Re: Re: Bruce/Hi Y'all - my Pulmo visit results

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Bruce I didn't realize your trip is almost here. I have an idea for you. Go to the Library and get a few books on CD.   and I had a couple while we were on our trip and really enjoyed them. I know you are going to have a ball. I truly hope you have the time of your life. I think the zoo would be my fav. Drive carefully and stay in contact with us.   Take your chair out for a spin so you'll know how it goes. NO tickets..Give Leanne a special big ol' hug for me. Love and Prayers, Peggy"Worry looks around, Sorry looks back,  Faith looks up." BabsI'm leaving on Monday and will leisurely drive over two days. I'm goingto pick some things along the way I want to see. Wednesday I start witha CT, then Echo, then PFT's, bloodwork when I have a break and then theDoctor. Thursday could be more or just relaxing after Wednesday until aspecial evening which by itself is worth the whole trip. Friday I'llhead back unless they want to do something else and get home eitherSaturday or Sunday.I've got over 150 CD's pulled and ready for the trip (some mine and someborrowed) and the liquid reservoir and concentrator already in my van,my portable tank ready as well. My powerchair lift is being installedtomorrow and while I don't anticipate using the chair on the trip younever know. Tulsa zoo is world class...maybe I'll decide to zoom around.St. Louis, Chicago....I've been told I must see the aquarium somehowwhile there.I'm looking forward to this little adventure. Funny, here I am on oxygenand headed out on this. I've never taken a road trip this long by myselfbefore and not one with or without anyone else as an adult. I worked toomuch and never vacationed. I also really look forward to meeting thepeople at the University of Chicago. Brown, the coordinatingnurse, just called and she is just so incredible. Reminds me of Tamra at Emory who I'm sure Jane and others can sing praises of.Anyone got any things I should stop and see for a few minutes along theway just yell or if there is anyone close to the route, a man does haveto eat and I'll always take any of you to lunch or dinner or just sitand talk.> > > > > > >> > > > > > > Hi Y'all, I had a very busy day and just now got around to> > > > posting....> > > > > > > Pulmo visit went well. My lung function has decreasedabout 5%> > > > which> > > > > > > is not too bad, so everything is basically status quo.> > > > > > > He wants a CT scan in October and of course the usualother> > tests.> > > > He> > > > > > > had to be reminded that I don't want any meds and said he> > realized> > > > > > > that he was just there to monitor me... He was really> > trying to> > > > get> > > > > > > me to take either Pred or Imuran and I declined> > > > > > > I've been doing better on my O2 use but he wasn't thrilled> > when I> > > > > > > showed up in his office without it as I quite casually> > sauntered> > > > away> > > > > > > from my truck forgetting that I can't breathe very well.Oh> > gosh,> > > > > > > h was quite upset with me too! She had been on herphone> > and> > > > > > > wasn't paying attention when I left the truck. Figuresthat> > the> > > > one> > > > > > > day I forget to wear the hose is the day that I have tosee> > the> > > > Pulmo!> > > > > > > LOL!> > > > > > > I think it was a good visit. He didn't really remember mefrom> > > > last> > > > > > > October because that was the first time I had seen him,but I> > > > think> > > > > > > he'll remember me from now on....> > > > > > > My weight was the same, my BP was great....I'm still on2.5> > lpm of> > > > O2.> > > > > > > I may have posted before that it was 2, but it's been 2.5> > since> > > > > > > October. He saw no need to increase it since the declinein> > lung> > > > > > > function was minimal.> > > > > > > We also stopped for lunch, went to a pet store(aaaahhhhhh, I> > > > wanted> > > > > > > ALL of the puppies!!!) and we also went to Walgreen's andthen> > to> > > > a> > > > > > > Bridal Shop with a friend of hs who is gettingmarried in> > > > October> > > > > > > and h is going to be her Maid of Honor.> > > > > > > Home, dinner, Idol, etc....and I'm pooped. I've beencoughing> > ever> > > > > > > since the PFT's but that is subsiding...> > > > > > > To bed now...will catch up with the posts later. > > > > > > > Hugs y'all!> > > > > > > Babs> > > > > > >> > > > > >> > > > >> > > >> > >> >>