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<< I was thinking, kids born with Spina

Bifida also have chiari and hydrocephalysis. So, could problems such

as cervical stenosis, POTS or NMH,and TMJ all be related to the same

birth defect? >>

yes , they can all be related to neural tube defects in development , and the

expression on both body systems affected by the central nervous system .

there can be any one of these ....a combo of em ( random , and different in

seperate folks ), or somone may have all of these .

personally , ive had spinal bifida oculta surgerys ....then acm surgery

.....had pots /nhm problems from childhood , that resolved almost competely

with decompresion ...and had trigeminal nerve impacts , that were the first

symtpom of my acm taken seriously by a doctor , ...an mri and both acm and ms

were found . the specialists have told me , that the trigeminal nerve

symtpoms , could be caused by either acm or ms . tmj sytmptoms are often

actually acm impacts in us zipperheads .

so ... guess im a good example of someone having all of these ...connected to

that neural tube defect .....but , IM ALSO a GREAT example of what modern

medicine can do to help someone with all these .....what surgery hasnt helped

with , medications are making a big dent in ....as well as other wellness

activities !!!! .....i think the most important thing to understand is , seek

assistance with those things that are truly troublesome ......and keep it in

perspective .....find a very good doctor that truly understands acm , sm ,

stenosis , teathering , sb , ....and be screened for all of these when any

one is found !

trust your insticts and what your body is telling you .....remember there is

the opertunity for tremoudous improvement ....and truly follow your heart to

help !

sarah in paradise

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Hi All,

Finally had surgery, long recovery. 1 month in hospital

Anyway, was wondering how many of us have other problems that

may be part of Chairi as a whole. I was thinking, kids born with Spina

Bifida also have chiari and hydrocephalysis. So, could problems such

as cervical stenosis, POTS or NMH,and TMJ all be related to the same

birth defect?

Just a thought since I have all other problems remaining post surgery.

Dina

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