RE: Re: REVIEW - Correct use of MTX

[Guest guest]

Hi ,

 

About 12 yrs ago, I experienced methotrexate toxicity.  For me, and I don't know

if this is how it affects everyone, it expressed via my lungs.  I developed a

persistant cough and shortness of breath that lasted for weeks.  I thought I had

pneumonia as I could not even trudge slowly up a flight of stairs (taking about

10 minutes to climb 12 steps), without collapsing to my knees, gasping for air

at the top of the steps.  I was basically confined to my bed.  Eventually I

figured out (not my family practioner, mind you, it was me who thought of it)

that it was the methotrexate.  I called my Rheumatologist who told me to stop

the MTX and in 24 hrs I was back to normal.  Further testing by a pulmonologist

revealed no permanent respiratory damage.  So that's my story

Sheryl

From: <ntrojo@...>

Subject: [ ] Re: REVIEW - Correct use of MTX

Date: Sunday, June 20, 2010, 9:48 AM

 

Hello all,

I am new to the list, but 8 years from first diagnosis. I am only on

Methotrexate as I am afraid of the " big drugs " . My rheumatologist assures me

Methotrexate is benign. I am skeptical about that. My question is: What are the

signs of toxicity from Methotrexate? My RA as escalated in the last 4 months

with nodules forming and big loss of agility and pain in my hands.

Thank you all for your support and I hope to learn much from the experiences of

the group,

Rojo in Grass Valley, CA

[Guest guest]

Sheryl

How long were you on the Methotrexate before the toxicity?

Judi

_____

From: [mailto: ] On

Behalf Of Sheryl

Sent: Sunday, June 20, 2010 2:58 PM

Subject: Re: [ ] Re: REVIEW - Correct use of MTX

Hi ,

About 12 yrs ago, I experienced methotrexate toxicity. For me, and I don't

know if this is how it affects everyone, it expressed via my lungs. I

developed a persistant cough and shortness of breath that lasted for weeks.

I thought I had pneumonia as I could not even trudge slowly up a flight of

stairs (taking about 10 minutes to climb 12 steps), without collapsing to my

knees, gasping for air at the top of the steps. I was basically confined to

my bed. Eventually I figured out (not my family practioner, mind you, it

was me who thought of it) that it was the methotrexate. I called my

Rheumatologist who told me to stop the MTX and in 24 hrs I was back to

normal. Further testing by a pulmonologist revealed no permanent

respiratory damage. So that's my story

Sheryl

[Guest guest]

Hi Judy,

 

Oh my....that's a good question.  It was a long time ago.  First I was on

ibuprofen, then when that quit working I switched to Sulidac.  Then we added

Plaquinel and then Methotrexate.  This all occcured over about a 5 or 6 yr

period of time.  I'd guess I was on the MTX anywhere from 6 months to a year.

Sheryl

From: Judi Yaeger <djrsyaeger@...>

Subject: RE: [ ] Re: REVIEW - Correct use of MTX

Date: Sunday, June 20, 2010, 4:34 PM

 

Sheryl

How long were you on the Methotrexate before the toxicity?

Judi

_____