Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Liz! Your story is a lot like mine. The medical community lies, lies, lies. I'm not being paranoid here, but my experiences have made me very distrustful of doctors. The mental health community is no better. You are totally stripped of your rights, just for wanting help. And, the meds, while helpful, aren't the end all solution they're made out to be. While it's great to have your mind and emotions calm down, the body is still just about as ill as before. Only thing that helps is being able to relax. Candida ramps the body up; all the systems are out of control. >Most of the mental cases were alcoholics and drug addicts. >A few scary psychotic people and many women suffering from >severe depression. After I have been there for 1 week and >they upped my medication from 50mg to 250mg in four days >they presented me with a paper to sign telling me that the >length of stay in this hospital is anywhere from 30-60 days!!!! >I told that nurse that I was only admitted for 10 days and >I am NOT signing a paper for that length of time. (I could >stand on my own because I signed myself in and wasn't suicidal) Oh, yeah. That's incredibly frightening. You wonder, what am I doing here with people like this. Do I really look this nuts to the medical community? They told me I'd be out in two days. They told me that I could release myself in three, if they didn't. All lies. > >15 years later I am still getting the medical diagnosis-somatic- run around. >I just recently found a good doctor that has been addressing most of my >problem, not my fungus tho. I am just hoping that I am at least half way >there. But I have to tell you that my confidence is so low I do not want >to go into another doctors office and tell them my history. Soon as I open >my mouth I am pegged. Each time I come home from these visits I become so >depressed, I can't stop sobbing for 3 days. Then I am left stunned and >void. Oh, yeah, I've been there. The trip to a disbelieving doctor is a major traumatic event. One gets condesended to, lied to, and shamed. > >By the way, I do think of committing suicide. I never felt I should tho. I >had been praying for a long time and was looking for a time when my prayer >would be answered. I'm still waiting.... >Also I used those in my congregation to fall back on. Boy was that a >disappointment >too. I left religion. I believe in God, but not people who believe in God. >This is a never ending subject but I thought I would mention it because I >know for sure others have faced the same story as I have with religion. >Not getting well, "your not trying hard enough, your not praying enough, >there must be a reason God is not answering your prayers, are you living in >harmony with the bible" And then you are avoided because you are not viewed >as spritualy strong. Talk about low self esteem. Oh, I had the same experience when I was in Texas several years back and tried to join a friend's congregation! It was very charasmatic and supposedly they had a history of successful faith healing. Sounds stupid now, but I wanted to connect with God, to make more sense of the illness. These act as if you don't want to be well. They shame you, they look for excuses (your 'sinful' nature, your 'lack of faith'), they don't believe in your disease, and they frowned upon my use of alternative medicine. I think they thought that homeopathy was 'magic' and 'of the devil'. Not only didn't any of this behavior help me, I had a major downturn afterwards. Both doctors and some aspects of the religious community almost prey upon the weak, the defenseless, and powerless, and the confused. It's terrible when you have to use what little energy you have to fight for your self esteem. >Oh, one last thing, I went to the doctor about a burning down below and I >asked her to take a swab because this had to be yeast. She told me "No, >because every thing looks all right down there." To her naked eye maybe >but not under a microscope. Happened to me. The doctor laughed when I said I had a yeast infection. Then, she gave me birth control pills, in spite of my never asking for them. I threw the damned things away, as I knew they were wrong for a candida patient. Thanks for everyone sharing their experiences with me. BarbGet your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2001 Report Share Posted July 15, 2001 Hi Barb: I'm glad your son is having such a positive response to the prednisone. It does help in amazing ways, doesn't it. It's just as well you son is eating so well. There was a study posted a while back about kids with systemic having faster running metabolisms than other kids, and need about 30% more calories per day than others to maintain a weight. Our house is the opposite of yours - I think my husband feels like the lone male. There's me, our two daughters, 2 female cats, two female dogs! Oh well! Mickey is still doing well - two weeks plus off prednisone now and still okay. I am so amazed and grateful. Hope all continues well with you and your son(s)! Lynn From: owits@... Reply- Date: Thu, 12 Jul 2001 09:36:25 EDT Subject: Re: Mickey off prednisone! Hi Lynn, congratulations on your new home. I'm kinda new to this group, although I've been reading about it for over a month. My son is 8 and has systemic JRA. He was diagnosed in June and is now on methatrexate and prednisone plus some other stuff. The prednisone has been a miracle drug for us because right after his first dose he returned to the little boy he was before all this started....no pain, fevers or swelling. He started on 40mg. but is now at 30mg. Wow is he ever eating which we were told to expect. He went from 63 lbs. and eating maybe a half of a hot dog for a meal to eating everything not moving and 71 lbs. I have 4 boys...2 of them teenagers and with my husband..that's 5 males in the house and they're litterly eating me out of house and home. I pray he gets to where your daughter is and the methatrexate injections kick in. It was comforting to read her progress and I pray she can stay off the prednisone. Good luck!!! Barb To manage your subscription settings, please visit: For links to websites about JRA: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2001 Report Share Posted July 18, 2001 Hi Lynn, Wow....30% more calories per day.....I can't believe that. Wonder why it's kids with systemic? We're at cub scout day camp all week and so far he's holding up really well. I'm going along in case he can't make it all day so he doesn't have to sit and wait to go home on the bus. His friends from school haven't seen him for awhile and were asking how he got such fat cheeks. I think he's alittle embarrassed. Did Mickey get like that when she was on prednisone? Right now, we're waiting for a call from the rheum. to see how his blood work looks and maybe to lower his prednisone. I'm keeping my fingers crossed. Take care, Barb and Chase Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 Barbara happy anniversary to you too - wow 17 yrs - congratulations. I feel like I've been married for 37 years now, but it's only been almost 8 Anyway, congratulations. Dawn , I hope you enjoyed each other in spite of the phone calls. Happy Anniversary! I will be celebrating my 17th also on June 25. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Hey Barb I am still waiting for that lunch. Friendly's - Fridays - anything is fine with me Talk to you soon. Dawn LOL, Dawn you are so funny, thanks for the laugh! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Sounds great Dawn, My girlfriend who lived in Stanton now moved last weekend (with my families help, I'm exhausted) to claymount so I'm sure I can arrange something where we can get together and I can stay at her place if you still want to do something at night. Or lunch is fine also. Will let you know real soon. Barb " D & A@Dayton " <dayton@...> wrote: Hey Barb I am still waiting for that lunch. Friendly's - Fridays - anything is fine with me Talk to you soon. Dawn LOL, Dawn you are so funny, thanks for the laugh! Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Fania, I have had two therapists do this with us also. They stressed very strongly that both my husband and I had to be " on the same page " . would play one parent against the other, since my husband works third shift he doesn't see the kids much. The kids learned that since Dad didn't know what was going on around the house 24/7, they would go to him to get what Mom said they couldn't have. Kids, you have to love them! My husband now checks with me before he fills any request. Barb Uplift <uplift@...> wrote: >>>>>>Good Luck with the visit, I hope the psych has some answers for you. I know how stressful it is dealing with this since that is where we were a year ago. Sending you lots of hugs! Barb<<<< thanks, Barb.... the psych suggested checking with ds if he might have misconstrued us not taking him to the psych with us because " we gave up on him getting better " . the original idea was that after ds decideds if he wants to see this psych regularly, dh and me would go for a few sessions alone, and then he will start going by himself. meantime, this psych is really good and is getting dh to do things I haven't even dreamed he would eventually change and do, lol , I haven't decipher the magic yet, but I am keeping the appointments going, lol !! the psych said he needs us to be on mutual grounds before he can treat ds,. i agree. but now he suggestted that maybe ds misunderstood why we are going and not him anymore...... we will try to discuss it with ds..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 >>>>>>Good Luck with the visit, I hope the psych has some answers for you. I know how stressful it is dealing with this since that is where we were a year ago. Sending you lots of hugs! Barb<<<< thanks, Barb.... the psych suggested checking with ds if he might have misconstrued us not taking him to the psych with us because " we gave up on him getting better " . the original idea was that after ds decideds if he wants to see this psych regularly, dh and me would go for a few sessions alone, and then he will start going by himself. meantime, this psych is really good and is getting dh to do things I haven't even dreamed he would eventually change and do, lol , I haven't decipher the magic yet, but I am keeping the appointments going, lol !! the psych said he needs us to be on mutual grounds before he can treat ds,. i agree. but now he suggestted that maybe ds misunderstood why we are going and not him anymore...... we will try to discuss it with ds..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 <<<<<<I have had two therapists do this with us also. They stressed very strongly that both my husband and I had to be " on the same page " . would play one parent against the other, since my husband works third shift he doesn't see the kids much.>>>>> yes, I see the point. in our case it is not about playing one against the other, but rather that he felt we did not organize our energies enough, and so we spent a lot of energy in a way that was not the most effective. Besides, it is very important taht when you implement a plan, all familyu members understand what the plan i and how to follow it, and in the case of our kids with AS it is crucial that everyone does the same...... I know the value of this as a professional myself as well... F Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 > the psych suggested checking with ds if he might have misconstrued us not taking him to the psych with us because " we gave up on him getting better " . the original idea was that after ds decideds if he wants to see this psych regularly, dh and me would go for a few sessions alone, and then he will start going by himself. meantime, this psych is really good and is getting dh to do things I haven't even dreamed he would eventually change and do, lol , I haven't decipher the magic yet, but I am keeping the appointments going, lol !! Fania, That's funny. My husband, who has rarely met any of the kids' pediatricians, eye dr, orthodontists, psychs, dentists, neurologist, OT (who went to weekly for a year and a half), etc. has been looking like Father of the Year with this new psych. Every appointment, there he is...sometimes dashing in at the last minute apologetic about the train running late, but always looking like the devoted father. Of course, I " M THE ONE who is actually dealing with these kids all week while he's at work or cutting his precious grass. But for one hour a week, he manages to come out smelling like a rose! LOL! I've even teased him that he looks like such a devoted father and I (who actually has to interact with the kids) look like the hot head at times. But the good thing about it is the both kids are getting the message that we're in this together and my husband is hearing someone else (instead of me) explain why our sons are the way they are. I think it's been a good wake up call for him. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Barbara YES - i got them - sorry - I had one birthday party/picnin yesterday and another birthday party today. I will private email you Dawn yes, has been home since the end of March. Did you get my email about getting together? Please let me know what we are doing ASAP please. Thanks Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 no problem, look forward to it. barb " D & A@Dayton " <dayton@...> wrote: Barbara YES - i got them - sorry - I had one birthday party/picnin yesterday and another birthday party today. I will private email you Dawn yes, has been home since the end of March. Did you get my email about getting together? Please let me know what we are doing ASAP please. Thanks Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Hi Barb, I'm so glad to hear from you and glad you're okay. I just knew you had been feeling pretty bad, and after what you went through during Christmas, well...I was worried. I'm so sorry about your aunt. That's really hard. I'm very close all but one of my aunts, and I just can't imagine something happening to them. I imagine you are exhausted after going through that...on top of already feeling bad. I'm glad your doctor is committed to finding out what's wrong with you. Hang in there, lady! {{Big Hug}}, Sheila P.S. How's the weather in Connecticut? We had almost 50 degrees here today. It was such an incredible day! We were out without our coats...went and had lunch with some friends. You're not going to believe what I did!! Boy was I naughty today! I had a margarita with my meal. I know, I know...that's like the worst thing for me...bad for my health. But OMG, it's been like a year since I'm had a drink, and I wanted one so bad!!! So I gave into tempation. I know I shouldn't have, but boy did I enjoy it!!! I didn't use my inhaler today, and I didn't take any meds other than my Armour (I'm off almost everything now), so I don't think it was too dangerous to indulge myself. But I won't do that again for a LONG time. well, my dear...now that I'm done confessing, I'd better start cooking. I'm hungry again!!! Take care!!! sheila BARBARA SCHULZ <beschulz@...> wrote: Hey Sheila: Thanks for the concern. The first batch of tests came back okay. I talked with my doc yesterday and asked him about adrenal fatigue. I had dropped off some info I found on the net. He read it over the weekend and said that, according to the symptoms, he did not think I had that. I asked him if he thought there might be a conversion problem and he said that was definitely a possibility. I am going back for some more bloodwork today, testing for conversion and mono. He doesn't want to leave any options open in trying to determine why I'm fatigued like I am. I wasn't on very much last week. My aunt died, so there were wakes and funeral to attend. I was so wiped out on Saturday afternoon that I slept for 3 hours and then I slept thru the night, which is unusual as I usu. wake up sometime between 2 and 4 each morning. Hangin' in there, Barb Kemal And Sheila Kalajdzic <kemalandsheila@...> wrote: Hi Barb, I hadn't heard from you in a while and was wondering how you're doing. I'm concerned because I know you've been feeling pretty lousy lately. Let me know how you're doing. I know I'm probably a worry-wart, but I'm still.... Concerned, Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi Barb, I am going for a sleep study March 8th, just because my dr. wants to eliminate all causes of fatigue. I'm glad! Just curious - do you feel tired all day, or is there a time when you get a little energy? I start feeling awake about the time I should wind down - 4 or 5 in the afternoon. I always wake up exhausted. I'm trying to figure out why that may be, and am looking at diet, supplements, etc to see if I can find any correlation anywhere. > Keisha, > > You did it, girl!!! > > Hey all: > > I am going for my sleep study on March 19th. Hopefully this will show some reason for my being so fatigued. > > Tina and Gracia: > > I will ask my doc about the adrenal and DHEA levels. For some reason he seems to not want to test the adrenals. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2004 Report Share Posted February 28, 2004 how has your weekend been, barb? any better? hugs, sheila BARBARA SCHULZ <beschulz@...> wrote:Hi Dora: Usu. when I wake up tired, it does not improve. A day like today, I'll be ready for bed by the time 5:00 comes around. (I've even been too tired to eat!) I'm even having problems at work today doing things I've been doing for 30 years and, now, my nose is bleeding again. Don't know if the two things are related or not. Dora Medina <zenned1@...> wrote: Hi Barb, I am going for a sleep study March 8th, just because my dr. wants to eliminate all causes of fatigue. I'm glad! Just curious - do you feel tired all day, or is there a time when you get a little energy? I start feeling awake about the time I should wind down - 4 or 5 in the afternoon. I always wake up exhausted. I'm trying to figure out why that may be, and am looking at diet, supplements, etc to see if I can find any correlation anywhere. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 your symptoms are adrenal. Sleep studies are popular now but you won't get the right help being plugged into a machine. Docs just don't treat thyroid/adrenal problems well. Gracia > Hi Barb, > > I am going for a sleep study March 8th, just because my dr. wants to > eliminate all causes of fatigue. I'm glad! > > Just curious - do you feel tired all day, or is there a time when > you get a little energy? I start feeling awake about the time I > should wind down - 4 or 5 in the afternoon. I always wake up > exhausted. I'm trying to figure out why that may be, and am looking > at diet, supplements, etc to see if I can find any correlation > anywhere. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Hey Sheila: Our family had a weekend of highs and lows. My brother ended up in the hospital in L.A. over the weekend. He is fighting cancer. It turns out that his cancer has gone to his spine, in the bone and also one tumor on the spine. The tumor on his spine is puttung pressure on the nerves that control kidney, intestines, stomach. He is planning on haveing nine days of chemo (three diff. types) in the hope that it will shrink the tumor so they can easily remove it. Needless to say, we were emotional wrecks all weekend. So I know that I was emotionally drained. My sister and I had to tell our mom about all of this, too. We've been shielding her from some of this as she has a bad heart and her doctor has told us that she is extremely fragile. I fell asleep both nights on the couch before 10 p.m. I am tired today, but again, I think it is due to the emotional weekend. Barb Kemal Kalajdzic <kemalandsheila@...> wrote: how has your weekend been, barb? any better? hugs, sheila BARBARA SCHULZ <beschulz@...> wrote:Hi Dora: Usu. when I wake up tired, it does not improve. A day like today, I'll be ready for bed by the time 5:00 comes around. (I've even been too tired to eat!) I'm even having problems at work today doing things I've been doing for 30 years and, now, my nose is bleeding again. Don't know if the two things are related or not. Dora Medina <zenned1@...> wrote: Hi Barb, I am going for a sleep study March 8th, just because my dr. wants to eliminate all causes of fatigue. I'm glad! Just curious - do you feel tired all day, or is there a time when you get a little energy? I start feeling awake about the time I should wind down - 4 or 5 in the afternoon. I always wake up exhausted. I'm trying to figure out why that may be, and am looking at diet, supplements, etc to see if I can find any correlation anywhere. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 hey Barb! oh man, I'm really sorry that your brother and your family are going through this. when someone you love is very ill and battling to overcome a serious illness, it's just one of the hardest things to cope with. my mom was diagnosed with cancer and had surgery last Dec. I never thought of it before, but that was the month I was bombarded with thyroid symptoms. i thought it was stress at first. I had taken a new as a supervisor in the dietary dept. at the hospital also that same month. I chalked everything up to that and the emotional upheaval i went through when I learned my mom had cancer. I know now that stress does indeed make thyroid symptoms worse. anyway, my mom is doing great now, but for me, it was so hard to think face what my life will be like without her. i just don't want to see my parents suffering and hurting. my parents are very, very close and have been married 40 years. i can't imagine how hard this has been for my father and my stomach just gets in knots and hurts. and i felt so guilty because I couldn't be there when she had surgery. anyway, it also made me face my own mortality issues...not a fun experience. I'm very lucky that my mom has been cancer-free since her surgery. I just know I would be an emotional wreck if she wasn't in remission and having to go through chemo. I just wanted you to know my thoughts and prayers are with you and your family and also and her family. Her sister-in-law is battling breast cancer. Get as much rest as you can. Don't forget to eat. You said in an earlier post you get so tired you don't have energy to eat. At least try to nibble. You need to keep your strength up. Your body needs a lot of energy. {{big hug}} sheila BARBARA SCHULZ <beschulz@...> wrote: Hey Sheila: Our family had a weekend of highs and lows. My brother ended up in the hospital in L.A. over the weekend. He is fighting cancer. It turns out that his cancer has gone to his spine, in the bone and also one tumor on the spine. The tumor on his spine is puttung pressure on the nerves that control kidney, intestines, stomach. He is planning on haveing nine days of chemo (three diff. types) in the hope that it will shrink the tumor so they can easily remove it. Needless to say, we were emotional wrecks all weekend. So I know that I was emotionally drained. My sister and I had to tell our mom about all of this, too. We've been shielding her from some of this as she has a bad heart and her doctor has told us that she is extremely fragile. I fell asleep both nights on the couch before 10 p.m. I am tired today, but again, I think it is due to the emotional weekend. Barb Kemal Kalajdzic <kemalandsheila@...> wrote: how has your weekend been, barb? any better? hugs, sheila BARBARA SCHULZ <beschulz@...> wrote:Hi Dora: Usu. when I wake up tired, it does not improve. A day like today, I'll be ready for bed by the time 5:00 comes around. (I've even been too tired to eat!) I'm even having problems at work today doing things I've been doing for 30 years and, now, my nose is bleeding again. Don't know if the two things are related or not. Dora Medina <zenned1@...> wrote: Hi Barb, I am going for a sleep study March 8th, just because my dr. wants to eliminate all causes of fatigue. I'm glad! Just curious - do you feel tired all day, or is there a time when you get a little energy? I start feeling awake about the time I should wind down - 4 or 5 in the afternoon. I always wake up exhausted. I'm trying to figure out why that may be, and am looking at diet, supplements, etc to see if I can find any correlation anywhere. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2004 Report Share Posted June 7, 2004 I called Mark and talked to him about why he could help and how, then I called his secretary and just simply followed their directions. Barb [ ] Mark Schauss > > > > > > > > > > > > > > > My daughter is 14 years old does not have epilepsy. But has > > alot > > > > of > > > > > > > > > > anxiety. Without taking anykind of medication is there > > anything > > > > else > > > > > > > > > > she can do to help herself. They had her on Zoloft but we took > > her > > > > > off. She was only on that for about a month. > > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Barb, Thanks for the info. I will wait until I get these reports back from the lab my doc sent me to, and depending on the outcome, I will decide what to do next. Mark is a great guy and very smart, I got that from all his answers and suggestions to me. How did you go about having these tests done and sent to him? Thanks Barb for answering my questions! Grace On Fri, 04 Jun 2004 12:57:37 -0600 Barb Hunte <bhunte@...> writes: > Grace, > > I strongly recommend having the Urine Organic Acid Report completed > by Mark > through his company. It helped my daughter soooooooooooo much, > because it > is very detailed and specific to her body. It eliminated the guess > work and > gave me specifics for her body. This is unique to anyone else I > have found > to help. I've actually been able to use the report with my > pediatrician to > obtain an appointment with a metabolic specialist, and know exactly > which > supplements she needs to bring her stability. I actually just found > out > last week that her EEG is finally clear. We've been trying to do > that for > 14 months. I've been using Mark's recommendations (after an > analysis) since > November. Twice I have stopped all supplements in order to clear > her body > and allow me to figure out what was going on for her. Both times > she became > more unstable, and stability returned when I reintroduced Mark's > supplements. The key was the detailed report, I now know exactly > what's > going on in her body. Mark is an extremely smart man. He has spent > much > time researching, and in his daughter's case he taught her > neurologist > important keys. > > If you have any more questions for me, I'll be glad to answer them. > > Barb > > > > [ ] Mark Schauss > > > > > > > > > > > > My daughter is 14 years old does not have epilepsy. But has > alot > > > of > > > > > > > > anxiety. Without taking anykind of medication is there > anything > > > else > > > > > > > > she can do to help herself. They had her on Zoloft but we took > her > > > > off. She was only on that for about a month. > > > > Thanks > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Hi Barb yes I am from WV but I haven't been invited to visit Miss . I guess I am not on her A list. What a shame boohooo................... Maybe by Christmas she'll think of me.lololol Hope you are having a good day, the WV hillbilly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 they accept payments and will work with you. The assistant told me if I could get 4 other families that the doctor would come to me.....they are sincere with wanting to help.....but they are not a foundation so they do not accept insurance jenn joanie46115 <bjwilson@...> wrote: Dear Barb, I have looked at the site and probably will call for more info. But OUCH!! The cost!!! Does insurance ever pay any of this?? I am drained from what we are already doing. Do they accept payment programs? I AM intrigued and have done some searches, but haven't found anything negative. But then, most of the sites are in French. Joanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Barb, I also told Jenn that I was willing to be one of the parents for the group of 4 or 5, but I don't think that she got anyone else. It's worth a try, but the price is what's keeping people from getting involved. Grace Barb Hunte <bhunte@...> wrote: Hello Joanie, I am very exhausted tonight, so can't type much, but am willing to talk via phone. Contact me off the chat page and then we can exchange phone numbers, talking is sometimes easier. I'm soooooooooo sorry your and 's journeys has been so hard!!!!!! There is also a prayer ministry that has helped up out, and my daughter improved with their help as well. If this is something you would like to discuss let me know. Cost. Yuck. The Centre was helping families for free or little cost and almost had to shut their doors. They have to charge, but they still have a human heart. I know Claudie flew to New York at the beginning of December to help out families there. Check with Kim, but I believe if you have a group of families available (4-5) who may need the help of the Centre they will travel for the assessment. Or they can Fed Ex equipment that will allow a video feed for the assessment. Once the assessment is completed (2, 3hr sessions) the rest can be accomplished with good communication via email and telephone. I have found them to be very workable. Jenn (someone else on the chat page) did a google search on them and Claudie's books. Yes they are in French, but she said Google has a translate button and it allowed her to view the studies etc. in English. I have been too tired these last few nights to pursue reading the studies. Confirm via email, let's exchange numbers, talk to the Centre yourself (sometimes you can get Claudie directly) and let's go from there. Sorry I'm too exhausted to type more, I'm fighting my second head cold this month, due largely to lack of sleep. Talk to you soon, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Thanks Barb, I'm waiting to see if anyone else responds to Jenns posts or I guess she'll go at it alone if she can get the funds. Grace Barb Hunte <bhunte@...> wrote: I wish no one ever had to even think about $. Anyway, one day I'm sure it will some how be covered, until then trust God to provide the funds, He has for us. Also The Centre (Claudie) has helped our daughter so much that I do not feel overcharged. I realize there is no way at knowing that before you try a treatment. They realize that too, so I believe there is some kind of money back guarantee. I'm not sure though, because I've had no need to inquire about it. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 hi, so far I have 3 people-grace,chris and joanie who have shown interest in this. I am very serious about this..and I am willing to do just about anything (legal) to make this happen. I am working on setting up a fund for my daughter but I think that if I do this with other parents we should probably find a way to help one another with the expense. So...........any ideas? I was thinking garage sales,donation jars, hitting up our churches,friends and family (in a good way) I am sure Claudie will give a small discount to us...but I am not sure how much. Anyway...keep in conact and let me know! Thanks Jenn Grace <foxyfoxgrace@...> wrote: Thanks Barb, I'm waiting to see if anyone else responds to Jenns posts or I guess she'll go at it alone if she can get the funds. Grace Barb Hunte <bhunte@...> wrote: I wish no one ever had to even think about $. Anyway, one day I'm sure it will some how be covered, until then trust God to provide the funds, He has for us. Also The Centre (Claudie) has helped our daughter so much that I do not feel overcharged. I realize there is no way at knowing that before you try a treatment. They realize that too, so I believe there is some kind of money back guarantee. I'm not sure though, because I've had no need to inquire about it. Barb Quote Link to comment Share on other sites More sharing options...
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