Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 << I was thinking, kids born with Spina Bifida also have chiari and hydrocephalysis. So, could problems such as cervical stenosis, POTS or NMH,and TMJ all be related to the same birth defect? >> yes , they can all be related to neural tube defects in development , and the expression on both body systems affected by the central nervous system . there can be any one of these ....a combo of em ( random , and different in seperate folks ), or somone may have all of these . personally , ive had spinal bifida oculta surgerys ....then acm surgery .....had pots /nhm problems from childhood , that resolved almost competely with decompresion ...and had trigeminal nerve impacts , that were the first symtpom of my acm taken seriously by a doctor , ...an mri and both acm and ms were found . the specialists have told me , that the trigeminal nerve symtpoms , could be caused by either acm or ms . tmj sytmptoms are often actually acm impacts in us zipperheads . so ... guess im a good example of someone having all of these ...connected to that neural tube defect .....but , IM ALSO a GREAT example of what modern medicine can do to help someone with all these .....what surgery hasnt helped with , medications are making a big dent in ....as well as other wellness activities !!!! .....i think the most important thing to understand is , seek assistance with those things that are truly troublesome ......and keep it in perspective .....find a very good doctor that truly understands acm , sm , stenosis , teathering , sb , ....and be screened for all of these when any one is found ! trust your insticts and what your body is telling you .....remember there is the opertunity for tremoudous improvement ....and truly follow your heart to help ! sarah in paradise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi All, Finally had surgery, long recovery. 1 month in hospital Anyway, was wondering how many of us have other problems that may be part of Chairi as a whole. I was thinking, kids born with Spina Bifida also have chiari and hydrocephalysis. So, could problems such as cervical stenosis, POTS or NMH,and TMJ all be related to the same birth defect? Just a thought since I have all other problems remaining post surgery. Dina Quote Link to comment Share on other sites More sharing options...
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