Guest guest Posted January 6, 2005 Report Share Posted January 6, 2005 Jenn, I have a couple of ideas for you. Go into several pizza shops, wawas or places like that. Make up containers with a picture on it and a slit on the top. Tell your story and what you want the money to go to. ALso I have a epilepsy support group EpilepsyApproach/ You can sign up and place the info there and address you want to send the money too. I place that info in my links area till you collect your money needed and then take it off after you let me know. Hope this helps. > I wish no one ever had to even think about $. Anyway, one day I'm sure it > will some how be covered, until then trust God to provide the funds, He has > for us. Also The Centre (Claudie) has helped our daughter so much that I do > not feel overcharged. I realize there is no way at knowing that before you > try a treatment. They realize that too, so I believe there is some kind of > money back guarantee. I'm not sure though, because I've had no need to > inquire about it. > > Barb > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 -a, Thanks for your reply. Besides my elbows I am having problems with my hands, wrists and ankles. They are really baffled as to what is wrong with me. Up until today the rheumatologist what certian I have RA but my Rheumatoid factor was only 24, which they said is only a slight elevation and that my liver panel and other blood tests were ok. Now she thinks that maybe it might be nerve compression. I was on 20 mgs of Prednisone and now for the last 2 days I am on 10mgs. I Was supposed to taper off in 3 days but my R tologist told me not to. In addition to scanning my elbows she has now ordered my wrists to be scanned too. I was not scheduled to see her offically until the 14th but had to have an emergency appointment today because my wrists and elbows hurt so badly last night that I was up crying all night with no relief despite the prednisone. So it boils down to this, went in today dr. said not really sure now, still have MRI but add wrists into scan, here is tylenol 3 and call on the 14th to discuss results and decide what to do from there. I hate not knowing what the heck is going on!! They don't know, I don't know! ARRRGHH! Barb -- In , a <a54@s...> wrote: > Barb, > > In time, talking to us as a group may feel more comfortable. I > understand how you feel. It is great to get the collective > experience from so many knowledgeable members. Between us all, we've > taken ever med and had every treatment. > The MRI doesn't sound like fun, but hopefully it will be tolerable > for you. > Mood swings is one of the major side effects of prednisone. > Prednisone has a lot of side effects, so hopefully you won't be on it > for long. > Does your doctor intend on starting you on RA meds soon? Do you have > any other joints that are affected besides your elbows? > > a > > > On Sep 5, 2005, at 8:10 PM, sassyone3173 wrote: > > > Hi guys. I am not really good at the group thing, i never know what > > to > > say. One on one I am okay, but in a group I am a " chicken " . This > > Thursday I go for an MRI on both elbows, an hour each side! Ouch! My > > Rheumatologist asked if i could handle it, I just responded with > > " hope > > so. " They are using the new extremity MRI where only the joint being > > examined is placed in the machine, but holding my elbows that long is > > what concerns me. The prednisone they started me on last Tuesday is > > making me really moody. Has anyone else experienced that? If so how > > did you deal with it? Was there anything you did that helped it? I am > > usually a patient person and now I am crabbing at my kids and hubby a > > lot. Any imput would help greatly, I am new to this. > > > > Sincerely, > > > > Barb ( Sassyone3173) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2005 Report Share Posted September 6, 2005 Barb, Your rheumatoid factor doesn't have to be positive in order to have RA. I've never had a positive RF in 30 years. 20% of rheumatoid patients have a negative rheumatoid factor. That is what is so frustrating about diagnosing this disease. It CANNOT be diagnosed with blood tests alone. Nerve compression to me sounds unlikely since so many joints are involved, but I'm not a doctor. When you get your MRI results it may show erosion. If it shows bone erosion it may help with the diagnosis. I hope you get answers soon so that you can get on medication and get some relief. a On Sep 6, 2005, at 6:32 PM, sassyone3173 wrote: > -a, > > Thanks for your reply. Besides my elbows I am having problems with my > hands, wrists and ankles. They are really baffled as to what is wrong > with me. Up until today the rheumatologist what certian I have RA but > my Rheumatoid factor was only 24, which they said is only a slight > elevation and that my liver panel and other blood tests were ok. Now > she thinks that maybe it might be nerve compression. I was on 20 mgs > of Prednisone and now for the last 2 days I am on 10mgs. I Was > supposed to taper off in 3 days but my R tologist told me not to. In > addition to scanning my elbows she has now ordered my wrists to be > scanned too. I was not scheduled to see her offically until the 14th > but had to have an emergency appointment today because my wrists and > elbows hurt so badly last night that I was up crying all night with > no relief despite the prednisone. So it boils down to this, went in > today dr. said not really sure now, still have MRI but add wrists > into scan, here is tylenol 3 and call on the 14th to discuss results > and decide what to do from there. I hate not knowing what the heck is > going on!! They don't know, I don't know! ARRRGHH! > > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Barb, Did you decide to give him 100mg based on his weight? I don't know how to decide the dosage for my daughter who is about 20 lbs. Thanks, [ ] Digest Number 7699 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 > I don't know how to decide the dosage for my daughter who is about 20 lbs. 1/8 to 1/2 mg per pound of body weight, per dose. That means 2.5 to 10 mg. What chelator are we talking about? DMSA, ALA? Valentina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Doc's orders. Barb [ ] Digest Number 7699 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 take 3 -300 mg milk per day or 4 every 6 hoursTim Parsons knoxville,tn 37931 865-588-2465 x107 work www.knoxville1.com Groups are talking. We´re listening. Check out the handy changes to . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 I agree with all the others...you're the best Barb!! Hugs...a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 I love you a, and thanks!  Hugs, Barb From: rascalsniche@... <rascalsniche@...> Subject: [ ] Barb Date: Saturday, May 22, 2010, 5:46 PM  I agree with all the others...you're the best Barb!! Hugs...a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 my insurance company does not authorize pre-therapy so I am just riding my stationery bike and some simple leg exercises and trying to lose some weight to help with therapy afterwards....... my pain in the hip gets worse daily......some days I wonder if I can last until 11/11..... Gayle, I have not noticed. Are you having a hip or knee done? BARB in Florida Re: day two Barb, I may be a rarity here, but day two was fine for me. I was up walking around my hospital room unaided on day two. And it just got easier with each passing day. The worse day was the day before the op! But I guess I am one of the lucky ones. > > I have been talking about hip replacement with another group of > people and they seem to agree that day two after the surgery is > the worst day of the first week. Do you guys agree? BARB > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 I'll be having my right knee replaced. Is yours a hip or knee?  Gayle From: BARB <barbmch@...> Subject: Re: Re: day two Joint Replacement Date: Monday, September 6, 2010, 8:29 AM Maybe I will be one of the lucky ones too.......11/11 gets closer and closer........ BARB Re: day two Barb, I may be a rarity here, but day two was fine for me. I was up walking around my hospital room unaided on day two. And it just got easier with each passing day. The worse day was the day before the op! But I guess I am one of the lucky ones. > > I have been talking about hip replacement with another group of > people and they seem to agree that day two after the surgery is > the worst day of the first week. Do you guys agree? BARB > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 right hip Re: day two Barb, I may be a rarity here, but day two was fine for me. I was up walking around my hospital room unaided on day two. And it just got easier with each passing day. The worse day was the day before the op! But I guess I am one of the lucky ones. > > I have been talking about hip replacement with another group of > people and they seem to agree that day two after the surgery is > the worst day of the first week. Do you guys agree? BARB > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 Brickey, I have a recumbent bike.......a Schwinn 230.......we paid $377 on Amazon. I didn't know what to get or in what price range. So I picked a mid-range one. I am very satisfied. Not hard to assemble. Works so smoothly. I ride it twice a day for 30 minutes each. After my new hip, I should be able to ride it a lot more than that. BARB Re: Barb In a message dated 9/7/2010 5:02:14 P.M. Pacific Daylight Time, barbmch@... writes: I am just riding my stationery bike and some simple I am thinking of buying a recumbent stationary bike as I know I will be kicked out of PT pretty soon. My PT has me riding the bike for at least 10 minutes. Just started to turn the pedals 360 last week. I was looking at the Walmart Weslo Pursuit at $167 and the Sears Nordic Trac C3 at $349.88. Sears also has a Pro Form 10.8 at $249.99. I placed an add on Craig's list and had only two responses. Both canceled when their mates heard what they were up to and both said they plan on using it. Any advice from users? Brickey Quote Link to comment Share on other sites More sharing options...
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