Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Sal wrote: > Joe,Hi! Welcome to the list...I'm glad that you found us.... > > What kind of shunt do you have? I have a VP...and have had 2 revisions in > 10 years. I'm doing very well..... Hello Sal, My shunt is in in the cervical area, I'm ignorant I'm afraid as to what it is called, they told me, but my memory is sketchy on it. I will have to have it replaced of repaired because my symptoms throughout the whole range are increasing to intolerable levels to where I am very limited in all activities. I unfortunately waited too long for my first diagnosis so the best the surgeon could do was slow down the process of deterioration. My syrinx cavity now extends from the C2 level as far cadually as T8-9. The conus tip is at the t12-L1 level now. There are degenerative changes at C5-6 and C6-7 with broad based degenerative disc bulges at each level. My spinal cord is widened, and at the C4 level, measures approx. 9 mm in anteroposterior thickness and 2.1 cm lateral diameter with the syrinx occupying the majority of the volume, excluding a 2 mm rim of neural tissue. Along with this also comes the scoliosis. My daily meds are 2 200 mg Celebrix, 2 20 mg Kadian (time released morphine) and Flexeril prn. These help the pain except in my deltoid and forearm muscle areas. the only time they aren't in great pain is when I'm zonked out. Needless to say, waking up is always an unpleasant experience (bg). Thought I'd law all this out but to let you know, I still make the most of each day, even if its just reading on the computer and it beats the alternative,, right? <g> God bless Joe ACM II 03/05/90 > > Hope for the same for you... > Best wishes, > Sally R ACM... decompression '91....VP shunt...hydro...doing well in > Bethlehem,Pa > > JoeM wrote: > > > > Hi all, > > > I'm glad that I came across this group yesterday. I was looking for > > > information on the neurosurgeon > > > I plan to have for my second round of operations. I have had my shunt > > > for 10 years as of March 5 and it is no longer working properly. My > > > neurologist, Dr. Munoz, in , Tx. examined me last > > > week and after going over new MRI's told me I have to have a new > > > shunt, pronto. > > > I am glad to have others after all these years to share with and > > > pray for as well. Everyone here knows about that loneliness, not being > > > able to even explain to loved ones and children why you just can't do > > > the things you used to do and enjoyed. One thing though, I know I > > > would have never had the patience to sit down and learn all about > > > computers, I was an outdoor person, but my ACM II pretty much > > > eliminated all of that. I wasn't diagnosed until I was 39 and pretty > > > much run myself into the ground before going to a doctor and even then > > > thought I only had a bad cold with a stopped up head which caused the > > > loud ringing in my ears and face numbness. Of course I could fill a > > > few pages with all the symptoms I still have because of not > > > discovering there ACM II sooner. > > > My prayers are with you all regardless of what phase you are in > > > and your families. With tools like this list, hopefully we can shed > > > some light on our disease and help some out there who have no clue as > > > to what is wrong with them or a loved one. > > > God bless, Joe > > > ACM II operated on 03/05/90 > > > > > > -- > > > _____________________________________________ > > > Joe km5cw@... North Texas > > > > > > > > > > -- > > _____________________________________________ > > Joe km5cw@... North Texas > > > > Help section: /help/ > > > > NOTE: NCC refers to posts with No Chiari Content > > > > Unsubscribe Yourself: chiari-unsubscribeegroups > > > > WACMA Home: www.pressenter.com/~wacma > > > > WACMA List: www.eGroups.com/group/chiari -- _____________________________________________ Joe km5cw@... North Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Thanks, it's amazing how we fight daily for all life has to offer and don't usually see what is happening to ourselves. Thanks for shareing. God Bless, Joe ACM II 03/05/90 " M. Newhof " wrote: > hi joe, > > i ran myself into the ground too...but you know it all happens so slowly > that for me i knew i was not feeling well but...i have allergies and > " asthma " and thought i was just to stressed from being tired and > sick...makes you kinda tough in a sickly sort of way doesn't it?? > meribeth in mi > surgery 9/99 > _____________________________________________ Joe km5cw@... North Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 DUPUYSRUS@... wrote: > In a message dated 11/7/2000 3:50:04 PM Central Standard Time, > km5cw@... writes: > > > >> My daily meds are 2 200 mg Celebrix, 2 20 mg Kadian (time released >> morphine) > Hi, The Kadian is a morphine sulfate drug, there is a pdr site that gives all the specifics. I was taking 4 to 5 hydrocodone a day and my neurologist was concerned so she had a way to figure how much of the time release caps to substitute with. It is a fairly new brand name of morphine and I had a heck of a time finding a pharmacy that carried it. It is working out real well though, no side effects as it is a very small dose. I hope I don't have to increase it. The Flexeril makes me sleepy also, I'll ask her about the one you use, thanks. > Hi Joe, > I have never heard of the pain med that you are taking. Can you fill > me on > this one? I am currently taking Loratab and it is not working all the > time. > When I saw time-released that perked my interest. God bless, Joe ACM II 03/05/90 _____________________________________________ Joe km5cw@... North Texas Quote Link to comment Share on other sites More sharing options...
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