Re: Bruce/Hi Y'all - my Pulmo visit results

[Guest guest]

Ok, that graphic just made me LOL, out loud...as Monk says.

OMG Bruce, that was just damn funny!!!

I'm wearing the nose hose as we speak, I promise!

I think almost all hotels have a business center now, so you should be

able to keep us updated, as you feel up to it.

I know this whole trip and the tests will be an ordeal in and of

themselves, but updates will be greatly appreciated....

Hugs and a big smile!

Babs

> > > >

> > > > Hi Y'all, I had a very busy day and just now got around to

> posting....

> > > > Pulmo visit went well. My lung function has decreased about 5%

> which

> > > > is not too bad, so everything is basically status quo.

> > > > He wants a CT scan in October and of course the usual other tests.

> He

> > > > had to be reminded that I don't want any meds and said he realized

> > > > that he was just there to monitor me... He was really trying to

> get

> > > > me to take either Pred or Imuran and I declined

> > > > I've been doing better on my O2 use but he wasn't thrilled when I

> > > > showed up in his office without it as I quite casually sauntered

> away

> > > > from my truck forgetting that I can't breathe very well. Oh gosh,

> > > > h was quite upset with me too! She had been on her phone and

> > > > wasn't paying attention when I left the truck. Figures that the

> one

> > > > day I forget to wear the hose is the day that I have to see the

> Pulmo!

> > > > LOL!

> > > > I think it was a good visit. He didn't really remember me from

> last

> > > > October because that was the first time I had seen him, but I

> think

> > > > he'll remember me from now on....

> > > > My weight was the same, my BP was great....I'm still on 2.5 lpm of

> O2.

> > > > I may have posted before that it was 2, but it's been 2.5 since

> > > > October. He saw no need to increase it since the decline in lung

> > > > function was minimal.

> > > > We also stopped for lunch, went to a pet store (aaaahhhhhh, I

> wanted

> > > > ALL of the puppies!!!) and we also went to Walgreen's and then to

> a

> > > > Bridal Shop with a friend of hs who is getting married in

> October

> > > > and h is going to be her Maid of Honor.

> > > > Home, dinner, Idol, etc....and I'm pooped. I've been coughing ever

> > > > since the PFT's but that is subsiding...

> > > > To bed now...will catch up with the posts later.

> > > > Hugs y'all!

> > > > Babs

> > > >

> > >

> >

>

[Guest guest]

Babs

I don't look at it like an ordeal but rather like the chance to get

checked out by the best and get everything previous confirmed or find

out more. It's also making a longer trip than I have before and showing

that I can do it and enjoy it and I do intend to enjoy it. Plus, I do

have plans to eat dinner at what I consider the best restaurant in the

country (original one in Miami Lakes but one in Chicago) with an

incredible woman.

It's pretty amazing now that I can't think of anywhere in this country I

could go that I don't have a friend I'd like to see. Every time I think

of a trip I think of who is along the route. I still want to find a map

and put pins in it for all the people and locations. Can't find it on

computer so may have to resort to old methods of regular map.

> > > > >

> > > > > Hi Y'all, I had a very busy day and just now got around to

> > posting....

> > > > > Pulmo visit went well. My lung function has decreased about 5%

> > which

> > > > > is not too bad, so everything is basically status quo.

> > > > > He wants a CT scan in October and of course the usual other

tests.

> > He

> > > > > had to be reminded that I don't want any meds and said he

realized

> > > > > that he was just there to monitor me... He was really

trying to

> > get

> > > > > me to take either Pred or Imuran and I declined

> > > > > I've been doing better on my O2 use but he wasn't thrilled

when I

> > > > > showed up in his office without it as I quite casually

sauntered

> > away

> > > > > from my truck forgetting that I can't breathe very well. Oh

gosh,

> > > > > h was quite upset with me too! She had been on her phone

and

> > > > > wasn't paying attention when I left the truck. Figures that

the

> > one

> > > > > day I forget to wear the hose is the day that I have to see

the

> > Pulmo!

> > > > > LOL!

> > > > > I think it was a good visit. He didn't really remember me from

> > last

> > > > > October because that was the first time I had seen him, but I

> > think

> > > > > he'll remember me from now on....

> > > > > My weight was the same, my BP was great....I'm still on 2.5

lpm of

> > O2.

> > > > > I may have posted before that it was 2, but it's been 2.5

since

> > > > > October. He saw no need to increase it since the decline in

lung

> > > > > function was minimal.

> > > > > We also stopped for lunch, went to a pet store (aaaahhhhhh, I

> > wanted

> > > > > ALL of the puppies!!!) and we also went to Walgreen's and then

to

> > a

> > > > > Bridal Shop with a friend of hs who is getting married in

> > October

> > > > > and h is going to be her Maid of Honor.

> > > > > Home, dinner, Idol, etc....and I'm pooped. I've been coughing

ever

> > > > > since the PFT's but that is subsiding...

> > > > > To bed now...will catch up with the posts later.

> > > > > Hugs y'all!

> > > > > Babs

> > > > >

> > > >

> > >

> >

>

[Guest guest]

That's a cool idea Bruce. A visual reminder of all the people who care

about you, and all the places you have yet to see, or places you've

been.... I like it!!!

Chicago is an interesting city. I've been there once, 9 years ago

before I became so ill, and we had a wonderful time.

Enjoy it all and give us detailed reports and your thoughts about what

you see and do.

When do you leave? I don't want to say Safe Travels days ahead of time

and look a fool.....

Hugs!

Babs

> > > > > >

> > > > > > Hi Y'all, I had a very busy day and just now got around to

> > > posting....

> > > > > > Pulmo visit went well. My lung function has decreased about 5%

> > > which

> > > > > > is not too bad, so everything is basically status quo.

> > > > > > He wants a CT scan in October and of course the usual other

> tests.

> > > He

> > > > > > had to be reminded that I don't want any meds and said he

> realized

> > > > > > that he was just there to monitor me... He was really

> trying to

> > > get

> > > > > > me to take either Pred or Imuran and I declined

> > > > > > I've been doing better on my O2 use but he wasn't thrilled

> when I

> > > > > > showed up in his office without it as I quite casually

> sauntered

> > > away

> > > > > > from my truck forgetting that I can't breathe very well. Oh

> gosh,

> > > > > > h was quite upset with me too! She had been on her phone

> and

> > > > > > wasn't paying attention when I left the truck. Figures that

> the

> > > one

> > > > > > day I forget to wear the hose is the day that I have to see

> the

> > > Pulmo!

> > > > > > LOL!

> > > > > > I think it was a good visit. He didn't really remember me from

> > > last

> > > > > > October because that was the first time I had seen him, but I

> > > think

> > > > > > he'll remember me from now on....

> > > > > > My weight was the same, my BP was great....I'm still on 2.5

> lpm of

> > > O2.

> > > > > > I may have posted before that it was 2, but it's been 2.5

> since

> > > > > > October. He saw no need to increase it since the decline in

> lung

> > > > > > function was minimal.

> > > > > > We also stopped for lunch, went to a pet store (aaaahhhhhh, I

> > > wanted

> > > > > > ALL of the puppies!!!) and we also went to Walgreen's and then

> to

> > > a

> > > > > > Bridal Shop with a friend of hs who is getting married in

> > > October

> > > > > > and h is going to be her Maid of Honor.

> > > > > > Home, dinner, Idol, etc....and I'm pooped. I've been coughing

> ever

> > > > > > since the PFT's but that is subsiding...

> > > > > > To bed now...will catch up with the posts later.

> > > > > > Hugs y'all!

> > > > > > Babs

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Babs

I'm leaving on Monday and will leisurely drive over two days. I'm going

to pick some things along the way I want to see. Wednesday I start with

a CT, then Echo, then PFT's, bloodwork when I have a break and then the

Doctor. Thursday could be more or just relaxing after Wednesday until a

special evening which by itself is worth the whole trip. Friday I'll

head back unless they want to do something else and get home either

Saturday or Sunday.

I've got over 150 CD's pulled and ready for the trip (some mine and some

borrowed) and the liquid reservoir and concentrator already in my van,

my portable tank ready as well. My powerchair lift is being installed

tomorrow and while I don't anticipate using the chair on the trip you

never know. Tulsa zoo is world class...maybe I'll decide to zoom around.

St. Louis, Chicago....I've been told I must see the aquarium somehow

while there.

I'm looking forward to this little adventure. Funny, here I am on oxygen

and headed out on this. I've never taken a road trip this long by myself

before and not one with or without anyone else as an adult. I worked too

much and never vacationed. I also really look forward to meeting the

people at the University of Chicago. Brown, the coordinating

nurse, just called and she is just so incredible. Reminds me of Tamra

at Emory who I'm sure Jane and others can sing praises of.

Anyone got any things I should stop and see for a few minutes along the

way just yell or if there is anyone close to the route, a man does have

to eat and I'll always take any of you to lunch or dinner or just sit

and talk.

> > > > > > >

> > > > > > > Hi Y'all, I had a very busy day and just now got around to

> > > > posting....

> > > > > > > Pulmo visit went well. My lung function has decreased

about 5%

> > > > which

> > > > > > > is not too bad, so everything is basically status quo.

> > > > > > > He wants a CT scan in October and of course the usual

other

> > tests.

> > > > He

> > > > > > > had to be reminded that I don't want any meds and said he

> > realized

> > > > > > > that he was just there to monitor me... He was really

> > trying to

> > > > get

> > > > > > > me to take either Pred or Imuran and I declined

> > > > > > > I've been doing better on my O2 use but he wasn't thrilled

> > when I

> > > > > > > showed up in his office without it as I quite casually

> > sauntered

> > > > away

> > > > > > > from my truck forgetting that I can't breathe very well.

Oh

> > gosh,

> > > > > > > h was quite upset with me too! She had been on her

phone

> > and

> > > > > > > wasn't paying attention when I left the truck. Figures

that

> > the

> > > > one

> > > > > > > day I forget to wear the hose is the day that I have to

see

> > the

> > > > Pulmo!

> > > > > > > LOL!

> > > > > > > I think it was a good visit. He didn't really remember me

from

> > > > last

> > > > > > > October because that was the first time I had seen him,

but I

> > > > think

> > > > > > > he'll remember me from now on....

> > > > > > > My weight was the same, my BP was great....I'm still on

2.5

> > lpm of

> > > > O2.

> > > > > > > I may have posted before that it was 2, but it's been 2.5

> > since

> > > > > > > October. He saw no need to increase it since the decline

in

> > lung

> > > > > > > function was minimal.

> > > > > > > We also stopped for lunch, went to a pet store

(aaaahhhhhh, I

> > > > wanted

> > > > > > > ALL of the puppies!!!) and we also went to Walgreen's and

then

> > to

> > > > a

> > > > > > > Bridal Shop with a friend of hs who is getting

married in

> > > > October

> > > > > > > and h is going to be her Maid of Honor.

> > > > > > > Home, dinner, Idol, etc....and I'm pooped. I've been

coughing

> > ever

> > > > > > > since the PFT's but that is subsiding...

> > > > > > > To bed now...will catch up with the posts later.

> > > > > > > Hugs y'all!

> > > > > > > Babs

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>