weight on! I'm afraid that if I cut out animal protein and milk products that I'd blow away with the next wind. (After a trial without milk products I went down to 98 lbs. I now regularly snack on homemade yogurt.) Unlike when you are slightly overweight, looking slightly underweight seems to invite constant comments. For this reason, though I feel good, I would not mind adding a pound or two. ( Age 42, small frame, 5' 2 " hovering at 100 lbs.) Any weight-gaining suggestions? Maureen in Italy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 For this reason, though I feel good, I would > not mind adding a pound or two. ( Age 42, small frame, 5' 2 " hovering at > 100 lbs.) > > Any weight-gaining suggestions? > > Maureen in Italy My wife recently came back from a 2 week trip to Italy and remarked at how you just don't see the fat people there that you do in the US (just go to any buffett here in the States and you'll understand). So rejoice at those 100 lbs on a 5'2 " frame! Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Maureen, My frame is like your frame. Also, just several years ago, I was losing weight and looked very unhealthy. By adding the following combination twice daily, I gradually gained back the missing weight and began looking and feeling really well. I am pasting an excerpt from a paper I wrote for Cliff Beckwith, moderator of the Flaxseed Oil Support Group and 10-year survivor of Class IV prostate cancer. bg begins: " I have converted to Dr. Budwig's formula of 1/4 cup cottage cheese (or 1/2 cup health store yogurt) mixed thoroughly with 1 T. flax oil, then add 1/2 chopped apple, blueberries, or other fruit, and 1 T. ground flax, a bit of vanilla flavoring and a Sweet 'n Low packet (not aspartame). It really is very tasty. However, for cancer or other very serious condition, I understand the amounts should be doubled. (1 tablespoon oil for every 100 lbs. of bodyweight.) I also take liberal amounts of a powdered probiotic stirred in -- acidophilus/bifidus -- every day and feel it is also very important to keep the lining of my intestines in condition to absorb the food that is consumed. Digestive enzymes to aid in digestion are also a part of my daily diet. " My desire in sharing this story is that the reader will come away realizing how important it is, not only to consume the raw material that our bodies need for good health, but that we must make sure that these substances are absorbed. If our guts are overgrown with Candida, H. Pylori, and other organisms, these set us up for Cancer and other diseases. We must get the junk food, sugar, etc. out of our diets. " I have grave concerns over the health of our children and our grandchildren in today's culture with their addiction to these terrible foods. Dr. Ewald, author of " Plaque Time " featured on the cover of Time or Newsweek (?) last fall, said in an interview that it is his belief (and has been proved already in numerous illnesses like some forms of Cancer, Diabetes, et al)that stealth organisms are involved in all degenerative disease. So, it would behoove us to find ways to " detox " our bodies on an ongoing basis. " Cliff has given me information showing the flax capsules do not have the same effect as the oil. My appreciation to you, Cliff, for making me aware of this site. Hope some of this information will be helpful to you. " [end of excerpt] Hope this will be helpful to you. bg > >Mark, I found the link on diet and RA very well written and interesting. I > >feel I do better without milk sugar or bread....however, my gluten tolerance > >test just came back as being very tolerant of glutan. This article points > >out (I believe) there are different tests for gluten tolerance. I find it > >additonally interesting that children with autism are having great results > >by eliminating gluten from their diet. thanks, kathy > > I believe that most people's problem with bread is not gluten intollerance > (though this seems to be much more common than previously thought) but > simply the fact that it is a very rapidly absorbed refined carbohydrate, > thus causing the same problems as sugar. > > I just read an article in the health magazine of our daily newspaper > (Italy) which claims that the main culprit for acne is not chocolate after > all (an old prejudice here) but probably the high level of rapidly absorbed > carbohydrates in the typical teenage diet. > > In terms of rapidity of absorption, white durum wheat pasta (high in gluten > by the way, which is a protein) is actually much better than brown rice. > Crackers are one of the worst. Surprisingly, my " Overcoming Arthritis " book > lists high-fat ice cream as one of the slowest-absorbing carb sources. > > Another advantage to cutting way back on carbs is that you are forced to > nourish yourself rather than just fill up. This simple step may be what > turned my situation around (I'm on no treatment for my PA)....but I am > having a problem keeping the weight on! I'm afraid that if I cut out > animal protein and milk products that I'd blow away with the next wind. > (After a trial without milk products I went down to 98 lbs. I now > regularly snack on homemade yogurt.) > Unlike when you are slightly overweight, looking slightly underweight seems > to invite constant comments. For this reason, though I feel good, I would > not mind adding a pound or two. ( Age 42, small frame, 5' 2 " hovering at > 100 lbs.) > > Any weight-gaining suggestions? > > Maureen in Italy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 Sue, Many feel that diet influences RA, including myself, I have RA. i just wish I knew exactly what to stop eating, etc. Unfortunately we will never have enough of the right information in our lifetime for this to be beneficial to most of us. The reason is simple, if all of us knew what and what not to eat to rid RA, that would be to big of a slam on the drug industry, and they of course would find a way with their power and money to keep this " RA cure " information from the general public. As the old saying goes, Doctors dont want to cure people, just find a way to keep us coming back. They dont want to be out of a job in more than we do. > Inflammation Nation : The First Clinically Proven Eating Plan to End > Our Nation's Secret Epidemic > by Floyd H. Chilton, Tucker > > This is a book just published in 2005 that claims that diet influences > inflammation and is important in several diseases, including RA and > diabetes, both of which I have. I certainly know that diet affects > diabetes tremendously, because diabetics cannot metabolize > carbohydrates sufficiently, but I tend to be skeptical that diet has a > great influence on RA. However, the idea is intriguing, and I would > like to read this book just to see what he says. > > Dr. Chilton is considered to be an expert in the field of fatty acids, > and he apparently has conducted clinical trials to prove his theories. > He is a professor at Wake Forest University School of Medicine, along > with my endo and my rheumy. > > But with all of his credentials, I remain skeptical. If any of you has > read the book, please give us a book report. I don't want to have to > buy it, but if I can find it in the library, I'll check it out. > > If you google " Inflammation Nation " you'll get lots of hits. The > Amazon.com site has a portion of the first chapter available. > > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 thankyou verymuch for the info. Sue <marysue@...> wrote:Inflammation Nation : The First Clinically Proven Eating Plan to End Our Nation's Secret Epidemic by Floyd H. Chilton, Tucker This is a book just published in 2005 that claims that diet influences inflammation and is important in several diseases, including RA and diabetes, both of which I have. I certainly know that diet affects diabetes tremendously, because diabetics cannot metabolize carbohydrates sufficiently, but I tend to be skeptical that diet has a great influence on RA. However, the idea is intriguing, and I would like to read this book just to see what he says. Dr. Chilton is considered to be an expert in the field of fatty acids, and he apparently has conducted clinical trials to prove his theories. He is a professor at Wake Forest University School of Medicine, along with my endo and my rheumy. But with all of his credentials, I remain skeptical. If any of you has read the book, please give us a book report. I don't want to have to buy it, but if I can find it in the library, I'll check it out. If you google " Inflammation Nation " you'll get lots of hits. The Amazon.com site has a portion of the first chapter available. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2005 Report Share Posted May 23, 2005 And here I wondered if I was the only person that feels this way. I too feel diet influences RA. Just look at gluten intolerance and how it mimics RA!!! Now if grain products can mimic RA, why is it so unbelievable to so many that diet influences RA? Look at dairy intolerance and how many illnesses it causes! No one wants do do clinical trials on foods and nutrition because they make no money from it. Those that do these kinds of studies are labeled quacks!!! Doctors manage symptoms with drugs that cause other problems. I routinely post articles on nutrition and how it affects RA, so hopefully you'll get some ideas of what to stop eating and what to eat more of. Eliminating stress and doing exercises on a regular basis is also very important. a On May 23, 2005, at 5:26 AM, ju2346 wrote: > Sue, >          Many feel that diet influences RA, including myself, I have > RA. i just wish I knew exactly what to stop eating, etc. > Unfortunately we will never have enough of the right information in > our lifetime for this to be beneficial to most of us. The reason is > simple, if all of us knew what and what not to eat to rid RA, that > would be to big of a slam on the drug industry, and they of course > would find a way with their power and money to keep this " RA cure " > information from the general public. As the old saying goes, Doctors > dont want to cure people, just find a way to keep us coming back. > They dont want to be out of a job in more than we do. > > > > > > > > > Inflammation Nation : The First Clinically Proven Eating Plan to > End > > Our Nation's Secret Epidemic > > by Floyd H. Chilton, Tucker > > > > This is a book just published in 2005 that claims that diet > influences > > inflammation and is important in several diseases, including RA and > > diabetes, both of which I have. I certainly know that diet affects > > diabetes tremendously, because diabetics cannot metabolize > > carbohydrates sufficiently, but I tend to be skeptical that diet > has a > > great influence on RA. However, the idea is intriguing, and I would > > like to read this book just to see what he says. > > > > Dr. Chilton is considered to be an expert in the field of fatty > acids, > > and he apparently has conducted clinical trials to prove his > theories. > > He is a professor at Wake Forest University School of Medicine, > along > > with my endo and my rheumy. > > > > But with all of his credentials, I remain skeptical. If any of you > has > > read the book, please give us a book report. I don't want to have > to > > buy it, but if I can find it in the library, I'll check it out. > > > > If you google " Inflammation Nation " you'll get lots of hits. The > > Amazon.com site has a portion of the first chapter available. > > > > Sue > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 What a pile of baloney. Feel free to believe that there are some magic mushrooms out there that can cure your disease. Feel free to believe that chanting can somehow cure this disease. But don't ever try and tell me, or this list, that the people in the medical and health professions are somehow conspiring to keep us sick. I challange you to utter that nonsense to your doctor's face. I have never, ever, met a doctor or a nurse or a pharmacist that wouldn't give their left leg to have a cure for this awful disease. Your comments are insulting. Please keep your paranoid rantings and X-files conspiracy theories to yourself. They have no place in a rational discussion of this illness and it's treatments. I am suffering with Rheumatoid arthritis and have been in pain for three years now but I want to think more positive than you. I know here in Ontario Canada, Doctors are compasionate and do want to find a cure. Corinne ju2346 wrote: > Sue, > Many feel that diet influences RA, including myself, I have > RA. i just wish I knew exactly what to stop eating, etc. > Unfortunately we will never have enough of the right information in > our lifetime for this to be beneficial to most of us. The reason is > simple, if all of us knew what and what not to eat to rid RA, that > would be to big of a slam on the drug industry, and they of course > would find a way with their power and money to keep this " RA cure " > information from the general public. As the old saying goes, Doctors > dont want to cure people, just find a way to keep us coming back. > They dont want to be out of a job in more than we do. > > > > > > > > > Inflammation Nation : The First Clinically Proven Eating Plan to > End > > Our Nation's Secret Epidemic > > by Floyd H. Chilton, Tucker > > > > This is a book just published in 2005 that claims that diet > influences > > inflammation and is important in several diseases, including RA and > > diabetes, both of which I have. I certainly know that diet affects > > diabetes tremendously, because diabetics cannot metabolize > > carbohydrates sufficiently, but I tend to be skeptical that diet > has a > > great influence on RA. However, the idea is intriguing, and I would > > like to read this book just to see what he says. > > > > Dr. Chilton is considered to be an expert in the field of fatty > acids, > > and he apparently has conducted clinical trials to prove his > theories. > > He is a professor at Wake Forest University School of Medicine, > along > > with my endo and my rheumy. > > > > But with all of his credentials, I remain skeptical. If any of you > has > > read the book, please give us a book report. I don't want to have > to > > buy it, but if I can find it in the library, I'll check it out. > > > > If you google " Inflammation Nation " you'll get lots of hits. The > > Amazon.com site has a portion of the first chapter available. > > > > Sue > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Corinne, Thank God you have a compassionate and understanding Doctor. I never said that there is no such thing. Perhaps however you are the other extreme of what you are percieving me to be. Does it mean that because your experiences with medical professionals is limited to nothing but goodness and understanding, that incompetency and apathy doesn't exist in this profession? Of course not, I am sure you would agree there is the good and bad in ANY profession. And by the way, there is no need to get nasty just because someone doesn't agree with your " rose colored glasses " view toward all of this. (such as, " keep my comments to myself " , I have as much right to an opinion as you do) and by the way, I have had RA for 9 years, it would seem like that is considerably longer than you have dealt with it. I think we are both reasonably intelligent people, lets learn from each other, and stay away from comments like " thats baloney, or thats insulting " . Just because we have had opposite experiences with Doctors, does in no way lead me to call your opinions " baloney " . Pat > > > Inflammation Nation : The First Clinically Proven Eating Plan to > > End > > > Our Nation's Secret Epidemic > > > by Floyd H. Chilton, Tucker > > > > > > This is a book just published in 2005 that claims that diet > > influences > > > inflammation and is important in several diseases, including RA and > > > diabetes, both of which I have. I certainly know that diet affects > > > diabetes tremendously, because diabetics cannot metabolize > > > carbohydrates sufficiently, but I tend to be skeptical that diet > > has a > > > great influence on RA. However, the idea is intriguing, and I would > > > like to read this book just to see what he says. > > > > > > Dr. Chilton is considered to be an expert in the field of fatty > > acids, > > > and he apparently has conducted clinical trials to prove his > > theories. > > > He is a professor at Wake Forest University School of Medicine, > > along > > > with my endo and my rheumy. > > > > > > But with all of his credentials, I remain skeptical. If any of you > > has > > > read the book, please give us a book report. I don't want to have > > to > > > buy it, but if I can find it in the library, I'll check it out. > > > > > > If you google " Inflammation Nation " you'll get lots of hits. The > > > Amazon.com site has a portion of the first chapter available. > > > > > > Sue > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 This group is for support to each other. I will not argue back and forth with you as I am very sick lately and don't need any extra stress. If your doctor/doctors are that bad that you feel they want you sick then maybe you should switch to a better one. But it was not only about you accusing doctors of wanting us to be sick, also the diet thing.....I am sure that if any doctor out there knew that we were eating something that was hurting us then we would be told about it. I sure am thankful for having the rheumatologist I have. ju2346 wrote: > Corinne, > Thank God you have a compassionate and understanding > Doctor. I never said that there is no such thing. Perhaps however you > are the other extreme of what you are percieving me to be. Does it > mean that because your experiences with medical professionals is > limited to nothing but goodness and understanding, that incompetency > and apathy doesn't exist in this profession? Of course not, I am sure > you would agree there is the good and bad in ANY profession. And by > the way, there is no need to get nasty just because someone doesn't > agree with your " rose colored glasses " view toward all of this. (such > as, " keep my comments to myself " , I have as much right to an opinion > as you do) and by the way, I have had RA for 9 years, it would seem > like that is considerably longer than you have dealt with it. I think > we are both reasonably intelligent people, lets learn from each > other, and stay away from comments like " thats baloney, or thats > insulting " . Just because we have had opposite experiences with > Doctors, does in no way lead me to call your opinions " baloney " . > Pat > > > > > > > > > Inflammation Nation : The First Clinically Proven Eating Plan to > > > End > > > > Our Nation's Secret Epidemic > > > > by Floyd H. Chilton, Tucker > > > > > > > > This is a book just published in 2005 that claims that diet > > > influences > > > > inflammation and is important in several diseases, including RA > and > > > > diabetes, both of which I have. I certainly know that diet > affects > > > > diabetes tremendously, because diabetics cannot metabolize > > > > carbohydrates sufficiently, but I tend to be skeptical that diet > > > has a > > > > great influence on RA. However, the idea is intriguing, and I > would > > > > like to read this book just to see what he says. > > > > > > > > Dr. Chilton is considered to be an expert in the field of fatty > > > acids, > > > > and he apparently has conducted clinical trials to prove his > > > theories. > > > > He is a professor at Wake Forest University School of Medicine, > > > along > > > > with my endo and my rheumy. > > > > > > > > But with all of his credentials, I remain skeptical. If any of > you > > > has > > > > read the book, please give us a book report. I don't want to > have > > > to > > > > buy it, but if I can find it in the library, I'll check it out. > > > > > > > > If you google " Inflammation Nation " you'll get lots of hits. The > > > > Amazon.com site has a portion of the first chapter available. > > > > > > > > Sue > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Hi Leonie; Believe me,AP works very well but you often have to fiddle with the dosage and the different antiiotics.Anything you need to know about food I can tell you.The thing about antibiotics id that they kill all bugs,the good and the bad so that is why you have to take a good probiotic a couple of hours after the antibiotic.Make sure you get the enteric coated ones.Those that are not disolve in the stomack and the acid will kill just about all of them.Only H Pylori and a couple other bugs can survive stomack acid.You need the coated ones that disolve in the small intestine.Even though you take probiotics you can still have a yeast problem so the lower the dose of antibiotic the better.You can usually use more antibiotic if you avoid all sugars that feed yeast.The foods that cause inflamation are grains,other than rice, nightshade vegetables and of course SUGAR the all time trouble maker. I am a scientist by education,archeologist/paleoanthropologist and because of this I had to take Pre-Med.I found food so interesting that dietetics became my Minor.Many supplements are not of much help.If you get yeast ALA and Milk Thistle in combination can help and so does grapefruit seed extract but since you are on Celebrex grapefuit is not a wise decision as it will intensify many drugs to the point they can be toxic.NAC is good as it is one of the precursors to glutathion which is the master detoxifyers of the body.Take it along with niacinamine...not niacin.Vitamin C will help prevent the bruise like marks you can get from minocin if used at high dosage for a long time.Low dose of 100mg 3 times a week probably will not cause a problem.If you are on mino for a couple of years it is a good idea to rotate to a different antibiotic. etc,etc,etc.If you have questions,just whistle.I am in remission from SD and am super busy with my orchid greenhouse andpreparing for severalupcoming shows,so I don't get to the computer for more than a few minutes now and then.Eventually I will answer you.Oops,forgot to mention that if you are over 40-45 you are most likely to be low on stomack acid so make sure to take digestive enzymes with your meals to prevent more gut problems.All of us with these crazy diseases have gut issues wheather you know itor not. Lynne leonie cent wrote: > Hi everyone, > I'm going to indulge myself and rabbit on about my situation for a few > minutes... hope you don't mind. > > I know I've mentioned this before, but the reason I got sidetracked > from doing the AP much sooner, was that I went down the road of > thinking I could cure my disease by eliminating certain foods which > were triggering the symptoms (the Leaky Gut thing) and taking > supplements (funnily enough someone on this list told me about the > diet thing, however I was previously a vitamin junkie anyway . > Also, I was paranoid about antibiotics, as I've read that they cause > illness in the first place by mucking up the body's eco system. I > guess the AP can help Leaky Gut by killing the bugs that cause it in > the first place ? > > I'm sure that some foods trigger pain, but I don't know which ones and > couldn't be bothered finding out, since it's too hard to go on > elimination diets etc. I just try to keep things down to a dull roar > by not eating the main offenders like wheat and dairy, but it's hard. > When the pain gets bad, I go on a fast for a few days and that usually > gets me back on track. I also found some natural remedies that are > great anti-inflammatories, and have managed to keep off the drugs like > Methotrexate etc, just taking Celebrex. I think all this will hold me > in good stead for taking on the AP in a few weeks. > > Is anyone else on the list into the supplement " thing " ? I guess I > still feel a bit anxious about taking antibiotics, and want to make > sure I do the right things re diet and pro-biotics/supplements etc. Be > good to swap notes with others. > > All the best, > > ~Leonie (Canberra, Australia) > leoniecent@... <mailto:leoniecent%40bigpond.com> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Hi, Leonie: I do not have RA, but AS, which is almost totally controlled by diet. Antibiotics work against AS, but total elimination of starches is required before starting them, lest they cause resistive strains. The target germ in AS is Klebsiella pneumoniae, but perhaps the target germ in RA should be Proteus mirabilis, which has been identified by Professor Ebringer (Kings College, London, but an Australian--his brother is a rheumatologist in Australia). Ebringer seemed to reason that the infection by Proteus happens post-UTI, and the focus of infection is the urinary tract where this germ is recalcitrant. He mentioned something called " The Oslo Diet, " but I have been unable to find references for this--basically, 11g of EFAs are important daily, and plenty of cranberry or other similar juices that make the UT walls 'slippery' to the Proteus. Also, the diet for RA is almost opposite that for AS; it is low-protein whereas the AS diet is total starch elimination and high-protein and fats. I supplement aggressively, almost per Dr. Wallach's recommendations. I have to test many of the supplements with iodine (to indicate starch, if present and not on the label...), and also take some herbs. The most important supplements after EFAs are magnesium and calcium. We are always looking for anti-inflammatory herbs and I discovered fresh wheatgrass juice is effective, also, GLA--borage seed oil (but AS is certainly due to LGS, which initiates the disease process). Strong ginger tea helps a little, also. In all of these diseases, I believe that there is something to the fact that, if there is ONE bacterium, there can be MANY--thus the observations about mycobacteria and other species, but the active agent MIGHT be Proteus in RA (I don't have it, so cannot test Ebringer's hypothesis but he is spot-on regarding AS. The antibiotics were GREAT, once I had diet under control...and I REALLY needed them for the first couple of years, even being quite strict about diet. Mercola of course has strong recommendations against grains, and other sources (prior to and independent from) have supported flour products as pro-inflammatory, also. The NSAIDs actually accelerate AS, because the focus of infection is the gut and the basic mechanism is LGS (which might also complicate other forms of arthritis). Candidiasis, a common problem after taking antibiotics, can also result in LGS, so I have some interest in treating this with probiotics and other agents, after doing courses of antibiotics. I hope that you can continue to avoid antibiotics and other drugs, but sometimes they can provide the advances against these diseases that we need. Best Regards, leonie cent <leoniecent@...> wrote: Hi everyone, I'm going to indulge myself and rabbit on about my situation for a few minutes... hope you don't mind. I know I've mentioned this before, but the reason I got sidetracked from doing the AP much sooner, was that I went down the road of thinking I could cure my disease by eliminating certain foods which were triggering the symptoms (the Leaky Gut thing) and taking supplements (funnily enough someone on this list told me about the diet thing, however I was previously a vitamin junkie anyway . Also, I was paranoid about antibiotics, as I've read that they cause illness in the first place by mucking up the body's eco system. I guess the AP can help Leaky Gut by killing the bugs that cause it in the first place ? I'm sure that some foods trigger pain, but I don't know which ones and couldn't be bothered finding out, since it's too hard to go on elimination diets etc. I just try to keep things down to a dull roar by not eating the main offenders like wheat and dairy, but it's hard. When the pain gets bad, I go on a fast for a few days and that usually gets me back on track. I also found some natural remedies that are great anti-inflammatories, and have managed to keep off the drugs like Methotrexate etc, just taking Celebrex. I think all this will hold me in good stead for taking on the AP in a few weeks. Is anyone else on the list into the supplement " thing " ? I guess I still feel a bit anxious about taking antibiotics, and want to make sure I do the right things re diet and pro-biotics/supplements etc. Be good to swap notes with others. All the best, ~Leonie (Canberra, Australia) leoniecent@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 hi leonie i find diet to be very important. makes the difference between painkillers or not for me. and the ppl i've met who stayed in remission after ap and no longer needed the ap are ppl who do diet and supplmts. the body ecology diet by donna gates has good advice i think. try going off all grains sweets and dairy for a couple weeks and i'll bet you see a good difference. i make flax crackers in my dehydrator to replace bread and eat spag squash with homemade pesto or butter when i crave carbs. i've taken 100s of different supplmts and the only ones i find that help are strong probiotics - important to take daily - esp. on ap. i take them at nite on empty stomach. serropeptase eznymes i find help with inflamm but large doses are required. i am also finding usana glucosmaine proflavonol and mutlvits and mins to be helpful. the glucosamine has surprised me. i thought it was only supposed to help OA but after 4 mos on 4 a day i find my knees really stiffen up when i don't take them. hope this helps monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 hi john is there a book that talks about what you discuss below? i am interested in reading more re this. i find all grains including rice seem to worsen my RA. as i take antibs i can tolerate a little millet or quinoa. thanks monique Hi, Leonie: I do not have RA, but AS, which is almost totally controlled by diet. Antibiotics work against AS, but total elimination of starches is required before starting them, lest they cause resistive strains. The target germ in AS is Klebsiella pneumoniae, but perhaps the target germ in RA should be Proteus mirabilis, which has been identified by Professor Ebringer (Kings College, London, but an Australian-- his brother is a rheumatologist in Australia). Ebringer seemed to reason that the infection by Proteus happens post-UTI, and the focus of infection is the urinary tract where this germ is recalcitrant. He mentioned something called " The Oslo Diet, " but I have been unable to find references for this--basically, 11g of EFAs are important daily, and plenty of cranberry or other similar juices that make the UT walls 'slippery' to the Proteus. Also, the diet for RA is almost opposite that for AS; it is low-protein whereas the AS diet is total starch elimination and high-protein and fats. I supplement aggressively, almost per Dr. Wallach's recommendations. I have to test many of the supplements with iodine (to indicate starch, if present and not on the label...), and also take some herbs. The most important supplements after EFAs are magnesium and calcium. We are always looking for anti-inflammatory herbs and I discovered fresh wheatgrass juice is effective, also, GLA--borage seed oil (but AS is certainly due to LGS, which initiates the disease process). Strong ginger tea helps a little, also. In all of these diseases, I believe that there is something to the fact that, if there is ONE bacterium, there can be MANY--thus the observations about mycobacteria and other species, but the active agent MIGHT be Proteus in RA (I don't have it, so cannot test Ebringer's hypothesis but he is spot-on regarding AS. The antibiotics were GREAT, once I had diet under control...and I REALLY needed them for the first couple of years, even being quite strict about diet. Mercola of course has strong recommendations against grains, and other sources (prior to and independent from) have supported flour products as pro-inflammatory, also. The NSAIDs actually accelerate AS, because the focus of infection is the gut and the basic mechanism is LGS (which might also complicate other forms of arthritis). Candidiasis, a common problem after taking antibiotics, can also result in LGS, so I have some interest in treating this with probiotics and other agents, after doing courses of antibiotics. I hope that you can continue to avoid antibiotics and other drugs, but sometimes they can provide the advances against these diseases that we need. Best Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hello Group, I am now able to post on this wonderful site and would love some information please. With regards to the diet that I'm about to start again. I must admit I did find it hard to stick to. This time has to be different. My ankles have swollen so bad that walking is difficult I know night shade vegetables are not permitted along with bread, sugar and dairy. As I do not have and cannot get Shammell's or Mercola's books I depend on the group for information to help myself. Questions; What fruit is permitted? ( is one type better than others?) What can one do for a sweet tooth?(surely other sufferers must have sweet cravings) Can wraps,pita or turkish be used as bread if they are yeast/sugar free? What protein is best to eat? Any idea's for breakfast? Is any flour permitted I know white is a no no. Are there crackers/biscuits that are permittable Any help here would be wonderful Thank you rheumatic Re:diet and RA hi leonie i find diet to be very important. makes the difference between painkillers or not for me. and the ppl i've met who stayed in remission after ap and no longer needed the ap are ppl who do diet and supplmts. the body ecology diet by donna gates has good advice i think. try going off all grains sweets and dairy for a couple weeks and i'll bet you see a good difference. i make flax crackers in my dehydrator to replace bread and eat spag squash with homemade pesto or butter when i crave carbs. i've taken 100s of different supplmts and the only ones i find that help are strong probiotics - important to take daily - esp. on ap. i take them at nite on empty stomach. serropeptase eznymes i find help with inflamm but large doses are required. i am also finding usana glucosmaine proflavonol and mutlvits and mins to be helpful. the glucosamine has surprised me. i thought it was only supposed to help OA but after 4 mos on 4 a day i find my knees really stiffen up when i don't take them. hope this helps monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 FYI, Mercola has a nutrition plan on his website: http://www.mercola.com/nutritionplan/index.htm Todd > > Hello Group, > I am now able to post on this wonderful site and would love some information please. With regards to the diet that I'm about to start again. I must admit I did find it hard to stick to. This time has to be different. My ankles have swollen so bad that walking is difficult > I know night shade vegetables are not permitted along with bread, sugar and dairy. > As I do not have and cannot get Shammell's or Mercola's books I depend on the group for information to help myself. > Questions; > What fruit is permitted? ( is one type better than others?) > What can one do for a sweet tooth?(surely other sufferers must have sweet cravings) > Can wraps,pita or turkish be used as bread if they are yeast/sugar free? > What protein is best to eat? > Any idea's for breakfast? > Is any flour permitted I know white is a no no. > Are there crackers/biscuits that are permittable > Any help here would be wonderful > Thank you > > > > > > rheumatic Re:diet and RA > > > hi leonie > > i find diet to be very important. makes the difference between > painkillers or not for me. and the ppl i've met who stayed in remission > after ap and no longer needed the ap are ppl who do diet and supplmts. > the body ecology diet by donna gates has good advice i think. try going > off all grains sweets and dairy for a couple weeks and i'll bet you see > a good difference. i make flax crackers in my dehydrator to replace > bread and eat spag squash with homemade pesto or butter when i crave > carbs. i've taken 100s of different supplmts and the only ones i find > that help are strong probiotics - important to take daily - esp. on ap. > i take them at nite on empty stomach. serropeptase eznymes i find help > with inflamm but large doses are required. i am also finding usana > glucosmaine proflavonol and mutlvits and mins to be helpful. the > glucosamine has surprised me. i thought it was only supposed to help OA > but after 4 mos on 4 a day i find my knees really stiffen up when i > don't take them. > > hope this helps > monique > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 , I hope I can remember your questions to help you with an answer on how to live a different way. For years, I quit thinking about BREAKFAST which calls to mind only certain foods. I learned to eat lots of vegetable soup (homemade) and would eat left over vegetables, sometimes soup, for that first meal. Who says, anyway, what foods we are limited to for breakfast. Come to think of it, don't teenage boys often have leftover pizza??? Try to refrain from PORK. Do very little beef. Primarily chicken and wild grown fish. Cold water fish is what you are seeking, not warm water and not shell fish. Regarding fruit, think in terms of not Citrus fruits which are acidic or watermelon which is filled with yeast. Even in remission, I do not touch a strawberry that is not organic fresh or organic frozen. When you buy fruits and vegetables, think FRESH if at all possible and organic if even more possible. If not, soak your fruits and veggies in a large container or clean sink in cider vineger for 20 minutes to help get off the environmental toxins. I learned to appreciate brown rice and if I had to use white, I only used long grain in order to gain the nutrients. I made myself forget what INSTANT anything or a microwave was. When I began to learn to do this lifestyle diet, I heard the phrase, " if it has a shelf life, you don't. " This type of thinking eliminates entire rows of the grocery store and you won't miss them at all. Soy is something that is continually disagreed upon. When I gave up dairy, I learned to use rice milk in cooking and would treat myself to soy. In spite of the disagreements, I feel it was appropriate for me and I still use it. Learn to not used canned. Those are processed and your body needs all the nutrients it can get. That would be from the freshest and then frozen. Once you use them, you will be too spoiled to go back, anyway. I can have corn. My sister and I took the leap test and she tested allergic to corn but not me. I make cornbread occasionally and I can say I do know that she gives in to it occasionally. As far as sugars and TREATS, I was taught to try to think in terms of an occasional TREAT. I learned at the very beginning just like regular diets, if I think I am being denied, then I will rebel. For the first six months, I pretty much quit EVERYTHING - talk about withdrawl, that old sugar - and then slowly began allowing myself treats. After that period of time, some things began tasting TOO sweet. The body finally does adjust. Now, when I don't think so much about all of this because I am more healthy, I am still in this mindset. If I am in public or at a luncheon etc., if the dessert is not something I just cannot stand to have, then I am very comfortable passing. It is like the old saying, PICK YOUR BATTLES. Instead, I pick my treats. If I am going to take something in to my body that doesn't do it any good, then it better be something truly wonderful and not just sweet filler. I hope you understand what I mean. I am trying to suggest that you learn to use self control where something is truly going to work against you while allowing yourself to " fall off the wagon " occasionally before losing heart and throwing it all away. It gets easier and easier. I promise. During my worst of times, I ALLOWED myself a treat of a DECAF (yes, I know) soy (again, yes, I know) mocha to remind myself that not only have I not removed myself from the world but that I am standing smack dab in the middle of it. This is, to this day, my BAD TO THE BONES mentality. I truly hope this helps. **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 , I also learned to eat LOTS of beans for protein. Beans with brown rice and a little spinach or green vegetables for that morning meal is wonderful. Truly. **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 i'd advise staying off all grains, sweets, and dairy, alcohol, caffeine, anything processed if you want to make a big difference. but if that is too hard try, for carbs, only things made with rice or quinoa or millet or amaranth. gluten is bad for RA so stay away from anything with wheat oats spelt rye. there are many gluten free breads and crackers today. if you must eat fruit try to only eat 1 a day and make it apples or berries as they are low sugar. i find yeast is involved with RA so taking as little sweets as possible helps esp. i find on ap as antibs kick up yeast. if sw tooth gets bad have you tried using stevia? there is a vanilla flavored stevia liquid i mix with almond milk and some raw cocoa powder and ice in my blender and it's like drinking choc milk. yum! i also sometimes mix it with coc oil and raw cocoa powder to make something like fudge. try to focus your diet on free range meats, wild fish, vegs, nuts/seeds in moderation, and good fats like fish oil, butter, olive oil, coc oil, flax oil and i think you'll feel better. for bfast i'll eat turkey veg soup or steamed vegs with some butter and a piece of meat or fish so sometimes i'll take chicken or veg broth and cook vegs like carrots or brocolli in it and then blend it and it makes a great cream soup. you know the asians don't eat sweets for bfast but some kind of protein vegs and rice. we just need to change our mindset away from eating sweet carbs in am. hope this helps monique Hello Group, I am now able to post on this wonderful site and would love some information please. With regards to the diet that I'm about to start again. I must admit I did find it hard to stick to. This time has to be different. My ankles have swollen so bad that walking is difficult I know night shade vegetables are not permitted along with bread, sugar and dairy. As I do not have and cannot get Shammell's or Mercola's books I depend on the group for information to help myself. Questions; What fruit is permitted? ( is one type better than others?) What can one do for a sweet tooth?(surely other sufferers must have sweet cravings) Can wraps,pita or turkish be used as bread if they are yeast/sugar free? What protein is best to eat? Any idea's for breakfast? Is any flour permitted I know white is a no no. Are there crackers/biscuits that are permittable Any help here would be wonderful Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi I live near you I think (Byron Bay) and I have Henry Scammell's book. I could lend it to you if you wish. Re diet, it seems to depend on the individual but there are general guidelines which most people find helpful to some degree. I found that a gluten-free diet (no pita, wraps, etc because of the wheat) is important. There is quite a lot of gluten free bread and pasta around but I guess it depends where you live whether it's available or not. Dairy is mostly out but I have it sometimes. I have soy milk and tofu. I can eat potatoes but not the other nightshades. I occasionally have Roma tomatoes (the oval shaped ones) which are less acidic. All sugar is out except a few pieces of fruit a week, mostly bananas, apples, pears. I do have occasional other fruit like mangoes and grapes but only now and again. I found that Stevia (a natural herbal sweetener) is useful. I also found that if I was strong enough to withstand the sugar cravings for a week or so they just went away and didn't come back. Eating fruit doesn't bring the sugar cravings back. Alcohol in all forms and red meat are also a no-no for me. Fish and occasional chicken are ok. Oranges are deadly but lemons are fine. Also, for me it's important that I don't become too obsessive about my diet or I end up feeling stressed and depressed and deprived and then it gets too much and I give up. The only things I'm super strict about are sugar and alcohol. I pay the price almost immediately if I have them :-( Good luck with your healing. Ros Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi - I'm new to this group by about 2 months and haven't started AP yet. I have to tell you a bit though about diet since it has proven to be so signficant to my disease management. I was on much of the traditional meds and nothing was working including the new biologics. I discovered the diet that is outlined by many in response to your post. It changed my life. I agree with the info that if it has shelf life, don't eat it. I eat fresh and mostly veg/fruits. I have found my own allergy foods and they include potatoes, tomatoes, whole wheat, citrus, among others. I think we are all different though on the allergies and you just have to play around with the diet to discover yours. Within two weeks of starting the diet, I saw 75% improvement and was able to get by on Enbrel, occasional Celebrex and the diet for several years. Now, I want to see remission if possible and so I'm exploring the AP, but the diet will be with me for life. I have been startled and extemely pleased by what the whole foods diet has done for my family....here are some of the things that we adhere to: 1. Little of no salt with only occasional sea salt. 2. No pepper (this includes peppers, chiles, etc.). 3. No beef, pork or chicken (I have noticed chicken is one of my allergies). 4. No sweets....refined sugar or otherwise. (my family can eat them with organic sugars, etc., but I'm allergic). My allergy includes chocolate. 5. Rarely we eat Turkey (free range organic) and fish high in omega 3's (no shell fish as I'm allergic and interesting so is my youngest daughter who has eczema which is another " auto-immune disorder. " ) 6. We drink Mangosteen juice daily and faithfully. It provides extreme protection against viruses and bacteria....we don't get colds or the flu. It also manages my daughters allergies and eczema. 7. We eat organic if at all possible and daily we eat salad, steamed vegetables, and rice, with occasional turkey/fish, etc. You would surprised at the variety of things you can do with that simple menu. Sometimes my family will eat potatoes/tomatoes with our meal, but I refrain. 8. We eat wheat, but I find that whole wheat causes me a lot of symptoms. We eat a minimal amount of wheat though and of course, never refined. It's pretty much that simple. Of course all of the supplements help too such as fish oil, vitamins, etc. Hope that helps. . > > Hello Group, > I am now able to post on this wonderful site and would love some information please. With regards to the diet that I'm about to start again. I must admit I did find it hard to stick to. This time has to be different. My ankles have swollen so bad that walking is difficult > I know night shade vegetables are not permitted along with bread, sugar and dairy. > As I do not have and cannot get Shammell's or Mercola's books I depend on the group for information to help myself. > Questions; > What fruit is permitted? ( is one type better than others?) > What can one do for a sweet tooth?(surely other sufferers must have sweet cravings) > Can wraps,pita or turkish be used as bread if they are yeast/sugar free? > What protein is best to eat? > Any idea's for breakfast? > Is any flour permitted I know white is a no no. > Are there crackers/biscuits that are permittable > Any help here would be wonderful > Thank you > > > > > > rheumatic Re:diet and RA > > > hi leonie > > i find diet to be very important. makes the difference between > painkillers or not for me. and the ppl i've met who stayed in remission > after ap and no longer needed the ap are ppl who do diet and supplmts. > the body ecology diet by donna gates has good advice i think. try going > off all grains sweets and dairy for a couple weeks and i'll bet you see > a good difference. i make flax crackers in my dehydrator to replace > bread and eat spag squash with homemade pesto or butter when i crave > carbs. i've taken 100s of different supplmts and the only ones i find > that help are strong probiotics - important to take daily - esp. on ap. > i take them at nite on empty stomach. serropeptase eznymes i find help > with inflamm but large doses are required. i am also finding usana > glucosmaine proflavonol and mutlvits and mins to be helpful. the > glucosamine has surprised me. i thought it was only supposed to help OA > but after 4 mos on 4 a day i find my knees really stiffen up when i > don't take them. > > hope this helps > monique > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I have never tried it but will and will report back to you. Thank you, . **************Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 hi sandra have you tried the unsweetened alomd milk? so much tastier than rice or soy milk and i believe so much safer than soy too. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I've used Almond Milk and prefer it to Rice or Soy milk. It is safer, but like anything else I use it in moderation. I've used it for shakes and smoothies. Roni rheumatic Re: diet and RA rheumatic > > > > > > > > > > > > > > > > > > hi sandra > > > > have you tried the unsweetened alomd milk? so much tastier than rice or > > soy milk and i believe so much safer than soy too. > > > > monique > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Dalanne writes: " Right now I eat and drink what I want and when I want it. I'm doing this and losing weight because all my meds make me queasy so I don't eat much at one time. It's probably better for me to eat " hobbit style " , as in 2nd breakfast, 3rd lunches and 3rd suppers. " I'd love to start a thread of conversation about diet and RA. My Rheumatologist doesn't put much store in dietary restrictions (maybe why I like him), and told me that in the early days of RA investigation, starvation was a recommended treatment! Well....I guess not to the point of death. I tend to be a bit of an extremist when it comes to food. I eat more than I should even though the quality is good. I am 20 lbs. overweight purely by my excess consumption. Apparently, the methotrexate does nothing to curb my appetite. So what are you all doing for food to help with the symptoms? My latest blood work shows a borderline gluten intolerance (I could have told them that as I feel it when I eat my beloved sourdough bread and pasta) and now....borderline thyroid issues. Thank you, Rojo Noble Beasts Ranch Grass Valley, CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2010 Report Share Posted June 27, 2010 Rojo wrote: So what are you all doing for food to help with the symptoms? My latest blood work shows a borderline gluten intolerance (I could have told them that as I feel it when I eat my beloved sourdough bread and pasta) and now....borderline thyroid issues. , Not because of the RA... (I'm still in the investigative stages) but just for general health issues I have eliminated gluten to the best of my ability (this can be very tricky), everything white, such as: sugar, flour, potatoes, pasta, rice (of course most of these are glutens), most red meats, and all processed foods. Which of course leaves me almost nada.. If you think about it, most processed foods are just one molecule away from being plastic, or so it seems. So for me, it's fresh raw fruits, vegetables, nuts and most white meats. Thank goodness Boars Head deli meats are gluten free and low in sodium so I do eat the turkey and chicken. Instead of iodized salt, I use only unprocessed sea salt, which is very good for the adrenals and thyroid. Because of its medicinal properties and I just plain like it, I use organic raw honey.. I don't consume caffeine so instead I make a tea of raw, unprocessed coconut oil, raw honey and cinnamon stick. This all seems like a lot of trouble and it can be in the beginning, but like everything else, once you get into the routine, it's a piece of cake!... whoops.. I don't eat that! Don't put the key to your Happiness into someone else's pocket. Keep it in your own! Quote Link to comment Share on other sites More sharing options...
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