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Thanks...looks like I have to join yet another group...

> Re: Prednisone

>

>

>

> This link contains info on the supplements I have used:

>

> hypoglycemia-talk/message/5971

>

>

> > > > > > >

> > > > > > > Has anyone here ever had a course of Prednisone? I'm on

> two

> > > > > week

> > > > > > > course of it now to settle down my asthma which has been

> > > acting

> > > > > up

> > > > > > > since I developed a lower respiratory infection a couple

> of

> > > > > months

> > > > > > > ago.

> > > > > > >

> > > > > > > My question stems from an unexpected side effect I

> noticed. I

> > > was

> > > > > > > tested with borderline low T a while back but have been

> on the

> > > > > > fence

> > > > > > > about weather my symptoms are severe enough to warrant

> > > treating

> > > > > it

> > > > > > > directly. My energy and mood and some other things have

> been

> > > > > off

> > > > > > > but not to point where its having a major impact on my

> day

> > > to

> > > > > day

> > > > > > > life and function.

> > > > > > >

> > > > > > >

> > > > > > > The prednisone I'm on to settled my asthma back down has

> had

> > > > > > > interesting and unexpected side effect. I have seen a real

> > > > > > measurable

> > > > > > > positive increase in my energy level and an improvement in

> > > mood

> > > > > and

> > > > > > > drive I had not expected. Not excessively but rather I'd

> > > describe

> > > > > > the

> > > > > > > way I feel now as being what I used to feel was my normal

> > > healthy

> > > > > > > level. While I knew I had experienced a gradual decline in

> > > these

> > > > > > > areas over the last several years it was hard to

> subjectively

> > > > > > measure

> > > > > > > how much till I compared it to how I'm feeling now. I

> haven't

> > > > > been

> > > > > > > feeling sick but right now feel like my general feeling of

> > > > > wellness

> > > > > > > is better than its been in several years.

> > > > > > >

> > > > > > >

> > > > > > > So here in lies my question . It seems to me, and I need

> > > reality

> > > > > > > check on this, that I gleaned somewhere the testosterone

> > > behaves

> > > > > > > similarly in the body to the way a steroid like prednisone

> > > does.

> > > > > If

> > > > > > > that's is the case I wonder if my T level might just be

> the

> > > main

> > > > > > > culprit in my lower functioning an general feeling of

> > > wellness. I

> > > > > > was

> > > > > > > unsure if my T level was causing a problem for me because

> I

> > > never

> > > > > > had

> > > > > > > the depth of loss of function many of the low T sufferer

> here

> > > > > have

> > > > > > > had. Now I'm wondering if raising my T level might

> produce

> > > the

> > > > > > same

> > > > > > > sort of improvements.

> > > > > > >

> > > > > > >

> > > > > > > Has anyone who has testing their low T ever been

> prescribed

> > > > > > > prednisone for something and did you see similar kinds

> of

> > > > > > > improvements from treating your low T?

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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That group happens to be a hypoglycemia group and I am one of only a

few people that has treated the Adrenals on that group. Hypoglycemia

is a symptom of Adrenal Fatigue. I have posted a lot of information

on that group which would be difficult to repost over here. If you do

a search for my ID you will get a lot of info from the messages I

have posted there. If you determine that you need to treat your

Adrenals, I'd be glad to help in any way I can.

> > > > > > > >

> > > > > > > > Has anyone here ever had a course of Prednisone?

I'm on

> > two

> > > > > > week

> > > > > > > > course of it now to settle down my asthma which has

been

> > > > acting

> > > > > > up

> > > > > > > > since I developed a lower respiratory infection a

couple

> > of

> > > > > > months

> > > > > > > > ago.

> > > > > > > >

> > > > > > > > My question stems from an unexpected side effect I

> > noticed. I

> > > > was

> > > > > > > > tested with borderline low T a while back but have

been

> > on the

> > > > > > > fence

> > > > > > > > about weather my symptoms are severe enough to warrant

> > > > treating

> > > > > > it

> > > > > > > > directly. My energy and mood and some other things

have

> > been

> > > > > > off

> > > > > > > > but not to point where its having a major impact on

my

> > day

> > > > to

> > > > > > day

> > > > > > > > life and function.

> > > > > > > >

> > > > > > > >

> > > > > > > > The prednisone I'm on to settled my asthma back down

has

> > had

> > > > > > > > interesting and unexpected side effect. I have seen a

real

> > > > > > > measurable

> > > > > > > > positive increase in my energy level and an

improvement in

> > > > mood

> > > > > > and

> > > > > > > > drive I had not expected. Not excessively but rather

I'd

> > > > describe

> > > > > > > the

> > > > > > > > way I feel now as being what I used to feel was my

normal

> > > > healthy

> > > > > > > > level. While I knew I had experienced a gradual

decline in

> > > > these

> > > > > > > > areas over the last several years it was hard to

> > subjectively

> > > > > > > measure

> > > > > > > > how much till I compared it to how I'm feeling now. I

> > haven't

> > > > > > been

> > > > > > > > feeling sick but right now feel like my general

feeling of

> > > > > > wellness

> > > > > > > > is better than its been in several years.

> > > > > > > >

> > > > > > > >

> > > > > > > > So here in lies my question . It seems to me, and I

need

> > > > reality

> > > > > > > > check on this, that I gleaned somewhere the

testosterone

> > > > behaves

> > > > > > > > similarly in the body to the way a steroid like

prednisone

> > > > does.

> > > > > > If

> > > > > > > > that's is the case I wonder if my T level might just

be

> > the

> > > > main

> > > > > > > > culprit in my lower functioning an general feeling of

> > > > wellness. I

> > > > > > > was

> > > > > > > > unsure if my T level was causing a problem for me

because

> > I

> > > > never

> > > > > > > had

> > > > > > > > the depth of loss of function many of the low T

sufferer

> > here

> > > > > > have

> > > > > > > > had. Now I'm wondering if raising my T level might

> > produce

> > > > the

> > > > > > > same

> > > > > > > > sort of improvements.

> > > > > > > >

> > > > > > > >

> > > > > > > > Has anyone who has testing their low T ever been

> > prescribed

> > > > > > > > prednisone for something and did you see similar

kinds

> > of

> > > > > > > > improvements from treating your low T?

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Whew! I thought you had lost your marbles there for a second! 20mg is

a high dose.

I have been on anywhere from 40mg per day to 7.5mg per day, depending

on how active the disease is. My current low of 7.5mg per day was

only achieved by taking an experimental drug combination of

pentoxifilline and prednisone together. Before that, I could never

get below 15mg per day.

5mg is considered a nominal dose, and is about what the body produces

naturally.

Regards,

K4

> > > > >

> > > > > Has anyone here ever had a course of Prednisone? I'm on

two

> > > week

> > > > > course of it now to settle down my asthma which has been

acting

> > > up

> > > > > since I developed a lower respiratory infection a couple of

> > > months

> > > > > ago.

> > > > >

> > > > > My question stems from an unexpected side effect I

> > noticed. I was

> > > > > tested with borderline low T a while back but have been on

the

> > > > fence

> > > > > about weather my symptoms are severe enough to warrant

treating

> > > it

> > > > > directly. My energy and mood and some other things have

been

> > > off

> > > > > but not to point where its having a major impact on my

day to

> > > day

> > > > > life and function.

> > > > >

> > > > >

> > > > > The prednisone I'm on to settled my asthma back down has

had

> > > > > interesting and unexpected side effect. I have seen a real

> > > > measurable

> > > > > positive increase in my energy level and an improvement in

mood

> > > and

> > > > > drive I had not expected. Not excessively but rather

> > I'd describe

> > > > the

> > > > > way I feel now as being what I used to feel was my

> > normal healthy

> > > > > level. While I knew I had experienced a gradual decline

> > in these

> > > > > areas over the last several years it was hard to

subjectively

> > > > measure

> > > > > how much till I compared it to how I'm feeling now. I

haven't

> > > been

> > > > > feeling sick but right now feel like my general feeling of

> > > wellness

> > > > > is better than its been in several years.

> > > > >

> > > > >

> > > > > So here in lies my question . It seems to me, and I

> > need reality

> > > > > check on this, that I gleaned somewhere the

> > testosterone behaves

> > > > > similarly in the body to the way a steroid like prednisone

does.

> > > If

> > > > > that's is the case I wonder if my T level might just be

> > the main

> > > > > culprit in my lower functioning an general feeling of

> > wellness. I

> > > > was

> > > > > unsure if my T level was causing a problem for me

> > because I never

> > > > had

> > > > > the depth of loss of function many of the low T sufferer

here

> > > have

> > > > > had. Now I'm wondering if raising my T level might produce

the

> > > > same

> > > > > sort of improvements.

> > > > >

> > > > >

> > > > > Has anyone who has testing their low T ever been prescribed

> > > > > prednisone for something and did you see similar kinds of

> > > > > improvements from treating your low T?

> > >

> > >

> > >

> > >

> > >

> > >

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Right, the 5mg is what recommends for exactly what you wrote below,

it's about the normal human production. The idea being that you get what

you need (no more/no less), while giving the adrenals a chance to

heal-themselves/rest-up/whatever.

> Re: Prednisone

>

>

>

> Whew! I thought you had lost your marbles there for a second!

> 20mg is a high dose.

>

> I have been on anywhere from 40mg per day to 7.5mg per day,

> depending on how active the disease is. My current low of

> 7.5mg per day was only achieved by taking an experimental

> drug combination of pentoxifilline and prednisone together.

> Before that, I could never get below 15mg per day.

>

> 5mg is considered a nominal dose, and is about what the body

> produces naturally.

>

>

> Regards,

>

> K4

>

>

> > > > > >

> > > > > > Has anyone here ever had a course of Prednisone? I'm on

> two

> > > > week

> > > > > > course of it now to settle down my asthma which has been

> acting

> > > > up

> > > > > > since I developed a lower respiratory infection a couple of

> > > > months

> > > > > > ago.

> > > > > >

> > > > > > My question stems from an unexpected side effect I

> > > noticed. I was

> > > > > > tested with borderline low T a while back but have been on

> the

> > > > > fence

> > > > > > about weather my symptoms are severe enough to warrant

> treating

> > > > it

> > > > > > directly. My energy and mood and some other things have

> been

> > > > off

> > > > > > but not to point where its having a major impact on my

> day to

> > > > day

> > > > > > life and function.

> > > > > >

> > > > > >

> > > > > > The prednisone I'm on to settled my asthma back down has

> had

> > > > > > interesting and unexpected side effect. I have seen a real

> > > > > measurable

> > > > > > positive increase in my energy level and an improvement in

> mood

> > > > and

> > > > > > drive I had not expected. Not excessively but rather

> > > I'd describe

> > > > > the

> > > > > > way I feel now as being what I used to feel was my

> > > normal healthy

> > > > > > level. While I knew I had experienced a gradual decline

> > > in these

> > > > > > areas over the last several years it was hard to

> subjectively

> > > > > measure

> > > > > > how much till I compared it to how I'm feeling now. I

> haven't

> > > > been

> > > > > > feeling sick but right now feel like my general feeling of

> > > > wellness

> > > > > > is better than its been in several years.

> > > > > >

> > > > > >

> > > > > > So here in lies my question . It seems to me, and I

> > > need reality

> > > > > > check on this, that I gleaned somewhere the

> > > testosterone behaves

> > > > > > similarly in the body to the way a steroid like prednisone

> does.

> > > > If

> > > > > > that's is the case I wonder if my T level might just be

> > > the main

> > > > > > culprit in my lower functioning an general feeling of

> > > wellness. I

> > > > > was

> > > > > > unsure if my T level was causing a problem for me

> > > because I never

> > > > > had

> > > > > > the depth of loss of function many of the low T sufferer

> here

> > > > have

> > > > > > had. Now I'm wondering if raising my T level might produce

> the

> > > > > same

> > > > > > sort of improvements.

> > > > > >

> > > > > >

> > > > > > Has anyone who has testing their low T ever been prescribed

> > > > > > prednisone for something and did you see similar kinds of

> > > > > > improvements from treating your low T?

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Hi ! Geoff here.

> Hi, group I have been trying to wean myself off predsione which I have

> been taking for the last 3 yrs. I have developed sleeping disorders,

> and depression does anyone know if this is a direct result of the

> reduction in predsione? thanks for any info?

Some of this is part and parcel of the rheumatic diseases, and some may or

may not be attributable to the drug. Depending on the amount of pain or

swelling taking place, as you wean from the Prednisone and joints swell, it

becomes more difficult for them to bear any pressure and sleeping becomes

fitful. Most rheumatics realize they don't sleep well and many will say

they wake up 10-15 times a night, changing positions, etc. Those married

will hear their spouses complaining of them constantly tossing and turning.

A few years ago I read a sleep study done on rheumatics. They were, to the

person, wrong about how fitful their sleep was. On average they were waking

and changing positions 3x/minute all night long -- every 15-20 seconds.

They slept 4 hours a night. I don't recall the effect of the

corticosteroids or if they were accounted for in the study. But I know from

personal experience the effect of the long-term sleep deprivation. Going on

for years, this results in very premature aging.

For more information on the " side-effects " of prednisone, go to

www.rxlist.com and read all the tabs. Unless you are trained in the field,

the more technical data will be Greek to you, but that's OK, read it anyway

and use an online medical dictionary to educate yourself about the terms --

then bookmark the dictionary (add it to your " Favorites " for sure as

anything your memory is not what you'd like and you'll need that reference

in the future.)

There is a weaning protocol at www.healingyou.org/prednisone.html. You may

want to print that out and see if your doctor thinks it will work for you.

Don't try going it alone. You need to have an allopathic Physician involved

in this as they make their living with these Rx drugs.

HTH (hope this helps)

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing adrenal damage; 100% volunteer staffed.

(Courtesy: Captain Cook's www.800-800-cruise.com)

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  • 1 month later...

I have a question about Prednisone. Over the past few years my

doctor and I have gone through the regular drug cycle that I'm sure

most of you have also gone through Celebrex, Arava, Mtx, etc... and

it always includes a (usually small) what my Rheumy calls a

maintenance dose of Prednisone. I have now been on Enbrel for a

little over a year and it has worked absolute wonders for me but I

can't seem to get completely off the Prednisone. I always work

myself down very very gradually but when I finally get to a stopping

point all together I start have some pretty bad flare ups. I have

seen what long term steroid use can do and it scares me to death. My

ex was on Prednisone for Asthma and he is now in such bad shape

because of it that when he gets a little cough he cracks ribs. He

was in a MINOR fender bender a few weeks ago and was in the trauma

ward for five days. He was taken to his local hospital and was

airlifted from there to Vanderbilt trauma. I'm not kidding either

about it being minor. There was hardly any damage to his or the

other vehicle and he was wearing his seat belt but it really messed

him up. His doctors said it was directly related to long term

Prednisone use. (he is doing better now) I know all drugs can cause

possible side effects especially the ones like Enbrel and I am

willing to take that chance for the benefits because I am of no use

to anyone without it but I truly don't like taking the Prednisone.

Has anyone else had such a problem getting off the Prednisone?

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I too have had trouble getting off of prednisone. Seems like every time we

try that something bad happens. The first time I got shortness of breath

and had a chronic cough for a long time that they could not diagnose and

blamed it on my being fat but it went away with an increase in prednisone.

The doc convinced me to try again a short time ago. This time I am going

into a flare and my liver enzymes are elevated. This may be from changing

cholesterol meds (my insurance company, in their infinite wisdom, didn't

want to spend the money for the one I was on with no trouble. I have blood

work tomorrow and see the the liver doc the day after. Sure hope it is a

tempest in a teapot. I have been on the pred for 7 years and cannot be

comfortable on less than 12 mg. So far have only had some slight thinning

of bones for bad side effects. I have decided that quality of life in the

short run is better than quantity in the long run. Anne

I have a question about Prednisone. Over the past few years my

doctor and I have gone through the regular drug cycle that I'm sure

most of you have also gone through Celebrex, Arava, Mtx, etc... and

it always includes a (usually small) what my Rheumy calls a

maintenance dose of Prednisone. I have now been on Enbrel for a

little over a year and it has worked absolute wonders for me but I

can't seem to get completely off the Prednisone.

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Luckily, I have never had to take Prednisone ~ the doctor wanted to put me on

it, then changed his mind because he said it is also known for increasing the

psoriasis part of the disease. I also told him I would only take it as a last

resort, and again luckily, remicade has worked wonders...

I did all this because of the same exact situation as you. My ex-husband also

was a steroid dependent asthmatic ~ and ended up with similar problems. He was

finally even taken off of the steroid inhalers as he could not heal from even a

scratch... He did use a lot of the bursting treatments when able, to avoid

continuous use, but it was the only drug that kept him breathing, so...

Good luck to you ~ the good news is it sounds like the side effects aren't

impacting you too badly and I'm sure there are others here on the list that can

answer your question...

(idaho)

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hi,

i have a presc in my medicine cupboard for pred which i have not yet

tried, for this very reason - i'm scared to death of the stuff

because my dad was on it for 3 years and could not get totally off

it either.

regarding your ex-husband, i imagine his rib probs with coughing

were possibly due to the fact pred plays serious havoc with bones

and can cause osteoporosis. i'm sure it is likely you already know

about this, but what came to mind when i read your message was

whether or not you have had a bone density test done, to make sure

you don't have any problems in that area...

wish i could help you more. good luck.

karen

>

>

> I have a question about Prednisone. Over the past few years my

> doctor and I have gone through the regular drug cycle that I'm

sure

> most of you have also gone through Celebrex, Arava, Mtx, etc...

and

> it always includes a (usually small) what my Rheumy calls a

> maintenance dose of Prednisone. I have now been on Enbrel for a

> little over a year and it has worked absolute wonders for me but I

> can't seem to get completely off the Prednisone. I always work

> myself down very very gradually but when I finally get to a

stopping

> point all together I start have some pretty bad flare ups. I have

> seen what long term steroid use can do and it scares me to death.

My

> ex was on Prednisone for Asthma and he is now in such bad shape

> because of it that when he gets a little cough he cracks ribs. He

> was in a MINOR fender bender a few weeks ago and was in the trauma

> ward for five days. He was taken to his local hospital and was

> airlifted from there to Vanderbilt trauma. I'm not kidding either

> about it being minor. There was hardly any damage to his or the

> other vehicle and he was wearing his seat belt but it really

messed

> him up. His doctors said it was directly related to long term

> Prednisone use. (he is doing better now) I know all drugs can

cause

> possible side effects especially the ones like Enbrel and I am

> willing to take that chance for the benefits because I am of no

use

> to anyone without it but I truly don't like taking the Prednisone.

> Has anyone else had such a problem getting off the Prednisone?

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Hi Anne,

I suggest that you have your doctor check your parathyroid glands because

prednisone may affect them. That is what happened to me and I was on prednisone

for about four years. This

drug may force these glands to become overactive and pull calcium away from

your bones and increase calcium in your blood serum. Also, Advair may be a

possible substitute for

prednisone, if not Enbrel, or Remicade.

Sincerely,

Reid in Washington DC

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  • 5 months later...
Guest guest

Hi Joan,

My specialist (ENT) told me that the body

naturally makes 5 mg a day. If your body isn’t making it, then he

informed me that this would be a safe amount to take. My mother actually

took this amount for six years but of course long term effects we don’t

know of yet. She stopped taking it about six years ago.

I’ve taken it for six months at a

time but after bone scans I seem to be the same. The worst it affected me

was weight gain and of course feeling as though I was hyper. Sleepless

nights occasionally.

I’d be interested in knowing too,

because I’ve found that Australia

seems to be a long way behind the States as far as Samters goes.

From: samters [mailto:samters ] On Behalf Of Joan Miles

Sent: Monday, 11 July 2005 3:46 AM

samters

Subject: prednisone

I have recently (April) become a chronic prednisone taker,

though only 5mg a day. I am aware of the long term effects, however, does

anyone know at what rate, how much for how long it takes before these effects

are noticeable? My doctor wants me on them until October, for other

health reasons, and then wants to switch me to methotrexate. Anyone

have any expertise about which would be the better choice to go with?

Joan

36, PA

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  • 1 month later...

Hi Jen,

I’ve been put on it a few times a

year and then go off for a while. The only side affect I’ve noticed is

weight gain. The weight goes on fast but isn’t that easy to shed. I have

osteopenia and the doctor still puts me on pred.

Cheers

From:

samters [mailto:samters ] On Behalf Of Roth

Sent: Thursday, 1 September 2005

9:57 PM

samters

Subject: Prednisone

Hi,

Just had a question. How many of you take Prednisone every day on a

regular basis? I have been taking Prednisone at least 20mg everyday for

over 1 yr. I know it is a very dangerous drug, but it's the only way I find any

relief. Once I stop it I get really sick fast. Has anyone experienced any

significant medical problems from prednisone? I know it causes a significant

about of bone loss.

Thanks,

Jen

truelori

<lori@...> wrote:

If you're about to have

surgery I can't think of any reason to do the

aspirin desensitization beforehand.

Lori

> hi and thanks for your responses. Next

question: has anyone tried

the

> aspirin desensitisation before any surgery at

all, and to what

> effect?.Thanks

Stay connected, organized, and protected. Take the tour

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Hi Jen. I have been taking prednisone for a year and a half on a

daily basis. I started at 60 and am down to 10mg. a day. My doctor

would prefer I get to every other day but this is where I feel the

best (better). I have been on/off for 23 years so the damage done

was to be expected. I have osteoporosis pretty bad and take a weekly

bone builder for it. I ended up with fibromyalgia and a lupus like

autoimmune disorder but not sure what contributed to that. Here is

how we figured the daily amount was less than or equal to the bursts

I had been using for years: Say I took a six week course starting

with 60mg. and decreased 10mg. a week til done. 60mg. x 7 = 420mg.,

50mg. x 7 = 350mg., 40mg. x 7 = 280mg., 30mg. x 7 = 210 mg. 20mg. x

7 = 140mg., 10mg. x 7 = 70mg. with a grand total of 1470mg. over the

six week course. I would do this up to at least four times a year.

The grand total at three times was 5880mg. unless I had more than

four bursts. At a maintenance dose of 10mg. daily I would be takig

3650mg. for the year which is less than the bursts totally over the

course. That was the option we chose and it has worked. Talk to your

doctor about how much you took in a year and then go from there. I

would try to get to every other day on a 20mg. dose as that is still

considered high in the medical field. Good luck and let us know how

you are doing. Trudy.

> Hi,

>

> Just had a question. How many of you take Prednisone every day on

a regular basis? I have been taking Prednisone at least 20mg

everyday for over 1 yr. I know it is a very dangerous drug, but it's

the only way I find any relief. Once I stop it I get really sick

fast. Has anyone experienced any significant medical problems from

prednisone? I know it causes a significant about of bone loss.

>

> Thanks,

> Jen

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Trudy, what type of bone builder do you take? I'm on a calcium supplement

but I'm sure there's better around.

Cheers

Re: Prednisone

Hi Jen. I have been taking prednisone for a year and a half on a

daily basis. I started at 60 and am down to 10mg. a day. My doctor

would prefer I get to every other day but this is where I feel the

best (better). I have been on/off for 23 years so the damage done

was to be expected. I have osteoporosis pretty bad and take a weekly

bone builder for it. I ended up with fibromyalgia and a lupus like

autoimmune disorder but not sure what contributed to that. Here is

how we figured the daily amount was less than or equal to the bursts

I had been using for years: Say I took a six week course starting

with 60mg. and decreased 10mg. a week til done. 60mg. x 7 = 420mg.,

50mg. x 7 = 350mg., 40mg. x 7 = 280mg., 30mg. x 7 = 210 mg. 20mg. x

7 = 140mg., 10mg. x 7 = 70mg. with a grand total of 1470mg. over the

six week course. I would do this up to at least four times a year.

The grand total at three times was 5880mg. unless I had more than

four bursts. At a maintenance dose of 10mg. daily I would be takig

3650mg. for the year which is less than the bursts totally over the

course. That was the option we chose and it has worked. Talk to your

doctor about how much you took in a year and then go from there. I

would try to get to every other day on a 20mg. dose as that is still

considered high in the medical field. Good luck and let us know how

you are doing. Trudy.

> Hi,

>

> Just had a question. How many of you take Prednisone every day on

a regular basis? I have been taking Prednisone at least 20mg

everyday for over 1 yr. I know it is a very dangerous drug, but it's

the only way I find any relief. Once I stop it I get really sick

fast. Has anyone experienced any significant medical problems from

prednisone? I know it causes a significant about of bone loss.

>

> Thanks,

> Jen

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I'm not sure what's significant to you, so I'll just tell you what I

dealt with. I was on daily for about 2 years. I already have bone

loss which isn't supposed to show yet, so maybe I always did. (?) I

have purple striations at all skin-stretch points, which are

permanent. I'm working on losing the last 20 of the 80 pounds I

gained, but I've found that my weight is much more of a struggle than

it used to be.

As to peripheral but related issues: While I was still on prednisone,

I got an infection in my foot. It required a year of highly-painful

weekly laser surgeries to fix. Additionally, when I first went off, I

had female issues and continue to have them to some extent.

While I was on it, my appearance was shot. My hair fell out. I got

the buffalo hump. I had that weird mid-body and facial weight-gain

that you get. And just the weight itself of course. Compounding that

was my emotional state which was decidedly not-good.

My understanding is that this doesn't happen to everyone, but I'll

never go back to that. I think everyone has to make their own

decisions. But, I wouldn't trust doctors who say it's no big deal and

not to worry about it. Because that's not realistic either.

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Jen: I think it is one of those things that you just have to bite the bullet and take it. It is definitely a double edged sword. Carol Prednisone

Hi,

Just had a question. How many of you take Prednisone every day on a regular basis? I have been taking Prednisone at least 20mg everyday for over 1 yr. I know it is a very dangerous drug, but it's the only way I find any relief. Once I stop it I get really sick fast. Has anyone experienced any significant medical problems from prednisone? I know it causes a significant about of bone loss.

Thanks,

Jentruelori <lori@...> wrote:

If you're about to have surgery I can't think of any reason to do the aspirin desensitization beforehand.Lori> hi and thanks for your responses. Next question: has anyone tried the > aspirin desensitisation before any surgery at all, and to what > effect?.Thanks

Stay connected, organized, and protected. Take the tour

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WOW! I really feel for you... That is awful. How much prednisone were you taking daily for 2 yrs.? I have noticed a little weight gain and I have a very full face. As well as my hair is falling out a lot. It is a shame that the only drug that gives real relief can also make you so sick. How do you feel now that your off of it altogether?

jessafeiler3 <jessafeiler@...> wrote:

I'm not sure what's significant to you, so I'll just tell you what I dealt with. I was on daily for about 2 years. I already have bone loss which isn't supposed to show yet, so maybe I always did. (?) I have purple striations at all skin-stretch points, which are permanent. I'm working on losing the last 20 of the 80 pounds I gained, but I've found that my weight is much more of a struggle than it used to be.As to peripheral but related issues: While I was still on prednisone, I got an infection in my foot. It required a year of highly-painful weekly laser surgeries to fix. Additionally, when I first went off, I had female issues and continue to have them to some extent.While I was on it, my appearance was shot. My hair fell out. I got the buffalo hump. I had that weird mid-body and facial weight-gain that you get. And

just the weight itself of course. Compounding that was my emotional state which was decidedly not-good.My understanding is that this doesn't happen to everyone, but I'll never go back to that. I think everyone has to make their own decisions. But, I wouldn't trust doctors who say it's no big deal and not to worry about it. Because that's not realistic either.

Start your day with - make it your home page

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I was on 10-20 daily, which I think it standard dosage. I tried five

for a couple of weeks, but it didn't work for me. Some people have

success with every-other-day dosage, so you might want to try that

if you haven't. It's supposed to mitigate the side effects.

It's funny, but the hair was one of the hardest parts for me (mine's

waist-length), so I hope you're doing okay with that. Funny how

something so insignificant can define us. I'm not quite sure why I

got as blimpy as I did. I'm happy to hear that you haven't

experienced weight gain to the same degree, although any is always

hard to deal with.

I'm... I don't know how I am. Happier, I guess. More resigned, too.

I've become accustomed to frequent inhaler usage (maybe 10 times a

day, with better and worse days) and I've limited what I can do a

little bit. (No more walking to the library at 7th & Chestnut from

my apartment.) I take Singulair and Proventil and Nexium (prednisone

fried the acid valves), though I can't take inhaled steroids. On

some level, I accept that perfection isn't really in the cards. And

I work a less-strenuous desk-type job that mostly requires mental

acrobatics as opposed to physical ones. I think I've learned to

push - just to keep pushing as hard as I possibly can. For example,

I haven't taken a sick day since I started at my job in August of

2004. I figure if I got through law school before and during

prednisone, I can do this now. You know what I mean? Definitely

doesn't work for everyone, but I'm not sure what else to do.

Regardless, I won't go back to prednisone. It was just too much bad.

My doctor knows (but does not approve) of my stance on this which

is, in short: I'd rather be dead. Literally. That's my own stance

and I'm definitely not encouraging it.

> WOW! I really feel for you... That is awful. How much prednisone

were you taking daily for 2 yrs.? I have noticed a little weight

gain and I have a very full face. As well as my hair is falling out

a lot. It is a shame that the only drug that gives real relief can

also make you so sick. How do you feel now that your off of it

altogether?

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In reference to all the prednisone side effects, I am writing a series of

articles on the CSS web site about issues related to prednisone usage. I

have written two and have a third one in the wings. I will mostly be writing

about secondary problems related to steroids and how to cope with them. For

those of you who take it long term it might be worth perusing. Carol

www.cssassociation.org

Re: Prednisone

>I was on 10-20 daily, which I think it standard dosage. I tried five

> for a couple of weeks, but it didn't work for me. Some people have

> success with every-other-day dosage, so you might want to try that

> if you haven't. It's supposed to mitigate the side effects.

>

> It's funny, but the hair was one of the hardest parts for me (mine's

> waist-length), so I hope you're doing okay with that. Funny how

> something so insignificant can define us. I'm not quite sure why I

> got as blimpy as I did. I'm happy to hear that you haven't

> experienced weight gain to the same degree, although any is always

> hard to deal with.

>

> I'm... I don't know how I am. Happier, I guess. More resigned, too.

> I've become accustomed to frequent inhaler usage (maybe 10 times a

> day, with better and worse days) and I've limited what I can do a

> little bit. (No more walking to the library at 7th & Chestnut from

> my apartment.) I take Singulair and Proventil and Nexium (prednisone

> fried the acid valves), though I can't take inhaled steroids. On

> some level, I accept that perfection isn't really in the cards. And

> I work a less-strenuous desk-type job that mostly requires mental

> acrobatics as opposed to physical ones. I think I've learned to

> push - just to keep pushing as hard as I possibly can. For example,

> I haven't taken a sick day since I started at my job in August of

> 2004. I figure if I got through law school before and during

> prednisone, I can do this now. You know what I mean? Definitely

> doesn't work for everyone, but I'm not sure what else to do.

>

> Regardless, I won't go back to prednisone. It was just too much bad.

> My doctor knows (but does not approve) of my stance on this which

> is, in short: I'd rather be dead. Literally. That's my own stance

> and I'm definitely not encouraging it.

>

>

>> WOW! I really feel for you... That is awful. How much prednisone

> were you taking daily for 2 yrs.? I have noticed a little weight

> gain and I have a very full face. As well as my hair is falling out

> a lot. It is a shame that the only drug that gives real relief can

> also make you so sick. How do you feel now that your off of it

> altogether?

>

>

>

>

>

>

>

>

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ok i had to write in about prednisone. i have had asthma all my life(my first

attack was

when i was 1) but the first time i had to go on prdenison was when i was 15 and

was in the

hospital for 3 days from an asthma attack. i am now 28 and have been on

prednisone off

and on for the past 13 years. 5 years ago i found out that i had osteopenia nad

took

fosomax for a year and now my bones are normal. i have gained weight nad even

have the

beginnings of cataracts. i have fibromyalgia and systemic candida which i am

having luck

treating with a product called threelac. i am an emotional wreck when i am on

more than

20 mg. how can something that helps so well be so bad? a few years ago i had a

healthy

streak in which i did not need prednisone for over a year and hardly used my

inhaler. that

was when i started acupuncture and eiminated dairy (which i have been eating but

should

stop again). dairy really does aggravate asthma. and another thing taht our

great

westernized american medical community is not accurate about is that dairy

products

actually contain calcium taht is not absorbed into our bones very well.

vegetables and

supplements are the best sources. there is alot of info out there about this,

look how

cultures like the chinese hardly ever eat dairy but have much lower rates of

osteporosis.

anyways, that is off the subject. i hate taking pred and try not to but

sometimes my

polpys are literally starting to come out of my nostrils and i have to.

hopefully my surgery

this month will help.

also, how many of you have found out that you have bone erosion in your sinuses?

laura

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HI Carol,

I've never really been able to get off prednisone for any length of time in 9 years. Lately when I get lower than 15 every other day, i get really sick and then I'm right back up to a 60 mg taper and big antibiotics for what tends to be a serious bacterial infection--I've also been treated for two aspergillus infections. So which side of the sword is the least frightening, the least debilitating???

I'll read your CSS articles and thanks for the "heads up."

Liz Carol <shedokdo@...> wrote:

In reference to all the prednisone side effects, I am writing a series of articles on the CSS web site about issues related to prednisone usage. I have written two and have a third one in the wings. I will mostly be writing about secondary problems related to steroids and how to cope with them. For those of you who take it long term it might be worth perusing. Carol www.cssassociation.org----- Original Message ----- From: "jessafeiler3" <jessafeiler@...><samters >Sent: Thursday, September 01, 2005 3:25 PMSubject: Re: Prednisone>I was on 10-20 daily, which I think it standard dosage. I tried five> for a couple of weeks, but it didn't work for me. Some people have> success with every-other-day dosage, so you might want to try

that> if you haven't. It's supposed to mitigate the side effects.>> It's funny, but the hair was one of the hardest parts for me (mine's> waist-length), so I hope you're doing okay with that. Funny how> something so insignificant can define us. I'm not quite sure why I> got as blimpy as I did. I'm happy to hear that you haven't> experienced weight gain to the same degree, although any is always> hard to deal with.>> I'm... I don't know how I am. Happier, I guess. More resigned, too.> I've become accustomed to frequent inhaler usage (maybe 10 times a> day, with better and worse days) and I've limited what I can do a> little bit. (No more walking to the library at 7th & Chestnut from> my apartment.) I take Singulair and Proventil and Nexium (prednisone> fried the acid valves), though I can't take inhaled steroids. On> some level, I accept that perfection isn't really in

the cards. And> I work a less-strenuous desk-type job that mostly requires mental> acrobatics as opposed to physical ones. I think I've learned to> push - just to keep pushing as hard as I possibly can. For example,> I haven't taken a sick day since I started at my job in August of> 2004. I figure if I got through law school before and during> prednisone, I can do this now. You know what I mean? Definitely> doesn't work for everyone, but I'm not sure what else to do.>> Regardless, I won't go back to prednisone. It was just too much bad.> My doctor knows (but does not approve) of my stance on this which> is, in short: I'd rather be dead. Literally. That's my own stance> and I'm definitely not encouraging it.>> >> WOW! I really feel for you... That is awful. How much prednisone> were you

taking daily for 2 yrs.? I have noticed a little weight> gain and I have a very full face. As well as my hair is falling out> a lot. It is a shame that the only drug that gives real relief can> also make you so sick. How do you feel now that your off of it> altogether?>>>>>>>>

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  • 3 months later...

Hi Clara,

What dosage of pred are you on?

I'm taking 9mg daily and am 15 years post-tx. I haven't had a lot of

problems post-tx but when do it seams to be that sinus infections

are the majority.

>Just before Christmas, I had a set of tests for head pressure and

>thumping in my neck and head. The doctor is sending me to a

>cardiologist, because my valves are not closing as well as they

>should in my heart, but they also discovered, that I have 2 large

>masses of sinus infection in my sinus cavity. I have had post nasal

>drip for years and it has effected my

>lung/breathing/caughing/asthma. The last 4-6 months though I

>thought I had progresseed to fairly good breathing and no caughing.

>I do not feel the sinus mass, but it did show up on the MRI/MRA of

>my head/neck, according to my doctor. So she put me on

>3prednisone/day and Bactrim DS ( some sulfa form of antibiotic?)

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Dianna, Thanks for the info.

The doctor started me off on 3x 20mg/day for a week with a sulfa antibiotic,

Bactrim. ( then I was supposed to cut to 2pills /day for a week and then 1 per

day for a week. ) Monday I could not stand the 3 pills so I just took 1 (20

mg) and Tuesday I called the doctor. She said I had to take 2/day one morning

and one at night. Of course I cannot sleep, but I can tolerate it better , I

think. Today is the second day on that regiment. My sinus infection is

definitely better, and may even clean up some of what has been called my

" asthma/coughing " .

And I am sorry if this is not exactly Liver stuff, but actually I think it is

definitely connected with all my Autoimmune diseases and my liver cirrhosis.

Clara from OR

Re: [ ] Prednisone

Hi Clara,

What dosage of pred are you on?

I'm taking 9mg daily and am 15 years post-tx. I haven't had a lot of

problems post-tx but when do it seams to be that sinus infections

are the majority.

>Just before Christmas, I had a set of tests for head pressure and

>thumping in my neck and head. The doctor is sending me to a

>cardiologist, because my valves are not closing as well as they

>should in my heart, but they also discovered, that I have 2 large

>masses of sinus infection in my sinus cavity. I have had post nasal

>drip for years and it has effected my

>lung/breathing/caughing/asthma. The last 4-6 months though I

>thought I had progresseed to fairly good breathing and no caughing.

>I do not feel the sinus mass, but it did show up on the MRI/MRA of

>my head/neck, according to my doctor. So she put me on

>3prednisone/day and Bactrim DS ( some sulfa form of antibiotic?)

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  • 4 weeks later...

Did you tell your rheumy about your prior experience? That is very

important. I have an online friend who has bad reactions to cortisone and

has to be hospitalized when she is prescribed the stuff. She has serious

emotional reactions.

I was just on a burst of 69-40-20 and though I have had the stuff many times

in the past, this time I was a bit of a pain emotionally. Unfortunately we

were in the midst of a move and the stress of that on top of my reactions to

the prednisone wasn't pleasant for my poor husband. I told him what was

doing it and that I was trying to behave myself but I felt like a real heel

acting the way I did.

I hope you will call the rheumy and talk to the nurse anyway.

Please let us know how it all comes out.

GA

By the thrid day, I was so disoriented and feeling out of

> control and crazy. Even the taper was feeling funny. So, I've not

> filled my perscription yet for it, I " m unsure about what to do.

>

>

>

>

>

>

>

>

>

>

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HI

Yes, I was an emotional mess! and Yes, I did share my experience with

the Rheumy right then and there. She assured me that the 20 mg 3 x a

day was way too much and that I should not have that kind of a

reaction with 10 mg once a day.

After yesterdays event, I'm highly considering trying the prednisone

agaoin.

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