Re: Mass General Neurology Unit

[Guest guest]

Sheila,

I don't know too much about the Mass General in terms of MSA. One of

the folks in the New England support group was diagnised there

(initially diagnosed with Parkinson's.) My husband rob sees Dr. Roy

Freeman at Beth Israel Deaconess, and we are quite pleased with his

care. Dr. Freeman is a good and caring man as well as a good doctor.

Do you live near Boston? We would love to have you join the support

group, if that works for you. Let me know if you are interested and

I will add you to the list. I'm hoping to have a meeting in late

September or early November.

Please feel free to email me privately (cblanger@...) if you want

more information.

Carol Langer

> has anyone had experience with Mass General and MSA diagnosis ?

>

> would appreciate any info on Dr.s, experiences, etc.

>

> I am about to request a referral, (as I noticed from their i-net

info that referrals are protocol) - would love to just wander up

there myself without having to pay a Dr. to send me .... but that's

just me ;-]

>

> thx for all the info on this board .... it has been very

helpful ....

[Guest guest]

hi! i don't have ANY knowledge of MASS GEN. but i was a premie (7 months

old) born in 1943! looking back on my life and my inabities i think a dx of

MSA would have been appropiatel. when i developed SCA 6 and was diagnosed in

1997 things are now even worse. but i feel i was dx very late in the game as

i ALWAYS was awkward and clumsy and accident prone--i just thought i was a

bit more so when SCA 6 kicked in. what is your story? <<< hugs, pamela

[Guest guest]

Sheila, Did you say you live in CT? If so, I once heard of a movement

disorder specialist in or near New Haven that was recommended -- has seen

PD+ disorders. I think his name was Dr. Ken Merick -- but I can verify that

if you are interested. Debbie

Debbie White

dwhite@...

> Re: Mass General Neurology Unit

>

>

> Sheila,

>

> I don't know too much about the Mass General in terms of MSA. One of

> the folks in the New England support group was diagnised there

> (initially diagnosed with Parkinson's.) My husband rob sees Dr. Roy

> Freeman at Beth Israel Deaconess, and we are quite pleased with his

> care. Dr. Freeman is a good and caring man as well as a good doctor.

>

> Do you live near Boston? We would love to have you join the support

> group, if that works for you. Let me know if you are interested and

> I will add you to the list. I'm hoping to have a meeting in late

> September or early November.

>

> Please feel free to email me privately (cblanger@...) if you want

> more information.

>

> Carol Langer

>

>

> > has anyone had experience with Mass General and MSA diagnosis ?

> >

> > would appreciate any info on Dr.s, experiences, etc.

> >

> > I am about to request a referral, (as I noticed from their i-net

> info that referrals are protocol) - would love to just wander up

> there myself without having to pay a Dr. to send me .... but that's

> just me ;-]

> >

> > thx for all the info on this board .... it has been very

> helpful ....

>

>

>